Am I Crazy?

[Guest guest]

I know my doc at first said he did not think it was arthritis cuz it moved so

much and was not symmetrical.

But he did write for dx at first poly arthritis ----or maybe he did write

migratory? Curious to hear what search comes up with. the other thing is it is

my tendons and people keep saying no, it should be in joints. UG.

- In , Sue <marysue@t...> wrote:

> My RA was exactly like that when it first started. I think a good name

> for it would be migratory arthritis. I wonder if there is such a thing.

> I'll have to google it.

>

> Sue

>

> On Saturday, April 23, 2005, at 06:45 PM, dreamer_plus wrote:

> >

> > Does anyone else have it where the problem moves from spot to spot

> > every few days?

> > Early last week my hip was flaring REALLY extremely. I could NOT move

> > it in any direction at all, the entire area where the leg of

> > underpants would be was swollen. That lasted 2 full days. It receded

> > as new pain began in my achilles tendon area on the other side. as

> > that slowly subsided, both ring fingers contracted and huge lumps

> > formed in my palms. (tendons, tendon sheaths- like trigger finger)

> > Day to day it moves around from one place to another.

[Guest guest]

I know my doc at first said he did not think it was arthritis cuz it moved so

much and was not symmetrical.

But he did write for dx at first poly arthritis ----or maybe he did write

migratory? Curious to hear what search comes up with. the other thing is it is

my tendons and people keep saying no, it should be in joints. UG.

- In , Sue <marysue@t...> wrote:

> My RA was exactly like that when it first started. I think a good name

> for it would be migratory arthritis. I wonder if there is such a thing.

> I'll have to google it.

>

> Sue

>

> On Saturday, April 23, 2005, at 06:45 PM, dreamer_plus wrote:

> >

> > Does anyone else have it where the problem moves from spot to spot

> > every few days?

> > Early last week my hip was flaring REALLY extremely. I could NOT move

> > it in any direction at all, the entire area where the leg of

> > underpants would be was swollen. That lasted 2 full days. It receded

> > as new pain began in my achilles tendon area on the other side. as

> > that slowly subsided, both ring fingers contracted and huge lumps

> > formed in my palms. (tendons, tendon sheaths- like trigger finger)

> > Day to day it moves around from one place to another.

[Guest guest]

You sure have more on your plate than most. Is it possible to get help

to come in? Do ask your dr about how to go about getting help.

I also have PA (I don't call myself, " Flakin-Gimp for nothing... :-D )

and my pain hits me in different places too. This spring has been

miserable. If I'm not hurting in one place it is in another. I have

found that if my spine is flaring, one or both of the hips are soon to

follow and vice-versa. The feet and ankles flare, once they ease up the

pain just starts heading up the leg. My new spots are my elbows. It

use to be just the hands and wrists now it likes to go to the elbows

too. I have found the right elbow gets worst. I think that has more to

do with being right handed and I use it most, even in a flare up. It is

wicked trying to lift that cup of coffee in the morning. I tried using

the left hand, but learned fast that was bad after dumping the cup of

coffee. No terrible burns thank goodness. I have been practicing with

my left hand with cold items for the days that the right elbow is bad.

The barometer that is on the wall, (I put it up so people don't need to

ask me the age old question of " How are you doing? " ) and I have a

love-hate relationship.

Doesn't it drive you crazy when you think you have the pain under

control and it hits somewhere else? I can't say I'm use to this

migrating pain, but I expect it. The one thing I can't get use to is

being so bloody cranky when I am in pain for more than 3 days in a row.

Trust me, I am being nice in the description!

So as you can see there are more of us with this problem of pain moving

around. There are probably many more of us on the list that do. It

isn't fun is it? Right now I think most of us can't wait til summer

when the flare ups aren't so bad.

Hope you start to feel better soon.

in Ct.

dreamer_plus wrote:

>

> Does anyone else have it where the problem moves from spot to spot

> every few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move

> it in any direction at all, the entire area where the leg of

> underpants would be was swollen. That lasted 2 full days. It receded

> as new pain began in my achilles tendon area on the other side. as

> that slowly subsided, both ring fingers contracted and huge lumps

> formed in my palms. (tendons, tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.

> My formal dx is psoriatic arthritis, altho I only had a couple months

> of very mild psoriasis on my tummy. I began mtx last year after 2

> years of not being able to afford any meds. I only have Rx for

> ibuprofen for pain, not sure WHY my rheumy is not more aggressive on

> pain control.

> I AM going to demand more aggressive treatment, I have been suffering

> this profoundly, out of my head literally delierious from pain for 3

> years, now. It seems MUCH worse in spring, and in fall, less worse in

> mid winter and much better in summer unless it is thunderstormy.

> My husband is very very ill, and I have 2 disabled kids, I cannot keep

> living this way if there is something that can be done.

> But I seldom hear people say their problem areas are in different

> places on different days.

> My fingers, toes and wrists are almost always like sausages, stiff

> swollen, often unuseable, but this other stuff moves so much.

> Does anyone else have this or is it just me?

> and this level of pain blows my mind. I had 3 kids with NO meds at

> all, had knee surgery before there was arthroscopic surgery with no

> pain meds after the first 4 hours post surgery. But this pain

> liiterally takes me to my knees and OFTEN.

>

[Guest guest]

You sure have more on your plate than most. Is it possible to get help

to come in? Do ask your dr about how to go about getting help.

I also have PA (I don't call myself, " Flakin-Gimp for nothing... :-D )

and my pain hits me in different places too. This spring has been

miserable. If I'm not hurting in one place it is in another. I have

found that if my spine is flaring, one or both of the hips are soon to

follow and vice-versa. The feet and ankles flare, once they ease up the

pain just starts heading up the leg. My new spots are my elbows. It

use to be just the hands and wrists now it likes to go to the elbows

too. I have found the right elbow gets worst. I think that has more to

do with being right handed and I use it most, even in a flare up. It is

wicked trying to lift that cup of coffee in the morning. I tried using

the left hand, but learned fast that was bad after dumping the cup of

coffee. No terrible burns thank goodness. I have been practicing with

my left hand with cold items for the days that the right elbow is bad.

The barometer that is on the wall, (I put it up so people don't need to

ask me the age old question of " How are you doing? " ) and I have a

love-hate relationship.

Doesn't it drive you crazy when you think you have the pain under

control and it hits somewhere else? I can't say I'm use to this

migrating pain, but I expect it. The one thing I can't get use to is

being so bloody cranky when I am in pain for more than 3 days in a row.

Trust me, I am being nice in the description!

So as you can see there are more of us with this problem of pain moving

around. There are probably many more of us on the list that do. It

isn't fun is it? Right now I think most of us can't wait til summer

when the flare ups aren't so bad.

Hope you start to feel better soon.

in Ct.

dreamer_plus wrote:

>

> Does anyone else have it where the problem moves from spot to spot

> every few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move

> it in any direction at all, the entire area where the leg of

> underpants would be was swollen. That lasted 2 full days. It receded

> as new pain began in my achilles tendon area on the other side. as

> that slowly subsided, both ring fingers contracted and huge lumps

> formed in my palms. (tendons, tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.

> My formal dx is psoriatic arthritis, altho I only had a couple months

> of very mild psoriasis on my tummy. I began mtx last year after 2

> years of not being able to afford any meds. I only have Rx for

> ibuprofen for pain, not sure WHY my rheumy is not more aggressive on

> pain control.

> I AM going to demand more aggressive treatment, I have been suffering

> this profoundly, out of my head literally delierious from pain for 3

> years, now. It seems MUCH worse in spring, and in fall, less worse in

> mid winter and much better in summer unless it is thunderstormy.

> My husband is very very ill, and I have 2 disabled kids, I cannot keep

> living this way if there is something that can be done.

> But I seldom hear people say their problem areas are in different

> places on different days.

> My fingers, toes and wrists are almost always like sausages, stiff

> swollen, often unuseable, but this other stuff moves so much.

> Does anyone else have this or is it just me?

> and this level of pain blows my mind. I had 3 kids with NO meds at

> all, had knee surgery before there was arthroscopic surgery with no

> pain meds after the first 4 hours post surgery. But this pain

> liiterally takes me to my knees and OFTEN.

>

[Guest guest]

Hi All...

In response to " Am I crazy " .... No you are not crazy!!! Just last week my

right ankle was so swollen I could barely walk for 3 days. Just started up out

of no where...I was fine Wednesday as I went to my Kennel Club meeting, and by

the time it was over I could barley walk. I suffered until Friday when I had to

go to Walwart and pick up some stuff...so I picked up a new Rx my doc gave me

for prescricption strength Naproxim Sodium...AKA Aleve. It seems to be the one

thing that works for me, and by that afternoon I was feeling much better. I even

went on a trip via the airlines to Houston with my wife for a big company party,

and managed okay.

Today...my hips and legs are very sore for all my activity yesterday..but I'll

make it. Sometimes...that's all I concentrate on, just making it through one

more day...an hour at a time.

Larry in New Orleans

__________________________________________________

[Guest guest]

Hi All...

In response to " Am I crazy " .... No you are not crazy!!! Just last week my

right ankle was so swollen I could barely walk for 3 days. Just started up out

of no where...I was fine Wednesday as I went to my Kennel Club meeting, and by

the time it was over I could barley walk. I suffered until Friday when I had to

go to Walwart and pick up some stuff...so I picked up a new Rx my doc gave me

for prescricption strength Naproxim Sodium...AKA Aleve. It seems to be the one

thing that works for me, and by that afternoon I was feeling much better. I even

went on a trip via the airlines to Houston with my wife for a big company party,

and managed okay.

Today...my hips and legs are very sore for all my activity yesterday..but I'll

make it. Sometimes...that's all I concentrate on, just making it through one

more day...an hour at a time.

Larry in New Orleans

__________________________________________________

[Guest guest]

If you are crazy then there are a bunch of us that are.

That is exactly how my RA started. The article that I

saw on Google said that 50 percent of the patients with

palindromic rheumatism recover and the other 50 per-

cent go on to develop RA.

I really did think I was crazy. I could not think of any

disease that I had ever heard of that MOVED. Sorry

to say that I am one of the 50% that has gone on to

develop RA.

At least I could breathe a small sigh of relief that I wasn't

crazy. Being in the condition I am today, I think maybe I

would rather have had the " crazy " diagnosis...LOL :-)

Hang in there.

Hugs,

Pat-Ks

[Guest guest]

If you are crazy then there are a bunch of us that are.

That is exactly how my RA started. The article that I

saw on Google said that 50 percent of the patients with

palindromic rheumatism recover and the other 50 per-

cent go on to develop RA.

I really did think I was crazy. I could not think of any

disease that I had ever heard of that MOVED. Sorry

to say that I am one of the 50% that has gone on to

develop RA.

At least I could breathe a small sigh of relief that I wasn't

crazy. Being in the condition I am today, I think maybe I

would rather have had the " crazy " diagnosis...LOL :-)

Hang in there.

Hugs,

Pat-Ks

[Guest guest]

RA does affect the tendons, too. The pinkie finger on my right hand is

crooked, but leaning in toward my thumb instead of the other way. My

rheumy said something happened to the tendon on one side, and that

pulled the finger crooked. I think he said the same thing about this

protrusion on my foot. Sue

On Sunday, April 24, 2005, at 01:51 AM, dreamer_plus wrote:

>

> I know my doc at first said he did not think it was arthritis cuz it

> moved so much and was not symmetrical.

> But he did write for dx at first poly arthritis ----or maybe he did

> write migratory? Curious to hear what search comes up with. the

> other thing is it is my tendons and people keep saying no, it should

> be in joints. UG.

>

[Guest guest]

RA does affect the tendons, too. The pinkie finger on my right hand is

crooked, but leaning in toward my thumb instead of the other way. My

rheumy said something happened to the tendon on one side, and that

pulled the finger crooked. I think he said the same thing about this

protrusion on my foot. Sue

On Sunday, April 24, 2005, at 01:51 AM, dreamer_plus wrote:

>

> I know my doc at first said he did not think it was arthritis cuz it

> moved so much and was not symmetrical.

> But he did write for dx at first poly arthritis ----or maybe he did

> write migratory? Curious to hear what search comes up with. the

> other thing is it is my tendons and people keep saying no, it should

> be in joints. UG.

>

[Guest guest]

Yes, Sue, and diabetes affects one's tendons, too.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Re: am I crazy?

>

> RA does affect the tendons, too. The pinkie finger on my right hand is

> crooked, but leaning in toward my thumb instead of the other way. My

> rheumy said something happened to the tendon on one side, and that

> pulled the finger crooked. I think he said the same thing about this

> protrusion on my foot. Sue

>

> On Sunday, April 24, 2005, at 01:51 AM, dreamer_plus wrote:

>>

>> I know my doc at first said he did not think it was arthritis cuz it

>> moved so much and was not symmetrical.

>> But he did write for dx at first poly arthritis ----or maybe he did

>> write migratory? Curious to hear what search comes up with. the

>> other thing is it is my tendons and people keep saying no, it should

>> be in joints. UG.

[Guest guest]

Yes, Sue, and diabetes affects one's tendons, too.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Re: am I crazy?

>

> RA does affect the tendons, too. The pinkie finger on my right hand is

> crooked, but leaning in toward my thumb instead of the other way. My

> rheumy said something happened to the tendon on one side, and that

> pulled the finger crooked. I think he said the same thing about this

> protrusion on my foot. Sue

>

> On Sunday, April 24, 2005, at 01:51 AM, dreamer_plus wrote:

>>

>> I know my doc at first said he did not think it was arthritis cuz it

>> moved so much and was not symmetrical.

>> But he did write for dx at first poly arthritis ----or maybe he did

>> write migratory? Curious to hear what search comes up with. the

>> other thing is it is my tendons and people keep saying no, it should

>> be in joints. UG.

[Guest guest]

And, so, between the two diseases, I get a lot of little perks, LOL. Sue

On Sunday, April 24, 2005, at 01:15 PM, wrote:

>

> Yes, Sue, and diabetes affects one's tendons, too.

[Guest guest]

And, so, between the two diseases, I get a lot of little perks, LOL. Sue

On Sunday, April 24, 2005, at 01:15 PM, wrote:

>

> Yes, Sue, and diabetes affects one's tendons, too.

[Guest guest]

Yeah, Sue, lucky you!

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Re: am I crazy?

>

> And, so, between the two diseases, I get a lot of little perks, LOL. Sue

>

> On Sunday, April 24, 2005, at 01:15 PM, wrote:

>>

>> Yes, Sue, and diabetes affects one's tendons, too.

[Guest guest]

Yeah, Sue, lucky you!

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Re: am I crazy?

>

> And, so, between the two diseases, I get a lot of little perks, LOL. Sue

>

> On Sunday, April 24, 2005, at 01:15 PM, wrote:

>>

>> Yes, Sue, and diabetes affects one's tendons, too.

[Guest guest]

,

There are others here who can better answer your question regarding the number of surgeries.

I can speak to what you describe as an end all procedure. After dealing with two myotomies and all the problems you described my Dr. and I made the decision to have an esophagectomy that was 15 years ago I was 59 at the time I am now 74. I am doing very well at this point in my life I have to watch the quantity of food I eat as I don't have the capacity I had pre-esophagectomy. I can eat most anything and have no trouble swallowing though I still drink a lot of water a habit I formed over the years living with achalasia. The criteria I used as advised by my Dr. on deciding when the time woul be right for the esophagectomy is when the quality of your life reaches a point where you say to yourself I simply can't live this way anymore.

F

[Guest guest]

,

Who is your GI doctor? Is he highly specialized in achalasia? I am wondering if

all you might need is a dilation, but you should have this done by someone who

is very experienced with giving dilations post myotomy. I had one year before

last and I'm doing much better. I do have to be careful with acid reflux now as

a result, but it will hopefully last a long time to come!

I am in No CA and Dr. Ostroff did my dilation at UCSF. Dr Marco Patti had

recommended only 3 doctors in the US who were specialized to do a post myotomy

dilation. Dr Ostroff at UC San Francisco, Dr Richter at Temple University in

Pennsylvania and Dr Vaezi at Vanderbilt University Medical Center in

Nashville, TN.

These GI doctors are the best of the best who not only specialize in achalasia,

but they also specialize in post myotomy dilations.

Vaezi, MD

https://medschool.mc.vanderbilt.edu/facultydata/php_files/show_faculty.php?id3=1\

6099

Richter, MD

http://www.f1000medicine.com/about/biography/1767076041802995

Dr Ostroff, MD

http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=92\

2

I still need to wash down all my food with water as most of us do. We no longer

have any peristalsis and rely on gravity and liquids to help the food along its

way so it won't ever be perfect for us again but hopefully as close to it as

possible. As young as you are I think I would look into having a dilation before

thinking about more surgery.

I hope this helps.

Sandi in No CA

-------------- Original message ----------------------

From: " brianvincent24 " <brianvincent24@...>

> Hello to this wonderful group first of all. I love reading what every

> one has to say. Now, as for me long story short.

> I had my first surgery almost 4 years ago to correct my achalasia. It

> went wonderful for almost 3 years. Then the symptoms returned and I

> had to do all the tests again before my surgeon would do a second

> surgery. I had my second surgery this past January 2007. Here we are

> in late September and everything is slowly regressing back. I need

> liquid to get food down. I had a few times over the summer where the

> food came back up. And the chest pains! They are worse and more

> frequent now than before my FIRST surgery. I had such a dilemma

> calling my surgeon. I didn't want to seem like I had nothing better to

> do or was exaggerating my symptoms. My wife finally got me to call and

> I made an appt for October 19.

>

> So my question is this I guess. Has anyone had more than 2 surgeries?

> What else is there they could do to fix me? I'm only 31 and do not

> want to keep getting cut open every 3 years. Is there an end all

> procedure after all else fails?

>

> Any information anyone could give would be so appreciated.

> I just miss the days of eating fresh fruit without my throat closing.

> I miss drinking a cold beverage without it getting stuck. I miss being

> able to eat a meal and not having to worry if I have enough to drink

> to force my food down. Now don't get me wrong, the food eventually

> goes down. I was just hoping that after surgery it would feel as close

> to normal. Will I ever be able to feel like that?

>

> Again thanks for all your time and I will keep you posted on what

> happens on the 19 of October at the docs.

>

> Peace

>

>

>

Hello to this wonderful group first of all. I love reading what every

one has to say. Now, as for me long story short.

I had my first surgery almost 4 years ago to correct my achalasia. It

went wonderful for almost 3 years. Then the symptoms returned and I

had to do all the tests again before my surgeon would do a second

surgery. I had my second surgery this past January 2007. Here we are

in late September and everything is slowly regressing back. I need

liquid to get food down. I had a few times over the summer where the

food came back up. And the chest pains! They are worse and more

frequent now than before my FIRST surgery. I had such a dilemma

calling my surgeon. I didn't want to seem like I had nothing better to

do or was exaggerating my symptoms. My wife finally got me to call and

I made an appt for October 19.

So my question is this I guess. Has anyone had more than 2 surgeries?

What else is there they could do to fix me? I'm only 31 and do not

want to keep getting cut open every 3 years. Is there an end all

procedure after all else fails?

Any information anyone could give would be so appreciated.

I just miss the days of eating fresh fruit without my throat closing.

I miss drinking a cold beverage without it getting stuck. I miss being

able to eat a meal and not having to worry if I have enough to drink

to force my food down. Now don't get me wrong, the food eventually

goes down. I was just hoping that after surgery it would feel as close

to normal. Will I ever be able to feel like that?

Again thanks for all your time and I will keep you posted on what

happens on the 19 of October at the docs.

Peace

[Guest guest]

Thank you .

We are all different and we all make our own choice based on what we believe is the best course of action for ourselves.

>>".... The criteria I used as advised by my Dr. on deciding when the time would be right for the esophagectomy is when the quality of your life reaches a point where you say to yourself I simply can't live this way anymore. > F>

[Guest guest]

You should ask your doctor about being referred to a specialist about

a dialation.

I had the myotomy w/ dor fundo in April 2005. Except for bread and

pasta I could eat about everything I weanted so long as I ate slowly

and drank a lot of water.

We have to remember that the surgery does not help the E work better,

it only gives the food someplace to go when it finally " hits bottom " .

About a year and a half later I started having problems with food

sticking. The chest pains also started coming back.

I went back to Dr Patti, who did my surgery. he referred me to Dr

Ostroff.

On October 15, 2007 Dr Ostroff will be doing a " tune up " (as Notan

calls it) dialation.

>

> ,

>

> Who is your GI doctor? Is he highly specialized in achalasia? I am

wondering if all you might need is a dilation, but you should have

this done by someone who is very experienced with giving dilations

post myotomy. I had one year before last and I'm doing much better. I

do have to be careful with acid reflux now as a result, but it will

hopefully last a long time to come!

>

> I am in No CA and Dr. Ostroff did my dilation at UCSF. Dr Marco

Patti had recommended only 3 doctors in the US who were specialized

to do a post myotomy dilation. Dr Ostroff at UC San Francisco, Dr

Richter at Temple University in Pennsylvania and Dr Vaezi at

Vanderbilt University Medical Center in Nashville, TN.

>

> These GI doctors are the best of the best who not only specialize

in achalasia, but they also specialize in post myotomy dilations.

>

> Vaezi, MD

>

https://medschool.mc.vanderbilt.edu/facultydata/php_files/show_faculty

..php?id3=16099

>

> Richter, MD

> http://www.f1000medicine.com/about/biography/1767076041802995

>

> Dr Ostroff, MD

> http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?

action=DISPLAYDOCTOR & doctorid=922

>

> I still need to wash down all my food with water as most of us do.

We no longer have any peristalsis and rely on gravity and liquids to

help the food along its way so it won't ever be perfect for us again

but hopefully as close to it as possible. As young as you are I think

I would look into having a dilation before thinking about more

surgery.

>

> I hope this helps.

>

> Sandi in No CA

>

> -------------- Original message ----------------------

> From: " brianvincent24 " <brianvincent24@...>

> > Hello to this wonderful group first of all. I love reading what

every

> > one has to say. Now, as for me long story short.

> > I had my first surgery almost 4 years ago to correct my

achalasia. It

> > went wonderful for almost 3 years. Then the symptoms returned and

I

> > had to do all the tests again before my surgeon would do a second

> > surgery. I had my second surgery this past January 2007. Here we

are

> > in late September and everything is slowly regressing back. I need

> > liquid to get food down. I had a few times over the summer where

the

> > food came back up. And the chest pains! They are worse and more

> > frequent now than before my FIRST surgery. I had such a dilemma

> > calling my surgeon. I didn't want to seem like I had nothing

better to

> > do or was exaggerating my symptoms. My wife finally got me to

call and

> > I made an appt for October 19.

> >

> > So my question is this I guess. Has anyone had more than 2

surgeries?

> > What else is there they could do to fix me? I'm only 31 and do not

> > want to keep getting cut open every 3 years. Is there an end all

> > procedure after all else fails?

> >

> > Any information anyone could give would be so appreciated.

> > I just miss the days of eating fresh fruit without my throat

closing.

> > I miss drinking a cold beverage without it getting stuck. I miss

being

> > able to eat a meal and not having to worry if I have enough to

drink

> > to force my food down. Now don't get me wrong, the food eventually

> > goes down. I was just hoping that after surgery it would feel as

close

> > to normal. Will I ever be able to feel like that?

> >

> > Again thanks for all your time and I will keep you posted on what

> > happens on the 19 of October at the docs.

> >

> > Peace

> >

> >

> >

>

[Guest guest]

Hey Im starting to think so. I lost my health and my boyfriend to the

Toxic Mold growing in the apartment complex i lived in. I am a Flight

Attendant and have not worked for almost three years. I spoke to the

Health Department, Attorney Generals office, E-Mailed the Oprah show,

with no help. The apartment complex says they do not have mold, but

after his death they went into his apartment in full gear, Head to

Toe,and gutted his apartment? He was the SECOND person FOUND DEAD in

their APARTMENT within NINE MONTH'S of each other. Am I Crazy to think

the mold had anything to do with all this? I think not! He was only

35, and healthy, except for the constant cough he had developed.

Please what are we to do? DeLana

[Guest guest]

I was living in an apartment with stachybotrys toxic mold, if i would of stayed

there any longer im positive i would of died. I was there for 1 1/2 years. Your

not crazy, this stuff can kill you no doubt. Have you begun any treatment with

anti fungal meds or cholestyramine yet? These meds def helped me regain my

health after being close to death.

Eli

From: delanaflys & lt;delanaflys@... & gt;

Subject: [] Am I Crazy?

Date: Tuesday, June 17, 2008, 10:40 AM

Hey Im starting to think so. I lost my health and my boyfriend to

the

Toxic Mold growing in the apartment complex i lived in. I am a Flight

Attendant and have not worked for almost three years. I spoke to the

Health Department, Attorney Generals office, E-Mailed the Oprah show,

with no help. The apartment complex says they do not have mold, but

after his death they went into his apartment in full gear, Head to

Toe,and gutted his apartment? He was the SECOND person FOUND DEAD in

their APARTMENT within NINE MONTH'S of each other. Am I Crazy to think

the mold had anything to do with all this? I think not! He was only

35, and healthy, except for the constant cough he had developed.

Please what are we to do? DeLana

[Guest guest]

No, you are not crazy. This kind of thing happens a lot. Its being hushed up.

Its destroying a LOT of lives.

First you need to concentrate on your own safety and health. You wont

be able to do anything

if you are homeless or dead.

What is your current living situation? Is your home safe or is it

moldy or extensively contaminated

with belongings from your previous home?

You need to get away from mold, then, gather as much information about

your health as you

can, and try your best to get better.

Not to say not to try to change things, write letters, etc, but

realize that the system has a lot invested in the

current way of doing things. They know mold is dangerous, its been

known for 4000 years,

but the admitting of it would mean that they would have to fix it.

They don't want to spend the money to fix it. We aren't that important to them.

I would not depend on the system to help you, not to say not to try,

but you will save a lot of tears and

heartache if you realize from the start that not only do they not

care, they want to prevent others from caring too.

To save yourself from insanity, you need to practice

nonattachment.Trying to change the entire system

while you yourself are sick is no more effective than beating your

head against a brick wall.

If you try to take a step back, and make the #1 priority getting

better, and get yourself into a clean, healthy home,

if you are lucky in two or three years you may start to feel semi normal again.

Yes, it takes that long. So get ready for the long haul and

save every penny. It may be a long time before you are healthy enough

to work again. Really, so keep that in mind -its not

simply a matter of removing yourself from mold.. You do that, take

medications to clean the toxins out of your system, and then you start

to recover. If you can't figure out a way to do that, do the best you

can.

But it will be very hard.

Do you have any family you can stay with? We found we had to pare our

spending down to the bare essentials.

On Tue, Jun 17, 2008 at 1:40 PM, delanaflys <delanaflys@...> wrote:

> Hey Im starting to think so. I lost my health and my boyfriend to the

> Toxic Mold growing in the apartment complex i lived in. I am a Flight

> Attendant and have not worked for almost three years. I spoke to the

> Health Department, Attorney Generals office, E-Mailed the Oprah show,

> with no help. The apartment complex says they do not have mold, but

> after his death they went into his apartment in full gear, Head to

> Toe,and gutted his apartment? He was the SECOND person FOUND DEAD in

> their APARTMENT within NINE MONTH'S of each other. Am I Crazy to think

> the mold had anything to do with all this? I think not! He was only

> 35, and healthy, except for the constant cough he had developed.

> Please what are we to do? DeLana

>

>

[Guest guest]

There are lots of options other than daycare.

There are playgroups, library reading times, bookstores, parks to see

who shows up. I did all of these things when my first two were little.

It never crossed my mind that I might need to pay to put them in daycare

for them to interact with other children or that I would need to pay for

them to learn how to interact with other children. We did have to leave

one playgroup though, as one little boy just liked to whack on the

babies at bit too much:)

Kathy

to_marianna wrote:

>

> to think about sending my 21 month old daughter to a daycare, if she

> is not getting

> vaccinates, unfortunately she got all her shots minus the

> mmr/varicella, up until the 12

> month schedule. Any thoughts? I can't keep her away from other

> children for long.

>

>

[Guest guest]

No you are not crazy. My daughter goes once a week, and is not vaccinated. She

did pick up the usual runny nose etc in the beginning. But holds up pretty well

now. A friend who is a clean freak, disinfecting everything in her house as

soon as it gets slightly dirty, had a different story though. Her son had all

vaxes, and was picking up everything that was going. Then the docs were putting

him on antibiotics every time. There were times she was having to leave work

and pick him up every week. The poor kid was always sick. And sometimes it was

so bad he was admitted to hospital. My older daughter went to the same daycare,

and at the same time. Although she had vaxes up to 2 years, she never had

antibiotics. And also never picked up more than a runny nose. She is now 9

years old, and sick about once a year. If your child has a good healthy immune

system, you have nothing to fear. Vaccines are not going to stop children from

picking up illness from daycare. In fact they will make them more likely to get

sick, in my opinion.

Fieldman

Am I Crazy?

to think about sending my 21 month old daughter to a daycare, if she is not

getting

vaccinates, unfortunately she got all her shots minus the mmr/varicella, up

until the 12

month schedule. Any thoughts? I can't keep her away from other children for

long.