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Beth, Jodi was diagnosed in Feb. and has continued to work full time. Her

son will be three in April. She gets very tired, by Wednesday when she comes

over for supper I can tell she has done to much. I try to help as much as

possible and so do her in-laws who just live a street over from them. All I

can say is you know your body better than anyone........Hope this helped.

Genny/Jodi's Mom

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I get SSDI. But...it took 2 years to finally be awarded a judgment. AIH is not a listed illness, so unless you are lucky(?) to have other complications, it is unlikely that you will be awarded SSDI prior to a hearing before an administrative law judge. Because you'll likely end up before an ALJ, anyway, it is probably worthwhile to consult a good disability attorney now. The key is not the disease, but how it impairs you. If you have Bx results that show permanent liver damage, your attorney can correlate that to other liver diseases that are listed, as well as other autoimmune diseases. Liver damage = debilitating fatigue. If your doctor doesn't realize that, it's time to find a new doc who is more familiar with liver diseases.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

[ ] SSDICan I ask how many of you get either SSI or SSDI for your AIH? I know thoseof you with transplants get it, but I just wondered if any newly diagnosed(in the last few years) people get it? My doctor doesn't feel that I needto go on it. I'm a working two part-time jobs, have a nineteen month oldand am totally exhausted. I feel completely overwhelmed. I feel likeeverything is in chaos....my house, my work, my health. My husband is agreat help and I'm still so overwhelmed at times. I can't imagine thatoverworking myself is good for this disease. It sure would help to have anincome coming in and then I could concentrate more on my family and keepingmyself healthy.Any ideas or suggestions?Beth, AIH 10/00, MI

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Don,

I do have fibrosis or scarring of the liver. I guess the nurse told me I'm a 2.4 on a scale of 4, whatever that means. So, I guess I don't know how damaged my liver really is. Can't seem to get a straight answer from my doctor (hep).

I've decided to get a new doctor... when I asked him about the possiblility of SSDI he said no quickly. He asked if I had any qualifications to do work as a secretary... I said I HAVE qualifications to work...I have a bachelor's degree in Marketing/Sales...the point is I feel too fatigued and overwhelmed to work as much as I do and care for my family... And I do work now....two part time jobs and have a ninteen month old. I just felt he was being condescending to me.... not acknowledging my feelings. There are alot of other reasons I want to switch as I said in one of my earlier posts tonight. If another doctor says no, then I'll understand their decision.

I may call a disability atty. I have an appt with SSA tomorrow for a phone appt. But, if my doctor isn't behind me, it won't do any good to apply I guess. I'll tell them that I'm switching doctors and maybe they can put it on hold.

thanks for all of your help. I"ve printed your email to keep as a reference.

Beth, AIH, 10/00 MI

[ ] SSDICan I ask how many of you get either SSI or SSDI for your AIH? I know thoseof you with transplants get it, but I just wondered if any newly diagnosed(in the last few years) people get it? My doctor doesn't feel that I needto go on it. I'm a working two part-time jobs, have a nineteen month oldand am totally exhausted. I feel completely overwhelmed. I feel likeeverything is in chaos....my house, my work, my health. My husband is agreat help and I'm still so overwhelmed at times. I can't imagine thatoverworking myself is good for this disease. It sure would help to have anincome coming in and then I could concentrate more on my family and keepingmyself healthy.Any ideas or suggestions?Beth, AIH 10/00, MI

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AIH is on the list of diseases that qualifies you for SSI or SSDI

Lori C.

[ ] SSDI

>Can I ask how many of you get either SSI or SSDI for your AIH? I know

those

>of you with transplants get it, but I just wondered if any newly diagnosed

>(in the last few years) people get it? My doctor doesn't feel that I need

>to go on it. I'm a working two part-time jobs, have a nineteen month old

>and am totally exhausted. I feel completely overwhelmed. I feel like

>everything is in chaos....my house, my work, my health. My husband is a

>great help and I'm still so overwhelmed at times. I can't imagine that

>overworking myself is good for this disease. It sure would help to have an

>income coming in and then I could concentrate more on my family and keeping

>myself healthy.

>

>Any ideas or suggestions?

>

>Beth, AIH 10/00, MI

>

>

>

>

>

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It's really not your doctors place to make a judgment of whether or not you are capable of working. His job is to report your medical condition and how that might impact your ability to work. It is true that SSA will initially say that though you may not be able to work at your current profession, you could find less demanding work. However, that may not be true. In my case, for example, their own psychologist stated that I was too educated and driven to be able to work at a sedentary, menial job. But...those kinds of things can't be considered until the ALJ hearing.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: Beth & Carl Walters [mailto:bccj@...]Sent: Sunday, November 12, 2000 8:28 PM egroupsSubject: Re: [ ] SSDI

Don,

I do have fibrosis or scarring of the liver. I guess the nurse told me I'm a 2.4 on a scale of 4, whatever that means. So, I guess I don't know how damaged my liver really is. Can't seem to get a straight answer from my doctor (hep).

I've decided to get a new doctor... when I asked him about the possiblility of SSDI he said no quickly. He asked if I had any qualifications to do work as a secretary... I said I HAVE qualifications to work...I have a bachelor's degree in Marketing/Sales...the point is I feel too fatigued and overwhelmed to work as much as I do and care for my family... And I do work now....two part time jobs and have a ninteen month old. I just felt he was being condescending to me.... not acknowledging my feelings. There are alot of other reasons I want to switch as I said in one of my earlier posts tonight. If another doctor says no, then I'll understand their decision.

I may call a disability atty. I have an appt with SSA tomorrow for a phone appt. But, if my doctor isn't behind me, it won't do any good to apply I guess. I'll tell them that I'm switching doctors and maybe they can put it on hold.

thanks for all of your help. I"ve printed your email to keep as a reference.

Beth, AIH, 10/00 MI

[ ] SSDICan I ask how many of you get either SSI or SSDI for your AIH? I know thoseof you with transplants get it, but I just wondered if any newly diagnosed(in the last few years) people get it? My doctor doesn't feel that I needto go on it. I'm a working two part-time jobs, have a nineteen month oldand am totally exhausted. I feel completely overwhelmed. I feel likeeverything is in chaos....my house, my work, my health. My husband is agreat help and I'm still so overwhelmed at times. I can't imagine thatoverworking myself is good for this disease. It sure would help to have anincome coming in and then I could concentrate more on my family and keepingmyself healthy.Any ideas or suggestions?Beth, AIH 10/00, MI

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Lori,

It may be for SSI but not for SSDI.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

[ ] SSDI>Can I ask how many of you get either SSI or SSDI for your AIH? I knowthose>of you with transplants get it, but I just wondered if any newly diagnosed>(in the last few years) people get it? My doctor doesn't feel that I need>to go on it. I'm a working two part-time jobs, have a nineteen month old>and am totally exhausted. I feel completely overwhelmed. I feel like>everything is in chaos....my house, my work, my health. My husband is a>great help and I'm still so overwhelmed at times. I can't imagine that>overworking myself is good for this disease. It sure would help to have an>income coming in and then I could concentrate more on my family and keeping>myself healthy.>>Any ideas or suggestions?>>Beth, AIH 10/00, MI>>>>>

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Lori,

I don't remember AIH being on the list, having researched it as of last

week. Do you have a reference?

Thanks, Jen

On Sun, 12 Nov 2000 21:24:19 -0600, egroups wrote:

> AIH is on the list of diseases that qualifies you for SSI or SSDI

> Lori C.

>

>

> [ ] SSDI

>

>

> >Can I ask how many of you get either SSI or SSDI for your AIH? I know

> those

> >of you with transplants get it, but I just wondered if any newly

diagnosed

> >(in the last few years) people get it? My doctor doesn't feel that I

need

> >to go on it. I'm a working two part-time jobs, have a nineteen month

old

> >and am totally exhausted. I feel completely overwhelmed. I feel like

> >everything is in chaos....my house, my work, my health. My husband is a

> >great help and I'm still so overwhelmed at times. I can't imagine that

> >overworking myself is good for this disease. It sure would help to have

an

> >income coming in and then I could concentrate more on my family and

keeping

> >myself healthy.

> >

> >Any ideas or suggestions?

> >

> >Beth, AIH 10/00, MI

> >

> >

> >

> >

> >

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I sent a link, it is letter V. way at the bottom of the page listed as

Chronic Active Hepatitis, also for anyone who has fibromyalgia , it is

listed as letter CC. The link I sent deperately!! Lori C.

[ ] SSDI

>>

>>

>> >Can I ask how many of you get either SSI or SSDI for your AIH? I know

>> those

>> >of you with transplants get it, but I just wondered if any newly

>diagnosed

>> >(in the last few years) people get it? My doctor doesn't feel that I

>need

>> >to go on it. I'm a working two part-time jobs, have a nineteen month

>old

>> >and am totally exhausted. I feel completely overwhelmed. I feel like

>> >everything is in chaos....my house, my work, my health. My husband is

a

>> >great help and I'm still so overwhelmed at times. I can't imagine that

>> >overworking myself is good for this disease. It sure would help to

have

>an

>> >income coming in and then I could concentrate more on my family and

>keeping

>> >myself healthy.

>> >

>> >Any ideas or suggestions?

>> >

>> >Beth, AIH 10/00, MI

>> >

>> >

>> >

>> >

>> >

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Thanks Lori,

I thought that might have been it. I'll check it out again. I remember

a couple of links being sent. I forgot to bookmark some (my bad).

Thanks, Jen :)

On Mon, 13 Nov 2000 15:07:57 -0600, egroups wrote:

> I sent a link, it is letter V. way at the bottom of the page listed as

> Chronic Active Hepatitis, also for anyone who has fibromyalgia , it is

> listed as letter CC. The link I sent deperately!! Lori C.

>

>

> [ ] SSDI

> >>

> >>

> >> >Can I ask how many of you get either SSI or SSDI for your AIH? I

know

> >> those

> >> >of you with transplants get it, but I just wondered if any newly

> >diagnosed

> >> >(in the last few years) people get it? My doctor doesn't feel that

I

> >need

> >> >to go on it. I'm a working two part-time jobs, have a nineteen

month

> >old

> >> >and am totally exhausted. I feel completely overwhelmed. I feel

like

> >> >everything is in chaos....my house, my work, my health. My husband

is

> a

> >> >great help and I'm still so overwhelmed at times. I can't imagine

that

> >> >overworking myself is good for this disease. It sure would help to

> have

> >an

> >> >income coming in and then I could concentrate more on my family and

> >keeping

> >> >myself healthy.

> >> >

> >> >Any ideas or suggestions?

> >> >

> >> >Beth, AIH 10/00, MI

> >> >

> >> >

> >> >

> >> >

> >> >

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any info. you can give would be greatly appreciated.....do to the fact that

I've had 2 doc's and my therapist state that I need to go on disabilty....I

have 4 children and we're living off of my husband's pay only......we are

$2,000.00 a month less without me working....I really don't know what to

do......my rhuemy wants to give the meds time to work since I haven't taken

anything for the past 8 years......I couldn't get a doc to dx.....so to make

a long story short.....I've tried several meds and now I have PA in my back

and a disc in my back....so it's progressing.....which leads me to believe

the meds aren't working........MTNCAT

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Greg,

I saw your post and have been dealing with somewhat similar issues lately. I was told when I was on SSDI that I would have to be on 2 full years before I got Medicare. Have you contacted your Medicaid caseworker re: the cancellation? My Medicaid was cancelled June 30th as well (due to income because I have recently started working). I didn't receive notice of this change until right before it happened. Here in FL they are required to notify you. I received a letter but when I asked about extending my coverage until I could get on my employer's health insurance I was told no. Does anyone think this would do any good? Meantime I have to figure out how to pay for prescriptions and doctor visits, labs, etc. Very frustrating. I only went back to work because I couldn't live on $590 a month. It was making me nuts, the contradictions. I didn't have enough work credits to get a higher SSDI payment because I have been sick most of my working life before they even diagnosed me. So if you get sick young what are you supposed to do? I don't know if this helps or not but I have been a persistent "consumer" and call the caseworker until I get what I need or a get an explanation. I have even had to camp out at the department office. Whatever it takes. Good luck.

in FL/AIH (lupus related)

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hi , Im Judy .Just wondering what part of fl.

you're from? Im in Pensacola. I was diagnosed in 98

with AIH. Im doing okay now. I'm still able to work

,thank God. Write back if you dont mind me knowing

where your from. Judy?Pensacola,Fl. AIH98 ---

<kjcampbell@...> wrote:

> Greg,

> I saw your post and have been dealing with somewhat

> similar issues lately. I was told when I was on

> SSDI that I would have to be on 2 full years before

> I got Medicare. Have you contacted your Medicaid

> caseworker re: the cancellation? My Medicaid was

> cancelled June 30th as well (due to income because

> I have recently started working). I didn't receive

> notice of this change until right before it

> happened. Here in FL they are required to notify

> you. I received a letter but when I asked about

> extending my coverage until I could get on my

> employer's health insurance I was told no. Does

> anyone think this would do any good? Meantime I

> have to figure out how to pay for prescriptions and

> doctor visits, labs, etc. Very frustrating. I only

> went back to work because I couldn't live on $590 a

> month. It was making me nuts, the contradictions.

> I didn't have enough work credits to get a higher

> SSDI payment because I have been sick most of my

> working life before they even diagnosed me. So if

> you get sick young what are you supposed to do? I

> don't know if this helps or not but I have been a

> persistent " consumer " and call the caseworker until

> I get what I need or a get an explanation. I have

> even had to camp out at the department office.

> Whatever it takes. Good luck.

> in FL/AIH (lupus related)

>

__________________________________________________

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Thanks ,

Social Security can be confusing. Will your new employer's health

policy allow for a pre-existing condition?

I am on my husbands policy through his work. He doesn't dare make a

change in jobs for fear of me not getting coverage with me so close to

possible transplantation. I know I could get COBRA and pay out the nose, but

its limited and I don't need the stress. Were just thankful that he can keep

the same employer and move depts anytime without jeopardizing the health

coverage as he works for a University so opportunity for change is available

to him.

I hope things work out. Dealing with red tape and the system and the people

who work in it can be very stressful.

Jen :)

On Sun, 8 Jul 2001 16:07:02 -0400, wrote:

> Jen,

> Let me clarify. I was on SSDI but because I had such a short work

history my payments were very low. I applied to the local Medicaid office

for assistance based on income and was granted coverage. Although I am

working now, my income is too high to receive the Medicaid which is why I am

concerned with getting onto my employer's health policy. My SSDI payments

will continue for 9 months during a work trial period as Don stated. I

didn't mean to confuse anyone I just wish Medicaid had given me a little

more notice to work something out so I don't have to pay for prescriptions

and medical care out of pocket or have a gap in coverage.

> in FL

_______________________________________________________

Send a cool gift with your E-Card

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I do have all of this stuff but I swear I would have to give you the entire 3

ring binder to make sure you got all the info.

There is a website somewhere where they have sample doctor letters and other

stuff but I can't remember where the website is.

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hi ali,

i wasn't going to write because the others said what i was

going to say. however, i figured one more show of support

won't hurt. it took 3 years for me to get approved, and

2 denials, but with the help of a good lawyer i was approved.

and without having to go before a judge! i have even been

continued. my lawyer told me last year when i went in to

do the continuance that with ss funds getting low, they aren't

approving as many, and that to get it you have to being

willing to fight. i know it is all overwhelming when you

feel like crap, but it is worth it.

i also saw the article on the chinese herb, take seven steps

and die! can't be too much worse than the russian rullette

we play with all these chemicals!

welcome to all newbies, sorry i haven't posted in a while,

having flare in wrists and fingers.

gordon, i am sorry your liver is messed up, maybe some time

off will clear it up. i liked your article, and you looked

like i thought you would. you now have 2 new residents in

australia, my niece and her husband have arrived in alice

springs and are looking forward to the next three years

in your country.

have a good weekend all

susan in ohio

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I have a question about SSDI. I would like to know if you have to be on

State Disability for a certain period of time before you can apply for SSDI?

My doctor says that he thinks I need to be on the state plan for a year.

Thanks for any advise.

Amy Deel

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Amy,

What kind of disability you get depends on your income. Off the top of my

head I think it's SSI & SSDI. If you are married, what you and your husband

make could affect which type of disability you get. Together my income and my

husband's together was too high for one so I had to apply for the other. The

best thing to do is to call your social security office and they will let you

know what you qualify for. Unfortunately, your doctor cannot tell you that.

Are you currently employed and if so what does your employer offer as well.

When I was first put out of work our company had a short term disability

plan which I collected for six months. After that I was able to apply for the

Long term disability (insurance which I paid for for 21 years). If you

haven't worked in awhile, please check with social security ASAP because you

only have a certain amount of time after you work to be eligable to file.

Best of Luck,

Theresa in Fla.

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to answer the question about ssdi, i went straight for social

security, did not do anything with state of ohio. you really need

to go into the archives and research this. it has been the topic

of many discussions over the last year or so. many of us have gone

thru the process, most have finally been approved. it is not an

easy process, but if you are patient, it is worth it.

my question to the group: i have had no problems with my eyes over

the 6 or so years i have had pa. for the first 7 months i wore

gas permeable contacts without any problem. had to quit wearing

because i didn't have the finger flexibility to handle. wore them

for 16 years. in july i thought i would try soft contacts, more

specifically, torque lenses, which are made for people with extreme

astigmatism. i like them, except that they won't stay on my eyes,

the dr. said to blink more and use drops when i can, but doesn't

help. i have been wearing free trial lenses so i am not out any

money, but if i try gas perms, i have to pay for them first, and

if i can't wear them either, i will be p.oed. my eye exam was

great, no changes other than a little more nearsighted. has anyone

else had any experiences with this problem? i would appreciate

any advise, i go monday and must choose, gas perms or glasses.

thanks

susan in ohio

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> I have a question about SSDI. I would like to know if you have to

be on

> State Disability for a certain period of time before you can apply

for SSDI?

> My doctor says that he thinks I need to be on the state plan for a

year.

>

> Thanks for any advise.

>

> Amy Deel

Hi Amy,

I'm not sure what 'State Disability' is? I applied for SS Disability

through my state office, but my benefits come from the Fed Govt.

Once you're getting benefits for 24 months, you qualify for

Medicare. Depending on income, you may qualify for Medicaid. I'm

sure someone has posted it before, but www.ssa.gov is the website.

B

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To in Ohio

I had an inflammation problem with my eyes that led to my being

diagnosed with PA and for a year I had to put drops in them so I

couldn't wear my contacts that whole time. (He said I could for short

periods of time but they bothered me too much). After getting on meds

for PA, the eye problem cleared up and I went from soft contacts to

toric lenses. I do notice that I HAVE to blink more often or they

stick or get off center and blurs my vision. I found that I can't put

them in first thing in the morning and wear them all day like I could

before nor can I wear them every day. I'm on a computer at work most

of the time and found I don't blink enough which made my eyes dry and

red. So, I compromised...I wear my glasses at work and put my

contacts in once I get home and I can wear them on the weekends for 8

to 10 hours tops. Also, the toric lenses take about a minute or three

to 'settle' on my eyes where they're supposed to be. They told me

that when I first got them. That was 5 years ago. Whether its

related or not I don't know, but when I have a PA flare up, I wear my

contacts less. I think its because its just one less thing I have to

mess with 'cause I don't feel good.

Cheryl (also in Ohio)

> to answer the question about ssdi, i went straight for social

> security, did not do anything with state of ohio. you really need

> to go into the archives and research this. it has been the topic

> of many discussions over the last year or so. many of us have gone

> thru the process, most have finally been approved. it is not an

> easy process, but if you are patient, it is worth it.

>

> my question to the group: i have had no problems with my eyes over

> the 6 or so years i have had pa. for the first 7 months i wore

> gas permeable contacts without any problem. had to quit wearing

> because i didn't have the finger flexibility to handle. wore them

> for 16 years. in july i thought i would try soft contacts, more

> specifically, torque lenses, which are made for people with extreme

> astigmatism. i like them, except that they won't stay on my eyes,

> the dr. said to blink more and use drops when i can, but doesn't

> help. i have been wearing free trial lenses so i am not out any

> money, but if i try gas perms, i have to pay for them first, and

> if i can't wear them either, i will be p.oed. my eye exam was

> great, no changes other than a little more nearsighted. has anyone

> else had any experiences with this problem? i would appreciate

> any advise, i go monday and must choose, gas perms or glasses.

> thanks

> susan in ohio

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ali,

i have " just " pa. i applied too early after quitting work and

was rejected twice. i then went to a lawyer, who had me approved

within a few months. the whole process took a couple of years.

i have already had a review which the lawyer handled and i have

been continued for another five years. she has been well worth

the money. i know a lot of people have done it without a lawyer.

however, for me, her experience and knowledge in dealing with social

security was invaluable. i never had to go to a doctor or a hearing.

i just got a letter one day saying i was approved. i wish i had called

her when i first quit working and gotten advise on how to start the

process, it would have eliminated a lot of waiting. i was rejected

twice before i was even considered " disabled " by the govt.

i know your mom wants to help, but in my experience, unless she

is versed in social security disability law, she might not be a

great help.

that's my 2 cents worth.

(which is about all my cost of living raise is this year!)

susan in ohio

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Hi Jen, I think you would have to sign up for that

separately, if that's what you're asking. You would

more than likely be eligible to receive some kind of

government health insurance if you get SSDI. If you

get a caseworker for SSDI, you could ask them.

--- sielick817@... wrote:

> Hi Does anyone know..if --please dear god..if i get

> approved for SSDI..will i

> get health insurance also??? THANKS--jen

>

__________________________________________________

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Get an attorney immediately

the gov't responds better and more quickly when they

are pressed legally

good luck

g

--- Rambo <nrambo1651@...> wrote:

> Kathy,

>

> If you are denied.....the very next

> day.....REAPPLY!!!

>

> Also, look for a licensed person to do an

> employment evaluation of you. This is something

> that the courts are going to ask for and if you

> already have had an evaluation it will move along

> and help your process.

>

> I wish you the best of luck.

>

>

>

>

>

________________________________________________________________________________\

____

> No need to miss a message. Get email on-the-go

> with for Mobile. Get started.

> http://mobile./mail

>

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Just a quick note on attorneys..........

First, get one that specifically deals with SSDI,

they know their stuff

Second, I know in Pennsylvania they are only

allowed to charge a small percentage of what you

get so know your data before going there.

I'd ask around to see who is good in your area.

In Philadelphia there is a couple, Silver &

Silver that are to be very good. He was on the

arthritis foundation board of directors. I would

have gone to him if I had been denied.

--- greg lehman <gergnamhel@...> wrote:

> Get an attorney immediately

> the gov't responds better and more quickly when

> they

> are pressed legally

> good luck

> g

> --- Rambo <nrambo1651@...> wrote:

>

> > Kathy,

> >

> > If you are denied.....the very next

> > day.....REAPPLY!!!

> >

> > Also, look for a licensed person to do an

> > employment evaluation of you. This is

> something

> > that the courts are going to ask for and if

> you

> > already have had an evaluation it will move

> along

> > and help your process.

> >

> > I wish you the best of luck.

> >

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I was denied because I didnt understand that there was a time limit in

turning in the medical release forms. Big mistake. Especially since I have

2 docs stating I am unable to work/disabled!! So I printed off an appeal

form and wrote a letter to appeal their decision explaining I had since

spent time educating myself on the rules and time lines that are required.

I have yet to hear back from them, and not sure how to follow up now... I

think its back to the website to find out =)

Thanks

melissa

On 2/5/07, Rambo <nrambo1651@...> wrote:

>

> Kathy,

>

> If you are denied.....the very next

> day.....REAPPLY!!!

>

> Also, look for a licensed person to do an

> employment evaluation of you. This is something

> that the courts are going to ask for and if you

> already have had an evaluation it will move along

> and help your process.

>

> I wish you the best of luck.

>

>

> __________________________________________________________

> No need to miss a message. Get email on-the-go

> with for Mobile. Get started.

> http://mobile./mail

>

>

--

I can do all things through Christ which strengtheneth me Phil 4:13

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