Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 I tried to get SSDI on my own and was denoied twice, Then I got a disability lawyer and he got nme approved without me ever having to go to a hearing. It took about 3 months...and of course he gpt 25% of my back pay...but that was worth it to me. I figured that it was money I didn't have before. That's my story.                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 5:22:20 PM Subject: disability  Well, I just got disability denial number 2 in the mail. I don't have a clue what I " m doing wrong! Anyone have to go all the way to court with this? It's unbelievable to me. They say I can't do what I used to do, but I can do something else. I had an office pinky job! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 UGH! I am so so sorry. How utterly frustrating. Someone is dropping the ball big time. Your hepatic encephalopathy is a BLUE BOOK listing!! They screwed this up royal. You shoud have been automatically approved. Here is the link to the blue book lisings for liver related disease. You should have been approved under number 10 at the very least. 5.05 Chronic Liver Disease (2) F. Confirmation of chronic liver disease by liver biopsy and one of the following: 1. Ascites for at least 3 months, demonstrated by abdominal paracentesis or associated with persistent albumin of 3.0 mg/dl or less; or 2. Serum bilirubin of 2.5 mg/dl or greater for at least 3 months; or 3. Abnormal PT and LFTs for 3 months • Chronic Liver Disease (e.g. portal, post-necrotic, or biliary cirrhosis; chronic active hepatitis; ’s disease). With: A. Esophageal varices with a documented h/o massive hemorrhage attributable to these varices. Consider under disability for 3 years following the last massive hemorrhage… 5. Gastrointestinal hemorrhage (5.02 and 5.05A). Gastrointestinal hemorrhaging can result in hematemesis (vomiting of blood), melena (tarry stools), or hematochezia (bloody stools). Under 5.02, the required transfusions of at least 2 units of blood must be at least 30 days apart and occur at least three times during a consecutive 6-month period. Under 5.05A, hemodynamic instability is diagnosed with signs such as pallor (pale skin), diaphoresis (profuse perspiration), rapid pulse, low blood pressure, postural hypotension (pronounced fall in blood pressure when arising to an upright position from lying down) or syncope (fainting). Hemorrhaging that results in hemodynamic instability is potentially life-threatening and therefore requires hospitalization for transfusion and supportive care. Under 5.05A, we require only one hospitalization for transfusion of at least 2 units of blood. 6. Ascites or hydrothorax (5.05B) indicates significant loss of liver function due to chronic liver disease. We evaluate ascites or hydrothorax that is not attributable to other causes under 5.05B. The required findings must be present on at least two evaluations at least 60 days apart within a consecutive 6-month period and despite continuing treatment as prescribed. ; or B. Performance of a shunt operation for esophageal varices. Consider under disability for 3 years following surgery…; or C. Serum bilirubin of 2.5 mg or greater for 5 months; or D. Ascites for 5 months with albumin 3.0 or less; or E. Hepatic encephalopathy; 10. Hepatic encephalopathy (5.05F). a. General. Hepatic encephalopathy usually indicates severe loss of hepatocellular function. We define hepatic encephalopathy under 5.05F as a recurrent or chronic neuropsychiatric disorder, characterized by abnormal behavior, cognitive dysfunction, altered state of consciousness, and ultimately coma and death. The diagnosis is established by changes in mental status associated with fleeting neurological signs, including “flapping tremor†(asterixis), characteristic electroencephalographic (EEG) abnormalities, or abnormal laboratory values that indicate loss of synthetic liver function. We will not purchase the EEG testing described in 5.05F3b; however, if you have had this test at a time relevant to your claim, we will make every reasonable effort to obtain the report for the purpose of establishing whether your impairment meets 5.05F. http://www.ssa.gov/disability/professionals/bluebook/5.00-Digestive-Adult.htm Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 3:22:20 PM Subject: disability Well, I just got disability denial number 2 in the mail. I don't have a clue what I " m doing wrong! Anyone have to go all the way to court with this? It's unbelievable to me. They say I can't do what I used to do, but I can do something else. I had an office pinky job! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 I had to take my appeal to the hearing process. My friend Ardis had obtained a lawyer, and she was at first denied, despite having a positive in every single catagory- multiple bleeding varicies, requiring transfusion, hepatic encephalopathy, chronic refractory ascites lasting several years, serum bilirubin high, serum albumen low... It is as is the SSDI is deaf,dumb and blind. No offense meant to any employees of the SSA who might be members here, I said " as if " . I mean, my own case was cut and dried, yet I had to go to the hearing. I found the card the lawyer gave Ardis, and called the same layer, whom had retired, so I agreed to see one of the other partners there. The lady I get was like a bull in a China shop. The judge had to calm her down, because in my hearing , she went in there and sounded like my hepatologist, just hit him with a diatribe of fun facts and figures about liver disease. She had done her homework, and I was very impressed. Her worst fear was that my encephalopathy would trip us up, and I would be my own worst enemy. I had already been treated for hepatic encephalopathy, and they even sent me to a cognitive examiner, who gave me a very poor rating for being able to learn,pay attention, and so on. You know what pushed my case over the edge for the judge?, The doctor whom the gubment hired said that my reporting of fatigue to the doctor when combined with my other things caused me to equal the blue book listings. I hope your lawyer gets on the ball and wins your case. I have heard of some lawyers not being very enthusiastic at first so that the time spent trying to win benefits will cause a back pay to build up, and they can get paid. A friend of mine was recently approved, but they changed his onset date so that there was no back pay, and thus the lawyer couldn't get a thin dime from him, and that's how it works. good luck, Roni. Again, Im really sorry. love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 3:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 I spent the majority of the afternoon in the Social Security office. I was told that I would have to quit working before I could file for disability. Was told I make too much money. And also I wouldn't get Medicare for 25 months. I am still working because of the insurance. I cannot quit and go two years without insurance. He finally told me I was definitely in a Catch-22. Does this sound right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 It does sound normal, but I dont think it is " right " . I do not understand the part about the " making too much money " part. SSDI is awarded for people who can demonstrate that they are unable to work in any meaningful capacity, and not able to change to a sedentary type of work. I lived on a long term disability insurance during my fight for benefits. The insurance had a clause that for alcohol related ilness, they would only cover for one year. The one year expired the very month that I was awarded SSDI. Then my wife had to carry me on her health insurance for the waiting period. Without those work related benefits, we would have certainly lost everyting. We worked for the city and county of Denver, and had pretty good fringe benefits. I feel that this system is broken, because too many healthy people are making claims and scamming the system, and really sick people cannot get the benefits they deserve. It is a catch 22. The very worst catch 22. I'm really sorry. Love, Bobby ________________________________ From: vickij777 <no_reply > To: livercirrhosissupport Sent: Fri, September 17, 2010 5:11:43 PM Subject: disability I spent the majority of the afternoon in the Social Security office. I was told that I would have to quit working before I could file for disability. Was told I make too much money. And also I wouldn't get Medicare for 25 months. I am still working because of the insurance. I cannot quit and go two years without insurance. He finally told me I was definitely in a Catch-22. Does this sound right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going through all this. How frustrating.                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 5:46:43 PM Subject: Disability  Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits on july 16th this year for cirhossis and hep c. On 8/30 we found out he was approved. He got a lawyer from the beginning. Usually they automatically deny people and then when they hire an attorney and there is a papertrail of labs, med visits, hospital stays it has a better chance to be approved. However, I know of a guy who had cancer and he was not approved. we had a state representative advocate for that person and he was approved more quickly. he did die soon thereafter. My husband is going to the gastroenterologist monday. He didnt make it to the doc today. Let me ask any of u a question if u dont mind. Do people who have cirhossis usually suffer from impotence? If so, is there a medicine for ed that wont hurt his liver. Thanks for all of your input it truly is so helpful. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 7:40:42 PM Subject: Re: Disability I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going through all this. How frustrating. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 5:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010  Well, Bonnie...Ed has impotence . I'm ot real sure if it's a result of his cirrhosis or his diabetes. He does take viagra and cialis....and has seen docs for this problem.. It is certainly frustrating for both of us, but we are finding that love can conquer anything!. Anyone else have anything to chip in here?                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 10:13:53 PM Subject: Re: Disability  Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits on july 16th this year for cirhossis and hep c. On 8/30 we found out he was approved. He got a lawyer from the beginning. Usually they automatically deny people and then when they hire an attorney and there is a papertrail of labs, med visits, hospital stays it has a better chance to be approved. However, I know of a guy who had cancer and he was not approved. we had a state representative advocate for that person and he was approved more quickly. he did die soon thereafter. My husband is going to the gastroenterologist monday. He didnt make it to the doc today. Let me ask any of u a question if u dont mind. Do people who have cirhossis usually suffer from impotence? If so, is there a medicine for ed that wont hurt his liver. Thanks for all of your input it truly is so helpful. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 7:40:42 PM Subject: Re: Disability I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going through all this. How frustrating. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 5:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Thanks so much Bobby! I think you just gave me some great ammonition. The only thing is it isn't documented at the doctor. I'll call them Monday and ask them if they can document that.....I didn't go because I just took my lactulose like I'm supposed to and I wasn't slurring anymore. The weird thing is.....I felt just fine and didn't have a clue. My last bleed I should have gone to ER but I didn't. I just starting feeling better and knew they would put me in the hospital and at the time was worried about my animals and I hate going to the hospital.......so no documentation there except from what i told the doctor. Plus I don't have any insurance at the moment. The bleeding stopped too. Just was really tired for about a week. My son is living with me now which helps immensely! That's weird what it says about low blood pressure. My gastro said most people with my condition have high blood pressure which he said is why he hadn't prescribed a beta blocker sooner. Your a great help Bobby and I appreciate you immensely and everyone here for all the help and support. This disease is so complicated and you really do have to be your own advocate. Much love, Roni > UGH! I am so so sorry. How utterly frustrating. Someone is dropping > the ball big > time. Your hepatic encephalopathy is a BLUE BOOK listing!! They > screwed this up > royal. You shoud have been automatically approved. Here is the link > to the blue > book lisings for liver related disease. You should have been > approved under > number 10 at the very least. > > 5.05 Chronic Liver Disease (2) > F. Confirmation of chronic liver disease by liver biopsy and > one of the following: > 1. Ascites for at least 3 months, demonstrated by > abdominal paracentesis or associated with persistent > albumin of 3.0 mg/dl or less; or > 2. Serum bilirubin of 2.5 mg/dl or greater for at least > 3 months; or > 3. Abnormal PT and LFTs for 3 months > • Chronic Liver Disease (e.g. portal, post-necrotic, or biliary > cirrhosis; > chronic active hepatitis; ’s disease). With: > A. Esophageal varices with a documented h/o massive hemorrhage > attributable to these varices. Consider under disability for 3 years > following the last massive hemorrhage… > > 5. Gastrointestinal hemorrhage (5.02 and 5.05A). Gastrointestinal > hemorrhaging > can result in hematemesis (vomiting of blood), melena (tarry > stools), or > hematochezia (bloody stools). Under 5.02, the required transfusions > of at least > 2 units of blood must be at least 30 days apart and occur at least > three times > during a consecutive 6-month period. Under 5.05A, hemodynamic > instability is > diagnosed with signs such as pallor (pale skin), diaphoresis (profuse > perspiration), rapid pulse, low blood pressure, postural hypotension > (pronounced > fall in blood pressure when arising to an upright position from > lying down) or > syncope (fainting). Hemorrhaging that results in hemodynamic > instability is > potentially life-threatening and therefore requires hospitalization > for > transfusion and supportive care. Under 5.05A, we require only one > hospitalization for transfusion of at least 2 units of blood. > 6. Ascites or hydrothorax (5.05B) indicates significant loss of > liver function > due to chronic liver disease. We evaluate ascites or hydrothorax > that is not > attributable to other causes under 5.05B. The required findings must > be present > on at least two evaluations at least 60 days apart within a > consecutive 6-month > period and despite continuing treatment as prescribed. > ; or > B. Performance of a shunt operation for esophageal varices. Consider > under disability for 3 years following surgery…; or > C. Serum bilirubin of 2.5 mg or greater for 5 months; or > D. Ascites for 5 months with albumin 3.0 or less; or > E. Hepatic encephalopathy; > > 10. Hepatic encephalopathy (5.05F). > a. General. Hepatic encephalopathy usually indicates severe loss of > hepatocellular function. We define hepatic encephalopathy under > 5.05F as a > recurrent or chronic neuropsychiatric disorder, characterized by > abnormal > behavior, cognitive dysfunction, altered state of consciousness, and > ultimately > coma and death. The diagnosis is established by changes in mental > status > associated with fleeting neurological signs, including “flapping > tremor” > (asterixis), characteristic electroencephalographic (EEG) > abnormalities, or > abnormal laboratory values that indicate loss of synthetic liver > function. We > will not purchase the EEG testing described in 5.05F3b; however, if > you have had > this test at a time relevant to your claim, we will make every > reasonable effort > to obtain the report for the purpose of establishing whether your > impairment > meets 5.05F. > > http://www.ssa.gov/disability/professionals/bluebook/5.00-Digestive-Adult.htm > > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 3:22:20 PM > Subject: disability > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 That is what I understand Vicki. I got laid off so I decided I might as well go for it. I'd probably still be working for the insurance if this hadn't of happened. I was working part time and had full benefits. I think they wanted to change insurance and I was a problem. I was getting all my work done in a professional manner....even working at home. Just had to call in sick alot. I doubt I could find another job like that one.....and wouldn't be able to hold it down anyway. I find it odd your sick enough to get disabiltiy but then have to wait 2 years to get medical help. Something is really wrong with that. Roni > I spent the majority of the afternoon in the Social Security office. > I was told that I would have to quit working before I could file for > disability. Was told I make too much money. And also I wouldn't get > Medicare for 25 months. > > I am still working because of the insurance. I cannot quit and go > two years without insurance. He finally told me I was definitely in > a Catch-22. > > Does this sound right? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Thanks Jill.......it's been one thing after another lately. I won't tell you about the IRS and having to fix the fly wheel on my lawnmower and now my drain from the AC is all clogged! Ha! It's all good. Everything will work at one way or the other. Much love, Roni > I am so sorry Roni, My lawyer did it all for me. I am really sorry > you're going > through all this. How frustrating. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:46:43 PM > Subject: Disability > > > Oh and get this..........the only time I ever talked to someone from > the disability department I was on my way to a friends house. She was > asking me about a recent bleed I had had. When I got to my friends > house..........she said, " Your talking like you just drank a six > pack " ! No telling what the lady from disabilty thought! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 bobby my drs, have never done a biopsy of my liver should i request. one. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 6:09:22 PM Subject: Re: Disability I had to take my appeal to the hearing process. My friend Ardis had obtained a lawyer, and she was at first denied, despite having a positive in every single catagory- multiple bleeding varicies, requiring transfusion, hepatic encephalopathy, chronic refractory ascites lasting several years, serum bilirubin high, serum albumen low... It is as is the SSDI is deaf,dumb and blind. No offense meant to any employees of the SSA who might be members here, I said " as if " . I mean, my own case was cut and dried, yet I had to go to the hearing. I found the card the lawyer gave Ardis, and called the same layer, whom had retired, so I agreed to see one of the other partners there. The lady I get was like a bull in a China shop. The judge had to calm her down, because in my hearing , she went in there and sounded like my hepatologist, just hit him with a diatribe of fun facts and figures about liver disease. She had done her homework, and I was very impressed. Her worst fear was that my encephalopathy would trip us up, and I would be my own worst enemy. I had already been treated for hepatic encephalopathy, and they even sent me to a cognitive examiner, who gave me a very poor rating for being able to learn,pay attention, and so on. You know what pushed my case over the edge for the judge?, The doctor whom the gubment hired said that my reporting of fatigue to the doctor when combined with my other things caused me to equal the blue book listings. I hope your lawyer gets on the ball and wins your case. I have heard of some lawyers not being very enthusiastic at first so that the time spent trying to win benefits will cause a back pay to build up, and they can get paid. A friend of mine was recently approved, but they changed his onset date so that there was no back pay, and thus the lawyer couldn't get a thin dime from him, and that's how it works. good luck, Roni. Again, Im really sorry. love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 3:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Roni I certainly don't know very much about qualifying for Disability in the US; but, I did qualify my first time, here in Canada. However, it is certainly not enough for a person to actually live on. So, here they allow us to earn up to $400 per month. Fortunately, I have usually always worked from home. I'm a bookkeeper for small businesses. As much as I sometimes didn't like all the stress from what I do and sometimes just didn't want to be confined, I am extremely lucky to have used my skills. It afforded me any amount of time off to deal with my son back when he was in school or for any other purpose. Now, that I went through two HepC treatments and then surgery for the liver cancer ALL of my clients patiently waited for me to get better. They were my biggest support team bar none. Since my husband decided that he didn't want to put up with me any longer and we separated after 21 yrs, I definitely need the extra money. Even more than that, I need to be needed again. My health has recovered so very much, that I feel better today than I did over 6 yrs ago when all of this started. The only thing that I have to watch carefully, is the Fibromalgia!! I definitely don't want pain meds until I just can't take it anymore. So recently, my GP put me on some muscle relaxers. Believe it or not, they work pretty damn good most days. The actual name of them is Flexiral or somethings like that. Gloria ________________________________ Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Unfortunately, in my case, it was definitely me that had no libido. I just figured it was a great part of the HepC treatments I was on. However, up until we recently separated, I had no idea that my husband might be holding a grudge about it. Honestly, I was happy that he didn't pursue that aspect of our marriage. Even now, I'm not so sure that it really had anything to do with our breakup. After all, he turned 68 this year and considering that he is a " cave " dweller when not working, I always figured he had no interest. Truly, I believe that he just used that fact to hurt me. He was always really good with a wicked tongue, when he was not feeling any self-worth. In fact, I suspect that he suffers from impotence; but, I certainly could not raise that question. He was on a tirade with me since last January and so, everything was my fault, period. Sadly, the stupid idiot doesn't realize how much better I feel physically, mentally and spiritually!! I am truly not interested right now in pursuing any sexual relationship with anyone; but, it's not because of my own libido. I'm just so happy to be on my own again that it will be a very very long time before I'll get into another relationship. Also, unfortunately, my husband's betrayal to everything I so believed he stood for, has had it's affect on my level of trust, as well. He's finally out of his cave again, this last month or so, just because he's been working and making some good money. However, since it was a truly self-centred thing to do, clawing at me because it was not a time to hide in that cave, I can never trust him again. He'll never admit that he did anything wrong, because his false pride just won't allow him to do that. By far, this was not the first time he's gone to hide in the proverbial cave; but, I wore those bear claws to the extreme this time, in trying to get him out, to be the strong one while I faced the cancer. It sure won't happen again!! Gloria ________________________________ Well, Bonnie...Ed has impotence . I'm ot real sure if it's a result of his cirrhosis or his diabetes. He does take viagra and cialis....and has seen docs for this problem.. It is certainly frustrating for both of us, but we are finding that love can conquer anything!. Anyone else have anything to chip in here? Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 10:13:53 PM Subject: Re: Disability Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits on july 16th this year for cirhossis and hep c. On 8/30 we found out he was approved. He got a lawyer from the beginning. Usually they automatically deny people and then when they hire an attorney and there is a papertrail of labs, med visits, hospital stays it has a better chance to be approved. However, I know of a guy who had cancer and he was not approved. we had a state representative advocate for that person and he was approved more quickly. he did die soon thereafter. My husband is going to the gastroenterologistmonday. He didnt make it to the doc today. Let me ask any of u a question if u dont mind. Do people who have cirhossis usually suffer from impotence? If so, is there a medicine for ed that wont hurt his liver. Thanks for all of your input it truly is so helpful. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 7:40:42 PM Subject: Re: Disability I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going through all this. How frustrating. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 5:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 That is something you should ask your hepatologist. After a person develops many complications of cirrhosis, they will say that it is a positive diagnosis even without the biopsy. If you get a transplant, you'll be getting them anyway. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 10:43:24 PM Subject: Re: Disability bobby my drs, have never done a biopsy of my liver should i request. one. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 6:09:22 PM Subject: Re: Disability I had to take my appeal to the hearing process. My friend Ardis had obtained a lawyer, and she was at first denied, despite having a positive in every single catagory- multiple bleeding varicies, requiring transfusion, hepatic encephalopathy, chronic refractory ascites lasting several years, serum bilirubin high, serum albumen low... It is as is the SSDI is deaf,dumb and blind. No offense meant to any employees of the SSA who might be members here, I said " as if " . I mean, my own case was cut and dried, yet I had to go to the hearing. I found the card the lawyer gave Ardis, and called the same layer, whom had retired, so I agreed to see one of the other partners there. The lady I get was like a bull in a China shop. The judge had to calm her down, because in my hearing , she went in there and sounded like my hepatologist, just hit him with a diatribe of fun facts and figures about liver disease. She had done her homework, and I was very impressed. Her worst fear was that my encephalopathy would trip us up, and I would be my own worst enemy. I had already been treated for hepatic encephalopathy, and they even sent me to a cognitive examiner, who gave me a very poor rating for being able to learn,pay attention, and so on. You know what pushed my case over the edge for the judge?, The doctor whom the gubment hired said that my reporting of fatigue to the doctor when combined with my other things caused me to equal the blue book listings. I hope your lawyer gets on the ball and wins your case. I have heard of some lawyers not being very enthusiastic at first so that the time spent trying to win benefits will cause a back pay to build up, and they can get paid. A friend of mine was recently approved, but they changed his onset date so that there was no back pay, and thus the lawyer couldn't get a thin dime from him, and that's how it works. good luck, Roni. Again, Im really sorry. love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 3:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 With Medicare ,there is a 2 year wait from the date of your disability to finally get your Medicare health benefits...meaning the date SS defines as the date they approve your disability. ..if it's back dated say...3 years like mine was, you would already have " waited " your 2 years. Otherwise SS dates your disability from the day they approve you. Then you have to wait 2 years....What the heck they think you're supposed to do in the meantime is beyond me! It's so frustrating. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 12:05:42 AM Subject: Re: disability That is what I understand Vicki. I got laid off so I decided I might as well go for it. I'd probably still be working for the insurance if this hadn't of happened. I was working part time and had full benefits. I think they wanted to change insurance and I was a problem. I was getting all my work done in a professional manner....even working at home. Just had to call in sick alot. I doubt I could find another job like that one.....and wouldn't be able to hold it down anyway. I find it odd your sick enough to get disabiltiy but then have to wait 2 years to get medical help. Something is really wrong with that. Roni > I spent the majority of the afternoon in the Social Security office. > I was told that I would have to quit working before I could file for > disability. Was told I make too much money. And also I wouldn't get > Medicare for 25 months. > > I am still working because of the insurance. I cannot quit and go > two years without insurance. He finally told me I was definitely in > a Catch-22. > > Does this sound right? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case ,with Ed being the main breadwinner...it's the medicare benefits that are such a Godsend.                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 12:43:49 AM Subject: Re: disability  Roni I certainly don't know very much about qualifying for Disability in the US; but, I did qualify my first time, here in Canada. However, it is certainly not enough for a person to actually live on. So, here they allow us to earn up to $400 per month. Fortunately, I have usually always worked from home. I'm a bookkeeper for small businesses. As much as I sometimes didn't like all the stress from what I do and sometimes just didn't want to be confined, I am extremely lucky to have used my skills. It afforded me any amount of time off to deal with my son back when he was in school or for any other purpose. Now, that I went through two HepC treatments and then surgery for the liver cancer ALL of my clients patiently waited for me to get better. They were my biggest support team bar none. Since my husband decided that he didn't want to put up with me any longer and we separated after 21 yrs, I definitely need the extra money. Even more than that, I need to be needed again. My health has recovered so very much, that I feel better today than I did over 6 yrs ago when all of this started. The only thing that I have to watch carefully, is the Fibromalgia!! I definitely don't want pain meds until I just can't take it anymore. So recently, my GP put me on some muscle relaxers. Believe it or not, they work pretty damn good most days. The actual name of them is Flexiral or somethings like that. Gloria ________________________________ Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 This was Ed's situation....He's never had a biopsy,but his hepotologist told us he would not have the complications he has without Cirrhosis. ( portal hypertension,esoghageal and anal varices,enlarged liver and spleen,lesions on liver,low blood counts...etc. He felt it unnessary to do another invasive procedure to find the same end result.  Ultrasounds have also shown liver damage                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 1:14:04 AM Subject: Re: Disability  That is something you should ask your hepatologist. After a person develops many complications of cirrhosis, they will say that it is a positive diagnosis even without the biopsy. If you get a transplant, you'll be getting them anyway. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 10:43:24 PM Subject: Re: Disability bobby my drs, have never done a biopsy of my liver should i request. one. ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 6:09:22 PM Subject: Re: Disability I had to take my appeal to the hearing process. My friend Ardis had obtained a lawyer, and she was at first denied, despite having a positive in every single catagory- multiple bleeding varicies, requiring transfusion, hepatic encephalopathy, chronic refractory ascites lasting several years, serum bilirubin high, serum albumen low... It is as is the SSDI is deaf,dumb and blind. No offense meant to any employees of the SSA who might be members here, I said " as if " . I mean, my own case was cut and dried, yet I had to go to the hearing. I found the card the lawyer gave Ardis, and called the same layer, whom had retired, so I agreed to see one of the other partners there. The lady I get was like a bull in a China shop. The judge had to calm her down, because in my hearing , she went in there and sounded like my hepatologist, just hit him with a diatribe of fun facts and figures about liver disease. She had done her homework, and I was very impressed. Her worst fear was that my encephalopathy would trip us up, and I would be my own worst enemy. I had already been treated for hepatic encephalopathy, and they even sent me to a cognitive examiner, who gave me a very poor rating for being able to learn,pay attention, and so on. You know what pushed my case over the edge for the judge?, The doctor whom the gubment hired said that my reporting of fatigue to the doctor when combined with my other things caused me to equal the blue book listings. I hope your lawyer gets on the ball and wins your case. I have heard of some lawyers not being very enthusiastic at first so that the time spent trying to win benefits will cause a back pay to build up, and they can get paid. A friend of mine was recently approved, but they changed his onset date so that there was no back pay, and thus the lawyer couldn't get a thin dime from him, and that's how it works. good luck, Roni. Again, Im really sorry. love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, September 17, 2010 3:46:43 PM Subject: Disability Oh and get this..........the only time I ever talked to someone from the disability department I was on my way to a friends house. She was asking me about a recent bleed I had had. When I got to my friends house..........she said, " Your talking like you just drank a six pack " ! No telling what the lady from disabilty thought! Much love, Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 In alot of ways my health has recovered. I think Disability is having trouble with my meld score because I have stabilized and they have stayed relatively low. That's all I can figure out anyway. I still suffer the effects of the disease despite what my meld says. Roni > Roni > > I certainly don't know very much about qualifying for Disability in > the US; but, > I did qualify my first time, here in Canada. > > However, it is certainly not enough for a person to actually live > on. So, here > they allow us to earn up to $400 per month. Fortunately, I have > usually always > worked from home. I'm a bookkeeper for small businesses. As much as I > sometimes didn't like all the stress from what I do and sometimes > just didn't > want to be confined, I am extremely lucky to have used my skills. It > afforded > me any amount of time off to deal with my son back when he was in > school or for > any other purpose. Now, that I went through two HepC treatments and > then > surgery for the liver cancer ALL of my clients patiently waited for > me to get > better. They were my biggest support team bar none. > > Since my husband decided that he didn't want to put up with me any > longer and we > separated after 21 yrs, I definitely need the extra money. Even more > than that, > I need to be needed again. My health has recovered so very much, > that I feel > better today than I did over 6 yrs ago when all of this started. The > only thing > that I have to watch carefully, is the Fibromalgia!! I definitely > don't want > pain meds until I just can't take it anymore. So recently, my GP put > me on some > muscle relaxers. Believe it or not, they work pretty damn good most > days. The > actual name of them is Flexiral or somethings like that. > > Gloria > > ________________________________ > > Hi Jill, > > I have a lawyer but they really haven't helped much at all. They just > forward the paperwork and I fill it out and they mail it in. No > suggestions, comments, nothing. Maybe they are just waiting for the > trial to step up to the plate. He did say he won 98% of his cases. > Can you think of a less physically active career than being an office > pinky? I have a degree in Graphic Art........it would be pretty > stupid of me to get a job doing something other than that. I plan on > working some for myself to help with bills but I'll have to be able to > set my own hours and probably won't be able to do a whole lot. I > guess you're only allowed to make a certain amount on disability. I > could only work on the days I felt pretty good and never be able to > hold down a full time job of any kind. They frown upon calling in > sick alot and slurring your words because you weren't taking your > lactulose 4x a day. My family thought I had started drinking again. > Ha! I didn't have a clue I was slurring my words. > > Love, > Roni > > > > > I tried to get SSDI on my own and was denoied twice, Then I got a > > disability > > lawyer and he got nme approved without me ever having to go to a > > hearing. It > > took about 3 months...and of course he gpt 25% of my back pay...but > > that was > > worth it to me. I figured that it was money I didn't have before. > > That's my > > story. > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that > > take our > > breath away. > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, September 17, 2010 5:22:20 PM > > Subject: disability > > > > > > Well, > > > > I just got disability denial number 2 in the mail. I don't have a > > clue what I " m doing wrong! Anyone have to go all the way to court > > with this? It's unbelievable to me. They say I can't do what I used > > to do, but I can do something else. I had an office pinky job! > > > > Much love, > > Roni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Beverly, how come u get so much, we were told that the most you could get is 674 a month. Is that because he is only 54? Do you get more at 62/65? ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 1:50:09 PM Subject: Re: disability gloria i didn't have any proplems here in houston i didn't even have to go in the ss office they did everything by phone but i can't get medical help until march 2011i have to wait 2 yrs after receing benfits.it sure helps i get 1,338. a month. i am very thankful for the help.all i had to do is get the doctor to ok everything.good luck bev,tx ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 8:02:07 AM Subject: Re: disability Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case ,with Ed being the main breadwinner...it's the medicare benefits that are such a Godsend. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 12:43:49 AM Subject: Re: disability Roni I certainly don't know very much about qualifying for Disability in the US; but, I did qualify my first time, here in Canada. However, it is certainly not enough for a person to actually live on. So, here they allow us to earn up to $400 per month. Fortunately, I have usually always worked from home. I'm a bookkeeper for small businesses. As much as I sometimes didn't like all the stress from what I do and sometimes just didn't want to be confined, I am extremely lucky to have used my skills. It afforded me any amount of time off to deal with my son back when he was in school or for any other purpose. Now, that I went through two HepC treatments and then surgery for the liver cancer ALL of my clients patiently waited for me to get better. They were my biggest support team bar none. Since my husband decided that he didn't want to put up with me any longer and we separated after 21 yrs, I definitely need the extra money. Even more than that, I need to be needed again. My health has recovered so very much, that I feel better today than I did over 6 yrs ago when all of this started. The only thing that I have to watch carefully, is the Fibromalgia!! I definitely don't want pain meds until I just can't take it anymore. So recently, my GP put me on some muscle relaxers. Believe it or not, they work pretty damn good most days. The actual name of them is Flexiral or somethings like that. Gloria ________________________________ Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 i don't know other then i have worked since i was 13 yrs old and it goes according to what you paid in and how many points you have.it can't be age because i was 49 when i applied.now this social security disabilty hope this answers your question. lol bev ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 10:07:21 PM Subject: Re: disability Beverly, how come u get so much, we were told that the most you could get is 674 a month. Is that because he is only 54? Do you get more at 62/65? ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 1:50:09 PM Subject: Re: disability gloria i didn't have any proplems here in houston i didn't even have to go in the ss office they did everything by phone but i can't get medical help until march 2011i have to wait 2 yrs after receing benfits.it sure helps i get 1,338. a month. i am very thankful for the help.all i had to do is get the doctor to ok everything.good luck bev,tx ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 8:02:07 AM Subject: Re: disability Yea,Gloria...I live in the Us and I get $400.00 a month..LOL!! In our case ,with Ed being the main breadwinner...it's the medicare benefits that are such a Godsend. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 12:43:49 AM Subject: Re: disability Roni I certainly don't know very much about qualifying for Disability in the US; but, I did qualify my first time, here in Canada. However, it is certainly not enough for a person to actually live on. So, here they allow us to earn up to $400 per month. Fortunately, I have usually always worked from home. I'm a bookkeeper for small businesses. As much as I sometimes didn't like all the stress from what I do and sometimes just didn't want to be confined, I am extremely lucky to have used my skills. It afforded me any amount of time off to deal with my son back when he was in school or for any other purpose. Now, that I went through two HepC treatments and then surgery for the liver cancer ALL of my clients patiently waited for me to get better. They were my biggest support team bar none. Since my husband decided that he didn't want to put up with me any longer and we separated after 21 yrs, I definitely need the extra money. Even more than that, I need to be needed again. My health has recovered so very much, that I feel better today than I did over 6 yrs ago when all of this started. The only thing that I have to watch carefully, is the Fibromalgia!! I definitely don't want pain meds until I just can't take it anymore. So recently, my GP put me on some muscle relaxers. Believe it or not, they work pretty damn good most days. The actual name of them is Flexiral or somethings like that. Gloria ________________________________ Hi Jill, I have a lawyer but they really haven't helped much at all. They just forward the paperwork and I fill it out and they mail it in. No suggestions, comments, nothing. Maybe they are just waiting for the trial to step up to the plate. He did say he won 98% of his cases. Can you think of a less physically active career than being an office pinky? I have a degree in Graphic Art........it would be pretty stupid of me to get a job doing something other than that. I plan on working some for myself to help with bills but I'll have to be able to set my own hours and probably won't be able to do a whole lot. I guess you're only allowed to make a certain amount on disability. I could only work on the days I felt pretty good and never be able to hold down a full time job of any kind. They frown upon calling in sick alot and slurring your words because you weren't taking your lactulose 4x a day. My family thought I had started drinking again. Ha! I didn't have a clue I was slurring my words. Love, Roni > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 we have been dealing with this issue for a couple years around our house to. just last week or was it the week before ...anyways ...dr. perscibed LEVETRA for my husband..said it wouldnt harm him and give it a try...well upon going to pharmacy and one pill costing 23.00 we decided it wasnt that big a deal. if hes good with two or three times a year so am i. i like snuggling better anyways i had a really good joke to throw in here but decided against it teehee...it involved batteriesssssssss > >  Well, Bonnie...Ed has impotence . I'm ot real sure if it's a result of his > cirrhosis or his diabetes. He does take viagra and cialis....and has seen docs > for this problem.. It is certainly frustrating for both of us, but we are > finding that love can conquer anything!. Anyone else have anything to chip in > here? >                                        >                                    Love,Jill >  > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 10:13:53 PM > Subject: Re: Disability > >  > Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the > cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits > on july 16th this year for cirhossis and hep c. On 8/30 we found out he was > approved. He got a lawyer from the beginning. Usually they automatically deny > people and then when they hire an attorney and there is a papertrail of labs, > med visits, hospital stays it has a better chance to be approved. However, I > know of a guy who had cancer and he was not approved. we had a state > representative advocate for that person and he was approved more quickly. he did > > die soon thereafter. My husband is going to the gastroenterologist monday. He > didnt make it to the doc today. Let me ask any of u a question if u dont mind. > Do people who have cirhossis usually suffer from impotence? If so, is there a > medicine for ed that wont hurt his liver. Thanks for all of your input it truly > is so helpful. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 7:40:42 PM > Subject: Re: Disability > > I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going > through all this. How frustrating. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:46:43 PM > Subject: Disability > > Oh and get this..........the only time I ever talked to someone from > the disability department I was on my way to a friends house. She was > asking me about a recent bleed I had had. When I got to my friends > house..........she said, " Your talking like you just drank a six > pack " ! No telling what the lady from disabilty thought! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 I receive more than Bev. I thought that it had something to do with what you made in the past. Thank you God for this day and for my tomorrows .  Love, Lyncia   > I tried to get SSDI on my own and was denoied twice, Then I got a > disability > lawyer and he got nme approved without me ever having to go to a > hearing. It > took about 3 months...and of course he gpt 25% of my back pay...but > that was > worth it to me. I figured that it was money I didn't have before. > That's my > story. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that > take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:22:20 PM > Subject: disability > > > Well, > > I just got disability denial number 2 in the mail. I don't have a > clue what I " m doing wrong! Anyone have to go all the way to court > with this? It's unbelievable to me. They say I can't do what I used > to do, but I can do something else. I had an office pinky job! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Dear Barby, the answer is in the nitric oxide. If you can find a way to get the nitric oxide level elevated, it will cause a change , um if you know what I mean. Enzyte and extenze are rip offs, so dont believe Jimmy for a minute. Plus, at our oxygen supply where I get canulas, they had a good instructional pamphlet about how people with severe COPD could still have " relations " using certain positions that do not really need um... you know. Besides, when I weighed 350-360, this was a problem for me and Sharon too. Those positions really work. It's kind of like spooning. Liver disease sucks, but we cant just lie on the floor and die. http://www.nationaljewish.org/healthinfo/conditions/copd/emotional-management/in\ timacy/positions-intercourse.aspx Here is a similar bit of info that might help. And if we had not access to a old reliable " appliance " , we would have been divorced a long time ago. (This one has a cord, no batteries, who could afford that?) There are only three ways I know of to relieve flight or flight stress... A good cry, a big fight, usually followed by a crying, or the " big " O " . Life is full of choices. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, September 19, 2010 8:06:45 AM Subject: Re: Disability we have been dealing with this issue for a couple years around our house to. just last week or was it the week before ...anyways ...dr. perscibed LEVETRA for my husband..said it wouldnt harm him and give it a try...well upon going to pharmacy and one pill costing 23.00 we decided it wasnt that big a deal. if hes good with two or three times a year so am i. i like snuggling better anyways i had a really good joke to throw in here but decided against it teehee...it involved batteriesssssssss > >  Well, Bonnie...Ed has impotence . I'm ot real sure if it's a result of his > cirrhosis or his diabetes. He does take viagra and cialis....and has seen docs > for this problem.. It is certainly frustrating for both of us, but we are > finding that love can conquer anything!. Anyone else have anything to chip in > here? >                                        >                                    >Love,Jill >  > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 10:13:53 PM > Subject: Re: Disability > >  > Hi everyone, Jill, I also have fibromyalgia, i hurt so much but cant afford the > > cymbalta and it really helped me. Anyway, My husband applied for ssdi benefits > on july 16th this year for cirhossis and hep c. On 8/30 we found out he was > approved. He got a lawyer from the beginning. Usually they automatically deny > people and then when they hire an attorney and there is a papertrail of labs, > med visits, hospital stays it has a better chance to be approved. However, I > know of a guy who had cancer and he was not approved. we had a state > representative advocate for that person and he was approved more quickly. he >did > > > die soon thereafter. My husband is going to the gastroenterologist monday. He > didnt make it to the doc today. Let me ask any of u a question if u dont mind. > Do people who have cirhossis usually suffer from impotence? If so, is there a > medicine for ed that wont hurt his liver. Thanks for all of your input it truly > > is so helpful. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 7:40:42 PM > Subject: Re: Disability > > I am so sorry Roni, My lawyer did it all for me. I am really sorry you're going > > through all this. How frustrating. > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, September 17, 2010 5:46:43 PM > Subject: Disability > > Oh and get this..........the only time I ever talked to someone from > the disability department I was on my way to a friends house. She was > asking me about a recent bleed I had had. When I got to my friends > house..........she said, " Your talking like you just drank a six > pack " ! No telling what the lady from disabilty thought! > > Much love, > Roni > > Quote Link to comment Share on other sites More sharing options...
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