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>

> 90 plus percent of those I or Dr. McCandless or anyone else has

> recommended to try lowering candida via diet on this forum hasn't

> tried it.

>

> Marcie is lowering her candida and virus load and I speak to her

quite

> often on the phone. The last time we spoke her speech had improved

> alot in just a couple months. It was like talking to a different

> person. She feels like death warmed over while detoxing but I am

> hearing improvement in her speech.

>

> One person lowered her candida load but it was by precription

meds.

> Her LDN had quit working and once candida was lowered her LDN

kicked

> back in again. That post of her thanking me for suggesting she

lower

> her candida level is on Elsegood's forum. I had suggested

she

> lower candida the natural way or a prescription of Diflucan, she

chose

> Diflucan.

>

> There was someone else that was a male. I don't know if he ever

tried

> the diet or supplements.

>

> The down side of using prescription meds to lower candida. If you

> continue your old eating habits that caused candida in the first

place

> the candida yeast will grow right back further down the road. I am

> doing the diet, supplements and prescription antifungal to be sure

my

> candida is as low as possible. Considering that I've had paralysis

at

> different times everywhere on my body except for my eyelids upward,

I

> am doing darn good. I contribute that to LDN, diet, supplements,

> exercise, massage therapy, family, friends, etc.

>

> Over 3 years ago there would have been no way I could've stood at

the

> stove and cooked a meal. I did that tonight for my parent's 49th

> wedding anniversary. I would not have been able to do this even

after

> I started LDN, the things I've done to compliment LDN is what

helped

> me be able to accomplish the task tonight and accomplish many other

> things I've enjoyed lately.

>

>

>

Perhaps I'm the male you speak of? I am on the diet and taking the

supplements. Is it working? I am still walking and working full time

as a blue-collar supervisor over difficult employees doing a physical

job, so the answer has got to be yes. Am I able to play sports and

have sex all night long with the women like I did when I was younger.

The answer is no. I wish I had known about LDN many years ago before

the CRAB/Novantrone drugs and IV steroids. Woulda, coulda, shoulda.

I'll never know what could have been. But these are the cards that

are dealt to me and I've got to play'em. I'd rather stay positive and

try to help people. The way some people talk on these discussion

boards, I can guarantee you they'd never speak that way to my face.

Artie

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I share Arties view. is trying to help people. This is something

that I have loved about the forum. Positive attitudes and a strong

willingness to share and help others (even if it stretches away from LDN

just a bit).

Aletha

[low dose naltrexone] Re: LDN

>

>> >

>

> I'd like to see other people post alternative, constructive ideas and

> suggestions on how we can help LDN do a better job, rather than jump

> all over 's case. She seems to be the only one who'll stick her

> neck out. To her credit she's able to take the heat and still

> maintain her credibility. If I were her I'd say screw you all, you're

> on your own.

>

> Artie

>

>

>

>

>

>

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I guess I'll stick my neck out for a change. Allot of the reasons

are not posting if something else is working is becasue there not

supposed too. If it's alternative stuff there supposed to take it to

other websites to talk about that stuff. This has been posted many

times lately on her from the Glucks. But we still have to read about

red cherry tart from all the time. The same rules need to

apply to everyone. Either we can talk alternative stuff or we

can't. It would be nice if others could get a word in edge wise and

the others would be quite for awhile. Because theres allot of people

posting stuff thats not on the LDN site.

> >> >

> >

> > I'd like to see other people post alternative, constructive ideas

and

> > suggestions on how we can help LDN do a better job, rather than

jump

> > all over 's case. She seems to be the only one who'll stick

her

> > neck out. To her credit she's able to take the heat and still

> > maintain her credibility. If I were her I'd say screw you all,

you're

> > on your own.

> >

> > Artie

> >

> >

> >

> >

> >

> >

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One thing that I'm trying, and perhaps it's too soon to say this, but I've noticed an increase in the strength of my left leg, is a product called 'super B-15' (Vitamin B-15, pangemic acid)

Is anyone else using this?> > >> >> > >> > > I'd like to see other people post alternative, constructive ideas > and> > > suggestions on how we can help LDN do a better job, rather than > jump> > > all over 's case. She seems to be the only one who'll stick > her> > > neck out. To her credit she's able to take the heat and still> > > maintain her credibility. If I were her I'd say screw you all, > you're> > > on your own.> > >> > > Artie> > >> > >> > >> > >> > >> > >

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>

> I guess I'll stick my

neck out for a change.

Allot of the reasons

> are not posting if

something else is working

is becasue there not

> supposed too. If it's

alternative stuff there

supposed to take it to

> other websites to talk

about that stuff. This

has been posted many

> times lately on her

from the Glucks. But we

still have to read about

> red cherry tart from

all the time. The

same rules need to

> apply to everyone.

Either we can talk

alternative stuff or we

> can't. It would be

nice if others could get

a word in edge wise and

> the others would be

quite for awhile.

Because theres allot of

people

> posting stuff thats not

on the LDN site.

>

=============

Off-topic Posts:

It is natural for

discussion, on occasion,

to stray into areas

tangential

to LDN. Discussion of a

topic related to LDN can

be a valid use of this

discussion group -- as

long as the topic does

actually relate in some

way

to group members' use of

LDN.

In practice, members are

rarely banned for making

the occasional off-topic

post, unless the nature

of the post is offensive

to other members.

However, if an extended

discussion (more than

three messages) ensues

that

is not relevant to LDN

use, please take it

somewhere else (e.g., e-

mailing

one another directly, or

finding a more

appropriate forum).

Please be considerate to

general readers of the

group who must wade

through

off-topic discussions in

order to find something

relevant to LDN.

==========

If you'll notice in most

of my posts I have made

referrence to LDN in most

of them. I try to tie

most all my supplement,

diet and exercise posts

to connect in some way

with LDN or how these can

compliment LDN. I

haven't mentioned Tart

Cherry in months but if I

feel someone can benefit

from it and it does not

coincide with their LDN

use I'll email them

privately.

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It can also be made into a cream, or you can make it yourself.

[low dose naltrexone] Re: LDN

>> I was wondering if LDN comes in pills or injections?> > Manon>=========It comes in capsules made up by a compounding pharmacy or in liquid.LDN websitehttp://www.ldninfo.org

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Hi Manon,

LDN typically comes in pill form. A small percentage of people get it as a liquid and children are usually give a form in oil that can be put on the skin.

If you are interested in LDN for MS, please let me know and I can send you a copy of the "welcome e-mail" It explains a bit more.

Thanks

Aletha

[low dose naltrexone] LDN

I was wondering if LDN comes in pills or injections?Manon

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Alektha: would it be possible to get a copy of the Welcome Email for

MS and LDN thenks Ken

>

> Hi Manon,

>

> LDN typically comes in pill form. A small percentage of people get

it as a liquid and children are usually give a form in oil that can be

put on the skin.

>

> If you are interested in LDN for MS, please let me know and I can

send you a copy of the " welcome e-mail " It explains a bit more.

>

> Thanks

> Aletha

> [low dose naltrexone] LDN

>

>

> I was wondering if LDN comes in pills or injections?

>

> Manon

>

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Does anyone know if one can take LDN while doing chemotherapy? Will it still be as effective?

ne

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>

> Does anyone know if one can take LDN while doing chemotherapy?

Will it

> still be as effective?

> ne

>

hi Suzanne,

My son has been on chemo since May (cyclophosphamide) and has

continued on LDN throughout. Overall, he has had tremendous

improvement - when he started chemo could not walk at all or even

stand; now he is walking unaided. I don't know if the LDN has had

anything to do with it, but it certainly has not seemed to hurt. He

can also write again; prior to this he had great difficulty holing a

pen and his handwriting was illegible - hope this is helpful....

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> >

> > Does anyone know if one can take LDN while doing chemotherapy?

> Will it

> > still be as effective?

> > ne

==============

Dr. Bihari says LDN will not be near as effective taken with chemo.

The chemo pretty much wipes out most of the effect of LDN. These two

drugs work just the opposite of one another. The chemo being the

strong immune system suppressant well overpowers LDN's effectiveness.

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Hi all, Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate.

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,

You found the right place to come. LDN is used in place of a CRAB drug, to prevent progression of disease. The only CRAB drug you can use it with it is Copaxone. What is REAL nice about it is: !). It is cheap (less than $30.00 a month, 2). One of the benefits you get by taking it is help with bladder conditions 3). Some people get help with their balance.

I have been on since the end of June for my MS, I take 3mg nightly. I only take 3mg because I have spascticity in my right leg and that is the amount they recommend when you have that problem. My leg hasn'tt gotten better but it hasn't gotten worse either. I have had NO MS problems since starting it.

Good luck, hope I helped,

-- Re: [low dose naltrexone] Re:LDN

Hi all,

Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate.

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, I, too, have PPMS. I haven't stood or walked in 7 1/2 years. I started LDN over 3 years ago. I have seen slight improvements, but no miracles. I had a UTI last summer that has really set me back. Most here take LDN for MS. Some have seen great results. It does seem the best hope, medically speaking. Hang in there. Marcie Hinson <ehinson@...> wrote: Hi all, Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate.

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I am so grateful to all who have responded to me, directly or indirectly. It seems one has to find a 'unique' doctor to work with in terms of LDN-i.e. that it is not common place for them to prescribe LDN. I am afraid that this specialist I am to meet is going to try to be quite persuasive about Tysabri (who knows, kick back from pharmaceutical?) Does anyone here with MS also have TN? -trigeminal neuralgia? and has the LDN helped with that? I've had both the MVD (basically, brain surgery) and the Gamma Knife, and am still left with a good deal of pain...blessings, kate [low dose naltrexone] Re: LDNlow dose naltrexone > Most of us here take LDN for MS and many of us have had very > good results. I > feel that the progression stopped or slowed significantly when I > started on > 3.0 last April. I still use a walker and a scooter to get > around, but thank > goodness, the other symtoms appear to have resolved.> > Try to get on the LDN as soon as you can so you can see if it > helps you and > so you can minimize the damage. Good luck> Joyce> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For!

10 lbs down, 40 to go! Ask me~I'm on Fire!

ians 4:13 I can do all things through Crhist who gives me strength.

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I am in Aberdeen and take LDN but my GP is based in Glasgow.

Janice

[low dose naltrexone] ldn

HI EVERYONE IS THERE ANYONE OUT THERE INGLASGOW WHO ARE TAKING LDNJOHN

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>

> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,

> please let me know. My daughter is no longer taking it because it

made

> her worse than she had ever been in the 11 years that she has had

MS and

> she never got better. She is doing soooo much better since

stopping it.

> She's actually walking with no assistance now. We're going to wait

> after the clinical trial to see what happens. Right now it's just

so

> much that is unknown about it right now. I received a 90 day

supply

> from skip in January and my daughter only took it for about a week.

> However, she was actually on the LDN for 2 months. I know there

will be

> some of you that say that we let the fear win out but, we had to

do what

> was best for her. We've changed her diet and supplements. She's

seeing

> a Natural Path, a nutritionist and a Chiropractor.

>

>

>

> Thanks and good luck to you all

>

>======

I hate your daughter quit LDN after being on LDN only a week. I

just told the lady Dr. Gironi in Italy doing the LDN trial in MS

that increased symptoms can take place in the first 3 months on LDN

and listed a few of those symptoms. I wrote that these symptoms

generally fade away as time passes and endorphins rise and level

out. She wrote me back and said that what I described is exactly

what happened to 4-5 of the patients she has started LDN and thanked

me for that valuable information. Your daughter should possibly

start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then

up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship

way too soon.

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Hello Jackie;

As much as I wish LDN works for everyone, it doesn't. I take mine mixed in water but wouldn't mind trying some from Skip if the price is right. Email me at luigi@...

[low dose naltrexone] LDN

IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy, please let me know. My daughter is no longer taking it because it made her worse than she had ever been in the 11 years that she has had MS and she never got better. She is doing soooo much better since stopping it. She’s actually walking with no assistance now. We’re going to wait after the clinical trial to see what happens. Right now it’s just so much that is unknown about it right now. I received a 90 day supply from skip in January and my daughter only took it for about a week. However, she was actually on the LDN for 2 months. I know there will be some of you that say that we let the fear win out but, we had to do what was best for her. We’ve changed her diet and supplements. She’s seeing a Natural Path, a nutritionist and a Chiropractor.

Thanks and good luck to you all

Jackie

'To the world you might be one person, but to one person you just might the world'

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.17.36/681 - Release Date: 2/11/2007 6:50 PM

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I was in the same boat and quit after one month. I am still left one

month later with new symptoms and old aggravated symptoms that were

caused by my trial with LDN.

While I have no doubt that many receive benefits from LDN, I am sure

that others just do not well. This may be a result of different

factors, such as age, existing nerve damage, status of the disease,

gender, etc.

I have a great deal of difficulty with the notion that someone should

continue in the face of adverse results although I did just that and

will regret it if I don't get back to baseline.

Dennis

Bren wrote:

>

> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,

> please let me know. My daughter is no longer taking it because it

made

> her worse than she had ever been in the 11 years that she has had

MS and

> she never got better. She is doing soooo much better since

stopping it.

> She's actually walking with no assistance now. We're going to wait

> after the clinical trial to see what happens. Right now it's just

so

> much that is unknown about it right now. I received a 90 day

supply

> from skip in January and my daughter only took it for about a week.

> However, she was actually on the LDN for 2 months. I know there

will be

> some of you that say that we let the fear win out but, we had to

do what

> was best for her. We've changed her diet and supplements. She's

seeing

> a Natural Path, a nutritionist and a Chiropractor.

>

>

>

> Thanks and good luck to you all

>

>======

I hate your daughter quit LDN after being on LDN only a week. I

just told the lady Dr. Gironi in Italy doing the LDN trial in MS

that increased symptoms can take place in the first 3 months on LDN

and listed a few of those symptoms. I wrote that these symptoms

generally fade away as time passes and endorphins rise and level

out. She wrote me back and said that what I described is exactly

what happened to 4-5 of the patients she has started LDN and thanked

me for that valuable information. Your daughter should possibly

start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then

up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship

way too soon.

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Introductory Side-effects: There may be some initial transient, though temporary, increase in MS symptoms during the adaptive period when the LDN is first introduced. This usually lasts no more than one week but if symptoms are severe, or more prolonged, then the initial dose of 1.5 for a month, 3 for a month, then 4.5 until the anticipated improvements begin to develop.

Introductory symptoms, on starting this treatment, may include such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain.

Symptoms related to increased endorphins: These may include such as nausea or constipation. These symptoms diminish naturally as the body adjusts to the increased endorphin level.

Symptoms related to previous Opiate use: On starting LDN the recent use of opiate analgesics will result in an opiate withdrawal syndrome, with increased pain, spasm, vomiting and diarrhea. These symptoms may be prevented by stopping all opiate analgesics at least two weeks before starting the LDN.

Always,

Crystal

LDN_Users Group Owner

CrystalAngel Novelties To Support MS,TM and LDN

Crystal's MS,TM & LDN Website Crystal's LDN Support Group

MS & TM Spouse & Caregiver Support Group

Crystal's MySpace

Re: [low dose naltrexone] Re: LDN

I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis Bren wrote:

>> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,> please let me know. My daughter is no longer taking it because it made> her worse than she had ever been in the 11 years that she has had MS and> she never got better. She is doing soooo much better since stopping it.> She's actually walking with no assistance now. We're going to wait> after the clinical trial to see what happens. Right now it's just so> much that is unknown about it right now. I received a 90 day supply> from skip in January and my daughter only took it for about a week.> However, she was actually on the LDN for 2 months. I know there will be> some of you that say that we let the fear win out but, we

had to do what> was best for her. We've changed her diet and supplements. She's seeing> a Natural Path, a nutritionist and a Chiropractor.> > > > Thanks and good luck to you all > >======I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon.

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LDN did nothing for me and I took it over a year. it turns out I have lyme disease, but I had to have an Igenex test and see a LLMD (lyme literate MD).

a regular doc or regular lab tests won't do it.

several people who took LDN with no results, actually had lyme, about 15 i believe.

Arlene

-------------- Original message -------------- From: dlarussa <dlarussa@...>

I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis Bren wrote:

>> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,> please let me know. My daughter is no longer taking it because it made> her worse than she had ever been in the 11 years that she has had MS and> she never got better. She is doing soooo much better since stopping it.> She's actually walking with no assistance now. We're going to wait> after the clinical trial to see what happens. Right now it's just so> much that is unknown about it right now. I received a 90 day supply> from skip in January and my daughter only took it for about a week.> However, she was actually on the LDN for 2 months. I know there will be> some of you that say that we let the fear win out but, we had to do what&gt

; ; was best for her. We've changed her diet and supplements. She's seeing> a Natural Path, a nutritionist and a Chiropractor.> > > > Thanks and good luck to you all > >======I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon.

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Hi Jackie,

That's a generous offer.

Medications - just like anything else - can deteriorate after opening.

This means there's additional risk in ingesting second-hand

medications - and that's especially so for those who are already

suffering from adverse health conditions.

I don't think it'd be wise for anyone to take on that risk -

especially as LDN is already a low cost medication.

Regards,

Cris

>

> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,

> please let me know. My daughter is no longer taking it because it

made

> her worse than she had ever been in the 11 years that she has had

MS and

> she never got better. She is doing soooo much better since

stopping it.

> She's actually walking with no assistance now. We're going to wait

> after the clinical trial to see what happens. Right now it's just

so

> much that is unknown about it right now. I received a 90 day supply

> from skip in January and my daughter only took it for about a week.

> However, she was actually on the LDN for 2 months. I know there

will be

> some of you that say that we let the fear win out but, we had to do

what

> was best for her. We've changed her diet and supplements. She's

seeing

> a Natural Path, a nutritionist and a Chiropractor.

>

>

>

> Thanks and good luck to you all

>

>

>

> Jackie

>

> 'To the world you might be one person, but to one person you just

might

> the world'

>

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took me MONTHS to go through all the cycling my body went through trying to heal itself.

starting LDN is like cutting open a scab and then just letting it bleed. The body has to go through it all, especially given the factors such as age, existing damage, and levels of other drugs fed into the body system over the years. Sometimes it can trigger withdrawal symptoms from old dormant issues.

How come people start Avonex and once a week feel like they're DYING, but they stick with it? And if side effects stop, they consider that it was a good thing that the body was beaten into submission by not reacting to the insults of the med?

Good luck to ya.

Re: [low dose naltrexone] Re: LDN

I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis

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