Basic Questions

[Guest guest]

Bill there are no stupid questions among us. love ya...ww/pat Segal wrote: ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Re: basic questions Bill It is

hard to answer these questions with a FOR SURE answer. We ALL react different to things. I had MAJOR fatigue and depression.(hubby had major depression) I had little appitite. But was able to eat.(Hubby had lots of tummy problems) I delt with diareaha often (but hubby didnt) Some dizzy spells for me. (not many if at all for hubby) I had a cough and congestion often on tx. Mine was not dealt with til later. (Hubby didnt) I had few temps other than right after the shot for a few hours. And it rarely reached 101. (no temps for hubby). We both had night sweats and our body would go from hot n sweatty to cold and never have a change in room temp. We had a 2 and 5 yr old when we started tx. WE ALL SURVIVED....somehow. Yes it was rough at times. BUT worth the chance of clearing hep c. Hubby is clear, I am not. I was on tx 2 times. Given a chance yes I WOULD try tx again. I dont want to, but would try to kick dragon a$$. I am disabled but I will

work again some day. Right now I dont cook or even clean. I cant stand up long. Cant walk much. BUT I AM FIGHTIN TO BE ABLE TO DO ALL THIS AGAIN. NEVER give up the fight. hugs d Segal <laloba@....com> wrote: Is it possible for a person to drive a car under these drugs? Yes. I was able to drive. So was my husband when he was on tx. What about eating do you need help or bathroom on bathroom what is more prevalent

Diareaha or Constipation ? The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. I have been reading about bad headaches and Cough's and Chest congesion how do treat this or do you just learn to live with it. Someone mentioned taking your temperature every day all the time ? What about being able to relax enough to read or watch TV or for that mater to walk ? Thank god I don't work.I don't shop or prepare meals should not that make it easier? Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? What

about sleep can .I use this spay Melinonin does that help ? Someone suggested taking the pills in the afternoon instead at night ? I guess what I hear is the pills are worse than the shot...The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. Does this get any easier after say 30days ? I know there are other side effects but I have not heard of them yet? Regards Bill . Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Bill there are no stupid questions among us. love ya...ww/pat Segal wrote: ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Re: basic questions Bill It is

hard to answer these questions with a FOR SURE answer. We ALL react different to things. I had MAJOR fatigue and depression.(hubby had major depression) I had little appitite. But was able to eat.(Hubby had lots of tummy problems) I delt with diareaha often (but hubby didnt) Some dizzy spells for me. (not many if at all for hubby) I had a cough and congestion often on tx. Mine was not dealt with til later. (Hubby didnt) I had few temps other than right after the shot for a few hours. And it rarely reached 101. (no temps for hubby). We both had night sweats and our body would go from hot n sweatty to cold and never have a change in room temp. We had a 2 and 5 yr old when we started tx. WE ALL SURVIVED....somehow. Yes it was rough at times. BUT worth the chance of clearing hep c. Hubby is clear, I am not. I was on tx 2 times. Given a chance yes I WOULD try tx again. I dont want to, but would try to kick dragon a$$. I am disabled but I will

work again some day. Right now I dont cook or even clean. I cant stand up long. Cant walk much. BUT I AM FIGHTIN TO BE ABLE TO DO ALL THIS AGAIN. NEVER give up the fight. hugs d Segal <laloba@....com> wrote: Is it possible for a person to drive a car under these drugs? Yes. I was able to drive. So was my husband when he was on tx. What about eating do you need help or bathroom on bathroom what is more prevalent

Diareaha or Constipation ? The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. I have been reading about bad headaches and Cough's and Chest congesion how do treat this or do you just learn to live with it. Someone mentioned taking your temperature every day all the time ? What about being able to relax enough to read or watch TV or for that mater to walk ? Thank god I don't work.I don't shop or prepare meals should not that make it easier? Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? What

about sleep can .I use this spay Melinonin does that help ? Someone suggested taking the pills in the afternoon instead at night ? I guess what I hear is the pills are worse than the shot...The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. Does this get any easier after say 30days ? I know there are other side effects but I have not heard of them yet? Regards Bill . Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

There

are no stupid questions, except the ones not asked.

/De

Re:

basic questions

ly this was one of my first

questions and I learned a ton since then .When you come your essentially very

Naive .I knew nothing from nothing but now finally i am learning

and the reason I am leaning is that

members are bringing the important factors to light so now I would never ask a

stupid question like that again.

Regards

Bill

[Guest guest]

There

are no stupid questions, except the ones not asked.

/De

Re:

basic questions

ly this was one of my first

questions and I learned a ton since then .When you come your essentially very

Naive .I knew nothing from nothing but now finally i am learning

and the reason I am leaning is that

members are bringing the important factors to light so now I would never ask a

stupid question like that again.

Regards

Bill

[Guest guest]

I have just joined this group and have some basic questions.

I am a senior who lives alone. I have numerous medical problems,

including MCS, Cushing's, heavy metal toxicity, allergies, and CFS.

Yesterday I opened a closet in an unused bedroom in my home for

the first time in a year. The smell of mold was overwhelming. The

closet has Christmas ornaments, luggage, boxes of paper and

clothing in it. I quickly closed the door. BTW, there is no plumbing

in the walls anywhere near this closet, which has one wall

along the outside wall of my house. I guess that is good.

Where can I get test plates to determine what kind of mold is in there?

If I move, how do I check a " new " house for toxicities?

Thanks very much,

Josie

__________________________________________________

[Guest guest]

Holy Moldy! I have a Cushings like syndrome but I also developed

Secondary Adrenal Insufficiency. I'm detoxing right now. Can you

afford to get a professional in your house to evaluate the situation.

Have you taken the Contrast Sensitivity Test? It sure sounds like you

have been impacted by toxic mold. Can you move in with someone else

until this is evaluated? Do you own or rent?

Sharon

>

> I have just joined this group and have some basic questions.

>

> I am a senior who lives alone. I have numerous medical problems,

> including MCS, Cushing's, heavy metal toxicity, allergies, and

CFS.

>

> Yesterday I opened a closet in an unused bedroom in my home for

> the first time in a year. The smell of mold was overwhelming.

The

> closet has Christmas ornaments, luggage, boxes of paper and

> clothing in it. I quickly closed the door. BTW, there is no

plumbing

> in the walls anywhere near this closet, which has one wall

> along the outside wall of my house. I guess that is good.

>

> Where can I get test plates to determine what kind of mold is in

there?

>

> If I move, how do I check a " new " house for toxicities?

>

> Thanks very much,

> Josie

>

>

>

> __________________________________________________

>

[Guest guest]

Hi, I just wanted to follow up on my condition and say Thanks again to everyone

on this board who helped me to a full recovery. It's been over 2 years now and

my wife, son and I have been fully symptom free. It was a long windy road to

recovery but it was well worth the struggle.

Thank you all so very much!

Be well,

>

>

>

> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> have been feeling tired (I'm sure you know the feeling). I went to

> the Doctor and he had me go for blood tests.

>

> I got my blood test back from the Dr today. He said it showed a

> positive for Lyme (the first six months, but negative for Lyme after

> six months). He believes that we have a very good chance of

> treating it with antibiotics for a month. On his advice I'm still

> going to follow up with a Neurologist. He advised me to go to the

> Neurologist and not to tell him about the results of the Lyme test.

>

> My question for the group is does anyone know the probability of a

> false positive testing for Lyme. The Lyme tests were Lyme Disease

> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

>

> Anyway, I've been feeling a little better everyday and started

> amoxicillin twice a day for the next 30 days.

>

> Thanks for everyone's support!

>

>

>

[Guest guest]

Hi, I just wanted to follow up on my condition and say Thanks again to everyone

on this board who helped me to a full recovery. It's been over 2 years now and

my wife, son and I have been fully symptom free. It was a long windy road to

recovery but it was well worth the struggle.

Thank you all so very much!

Be well,

>

>

>

> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> have been feeling tired (I'm sure you know the feeling). I went to

> the Doctor and he had me go for blood tests.

>

> I got my blood test back from the Dr today. He said it showed a

> positive for Lyme (the first six months, but negative for Lyme after

> six months). He believes that we have a very good chance of

> treating it with antibiotics for a month. On his advice I'm still

> going to follow up with a Neurologist. He advised me to go to the

> Neurologist and not to tell him about the results of the Lyme test.

>

> My question for the group is does anyone know the probability of a

> false positive testing for Lyme. The Lyme tests were Lyme Disease

> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

>

> Anyway, I've been feeling a little better everyday and started

> amoxicillin twice a day for the next 30 days.

>

> Thanks for everyone's support!

>

>

>

[Guest guest]

you have been symptom free for 2 years, awesome!!! just a few questions, how

long were you all on treatment for? did the llmd only take you off treatment

when symptoms stopped? and i have a 9yr. old i strongly believe has lyme,

could you possibly please email me privately and tell me what dr. your son

used? did he has co infections? what were his symptoms and how long did it

take him to get well? i would appreciate it more than you know. thanks for

sharing, it is always so encouraging to hear!

danielle

On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote:

>

>

> Hi, I just wanted to follow up on my condition and say Thanks again to

> everyone on this board who helped me to a full recovery. It's been over 2

> years now and my wife, son and I have been fully symptom free. It was a long

> windy road to recovery but it was well worth the struggle.

>

> Thank you all so very much!

>

> Be well,

>

>

>

>

> >

> >

> >

> > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > have been feeling tired (I'm sure you know the feeling). I went to

> > the Doctor and he had me go for blood tests.

> >

> > I got my blood test back from the Dr today. He said it showed a

> > positive for Lyme (the first six months, but negative for Lyme after

> > six months). He believes that we have a very good chance of

> > treating it with antibiotics for a month. On his advice I'm still

> > going to follow up with a Neurologist. He advised me to go to the

> > Neurologist and not to tell him about the results of the Lyme test.

> >

> > My question for the group is does anyone know the probability of a

> > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >

> > Anyway, I've been feeling a little better everyday and started

> > amoxicillin twice a day for the next 30 days.

> >

> > Thanks for everyone's support!

> >

> >

> >

>

>

>

[Guest guest]

you have been symptom free for 2 years, awesome!!! just a few questions, how

long were you all on treatment for? did the llmd only take you off treatment

when symptoms stopped? and i have a 9yr. old i strongly believe has lyme,

could you possibly please email me privately and tell me what dr. your son

used? did he has co infections? what were his symptoms and how long did it

take him to get well? i would appreciate it more than you know. thanks for

sharing, it is always so encouraging to hear!

danielle

On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote:

>

>

> Hi, I just wanted to follow up on my condition and say Thanks again to

> everyone on this board who helped me to a full recovery. It's been over 2

> years now and my wife, son and I have been fully symptom free. It was a long

> windy road to recovery but it was well worth the struggle.

>

> Thank you all so very much!

>

> Be well,

>

>

>

>

> >

> >

> >

> > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > have been feeling tired (I'm sure you know the feeling). I went to

> > the Doctor and he had me go for blood tests.

> >

> > I got my blood test back from the Dr today. He said it showed a

> > positive for Lyme (the first six months, but negative for Lyme after

> > six months). He believes that we have a very good chance of

> > treating it with antibiotics for a month. On his advice I'm still

> > going to follow up with a Neurologist. He advised me to go to the

> > Neurologist and not to tell him about the results of the Lyme test.

> >

> > My question for the group is does anyone know the probability of a

> > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >

> > Anyway, I've been feeling a little better everyday and started

> > amoxicillin twice a day for the next 30 days.

> >

> > Thanks for everyone's support!

> >

> >

> >

>

>

>

[Guest guest]

Please share with me also.................thanks, Diane

________________________________

From: le Handy <kndplus2@...>

Sent: Mon, May 24, 2010 8:25:31 AM

Subject: Re: [ ] Re: Basic questions

you have been symptom free for 2 years, awesome!!! just a few questions, how

long were you all on treatment for? did the llmd only take you off treatment

when symptoms stopped? and i have a 9yr. old i strongly believe has lyme,

could you possibly please email me privately and tell me what dr. your son

used? did he has co infections? what were his symptoms and how long did it

take him to get well? i would appreciate it more than you know. thanks for

sharing, it is always so encouraging to hear!

danielle

On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote:

>

>

> Hi, I just wanted to follow up on my condition and say Thanks again to

> everyone on this board who helped me to a full recovery. It's been over 2

> years now and my wife, son and I have been fully symptom free. It was a long

> windy road to recovery but it was well worth the struggle.

>

> Thank you all so very much!

>

> Be well,

>

>

>

>

> >

> >

> >

> > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > have been feeling tired (I'm sure you know the feeling). I went to

> > the Doctor and he had me go for blood tests.

> >

> > I got my blood test back from the Dr today. He said it showed a

> > positive for Lyme (the first six months, but negative for Lyme after

> > six months). He believes that we have a very good chance of

> > treating it with antibiotics for a month. On his advice I'm still

> > going to follow up with a Neurologist. He advised me to go to the

> > Neurologist and not to tell him about the results of the Lyme test.

> >

> > My question for the group is does anyone know the probability of a

> > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >

> > Anyway, I've been feeling a little better everyday and started

> > amoxicillin twice a day for the next 30 days.

> >

> > Thanks for everyone's support!

> >

> >

> >

>

> 

>

[Guest guest]

Please share with me also.................thanks, Diane

________________________________

From: le Handy <kndplus2@...>

Sent: Mon, May 24, 2010 8:25:31 AM

Subject: Re: [ ] Re: Basic questions

you have been symptom free for 2 years, awesome!!! just a few questions, how

long were you all on treatment for? did the llmd only take you off treatment

when symptoms stopped? and i have a 9yr. old i strongly believe has lyme,

could you possibly please email me privately and tell me what dr. your son

used? did he has co infections? what were his symptoms and how long did it

take him to get well? i would appreciate it more than you know. thanks for

sharing, it is always so encouraging to hear!

danielle

On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote:

>

>

> Hi, I just wanted to follow up on my condition and say Thanks again to

> everyone on this board who helped me to a full recovery. It's been over 2

> years now and my wife, son and I have been fully symptom free. It was a long

> windy road to recovery but it was well worth the struggle.

>

> Thank you all so very much!

>

> Be well,

>

>

>

>

> >

> >

> >

> > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > have been feeling tired (I'm sure you know the feeling). I went to

> > the Doctor and he had me go for blood tests.

> >

> > I got my blood test back from the Dr today. He said it showed a

> > positive for Lyme (the first six months, but negative for Lyme after

> > six months). He believes that we have a very good chance of

> > treating it with antibiotics for a month. On his advice I'm still

> > going to follow up with a Neurologist. He advised me to go to the

> > Neurologist and not to tell him about the results of the Lyme test.

> >

> > My question for the group is does anyone know the probability of a

> > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >

> > Anyway, I've been feeling a little better everyday and started

> > amoxicillin twice a day for the next 30 days.

> >

> > Thanks for everyone's support!

> >

> >

> >

>

> 

>

[Guest guest]

Sure. Most of the good/valid information I used was from some of the great

people in this group.

You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

Here's the framework:

Be diligent but don't get distracted by bad information or anything else that is

going to delay your recovery. Bad information = anything that isn't working for

you. Each of us is different.

Be your own advocate. No one else is going to get you through this.

Don't accept failure; always keep trying until you find what works for you.

Expect professionalism and progress from your Doctors/Treatment Providers.

(again each of us will progress differently, but make sure your progressing or

adapt your plan)

Be polite and positive when you communicate with your Doctors/Treatment

Providers. You don't want to be the annoying patient that doesn't listen.

Doctors/Treatment Providers are people too and its basic human nature to help

people who really want to help themselves. That doesn't make them always right,

if you lose faith in your Doctors/Treatment Providers don't waste your time

arguing with them find the Doctors/Treatment Providers that will help you.

Keep good written documentation of your symptoms.

My LLMD was my quarterback and in charge.

Naturopathic for support, balance abx and expert recommendations on supplements

that were beyond my comprehension. A good Naturopathic Doctor should have no

problem taking direction and working with your LLMD. They should also be

looking at your overall health beyond the Lyme infection.

abx for 18 months for me (treatment continued for 3 months after all of my

symptoms were gone). 6 months for my wife. 4 months for my son.

Drink a lot of water to flush your system and to energize your cells.

The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1.

Exercise, yes I know, I was there. I couldn't walk much less exercise but

forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise

oxygenates your body and raises your core temperature. Also, promotes general

good health and strong immune system.

Measure progress every 3 months because there will be ups and downs.

Be prepared when you go to your LLMD to ask all your questions directly to the

expert. They should take the time to explain everything to you (I used to fax

my questions to the office a day before my doctor visits).

Support groups like this one. But again filter out all of the negativity and

focus on what will work for you.

Surround yourself with people that will help you. Attend seminar if possible

and talk to the people who have had success.

Write down your plan, it was a good way for me to map out what was working for

each of us (wife, son and myself). It also served as a way for me to look at

all of the different components of the plan and remove the components that

weren't work, add more that were (for example, I added in exercise 6 months into

treatment) and keep focus on the goal.

For me, the most critical component was my relationship with my LLMD. My LLMD

was the expert in charge and all of my other treatments were supplemental to my

LLMD's treatment plan and every 3 months we would access if any changes were

required (I saw my doctor every 6 weeks for updates recovery progress, testing

and results review from previous blood tests..).

I'm sure there are many others who have recovered with many different

treatments. The one common thread that I learned from this board is find out

what works for you, make a plan and focus on getting better.

When I was active in this group one of the things I didn't see was posts from

the many people that did recover. As much as I longed for their stories; one of

the wise people in this group correctly told me that if you watch carefully many

people use information in groups like this, get educated and then recover and go

on with their lives. That's one reason why I wasn't seeing the success stories

I longed to read. That's why I wanted to circle back around to this great group

and say Thanks to all that helped me along my path to recovery and let everyone

know that my family and I have been symptom free for over 2 years.

Be well,

> > >

> > >

> > >

> > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > > have been feeling tired (I'm sure you know the feeling). I went to

> > > the Doctor and he had me go for blood tests.

> > >

> > > I got my blood test back from the Dr today. He said it showed a

> > > positive for Lyme (the first six months, but negative for Lyme after

> > > six months). He believes that we have a very good chance of

> > > treating it with antibiotics for a month. On his advice I'm still

> > > going to follow up with a Neurologist. He advised me to go to the

> > > Neurologist and not to tell him about the results of the Lyme test.

> > >

> > > My question for the group is does anyone know the probability of a

> > > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> > >

> > > Anyway, I've been feeling a little better everyday and started

> > > amoxicillin twice a day for the next 30 days.

> > >

> > > Thanks for everyone's support!

> > >

> > >

> > >

> >

> > 

> >

>

>

>

[Guest guest]

Sure. Most of the good/valid information I used was from some of the great

people in this group.

You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

Here's the framework:

Be diligent but don't get distracted by bad information or anything else that is

going to delay your recovery. Bad information = anything that isn't working for

you. Each of us is different.

Be your own advocate. No one else is going to get you through this.

Don't accept failure; always keep trying until you find what works for you.

Expect professionalism and progress from your Doctors/Treatment Providers.

(again each of us will progress differently, but make sure your progressing or

adapt your plan)

Be polite and positive when you communicate with your Doctors/Treatment

Providers. You don't want to be the annoying patient that doesn't listen.

Doctors/Treatment Providers are people too and its basic human nature to help

people who really want to help themselves. That doesn't make them always right,

if you lose faith in your Doctors/Treatment Providers don't waste your time

arguing with them find the Doctors/Treatment Providers that will help you.

Keep good written documentation of your symptoms.

My LLMD was my quarterback and in charge.

Naturopathic for support, balance abx and expert recommendations on supplements

that were beyond my comprehension. A good Naturopathic Doctor should have no

problem taking direction and working with your LLMD. They should also be

looking at your overall health beyond the Lyme infection.

abx for 18 months for me (treatment continued for 3 months after all of my

symptoms were gone). 6 months for my wife. 4 months for my son.

Drink a lot of water to flush your system and to energize your cells.

The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1.

Exercise, yes I know, I was there. I couldn't walk much less exercise but

forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise

oxygenates your body and raises your core temperature. Also, promotes general

good health and strong immune system.

Measure progress every 3 months because there will be ups and downs.

Be prepared when you go to your LLMD to ask all your questions directly to the

expert. They should take the time to explain everything to you (I used to fax

my questions to the office a day before my doctor visits).

Support groups like this one. But again filter out all of the negativity and

focus on what will work for you.

Surround yourself with people that will help you. Attend seminar if possible

and talk to the people who have had success.

Write down your plan, it was a good way for me to map out what was working for

each of us (wife, son and myself). It also served as a way for me to look at

all of the different components of the plan and remove the components that

weren't work, add more that were (for example, I added in exercise 6 months into

treatment) and keep focus on the goal.

For me, the most critical component was my relationship with my LLMD. My LLMD

was the expert in charge and all of my other treatments were supplemental to my

LLMD's treatment plan and every 3 months we would access if any changes were

required (I saw my doctor every 6 weeks for updates recovery progress, testing

and results review from previous blood tests..).

I'm sure there are many others who have recovered with many different

treatments. The one common thread that I learned from this board is find out

what works for you, make a plan and focus on getting better.

When I was active in this group one of the things I didn't see was posts from

the many people that did recover. As much as I longed for their stories; one of

the wise people in this group correctly told me that if you watch carefully many

people use information in groups like this, get educated and then recover and go

on with their lives. That's one reason why I wasn't seeing the success stories

I longed to read. That's why I wanted to circle back around to this great group

and say Thanks to all that helped me along my path to recovery and let everyone

know that my family and I have been symptom free for over 2 years.

Be well,

> > >

> > >

> > >

> > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > > have been feeling tired (I'm sure you know the feeling). I went to

> > > the Doctor and he had me go for blood tests.

> > >

> > > I got my blood test back from the Dr today. He said it showed a

> > > positive for Lyme (the first six months, but negative for Lyme after

> > > six months). He believes that we have a very good chance of

> > > treating it with antibiotics for a month. On his advice I'm still

> > > going to follow up with a Neurologist. He advised me to go to the

> > > Neurologist and not to tell him about the results of the Lyme test.

> > >

> > > My question for the group is does anyone know the probability of a

> > > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> > >

> > > Anyway, I've been feeling a little better everyday and started

> > > amoxicillin twice a day for the next 30 days.

> > >

> > > Thanks for everyone's support!

> > >

> > >

> > >

> >

> > 

> >

>

>

>

[Guest guest]

, thanks for speaking up. There's a broad perception on this list that

" nobody ever really gets cured of Lyme; you just learn to manage it. " I suspect

that perception has a lot to do with the fact that if those success stories

exist, we simply don't hear about them. As you say: the ones who win the fight

move on.

Which is why I appreciate you coming back around to close the circle. Would you

be willing to answer a few questions?

I've been on abx for about 18 months, and have followed much the same kind of

process you went through. I had a *very* hard winter, backsliding to the point

where I was almost as sick as I was before doing any of this. I was surprised by

it, given that I was into my second year of abx, and the first year had seen a

pretty solid recovery. I'm doing much better again, coming up out of the winter

funk and surprising myself with how much energy I can summon. Since you went

almost as long as I have, I'm wondering if you had similar deep troughs in the

latter stages of treatment. Also: how long had you been sick before getting

diagnosed and treated?

I had a sort dispiriting visit with my LLMD a couple of weeks ago. He took my

long winter decline as not a good sign. He said that we'll continue treatment

until September, which will bring us close to the two-year mark; but he thinks

I've gotten everything I'm going to get from antibiotic treatment, so we'll wrap

it up then and put me on Buehner herbs for maintenance.

I've been picking at the exercise thing since last summer. Gradually, gradually,

it's happening. At least, I can do 15 minutes of yoga and the muscle aches that

result will be the normal kind -- not that horrible Lyme whack that lasts for

days. And I can slow-walk for hours. Perhaps more importantly: I'm living full

days again. Am very tired at the end of them, but the pace seems to be

sustainable without crashes. That's a win.

I'll second your emphasis on finding a good LLMD and letting them run the show.

There is far too little science and far too much quackery around this disease;

our LLMDs are the only experts out there who make it their business to know

what's likely to work. And if you find they don't make sense or you can't trust

them, make a change.

Congratulations. It's good to hear from someone who made it through. (And here's

hoping there are no relapses!)

Sara

On May 24, 2010, at 8:42 30AM, kmcgillycuddy wrote:

> Sure. Most of the good/valid information I used was from some of the great

people in this group.

>

> You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

>

> Here's the framework:

> Be diligent but don't get distracted by bad information or anything else that

is going to delay your recovery. Bad information = anything that isn't working

for you. Each of us is different.

>

> Be your own advocate. No one else is going to get you through this.

> Don't accept failure; always keep trying until you find what works for you.

> Expect professionalism and progress from your Doctors/Treatment Providers.

(again each of us will progress differently, but make sure your progressing or

adapt your plan)

> Be polite and positive when you communicate with your Doctors/Treatment

Providers. You don't want to be the annoying patient that doesn't listen.

Doctors/Treatment Providers are people too and its basic human nature to help

people who really want to help themselves. That doesn't make them always right,

if you lose faith in your Doctors/Treatment Providers don't waste your time

arguing with them find the Doctors/Treatment Providers that will help you.

> Keep good written documentation of your symptoms.

> My LLMD was my quarterback and in charge.

> Naturopathic for support, balance abx and expert recommendations on

supplements that were beyond my comprehension. A good Naturopathic Doctor

should have no problem taking direction and working with your LLMD. They should

also be looking at your overall health beyond the Lyme infection.

> abx for 18 months for me (treatment continued for 3 months after all of my

symptoms were gone). 6 months for my wife. 4 months for my son.

> Drink a lot of water to flush your system and to energize your cells.

> The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1.

>

> Exercise, yes I know, I was there. I couldn't walk much less exercise but

forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise

oxygenates your body and raises your core temperature. Also, promotes general

good health and strong immune system.

>

> Measure progress every 3 months because there will be ups and downs.

> Be prepared when you go to your LLMD to ask all your questions directly to the

expert. They should take the time to explain everything to you (I used to fax

my questions to the office a day before my doctor visits).

>

> Support groups like this one. But again filter out all of the negativity and

focus on what will work for you.

> Surround yourself with people that will help you. Attend seminar if possible

and talk to the people who have had success.

>

> Write down your plan, it was a good way for me to map out what was working for

each of us (wife, son and myself). It also served as a way for me to look at

all of the different components of the plan and remove the components that

weren't work, add more that were (for example, I added in exercise 6 months into

treatment) and keep focus on the goal.

>

> For me, the most critical component was my relationship with my LLMD. My LLMD

was the expert in charge and all of my other treatments were supplemental to my

LLMD's treatment plan and every 3 months we would access if any changes were

required (I saw my doctor every 6 weeks for updates recovery progress, testing

and results review from previous blood tests..).

>

> I'm sure there are many others who have recovered with many different

treatments. The one common thread that I learned from this board is find out

what works for you, make a plan and focus on getting better.

> When I was active in this group one of the things I didn't see was posts from

the many people that did recover. As much as I longed for their stories; one of

the wise people in this group correctly told me that if you watch carefully many

people use information in groups like this, get educated and then recover and go

on with their lives. That's one reason why I wasn't seeing the success stories

I longed to read. That's why I wanted to circle back around to this great group

and say Thanks to all that helped me along my path to recovery and let everyone

know that my family and I have been symptom free for over 2 years.

>

> Be well,

>

>

>

>>>>

>>>>

>>>>

>>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

>>>> have been feeling tired (I'm sure you know the feeling). I went to

>>>> the Doctor and he had me go for blood tests.

>>>>

>>>> I got my blood test back from the Dr today. He said it showed a

>>>> positive for Lyme (the first six months, but negative for Lyme after

>>>> six months). He believes that we have a very good chance of

>>>> treating it with antibiotics for a month. On his advice I'm still

>>>> going to follow up with a Neurologist. He advised me to go to the

>>>> Neurologist and not to tell him about the results of the Lyme test.

>>>>

>>>> My question for the group is does anyone know the probability of a

>>>> false positive testing for Lyme. The Lyme tests were Lyme Disease

>>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

>>>>

>>>> Anyway, I've been feeling a little better everyday and started

>>>> amoxicillin twice a day for the next 30 days.

>>>>

>>>> Thanks for everyone's support!

>>>>

>>>>

>>>>

>>>

>>>

>>>

>>

>>

>>

[Guest guest]

, thanks for speaking up. There's a broad perception on this list that

" nobody ever really gets cured of Lyme; you just learn to manage it. " I suspect

that perception has a lot to do with the fact that if those success stories

exist, we simply don't hear about them. As you say: the ones who win the fight

move on.

Which is why I appreciate you coming back around to close the circle. Would you

be willing to answer a few questions?

I've been on abx for about 18 months, and have followed much the same kind of

process you went through. I had a *very* hard winter, backsliding to the point

where I was almost as sick as I was before doing any of this. I was surprised by

it, given that I was into my second year of abx, and the first year had seen a

pretty solid recovery. I'm doing much better again, coming up out of the winter

funk and surprising myself with how much energy I can summon. Since you went

almost as long as I have, I'm wondering if you had similar deep troughs in the

latter stages of treatment. Also: how long had you been sick before getting

diagnosed and treated?

I had a sort dispiriting visit with my LLMD a couple of weeks ago. He took my

long winter decline as not a good sign. He said that we'll continue treatment

until September, which will bring us close to the two-year mark; but he thinks

I've gotten everything I'm going to get from antibiotic treatment, so we'll wrap

it up then and put me on Buehner herbs for maintenance.

I've been picking at the exercise thing since last summer. Gradually, gradually,

it's happening. At least, I can do 15 minutes of yoga and the muscle aches that

result will be the normal kind -- not that horrible Lyme whack that lasts for

days. And I can slow-walk for hours. Perhaps more importantly: I'm living full

days again. Am very tired at the end of them, but the pace seems to be

sustainable without crashes. That's a win.

I'll second your emphasis on finding a good LLMD and letting them run the show.

There is far too little science and far too much quackery around this disease;

our LLMDs are the only experts out there who make it their business to know

what's likely to work. And if you find they don't make sense or you can't trust

them, make a change.

Congratulations. It's good to hear from someone who made it through. (And here's

hoping there are no relapses!)

Sara

On May 24, 2010, at 8:42 30AM, kmcgillycuddy wrote:

> Sure. Most of the good/valid information I used was from some of the great

people in this group.

>

> You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

>

> Here's the framework:

> Be diligent but don't get distracted by bad information or anything else that

is going to delay your recovery. Bad information = anything that isn't working

for you. Each of us is different.

>

> Be your own advocate. No one else is going to get you through this.

> Don't accept failure; always keep trying until you find what works for you.

> Expect professionalism and progress from your Doctors/Treatment Providers.

(again each of us will progress differently, but make sure your progressing or

adapt your plan)

> Be polite and positive when you communicate with your Doctors/Treatment

Providers. You don't want to be the annoying patient that doesn't listen.

Doctors/Treatment Providers are people too and its basic human nature to help

people who really want to help themselves. That doesn't make them always right,

if you lose faith in your Doctors/Treatment Providers don't waste your time

arguing with them find the Doctors/Treatment Providers that will help you.

> Keep good written documentation of your symptoms.

> My LLMD was my quarterback and in charge.

> Naturopathic for support, balance abx and expert recommendations on

supplements that were beyond my comprehension. A good Naturopathic Doctor

should have no problem taking direction and working with your LLMD. They should

also be looking at your overall health beyond the Lyme infection.

> abx for 18 months for me (treatment continued for 3 months after all of my

symptoms were gone). 6 months for my wife. 4 months for my son.

> Drink a lot of water to flush your system and to energize your cells.

> The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1.

>

> Exercise, yes I know, I was there. I couldn't walk much less exercise but

forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise

oxygenates your body and raises your core temperature. Also, promotes general

good health and strong immune system.

>

> Measure progress every 3 months because there will be ups and downs.

> Be prepared when you go to your LLMD to ask all your questions directly to the

expert. They should take the time to explain everything to you (I used to fax

my questions to the office a day before my doctor visits).

>

> Support groups like this one. But again filter out all of the negativity and

focus on what will work for you.

> Surround yourself with people that will help you. Attend seminar if possible

and talk to the people who have had success.

>

> Write down your plan, it was a good way for me to map out what was working for

each of us (wife, son and myself). It also served as a way for me to look at

all of the different components of the plan and remove the components that

weren't work, add more that were (for example, I added in exercise 6 months into

treatment) and keep focus on the goal.

>

> For me, the most critical component was my relationship with my LLMD. My LLMD

was the expert in charge and all of my other treatments were supplemental to my

LLMD's treatment plan and every 3 months we would access if any changes were

required (I saw my doctor every 6 weeks for updates recovery progress, testing

and results review from previous blood tests..).

>

> I'm sure there are many others who have recovered with many different

treatments. The one common thread that I learned from this board is find out

what works for you, make a plan and focus on getting better.

> When I was active in this group one of the things I didn't see was posts from

the many people that did recover. As much as I longed for their stories; one of

the wise people in this group correctly told me that if you watch carefully many

people use information in groups like this, get educated and then recover and go

on with their lives. That's one reason why I wasn't seeing the success stories

I longed to read. That's why I wanted to circle back around to this great group

and say Thanks to all that helped me along my path to recovery and let everyone

know that my family and I have been symptom free for over 2 years.

>

> Be well,

>

>

>

>>>>

>>>>

>>>>

>>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

>>>> have been feeling tired (I'm sure you know the feeling). I went to

>>>> the Doctor and he had me go for blood tests.

>>>>

>>>> I got my blood test back from the Dr today. He said it showed a

>>>> positive for Lyme (the first six months, but negative for Lyme after

>>>> six months). He believes that we have a very good chance of

>>>> treating it with antibiotics for a month. On his advice I'm still

>>>> going to follow up with a Neurologist. He advised me to go to the

>>>> Neurologist and not to tell him about the results of the Lyme test.

>>>>

>>>> My question for the group is does anyone know the probability of a

>>>> false positive testing for Lyme. The Lyme tests were Lyme Disease

>>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

>>>>

>>>> Anyway, I've been feeling a little better everyday and started

>>>> amoxicillin twice a day for the next 30 days.

>>>>

>>>> Thanks for everyone's support!

>>>>

>>>>

>>>>

>>>

>>>

>>>

>>

>>

>>

[Guest guest]

- THANK YOU THANK YOU THANK YOU THANK YOU!!!!!!!

I needed this, and when I am well I hope that I am not too busy living my life

to come back and give a success story. We need it, as you very well know. I hope

you and your family will have continued health and live lyme free. Thank you

again!

Bridget

> > > >

> > > >

> > > >

> > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > > > have been feeling tired (I'm sure you know the feeling). I went to

> > > > the Doctor and he had me go for blood tests.

> > > >

> > > > I got my blood test back from the Dr today. He said it showed a

> > > > positive for Lyme (the first six months, but negative for Lyme after

> > > > six months). He believes that we have a very good chance of

> > > > treating it with antibiotics for a month. On his advice I'm still

> > > > going to follow up with a Neurologist. He advised me to go to the

> > > > Neurologist and not to tell him about the results of the Lyme test.

> > > >

> > > > My question for the group is does anyone know the probability of a

> > > > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> > > >

> > > > Anyway, I've been feeling a little better everyday and started

> > > > amoxicillin twice a day for the next 30 days.

> > > >

> > > > Thanks for everyone's support!

> > > >

> > > >

> > > >

> > >

> > > 

> > >

> >

> >

> >

[Guest guest]

- THANK YOU THANK YOU THANK YOU THANK YOU!!!!!!!

I needed this, and when I am well I hope that I am not too busy living my life

to come back and give a success story. We need it, as you very well know. I hope

you and your family will have continued health and live lyme free. Thank you

again!

Bridget

> > > >

> > > >

> > > >

> > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > > > have been feeling tired (I'm sure you know the feeling). I went to

> > > > the Doctor and he had me go for blood tests.

> > > >

> > > > I got my blood test back from the Dr today. He said it showed a

> > > > positive for Lyme (the first six months, but negative for Lyme after

> > > > six months). He believes that we have a very good chance of

> > > > treating it with antibiotics for a month. On his advice I'm still

> > > > going to follow up with a Neurologist. He advised me to go to the

> > > > Neurologist and not to tell him about the results of the Lyme test.

> > > >

> > > > My question for the group is does anyone know the probability of a

> > > > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> > > >

> > > > Anyway, I've been feeling a little better everyday and started

> > > > amoxicillin twice a day for the next 30 days.

> > > >

> > > > Thanks for everyone's support!

> > > >

> > > >

> > > >

> > >

> > > 

> > >

> >

> >

> >

[Guest guest]

,

I'm happy to answer your questions. Yes, I did have times when I seemed to

regress. We judged over a period of 3 months as to avoid confusing a

Herximer (sorry for the spelling) positive reaction w/ real regression. My

Doctor would vary the abx treatment depending on my results to attack the

infection from many different angles. My treatment was to last until all of my

symptoms stopped for 3 months, which it did about 15 months into it. After many

ups and downs. I believe I had the infection for at least 5 years and possible

more. I remember a finding a tick in my belly button but at that time I didn't

realize how serious it was so I took no action and forgot about it. We never

found any ticks on my wife or son so I believe, contrary to many, that I gave it

to my wife and we believe my son was born with it.

I'm glad to hear you are exercising because it also helps with the psychological

battle. Exercise is great for your body and mind. So when you think about any

illness, such as this, it will only help. I was, and still am, of the opinion

that you need to attack this infection from many different angles, monitor your

progress and continue to add vectors (different diets, exercise, supplements)

until you find what is best for you. Keep in mind common sense and continue to

do things that you enjoy, to the best of your ability and you will find that it

will help you win the emotional/psychological battle. This is a critical

treatment that I think many people forget.

Be well,

> >>>>

> >>>>

> >>>>

> >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> >>>> have been feeling tired (I'm sure you know the feeling). I went to

> >>>> the Doctor and he had me go for blood tests.

> >>>>

> >>>> I got my blood test back from the Dr today. He said it showed a

> >>>> positive for Lyme (the first six months, but negative for Lyme after

> >>>> six months). He believes that we have a very good chance of

> >>>> treating it with antibiotics for a month. On his advice I'm still

> >>>> going to follow up with a Neurologist. He advised me to go to the

> >>>> Neurologist and not to tell him about the results of the Lyme test.

> >>>>

> >>>> My question for the group is does anyone know the probability of a

> >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease

> >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >>>>

> >>>> Anyway, I've been feeling a little better everyday and started

> >>>> amoxicillin twice a day for the next 30 days.

> >>>>

> >>>> Thanks for everyone's support!

> >>>>

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>

> >>

> >>

[Guest guest]

,

I'm happy to answer your questions. Yes, I did have times when I seemed to

regress. We judged over a period of 3 months as to avoid confusing a

Herximer (sorry for the spelling) positive reaction w/ real regression. My

Doctor would vary the abx treatment depending on my results to attack the

infection from many different angles. My treatment was to last until all of my

symptoms stopped for 3 months, which it did about 15 months into it. After many

ups and downs. I believe I had the infection for at least 5 years and possible

more. I remember a finding a tick in my belly button but at that time I didn't

realize how serious it was so I took no action and forgot about it. We never

found any ticks on my wife or son so I believe, contrary to many, that I gave it

to my wife and we believe my son was born with it.

I'm glad to hear you are exercising because it also helps with the psychological

battle. Exercise is great for your body and mind. So when you think about any

illness, such as this, it will only help. I was, and still am, of the opinion

that you need to attack this infection from many different angles, monitor your

progress and continue to add vectors (different diets, exercise, supplements)

until you find what is best for you. Keep in mind common sense and continue to

do things that you enjoy, to the best of your ability and you will find that it

will help you win the emotional/psychological battle. This is a critical

treatment that I think many people forget.

Be well,

> >>>>

> >>>>

> >>>>

> >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> >>>> have been feeling tired (I'm sure you know the feeling). I went to

> >>>> the Doctor and he had me go for blood tests.

> >>>>

> >>>> I got my blood test back from the Dr today. He said it showed a

> >>>> positive for Lyme (the first six months, but negative for Lyme after

> >>>> six months). He believes that we have a very good chance of

> >>>> treating it with antibiotics for a month. On his advice I'm still

> >>>> going to follow up with a Neurologist. He advised me to go to the

> >>>> Neurologist and not to tell him about the results of the Lyme test.

> >>>>

> >>>> My question for the group is does anyone know the probability of a

> >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease

> >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >>>>

> >>>> Anyway, I've been feeling a little better everyday and started

> >>>> amoxicillin twice a day for the next 30 days.

> >>>>

> >>>> Thanks for everyone's support!

> >>>>

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>

> >>

> >>

[Guest guest]

Thanks for the update - it really means a lot. I know someone

locally who became symptom free after 3 years on abx. It's a looong

process, but you can recover.

Don

On 5/24/2010 11:42 AM, kmcgillycuddy wrote:

> Sure. Most of the good/valid information I used was from some of the great

people in this group.

>

> You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

>

> Here's the framework:

> Be diligent but don't get distracted by bad information or anything else that

is going to delay your recovery. Bad information = anything that isn't working

for you. Each of us is different.

>

[Guest guest]

Thanks for the update - it really means a lot. I know someone

locally who became symptom free after 3 years on abx. It's a looong

process, but you can recover.

Don

On 5/24/2010 11:42 AM, kmcgillycuddy wrote:

> Sure. Most of the good/valid information I used was from some of the great

people in this group.

>

> You can search for kmcgillycuddy to see all of my past threads. I was bad and

went through the normal maze of years of searching with many mis-diagnosis (ALS,

Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...).

>

> Here's the framework:

> Be diligent but don't get distracted by bad information or anything else that

is going to delay your recovery. Bad information = anything that isn't working

for you. Each of us is different.

>

[Guest guest]

:

Can I ask you where you live..how long did you take antibiotics for? Did you

catch it right away>??

Thanks Leanne and Congrats!!

From: @...

Date: Mon, 24 May 2010 13:00:10 +0000

Subject: [ ] Re: Basic questions

Hi, I just wanted to follow up on my condition and say Thanks again to everyone

on this board who helped me to a full recovery. It's been over 2 years now and

my wife, son and I have been fully symptom free. It was a long windy road to

recovery but it was well worth the struggle.

Thank you all so very much!

Be well,

>

>

>

> Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> have been feeling tired (I'm sure you know the feeling). I went to

> the Doctor and he had me go for blood tests.

>

> I got my blood test back from the Dr today. He said it showed a

> positive for Lyme (the first six months, but negative for Lyme after

> six months). He believes that we have a very good chance of

> treating it with antibiotics for a month. On his advice I'm still

> going to follow up with a Neurologist. He advised me to go to the

> Neurologist and not to tell him about the results of the Lyme test.

>

> My question for the group is does anyone know the probability of a

> false positive testing for Lyme. The Lyme tests were Lyme Disease

> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

>

> Anyway, I've been feeling a little better everyday and started

> amoxicillin twice a day for the next 30 days.

>

> Thanks for everyone's support!

>

>

>

_________________________________________________________________

30 days of prizes: Hotmail makes your day easier! Enter Now.

http://go.microsoft.com/?linkid=9729710

[Guest guest]

PLease share with me..thanks

From: dkbmama@...

Date: Mon, 24 May 2010 06:29:49 -0700

Subject: Re: [ ] Re: Basic questions

Please share with me also.................thanks, Diane

________________________________

From: le Handy <kndplus2@...>

Sent: Mon, May 24, 2010 8:25:31 AM

Subject: Re: [ ] Re: Basic questions

you have been symptom free for 2 years, awesome!!! just a few questions, how

long were you all on treatment for? did the llmd only take you off treatment

when symptoms stopped? and i have a 9yr. old i strongly believe has lyme,

could you possibly please email me privately and tell me what dr. your son

used? did he has co infections? what were his symptoms and how long did it

take him to get well? i would appreciate it more than you know. thanks for

sharing, it is always so encouraging to hear!

danielle

On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote:

>

>

> Hi, I just wanted to follow up on my condition and say Thanks again to

> everyone on this board who helped me to a full recovery. It's been over 2

> years now and my wife, son and I have been fully symptom free. It was a long

> windy road to recovery but it was well worth the struggle.

>

> Thank you all so very much!

>

> Be well,

>

>

>

>

> >

> >

> >

> > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > have been feeling tired (I'm sure you know the feeling). I went to

> > the Doctor and he had me go for blood tests.

> >

> > I got my blood test back from the Dr today. He said it showed a

> > positive for Lyme (the first six months, but negative for Lyme after

> > six months). He believes that we have a very good chance of

> > treating it with antibiotics for a month. On his advice I'm still

> > going to follow up with a Neurologist. He advised me to go to the

> > Neurologist and not to tell him about the results of the Lyme test.

> >

> > My question for the group is does anyone know the probability of a

> > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> >

> > Anyway, I've been feeling a little better everyday and started

> > amoxicillin twice a day for the next 30 days.

> >

> > Thanks for everyone's support!

> >

> >

> >

>

>

>

[Guest guest]

le and Diane,

I have sent you a quick email, I have to run out now but I will reply to your

email over the weekend.

Be well,

> > >

> > >

> > >

> > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I

> > > have been feeling tired (I'm sure you know the feeling). I went to

> > > the Doctor and he had me go for blood tests.

> > >

> > > I got my blood test back from the Dr today. He said it showed a

> > > positive for Lyme (the first six months, but negative for Lyme after

> > > six months). He believes that we have a very good chance of

> > > treating it with antibiotics for a month. On his advice I'm still

> > > going to follow up with a Neurologist. He advised me to go to the

> > > Neurologist and not to tell him about the results of the Lyme test.

> > >

> > > My question for the group is does anyone know the probability of a

> > > false positive testing for Lyme. The Lyme tests were Lyme Disease

> > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB.

> > >

> > > Anyway, I've been feeling a little better everyday and started

> > > amoxicillin twice a day for the next 30 days.

> > >

> > > Thanks for everyone's support!

> > >

> > >

> > >

> >

> >

> >

>

>