diet

[Guest guest]

My grandparents babysat my daughter while I went to college, and I

could always tell when they snuck her milk... They were so upset with

me, because my grandpa was a dairy farmer, and by God, " Milk is

nature's perfect food. " They thought I was torturing her by not giving

her milk... of course, it was torturing all of us, as she would not

sleep through the night for the screaming and crying and tossing and

turning...

I had to stop taking college classes (didn't have anyone I could trust

not to give her milk...) My MIL would give her chocolate, and force it

on her... (My kids don't " do " candy... we still have most of our

Halloween candy from last year, as we try to be very healthy.) So, when

I removed her, kept an eye on her food consumption, etc... she improved

so greatly, it was hard for anyone to argue that milk was the problem...

Would it be possible to get him calcium supplements, and calcium

fortified foods, to " prove " he is getting the calcium he needs w/o

milk? That made my family feel better about it...

Aubrey

>

>

> Yes, he insists on MILK. He does drink water & juice on occasion

(pretty

> much when we are at a restaurant). I'm with you..I know that this

amount of

> milk is not good. I try to minimize it if I'm around him most of the

time

> but I do have a husband and a MIL who give into his every whim. They

don't

> understand how MILK (casein) can potentially be harming him or at

least not

> making him operate at his fullest potential.

>

>

[Guest guest]

Do not give your maternal power over. Enzymes have helped many but I

believe Tracey may have had better results after going off the milk.

Plus, enzymes have their own issues. They have been discussed as

possibly causing gut tears. Nothing is perfect and do what you will but

if you can go off for a trial that is the best way to know if milk is

your problem.

myra.bauza@... wrote:

>

> Thanks for th advice. If it were simply up to me.....I would do this in a

> heartbeat..but have a husband who gives into and a MIL who also gives

> into

> him. I'm fighting a losing battle on all fronts. And they just don't

> understand how harmful the milk can potentially be for him. Nothing is

> easy. I am going to try the enzymes another lister Tracey tried and

> succeeded with...

>

>

>

> Kim

> <kimonines (DOT)

> com> To

> Sent by:

> <mailto: %40>

> childrensapraxian cc

> et@... <mailto:et%40groups.co>

> m Subject

> Re: [ ] diet

>

> 09/21/2007 01:12

> PM

>

>

> Please respond to

> childrensapraxian

> et@... <mailto:et%40groups.co>

> m

>

>

>

>

>

>

> It sounds like your son has sensory integration issues going on with

> food.

> Some OTs know how to treat this if you call around and ask. Also, picky

> eaters often become less picky once the one food they are obsessing

> over is

> removed from the diet. I know it sounds counterintuitive, but kids often

> obsess over foods that are the most harmful for them. Once you remove

> that

> food, other problems are often resolved. It's just the transition that

> can

> be a monster!

>

> My 5 year old was a milk guzzler and a picky eater. It took him over a

> month, but he will now drink almond milk and enjoys it, although he

> doesn't

> drink it often. At first he would have nothing to do with any alternative

> milks because he still remembered what the real stuff tasted like and he

> still craved it. Now he doesn't miss dairy at all and is a much less

> picky

> eater. This type of transition is very typical for kids who are milk

> lovers. Sometimes you just have to be creative and hang tough.

>

> Kim with 4 cuties

>

> myra.bauza@... <mailto:myra.bauza%40chase.com> wrote:

>

> My son smells everything! So, if Almond Milk smells different than his

> current milk, he is going to refuse. It is not a matter of how things

> taste. My son has alot of food aversions of which I'm trying

> desparately to

>

> cure. It is extremely difficult for him to try any new foods. He acts

> like

> he's in pain while tasting. (And for all I know, he may very well be).

> I'm

> scheduled to attend a Food Seminar for Children such as mine in a

> couple of

>

> weeks. Hopefully, they'll enlighten me with what to do.

> The drs don't care about this issue either. My son is in the high

> percentile range for height and right in the middle for weight. He rarely

> if ever gets sick and that's all they care about. The rest is " our "

> issue.

>

> Molly

> <mau_li@... <mailto:mau_li%40>

> > To

> Sent by:

> <mailto: %40>

> childrensapraxian cc

> et@... <mailto:et%40groups.co>

> m Subject

> Re: [ ] diet

>

> 09/21/2007 10:14

> AM

>

> Please respond to

> childrensapraxian

> et@... <mailto:et%40groups.co>

> m

>

> Have you tried almond milk? it is delicious!

> Even rice milk taste pretty good, but it isn't as nutritious.

>

> Re: [ ] diet

>

> ,

> I'm with you. I would love to take my son off of dairy since I think

> he has

>

>

> malabsorption issues.(not as bad as when he was younger) but I simply

> can't. My son drinks 1 gallon every other day...and I've tried the

> soys and

>

>

> he will not have them. My son only eats about 5 things so I cannot

> take him

>

>

> off it . I do buy Lactaid and that seems to be less troublesome than

> 'regular " milk.

>

> Hanagan

> <hanagan_8@hotmai

> l.com> To

> Sent by: < @groups. co

> childrensapraxian m>

> etgroups (DOT) co cc

> m

> Subject

> [childrensapraxiane t] diet

> 09/21/2007 01:13

> AM

>

> Please respond to

> childrensapraxian

> etgroups (DOT) co

> m

>

> We began the fish oil supplements about one month ago, and we've had

> remarkable results! Now, I'd like to address the diet issues. My problem

> with this is that my 2.5 year old id INCREDIBLY picky! I now realize that

> we are also completely dependent on dairy. I took dairy away for about

> three days (he seemed to have a better mood), but he wouldn't drink the

> rice or soy milk (enriched with vitamin d and calcium). I'm so afraid of

> vitamin deficiencies that I chickened out. Any suggestions. ....what do I

> do with a very picky eater?????

>

> Thanks

>

>

> ____________ _________ _________ _________ _________ _________ _

> Gear up for Halo® 3 with free downloads and an exclusive offer.

> It’s our

>

> way of saying thanks for using Windows Liveâ„¢.

> http://gethalo3gear .com?ocid= SeptemberWLHalo3 _WLHMTxt_ 2

>

>

[Guest guest]

Here's the thing about milk.... they call it the casio-morphine effect

(spelling?) or if gluten is your problem, the gluta-morphine effect. Some call

it the opoid effect.

These substances are very close in make-up to morphine. I think it is something

like one or two molecules away.... very similiar at least.

For our kids who are diet responders, we might as well be loading them up on

morphine as it produces the same results. This includes the ADDICTION aspect.

Thus, your child wants milk because it takes him away to 'LA-LA land' and makes

him feel good. Thus, when he doesn't get it, he does feel some measure of

withdrawal. Withdrawal can be a little nasty to go through (nothing like the

real morphine however) but once it is done, the child really is happier and

healthier and more able-bodied.

Now we all have 'feel-good' foods that we enjoy. For me, it is macaroni and

cheese. Gee, guess I like casien and gluten too! But, it simply does not

affect me to such an extent neurologically. For my son, casien messes with his

senses to the level of about 5,000 times what it does for me. No wonder he

never developed properly; the child was chronicly stoned. How on earth can a

person develop neurologically if they never have their true, god-given wits

about them? They are simply walking around in a semi-drug induced haze.

Is this forever? I have heard stories where the diet can be eliminated at some

point but we certainly are not there yet. My child can tolerate quite a bit of

gluten along with high quality enzymes without issue. But if I forget to give

him enzymes for a few days, he begins to regress once more. He cannot tolerate

milk even with enzymes.

So.... every child is indeed individual and some are able to eventually leave

the diet once the gut is healed and the yeast issues are resolved and just use

dietary enzymes to control the sensitivity in the stomach. But if your child

was a diabetic, you wouldn't give them just a little sugar; you would completely

remove it from their choices of foods. It is the same way for us and casien.

Janice

[sPAM] Re: [ ] diet

If you want to take your son off of dairy and he drinks that much. I would

start weaning him down off of it. 1 gallon every other day is really too much.

It is probably why he only eats those things. By luck my daughter stopped

drinking milk when she was 17 mos because she gave up the bottle why on

vacation. She was a very picky eater and her appetite grew overnight. I kept

with keeping her off milk and she began to eat. I am sure you will see the same

results. Just do it slowly and stick with it....

myra.bauza@... wrote:

,

I'm with you. I would love to take my son off of dairy since I think he has

malabsorption issues.(not as bad as when he was younger) but I simply

can't. My son drinks 1 gallon every other day...and I've tried the soys and

he will not have them. My son only eats about 5 things so I cannot take him

off it . I do buy Lactaid and that seems to be less troublesome than

'regular " milk.

Hanagan

<hanagan_8@hotmai

l.com> To

Sent by: < @...

childrensapraxian m>

et@... cc

m

Subject

[ ] diet

09/21/2007 01:13

AM

Please respond to

childrensapraxian

et@...

m

We began the fish oil supplements about one month ago, and we've had

remarkable results! Now, I'd like to address the diet issues. My problem

with this is that my 2.5 year old id INCREDIBLY picky! I now realize that

we are also completely dependent on dairy. I took dairy away for about

three days (he seemed to have a better mood), but he wouldn't drink the

rice or soy milk (enriched with vitamin d and calcium). I'm so afraid of

vitamin deficiencies that I chickened out. Any suggestions.....what do I

do with a very picky eater?????

Thanks

__________________________________________________________

Gear up for Halo® 3 with free downloads and an exclusive offer. Itâ?Ts our

way of saying thanks for using Windows Liveâ " ¢.

http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2

[Guest guest]

Again, if I were alone in the world with my son....But I'm not and they

simply do not get it. My mother is even worse! She will ask him if he wants

milk. She too believes that Milk is the perfect food and since he doesn't

eat much. She doesn't realize that it could be the reason he doesn't well.

I've often thought that if I didn't work, things would've been different.

So, it is something that eats at me alot. But, in the meantime, I will

provide the enzymes and see if this counteracts the casein. As well, I am

trying hard to minimize his intake.

Thanks for your response. It's nice to hear that there are others in

similar situations.

" Aubrey "

<hypnotist_collec

tr@...> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] Re: diet

09/21/2007 02:36

PM

Please respond to

childrensapraxian

et@...

m

My grandparents babysat my daughter while I went to college, and I

could always tell when they snuck her milk... They were so upset with

me, because my grandpa was a dairy farmer, and by God, " Milk is

nature's perfect food. " They thought I was torturing her by not giving

her milk... of course, it was torturing all of us, as she would not

sleep through the night for the screaming and crying and tossing and

turning...

I had to stop taking college classes (didn't have anyone I could trust

not to give her milk...) My MIL would give her chocolate, and force it

on her... (My kids don't " do " candy... we still have most of our

Halloween candy from last year, as we try to be very healthy.) So, when

I removed her, kept an eye on her food consumption, etc... she improved

so greatly, it was hard for anyone to argue that milk was the problem...

Would it be possible to get him calcium supplements, and calcium

fortified foods, to " prove " he is getting the calcium he needs w/o

milk? That made my family feel better about it...

Aubrey

>

>

> Yes, he insists on MILK. He does drink water & juice on occasion

(pretty

> much when we are at a restaurant). I'm with you..I know that this

amount of

> milk is not good. I try to minimize it if I'm around him most of the

time

> but I do have a husband and a MIL who give into his every whim. They

don't

> understand how MILK (casein) can potentially be harming him or at

least not

> making him operate at his fullest potential.

>

>

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[Guest guest]

well put!

Liz

<lizlaw@optonline

.net> To

Sent by:

childrensapraxian cc

et@...

m Subject

Re: [ ] diet

09/21/2007 02:34

PM

Please respond to

childrensapraxian

et@...

m

Good Mommy. As for husband and MIL you have to give it to them straight.

In his little body from what your are seeing milk may very well be a

street drug for him. The only way to know one way or the other is

elimination and observation. You simply cannot do that with people who

love him serving as his dealer.

myra.bauza@... wrote:

>

> Yes, he insists on MILK. He does drink water & juice on occasion (pretty

> much when we are at a restaurant). I'm with you..I know that this

> amount of

> milk is not good. I try to minimize it if I'm around him most of the time

> but I do have a husband and a MIL who give into his every whim. They

> don't

> understand how MILK (casein) can potentially be harming him or at

> least not

> making him operate at his fullest potential.

>

>

>

> Liz

> <lizlaw@optonline

> .net> To

> Sent by:

> <mailto: %40>

> childrensapraxian cc

> et@... <mailto:et%40groups.co>

> m Subject

> Re: [ ] diet

>

> 09/21/2007 10:41

> AM

>

>

> Please respond to

> childrensapraxian

> et@... <mailto:et%40groups.co>

> m

>

>

>

>

>

>

> 1/2 gallon of anything is not good. My kids ate 3 or 4 things before we

> wenht GFCF. We only had one bad day. Self-limiting foods by the kid is a

> sign of something going wrong, at least that is what we found with our

> kids. Just a thought.

>

> Honestly, if you took him off milk and replaced it with water would he

> drink that until you addressed the rest of diet? Does he have to have

> milk?

>

> myra.bauza@... <mailto:myra.bauza%40chase.com> wrote:

>

> >

> > ,

> > I'm with you. I would love to take my son off of dairy since I think

> > he has

> > malabsorption issues.(not as bad as when he was younger) but I simply

> > can't. My son drinks 1 gallon every other day...and I've tried the

> > soys and

> > he will not have them. My son only eats about 5 things so I cannot

> > take him

> > off it . I do buy Lactaid and that seems to be less troublesome than

> > 'regular " milk.

> >

> >

> >

> > Hanagan

> > <hanagan_8@hotmai

> > l.com> To

> > Sent by: < @...

> <mailto: %40groups.co>

> > <mailto: %40groups.co>

> > childrensapraxian m>

> > et@... <mailto:et%40groups.co>

> <mailto:et%40groups.co> cc

> > m

> > Subject

> > [ ] diet

> > 09/21/2007 01:13

> > AM

> >

> >

> > Please respond to

> > childrensapraxian

> > et@... <mailto:et%40groups.co>

> <mailto:et%40groups.co>

> > m

> >

> >

> >

> >

> >

> >

> > We began the fish oil supplements about one month ago, and we've had

> > remarkable results! Now, I'd like to address the diet issues. My

> problem

> > with this is that my 2.5 year old id INCREDIBLY picky! I now realize

> that

> > we are also completely dependent on dairy. I took dairy away for about

> > three days (he seemed to have a better mood), but he wouldn't drink the

> > rice or soy milk (enriched with vitamin d and calcium). I'm so

> afraid of

> > vitamin deficiencies that I chickened out. Any suggestions.....what

> do I

> > do with a very picky eater?????

> >

> > Thanks

> >

> >

> > __________________________________________________________

> > Gear up for Halo® 3 with free downloads and an exclusive offer. It’s

> our

> > way of saying thanks for using Windows Liveâ„¢.

> > http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2

> <http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2>

> > <http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2

> <http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2>>

> >

> >

[Guest guest]

I went out and bought healthy food but it seems all I want to eat is

cereal. I can't get enough and haven't had this much milk since I was

growing up!

The good thing is I like shredded wheat and bran cereals so at least

it's something healthy. lol

Oddly I don't crave chocolate any more and I've ALWAYS been a

chocoholic. It's gotta be the tx!

That's great news about not having any damage to your liver. I

read that people with little or no damage stand a better chance of

success with treatment but ask your doc about that. It's what you pay

him for and I'm no expert. ;-)

Treatment (tx) seems to affect people differently and you won't know

how you're going to feel until you start. Some have very mild sides

and some have really bad sides, so as far as I know it's a coin toss.

Good luck to ya K9! I hope it goes smoothly for you and you get

through your 48 with few bumps in the road!

Ask anyone here if you have questions and we'll be happy to help if

we can.

Gayle

>

> Hello,

>

> I joined this group a while back, and have been reading the

postings

> since then. I have learned quite a bit from reading these.

>

> The doctor tells me I have probadly had this virus for many years.I

> am type 1A, so it will be 48 weeks for me. I am very anxious about

> starting the treatment, my first shot will be on this coming

Tuesday,

> the 25th. My biopsy came out very good, no damage to my liver. I

live

> alone, however, I have the support of my parents who will stay with

> me as long as neccesary after the first shot.

>

> I was wondering if anyone could give me an idea about how to

prepare

> for this, I am not sure what to buy to eat. I know everyone is

> different, but maybe someone could give me an idea what to get. I

> still have a couple of days to prepare for this. There are a lot of

> you who have been on treatment for a while, and I thought maybe you

> could tell me, what did you feel like eating?

>

> Any information would be greatly appreciated.

>

> Kathi Wallis

>

[Guest guest]

I went out and bought healthy food but it seems all I want to eat is

cereal. I can't get enough and haven't had this much milk since I was

growing up!

The good thing is I like shredded wheat and bran cereals so at least

it's something healthy. lol

Oddly I don't crave chocolate any more and I've ALWAYS been a

chocoholic. It's gotta be the tx!

That's great news about not having any damage to your liver. I

read that people with little or no damage stand a better chance of

success with treatment but ask your doc about that. It's what you pay

him for and I'm no expert. ;-)

Treatment (tx) seems to affect people differently and you won't know

how you're going to feel until you start. Some have very mild sides

and some have really bad sides, so as far as I know it's a coin toss.

Good luck to ya K9! I hope it goes smoothly for you and you get

through your 48 with few bumps in the road!

Ask anyone here if you have questions and we'll be happy to help if

we can.

Gayle

>

> Hello,

>

> I joined this group a while back, and have been reading the

postings

> since then. I have learned quite a bit from reading these.

>

> The doctor tells me I have probadly had this virus for many years.I

> am type 1A, so it will be 48 weeks for me. I am very anxious about

> starting the treatment, my first shot will be on this coming

Tuesday,

> the 25th. My biopsy came out very good, no damage to my liver. I

live

> alone, however, I have the support of my parents who will stay with

> me as long as neccesary after the first shot.

>

> I was wondering if anyone could give me an idea about how to

prepare

> for this, I am not sure what to buy to eat. I know everyone is

> different, but maybe someone could give me an idea what to get. I

> still have a couple of days to prepare for this. There are a lot of

> you who have been on treatment for a while, and I thought maybe you

> could tell me, what did you feel like eating?

>

> Any information would be greatly appreciated.

>

> Kathi Wallis

>

[Guest guest]

lol i gained 25 pounds on tx had swollen glands. prostate infection, 30 days of

cipro plus tx,43 and raiseing a 2 year old, 3 in oct.best thing is live enzynes

get a juicer n juice,nothing like fresh juice does the body good,diet plays the

most important roll in health and healing.

the bodys is made to heal itself.herbs heal and help in a lot of ways and i

use alot.but so far the only two herbs that have shown any help against hcv are

oxymatrine and mistle toe oxy is not for me the sides where worse then tx for

me.the other can be toxic.theres lots that help the liver but not kill the

virus.but the mental sides where not good for me.on tx they never put me on anti

depressents,plus doc would not treat sides.tx has cleared me but it was rough

and 4 weeks pass tx it still is.my right side is acting nutso but doc thinks im

wacko.says im fine.hcv is never the same in anyone,anyways im just rambleing on

Sharon Burch <sburch49@...> wrote:

I did drink Ensure. I know it sounds awful, but that was one of the

things that stayed with me and did give me some nutrition. I lost 55 lbs. during

tx and I had to have something so my doc said Ensure was the next best thing for

nutrition. CHOCOLATE is the only one I could drink the whole 5 months....just a

thought to try.

Sharon

---------------------------------

Looking for a deal? Find great prices on flights and hotels with

FareChase.

[Guest guest]

lol i gained 25 pounds on tx had swollen glands. prostate infection, 30 days of

cipro plus tx,43 and raiseing a 2 year old, 3 in oct.best thing is live enzynes

get a juicer n juice,nothing like fresh juice does the body good,diet plays the

most important roll in health and healing.

the bodys is made to heal itself.herbs heal and help in a lot of ways and i

use alot.but so far the only two herbs that have shown any help against hcv are

oxymatrine and mistle toe oxy is not for me the sides where worse then tx for

me.the other can be toxic.theres lots that help the liver but not kill the

virus.but the mental sides where not good for me.on tx they never put me on anti

depressents,plus doc would not treat sides.tx has cleared me but it was rough

and 4 weeks pass tx it still is.my right side is acting nutso but doc thinks im

wacko.says im fine.hcv is never the same in anyone,anyways im just rambleing on

Sharon Burch <sburch49@...> wrote:

I did drink Ensure. I know it sounds awful, but that was one of the

things that stayed with me and did give me some nutrition. I lost 55 lbs. during

tx and I had to have something so my doc said Ensure was the next best thing for

nutrition. CHOCOLATE is the only one I could drink the whole 5 months....just a

thought to try.

Sharon

---------------------------------

Looking for a deal? Find great prices on flights and hotels with

FareChase.

[Guest guest]

What about weaning them off milk?

The only way I could get to drink anything besides breastmilk

was to s-l-o-w-l-y mix a bit of the new substance in with the old.

Eventually she was drinking soy milk instead (yeah, we're going off

that now only due to possible estrogen dominance issues down the

road). I would try the almond or rice milks. I've never had almond,

don't think I've seen it in the store here but I KNOW the rice is

sweet and tastes great on cereal. It just isn't creamy like milk,

that's all.

Don't feel sorry for - she was breastfed until a year. This

" cow " needed a break!

Darlene

>

> >

> > ,

> > I'm with you. I would love to take my son off of dairy since I think

> > he has

> > malabsorption issues.(not as bad as when he was younger) but I simply

> > can't. My son drinks 1 gallon every other day...and I've tried the

> > soys and

> > he will not have them. My son only eats about 5 things so I cannot

> > take him

> > off it . I do buy Lactaid and that seems to be less troublesome than

> > 'regular " milk.

> >

> >

> >

> > Hanagan

> > <hanagan_8@hotmai

> > l.com> To

> > Sent by: < @...

> > <mailto: %40groups.co>

> > childrensapraxian m>

> > et@... <mailto:et%40groups.co> cc

> > m

> > Subject

> > [ ] diet

> > 09/21/2007 01:13

> > AM

> >

> >

> > Please respond to

> > childrensapraxian

> > et@... <mailto:et%40groups.co>

> > m

> >

> >

> >

> >

> >

> >

> > We began the fish oil supplements about one month ago, and we've had

> > remarkable results! Now, I'd like to address the diet issues. My

problem

> > with this is that my 2.5 year old id INCREDIBLY picky! I now

realize that

> > we are also completely dependent on dairy. I took dairy away for about

> > three days (he seemed to have a better mood), but he wouldn't

drink the

> > rice or soy milk (enriched with vitamin d and calcium). I'm so

afraid of

> > vitamin deficiencies that I chickened out. Any

suggestions.....what do I

> > do with a very picky eater?????

> >

> > Thanks

> >

> >

> > __________________________________________________________

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[Guest guest]

I starterd gaining weight right away but in the last 2 weeks I've

dropped about 7 pounds. Food just doesn't have the appeal it did

before and I have a hard time finishing a meal lately.

Ha! I could lose 50 pounds and be happy with my weight so I'm not too

worried about eating less these days. ;-)

Oh man... I love Ensure and I'm certain it's the only thing that kept

me from starvation in my user days. Wish they'd come up with a

calorie free formula, I'd buy it!

Gayle

> I did drink Ensure. I know it sounds awful, > Sharon

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

>

[Guest guest]

I starterd gaining weight right away but in the last 2 weeks I've

dropped about 7 pounds. Food just doesn't have the appeal it did

before and I have a hard time finishing a meal lately.

Ha! I could lose 50 pounds and be happy with my weight so I'm not too

worried about eating less these days. ;-)

Oh man... I love Ensure and I'm certain it's the only thing that kept

me from starvation in my user days. Wish they'd come up with a

calorie free formula, I'd buy it!

Gayle

> I did drink Ensure. I know it sounds awful, > Sharon

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

>

[Guest guest]

i craved sweets,never did before like those cherry pies 2 for a buck 38 grams of

fat per goodness.lol do what ever you need to get thru it.i made alot of special

brownies,yummy with a kick.lol.i had a very rough time .but would still do it

knowing what i face again.get ready for the ride,and whats great if it gets to

rough at any time you may get off it.but it does us all different.my 1st shot

was nothing no flu nothing 1st 4 went great.you will do fine and my prayers are

with you

Kathi Wallis <k9wallis@...> wrote: Thank you to everyone for

answering my question about what I might feel like eating during treatment.

Tomorrow is the big day-shot #1 of 48, sure seems like a lot. I have some

Ensure, cereal, other things I thought I might be able to keep down. I am

certainly not looking forward to the side effects. But-Just maybe I will be one

of the lucky ones with mild sides. Anyway, I am keeping my head up!

I will tell you how it went

Kathi

[Guest guest]

i craved sweets,never did before like those cherry pies 2 for a buck 38 grams of

fat per goodness.lol do what ever you need to get thru it.i made alot of special

brownies,yummy with a kick.lol.i had a very rough time .but would still do it

knowing what i face again.get ready for the ride,and whats great if it gets to

rough at any time you may get off it.but it does us all different.my 1st shot

was nothing no flu nothing 1st 4 went great.you will do fine and my prayers are

with you

Kathi Wallis <k9wallis@...> wrote: Thank you to everyone for

answering my question about what I might feel like eating during treatment.

Tomorrow is the big day-shot #1 of 48, sure seems like a lot. I have some

Ensure, cereal, other things I thought I might be able to keep down. I am

certainly not looking forward to the side effects. But-Just maybe I will be one

of the lucky ones with mild sides. Anyway, I am keeping my head up!

I will tell you how it went

Kathi

[Guest guest]

Good luck Kathi! Hope everything goes smoothly for you. ;-)

Gayle

>

> Thank you to everyone for answering my question about what I might

feel like eating during treatment.

>

> Tomorrow is the big day-shot #1 of 48, sure seems like a lot. I

have some Ensure, cereal, other things I thought I might be able to

keep down. I am certainly not looking forward to the side effects.

But-Just maybe I will be one of the lucky ones with mild sides.

Anyway, I am keeping my head up!

>

> I will tell you how it went

>

> Kathi

>

>

[Guest guest]

I was recently on a campaign to see if I could find a cause for my

fatigue. Even when my other Lyme symptoms are under control, I'm still

tried ALL the time.

My LLMD ordered a blood test that showed I was sensitive to a variety

of foods, notably wheat & rye (but not barley). I asked my PCP for the

celiac disease blood test, which game back negative. Then I went on a

gluten-free diet because the blood test is not always accurate (where

have we heard that before?). BTW, my research on blood tests for food

sensitivities told me that the test could mean 1) that I was sensitive

to the foods, 2) that I ate a lot of the foods, or 3) something else

entirely, but no one was quite sure what.

I stayed on the gluten-free diet for 6 weeks, at which time I saw my

LLMD, who said I should have noticed some improvement and I hadn't. He

suggested I give up all grain-based foods to see if that helped. I

tried it and it didn't.

My latest attempt to improve my fatigue is CoQ10. I'm taking 150 mg a

day and plan to go to 200 mg daily. If I don't feel better, I'll stop

at 200 mg.

I'm skeptical about the effect of diet on Lyme, except that a healthy

diet generally makes one feel better, which can't hurt.

Jessie

>

>

> Now, here's a subject that we don't talk about often.

>

> I'd like to know - instead of what people don't eat - sugar and

carbs - what

> you all do eat!

>

> Do you all stay away from sugar and carbs? Do you see a huge

difference if

> you do?

>

> Joe and I have never stayed away from all sugars and carbs and I

want ot see

> if it makes a big difference....

>

> Looking forward to hearing from you,

>

> Ann

>

>

[Guest guest]

Heh. I *usually* avoid sugar and starches.

Breakfast: Scrambled eggs with bits of onion, maybe some red pepper,

sometimes cheese, cooked in olive oil or (gasp) butter. Some salt,

maybe pepper.

Lunch: A big cobb salad with romaine, bell peppers, cucumber,

assorted salad greens, baby spinach, chicken chunks, carrot shreds, a

little shredded cabbage, broccoli... with olive oil and vinegar

dressing, with a little salt, maybe some almond butter, and sometimes

parmesan cheese, occasionally sweetened a bit with stevia.

Supper: Chicken or fish or beef or pork, often cooked on the grill,

oiled and rubbed with herbs. Usually a veggie or two - broccoli is a

favorite. Zucchini, green beans, cabbage, maybe a stir fry, etc. We

get these Shirataki noodles at Whole Foods, made with soy and yam

fiber - 5 grams of carbohydrate in a package. They stir fry great,

and they're really good in chicken soup (another staple here).

Snacks: macadamia nuts, cheese, and occasionally sliced apple with

cinnamon (the cinnamon prevents a rise in blood sugar).

And, YES. It makes a huge difference. I cheated yesterday -

icecream. Today, sweats and fatigue, ear noises, and last night,

insomnia. I know better, but once in a while, well, I cave in.

D.

" Ann Prow " <aprow@...> wrote:

>

>

> Now, here's a subject that we don't talk about often.

>

> I'd like to know - instead of what people don't eat - sugar and

carbs - what

> you all do eat!

>

> Do you all stay away from sugar and carbs? Do you see a huge

difference if

> you do?

>

> Joe and I have never stayed away from all sugars and carbs and I

want ot see

> if it makes a big difference....

>

> Looking forward to hearing from you,

>

> Ann

>

>

[Guest guest]

Thanks - sounds good.... Ann

-- [ ] Re: Diet

Heh. I *usually* avoid sugar and starches.

Breakfast: Scrambled eggs with bits of onion, maybe some red pepper,

sometimes cheese, cooked in olive oil or (gasp) butter. Some salt,

maybe pepper.

Lunch: A big cobb salad with romaine, bell peppers, cucumber,

assorted salad greens, baby spinach, chicken chunks, carrot shreds, a

little shredded cabbage, broccoli... with olive oil and vinegar

dressing, with a little salt, maybe some almond butter, and sometimes

parmesan cheese, occasionally sweetened a bit with stevia.

Supper: Chicken or fish or beef or pork, often cooked on the grill,

oiled and rubbed with herbs. Usually a veggie or two - broccoli is a

favorite. Zucchini, green beans, cabbage, maybe a stir fry, etc. We

get these Shirataki noodles at Whole Foods, made with soy and yam

fiber - 5 grams of carbohydrate in a package. They stir fry great,

and they're really good in chicken soup (another staple here).

Snacks: macadamia nuts, cheese, and occasionally sliced apple with

cinnamon (the cinnamon prevents a rise in blood sugar).

And, YES. It makes a huge difference. I cheated yesterday -

icecream. Today, sweats and fatigue, ear noises, and last night,

insomnia. I know better, but once in a while, well, I cave in.

D.

[Guest guest]

Hello Ann and all,

I don't respond to posts much, so I don't know the proper

way to snip/cut posts to only include parts I am responding to.

Sorry!

Since June I have been on a diet to help reduce Candida. It is

a diet that is pretty much the same as the diet for Lyme Disease. No

sugar, yeast, alcohol, vinegar, dairy, am I missing anything? On the

Candida diet I am allowed to have starches like rice and wheat.

I have noticed no difference whatsoever- not even when I have

occasionally cheated and had a no-no. It makes it hard to keep on

the diet when I am not noticing any difference. Hope you have better

luck.

>

> Heh. I *usually* avoid sugar and starches.

>

> Breakfast: Scrambled eggs with bits of onion, maybe some red

pepper,

> sometimes cheese, cooked in olive oil or (gasp) butter. Some salt,

> maybe pepper.

>

> Lunch: A big cobb salad with romaine, bell peppers, cucumber,

> assorted salad greens, baby spinach, chicken chunks, carrot

shreds, a

> little shredded cabbage, broccoli... with olive oil and vinegar

> dressing, with a little salt, maybe some almond butter, and

sometimes

> parmesan cheese, occasionally sweetened a bit with stevia.

>

> Supper: Chicken or fish or beef or pork, often cooked on the

grill,

> oiled and rubbed with herbs. Usually a veggie or two - broccoli

is a

> favorite. Zucchini, green beans, cabbage, maybe a stir fry, etc.

We

> get these Shirataki noodles at Whole Foods, made with soy and yam

> fiber - 5 grams of carbohydrate in a package. They stir fry great,

> and they're really good in chicken soup (another staple here).

>

> Snacks: macadamia nuts, cheese, and occasionally sliced apple with

> cinnamon (the cinnamon prevents a rise in blood sugar).

>

> And, YES. It makes a huge difference. I cheated yesterday -

> icecream. Today, sweats and fatigue, ear noises, and last night,

> insomnia. I know better, but once in a while, well, I cave in.

>

> D.

>

[Guest guest]

Ann,

I'm a vegitarian and don't eat sugar and many carbs. One day, I guess because

of a craving, I ate some ice cream ( I dont' really even like ice cream) within

a short time my pain level spiked.

What do I eat?

Veggies

Fruits

Lots of soy products: Boca sausage, soy dogs, soy hamburgers, etc. (believe

me, lots of these taste so close to the real thing and you don't have to worry

about meat recalls, lol)

Black Bean burgers.

Lugumes, beans, etc

Whole grain brown rice, pasta (Not too much)

My dish will be filled with more of the veggies, cheese and beans with pasta

or rice added in. The opposite of what most people do.

I only drink water except for my one decaf hazelnut DD coffee. (Everyone can

keep from making their 'you know whats in decaf coffee comments. LOL! I know!

Thats my one thing I love to have and with everything else I eat, I ignore all

the warnings. LOL)

I've eaten like this most of my life. Sadly I have always been thin, and very

high energy until getting Lyme. Now I'm almost 200 lbs and spend most of my time

in bed or close to it. Sorry for the downer part.

I always suggest to people who eat sugar and carbs is to just take the sugar

away for 3 days and see how you feel. Don't worry too much about the carbs until

the 4th day, then start mixing what you normally eat for pasta and rice with

whole grain/whole wheat for the rest of the week...gradually switching over

totally. Then start working on the other carbs...chips, cookies, crackers, etc.

Just my thoughts. Some people just have to do the whole thing cold turkey and

get it over with. Beware you will probably get a sugar headache and even the

shakes when doing this. Thats why I always suggest the slow process. Especially

since some people don't at first like the tastes of whole wheat pasta at first.

I can't eat regular now.

Ok, i'm rambling. I guess I have a surge of energy this morning! Thats a good

thing!

Jaye

Ann Prow <aprow@...> wrote:

Now, here's a subject that we don't talk about often.

I'd like to know - instead of what people don't eat - sugar and carbs - what

you all do eat!

Do you all stay away from sugar and carbs? Do you see a huge difference if

you do?

Joe and I have never stayed away from all sugars and carbs and I want ot see

if it makes a big difference....

Looking forward to hearing from you,

Ann

[Guest guest]

Please pardon my dumbness, but what exactly is CoQ10? Is it a supplement, and

can I get it w/o a prescription? Thanx

Jessie MacMillan <jessiemacmillan@...> wrote: I was recently on a

campaign to see if I could find a cause for my

fatigue. Even when my other Lyme symptoms are under control, I'm still

tried ALL the time.

My LLMD ordered a blood test that showed I was sensitive to a variety

of foods, notably wheat & rye (but not barley). I asked my PCP for the

celiac disease blood test, which game back negative. Then I went on a

gluten-free diet because the blood test is not always accurate (where

have we heard that before?). BTW, my research on blood tests for food

sensitivities told me that the test could mean 1) that I was sensitive

to the foods, 2) that I ate a lot of the foods, or 3) something else

entirely, but no one was quite sure what.

I stayed on the gluten-free diet for 6 weeks, at which time I saw my

LLMD, who said I should have noticed some improvement and I hadn't. He

suggested I give up all grain-based foods to see if that helped. I

tried it and it didn't.

My latest attempt to improve my fatigue is CoQ10. I'm taking 150 mg a

day and plan to go to 200 mg daily. If I don't feel better, I'll stop

at 200 mg.

I'm skeptical about the effect of diet on Lyme, except that a healthy

diet generally makes one feel better, which can't hurt.

Jessie

[Guest guest]

Hi Ann:

Here is what I do for my diet. I am somewhat strict about this - because I have

not varied from this for so long, my system is so USED to NOT eating certain

things - I think I would feel sick just from the change

What I did not add below is that I am supposed to make SMOOTHIES out of fruits

and protein powder in the morning....AND, I am supposed to me

juicing...............other than that, here is my diet:

Diet:

Rice bread - raw Tahiti and raw almond butter - bananas

Lentil or Black bean soup (base), I par boil separately garlic cloves, onion,

and red and green cabbage, beets and beet greens - this goes into the cold soup

base- then I add frozen veg (carrots, cauliflower, peas, green beans, lima

beans, mixed vegs.) so that they are NOT cooked, but only thawed and to that I

add about 35 grams of rice protein powder. (Another 35 grams later in the day in

any liquid)

Salad - like raw spinach + other greens, grated carrots, broccoli stocks, pure

virgin cold, cold pressed pure virgin olive oil, apple cider vinegar, and

Flaxseed oil (for Omega 3, 6, & 9).

Also, raw almonds with skin on - apples - oranges - B12 tabs. Coconut oil

(plain) - [has excellent anti-viral/fungal/bacterial properties] - lots of

water. This is about 80% of what I eat - then I have a few other choices - but

NO cooked or processed foods or dairy or wheat/gluten, sugars, starches, fats

(bad fats) (no sugar)- no meat. 1 to 2 glasses of red wine/day.

Specifically for detoxification, I take 3 tabs. of Chlorella a day (can take 6

for optimum treatment) and two teaspoons (in a liquid) of MarleyMax a day.

Glen from NJ

[ ] Diet

Now, here's a subject that we don't talk about often.

I'd like to know - instead of what people don't eat - sugar and carbs - what

you all do eat!

Do you all stay away from sugar and carbs? Do you see a huge difference if

you do?

Joe and I have never stayed away from all sugars and carbs and I want ot see

if it makes a big difference....

Looking forward to hearing from you,

Ann

[Guest guest]

CoQ10 is a supplement.

From http://altmedicine.about.com/cs/supplements/a/CoenzymeQ10.htm

CoQ10 is a naturally-occuring compound found in every cell in the

body. CoQ10's alternate name, ubiquinone, comes from the word

ubiquitous, which means " found everywhere. "

CoQ10 plays a key role in producing energy in the mitochondria, the

part of a cell responsible for the production of energy in the form of

ATP.

Why People Use CoQ10

* Heart failure

* Cardiomyopathy

* Heart Attack Prevention and Recovery

* High Blood Pressure

* Diabetes

* Gum Disease

* Kidney Failure

* Migraine

* Counteract Prescription Drug Effects

* Parkinson's disease

* Weight loss

Jessie

>

>

> In a message dated 9/27/2007 8:41:24 P.M. Mountain Daylight Time,

> mrskfarber@... writes:

>

>

>

>

> Please pardon my dumbness, but what exactly is CoQ10? Is it a

supplement,

> and can I get it w/o a prescription? Thanx

[Guest guest]

Jaye,

Interesting that you eat a lot of soy things - I cannot eat them. When I

take carbs and sugar totally out of my diet, I feel sick - And I need a high

amount of protein to feel well. Cannot eat a lot of wheat - especially not

whole grain.

I, too, was thin and high energy - now not that energetic and 200 lbs. Very

sad. It's changed my life totally.

I went off coke drinks once cold turkey but got over it within 5 days -

sometimes that's better than going slowly - just getting it over with!

Thank you for your post!

Ann

-- Re: [ ] Diet

Ann,

I'm a vegitarian and don't eat sugar and many carbs. One day, I guess

because of a craving, I ate some ice cream ( I dont' really even like ice

cream) within a short time my pain level spiked.

What do I eat?

Veggies

Fruits

Lots of soy products: Boca sausage, soy dogs, soy hamburgers, etc. (believe

me, lots of these taste so close to the real thing and you don't have to

worry about meat recalls, lol)

Black Bean burgers.

Lugumes, beans, etc

Whole grain brown rice, pasta (Not too much)

My dish will be filled with more of the veggies, cheese and beans with pasta

or rice added in. The opposite of what most people do.

I only drink water except for my one decaf hazelnut DD coffee. (Everyone can

keep from making their 'you know whats in decaf coffee comments. LOL! I

know! Thats my one thing I love to have and with everything else I eat, I

ignore all the warnings. LOL)

I've eaten like this most of my life. Sadly I have always been thin, and

very high energy until getting Lyme. Now I'm almost 200 lbs and spend most

of my time in bed or close to it. Sorry for the downer part.

I always suggest to people who eat sugar and carbs is to just take the sugar

away for 3 days and see how you feel. Don't worry too much about the carbs

until the 4th day, then start mixing what you normally eat for pasta and

rice with whole grain/whole wheat for the rest of the week...gradually

switching over totally. Then start working on the other carbs...chips,

cookies, crackers, etc.

Just my thoughts. Some people just have to do the whole thing cold turkey

and get it over with. Beware you will probably get a sugar headache and even

the shakes when doing this. Thats why I always suggest the slow process.

Especially since some people don't at first like the tastes of whole wheat

pasta at first. I can't eat regular now.

Ok, i'm rambling. I guess I have a surge of energy this morning! Thats a

good thing!

Jaye

[Guest guest]

,

Interesting you have not seen a difference. I cannot eat much wheat - one

slice of bread perhaps a day, and I eat potato bread when has a little less

wheat.

I would think it would be difficult to stay on a diet if you don't feel a

difference.

Ann

-- [ ] Re: Diet

Hello Ann and all,

I don't respond to posts much, so I don't know the proper

way to snip/cut posts to only include parts I am responding to.

Sorry!

Since June I have been on a diet to help reduce Candida. It is

a diet that is pretty much the same as the diet for Lyme Disease. No

sugar, yeast, alcohol, vinegar, dairy, am I missing anything? On the

Candida diet I am allowed to have starches like rice and wheat.

I have noticed no difference whatsoever- not even when I have

occasionally cheated and had a no-no. It makes it hard to keep on

the diet when I am not noticing any difference. Hope you have better

luck.