Am I Crazy?

[Guest guest]

Hi All,

I am starting to think that I am crazy and do not have LD. A quick

reminder-I've been bitten consistantly by deer ticks for the last 10

yrs. I have EXTREME fatigue, many neuro problems and have been tested to

death for all the other diseases. I have " only " 4 bands on my IGG WB. My

neurologist just called to tell me that I should finish my 3 weeks of

Doxy (100mg, 2x a day), WAIT A MONTH, and see how I feel-I should be OK!

He also told me that my latest (pre-abx) " Lyme Reflex " test was negative

and that a WB wasn't done. Sounds like this was a negatve that

didn't reflex over to a WB.

I am 11 days into my Doxy, which is the 1st Tx I have had, and I feel

LOUSY. I am much more tired and my nerve endings hurt. I am starting to

wonder if this IS Lyme or some other " mysterious " iliness, even though

my daughter has it, my dogs have it, and the 1st confirmed case of LD on

Long Island was my backdoor neighbor. It's amazing how Dr.s can make you

doubt yourself.

I have an appt w/an infectious disease LLMD in 2 weeks. I would

appreciate it if anyone on L.I. who has seen a LLMD other than both Dr.

" B's " would let me know. Also, any support would be greatly appreciated!

Sorry soooooo long, Joan

[Guest guest]

sounds like the doxy. is too low. think 200mg X 3 is the course as i

RECALL. you have LD, wait until you see you LLMD. anyone know of a good

LLMD, non-drB near long island? you need a GOOD one! just because they are

infectious disease does not mean they know Lyme. my ID md here PRETENDED to

know lyme ... a DISASTER!

>From: Namkrats3@... ( Starkman)

>

>Hi All,

>I am starting to think that I am crazy and do not have LD. A quick

>reminder-I've been bitten consistantly by deer ticks for the last 10

>yrs. I have EXTREME fatigue, many neuro problems and have been tested to

>death for all the other diseases. I have " only " 4 bands on my IGG WB. My

>neurologist just called to tell me that I should finish my 3 weeks of

>Doxy (100mg, 2x a day), WAIT A MONTH, and see how I feel-I should be OK!

>He also told me that my latest (pre-abx) " Lyme Reflex " test was negative

>and that a WB wasn't done. Sounds like this was a negatve that

>didn't reflex over to a WB.

>

>I am 11 days into my Doxy, which is the 1st Tx I have had, and I feel

>LOUSY. I am much more tired and my nerve endings hurt. I am starting to

>wonder if this IS Lyme or some other " mysterious " iliness, even though

>my daughter has it, my dogs have it, and the 1st confirmed case of LD on

>Long Island was my backdoor neighbor. It's amazing how Dr.s can make you

>doubt yourself.

>

>I have an appt w/an infectious disease LLMD in 2 weeks. I would

>appreciate it if anyone on L.I. who has seen a LLMD other than both Dr.

> " B's " would let me know. Also, any support would be greatly appreciated!

>Sorry soooooo long, Joan

>

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MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

[Guest guest]

In a message dated 99-05-29 03:54:08 EDT, you write:

<< Namkrats3@... >>

Joan. You are not carzy that is precisely the point. you have Lyme disease

and unfrotunaltey it is extremely difficult to treat. I do think, given your

history that you need much more aggresive treatment than your getting. I go

to a Dr. Ingwer in Plainview LI and he is a wonderful man who will treat

aggresively Feel better-Val

[Guest guest]

--- Starkman <Namkrats3@...> wrote:

> From: Namkrats3@... ( Starkman)

>

> Hi All,

> I am starting to think that I am crazy and do not

> have LD. A quick

> reminder-I've been bitten consistantly by deer ticks

> for the last 10

> yrs. I have EXTREME fatigue, many neuro problems and

> have been tested to

> death for all the other diseases. I have " only " 4

> bands on my IGG WB. My

> neurologist just called to tell me that I should

> finish my 3 weeks of

> Doxy (100mg, 2x a day), WAIT A MONTH, and see how I

> feel-I should be OK!

> He also told me that my latest (pre-abx) " Lyme

> Reflex " test was negative

> and that a WB wasn't done. Sounds like this was a

> negatve that

> didn't reflex over to a WB.

>

> I am 11 days into my Doxy, which is the 1st Tx I

> have had, and I feel

> LOUSY. I am much more tired and my nerve endings

> hurt. I am starting to

> wonder if this IS Lyme or some other " mysterious "

> iliness, even though

> my daughter has it, my dogs have it, and the 1st

> confirmed case of LD on

> Long Island was my backdoor neighbor. It's amazing

> how Dr.s can make you

> doubt yourself.

>

> I have an appt w/an infectious disease LLMD in 2

> weeks. I would

> appreciate it if anyone on L.I. who has seen a LLMD

> other than both Dr.

> " B's " would let me know. Also, any support would be

> greatly appreciated!

> Sorry soooooo long, Joan

>

> Joan-

As far as the IgG mine has always been negative and I DO have Lyme. Was

told by an ID who also supposedly knew about Lyme that all my other

positive labs were " cross-reactive " to something else. Because of that

I went untreated and now am on IV Rocephin when I could have been on

orals. Make sure whoever you see is Lyme LITERATE. My test with my

current doc who is very Lyme literate was asking him questions about

Dr. Bs protocol. He actually hands copies out to his Lyme pts. Knew

right then that I had found a keeper. He is wonderful and has helped me

so much. He is not an ID but is Family Practice with a sub-specialty in

Sports Medicine which is also helpful for the joint and back problems

that go along with Lyme.

I was also almost convinced that I was just crazy. After hearing from 6

different docs that there is nothing wrong with you or you are just

tired and stressed out I almost started to believe it myself. But in

the back of my mind I knew that there had to be some explanation for

all my symptoms and also for all my goofy lab work.

Maybe you should take Dr. Bs protocol with you and if the ID questions

it run for the door and find someone else.

Let us know how you come out and how you are feling.

L

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> the word " subscribe " ( " normal " is the opposite of

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>

_________________________________________________________

[Guest guest]

Hi L.,

Thanks for the advice on bringing Dr. B's protocol with me. I have heard

from a few others on the list that the ID specialist that I will be

seeing in 2 weeks is a LLMD. I am so relieved. I hope it goes well. I

don't have the energy for a confrontation with another doctor!

Thanks for the concern. I will let you all know how it goes.

Take Care, Joan

[Guest guest]

Hi Joan,

I can't help you with the doctor information, but I can help you with the

doubts you are having. I actually got real sick, my head felt funny, and I

had swollen lymph nodes in my neck, I felt around my head and pulled out the

tick......YET....I still was in denial for months after my tick bite that I

could possibly have Lyme disease. I kept getting sicker, went from doctor

to doctor for help. I got on line and saw all the postings from people who

had Lyme disease, learned quite a bit. I still thought I would be one of

those lucky people who would not get the chronic stage. It was not until my

neck was so excruciatingly stiff and I went to my doctor for help, and he

told me it was fibromyalgia (mind you I still had egg sized lymph nodes

too,) did I realize I was not getting better, it must be something more

serious. He wanted me to stop the abx, but I knew in my heart this was an

infection, so I changed docs, he was not much help either, I saw an

Infectious disease doctor, who told me the rashes on my legs were scabies,

even though they tested negative by scrapings under a microscope. Because I

failed his PCR blood test, he dismissed me as a psycho. (I have that in

writing!) I got back on line and with the help of some wonderful people, I

found a good Lyme doctor who made me realize I was not crazy. I sure hope

you can find a good one soon, it is not fun doubting your own sanity.

Big Hugs,

Marta

From: Namkrats3@... ( Starkman)

Hi All,

I am starting to think that I am crazy and do not have LD. A quick

reminder-I've been bitten consistantly by deer ticks for the last 10

yrs. I have EXTREME fatigue, many neuro problems and have been tested to

death for all the other diseases. I have " only " 4 bands on my IGG WB. My

neurologist just called to tell me that I should finish my 3 weeks of

Doxy (100mg, 2x a day), WAIT A MONTH, and see how I feel-I should be OK!

He also told me that my latest (pre-abx) " Lyme Reflex " test was negative

and that a WB wasn't done. Sounds like this was a negatve that

didn't reflex over to a WB.

I am 11 days into my Doxy, which is the 1st Tx I have had, and I feel

LOUSY. I am much more tired and my nerve endings hurt. I am starting to

wonder if this IS Lyme or some other " mysterious " iliness, even though

my daughter has it, my dogs have it, and the 1st confirmed case of LD on

Long Island was my backdoor neighbor. It's amazing how Dr.s can make you

doubt yourself.

I have an appt w/an infectious disease LLMD in 2 weeks. I would

appreciate it if anyone on L.I. who has seen a LLMD other than both Dr.

" B's " would let me know. Also, any support would be greatly appreciated!

Sorry soooooo long, Joan

[Guest guest]

Hi Marta, I hope you

are feeling better today. I know it must be draining to answer all of

our questions an comments. We love you!

I know we all go through alot of agony trying to get a diagnosis and

treatment. Years ago,I actually went into the doctor with a deer tick

embedded into a vein in my arm and told him it was just one of MANY. He

removed it and told me to come back in 6 weeks if I felt ill. I went

back in many times, but was refused treatment because my was

negative.

I am happy to tell you that I am going to see an Infectious disease

specialist, who is supposed to be very Lyme Literate and aggressive

w/tx, according to others on this wonderful list. I'll let you know how

it goes. Take Care, Joan

[Guest guest]

Hi Joan,

Thanks for the kind words, I am working on a way to divide up this list

with other moderators, it makes sense as this list grows daily. It must be

word of mouth as I have not had much time to promote it myself on other

forums. I sympathize with the problems you had getting treated, I don't

know of ONE person who contracted Lyme disease that has not had a bad doctor

story to tell. I wish I would hear of at least one. It's like the lottery,

you never know anyone that actually won big, but you sure hear about them.

I am so glad you have found someone Lyme literate, do keep us all posted.

Hugs,

Marta

Hi Marta,

I hope you

are feeling better today. I know it must be draining to answer all of

our questions an comments. We love you!

I know we all go through alot of agony trying to get a diagnosis and

treatment. Years ago,I actually went into the doctor with a deer tick

embedded into a vein in my arm and told him it was just one of MANY. He

removed it and told me to come back in 6 weeks if I felt ill. I went

back in many times, but was refused treatment because my was

negative.

I am happy to tell you that I am going to see an Infectious disease

specialist, who is supposed to be very Lyme Literate and aggressive

w/tx, according to others on this wonderful list. I'll let you know how

it goes. Take Care, Joan

[Guest guest]

--- Starkman <Namkrats3@...> wrote:

> From: Namkrats3@... ( Starkman)

>

> Hi L.,

>

> Thanks for the advice on bringing Dr. B's protocol

> with me. I have heard

> from a few others on the list that the ID specialist

> that I will be

> seeing in 2 weeks is a LLMD. I am so relieved. I

> hope it goes well. I

> don't have the energy for a confrontation with

> another doctor!

> Thanks for the concern. I will let you all know how

> it goes.

>

> Take Care, Joan

>

> Joan-

I know what you mean about confrontations. By the time I found my doc I

was so beat down that when he said it was Lyme and that he could help

me I almost hugged him.

Take care.

L

>

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>

> They both have communities at ONElist. Find yours

> today!

>

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_________________________________________________________

[Guest guest]

I think you did the right thing. I know when it came to Aidan's eye I kept attributing the swelling to other things and not really bringing it up seriously to the ortho. I should have not doubted myself. Face it, you know your child better than anyone else. And I would hate to see you keep putting the helmet on and his skin breakdown or him be in real pain. It is better that you go in tomorrow and have them tell you it isn't the band...then for you to wait 2 weeks or whenever and have them ask you why didn't you call!!

Deb w/ Aidan

Am I crazy?

Hi All,I was away all weekend for a funeral out of town. I came home and picked up JT and took the kids for their second shot at Christmas pictures. Having a 2 year old and a ten month old look at the camera, smile and sit still is not an easy feat! Anyway, I took JT's band off for the photo's and he had a big red mark on his forehead. I left it off for the pictures and it was still there three hours later. I called CT and they are putting me in tomorrow. However, this is the second time in 5 weeks I have ever called, and I feel like I am "one of those mothers". I feel like they almost do not believe that he has a red mark. Does anyone else ever feel like that? JT could have hit his head at my MIL's house (she said no) but I cannot think of any other reason why JT would have this red mark on his head other than the band. It is about one inch wide and two inches long. So tell me, should I have not called and left the band on? Could it just have been from heat? I would appreciate your feedback. Thanks, Kathy (mom to JT DOC10/30 NJ)For more plagio info

[Guest guest]

Nope, nope, nope.... You are not crazy.

Any redmarks that stick around that long should be a red flag.

You were right to call. Please let us know what they say.

> Hi All,

> I was away all weekend for a funeral out of town. I came home and

> picked up JT and took the kids for their second shot at Christmas

> pictures. Having a 2 year old and a ten month old look at the

camera,

> smile and sit still is not an easy feat! Anyway, I took JT's band

off

> for the photo's and he had a big red mark on his forehead. I left

it

> off for the pictures and it was still there three hours later. I

> called CT and they are putting me in tomorrow. However, this is the

> second time in 5 weeks I have ever called, and I feel like I

am " one

> of those mothers " . I feel like they almost do not believe that he

has

> a red mark. Does anyone else ever feel like that? JT could have hit

> his head at my MIL's house (she said no) but I cannot think of any

> other reason why JT would have this red mark on his head other than

> the band. It is about one inch wide and two inches long. So tell

me,

> should I have not called and left the band on? Could it just have

> been from heat? I would appreciate your feedback. Thanks, Kathy

(mom

> to JT DOC10/30 NJ)

[Guest guest]

Oh Kathy!

You most definitely did the right thing!! I attended a parent

seminar at Cranial Tech's home office in Phx this past spring, they

stressed to us to encourage parents to remove the band whenever they

have bad red spots that do not fade w/i 1 hr of the band being

removed and get into their clinic asap! Which is what you did and

what they are there for!

I'm glad they will see you tomorrow. It sounds like an adjustment is

needed.

And do you know how many times I've taken Abby in to the the Dr for

what I thought was an ear inf which turned out being just " crabby

Abby! " & no ear inf?? LOL That's what being a parent is all about,

being a worry wart! Better to be safe than sorry.

You'll have to show us the pics of your boys when you get em.

Debbie Abby's mom DOCGrad

MI

> Hi All,

> I was away all weekend for a funeral out of town. I came home and

> picked up JT and took the kids for their second shot at Christmas

> pictures. Having a 2 year old and a ten month old look at the

camera,

> smile and sit still is not an easy feat! Anyway, I took JT's band

off

> for the photo's and he had a big red mark on his forehead. I left

it

> off for the pictures and it was still there three hours later. I

> called CT and they are putting me in tomorrow. However, this is the

> second time in 5 weeks I have ever called, and I feel like I

am " one

> of those mothers " . I feel like they almost do not believe that he

has

> a red mark. Does anyone else ever feel like that? JT could have hit

> his head at my MIL's house (she said no) but I cannot think of any

> other reason why JT would have this red mark on his head other than

> the band. It is about one inch wide and two inches long. So tell

me,

> should I have not called and left the band on? Could it just have

> been from heat? I would appreciate your feedback. Thanks, Kathy

(mom

> to JT DOC10/30 NJ)

[Guest guest]

Hi Kathy,

You definitely did the right thing by calling!! ALWAYS call if a red

mark lasts more than an hour. Twice in 5 weeks is nothing, you're

actually lucky. Please let us know what they say tomorrow.

> Hi All,

> I was away all weekend for a funeral out of town. I came home and

> picked up JT and took the kids for their second shot at Christmas

> pictures. Having a 2 year old and a ten month old look at the

camera,

> smile and sit still is not an easy feat! Anyway, I took JT's band

off

> for the photo's and he had a big red mark on his forehead. I left

it

> off for the pictures and it was still there three hours later. I

> called CT and they are putting me in tomorrow. However, this is the

> second time in 5 weeks I have ever called, and I feel like I

am " one

> of those mothers " . I feel like they almost do not believe that he

has

> a red mark. Does anyone else ever feel like that? JT could have hit

> his head at my MIL's house (she said no) but I cannot think of any

> other reason why JT would have this red mark on his head other than

> the band. It is about one inch wide and two inches long. So tell

me,

> should I have not called and left the band on? Could it just have

> been from heat? I would appreciate your feedback. Thanks, Kathy

(mom

> to JT DOC10/30 NJ)

[Guest guest]

Kathy, I'm certain you are not crazy. lol I called CT at least once

a week with questions or concerns and sometimes more than that. They

never got tired of me calling(at least not that I knew of, lol) and

were always very helpful. If your concerned about it, call them and

ask. The worse case scenerio is that JT had a growth spurt and needs

and adjustment. Let us know if you give them a call.

Dustie

> Hi All,

> I was away all weekend for a funeral out of town. I came home and

> picked up JT and took the kids for their second shot at Christmas

> pictures. Having a 2 year old and a ten month old look at the

camera,

> smile and sit still is not an easy feat! Anyway, I took JT's band

off

> for the photo's and he had a big red mark on his forehead. I left

it

> off for the pictures and it was still there three hours later. I

> called CT and they are putting me in tomorrow. However, this is the

> second time in 5 weeks I have ever called, and I feel like I

am " one

> of those mothers " . I feel like they almost do not believe that he

has

> a red mark. Does anyone else ever feel like that? JT could have hit

> his head at my MIL's house (she said no) but I cannot think of any

> other reason why JT would have this red mark on his head other than

> the band. It is about one inch wide and two inches long. So tell

me,

> should I have not called and left the band on? Could it just have

> been from heat? I would appreciate your feedback. Thanks, Kathy

(mom

> to JT DOC10/30 NJ)

[Guest guest]

Kira,

It is entirely possible. The younger they are the faster they improve. Usually infants under 6 months will see noticable improvement in 2 weeks while older kiddos may take 4 weeks. So, good for , way to grow little guy. Let us know how his first check-up goes and if the ortho agrees.

kira_ge2 <kira_ge2@...> wrote:

has been in his Starband since last Tuesday, and I already think his head looks better. Is this possible or just mommy wishful thinking? is 5 1/2 months old.Kira & For more plagio info

[Guest guest]

It is definitely possible for his head to have improved already. At 5 1/2

months is having many growth spurts.

I took weekly photos of Jenna's head at all angles. This helped me see that

the correction was happening and I wasn't imagining it.

Angie AND jENNA(star GRAD)

Am I crazy?

>

>

> has been in his Starband since last Tuesday, and I already think

> his head looks better. Is this possible or just mommy wishful

> thinking? is 5 1/2 months old.

>

> Kira &

>

>

>

>

>

>

> For more plagio info

[Guest guest]

It's totally possible and you aren't crazy! If you have a digital

camera (or even regular but digital is easier) I would take some

progress pics! You can really see the difference. Isn't it GREAT?!

I am so happy for you and .

Sue

Colin F., 13 mos.

STARband grad 9/04

brachy

--- In Plagiocephaly , " kira_ge2 " <kira_ge2@y...>

wrote:

>

> has been in his Starband since last Tuesday, and I already

think

> his head looks better. Is this possible or just mommy wishful

> thinking? is 5 1/2 months old.

>

> Kira &

[Guest guest]

Entirely possible . Have you been taking pictures? Such great

news!

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " kira_ge2 " <kira_ge2@y...>

wrote:

>

> has been in his Starband since last Tuesday, and I already

think

> his head looks better. Is this possible or just mommy wishful

> thinking? is 5 1/2 months old.

>

> Kira &

[Guest guest]

Just read your posting and had to smile. My baby got her Hanger

band three weeks ago and I'm already seeing changes! My daughter

has had such a flat head for so long that the slightest bit of

roundness that I see is making me so happy!

Elaine, mom to Sophia (14 months)

- In Plagiocephaly , " " <sarahhollis@y...> wrote:

>

> Entirely possible . Have you been taking pictures? Such great

> news!

> , mom to Hannah, DOCgrad

> Cape Cod, Ma

>

>

> >

> > has been in his Starband since last Tuesday, and I already

> think

> > his head looks better. Is this possible or just mommy wishful

> > thinking? is 5 1/2 months old.

> >

> > Kira & Ale

[Guest guest]

No! the disease is crazy! You could be in a flare and its just taking

over joints in your body! I have had it in my toes for a day or so and

then it goes to my elbows etc. you should be getting more aggressive

treatment. Where do u live? Do u have help? You sound like you have

enough on your plate!

---NJ

[Guest guest]

No! the disease is crazy! You could be in a flare and its just taking

over joints in your body! I have had it in my toes for a day or so and

then it goes to my elbows etc. you should be getting more aggressive

treatment. Where do u live? Do u have help? You sound like you have

enough on your plate!

---NJ

[Guest guest]

It seems that God gives us our own crosses to bear, and we are supposed to

be able to handle them. It sounds like you're working overtime on yours. I

hope you can get some relief, you need it.

Your troubles sound like my experiences when my RA was at it's peak, and

lasted for over 2 years. Even now, the symptoms move around, maybe 3-4 times

a day sometimes. It used to drive me crazy, not knowing whether I could walk

'there and back'. Sometimes I could walk there but not be able to get back

without help. Many times, I wished I had a leg, arm, hand, etc bad instead

of the RA. Then I could depend on myself to compensate for the disability

and move on. It just doesn't happen... I hope your pains at least settle

down in one area for a while so you can have an emotional break.

Dennis

[ ] am I crazy?

>

>

> Does anyone else have it where the problem moves from spot to spot every

> few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move it

> in any direction at all, the entire area where the leg of underpants would

> be was swollen. That lasted 2 full days. It receded as new pain began in

> my achilles tendon area on the other side. as that slowly subsided, both

> ring fingers contracted and huge lumps formed in my palms. (tendons,

> tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.

> My formal dx is psoriatic arthritis, altho I only had a couple months of

> very mild psoriasis on my tummy. I began mtx last year after 2 years of

> not being able to afford any meds. I only have Rx for ibuprofen for pain,

> not sure WHY my rheumy is not more aggressive on pain control.

> I AM going to demand more aggressive treatment, I have been suffering this

> profoundly, out of my head literally delierious from pain for 3 years,

> now. It seems MUCH worse in spring, and in fall, less worse in mid winter

> and much better in summer unless it is thunderstormy.

> My husband is very very ill, and I have 2 disabled kids, I cannot keep

> living this way if there is something that can be done.

> But I seldom hear people say their problem areas are in different places

> on different days.

> My fingers, toes and wrists are almost always like sausages, stiff

> swollen, often unuseable, but this other stuff moves so much.

> Does anyone else have this or is it just me?

> and this level of pain blows my mind. I had 3 kids with NO meds at all,

> had knee surgery before there was arthroscopic surgery with no pain meds

> after the first 4 hours post surgery. But this pain liiterally takes me

> to my knees and OFTEN.

[Guest guest]

It seems that God gives us our own crosses to bear, and we are supposed to

be able to handle them. It sounds like you're working overtime on yours. I

hope you can get some relief, you need it.

Your troubles sound like my experiences when my RA was at it's peak, and

lasted for over 2 years. Even now, the symptoms move around, maybe 3-4 times

a day sometimes. It used to drive me crazy, not knowing whether I could walk

'there and back'. Sometimes I could walk there but not be able to get back

without help. Many times, I wished I had a leg, arm, hand, etc bad instead

of the RA. Then I could depend on myself to compensate for the disability

and move on. It just doesn't happen... I hope your pains at least settle

down in one area for a while so you can have an emotional break.

Dennis

[ ] am I crazy?

>

>

> Does anyone else have it where the problem moves from spot to spot every

> few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move it

> in any direction at all, the entire area where the leg of underpants would

> be was swollen. That lasted 2 full days. It receded as new pain began in

> my achilles tendon area on the other side. as that slowly subsided, both

> ring fingers contracted and huge lumps formed in my palms. (tendons,

> tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.

> My formal dx is psoriatic arthritis, altho I only had a couple months of

> very mild psoriasis on my tummy. I began mtx last year after 2 years of

> not being able to afford any meds. I only have Rx for ibuprofen for pain,

> not sure WHY my rheumy is not more aggressive on pain control.

> I AM going to demand more aggressive treatment, I have been suffering this

> profoundly, out of my head literally delierious from pain for 3 years,

> now. It seems MUCH worse in spring, and in fall, less worse in mid winter

> and much better in summer unless it is thunderstormy.

> My husband is very very ill, and I have 2 disabled kids, I cannot keep

> living this way if there is something that can be done.

> But I seldom hear people say their problem areas are in different places

> on different days.

> My fingers, toes and wrists are almost always like sausages, stiff

> swollen, often unuseable, but this other stuff moves so much.

> Does anyone else have this or is it just me?

> and this level of pain blows my mind. I had 3 kids with NO meds at all,

> had knee surgery before there was arthroscopic surgery with no pain meds

> after the first 4 hours post surgery. But this pain liiterally takes me

> to my knees and OFTEN.

[Guest guest]

My RA was exactly like that when it first started. I think a good name

for it would be migratory arthritis. I wonder if there is such a thing.

I'll have to google it.

Sue

On Saturday, April 23, 2005, at 06:45 PM, dreamer_plus wrote:

>

> Does anyone else have it where the problem moves from spot to spot

> every few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move

> it in any direction at all, the entire area where the leg of

> underpants would be was swollen. That lasted 2 full days. It receded

> as new pain began in my achilles tendon area on the other side. as

> that slowly subsided, both ring fingers contracted and huge lumps

> formed in my palms. (tendons, tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.

[Guest guest]

My RA was exactly like that when it first started. I think a good name

for it would be migratory arthritis. I wonder if there is such a thing.

I'll have to google it.

Sue

On Saturday, April 23, 2005, at 06:45 PM, dreamer_plus wrote:

>

> Does anyone else have it where the problem moves from spot to spot

> every few days?

> Early last week my hip was flaring REALLY extremely. I could NOT move

> it in any direction at all, the entire area where the leg of

> underpants would be was swollen. That lasted 2 full days. It receded

> as new pain began in my achilles tendon area on the other side. as

> that slowly subsided, both ring fingers contracted and huge lumps

> formed in my palms. (tendons, tendon sheaths- like trigger finger)

> Day to day it moves around from one place to another.