Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Bonnie, I know you asked Beverly, but the amount of the disability you receive depends on how much money you have made at your job in the last three years...an average. So everyone's amount of disability will be different. I do believe the amount won't change any once he reaches retirement age, but don't quote me on that because I'm not absolutely sure. Penny > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > disability > > lawyer and he got nme approved without me ever having to go to a > > hearing. It > > took about 3 months...and of course he gpt 25% of my back pay...but > > that was > > worth it to me. I figured that it was money I didn't have before. > > That's my > > story. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that > > take our > > breath away. > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:22:20 PM > > Subject: disability > > > > > > Well, > > > > I just got disability denial number 2 in the mail. I don't have a > > clue what I " m doing wrong! Anyone have to go all the way to court > > with this? It's unbelievable to me. They say I can't do what I used > > to do, but I can do something else. I had an office pinky job! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 Don't they increase it like SS according to the standard of living index? Of course we didn't get a raise this year either. Our government in its wisdom decided that was one way to save money. Jan > Bonnie, I know you asked Beverly, but the amount of the disability you > receive depends on how much money you have made at your job in the last > three years...an average. So everyone's amount of disability will be > different. I do believe the amount won't change any once he reaches > retirement age, but don't quote me on that because I'm not absolutely sure. > > Penny > > > > > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > > disability > > > lawyer and he got nme approved without me ever having to go to a > > > hearing. It > > > took about 3 months...and of course he gpt 25% of my back pay...but > > > that was > > > worth it to me. I figured that it was money I didn't have before. > > > That's my > > > story. > > > > > > > > > Love,Jill > > > > > > We don't remember days, we remember moments. > > > Life is not measured by the breaths we take,but by the moments that > > > take our > > > breath away. > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Fri, September 17, 2010 5:22:20 PM > > > Subject: disability > > > > > > > > > Well, > > > > > > I just got disability denial number 2 in the mail. I don't have a > > > clue what I " m doing wrong! Anyone have to go all the way to court > > > with this? It's unbelievable to me. They say I can't do what I used > > > to do, but I can do something else. I had an office pinky job! > > > > > > Much love, > > > Roni > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 OMGOODNESS i sooooooooo need that good belly laugh this morning my brother...see you sooooooo get me, when you said cord all i could think was BLACK AND DECKER hahahahaha my mind goes to these naughty naughty places sometimes and i am sooooooo glad to have you and all my other peeps who love and understand me and my jokes...and have the ability to read my mind. definately gonna be looking into these positions !!! thanks for the love the laugh and the advise !!!!!!! love you > > > >  Well, Bonnie...Ed has impotence . I'm ot real sure if it's a result of his > > > cirrhosis or his diabetes. He does take viagra and cialis....and has seen docs > > > for this problem.. It is certainly frustrating for both of us, but we are > > finding that love can conquer anything!. Anyone else have anything to chip in > > here? > >                                        > >                                    > >Love,Jill > >  > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that take our > > breath away. > > > > > > > > > > ________________________________ > > From: Bonnie Lee <bonnie_lee1965@> > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 10:13:53 PM > > Subject: Re: Disability > > > >  > > Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the > > > > cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits > > > on july 16th this year for cirhossis and hep c. On 8/30 we found out he was > > approved. He got a lawyer from the beginning. Usually they automatically deny > > people and then when they hire an attorney and there is a papertrail of labs, > > med visits, hospital stays it has a better chance to be approved. However, I > > know of a guy who had cancer and he was not approved. we had a state > > representative advocate for that person and he was approved more quickly. he > >did > > > > > > die soon thereafter. My husband is going to the gastroenterologist monday. He > > didnt make it to the doc today. Let me ask any of u a question if u dont mind. > > > Do people who have cirhossis usually suffer from impotence? If so, is there a > > medicine for ed that wont hurt his liver. Thanks for all of your input it truly > > > > is so helpful. Bonnie > > > > ________________________________ > > From: Jill <jillkstewart@> > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 7:40:42 PM > > Subject: Re: Disability > > > > I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going > > > > through all this. How frustrating. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that take our > > breath away. > > > > ________________________________ > > From: Rhonda <ronimahaffey49@> > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:46:43 PM > > Subject: Disability > > > > Oh and get this..........the only time I ever talked to someone from > > the disability department I was on my way to a friends house. She was > > asking me about a recent bleed I had had. When I got to my friends > > house..........she said, " Your talking like you just drank a six > > pack " ! No telling what the lady from disabilty thought! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Bob, thanks for the info. The ss worker said that the highest amount that anyone gets is 674. anyway my husband went to gastroenterologist yesterday and he said that his liver is better, the numbers are better and he may be able to get the ribavarin and interferon shots in a few months. He told my husband that in his opinion he doesnt need to see a hematologist. Now, just to refresh, he has hepatitis c and cirrhosis. Last time we saw this doctor he had a MELD of 14. My hubby didnt get the new score, but apparently it was lower.........any thoughts?? Bonnie ________________________________ To: livercirrhosissupport Sent: Sun, September 19, 2010 12:10:07 PM Subject: Re: disability My SS payment is $1,200 per month. I believe that the SSA bases this amount on some bureaucratic arbitrary number having to do with former salary during a certain period. I wished you coul;d get more. love, bobby i ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 9:07:21 PM Subject: Re: disability Beverly, how come u get so much, we were told that the most you could get is 674 a month. Is that because he is only 54? Do you get more at 62/65? ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 1:50:09 PM Subject: Re: disability gloria i didn't have any proplems here in houston i didn't even have to go in the ss office they did everything by phone but i can't get medical help until march 2011i have to wait 2 yrs after receing benfits.it sure helps i get 1,338. a month. i am very thankful for the help.all i had to do is get the doctor to ok everything.good luck bev,tx ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 8:02:07 AM Subject: Re: disability Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case ,with Ed being the main breadwinner...it's the medicare benefits that are such a Godsend. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 12:43:49 AM Subject: Re: disability Roni I certainly don't know very much about qualifying for Disability in the US; but, I did qualify my first time, here in Canada. However, it is certainly not enough for a person to actually live on. So, here they allow us to earn up to $400 per month. Fortunately, I have usually always worked from home. I'm a bookkeeper for small businesses. As much as I sometimes didn't like all the stress from what I do and sometimes just didn't want to be confined, I am extremely lucky to have used my skills. It afforded me any amount of time off to deal with my son back when he was in school or for any other purpose. Now, that I went through two HepC treatments and then surgery for the liver cancer ALL of my clients patiently waited for me to get better. They were my biggest support team bar none. Since my husband decided that he didn't want to put up with me any longer and we separated after 21 yrs, I definitely need the extra money. Even more than that, I need to be needed again. My health has recovered so very much, that I feel better today than I did over 6 yrs ago when all of this started. The only thing that I have to watch carefully, is the Fibromalgia!! I definitely don't want pain meds until I just can't take it anymore. So recently, my GP put me on some muscle relaxers. Believe it or not, they work pretty damn good most days. The actual name of them is Flexiral or somethings like that. Gloria ________________________________ Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Bonnie  I am not for sure why the ss worker told you that figure. I make a lot more than that here in Texas, but I do not think that the state has anything to do with it. I worked for one the of the top 4 international auditing firms and paid in quite a bit.  Lyncia Thank you God for this day and for my tomorrows .  Love, Lyncia   > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 There are two types of disabiliy. One is from the federal govermnt,, tiedto SS and it usually pays higher. Since you say your husband can only get 674, it sounds as if you are dealing with state disability. I can only get state disability because I didn't work enough quarters late enough to qualfy for the federal disability I did apply a few years ago, was denied and was going to appeal, but my grandson came to live with me, the first on, and I missed my chance to appeal. I was told I could only get about $600 total income, so when I apply for it now I will only get about $300 since I get $301 in SS. If your husband has a better work record than I had, you should be applying for the federal disability. Jan On Tue, Sep 21, 2010 at 2:48 PM, Bonnie Lee wrote: > Bob, thanks for the info. The ss worker said that the highest amount that > anyone gets is 674. anyway my husband went to gastroenterologist yesterday > and > he said that his liver is better, the numbers are better and he may be able > to > get the ribavarin and interferon shots in a few months. He told my > husband > that in his opinion he doesnt need to see a hematologist. Now, just to > refresh, > he has hepatitis c and cirrhosis. Last time we saw this doctor he had a > MELD of > 14. My hubby didnt get the new score, but apparently it was > lower.........any > thoughts?? Bonnie > > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, September 19, 2010 12:10:07 PM > Subject: Re: disability > > > My SS payment is $1,200 per month. I believe that the SSA bases this amount > on > some bureaucratic arbitrary number having to do with former salary during > a > certain period. > I wished you coul;d get more. love, bobby > > i > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 9:07:21 PM > Subject: Re: disability > > Beverly, how come u get so much, we were told that the most you could get > is 674 > > > a month. Is that because he is only 54? Do you get more at 62/65? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 1:50:09 PM > Subject: Re: disability > > gloria i didn't have any proplems here in houston i didn't even have to go > in > the ss office they did everything by phone but i can't get medical help > until > march 2011i have to wait 2 yrs after receing benfits.it sure helps i get > 1,338. > a month. i am very thankful for the help.all i had to do is get the doctor > to ok > > > everything.good luck > bev,tx > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 8:02:07 AM > Subject: Re: disability > > Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case > ,with Ed being the main breadwinner...it's the medicare benefits that are > such a > > > Godsend. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 12:43:49 AM > Subject: Re: disability > > Roni > > I certainly don't know very much about qualifying for Disability in the US; > but, > > > I did qualify my first time, here in Canada. > > However, it is certainly not enough for a person to actually live on. So, > here > they allow us to earn up to $400 per month. Fortunately, I have usually > always > worked from home. I'm a bookkeeper for small businesses. As much as I > sometimes didn't like all the stress from what I do and sometimes just > didn't > want to be confined, I am extremely lucky to have used my skills. It > afforded > me any amount of time off to deal with my son back when he was in school or > for > any other purpose. Now, that I went through two HepC treatments and then > surgery for the liver cancer ALL of my clients patiently waited for me to > get > better. They were my biggest support team bar none. > > Since my husband decided that he didn't want to put up with me any longer > and we > > > separated after 21 yrs, I definitely need the extra money. Even more than > that, > I need to be needed again. My health has recovered so very much, that I > feel > better today than I did over 6 yrs ago when all of this started. The only > thing > that I have to watch carefully, is the Fibromalgia!! I definitely don't > want > pain meds until I just can't take it anymore. So recently, my GP put me on > some > muscle relaxers. Believe it or not, they work pretty damn good most days. > The > actual name of them is Flexiral or somethings like that. > > Gloria > > ________________________________ > > Hi Jill, > > I have a lawyer but they really haven't helped much at all. They just > forward the paperwork and I fill it out and they mail it in. No > suggestions, comments, nothing. Maybe they are just waiting for the > trial to step up to the plate. He did say he won 98% of his cases. > Can you think of a less physically active career than being an office > pinky? I have a degree in Graphic Art........it would be pretty > stupid of me to get a job doing something other than that. I plan on > working some for myself to help with bills but I'll have to be able to > set my own hours and probably won't be able to do a whole lot. I > guess you're only allowed to make a certain amount on disability. I > could only work on the days I felt pretty good and never be able to > hold down a full time job of any kind. They frown upon calling in > sick alot and slurring your words because you weren't taking your > lactulose 4x a day. My family thought I had started drinking again. > Ha! I didn't have a clue I was slurring my words. > > Love, > Roni > > > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > disability > > lawyer and he got nme approved without me ever having to go to a > > hearing. It > > took about 3 months...and of course he gpt 25% of my back pay...but > > that was > > worth it to me. I figured that it was money I didn't have before. > > That's my > > story. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that > > take our > > breath away. > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:22:20 PM > > Subject: disability > > > > > > Well, > > > > I just got disability denial number 2 in the mail. I don't have a > > clue what I " m doing wrong! Anyone have to go all the way to court > > with this? It's unbelievable to me. They say I can't do what I used > > to do, but I can do something else. I had an office pinky job! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 I thought he did apply for federal disability. It was through ss and he had a lawyer. Oh well Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, September 21, 2010 9:37:35 PM Subject: Re: disability There are two types of disabiliy. One is from the federal govermnt,, tiedto SS and it usually pays higher. Since you say your husband can only get 674, it sounds as if you are dealing with state disability. I can only get state disability because I didn't work enough quarters late enough to qualfy for the federal disability I did apply a few years ago, was denied and was going to appeal, but my grandson came to live with me, the first on, and I missed my chance to appeal. I was told I could only get about $600 total income, so when I apply for it now I will only get about $300 since I get $301 in SS. If your husband has a better work record than I had, you should be applying for the federal disability. Jan On Tue, Sep 21, 2010 at 2:48 PM, Bonnie Lee wrote: > Bob, thanks for the info. The ss worker said that the highest amount that > anyone gets is 674. anyway my husband went to gastroenterologist yesterday > and > he said that his liver is better, the numbers are better and he may be able > to > get the ribavarin and interferon shots in a few months. He told my > husband > that in his opinion he doesnt need to see a hematologist. Now, just to > refresh, > he has hepatitis c and cirrhosis. Last time we saw this doctor he had a > MELD of > 14. My hubby didnt get the new score, but apparently it was > lower.........any > thoughts?? Bonnie > > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, September 19, 2010 12:10:07 PM > Subject: Re: disability > > > My SS payment is $1,200 per month. I believe that the SSA bases this amount > on > some bureaucratic arbitrary number having to do with former salary during > a > certain period. > I wished you coul;d get more. love, bobby > > i > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 9:07:21 PM > Subject: Re: disability > > Beverly, how come u get so much, we were told that the most you could get > is 674 > > > a month. Is that because he is only 54? Do you get more at 62/65? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 1:50:09 PM > Subject: Re: disability > > gloria i didn't have any proplems here in houston i didn't even have to go > in > the ss office they did everything by phone but i can't get medical help > until > march 2011i have to wait 2 yrs after receing benfits.it sure helps i get > 1,338. > a month. i am very thankful for the help.all i had to do is get the doctor > to ok > > > everything.good luck > bev,tx > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 8:02:07 AM > Subject: Re: disability > > Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case > ,with Ed being the main breadwinner...it's the medicare benefits that are > such a > > > Godsend. > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, September 18, 2010 12:43:49 AM > Subject: Re: disability > > Roni > > I certainly don't know very much about qualifying for Disability in the US; > but, > > > I did qualify my first time, here in Canada. > > However, it is certainly not enough for a person to actually live on. So, > here > they allow us to earn up to $400 per month. Fortunately, I have usually > always > worked from home. I'm a bookkeeper for small businesses. As much as I > sometimes didn't like all the stress from what I do and sometimes just > didn't > want to be confined, I am extremely lucky to have used my skills. It > afforded > me any amount of time off to deal with my son back when he was in school or > for > any other purpose. Now, that I went through two HepC treatments and then > surgery for the liver cancer ALL of my clients patiently waited for me to > get > better. They were my biggest support team bar none. > > Since my husband decided that he didn't want to put up with me any longer > and we > > > separated after 21 yrs, I definitely need the extra money. Even more than > that, > I need to be needed again. My health has recovered so very much, that I > feel > better today than I did over 6 yrs ago when all of this started. The only > thing > that I have to watch carefully, is the Fibromalgia!! I definitely don't > want > pain meds until I just can't take it anymore. So recently, my GP put me on > some > muscle relaxers. Believe it or not, they work pretty damn good most days. > The > actual name of them is Flexiral or somethings like that. > > Gloria > > ________________________________ > > Hi Jill, > > I have a lawyer but they really haven't helped much at all. They just > forward the paperwork and I fill it out and they mail it in. No > suggestions, comments, nothing. Maybe they are just waiting for the > trial to step up to the plate. He did say he won 98% of his cases. > Can you think of a less physically active career than being an office > pinky? I have a degree in Graphic Art........it would be pretty > stupid of me to get a job doing something other than that. I plan on > working some for myself to help with bills but I'll have to be able to > set my own hours and probably won't be able to do a whole lot. I > guess you're only allowed to make a certain amount on disability. I > could only work on the days I felt pretty good and never be able to > hold down a full time job of any kind. They frown upon calling in > sick alot and slurring your words because you weren't taking your > lactulose 4x a day. My family thought I had started drinking again. > Ha! I didn't have a clue I was slurring my words. > > Love, > Roni > > > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > disability > > lawyer and he got nme approved without me ever having to go to a > > hearing. It > > took about 3 months...and of course he gpt 25% of my back pay...but > > that was > > worth it to me. I figured that it was money I didn't have before. > > That's my > > story. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that > > take our > > breath away. > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:22:20 PM > > Subject: disability > > > > > > Well, > > > > I just got disability denial number 2 in the mail. I don't have a > > clue what I " m doing wrong! Anyone have to go all the way to court > > with this? It's unbelievable to me. They say I can't do what I used > > to do, but I can do something else. I had an office pinky job! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Thanks Jan for the explanation. Texas doesn't have the state disability....at least I don't think so.   Lyncia Thank you God for this day and for my tomorrows .  Love, Lyncia   > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > disability > > lawyer and he got nme approved without me ever having to go to a > > hearing. It > > took about 3 months...and of course he gpt 25% of my back pay...but > > that was > > worth it to me. I figured that it was money I didn't have before. > > That's my > > story. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that > > take our > > breath away. > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:22:20 PM > > Subject: disability > > > > > > Well, > > > > I just got disability denial number 2 in the mail. I don't have a > > clue what I " m doing wrong! Anyone have to go all the way to court > > with this? It's unbelievable to me. They say I can't do what I used > > to do, but I can do something else. I had an office pinky job! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Maybe the amount the SS worker gave you was based on his previous income and that is all he can get based on his wage from his former job. Or, maybe he is getting SSI, not SSDI. SSI only gives around that much for a person. SSI is federal supplemental security income. The social security office is where that comes from too. When I first got on disability, I got SSDI and SSI. With SSI you cannot have more than $2000 in your bank accounts or it is taken away. It is for people with little or no income. http://www.ssa.gov/ssi/ I have a friend who is blind, and he only gets SSI. Penny > > > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > > disability > > > lawyer and he got nme approved without me ever having to go to a > > > hearing. It > > > took about 3 months...and of course he gpt 25% of my back pay...but > > > that was > > > worth it to me. I figured that it was money I didn't have before. > > > That's my > > > story. > > > > > > > > > Love,Jill > > > > > > We don't remember days, we remember moments. > > > Life is not measured by the breaths we take,but by the moments that > > > take our > > > breath away. > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Fri, September 17, 2010 5:22:20 PM > > > Subject: disability > > > > > > > > > Well, > > > > > > I just got disability denial number 2 in the mail. I don't have a > > > clue what I " m doing wrong! Anyone have to go all the way to court > > > with this? It's unbelievable to me. They say I can't do what I used > > > to do, but I can do something else. I had an office pinky job! > > > > > > Much love, > > > Roni > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 get ALL of your dr. notes and tests you have had done, letters from drs. church members family members boss anyone who can attest to the changes in your life and daily activities, photo copy them all ,keep the originals, have them in a nice tidy little book ready to hand in the day you do you application. not saying this will help but it supposed to save time in having ssd order them from drs. hope this helps and one more thing GET A LAYWER straight out the gate,i wish we would have. good luck. > > I feel for you all who have to go though this, I am not looking foward to be put on disability after what I read,I am still working, but it will be a matter of time before I am too put on disability.Is there anything that I can do to prepare. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 Yes, Ron. Gather all of the medical records you can. Make sure that your doctors are using terms that support your claim. If you tell them that your symptoms are severe, such as fatigue, or sleep disturbance,day night reversal, those are things that are going to help you win your case if they are documented correctly. But if they are not, it can KILL your case. My doctors made it very very difficult to help me win my case, because they were so busy trying to paint a rosy picture for me so that I wouldnt get too down, they described a situation far far from reality. During my hearing , the judge asked the doctor whom was testifying against me over the phone if I met the standards in his opinion... the doctor said " he does not " , then the judge asked the doctor if I EQUALED any of the standards in his opinion, and the doctor said " he does, your honor, he reported on February 4th 2007 to his primary care doctor that he suffers from fatigue. Because of that, in combination with the medical findings, he EQUALS the standard. " That is exactly how my case was won. One tiny medical statement in my foot long medical record. Not encephalopathy, not end stage liver disease, not hepatopulmonary syndrome, no, none of those things. But instead I won because my doctor listened to me and wrote down that I said that I was having fatigue. Bobby ________________________________ To: livercirrhosissupport Sent: Sat, November 20, 2010 7:48:54 PM Subject: disability I feel for you all who have to go though this, I am not looking foward to be put on disability after what I read,I am still working, but it will be a matter of time before I am too put on disability.Is there anything that I can do to prepare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 That is kind of the way my deal went...from the get go I emphasized to all my doc's how fatigued I was. Every visit, every doc. Course I was, but didn't realize at the time I was telling the doc's how significant that was to the judge...and the fact of a major bleed, which according to disability guidelines is suppose to be automatic approval for 1 or 2 yrs. as I remember..even though I had read about the auto disability in the guidelines they disqualified me . I got a lawyer..So when the judge asked me to speak to him I told him of the chronic fatigue, and emphasized the major bleed...make all Dr. appts. Ron...talk about fatigue!  Dave ________________________________ To: livercirrhosissupport Sent: Sun, November 21, 2010 6:40:55 PM Subject: Re: disability  Yes, Ron. Gather all of the medical records you can. Make sure that your doctors are using terms that support your claim. If you tell them that your symptoms are severe, such as fatigue, or sleep disturbance,day night reversal, those are things that are going to help you win your case if they are documented correctly. But if they are not, it can KILL your case. My doctors made it very very difficult to help me win my case, because they were so busy trying to paint a rosy picture for me so that I wouldnt get too down, they described a situation far far from reality. During my hearing , the judge asked the doctor whom was testifying against me over the phone if I met the standards in his opinion... the doctor said " he does not " , then the judge asked the doctor if I EQUALED any of the standards in his opinion, and the doctor said " he does, your honor, he reported on February 4th 2007 to his primary care doctor that he suffers from fatigue. Because of that, in combination with the medical findings, he EQUALS the standard. " That is exactly how my case was won. One tiny medical statement in my foot long medical record. Not encephalopathy, not end stage liver disease, not hepatopulmonary syndrome, no, none of those things. But instead I won because my doctor listened to me and wrote down that I said that I was having fatigue. Bobby ________________________________ To: livercirrhosissupport Sent: Sat, November 20, 2010 7:48:54 PM Subject: disability I feel for you all who have to go though this, I am not looking foward to be put on disability after what I read,I am still working, but it will be a matter of time before I am too put on disability.Is there anything that I can do to prepare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRr to the doctors and the judges involved with disability. They decided I didn't qualify because I could work as a data entry person. I wasn't any good at it when I was feeling well, then fingertips numb and tired all the time. I have to reapply and soon, but I just don't have the energy to do it. This may sound weird, but if I could get started and react well to dialysis and don't have to make 70 mile trips multiple times a week for therapy on my hand now and dialysis at least to start with, I might be able to find the energy to fight with them. I looked for a lawyer when I first started, but here they say the don't get into disability cases until the last appeals stage, so you have to do all the work, they show up for one court hearing. And then want 25% of your back pay. In my case that won't be much, so that would probably cut down the lawyers willing to help even more than usual. And the closest lawyers handling these cases are 80 miles away. Jan On Sun, Nov 21, 2010 at 5:40 PM, Bob Aragon wrote: > Yes, Ron. Gather all of the medical records you can. Make sure that your > doctors > are using terms that support your claim. If you tell them that your > symptoms are > severe, such as fatigue, or sleep disturbance,day night reversal, those are > things that are going to help you win your case if they are documented > correctly. But if they are not, it can KILL your case. My doctors made it > very > very difficult to help me win my case, because they were so busy trying to > paint > a rosy picture for me so that I wouldnt get too down, they described a > situation > far far from reality. During my hearing , the judge asked the doctor whom > was > testifying against me over the phone if I met the standards in his > opinion... > the doctor said " he does not " , then the judge asked the doctor if I EQUALED > any > of the standards in his opinion, and the doctor said " he does, your honor, > he > reported on February 4th 2007 to his primary care doctor that he suffers > from > fatigue. Because of that, in combination with the medical findings, he > EQUALS > the standard. " > That is exactly how my case was won. One tiny medical statement in my foot > long > medical record. Not encephalopathy, not end stage liver disease, not > hepatopulmonary syndrome, no, none of those things. But instead I won > because my > doctor listened to me and wrote down that I said that I was having fatigue. > Bobby > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, November 20, 2010 7:48:54 PM > Subject: disability > > > I feel for you all who have to go though this, I am not looking foward to > be put > on disability after what I read,I am still working, but it will be a matter > of > time before I am too put on disability.Is there anything that I can do to > prepare. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 Thanks, I know your answer was aimed to Ron, but I am going to tell every doctor just how fatigued I am. and see if they write it down. Because of the anemia, when I have told the doctors I am so tired, they say of course you are, you are severely anemic So, I have pretty much stopped mentioning it as they know what my blood levels are. And so far, they aren't going up even with the treatment for the bleeding in my stomach lining. Came home today after playing at church , going to Bible Study, eating dinner with some friends, got home about 1, sleeping by 1 and woke up about 7:30. Tomorrow I have therapy at 9:30, for an hour usually, probably will have trouble sleeping tonight because of that long nap, so will come home tomorrow and do the same thing. Makes me tired thinking of it. Then Bible study on Tues night Thanksgiving eve services on Wedn afternoon, Going to my daughter's 190 miles away for thanksigivng, where we are going to give special thanks for my little grandson who was born last Thursday, have to drive back and have a dr. appt at 11 on Sat if my insurance gets straighteneed and back to playing for church on Sunday. I shouldn't be complaining because I know it is God who is keeping me going. Without his miracles, I don't think I would even be here. But even my friends are starting to ask if I am okay. They say I look so tired. Jan > That is kind of the way my deal went...from the get go I emphasized to all > my > doc's how fatigued I was. Every visit, every doc. Course I was, but > didn't > realize at the time I was telling the doc's how significant that was to the > judge...and the fact of a major bleed, which according to disability > guidelines > is suppose to be automatic approval for 1 or 2 yrs. as I remember..even > though I > had read about the auto disability in the guidelines they disqualified me . > I > got a lawyer..So when the judge asked me to speak to him I told him of the > chronic fatigue, and emphasized the major bleed...make all Dr. appts. > Ron...talk > about fatigue! > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, November 21, 2010 6:40:55 PM > Subject: Re: disability > > > Yes, Ron. Gather all of the medical records you can. Make sure that your > doctors > > are using terms that support your claim. If you tell them that your > symptoms are > > severe, such as fatigue, or sleep disturbance,day night reversal, those are > things that are going to help you win your case if they are documented > correctly. But if they are not, it can KILL your case. My doctors made it > very > very difficult to help me win my case, because they were so busy trying to > paint > > a rosy picture for me so that I wouldnt get too down, they described a > situation > > far far from reality. During my hearing , the judge asked the doctor whom > was > testifying against me over the phone if I met the standards in his > opinion... > the doctor said " he does not " , then the judge asked the doctor if I EQUALED > any > of the standards in his opinion, and the doctor said " he does, your honor, > he > reported on February 4th 2007 to his primary care doctor that he suffers > from > fatigue. Because of that, in combination with the medical findings, he > EQUALS > the standard. " > That is exactly how my case was won. One tiny medical statement in my foot > long > medical record. Not encephalopathy, not end stage liver disease, not > hepatopulmonary syndrome, no, none of those things. But instead I won > because my > > doctor listened to me and wrote down that I said that I was having fatigue. > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, November 20, 2010 7:48:54 PM > Subject: disability > > I feel for you all who have to go though this, I am not looking foward to > be put > > on disability after what I read,I am still working, but it will be a matter > of > time before I am too put on disability.Is there anything that I can do to > prepare. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 I got this idea from a forum at healing well dot com, so I did something similar, though the one IO used as a template was about thyroid disease. Here is my standard list, which has not changed much since 2006- ------------------------------- Bobby has the following symptoms and signs of end stage liver disease as detailed by the National Library of Medicine and the National Institutes of Health pain in the right upper quadrant fatigue weakness lethargy exaustion nausea itching-pruritus painful, enlarged breasts (gynocomastia) pale stools difficult to control nosebleeds bloody stools PORTAL HYPERTENSION upper left quadrant pain-splenomegaly Hepatic encephalopathy-- (all these have increased in the last 6 months) inversion of sleep pattern severe clumsiness at times (ataxia) lack of fine motor skills tremors lessened ability to perform mental tasks shortened attention span easily agitated euphoria short term memory loss fluttery vision (nystagmus) visual disturbances hallucinations communication problems Irrational behavior Shortness of breath- later diagnosed as hepatopulmonary syndrome This list was compiled 6 months before I started seeing the pain doctor, so they cant blame it on my pain meds.! Hang in there Jan! Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, November 21, 2010 8:23:10 PM Subject: Re: disability Thanks, I know your answer was aimed to Ron, but I am going to tell every doctor just how fatigued I am. and see if they write it down. Because of the anemia, when I have told the doctors I am so tired, they say of course you are, you are severely anemic So, I have pretty much stopped mentioning it as they know what my blood levels are. And so far, they aren't going up even with the treatment for the bleeding in my stomach lining. Came home today after playing at church , going to Bible Study, eating dinner with some friends, got home about 1, sleeping by 1 and woke up about 7:30. Tomorrow I have therapy at 9:30, for an hour usually, probably will have trouble sleeping tonight because of that long nap, so will come home tomorrow and do the same thing. Makes me tired thinking of it. Then Bible study on Tues night Thanksgiving eve services on Wedn afternoon, Going to my daughter's 190 miles away for thanksigivng, where we are going to give special thanks for my little grandson who was born last Thursday, have to drive back and have a dr. appt at 11 on Sat if my insurance gets straighteneed and back to playing for church on Sunday. I shouldn't be complaining because I know it is God who is keeping me going. Without his miracles, I don't think I would even be here. But even my friends are starting to ask if I am okay. They say I look so tired. Jan > That is kind of the way my deal went...from the get go I emphasized to all > my > doc's how fatigued I was. Every visit, every doc. Course I was, but > didn't > realize at the time I was telling the doc's how significant that was to the > judge...and the fact of a major bleed, which according to disability > guidelines > is suppose to be automatic approval for 1 or 2 yrs. as I remember..even > though I > had read about the auto disability in the guidelines they disqualified me . > I > got a lawyer..So when the judge asked me to speak to him I told him of the > chronic fatigue, and emphasized the major bleed...make all Dr. appts. > Ron...talk > about fatigue! > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, November 21, 2010 6:40:55 PM > Subject: Re: disability > > > Yes, Ron. Gather all of the medical records you can. Make sure that your > doctors > > are using terms that support your claim. If you tell them that your > symptoms are > > severe, such as fatigue, or sleep disturbance,day night reversal, those are > things that are going to help you win your case if they are documented > correctly. But if they are not, it can KILL your case. My doctors made it > very > very difficult to help me win my case, because they were so busy trying to > paint > > a rosy picture for me so that I wouldnt get too down, they described a > situation > > far far from reality. During my hearing , the judge asked the doctor whom > was > testifying against me over the phone if I met the standards in his > opinion... > the doctor said " he does not " , then the judge asked the doctor if I EQUALED > any > of the standards in his opinion, and the doctor said " he does, your honor, > he > reported on February 4th 2007 to his primary care doctor that he suffers > from > fatigue. Because of that, in combination with the medical findings, he > EQUALS > the standard. " > That is exactly how my case was won. One tiny medical statement in my foot > long > medical record. Not encephalopathy, not end stage liver disease, not > hepatopulmonary syndrome, no, none of those things. But instead I won > because my > > doctor listened to me and wrote down that I said that I was having fatigue. > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, November 20, 2010 7:48:54 PM > Subject: disability > > I feel for you all who have to go though this, I am not looking foward to > be put > > on disability after what I read,I am still working, but it will be a matter > of > time before I am too put on disability.Is there anything that I can do to > prepare. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Wow, that is quite a list. I did recognize some things I hadn't associated with liver disease. Of course, with multiple problems I never know what is causing it. For instance I have to be alert with every step I take, and use my hands as wings to balance myself. And at times I find my feet going in directions I didn't sent them. I am constantly dropping thing, use plastic glasses, Ed threatens to put a tail on my wireless mouse. My sleep pattern was reversed years ago from my heart problems I think, but it is coming back, frequently don't get to sleep until 3 AM I am going to star this message so I can use the list when I reapply. Thanks Jan On Mon, Nov 22, 2010 at 4:00 AM, Bob Aragon wrote: > I got this idea from a forum at healing well dot com, so I did something > similar, though the one IO used as a template was about thyroid disease. > Here is > my standard list, which has not changed much since 2006- > ------------------------------- > Bobby has the following symptoms and signs of end stage > liver disease as detailed by the National Library of > Medicine and the National Institutes of Health > > pain in the right upper quadrant > fatigue > weakness > lethargy > exaustion > nausea > itching-pruritus > painful, enlarged breasts (gynocomastia) > pale stools > difficult to control nosebleeds > bloody stools > PORTAL HYPERTENSION > upper left quadrant pain-splenomegaly > Hepatic encephalopathy-- (all these have increased in the last 6 months) > inversion of sleep pattern > severe clumsiness at times (ataxia) > lack of fine motor skills > tremors > lessened ability to perform mental tasks > shortened attention span > easily agitated > euphoria > short term memory loss > fluttery vision (nystagmus) > visual disturbances > hallucinations > communication problems > Irrational behavior > Shortness of breath- later diagnosed as hepatopulmonary syndrome > > This list was compiled 6 months before I started seeing the pain doctor, so > they > cant blame it on my pain meds.! Hang in there Jan! Love, Bobby > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, November 21, 2010 8:23:10 PM > Subject: Re: disability > > > Thanks, I know your answer was aimed to Ron, but I am going to tell every > doctor just how fatigued I am. and see if they write it down. Because of > the anemia, when I have told the doctors I am so tired, they say of course > you are, you are severely anemic So, I have pretty much stopped mentioning > it as they know what my blood levels are. And so far, they aren't going up > even with the treatment for the bleeding in my stomach lining. Came > home today after playing at church , going to Bible Study, eating dinner > with some friends, got home about 1, sleeping by 1 and woke up about 7:30. > Tomorrow I have therapy at 9:30, for an hour usually, probably will have > trouble sleeping tonight because of that long nap, so will come home > tomorrow and do the same thing. Makes me tired thinking of it. Then Bible > study on Tues night Thanksgiving eve services on Wedn afternoon, Going to > my > daughter's 190 miles away for thanksigivng, where we are going to give > special thanks for my little grandson who was born last Thursday, have to > drive back and have a dr. appt at 11 on Sat if my insurance gets > straighteneed and back to playing for church on Sunday. I shouldn't be > complaining because I know it is God who is keeping me going. Without his > miracles, I don't think I would even be here. But even my friends are > starting to ask if I am okay. They say I look so tired. Jan > > > > That is kind of the way my deal went...from the get go I emphasized to > all > > my > > doc's how fatigued I was. Every visit, every doc. Course I was, but > > didn't > > realize at the time I was telling the doc's how significant that was to > the > > judge...and the fact of a major bleed, which according to disability > > guidelines > > is suppose to be automatic approval for 1 or 2 yrs. as I remember..even > > though I > > had read about the auto disability in the guidelines they disqualified me > . > > I > > got a lawyer..So when the judge asked me to speak to him I told him of > the > > chronic fatigue, and emphasized the major bleed...make all Dr. appts. > > Ron...talk > > about fatigue! > > Dave > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, November 21, 2010 6:40:55 PM > > Subject: Re: disability > > > > > > Yes, Ron. Gather all of the medical records you can. Make sure that your > > doctors > > > > are using terms that support your claim. If you tell them that your > > symptoms are > > > > severe, such as fatigue, or sleep disturbance,day night reversal, those > are > > things that are going to help you win your case if they are documented > > correctly. But if they are not, it can KILL your case. My doctors made it > > very > > very difficult to help me win my case, because they were so busy trying > to > > paint > > > > a rosy picture for me so that I wouldnt get too down, they described a > > situation > > > > far far from reality. During my hearing , the judge asked the doctor whom > > was > > testifying against me over the phone if I met the standards in his > > opinion... > > the doctor said " he does not " , then the judge asked the doctor if I > EQUALED > > any > > of the standards in his opinion, and the doctor said " he does, your > honor, > > he > > reported on February 4th 2007 to his primary care doctor that he suffers > > from > > fatigue. Because of that, in combination with the medical findings, he > > EQUALS > > the standard. " > > That is exactly how my case was won. One tiny medical statement in my > foot > > long > > medical record. Not encephalopathy, not end stage liver disease, not > > hepatopulmonary syndrome, no, none of those things. But instead I won > > because my > > > > doctor listened to me and wrote down that I said that I was having > fatigue. > > Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, November 20, 2010 7:48:54 PM > > Subject: disability > > > > I feel for you all who have to go though this, I am not looking foward to > > be put > > > > on disability after what I read,I am still working, but it will be a > matter > > of > > time before I am too put on disability.Is there anything that I can do to > > prepare. > > > > Quote Link to comment Share on other sites More sharing options...
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