Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Yes, definitely I think it helps. If those things are on my face at night, that seems to always wake me up so I keep my hair in a cap, face covered with MSM cream, ears plugged, nostrils with Vicks Vapo Rub and the eyes covered with the mask. (from Bed, Bath & Beyond stores) I look reaaaallly scary at night! LOL! LD > > > From: fritolay66 <fritolay66 (DOT) com> > > Subject: Eyes > > bird mites > > Date: Tuesday, June 24, 2008, 11:10 PM > > How many of us are having trouble with their eyes? Do you > > ever get something in them? Floaters? Conjunctivitis? > > (goo in the corners of the eyes?) Is the " goo " > > just goo or does it have form? Teeny tiny pearl with > > goo? Wormy goo? A little black thing in the goo? > > Itchy? Teeny tiny wrinkles? Deep crease wrinkles? > > White flecks on the eyelashes? Feeling crawling on the > > eyelashes or skin surrounding the eye? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Thank you for the giggle. I am able to visualize so well. This is so unattractive on any level really. Oh well, if the voodoo look is in, what the heck?........more giggling. Eyes> > bird mites> > Date: Tuesday, June 24, 2008, 11:10 PM> > How many of us are having trouble with their eyes? Do you> > ever get something in them? Floaters? Conjunctivitis? > > (goo in the corners of the eyes?) Is the "goo"> > just goo or does it have form? Teeny tiny pearl with> > goo? Wormy goo? A little black thing in the goo? > > Itchy? Teeny tiny wrinkles? Deep crease wrinkles? > > White flecks on the eyelashes? Feeling crawling on the> > eyelashes or skin surrounding the eye?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 > > Hi Bee, > > I have the metallic taste in my mouth...so use T tree tooth paste, and soda ==>Hi Lola. That is very common for people who have candida and/or have heavy metals in their bodies and they don't have " good " fats in their diet (which cleans them out). > > My latest symptom other than joint pain is blurred eye site and one eye waters in am...any ideas? ==>Candida causes eye floaters and even tiny lights that flash off to the side of the eyes. They disappear sometime during your candida program. Watery eyes are a way for the body to get rid of toxins. Did you ever use eye drop medications or have those drops in your eyes to open up the pupils before an eye exam? Also most babies have silver nitrate put in their eyes at birth. the body needs to get rid of all that stuff as well. It will improve as you progress, and it's nothing to be concerned about. The best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Hi Cotton, I'm so pleased to hear your eye surgery went well yesterday and has restored your vision, hopefully you'll have as much success with your other eye surgery scheduled next month..Heal well. Lolly > > I want to thank all the people that gave me good advice and good wishes > on my eye surgery. It was a piece of cake and it's awesome how much better > I can see with just the one eye done. Now back to the LDN again. > Will get the other one done in about 1 month. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Thanks Loly. Crystal a near MIRACLE happened yesterday, I SEE good outta one eye now. [low dose naltrexone] Re: eyes Hi Cotton,I'm so pleased to hear your eye surgery went well yesterday and hasrestored your vision, hopefully you'll have as much success with yourother eye surgery scheduled next month..Heal well.Lolly>> I want to thank all the people that gave me good advice and goodwishes > on my eye surgery. It was a piece of cake and it's awesome how muchbetter > I can see with just the one eye done. Now back to the LDN again.> Will get the other one done in about 1 month.> No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.8.3/1744 - Release Date: 10/24/2008 6:08 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Hi Cotton, That is so awesome and I hope your other eye surgery goes just as awesome. ) May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/ Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/ From: cotton <cotteni@...>low dose naltrexone Sent: Saturday, October 25, 2008 10:31:38 AMSubject: Re: [low dose naltrexone] Re: eyes Thanks Loly. Crystal a near MIRACLE happened yesterday, I SEE good outta one eye now. [low dose naltrexone] Re: eyes Hi Cotton,I'm so pleased to hear your eye surgery went well yesterday and hasrestored your vision, hopefully you'll have as much success with yourother eye surgery scheduled next month..Heal well.Lolly>> I want to thank all the people that gave me good advice and goodwishes > on my eye surgery. It was a piece of cake and it's awesome how muchbetter > I can see with just the one eye done. Now back to the LDN again.> Will get the other one done in about 1 month.> No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.175 / Virus Database: 270.8.3/1744 - Release Date: 10/24/2008 6:08 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 The cost of an eye test If you answer 'yes' to any of these questions you are entitled to NHS free eye tests. Are you aged 60 or over? Are you under 16, or under 19 and in full time education? Do you live in Scotland? Do you or your partner receive income support, family credit, income based job seekers allowance, pension credit guarantee, and are entitled to or named on a valid NHS tax credit exemption certificate, or are named on valid HC2 certificate? Do you have diabetes or glaucoma? Are you 40 or over and have a close relative with glaucoma? Does a hospital ophthalmologist say you are at risk of glaucoma? Are you registered blind or partially sighted? Are you entitled to vouchers for complex lenses? NHS rules may change from time to time. If you think you qualify for free eye tests, speak to your optometrist before you have the eye test and they will ask you to sign a NHS Sight Test Form. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Margaret, Sorry meds only! But it does apply if you need prescriptions from your dentist. Subject: Eyes Hi all Can I ask a question. As we have free prescriptions for life are we entitled to free eye tests as this is a prescription.About to book one and dont wish to pay if I dont have too. Ta very much Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hi, I also had an eye test recently and my eyesight has deteriorated dramatically in the last year. While the optician didn't give any specifics she did say that it was due to my being ill. So I now have to wear glasses after not having any for many years. The whole cost of being ill is massive... in addition to the cost of medicine, vitamins, minerals and doctor consultations because the NHS won't treat I have the following.... can't work...lost earnings extra money for 'prepared' meals for my family as I am too tired to cook extra heating because I am so cold new clothes in increasingly larger sizes more petrol because I am too tired to walk anywhere glasses because my eyesight has deteriorated the true cost financial cost? how can we possibly calculate? > my sister recently had an eye test and was told by the optician that she had retinal thinning to the back of the eye it is caused by atrophy(old age)or thyroid related has any one heard of this before > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Hi - I believe that opticians can tell whether you are suffering with hypothyroidism from an eye test (I am sure I have read about this but I may be wrong). If correct, can you ask your optician to write a letter to your GP stating this possibility. Also, write a letter to your GP listing your symptoms, signs (look at our website to check these) www.tpa-uk.org.uk .. List your basal temperatures for 4/5 days when waking, and before you get out of bed. List any members of your family who have a thyroid or autoimmune disorder. Ask for a full thyroid function test to include testing to see if you have antibodies to your thyroid. Ask to have your blood tested to see whether you have low ferritin, B12, Vitamin D3, zinc, copper and magnesium. Explain to your GP that you are aware that if any of these are low, your thyroid hormone will not be utilised by the cells and this could be why you are feeling so dreadful. Tell the GP also that you would like the results and reference range for each of them when they have been done as you are keeping a diary of events that your ill health is causing you to try to find an answer. List also what you are having to put up with now because of your failing health and the NHS lack of being able to give you a diagnosis can't work...lost earnings extra money for 'prepared' meals for my family as I am too tired to cook extra heating because I am so cold new clothes in increasingly larger sizes more petrol because I am too tired to walk anywhere glasses because my eyesight has deteriorated Tell your GP you need a referral to a thyroid specialist, and not one who's specialty is diabetes, you need a thyroid specialist. We really do have to fight before a doctor will listen to us, but they are often too afraid to give a diagnosis when your blood results are within the BTA so called reference range - which is about the widest in the whole world. They know there are members of the BTA who are watching out for such doctors and will report them to the GMC - though I do believe the GMC are realising there is a great problem with this. Dr Skinner was allowed to carry on diagnosing and treating as he always has, so until word gets around that doctors ARE allowed to use their own brains, so long as they can give a very good reason WHY they made such a decision, they will remain scared. Perhaps you should talk to your doctor about this and see if this is the reason a diagnosis in your case is being refused. Luv - Sheila I also had an eye test recently and my eyesight has deteriorated dramatically in the last year. While the optician didn't give any specifics she did say that it was due to my being ill. So I now have to wear glasses after not having any for many years. The whole cost of being ill is massive... in addition to the cost of medicine, vitamins, minerals and doctor consultations because the NHS won't treat I have the following.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Hi all, My eyesight has gone hill. The optician also said I have high intra occular pressure which is because of the Hypothyroidism. luv Justeen > I also had an eye test recently and my eyesight has deteriorated dramatically in the last year. While the optician didn't give any specifics she did say that it was due to my being ill. So I now have to wear glasses after not having any for many years. The whole cost of being ill is massive... > > in addition to the cost of medicine, vitamins, minerals and doctor consultations because the NHS won't treat I have the following.... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Hi Justeen - not heard from you for ages. Was hoping this was because you are feeling so much better. How ARE you feeling. Let us know. Missed not having you around. Luv - Sheila My eyesight has gone hill. The optician also said I have high intra occular pressure which is because of the Hypothyroidism. luv Justeen > I also had an eye test recently and my eyesight has deteriorated dramatically in the last year. While the optician didn't give any specifics she did say that it was due to my being ill. So I now have to wear glasses after not having any for many years. The whole cost of being ill is massive... > > in addition to the cost of medicine, vitamins, minerals and doctor consultations because the NHS won't treat I have the following.... > > > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.18/2096 - Release Date: 05/05/09 13:07:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Hi Sheila, Thanks for your concern. I hope you and are well. I don't feel to good at the moment. My pulse is still very fast as is my heart beat. I'm weaning off the the HC as I've been on it since Feb. My temps are low and stable so I think I need more T4 or T3, don't know which. I had my Neurology check up and my Neuro wants me under an Endo. I need to now take a closer look at the list you sent me and request I see one of my choosing. Problem is choose 'n' book doesn't mean I get the Endo I want, just the hospital. I need one that won't stop my T3. My GP has no intention of stopping it. I would like to see an Endo as I want all my hormones testing as I'm sure I have a problem with Prog/Eostrogen balance and possibly low GH which is also indicated in MS. I seem to have gone from bad to worse since starting all my meds but I know it's a long haul and it will come right in the end. I have at least lost 2 stone since starting the T3 so that's good. Luv Justeen > > Hi Justeen - not heard from you for ages. Was hoping this was because you > are feeling so much better. How ARE you feeling. Let us know. Missed not > having you around. > > Luv - Sheila > > My eyesight has gone hill. The optician also said I have high intra occular > pressure which is because of the Hypothyroidism. > luv Justeen > > > I also had an eye test recently and my eyesight has deteriorated > dramatically in the last year. While the optician didn't give any specifics > she did say that it was due to my being ill. So I now have to wear glasses > after not having any for many years. The whole cost of being ill is > massive... > > > > in addition to the cost of medicine, vitamins, minerals and doctor > consultations because the NHS won't treat I have the following.... > > > > > > > > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.0.238 / Virus Database: 270.12.18/2096 - Release Date: 05/05/09 > 13:07:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi Marie My sis lives in St s eye Hozzy due to Thyroid eye probs.xxxxxxxxxxx Margaret From: marie simpson <mariesimpson1248@...>thyroid treatment Sent: Tuesday, 5 May, 2009 15:32:58Subject: eyesmy sister recently had an eye test and was told by the optician that she had retinal thinning to the back of the eye it is caused by atrophy(old age)or thyroid related has any one heard of this before ------------------------------------TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 > > Bee, > > I had an incident today where I took a nap when I woke up my left eye's vision was very blurry. After 10 minutes of massaging it, it finally cleared up a bit. But, now both my eyes are super tired and a bit blurry. Is this a detox episode? I know to use the various eye treatments your recommend but this was scary to me and just wanted your opinion on it. Thank you. > > Shaila Hi Shaila I'm not Bee as she is probably sleeping right about now and if you are eating the good stuff Bee has outlined your blurry/tired eyes is a good sign. Stay the course. Neal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 > > Bee, > > I had an incident today where I took a nap when I woke up my left eye's vision was very blurry. After 10 minutes of massaging it, it finally cleared up a bit. But, now both my eyes are super tired and a bit blurry. Is this a detox episode? I know to use the various eye treatments your recommend but this was scary to me and just wanted your opinion on it. Thank you. > +++Hi Shaila. As Neal wrote, your eye problems are caused by toxins coming out through them. It will clear up eventually just doing this program. All the best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 > > Hi Bee, > > First, thanks for all your help and support to the group. Second, I have a question about my eyes. I am nearsighted and have to wear a strong prescription for my far sightedness. Will my eyesight ever improve so that I no longer have to wear glasses? +++Hi . I don't know if it will correct your vision totally; my vision improved so my glasses aren't as strong. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 My son was diagnosed with glaucoma when he was 5 years old--he had the trabectelectomy and everything has been great since. He just recently had to go back on drops because he experienced a flare up--he has been on drops for about a month now and we hope to get him off them asap. He is on Mtx and we have increased the dosage in hopes to knock out the flare up--if not Humira has been one of the medicines mentioned to me they may consider changing him too. My son now is 13 and we have been fighting JRA and Uveitis since he was 5--it is an on-going battle and I hate it. > > I am a little afraid of humira. Humira is suppose to help Uveitis?? I do not know how affective it is. Well, now at 14 years old, my son has glaucoma. I feel upset. The doctor is considering a trabectelectomy. Any suggestions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 My 8 year old is possibly starting on Humira this week, she's been fighting uveitis since March, and the eye dr. isn't happy with having to keep using the pred forte drops, so we're going to try the Humira along with the methotrexate...we had the choice of either Humira or Remicade, but I wasn't too thrilled with the idea of a 3-4 hour infusion every month... Lori On Mon, Nov 9, 2009 at 2:02 PM, weaverb96 <christineweaver@...>wrote: > > > My son was diagnosed with glaucoma when he was 5 years old--he had the > trabectelectomy and everything has been great since. He just recently had to > go back on drops because he experienced a flare up--he has been on drops for > about a month now and we hope to get him off them asap. He is on Mtx and we > have increased the dosage in hopes to knock out the flare up--if not Humira > has been one of the medicines mentioned to me they may consider changing him > too. My son now is 13 and we have been fighting JRA and Uveitis since he was > 5--it is an on-going battle and I hate it. > > > > > > I am a little afraid of humira. Humira is suppose to help Uveitis?? I do > not know how affective it is. Well, now at 14 years old, my son has > glaucoma. I feel upset. The doctor is considering a trabectelectomy. Any > suggestions. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 My rheummy said humira was the best one to try. He goes to UCLA. Her name is Dr. Mcurdy. We are going to do it. This month he will see her and we are going to start Humira if all goes well. All the emails with supportive info has helped me get over the hump. My son is the one I have to convince to go along with this treatment. It just seems so drastic, but we try it and see where it takes us. Thank God for this support group. Jeanne ________________________________ From: L Legnon <momof2sillies@...> Sent: Mon, November 9, 2009 12:41:42 PM Subject: Re: Re: Eyes My 8 year old is possibly starting on Humira this week, she's been fighting uveitis since March, and the eye dr. isn't happy with having to keep using the pred forte drops, so we're going to try the Humira along with the methotrexate...we had the choice of either Humira or Remicade, but I wasn't too thrilled with the idea of a 3-4 hour infusion every month... Lori On Mon, Nov 9, 2009 at 2:02 PM, weaverb96 <christineweaver@...>wrote: > > > My son was diagnosed with glaucoma when he was 5 years old--he had the > trabectelectomy and everything has been great since. He just recently had to > go back on drops because he experienced a flare up--he has been on drops for > about a month now and we hope to get him off them asap. He is on Mtx and we > have increased the dosage in hopes to knock out the flare up--if not Humira > has been one of the medicines mentioned to me they may consider changing him > too. My son now is 13 and we have been fighting JRA and Uveitis since he was > 5--it is an on-going battle and I hate it. > > > > > > I am a little afraid of humira. Humira is suppose to help Uveitis?? I do > not know how affective it is. Well, now at 14 years old, my son has > glaucoma. I feel upset. The doctor is considering a trabectelectomy. Any > suggestions. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 May I ask what scares you about Humira? My 13yo son has been on it 11 months - weekly. It has been a life-saver with no detectable side effects. Audra > > I am a little afraid of humira. Humira is suppose to help Uveitis?? I do not know how affective it is. Well, now at 14 years old, my son has glaucoma. I feel upset. The doctor is considering a trabectelectomy. Any suggestions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi, Well, I was afraid of him getting sick. Gosh, I do not know how often he would get the flu and etc. Cancer is a possible side effect, but I am getting over it. I think I am going to ask for Humira this month. I guess the responsibility of giving another medication kind of scares me too. But I can do this. I think my dad will read over the phamphlet with me and all that negative stuff we will deal with and start to focus more on the benefits for his eyes. His old, old like when he was 3 yo said enbrel and medication like it was not as important as methotrexate was. We just do not want to be a study either. I guess that scares me like we might be a ginny pig. Terrible, I know, but these medications have been around for many years. I hope I do not spoil your good attitude. Thanks, Jeanne ________________________________ From: audra <wynhama@...> Sent: Mon, November 9, 2009 6:35:40 PM Subject: Re: Eyes May I ask what scares you about Humira? My 13yo son has been on it 11 months - weekly. It has been a life-saver with no detectable side effects. Audra > > I am a little afraid of humira. Humira is suppose to help Uveitis?? I do not know how affective it is. Well, now at 14 years old, my son has glaucoma. I feel upset. The doctor is considering a trabectelectomy. Any suggestions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 No spoiling my attitude, just learned by experience. My son was so depressed last December before he started on the Humira (the Enbrel quit working) and he was hurting so badly that he wouldn't leave his room. It was so sad. He had an awful Christmas. Anyway, when he started the Humira, the very next morning he was like " I can live like this. " The depression lifted and he went back to his old self. That's what sold me. From all that I have read, the biologics or TNF alpha blockers, are the biggest thing to keep these kids under control and decreasing future deformity. I have one kid on Enbrel and another on Humira. I am very thankful that we are not " always " sick. We are mostly careful about germs, but not crazy. Yes, I am concerned about cancer. I did give that to God. I can't handle that one on my own. All I know, is that they need a good quality of life. These drugs give them a good quality now. By the way, Humira burns when it is injected. We'll be here if you have questions. Audra > > Hi, > Well, I was afraid of him getting sick. Gosh, I do not know how Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi, Well, my rheummy said this is the best drug to help quiet the uveitis . Do your kids have eye problems from the JRA. The most encouraging aspect of your testimony is that they have not developed the flu. Do you just call your doctor on call if they get sick or have you experienced that?? Once they are sick where do you from there?? Does that mean they need antibiotics right away??? I guess what is the plan of care with humira?? Oh, I read something about a rash with injecting humira?? Any feedback is appreciated. Jeanne ________________________________ From: audra <wynhama@...> Sent: Tue, November 10, 2009 6:58:00 PM Subject: Re: Eyes No spoiling my attitude, just learned by experience. My son was so depressed last December before he started on the Humira (the Enbrel quit working) and he was hurting so badly that he wouldn't leave his room. It was so sad. He had an awful Christmas. Anyway, when he started the Humira, the very next morning he was like " I can live like this. " The depression lifted and he went back to his old self. That's what sold me. From all that I have read, the biologics or TNF alpha blockers, are the biggest thing to keep these kids under control and decreasing future deformity. I have one kid on Enbrel and another on Humira. I am very thankful that we are not " always " sick. We are mostly careful about germs, but not crazy. Yes, I am concerned about cancer. I did give that to God. I can't handle that one on my own. All I know, is that they need a good quality of life. These drugs give them a good quality now. By the way, Humira burns when it is injected. We'll be here if you have questions. Audra > > Hi, > Well, I was afraid of him getting sick. Gosh, I do not know how Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 My kids have had perfect eyes. I am thankful. got swimmers ear this summer and had bronchitis in August. Peyton has had a couple of sinus infections in the last few months. Yes, I just go to the pediatrician or immediate care on weekends and start antibiotics. You just hold the shot until the antibiotics are through. I am a little afraid of infection. I try to stay on top of it. has never had a rash. I hope we don't. Keep us updated on how your son does. Audra > > > > Hi, > > Well, I was afraid of him getting sick. Gosh, I do not know how > > > > > Quote Link to comment Share on other sites More sharing options...
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