Re:

May 15, 2007

Tommie,

Thank you for al the information. My husband told my doctor off, when we went

in, half our meds weren't listed in our files no more and when we first went in

I had typed out both hubby and I's meds. He said he had to let a nurse go and he

was finding more and more things that she had done, don't know why. We told him

if he didn't feel like he could treat us and be in tune to our needs and what is

wrong then we would be going else where. He ask for us to bare with him. WELL,

hubby had blood work done that day and to this day they have not bothered to

call and give the results. Sigh! I ran the Fibro doctor search on the website

you gave me and the closest one to me is Tulsa....if she is good and will and

can help, I reckon it will be worth the drive if I go there.

Thank you so much.

Tommie wrote:

Hi ,

You're welcome Opoids are Oxycontin, Percocet, Morphine, Duragesic Patches.

Things like that. Xanax is a good drug. Some docs don't like using it, others

don't mind. My docs never cared, but then I got a new doc and even my pain mgmt

doc doesn't like them, but my Psychiatrist does and she freely gives them to me.

I've been on them 12 yrs now. And they really help me. I took Prozac when it

first hit the market in 1990. I took it for weight loss though. It sure worked

for that back then. But I wasn't depressed, so maybe that is why it worked. It

was sure the " happy pill " as they call it now. I haven't taken it since then. I

take Cymbalta for depression now. It's a really good antidepressant. Hopefully

your doc will keep you on what you are use to since they work.

When I had IBS problems, cramping, spasming and diarrhea, I took Levsin. It's a

sublingual med. You put it under your tongue, this is what sublingual means. It

sure helped. I haven't had to take that in years either since being on the

opoids. If you get on them, I hope they help you the same way they did me. IBS

with diarrhea really gets annoying, I hated it too.

As far as a FM Doc, have you tried searching here: www.pain.com You can search

for pain clinics on that site, or http://fmcfsme.d-3systems.com/ look to the

left of the page, scroll down some and click on " doctor search " . This is a

really great site with lots of wonderful information. Check it out! A friend of

ours right here owns the site. Misty is her name. Let me know how it goes.

I hope you had a good weekend with your company. Talk to you when you recover,

which I hope isn't too long. But take care of you first.

Hugs,

Tommie

Re: FMS Poll?

Tommie wrote: Hi Everyone!

I wanted to do a poll, but it's a multi-question poll and I couldn't figure out

through the fibro fog how to post it using the group software. And I didn't want

to do 6 polls. So, I'll roll it all into one and just do it here and hope I get

many responses.

Anyway, I'd like to know:

1. How long everyone has had FMS?

I was diagnosed about 6 years ago and I know it has been in my body way before

that.

2. Has the pain progressively gotten worse over the years.

Yes, for sure.

3. Do you have a lot of leg problems with it FMS.

Yes, I do. It is hard to walk very far and when I walk my hips and legs go numb.

4. Has your mobility been affected due to the pain and weakness in your legs?

Yes.

5. Do your legs hurt more than any other place in your body? Constantly, on a

daily basis? I hurt all over like I have the flu.

6. And then when you have flares and the pain is very severe, does the entire

body hurt then? Or do you just have certain area's that are affected during a

severe flare?

My legs hurt, chest, arms, shoulders and a terrible headache. I also have IBS

and when the flare ups come it acts up too. I also get depressed.

We have just recently moved and I no longer have the security and understanding

of a good doctor. am trying hard to fix this.

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May 19, 2007

Hi ,

Goodness! I'm sorry you are having such a hard time with docs. I agree, if the

one in Tulsa is a good one, it will be worth the drive. But, you can get a

regular Pain Management doc, perhaps in your own town? And have your doc to

refer you to one. I can't remember what City you are in, but go to www.pain.com

scroll down a bit and on the right side of the page you can do a search for Pain

Clinics in any State. See what you can find here. Most all of them require a

referral from a PCP. Good Luck!! I hope you can find what you need to help you.