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A regular pediatrician can diagnose apraxia, and write a letter of medical

need/necessity for you. However it " means " more coming from a developmental

pediatrician or a pediatric neurologist (which is interesting because the

ped neurologists I know, admittedly know very little about apraxia and will

tell you they are not the best for the diagnosis - so it depends on the

experience of your specialists). The person most trained to make the

diagnosis is the SLP. I've been told by our regional center that the report

from the SLP has the most weight, but helps to be " supported " by an MD -

though not absolutely necessary. I thought it was too risky to go in with

just the SLP report without a supporting diagnosis when asking for more

services. I also wanted someone else who knew what they were doing to tell

me if this really was apraxia or not. Sounds like your SLP is waffling. She

should be able to make the call. Ask her to do a Kaufman apraxis test. My 2

year old was able to do it - but the child does need to have sufficient

concentration to get through it. We broke up the test over 3 sessions. But

also key to have the right diagnosis. You could also get an evaluation from

a PROMPT SLP for apraxia - a group well versed in apraxia - to make sure you

are going in the right direction. -

[ ] Re: Help

Hello All!

I am facing my Annual review meeting for my son next week-

Have actively been searching for a PROMPT trained therapist, and have found

two! at the children's Hospital located only a few blocks away from me (I

still

cannot believe my luck!)

My question is- right now even tho he turns three in a couple weeks, we are

able to keep him under EI until August of 2006. At that point, CPSE (from

their recent evaluation of him) will only be recommending speech therapy

three

times a week. Currently under EI he receives speech 2X, OT 2X and SpecEd

2X/

week. My Service coordinator just told me he can receive up to five

sessions of

speech therapy- if he has a diagnosis. His current speech therapist

suggests

that he has apraxia, but says she doesnt know for sure. I feel she may be

trying to hang on to us for as long as she can as a client, as she wont be

able

to provide therapy for him when he turns three (altho, maybe she could

continue

thru august now that we will continue under EI). In other words, she knows

if he has a diagnosis of apraxia i will change therapists and get a PROMPT

trained therapist- which she is not. This is the feeling i hate to admit

ive been

feeling for a couple months now, and now i am mad at myself for not trying

to

figure this out back then.

In any case, and sorry for the rambling, but this leads me to my two

important questions A- who needs to diagnose him as apraxic? Can his

regular

pediatrician do it? Id like to have the formal diagnosis for the meeting

next week,

so i can have them up the therapy to five times a week. And B) Also, i see

here and there posts about not being able to diagnose until they're three

years

old, and then i see posts where they were diagnosed at first meeting with a

speech therapist, at a much younger age.

Any thoughts would be very helpful- and i thank you for taking the time to

listen to me- and your help.

Thank you in advance!

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hi tracy- my son wasnt diagnosed until he started talking at 3.5 and was

consistently leaving the ends off of words. I think they call if final consonant

deletion and when apraxia was mentioned . one of the tests we did were the

kaufman - charlotte

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Hi,

We have a member that got TRICARE to cover her daughter's 2 DOCbands!

If you like I'll send you her emaial address. I'm sure she'll be

willing to tell her story.

-- In Plagiocephaly , " sunshinyday01 "

<sunshinyday01@y...> wrote:

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services. We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400 a

> month and we can not live like that with twins. My boys are going to be

> one next month. I am very upset that I have not got them the help they

> need. At this point I feel like no one cares what happens to my boys. I

> also feel that it will be my fault if they do not get better. I am very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA medicaid

> and they will not cover. Every were I go for help they turn me down and

> then I find out they have covered in the past but don't anymore b/c it

> is costing them to much money. What are we to do? I feel as though my

> country is letting my husband and I down. I fought for our country and

> have back it for so many years and when we need help they turn there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED HELP!!!!

>

> Sunshine mommy to and Vedder

>

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Hi,

We have a member that got TRICARE to cover her daughter's 2 DOCbands!

If you like I'll send you her emaial address. I'm sure she'll be

willing to tell her story.

-- In Plagiocephaly , " sunshinyday01 "

<sunshinyday01@y...> wrote:

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services. We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400 a

> month and we can not live like that with twins. My boys are going to be

> one next month. I am very upset that I have not got them the help they

> need. At this point I feel like no one cares what happens to my boys. I

> also feel that it will be my fault if they do not get better. I am very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA medicaid

> and they will not cover. Every were I go for help they turn me down and

> then I find out they have covered in the past but don't anymore b/c it

> is costing them to much money. What are we to do? I feel as though my

> country is letting my husband and I down. I fought for our country and

> have back it for so many years and when we need help they turn there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED HELP!!!!

>

> Sunshine mommy to and Vedder

>

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I know that this wasn't addressed to me but I would appreciate it if you would send her my email. I am interested in how she did it. Carolyn ginasmomma@...stripes6060 <taime@...> wrote: Hi,We have a member that got TRICARE to cover her daughter's 2 DOCbands!If you like I'll send you her emaial address. I'm sure she'll bewilling to tell her story.-- In Plagiocephaly , "sunshinyday01"<sunshinyday01@y...> wrote:>> I need help my twin boys need helmets. We have been denied by our > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services. We > recently went to the Air Force Aid for help and they approved a no-> interest loan but if we agree my husband

will only take home $400 a > month and we can not live like that with twins. My boys are going to be > one next month. I am very upset that I have not got them the help they > need. At this point I feel like no one cares what happens to my boys. I > also feel that it will be my fault if they do not get better. I am very > frustrated with this whole thing. I have read that other states > Medicaid is paying but my understanding is that medi-cal is CA medicaid > and they will not cover. Every were I go for help they turn me down and > then I find out they have covered in the past but don't anymore b/c it > is costing them to much money. What are we to do? I feel as though my > country is letting my husband and I down. I fought for our country and > have back it for so many years and when we need help they turn there > backs on you. I served a tour fighting in Enduring Freedom but my > children

can not get the medical help they need. I am now having > stomach problems b/c of all of this. What can I do?? WE NEED HELP!!!!> > Sunshine mommy to and Vedder>

Carolyn

Mom to and PJ

Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP.

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I know that this wasn't addressed to me but I would appreciate it if you would send her my email. I am interested in how she did it. Carolyn ginasmomma@...stripes6060 <taime@...> wrote: Hi,We have a member that got TRICARE to cover her daughter's 2 DOCbands!If you like I'll send you her emaial address. I'm sure she'll bewilling to tell her story.-- In Plagiocephaly , "sunshinyday01"<sunshinyday01@y...> wrote:>> I need help my twin boys need helmets. We have been denied by our > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services. We > recently went to the Air Force Aid for help and they approved a no-> interest loan but if we agree my husband

will only take home $400 a > month and we can not live like that with twins. My boys are going to be > one next month. I am very upset that I have not got them the help they > need. At this point I feel like no one cares what happens to my boys. I > also feel that it will be my fault if they do not get better. I am very > frustrated with this whole thing. I have read that other states > Medicaid is paying but my understanding is that medi-cal is CA medicaid > and they will not cover. Every were I go for help they turn me down and > then I find out they have covered in the past but don't anymore b/c it > is costing them to much money. What are we to do? I feel as though my > country is letting my husband and I down. I fought for our country and > have back it for so many years and when we need help they turn there > backs on you. I served a tour fighting in Enduring Freedom but my > children

can not get the medical help they need. I am now having > stomach problems b/c of all of this. What can I do?? WE NEED HELP!!!!> > Sunshine mommy to and Vedder>

Carolyn

Mom to and PJ

Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP.

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> >

> > I need help my twin boys need helmets. We have been denied by our

> > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens

Services. We

> > recently went to the Air Force Aid for help and they approved a

no-

> > interest loan but if we agree my husband will only take home $400

a

> > month and we can not live like that with twins. My boys are going

to be

> > one next month. I am very upset that I have not got them the help

they

> > need. At this point I feel like no one cares what happens to my

boys. I

> > also feel that it will be my fault if they do not get better. I

am very

> > frustrated with this whole thing. I have read that other states

> > Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> > and they will not cover. Every were I go for help they turn me

down and

> > then I find out they have covered in the past but don't anymore

b/c it

> > is costing them to much money. What are we to do? I feel as

though my

> > country is letting my husband and I down. I fought for our

country and

> > have back it for so many years and when we need help they turn

there

> > backs on you. I served a tour fighting in Enduring Freedom but my

> > children can not get the medical help they need. I am now having

> > stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

> >

> > Sunshine mommy to and Vedder

> >

>

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> >

> > I need help my twin boys need helmets. We have been denied by our

> > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens

Services. We

> > recently went to the Air Force Aid for help and they approved a

no-

> > interest loan but if we agree my husband will only take home $400

a

> > month and we can not live like that with twins. My boys are going

to be

> > one next month. I am very upset that I have not got them the help

they

> > need. At this point I feel like no one cares what happens to my

boys. I

> > also feel that it will be my fault if they do not get better. I

am very

> > frustrated with this whole thing. I have read that other states

> > Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> > and they will not cover. Every were I go for help they turn me

down and

> > then I find out they have covered in the past but don't anymore

b/c it

> > is costing them to much money. What are we to do? I feel as

though my

> > country is letting my husband and I down. I fought for our

country and

> > have back it for so many years and when we need help they turn

there

> > backs on you. I served a tour fighting in Enduring Freedom but my

> > children can not get the medical help they need. I am now having

> > stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

> >

> > Sunshine mommy to and Vedder

> >

>

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Hi Sunshine,

I just sent her an email. I'm sure we'll be hearing from her in a

couple of days. :-)

> > >

> > > I need help my twin boys need helmets. We have been denied by our

> > > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens

> Services. We

> > > recently went to the Air Force Aid for help and they approved a

> no-

> > > interest loan but if we agree my husband will only take home $400

> a

> > > month and we can not live like that with twins. My boys are going

> to be

> > > one next month. I am very upset that I have not got them the help

> they

> > > need. At this point I feel like no one cares what happens to my

> boys. I

> > > also feel that it will be my fault if they do not get better. I

> am very

> > > frustrated with this whole thing. I have read that other states

> > > Medicaid is paying but my understanding is that medi-cal is CA

> medicaid

> > > and they will not cover. Every were I go for help they turn me

> down and

> > > then I find out they have covered in the past but don't anymore

> b/c it

> > > is costing them to much money. What are we to do? I feel as

> though my

> > > country is letting my husband and I down. I fought for our

> country and

> > > have back it for so many years and when we need help they turn

> there

> > > backs on you. I served a tour fighting in Enduring Freedom but my

> > > children can not get the medical help they need. I am now having

> > > stomach problems b/c of all of this. What can I do?? WE NEED

> HELP!!!!

> > >

> > > Sunshine mommy to and Vedder

> > >

> >

>

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Hi Sunshine,

I just sent her an email. I'm sure we'll be hearing from her in a

couple of days. :-)

> > >

> > > I need help my twin boys need helmets. We have been denied by our

> > > insurance TRICARE/TRIWest, by medi-cal, and CA Childrens

> Services. We

> > > recently went to the Air Force Aid for help and they approved a

> no-

> > > interest loan but if we agree my husband will only take home $400

> a

> > > month and we can not live like that with twins. My boys are going

> to be

> > > one next month. I am very upset that I have not got them the help

> they

> > > need. At this point I feel like no one cares what happens to my

> boys. I

> > > also feel that it will be my fault if they do not get better. I

> am very

> > > frustrated with this whole thing. I have read that other states

> > > Medicaid is paying but my understanding is that medi-cal is CA

> medicaid

> > > and they will not cover. Every were I go for help they turn me

> down and

> > > then I find out they have covered in the past but don't anymore

> b/c it

> > > is costing them to much money. What are we to do? I feel as

> though my

> > > country is letting my husband and I down. I fought for our

> country and

> > > have back it for so many years and when we need help they turn

> there

> > > backs on you. I served a tour fighting in Enduring Freedom but my

> > > children can not get the medical help they need. I am now having

> > > stomach problems b/c of all of this. What can I do?? WE NEED

> HELP!!!!

> > >

> > > Sunshine mommy to and Vedder

> > >

> >

>

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That really stinks! I know how frustrating it is to have med bills

and no money to pay for them! Can you guys put it on a credit

card? Maybe find a 0% interest one?

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services.

We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400

a

> month and we can not live like that with twins. My boys are going

to be

> one next month. I am very upset that I have not got them the help

they

> need. At this point I feel like no one cares what happens to my

boys. I

> also feel that it will be my fault if they do not get better. I am

very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> and they will not cover. Every were I go for help they turn me

down and

> then I find out they have covered in the past but don't anymore

b/c it

> is costing them to much money. What are we to do? I feel as though

my

> country is letting my husband and I down. I fought for our country

and

> have back it for so many years and when we need help they turn

there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

>

> Sunshine mommy to and Vedder

>

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That really stinks! I know how frustrating it is to have med bills

and no money to pay for them! Can you guys put it on a credit

card? Maybe find a 0% interest one?

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services.

We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400

a

> month and we can not live like that with twins. My boys are going

to be

> one next month. I am very upset that I have not got them the help

they

> need. At this point I feel like no one cares what happens to my

boys. I

> also feel that it will be my fault if they do not get better. I am

very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> and they will not cover. Every were I go for help they turn me

down and

> then I find out they have covered in the past but don't anymore

b/c it

> is costing them to much money. What are we to do? I feel as though

my

> country is letting my husband and I down. I fought for our country

and

> have back it for so many years and when we need help they turn

there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

>

> Sunshine mommy to and Vedder

>

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Sunshine,

It's time for the pride to go to the wayside and do whatever to get

them the help they need. Are you active in a local church? If so go

to them and ask them to take up a collection for your family. There

have been members who have auctioned off advertising space on the

bands on Ebay. You can go to local businesses and try and get

sponsors, tell them you will put the name of thier business on the

bands if necessary. Contact the local papers and give them the story.

Get the stars and stripes to do an artcle and maybe you can shame

them into action. Contact relatives and see who can send what to help.

I know this is not the way it should be, but maybe you can get them

started in bands while you continue to fight Tri Care. It appalls me

that our country treats our veterans this way, I live this on a daily

basis as my father is a vet of WWII and Korea and has been involved

with the VFW and Purple Heart. I thank you for the sacrafices you and

your husband have made and are making so our children can grow up

knowing the freedom our country provides.

CAROLG

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services.

We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400 a

> month and we can not live like that with twins. My boys are going

to be

> one next month. I am very upset that I have not got them the help

they

> need. At this point I feel like no one cares what happens to my

boys. I

> also feel that it will be my fault if they do not get better. I am

very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> and they will not cover. Every were I go for help they turn me down

and

> then I find out they have covered in the past but don't anymore b/c

it

> is costing them to much money. What are we to do? I feel as though

my

> country is letting my husband and I down. I fought for our country

and

> have back it for so many years and when we need help they turn

there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

>

> Sunshine mommy to and Vedder

>

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Sunshine,

It's time for the pride to go to the wayside and do whatever to get

them the help they need. Are you active in a local church? If so go

to them and ask them to take up a collection for your family. There

have been members who have auctioned off advertising space on the

bands on Ebay. You can go to local businesses and try and get

sponsors, tell them you will put the name of thier business on the

bands if necessary. Contact the local papers and give them the story.

Get the stars and stripes to do an artcle and maybe you can shame

them into action. Contact relatives and see who can send what to help.

I know this is not the way it should be, but maybe you can get them

started in bands while you continue to fight Tri Care. It appalls me

that our country treats our veterans this way, I live this on a daily

basis as my father is a vet of WWII and Korea and has been involved

with the VFW and Purple Heart. I thank you for the sacrafices you and

your husband have made and are making so our children can grow up

knowing the freedom our country provides.

CAROLG

>

> I need help my twin boys need helmets. We have been denied by our

> insurance TRICARE/TRIWest, by medi-cal, and CA Childrens Services.

We

> recently went to the Air Force Aid for help and they approved a no-

> interest loan but if we agree my husband will only take home $400 a

> month and we can not live like that with twins. My boys are going

to be

> one next month. I am very upset that I have not got them the help

they

> need. At this point I feel like no one cares what happens to my

boys. I

> also feel that it will be my fault if they do not get better. I am

very

> frustrated with this whole thing. I have read that other states

> Medicaid is paying but my understanding is that medi-cal is CA

medicaid

> and they will not cover. Every were I go for help they turn me down

and

> then I find out they have covered in the past but don't anymore b/c

it

> is costing them to much money. What are we to do? I feel as though

my

> country is letting my husband and I down. I fought for our country

and

> have back it for so many years and when we need help they turn

there

> backs on you. I served a tour fighting in Enduring Freedom but my

> children can not get the medical help they need. I am now having

> stomach problems b/c of all of this. What can I do?? WE NEED

HELP!!!!

>

> Sunshine mommy to and Vedder

>

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  • 1 month later...

Lalitha,

Regression is very rare, less than 1%, but it can happen if the baby

was very young when treatment ended or there was unresolved

torticollis. How old was he when he graduated? You are doing the

right thing by calling and they will be able to help you. Did you

have an exit cast done when he graduated? They can compare to an exit

cast, or take new pictures and measurements to compare against exit

photos and measurements. Sometimes it is just the way the head is

growing at that time that makes any leftover flatness look worse. I

just went through similar fears, so I know how you feel. Let us know

what happens.

CAROLG

>

> hello everyone...i have never posted before...my name is lalitha

and

> my is vibav.....vibav was in doc band from cranial tech in sandiego

> for abt 4 months everything semed ok and he improved quite a bit

> too....now he is out of it about5 months and i think he is getting

> worse.....i called up cranial tech and spoke to them they said it

> happens very rarely and they'll look into it...i'am so worried ny

info

> on this will be greatly appreciated.

>

> thanks u all in advance

> lalitha

>

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Lalitha,

Regression is very rare, less than 1%, but it can happen if the baby

was very young when treatment ended or there was unresolved

torticollis. How old was he when he graduated? You are doing the

right thing by calling and they will be able to help you. Did you

have an exit cast done when he graduated? They can compare to an exit

cast, or take new pictures and measurements to compare against exit

photos and measurements. Sometimes it is just the way the head is

growing at that time that makes any leftover flatness look worse. I

just went through similar fears, so I know how you feel. Let us know

what happens.

CAROLG

>

> hello everyone...i have never posted before...my name is lalitha

and

> my is vibav.....vibav was in doc band from cranial tech in sandiego

> for abt 4 months everything semed ok and he improved quite a bit

> too....now he is out of it about5 months and i think he is getting

> worse.....i called up cranial tech and spoke to them they said it

> happens very rarely and they'll look into it...i'am so worried ny

info

> on this will be greatly appreciated.

>

> thanks u all in advance

> lalitha

>

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Hi Carol thanks for the reply...i'am very worried, yes he had an

exit cast done they said they'll compare the 2,he was around 9

months old when he graduated,one more cause of my worry is we had

been to the doc yesterday for a well baby checkup and everything was

ok but his head was in 25-50 percentile growth rate ...i'am so

worried.will he be normal...will he look normal.....god i'am so

scared.....plz help with any info u might have

Thanks

Lalitha

> >

> > hello everyone...i have never posted before...my name is lalitha

> and

> > my is vibav.....vibav was in doc band from cranial tech in

sandiego

> > for abt 4 months everything semed ok and he improved quite a bit

> > too....now he is out of it about5 months and i think he is

getting

> > worse.....i called up cranial tech and spoke to them they said

it

> > happens very rarely and they'll look into it...i'am so worried

ny

> info

> > on this will be greatly appreciated.

> >

> > thanks u all in advance

> > lalitha

> >

>

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Hi Carol thanks for the reply...i'am very worried, yes he had an

exit cast done they said they'll compare the 2,he was around 9

months old when he graduated,one more cause of my worry is we had

been to the doc yesterday for a well baby checkup and everything was

ok but his head was in 25-50 percentile growth rate ...i'am so

worried.will he be normal...will he look normal.....god i'am so

scared.....plz help with any info u might have

Thanks

Lalitha

> >

> > hello everyone...i have never posted before...my name is lalitha

> and

> > my is vibav.....vibav was in doc band from cranial tech in

sandiego

> > for abt 4 months everything semed ok and he improved quite a bit

> > too....now he is out of it about5 months and i think he is

getting

> > worse.....i called up cranial tech and spoke to them they said

it

> > happens very rarely and they'll look into it...i'am so worried

ny

> info

> > on this will be greatly appreciated.

> >

> > thanks u all in advance

> > lalitha

> >

>

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Lalitha,

If you want you can go to my son's website and read all my posts about the regression fears. Here is the link My Banded Baby Maybe it will help.

CAROLG

> > >> > > hello everyone...i have never posted before...my name is lalitha > > and > > > my is vibav.....vibav was in doc band from cranial tech in > sandiego > > > for abt 4 months everything semed ok and he improved quite a bit > > > too....now he is out of it about5 months and i think he is > getting > > > worse.....i called up cranial tech and spoke to them they said > it > > > happens very rarely and they'll look into it...i'am so worried > ny > > info > > > on this will be greatly appreciated.> > > > > > thanks u all in advance> > > lalitha> > >> >>

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Lalitha,

If you want you can go to my son's website and read all my posts about the regression fears. Here is the link My Banded Baby Maybe it will help.

CAROLG

> > >> > > hello everyone...i have never posted before...my name is lalitha > > and > > > my is vibav.....vibav was in doc band from cranial tech in > sandiego > > > for abt 4 months everything semed ok and he improved quite a bit > > > too....now he is out of it about5 months and i think he is > getting > > > worse.....i called up cranial tech and spoke to them they said > it > > > happens very rarely and they'll look into it...i'am so worried > ny > > info > > > on this will be greatly appreciated.> > > > > > thanks u all in advance> > > lalitha> > >> >>

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  • 3 months later...
Guest guest

Hi,

It sounds like your daughter might have torticollis and you should check into seeing a physical therapist to tell you if she does or not. So Cranial Tech didn't tell you if they thought she needed to be banded or not?? I know that it may seem kind of scary at the thought of your daughter being banded, but it's not as bad as you may think it is. I felt the same way you did when I found out my daughter had to wear a band, I cried because I was scared and because I didn't want people to stare at us in public and think that something was wrong with my daughter. But when we got her casted and the time came close for the fitting I was actually excited to get the process started and this group made a big difference. Just know that you are not alone in this. The time your daughter will spend in a band will actually fly by. My daughter will be a STARband graduate next Tuesday and I don't know where the time went. We are all here to help you and answer any questions that you may have as best as we can. Please keep us updated on how things are going.

STARband 1/31/06 Almost a graduate!!>> At 2 months old, my doctor said my daughter had a flat head- he said > to wait on it and see if it corrects itself with tummy time.> We did tummy time- and nothing happened. > At 4 months old, my doctor said my daughter has an assymetrical head.> He referred us to Cranial Tech. for further exploration- the doctor > said he wasn't sure if we needed to wear the band- but just to rule it > out.> > We went to Cranial Tech. and we were told that she has a moderate case > (mild-moderate-severe). The clinician didnt say if we were a candidate > or we werent. She told us the facts and basically said that my > daughter has poor neck control on one side.> We later learnt that her crib and changing table both face on the side > where her neck control issues have occured- we have since changed that.> > We are now not putting her down on her back at all when she is awake- > except for diaper and clothing changes and to sleep.> > We are very scared that at 4.5 months- she may have to wear the band.> We are trying to correct it naturally.> > are you letting your children sleep on their bellies? My doctor said > no- but my daughter sleeps between 13-14 hours and on her back- it is > not good.> > HELP!!!!!!!!!!! WHAT should I do?? I want to correct the problem > naturally.> > Thanks.>

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Guest guest

I know it can be scary. Our situation was the same as yours (time

wise) and we decided to band at 5.5 months. He actually started

wearing it 2 days before he was 6 months. Cranial Tech will not make

the decision for you but they should have told you if she was a

candidate...ie: if she would benefit from a band. Did they take

measurements using a caliper? If so, they can give you those

numbers so you can know what end of moderate she is and if she has

any brachy. My son was 4.5 standard deviations from normal with his

brachy. Basically that means his face was very wide for the length

(forehead to back of head) of his head. The cranial bones get

flattened and make them have wider than normal faces.

Good job switching the changing table and crib. My son starting

rolling over to sleep on his tummy at 5 months. Once they do this

on their own you don't have to roll them back over. But it was too

late, his head was already flat. By getting off his back it would

not get worse but not get better. We decided to band him. It was a

difficult decision especially for my husband. I will tell you, it

was the BEST decision ever. It is such a non-event. Our son is not

bothered by it at all. It has been four weeks and he adjusted

great. His head started rounding out the first week. People in

public are just as sweet as ever to him. I know exactly what you are

going through. Keep educating yourself and coming here with your

questions. You have started at a good age. Know that if you have

to band it isn't bad at all and it will be a blip in time compared

to a possible flat head forever.

Bobbi H.

6.5 months tort/brachy/plagio

DOC band 5/8/06

PHX

> At 2 months old, my doctor said my daughter had a flat head- he

said to wait on it and see if it corrects itself with tummy time.

> We did tummy time- and nothing happened. At 4 months old, my

doctor said my daughter has an assymetrical head. He referred us to

Cranial Tech. for further exploration- the doctor said he wasn't

sure if we needed to wear the band- but just to rule it out.

> We went to Cranial Tech. and we were told that she has a moderate

case (mild-moderate-severe). The clinician didnt say if we were a

candidate or we werent. She told us the facts and basically said

that my daughter has poor neck control on one side.

> We later learnt that her crib and changing table both face on the

side where her neck control issues have occured- we have since

changed that.

> We are now not putting her down on her back at all when she is

awake-except for diaper and clothing changes and to sleep.

>

> We are very scared that at 4.5 months- she may have to wear the

band. We are trying to correct it naturally.are you letting your

children sleep on their bellies? My doctor said no- but my daughter

sleeps between 13-14 hours and on her back- it is not good.

>

> HELP!!!!!!!!!!! WHAT should I do?? I want to correct the problem

> naturally.

>

> Thanks.

>

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Guest guest

You may not have the ability to correct your daughter's head naturally. I

don't want to sound harsh here, but it's not always within your power or

control. Medical intervention is often necessary.

If you have seen little to no improvement to your daughter's head after

trying repo for 2-3 months, then you should consider helmet therapy. I know

it's not an easy thing to face, but a Doc band is not invasive. It works

similar to dental braces or braces to treat club feet.

Carolyn in NYC

Mum to Malcolm - 7 mos - Doc band 3/27, Doc band #2 6/9

Help

At 2 months old, my doctor said my daughter had a flat head- he said

to wait on it and see if it corrects itself with tummy time.

We did tummy time- and nothing happened.

At 4 months old, my doctor said my daughter has an assymetrical head.

He referred us to Cranial Tech. for further exploration- the doctor

said he wasn't sure if we needed to wear the band- but just to rule it

out.

We went to Cranial Tech. and we were told that she has a moderate case

(mild-moderate-severe). The clinician didnt say if we were a candidate

or we werent. She told us the facts and basically said that my

daughter has poor neck control on one side.

We later learnt that her crib and changing table both face on the side

where her neck control issues have occured- we have since changed that.

We are now not putting her down on her back at all when she is awake-

except for diaper and clothing changes and to sleep.

We are very scared that at 4.5 months- she may have to wear the band.

We are trying to correct it naturally.

are you letting your children sleep on their bellies? My doctor said

no- but my daughter sleeps between 13-14 hours and on her back- it is

not good.

HELP!!!!!!!!!!! WHAT should I do?? I want to correct the problem

naturally.

Thanks.

For more plagio info

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