Guest guest Report post Posted February 5, 2004 Kim, My daughter with Lyme had terrible trouble with her eyes. When she was still in school she couldn't focus when looking repeatedly from the board or overheads to her paper, and always had blurriness. She was seen at various times by several optometrists, an ophthalmologist and an eye therapist who all said her vision was fine. Finally another optometrist prescribed glasses with a small amount of magnification and that helped to some degree. Her prescription has since been increased and though not perfect, her vision is much improved. Carol Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2004 Kim- Lyme does effect the eyes and I've been told that the spirochete can be in the eye fluid (?...I cant remember who told me this...) But anyway, my eyes bother the heck out of me...blurriness and depth perception problems. They are dry from the antibiotics and the prescription keeps changing. I wear glasses to drive but cant really wear them to walk around because they make me dizzy. I go to the eye dr a lot and have had even very bad infectious type of stuff happen that is a chronic sort of conjunctivitis...and the Dr also checked quite a bit while I was on Plaquinil to make sure that it wasn't hurting my vision. I've heard of a lot of eye stuff with Lyme and experienced it too...The eye Dr is not a Lyme specialist but thinks that the problems are mainly caused by the antibiotics. I don't know if that's true because I had problems before I was diagnosed and was on antibiotics. They certainly got worse on the antibiotics. For the blurriness my Dr says to try some eye lubricant...and keeps changing my Rx for glasses. Good luck- Melina Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2004 > HI, > > Has anyone had any problems with their eyes. I have had trouble with my vision for over a year. My LLMD says it is definately the lyme messing with it. My eye doctor says there is nothing else they can do. They looked to see if my optical nerve was irritated, but other than that they say my prescription is at 20/20 but I still can't see very good, expecially at night or in the rain. Everything seems blurry. So far I have not found any help for it. I just try to work around it when possible. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2004 I too have eye troubles. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2004 The pituitary gland is located behind the eyes... If lyme heads there to disable your body's " thermostat " it could very well cause swelling of that gland and push the eyes forward, which would cause visual disturbances. This is just my thoughts... I have graves disease, swollen optic nerves and pseudo tumor, and this why I just saw a pituitary specialist. I had about 10 tubes of blood drawn yesterday... We'll see! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2004 My understanding of the Eye challenges is something called Visual Contrast S... something that I can't remember. I think it might be Stimuli Deficit, but my brain is on 'off' today so I don't remember for sure. Anyway, it has to do with a neurotoxin infection or " borrelia in the brain " . I think the doctor that is most involved in the study of this is R. Shoemaker (again, I could be wrong here) but if you google VCS deficit you'll find the links. You can test for this online. I hope this helps. Also, I have a question... Has anyone tried a new ABx called Omnicef? My doc says it's a good one for the brain. We're in the process of seeing if medi-cal will pay for it. But I'm curious as to whether any of you have tried it. Peace, Morningsong Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 24, 2004 Sheila, If my eyes water at all, or if I cry (which isn't often), my tears burn my eyes. Does anyone know why? Sheila wrote: I had been experiencing very dry eyes, _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 24, 2004 alergies? maybe your tearing up cuz your alergic to something Re: eyes > Sheila, > If my eyes water at all, or if I cry (which isn't often), my tears burn my > eyes. Does anyone know why? > > Sheila wrote: > I had been experiencing very dry eyes, > > _________________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar - get it now! > http://toolbar.msn.com/go/onm00200415ave/direct/01/ > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 24, 2004 weird...mine do the same. i just thought it was normal that it stings. i'm not sure it stings when my eyes water now that I think about it. but it does when I cry. hmm...good question. wish I could be of help. sheila K a r e n P <karlynn17@...> wrote:Sheila, If my eyes water at all, or if I cry (which isn't often), my tears burn my eyes. Does anyone know why? Sheila wrote: I had been experiencing very dry eyes, _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 30, 2004 Sounds normal to me. Perhaps from a poem? I guess there are degree's to translucent. Opaque would be baad! > eyes > > What does it mean when someone has transluscent eyes? The one guy is in > his > 30's. Someone I knew from several years ago. > > Betty > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 30, 2004 What is so weird is this guy never looked like that before. I always wonder about people with health issues that I know. Sometimes I wish that I could help them. Betty tss2001@... eyes > > What does it mean when someone has transluscent eyes? The one guy is in > his > 30's. Someone I knew from several years ago. > > Betty > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 31, 2004 That's nice of you, I do the same. I do so much research that makes me think of family and friends; I am constantly emailing them information. Is there some other way you can describe your friend's eyes besides translucent? > Re: eyes > > What is so weird is this guy never looked like that before. I always > wonder about people with health issues that I know. Sometimes I wish > that I could help them. > > Betty > tss2001@... > eyes > > > > What does it mean when someone has transluscent eyes? The one guy is > in > > his > > 30's. Someone I knew from several years ago. > > > > Betty > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 15, 2005 eyes.......changing??? Yes, often.........but I found I had chronic uveitis, so my sight would change with the different flares. Connieknwnj Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 15, 2005 I'm glad this question came up. My vision has gotten very blurry recently and it's obvious I need an upgrade on my eyeglasses. But, I've been holding off because I wonder whether my vision will change as I continue on the antibiotics. I've been on the antibiotics for 2 months. > > Has anyone ever had a problem with their eyes changing. I have > gotten so many glasses & scripts for my kid & they still change & > sometimes doesn't even need them & then does. It's really upsetting. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 15, 2005 My eyesight has been varying daily for 3 years. I was told it was because I had fibro and the muscles did not function around the eyes normally. Well after I tested positive for Lyme and started on abx my eyesight worsened , two days they blurred over and I had 20/800 vision. I had all the eye tests and all was normal. The ophthalmologist said it was the Lyme in my brain causing problems. Actually he was wrong. I wore contacts and my eyes were not getting a balance of water and oxygen ,so that causes uveitis. I am not able to wear contacts any longer. My eyes were still changing with glasses. I read up on my abx which was doxy and it can cause vision problems. Lyme can cause blurry vision according to the symptom list. I'm not on doxy any more and I am still having change in vision. I really think it goes back to the muscles that control the eyes . If they are not doing their job right the vision changes. My optometrist was much more knowledgeable about Lyme, Fibro,Uveitus than the eye doctor was. He was the one who knew the contacts were what was making my eyes go completely blurry. How much us this is the truth who knows. Every doctor has an opinion _____ From: gramjoy2000 [mailto:joyceb33948@...] Sent: Tuesday, March 15, 2005 6:32 PM Subject: [ ] Eyes Has anyone ever had a problem with their eyes changing. I have gotten so many glasses & scripts for my kid & they still change & sometimes doesn't even need them & then does. It's really upsetting. Questions and/or comments can be directed to the list owner at -Owner Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2005 When I first got lyme, I had just gotten new glasses. My vision was bad and I put off calling for a new set of lenses. The vision would clear up.....start back bad....finally after 6 months it was gone. Now only once in a while it gets bad for a short few days or so. You need a lyme literate physician eye doc. We have one in MI. I don't know of any others.Do your kids have lyme...if so , no amount of changing glasses will help. hugs. Connie, MI [ ] Re: Eyes > > > I'm glad this question came up. My vision has gotten very blurry > recently and it's obvious I need an upgrade on my eyeglasses. But, > I've been holding off because I wonder whether my vision will change > as I continue on the antibiotics. I've been on the antibiotics for 2 > months. > > > > >> >> Has anyone ever had a problem with their eyes changing. I have >> gotten so many glasses & scripts for my kid & they still change & >> sometimes doesn't even need them & then does. It's really upsetting. > > > > > > > Questions and/or comments can be directed to the list owner at > -Owner > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2005 HELLO add me to the list of those who are suffering blurry vision and eye problems, NEVER had an eye problem until the lyme started attacking me, along with numbness and restless legs, my eyes were the first of the symptoms of the lyme overpowering me..... it just got worse from there. YES I am just over the 40 mark, i went to eye doc to see if i needed glasses they said no, and the way it happened over night, and the way some days are so much worse than others just convinces me it is all lyme related. good luck, c in vt Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2005 In addition to the loss of vision...I can no longer see " White " everything is like having some dull grayish sunglasses on. Really make me crazy when there is snow on the ground and I KNOW it should be bright white...My color vision is testing ok- I can tell the differences between colors...there is just nothing bright and vibrant...it is very saddening. I also cannot read unless there is extremely bright light available. gave up reading newspapers some time ago... I dont understand why it continues to deteriorate despite nearly a year of abx? I have seen a neurological opthamologist- tests reveal the cornea and optic nerves are functioning... VERY frustrating. MRI was also normal. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2005 Lyme borrelia bacteria hate 2 things... oxygen and heat. They love the area in the back of the eye where it is nearly anaerobic and that is why lymies have blurry vision. You can even experience a 'blinding' spot when you look at something (in the middle of vision). Blurriness can also be related to yeast, especially when it is in one eye. Before changing eyeglass prescriptions (and my husband and I did several times before knowing all this), I would work on cleaning-up the internal environment. I have experienced temporary blindness with this disease and I also had where I could no longer read because the letters would jump off the page. sue massie, CNHP 732 933-4011 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2005 <<<<<Diet plays a huge role in all of this>>>> So does age Connieknwnj Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2005 Although I don't know if the tests are the same genere. I would recomend a SPECT scan through Brain Matters. 2 locations that I'm aware of. My mate had one done there because the UNUM doctor tried to say he had adult ADD not Lymes. ADD is Brain Matters speciality (among others). We did prove encepholophy (sp) The Dr. even said that the UMUM Dr. was completly lost. Ever since I sent UNUM the results they haven't said Boo. (But I know they will probably try to cut him off anyway) The Brain Matters camera it 10 times plus stronger then the one used by Dr. Fallon (Columbia U Lymes researcher) They even recomended my mate seek out Dr. Fallon and DEFINATLY have antibiotic treatment, even long term. The Head Dr. there is completly top nuculer(sp) specialist. Best and most accepting Dr. I've met in my life. Sent him all Dr. Fallons research, which he reviewed before the scan. Then he compared my mates brain pictures to Dr. Fallons Lyme brain pictures and BINGO, hard to miss. If you (or anyone) would like further info on Brain Matters please go to www.brainmattersinc.com. It's like $2600 but they have lots of ways to pay, I had to come up with 600 down and 200 a month but insurance reimbursed 70%. > sorry... > that is too funny... > being an animal person (and dealing with a lot of wildlife and zoonotic > issues...) my mind just automatically goes there.. > > No I have not had a PET scan... > Should I request one? Which dr would advise on that? My LLMD or the > neuro/eye dr? > What is it testing for? > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2005 Early on we had a tick like this with a "KKKzzzzz" sound during the squint. It could have been a script too but it left after diet and chelation. If you think you have a scratch tho' see your doctor. Remember to ask for Thimerosal free eye drops <tylerhaley01@...> wrote: Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2005 Early on we had a tick like this with a "KKKzzzzz" sound during the squint. It could have been a script too but it left after diet and chelation. If you think you have a scratch tho' see your doctor. Remember to ask for Thimerosal free eye drops <tylerhaley01@...> wrote: Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2005 Early on we had a tick like this with a "KKKzzzzz" sound during the squint. It could have been a script too but it left after diet and chelation. If you think you have a scratch tho' see your doctor. Remember to ask for Thimerosal free eye drops <tylerhaley01@...> wrote: Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2005 Hi , I have been doing ABA for two years with kids on the spectrum. I have noticed that a few of my kids squint their eyes when they look at some things. This seems to be a kind of self stimulatory behavior. This may not be the case with your child, but I just thought I would let you know that it is a possibility. > Tyler had an appointment today with the eye doctor. I have noticed that when > he points at something or looks at something in the distance that he will > squint his right eye. I was afraid that he may have scratched it since it > was red about a month ago. (allergies?) She said that is wasn't scratched > and that he didn't need glasses. She did notice that his eye was trying to > turn in a little and wanted me to watch it. She said that we need to return > in a couple of months if it doesn't improve or if we notice his eye turning > in. That is kind of hard to do since there is little eye contact. She said > if it didn't improve then we may have to try a patch or some special glasses > to try to strengthen the eye. She said in rare cases they will have to do > surgery on it. > I was just wondering if anyone has had a problem like this with their child. > I am just wondering if his squinting is just made a " tic " or some kind of > sensory issue. She said that sometimes if there is a crossed eye then they > will see double in that eye and that may be why he squints. I just don't > want to be taken for my money if there is nothing to be concerned with. > Thanks in advance! > > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.322 / Virus Database: 266.11.16 - Release Date: 5/24/2005 Quote Share this post Link to post Share on other sites
