Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Bill there are no stupid questions among us. love ya...ww/pat Segal wrote: ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Re: basic questions Bill It is hard to answer these questions with a FOR SURE answer. We ALL react different to things. I had MAJOR fatigue and depression.(hubby had major depression) I had little appitite. But was able to eat.(Hubby had lots of tummy problems) I delt with diareaha often (but hubby didnt) Some dizzy spells for me. (not many if at all for hubby) I had a cough and congestion often on tx. Mine was not dealt with til later. (Hubby didnt) I had few temps other than right after the shot for a few hours. And it rarely reached 101. (no temps for hubby). We both had night sweats and our body would go from hot n sweatty to cold and never have a change in room temp. We had a 2 and 5 yr old when we started tx. WE ALL SURVIVED....somehow. Yes it was rough at times. BUT worth the chance of clearing hep c. Hubby is clear, I am not. I was on tx 2 times. Given a chance yes I WOULD try tx again. I dont want to, but would try to kick dragon a$$. I am disabled but I will work again some day. Right now I dont cook or even clean. I cant stand up long. Cant walk much. BUT I AM FIGHTIN TO BE ABLE TO DO ALL THIS AGAIN. NEVER give up the fight. hugs d Segal <laloba@....com> wrote: Is it possible for a person to drive a car under these drugs? Yes. I was able to drive. So was my husband when he was on tx. What about eating do you need help or bathroom on bathroom what is more prevalent Diareaha or Constipation ? The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. I have been reading about bad headaches and Cough's and Chest congesion how do treat this or do you just learn to live with it. Someone mentioned taking your temperature every day all the time ? What about being able to relax enough to read or watch TV or for that mater to walk ? Thank god I don't work.I don't shop or prepare meals should not that make it easier? Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? What about sleep can .I use this spay Melinonin does that help ? Someone suggested taking the pills in the afternoon instead at night ? I guess what I hear is the pills are worse than the shot...The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. Does this get any easier after say 30days ? I know there are other side effects but I have not heard of them yet? Regards Bill . Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Bill there are no stupid questions among us. love ya...ww/pat Segal wrote: ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Re: basic questions Bill It is hard to answer these questions with a FOR SURE answer. We ALL react different to things. I had MAJOR fatigue and depression.(hubby had major depression) I had little appitite. But was able to eat.(Hubby had lots of tummy problems) I delt with diareaha often (but hubby didnt) Some dizzy spells for me. (not many if at all for hubby) I had a cough and congestion often on tx. Mine was not dealt with til later. (Hubby didnt) I had few temps other than right after the shot for a few hours. And it rarely reached 101. (no temps for hubby). We both had night sweats and our body would go from hot n sweatty to cold and never have a change in room temp. We had a 2 and 5 yr old when we started tx. WE ALL SURVIVED....somehow. Yes it was rough at times. BUT worth the chance of clearing hep c. Hubby is clear, I am not. I was on tx 2 times. Given a chance yes I WOULD try tx again. I dont want to, but would try to kick dragon a$$. I am disabled but I will work again some day. Right now I dont cook or even clean. I cant stand up long. Cant walk much. BUT I AM FIGHTIN TO BE ABLE TO DO ALL THIS AGAIN. NEVER give up the fight. hugs d Segal <laloba@....com> wrote: Is it possible for a person to drive a car under these drugs? Yes. I was able to drive. So was my husband when he was on tx. What about eating do you need help or bathroom on bathroom what is more prevalent Diareaha or Constipation ? The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. I have been reading about bad headaches and Cough's and Chest congesion how do treat this or do you just learn to live with it. Someone mentioned taking your temperature every day all the time ? What about being able to relax enough to read or watch TV or for that mater to walk ? Thank god I don't work.I don't shop or prepare meals should not that make it easier? Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? What about sleep can .I use this spay Melinonin does that help ? Someone suggested taking the pills in the afternoon instead at night ? I guess what I hear is the pills are worse than the shot...The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. Does this get any easier after say 30days ? I know there are other side effects but I have not heard of them yet? Regards Bill . Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2007 Report Share Posted August 1, 2007 There are no stupid questions, except the ones not asked. /De Re: basic questions ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2007 Report Share Posted August 1, 2007 There are no stupid questions, except the ones not asked. /De Re: basic questions ly this was one of my first questions and I learned a ton since then .When you come your essentially very Naive .I knew nothing from nothing but now finally i am learning and the reason I am leaning is that members are bringing the important factors to light so now I would never ask a stupid question like that again. Regards Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 I have just joined this group and have some basic questions. I am a senior who lives alone. I have numerous medical problems, including MCS, Cushing's, heavy metal toxicity, allergies, and CFS. Yesterday I opened a closet in an unused bedroom in my home for the first time in a year. The smell of mold was overwhelming. The closet has Christmas ornaments, luggage, boxes of paper and clothing in it. I quickly closed the door. BTW, there is no plumbing in the walls anywhere near this closet, which has one wall along the outside wall of my house. I guess that is good. Where can I get test plates to determine what kind of mold is in there? If I move, how do I check a " new " house for toxicities? Thanks very much, Josie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Holy Moldy! I have a Cushings like syndrome but I also developed Secondary Adrenal Insufficiency. I'm detoxing right now. Can you afford to get a professional in your house to evaluate the situation. Have you taken the Contrast Sensitivity Test? It sure sounds like you have been impacted by toxic mold. Can you move in with someone else until this is evaluated? Do you own or rent? Sharon > > I have just joined this group and have some basic questions. > > I am a senior who lives alone. I have numerous medical problems, > including MCS, Cushing's, heavy metal toxicity, allergies, and CFS. > > Yesterday I opened a closet in an unused bedroom in my home for > the first time in a year. The smell of mold was overwhelming. The > closet has Christmas ornaments, luggage, boxes of paper and > clothing in it. I quickly closed the door. BTW, there is no plumbing > in the walls anywhere near this closet, which has one wall > along the outside wall of my house. I guess that is good. > > Where can I get test plates to determine what kind of mold is in there? > > If I move, how do I check a " new " house for toxicities? > > Thanks very much, > Josie > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi, I just wanted to follow up on my condition and say Thanks again to everyone on this board who helped me to a full recovery. It's been over 2 years now and my wife, son and I have been fully symptom free. It was a long windy road to recovery but it was well worth the struggle. Thank you all so very much! Be well, > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > have been feeling tired (I'm sure you know the feeling). I went to > the Doctor and he had me go for blood tests. > > I got my blood test back from the Dr today. He said it showed a > positive for Lyme (the first six months, but negative for Lyme after > six months). He believes that we have a very good chance of > treating it with antibiotics for a month. On his advice I'm still > going to follow up with a Neurologist. He advised me to go to the > Neurologist and not to tell him about the results of the Lyme test. > > My question for the group is does anyone know the probability of a > false positive testing for Lyme. The Lyme tests were Lyme Disease > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > Anyway, I've been feeling a little better everyday and started > amoxicillin twice a day for the next 30 days. > > Thanks for everyone's support! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi, I just wanted to follow up on my condition and say Thanks again to everyone on this board who helped me to a full recovery. It's been over 2 years now and my wife, son and I have been fully symptom free. It was a long windy road to recovery but it was well worth the struggle. Thank you all so very much! Be well, > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > have been feeling tired (I'm sure you know the feeling). I went to > the Doctor and he had me go for blood tests. > > I got my blood test back from the Dr today. He said it showed a > positive for Lyme (the first six months, but negative for Lyme after > six months). He believes that we have a very good chance of > treating it with antibiotics for a month. On his advice I'm still > going to follow up with a Neurologist. He advised me to go to the > Neurologist and not to tell him about the results of the Lyme test. > > My question for the group is does anyone know the probability of a > false positive testing for Lyme. The Lyme tests were Lyme Disease > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > Anyway, I've been feeling a little better everyday and started > amoxicillin twice a day for the next 30 days. > > Thanks for everyone's support! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 you have been symptom free for 2 years, awesome!!! just a few questions, how long were you all on treatment for? did the llmd only take you off treatment when symptoms stopped? and i have a 9yr. old i strongly believe has lyme, could you possibly please email me privately and tell me what dr. your son used? did he has co infections? what were his symptoms and how long did it take him to get well? i would appreciate it more than you know. thanks for sharing, it is always so encouraging to hear! danielle On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote: > > > Hi, I just wanted to follow up on my condition and say Thanks again to > everyone on this board who helped me to a full recovery. It's been over 2 > years now and my wife, son and I have been fully symptom free. It was a long > windy road to recovery but it was well worth the struggle. > > Thank you all so very much! > > Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 you have been symptom free for 2 years, awesome!!! just a few questions, how long were you all on treatment for? did the llmd only take you off treatment when symptoms stopped? and i have a 9yr. old i strongly believe has lyme, could you possibly please email me privately and tell me what dr. your son used? did he has co infections? what were his symptoms and how long did it take him to get well? i would appreciate it more than you know. thanks for sharing, it is always so encouraging to hear! danielle On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote: > > > Hi, I just wanted to follow up on my condition and say Thanks again to > everyone on this board who helped me to a full recovery. It's been over 2 > years now and my wife, son and I have been fully symptom free. It was a long > windy road to recovery but it was well worth the struggle. > > Thank you all so very much! > > Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Please share with me also.................thanks, Diane ________________________________ From: le Handy <kndplus2@...> Sent: Mon, May 24, 2010 8:25:31 AM Subject: Re: [ ] Re: Basic questions you have been symptom free for 2 years, awesome!!! just a few questions, how long were you all on treatment for? did the llmd only take you off treatment when symptoms stopped? and i have a 9yr. old i strongly believe has lyme, could you possibly please email me privately and tell me what dr. your son used? did he has co infections? what were his symptoms and how long did it take him to get well? i would appreciate it more than you know. thanks for sharing, it is always so encouraging to hear! danielle On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote: > > > Hi, I just wanted to follow up on my condition and say Thanks again to > everyone on this board who helped me to a full recovery. It's been over 2 > years now and my wife, son and I have been fully symptom free. It was a long > windy road to recovery but it was well worth the struggle. > > Thank you all so very much! > > Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > > > > >Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Please share with me also.................thanks, Diane ________________________________ From: le Handy <kndplus2@...> Sent: Mon, May 24, 2010 8:25:31 AM Subject: Re: [ ] Re: Basic questions you have been symptom free for 2 years, awesome!!! just a few questions, how long were you all on treatment for? did the llmd only take you off treatment when symptoms stopped? and i have a 9yr. old i strongly believe has lyme, could you possibly please email me privately and tell me what dr. your son used? did he has co infections? what were his symptoms and how long did it take him to get well? i would appreciate it more than you know. thanks for sharing, it is always so encouraging to hear! danielle On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote: > > > Hi, I just wanted to follow up on my condition and say Thanks again to > everyone on this board who helped me to a full recovery. It's been over 2 > years now and my wife, son and I have been fully symptom free. It was a long > windy road to recovery but it was well worth the struggle. > > Thank you all so very much! > > Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > > > > >Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Sure. Most of the good/valid information I used was from some of the great people in this group. You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). Here's the framework: Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. Be your own advocate. No one else is going to get you through this. Don't accept failure; always keep trying until you find what works for you. Expect professionalism and progress from your Doctors/Treatment Providers. (again each of us will progress differently, but make sure your progressing or adapt your plan) Be polite and positive when you communicate with your Doctors/Treatment Providers. You don't want to be the annoying patient that doesn't listen. Doctors/Treatment Providers are people too and its basic human nature to help people who really want to help themselves. That doesn't make them always right, if you lose faith in your Doctors/Treatment Providers don't waste your time arguing with them find the Doctors/Treatment Providers that will help you. Keep good written documentation of your symptoms. My LLMD was my quarterback and in charge. Naturopathic for support, balance abx and expert recommendations on supplements that were beyond my comprehension. A good Naturopathic Doctor should have no problem taking direction and working with your LLMD. They should also be looking at your overall health beyond the Lyme infection. abx for 18 months for me (treatment continued for 3 months after all of my symptoms were gone). 6 months for my wife. 4 months for my son. Drink a lot of water to flush your system and to energize your cells. The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1. Exercise, yes I know, I was there. I couldn't walk much less exercise but forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise oxygenates your body and raises your core temperature. Also, promotes general good health and strong immune system. Measure progress every 3 months because there will be ups and downs. Be prepared when you go to your LLMD to ask all your questions directly to the expert. They should take the time to explain everything to you (I used to fax my questions to the office a day before my doctor visits). Support groups like this one. But again filter out all of the negativity and focus on what will work for you. Surround yourself with people that will help you. Attend seminar if possible and talk to the people who have had success. Write down your plan, it was a good way for me to map out what was working for each of us (wife, son and myself). It also served as a way for me to look at all of the different components of the plan and remove the components that weren't work, add more that were (for example, I added in exercise 6 months into treatment) and keep focus on the goal. For me, the most critical component was my relationship with my LLMD. My LLMD was the expert in charge and all of my other treatments were supplemental to my LLMD's treatment plan and every 3 months we would access if any changes were required (I saw my doctor every 6 weeks for updates recovery progress, testing and results review from previous blood tests..). I'm sure there are many others who have recovered with many different treatments. The one common thread that I learned from this board is find out what works for you, make a plan and focus on getting better. When I was active in this group one of the things I didn't see was posts from the many people that did recover. As much as I longed for their stories; one of the wise people in this group correctly told me that if you watch carefully many people use information in groups like this, get educated and then recover and go on with their lives. That's one reason why I wasn't seeing the success stories I longed to read. That's why I wanted to circle back around to this great group and say Thanks to all that helped me along my path to recovery and let everyone know that my family and I have been symptom free for over 2 years. Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > > have been feeling tired (I'm sure you know the feeling). I went to > > > the Doctor and he had me go for blood tests. > > > > > > I got my blood test back from the Dr today. He said it showed a > > > positive for Lyme (the first six months, but negative for Lyme after > > > six months). He believes that we have a very good chance of > > > treating it with antibiotics for a month. On his advice I'm still > > > going to follow up with a Neurologist. He advised me to go to the > > > Neurologist and not to tell him about the results of the Lyme test. > > > > > > My question for the group is does anyone know the probability of a > > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > > > Anyway, I've been feeling a little better everyday and started > > > amoxicillin twice a day for the next 30 days. > > > > > > Thanks for everyone's support! > > > > > > > > > > > > >Â > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Sure. Most of the good/valid information I used was from some of the great people in this group. You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). Here's the framework: Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. Be your own advocate. No one else is going to get you through this. Don't accept failure; always keep trying until you find what works for you. Expect professionalism and progress from your Doctors/Treatment Providers. (again each of us will progress differently, but make sure your progressing or adapt your plan) Be polite and positive when you communicate with your Doctors/Treatment Providers. You don't want to be the annoying patient that doesn't listen. Doctors/Treatment Providers are people too and its basic human nature to help people who really want to help themselves. That doesn't make them always right, if you lose faith in your Doctors/Treatment Providers don't waste your time arguing with them find the Doctors/Treatment Providers that will help you. Keep good written documentation of your symptoms. My LLMD was my quarterback and in charge. Naturopathic for support, balance abx and expert recommendations on supplements that were beyond my comprehension. A good Naturopathic Doctor should have no problem taking direction and working with your LLMD. They should also be looking at your overall health beyond the Lyme infection. abx for 18 months for me (treatment continued for 3 months after all of my symptoms were gone). 6 months for my wife. 4 months for my son. Drink a lot of water to flush your system and to energize your cells. The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1. Exercise, yes I know, I was there. I couldn't walk much less exercise but forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise oxygenates your body and raises your core temperature. Also, promotes general good health and strong immune system. Measure progress every 3 months because there will be ups and downs. Be prepared when you go to your LLMD to ask all your questions directly to the expert. They should take the time to explain everything to you (I used to fax my questions to the office a day before my doctor visits). Support groups like this one. But again filter out all of the negativity and focus on what will work for you. Surround yourself with people that will help you. Attend seminar if possible and talk to the people who have had success. Write down your plan, it was a good way for me to map out what was working for each of us (wife, son and myself). It also served as a way for me to look at all of the different components of the plan and remove the components that weren't work, add more that were (for example, I added in exercise 6 months into treatment) and keep focus on the goal. For me, the most critical component was my relationship with my LLMD. My LLMD was the expert in charge and all of my other treatments were supplemental to my LLMD's treatment plan and every 3 months we would access if any changes were required (I saw my doctor every 6 weeks for updates recovery progress, testing and results review from previous blood tests..). I'm sure there are many others who have recovered with many different treatments. The one common thread that I learned from this board is find out what works for you, make a plan and focus on getting better. When I was active in this group one of the things I didn't see was posts from the many people that did recover. As much as I longed for their stories; one of the wise people in this group correctly told me that if you watch carefully many people use information in groups like this, get educated and then recover and go on with their lives. That's one reason why I wasn't seeing the success stories I longed to read. That's why I wanted to circle back around to this great group and say Thanks to all that helped me along my path to recovery and let everyone know that my family and I have been symptom free for over 2 years. Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > > have been feeling tired (I'm sure you know the feeling). I went to > > > the Doctor and he had me go for blood tests. > > > > > > I got my blood test back from the Dr today. He said it showed a > > > positive for Lyme (the first six months, but negative for Lyme after > > > six months). He believes that we have a very good chance of > > > treating it with antibiotics for a month. On his advice I'm still > > > going to follow up with a Neurologist. He advised me to go to the > > > Neurologist and not to tell him about the results of the Lyme test. > > > > > > My question for the group is does anyone know the probability of a > > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > > > Anyway, I've been feeling a little better everyday and started > > > amoxicillin twice a day for the next 30 days. > > > > > > Thanks for everyone's support! > > > > > > > > > > > > >Â > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 , thanks for speaking up. There's a broad perception on this list that " nobody ever really gets cured of Lyme; you just learn to manage it. " I suspect that perception has a lot to do with the fact that if those success stories exist, we simply don't hear about them. As you say: the ones who win the fight move on. Which is why I appreciate you coming back around to close the circle. Would you be willing to answer a few questions? I've been on abx for about 18 months, and have followed much the same kind of process you went through. I had a *very* hard winter, backsliding to the point where I was almost as sick as I was before doing any of this. I was surprised by it, given that I was into my second year of abx, and the first year had seen a pretty solid recovery. I'm doing much better again, coming up out of the winter funk and surprising myself with how much energy I can summon. Since you went almost as long as I have, I'm wondering if you had similar deep troughs in the latter stages of treatment. Also: how long had you been sick before getting diagnosed and treated? I had a sort dispiriting visit with my LLMD a couple of weeks ago. He took my long winter decline as not a good sign. He said that we'll continue treatment until September, which will bring us close to the two-year mark; but he thinks I've gotten everything I'm going to get from antibiotic treatment, so we'll wrap it up then and put me on Buehner herbs for maintenance. I've been picking at the exercise thing since last summer. Gradually, gradually, it's happening. At least, I can do 15 minutes of yoga and the muscle aches that result will be the normal kind -- not that horrible Lyme whack that lasts for days. And I can slow-walk for hours. Perhaps more importantly: I'm living full days again. Am very tired at the end of them, but the pace seems to be sustainable without crashes. That's a win. I'll second your emphasis on finding a good LLMD and letting them run the show. There is far too little science and far too much quackery around this disease; our LLMDs are the only experts out there who make it their business to know what's likely to work. And if you find they don't make sense or you can't trust them, make a change. Congratulations. It's good to hear from someone who made it through. (And here's hoping there are no relapses!) Sara On May 24, 2010, at 8:42 30AM, kmcgillycuddy wrote: > Sure. Most of the good/valid information I used was from some of the great people in this group. > > You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). > > Here's the framework: > Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. > > Be your own advocate. No one else is going to get you through this. > Don't accept failure; always keep trying until you find what works for you. > Expect professionalism and progress from your Doctors/Treatment Providers. (again each of us will progress differently, but make sure your progressing or adapt your plan) > Be polite and positive when you communicate with your Doctors/Treatment Providers. You don't want to be the annoying patient that doesn't listen. Doctors/Treatment Providers are people too and its basic human nature to help people who really want to help themselves. That doesn't make them always right, if you lose faith in your Doctors/Treatment Providers don't waste your time arguing with them find the Doctors/Treatment Providers that will help you. > Keep good written documentation of your symptoms. > My LLMD was my quarterback and in charge. > Naturopathic for support, balance abx and expert recommendations on supplements that were beyond my comprehension. A good Naturopathic Doctor should have no problem taking direction and working with your LLMD. They should also be looking at your overall health beyond the Lyme infection. > abx for 18 months for me (treatment continued for 3 months after all of my symptoms were gone). 6 months for my wife. 4 months for my son. > Drink a lot of water to flush your system and to energize your cells. > The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1. > > Exercise, yes I know, I was there. I couldn't walk much less exercise but forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise oxygenates your body and raises your core temperature. Also, promotes general good health and strong immune system. > > Measure progress every 3 months because there will be ups and downs. > Be prepared when you go to your LLMD to ask all your questions directly to the expert. They should take the time to explain everything to you (I used to fax my questions to the office a day before my doctor visits). > > Support groups like this one. But again filter out all of the negativity and focus on what will work for you. > Surround yourself with people that will help you. Attend seminar if possible and talk to the people who have had success. > > Write down your plan, it was a good way for me to map out what was working for each of us (wife, son and myself). It also served as a way for me to look at all of the different components of the plan and remove the components that weren't work, add more that were (for example, I added in exercise 6 months into treatment) and keep focus on the goal. > > For me, the most critical component was my relationship with my LLMD. My LLMD was the expert in charge and all of my other treatments were supplemental to my LLMD's treatment plan and every 3 months we would access if any changes were required (I saw my doctor every 6 weeks for updates recovery progress, testing and results review from previous blood tests..). > > I'm sure there are many others who have recovered with many different treatments. The one common thread that I learned from this board is find out what works for you, make a plan and focus on getting better. > When I was active in this group one of the things I didn't see was posts from the many people that did recover. As much as I longed for their stories; one of the wise people in this group correctly told me that if you watch carefully many people use information in groups like this, get educated and then recover and go on with their lives. That's one reason why I wasn't seeing the success stories I longed to read. That's why I wanted to circle back around to this great group and say Thanks to all that helped me along my path to recovery and let everyone know that my family and I have been symptom free for over 2 years. > > Be well, > > > >>>> >>>> >>>> >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I >>>> have been feeling tired (I'm sure you know the feeling). I went to >>>> the Doctor and he had me go for blood tests. >>>> >>>> I got my blood test back from the Dr today. He said it showed a >>>> positive for Lyme (the first six months, but negative for Lyme after >>>> six months). He believes that we have a very good chance of >>>> treating it with antibiotics for a month. On his advice I'm still >>>> going to follow up with a Neurologist. He advised me to go to the >>>> Neurologist and not to tell him about the results of the Lyme test. >>>> >>>> My question for the group is does anyone know the probability of a >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. >>>> >>>> Anyway, I've been feeling a little better everyday and started >>>> amoxicillin twice a day for the next 30 days. >>>> >>>> Thanks for everyone's support! >>>> >>>> >>>> >>> >>> >>> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 , thanks for speaking up. There's a broad perception on this list that " nobody ever really gets cured of Lyme; you just learn to manage it. " I suspect that perception has a lot to do with the fact that if those success stories exist, we simply don't hear about them. As you say: the ones who win the fight move on. Which is why I appreciate you coming back around to close the circle. Would you be willing to answer a few questions? I've been on abx for about 18 months, and have followed much the same kind of process you went through. I had a *very* hard winter, backsliding to the point where I was almost as sick as I was before doing any of this. I was surprised by it, given that I was into my second year of abx, and the first year had seen a pretty solid recovery. I'm doing much better again, coming up out of the winter funk and surprising myself with how much energy I can summon. Since you went almost as long as I have, I'm wondering if you had similar deep troughs in the latter stages of treatment. Also: how long had you been sick before getting diagnosed and treated? I had a sort dispiriting visit with my LLMD a couple of weeks ago. He took my long winter decline as not a good sign. He said that we'll continue treatment until September, which will bring us close to the two-year mark; but he thinks I've gotten everything I'm going to get from antibiotic treatment, so we'll wrap it up then and put me on Buehner herbs for maintenance. I've been picking at the exercise thing since last summer. Gradually, gradually, it's happening. At least, I can do 15 minutes of yoga and the muscle aches that result will be the normal kind -- not that horrible Lyme whack that lasts for days. And I can slow-walk for hours. Perhaps more importantly: I'm living full days again. Am very tired at the end of them, but the pace seems to be sustainable without crashes. That's a win. I'll second your emphasis on finding a good LLMD and letting them run the show. There is far too little science and far too much quackery around this disease; our LLMDs are the only experts out there who make it their business to know what's likely to work. And if you find they don't make sense or you can't trust them, make a change. Congratulations. It's good to hear from someone who made it through. (And here's hoping there are no relapses!) Sara On May 24, 2010, at 8:42 30AM, kmcgillycuddy wrote: > Sure. Most of the good/valid information I used was from some of the great people in this group. > > You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). > > Here's the framework: > Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. > > Be your own advocate. No one else is going to get you through this. > Don't accept failure; always keep trying until you find what works for you. > Expect professionalism and progress from your Doctors/Treatment Providers. (again each of us will progress differently, but make sure your progressing or adapt your plan) > Be polite and positive when you communicate with your Doctors/Treatment Providers. You don't want to be the annoying patient that doesn't listen. Doctors/Treatment Providers are people too and its basic human nature to help people who really want to help themselves. That doesn't make them always right, if you lose faith in your Doctors/Treatment Providers don't waste your time arguing with them find the Doctors/Treatment Providers that will help you. > Keep good written documentation of your symptoms. > My LLMD was my quarterback and in charge. > Naturopathic for support, balance abx and expert recommendations on supplements that were beyond my comprehension. A good Naturopathic Doctor should have no problem taking direction and working with your LLMD. They should also be looking at your overall health beyond the Lyme infection. > abx for 18 months for me (treatment continued for 3 months after all of my symptoms were gone). 6 months for my wife. 4 months for my son. > Drink a lot of water to flush your system and to energize your cells. > The right diet as prescribed by your LLMD, ours was similar to Atkins phase 1. > > Exercise, yes I know, I was there. I couldn't walk much less exercise but forced myself to do 2 minutes on the tread mill, then 5, then 15... Exercise oxygenates your body and raises your core temperature. Also, promotes general good health and strong immune system. > > Measure progress every 3 months because there will be ups and downs. > Be prepared when you go to your LLMD to ask all your questions directly to the expert. They should take the time to explain everything to you (I used to fax my questions to the office a day before my doctor visits). > > Support groups like this one. But again filter out all of the negativity and focus on what will work for you. > Surround yourself with people that will help you. Attend seminar if possible and talk to the people who have had success. > > Write down your plan, it was a good way for me to map out what was working for each of us (wife, son and myself). It also served as a way for me to look at all of the different components of the plan and remove the components that weren't work, add more that were (for example, I added in exercise 6 months into treatment) and keep focus on the goal. > > For me, the most critical component was my relationship with my LLMD. My LLMD was the expert in charge and all of my other treatments were supplemental to my LLMD's treatment plan and every 3 months we would access if any changes were required (I saw my doctor every 6 weeks for updates recovery progress, testing and results review from previous blood tests..). > > I'm sure there are many others who have recovered with many different treatments. The one common thread that I learned from this board is find out what works for you, make a plan and focus on getting better. > When I was active in this group one of the things I didn't see was posts from the many people that did recover. As much as I longed for their stories; one of the wise people in this group correctly told me that if you watch carefully many people use information in groups like this, get educated and then recover and go on with their lives. That's one reason why I wasn't seeing the success stories I longed to read. That's why I wanted to circle back around to this great group and say Thanks to all that helped me along my path to recovery and let everyone know that my family and I have been symptom free for over 2 years. > > Be well, > > > >>>> >>>> >>>> >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I >>>> have been feeling tired (I'm sure you know the feeling). I went to >>>> the Doctor and he had me go for blood tests. >>>> >>>> I got my blood test back from the Dr today. He said it showed a >>>> positive for Lyme (the first six months, but negative for Lyme after >>>> six months). He believes that we have a very good chance of >>>> treating it with antibiotics for a month. On his advice I'm still >>>> going to follow up with a Neurologist. He advised me to go to the >>>> Neurologist and not to tell him about the results of the Lyme test. >>>> >>>> My question for the group is does anyone know the probability of a >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. >>>> >>>> Anyway, I've been feeling a little better everyday and started >>>> amoxicillin twice a day for the next 30 days. >>>> >>>> Thanks for everyone's support! >>>> >>>> >>>> >>> >>> >>> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 - THANK YOU THANK YOU THANK YOU THANK YOU!!!!!!! I needed this, and when I am well I hope that I am not too busy living my life to come back and give a success story. We need it, as you very well know. I hope you and your family will have continued health and live lyme free. Thank you again! Bridget > > > > > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > > > have been feeling tired (I'm sure you know the feeling). I went to > > > > the Doctor and he had me go for blood tests. > > > > > > > > I got my blood test back from the Dr today. He said it showed a > > > > positive for Lyme (the first six months, but negative for Lyme after > > > > six months). He believes that we have a very good chance of > > > > treating it with antibiotics for a month. On his advice I'm still > > > > going to follow up with a Neurologist. He advised me to go to the > > > > Neurologist and not to tell him about the results of the Lyme test. > > > > > > > > My question for the group is does anyone know the probability of a > > > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > > > > > Anyway, I've been feeling a little better everyday and started > > > > amoxicillin twice a day for the next 30 days. > > > > > > > > Thanks for everyone's support! > > > > > > > > > > > > > > > > > >Â > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 - THANK YOU THANK YOU THANK YOU THANK YOU!!!!!!! I needed this, and when I am well I hope that I am not too busy living my life to come back and give a success story. We need it, as you very well know. I hope you and your family will have continued health and live lyme free. Thank you again! Bridget > > > > > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > > > have been feeling tired (I'm sure you know the feeling). I went to > > > > the Doctor and he had me go for blood tests. > > > > > > > > I got my blood test back from the Dr today. He said it showed a > > > > positive for Lyme (the first six months, but negative for Lyme after > > > > six months). He believes that we have a very good chance of > > > > treating it with antibiotics for a month. On his advice I'm still > > > > going to follow up with a Neurologist. He advised me to go to the > > > > Neurologist and not to tell him about the results of the Lyme test. > > > > > > > > My question for the group is does anyone know the probability of a > > > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > > > > > Anyway, I've been feeling a little better everyday and started > > > > amoxicillin twice a day for the next 30 days. > > > > > > > > Thanks for everyone's support! > > > > > > > > > > > > > > > > > >Â > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 , I'm happy to answer your questions. Yes, I did have times when I seemed to regress. We judged over a period of 3 months as to avoid confusing a Herximer (sorry for the spelling) positive reaction w/ real regression. My Doctor would vary the abx treatment depending on my results to attack the infection from many different angles. My treatment was to last until all of my symptoms stopped for 3 months, which it did about 15 months into it. After many ups and downs. I believe I had the infection for at least 5 years and possible more. I remember a finding a tick in my belly button but at that time I didn't realize how serious it was so I took no action and forgot about it. We never found any ticks on my wife or son so I believe, contrary to many, that I gave it to my wife and we believe my son was born with it. I'm glad to hear you are exercising because it also helps with the psychological battle. Exercise is great for your body and mind. So when you think about any illness, such as this, it will only help. I was, and still am, of the opinion that you need to attack this infection from many different angles, monitor your progress and continue to add vectors (different diets, exercise, supplements) until you find what is best for you. Keep in mind common sense and continue to do things that you enjoy, to the best of your ability and you will find that it will help you win the emotional/psychological battle. This is a critical treatment that I think many people forget. Be well, > >>>> > >>>> > >>>> > >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I > >>>> have been feeling tired (I'm sure you know the feeling). I went to > >>>> the Doctor and he had me go for blood tests. > >>>> > >>>> I got my blood test back from the Dr today. He said it showed a > >>>> positive for Lyme (the first six months, but negative for Lyme after > >>>> six months). He believes that we have a very good chance of > >>>> treating it with antibiotics for a month. On his advice I'm still > >>>> going to follow up with a Neurologist. He advised me to go to the > >>>> Neurologist and not to tell him about the results of the Lyme test. > >>>> > >>>> My question for the group is does anyone know the probability of a > >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease > >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > >>>> > >>>> Anyway, I've been feeling a little better everyday and started > >>>> amoxicillin twice a day for the next 30 days. > >>>> > >>>> Thanks for everyone's support! > >>>> > >>>> > >>>> > >>> > >>> > >>> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 , I'm happy to answer your questions. Yes, I did have times when I seemed to regress. We judged over a period of 3 months as to avoid confusing a Herximer (sorry for the spelling) positive reaction w/ real regression. My Doctor would vary the abx treatment depending on my results to attack the infection from many different angles. My treatment was to last until all of my symptoms stopped for 3 months, which it did about 15 months into it. After many ups and downs. I believe I had the infection for at least 5 years and possible more. I remember a finding a tick in my belly button but at that time I didn't realize how serious it was so I took no action and forgot about it. We never found any ticks on my wife or son so I believe, contrary to many, that I gave it to my wife and we believe my son was born with it. I'm glad to hear you are exercising because it also helps with the psychological battle. Exercise is great for your body and mind. So when you think about any illness, such as this, it will only help. I was, and still am, of the opinion that you need to attack this infection from many different angles, monitor your progress and continue to add vectors (different diets, exercise, supplements) until you find what is best for you. Keep in mind common sense and continue to do things that you enjoy, to the best of your ability and you will find that it will help you win the emotional/psychological battle. This is a critical treatment that I think many people forget. Be well, > >>>> > >>>> > >>>> > >>>> Hi, my name is McGillycuddy and I'm 38 years old. Recently I > >>>> have been feeling tired (I'm sure you know the feeling). I went to > >>>> the Doctor and he had me go for blood tests. > >>>> > >>>> I got my blood test back from the Dr today. He said it showed a > >>>> positive for Lyme (the first six months, but negative for Lyme after > >>>> six months). He believes that we have a very good chance of > >>>> treating it with antibiotics for a month. On his advice I'm still > >>>> going to follow up with a Neurologist. He advised me to go to the > >>>> Neurologist and not to tell him about the results of the Lyme test. > >>>> > >>>> My question for the group is does anyone know the probability of a > >>>> false positive testing for Lyme. The Lyme tests were Lyme Disease > >>>> Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > >>>> > >>>> Anyway, I've been feeling a little better everyday and started > >>>> amoxicillin twice a day for the next 30 days. > >>>> > >>>> Thanks for everyone's support! > >>>> > >>>> > >>>> > >>> > >>> > >>> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Thanks for the update - it really means a lot. I know someone locally who became symptom free after 3 years on abx. It's a looong process, but you can recover. Don On 5/24/2010 11:42 AM, kmcgillycuddy wrote: > Sure. Most of the good/valid information I used was from some of the great people in this group. > > You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). > > Here's the framework: > Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Thanks for the update - it really means a lot. I know someone locally who became symptom free after 3 years on abx. It's a looong process, but you can recover. Don On 5/24/2010 11:42 AM, kmcgillycuddy wrote: > Sure. Most of the good/valid information I used was from some of the great people in this group. > > You can search for kmcgillycuddy to see all of my past threads. I was bad and went through the normal maze of years of searching with many mis-diagnosis (ALS, Lung Cancer, MS, Orthopedic problems, stomach, panic, anxiety...). > > Here's the framework: > Be diligent but don't get distracted by bad information or anything else that is going to delay your recovery. Bad information = anything that isn't working for you. Each of us is different. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 : Can I ask you where you live..how long did you take antibiotics for? Did you catch it right away>?? Thanks Leanne and Congrats!! From: @... Date: Mon, 24 May 2010 13:00:10 +0000 Subject: [ ] Re: Basic questions Hi, I just wanted to follow up on my condition and say Thanks again to everyone on this board who helped me to a full recovery. It's been over 2 years now and my wife, son and I have been fully symptom free. It was a long windy road to recovery but it was well worth the struggle. Thank you all so very much! Be well, > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > have been feeling tired (I'm sure you know the feeling). I went to > the Doctor and he had me go for blood tests. > > I got my blood test back from the Dr today. He said it showed a > positive for Lyme (the first six months, but negative for Lyme after > six months). He believes that we have a very good chance of > treating it with antibiotics for a month. On his advice I'm still > going to follow up with a Neurologist. He advised me to go to the > Neurologist and not to tell him about the results of the Lyme test. > > My question for the group is does anyone know the probability of a > false positive testing for Lyme. The Lyme tests were Lyme Disease > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > Anyway, I've been feeling a little better everyday and started > amoxicillin twice a day for the next 30 days. > > Thanks for everyone's support! > > > _________________________________________________________________ 30 days of prizes: Hotmail makes your day easier! Enter Now. http://go.microsoft.com/?linkid=9729710 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 PLease share with me..thanks From: dkbmama@... Date: Mon, 24 May 2010 06:29:49 -0700 Subject: Re: [ ] Re: Basic questions Please share with me also.................thanks, Diane ________________________________ From: le Handy <kndplus2@...> Sent: Mon, May 24, 2010 8:25:31 AM Subject: Re: [ ] Re: Basic questions you have been symptom free for 2 years, awesome!!! just a few questions, how long were you all on treatment for? did the llmd only take you off treatment when symptoms stopped? and i have a 9yr. old i strongly believe has lyme, could you possibly please email me privately and tell me what dr. your son used? did he has co infections? what were his symptoms and how long did it take him to get well? i would appreciate it more than you know. thanks for sharing, it is always so encouraging to hear! danielle On Mon, May 24, 2010 at 6:00 AM, kmcgillycuddy <@...>wrote: > > > Hi, I just wanted to follow up on my condition and say Thanks again to > everyone on this board who helped me to a full recovery. It's been over 2 > years now and my wife, son and I have been fully symptom free. It was a long > windy road to recovery but it was well worth the struggle. > > Thank you all so very much! > > Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 le and Diane, I have sent you a quick email, I have to run out now but I will reply to your email over the weekend. Be well, > > > > > > > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > > have been feeling tired (I'm sure you know the feeling). I went to > > > the Doctor and he had me go for blood tests. > > > > > > I got my blood test back from the Dr today. He said it showed a > > > positive for Lyme (the first six months, but negative for Lyme after > > > six months). He believes that we have a very good chance of > > > treating it with antibiotics for a month. On his advice I'm still > > > going to follow up with a Neurologist. He advised me to go to the > > > Neurologist and not to tell him about the results of the Lyme test. > > > > > > My question for the group is does anyone know the probability of a > > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > > > Anyway, I've been feeling a little better everyday and started > > > amoxicillin twice a day for the next 30 days. > > > > > > Thanks for everyone's support! > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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