Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 whether you have Lyme disease or not, I would strongly urge you to take Doxycycline at 200 mg for 60 days- that would be 100 mg twice a day. If you have short term Lyme disease this should provide you a cure. If you have long term Lyme disease you are going to have a lot of trials and tribulations as there is not much chance for a cure at this time. With the proper guidance, however, you will be able to lead a near normal life by taking the Lyme Bacteria fighting materials available. I have found that alternative medicine seems to be best, but regular medicine must be first used to get the bacteria out of your blood stream. unfortunately, the long term bacteria will stay in the cell membrains where medicine can not reach it and it keeps coming out. For more info contact me directly. God bless and good luck! Sidney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 HI , I am new here too. Where did your test results come from? ( what lab?) Also, do you know that Amoxicillan is the weakest form of antibiotics, they give it to babies and kids with ear infections, etc. It never worked on my girls we always had to go up to the next stronger version which is not really any good for Lyme anyway. I applaud your Dr. for diagnosing you so soon, but think you should either do your own research on the web and take it to the Dr.- about what you should really be on and for how long (not just one or two months - if you don't want to end up like some of us with chronic cases), or go to a LLMD (Lyme Literate Medical Doctor). If you choose to do that, let me know and I'll send you a phone number where you can tell them what part of the country you live in, etc. and they will call you back with several names and numbers for you to call and schedule an appt with one of them. Personally, I'd do the reasearch and ask my regular Dr. to prescribe the right stuff and then make the appt. with an LLMD. There is a great info site called Ilads, check it out. Take care, > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > have been feeling tired (I'm sure you know the feeling). I went to > the Doctor and he had me go for blood tests. > > I got my blood test back from the Dr today. He said it showed a > positive for Lyme (the first six months, but negative for Lyme after > six months). He believes that we have a very good chance of > treating it with antibiotics for a month. On his advice I'm still > going to follow up with a Neurologist. He advised me to go to the > Neurologist and not to tell him about the results of the Lyme test. > > My question for the group is does anyone know the probability of a > false positive testing for Lyme. The Lyme tests were Lyme Disease > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > Anyway, I've been feeling a little better everyday and started > amoxicillin twice a day for the next 30 days. > > Thanks for everyone's support! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 , Could you provide me with the phone number of how to find a Lyme Literate Medical Doctor in my area. Thank you, Cher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 , Thanks. Yes. Can you send me the information on how I can get the best Lyme doctor. You can email me @ @.... Thanks for the support. > > > > > > Hi, my name is McGillycuddy and I'm 38 years old. Recently I > > have been feeling tired (I'm sure you know the feeling). I went to > > the Doctor and he had me go for blood tests. > > > > I got my blood test back from the Dr today. He said it showed a > > positive for Lyme (the first six months, but negative for Lyme after > > six months). He believes that we have a very good chance of > > treating it with antibiotics for a month. On his advice I'm still > > going to follow up with a Neurologist. He advised me to go to the > > Neurologist and not to tell him about the results of the Lyme test. > > > > My question for the group is does anyone know the probability of a > > false positive testing for Lyme. The Lyme tests were Lyme Disease > > Screen w/ Relex to WB and Lyme Disease AB, lgG & lgM WB. > > > > Anyway, I've been feeling a little better everyday and started > > amoxicillin twice a day for the next 30 days. > > > > Thanks for everyone's support! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Sidney, Thanks for responding. I would like to learn more about the right treatment. Can you contact me directly at @.... Or what is the best way for me to contact you directly? Thanks, > whether you have Lyme disease or not, I would strongly urge you to take > Doxycycline at 200 mg for 60 days- that would be 100 mg twice a day. If you > have short term Lyme disease this should provide you a cure. If you have long > term Lyme disease you are going to have a lot of trials and tribulations as > there is not much chance for a cure at this time. With the proper guidance, > however, you will be able to lead a near normal life by taking the Lyme Bacteria > fighting materials available. I have found that alternative medicine seems > to be best, but regular medicine must be first used to get the bacteria out of > your blood stream. unfortunately, the long term bacteria will stay in the > cell membrains where medicine can not reach it and it keeps coming out. For more > info contact me directly. > > God bless and good luck! > > Sidney > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 It's probably a bit too low of a dosage you are using Dave for an 11 YO. 2 capsules is what many start 2 year olds on -and today in this group most are using 2 capsules of the ProEFA and 1 of the ProEPA 3 times a day with 2 and 3 year olds! With success too!! And...the natural alpha and gamma E about 400 IUs/mg The fact you have seen a little surge on the low dosage is awesome...keep us posted on the future good news ahead!! Below is an archive on more... The following is an old EFA archive from this group which has worked in this group for years so it's up on the Speechville message board. Recently there are a few members who are staying with the same formula -but raising the dosage to multi dosing two to three times a day and anecdotally they are observing even more dramatic and accelerated surges. Due to recent messages I want to clarify that the following was for the average new member who in the majority will have a child that is 2 to 4 years old. If your child is around 5 or older you will probably want to start at one a day just for a week or so and then increase right away to two. Not that you won't see any changes on the lower dosage but for older children the one a day (which is comparable to the dosage in infant formula) may not be enough. Also most see the first plateau somewhere between 3-6 months and the second somewhere between 6 months to a year following the lower dosage way. We don't know yet as a group if and when plateaus are reached with higher dosage supplementation. If however you hit a plateau at any point -you probably want to look to increase dosage -especially if you are at one a day with a 4 year old say. You can run by your child's MD -start with the basic and observe and go from there. With fish oils typically the changes are within one day to three weeks almost across the board -so you'll know pretty soon whether it's " working " ! Let us know the good news! From http://www.speech-express.com/boards/viewtopic.php?t=620 What fish oil should I give to my baby? What fish oil should I give to my child? The confusion is more the brand names than the formulas. In actuality there really is no such thing as a " children's EFA " perfect for all children yet. However fish oils can be marketed to children by making fun flavorings and smaller capsules. Most of the parents I know squeeze the oil out of the capsule anyway -so that's besides the point for most of our group. EFAs are now in baby formula and food, and EFAs come and are used in a variety of formulas for children for various reasons. Mainly we hear about the use of them for healthy brain development in regards to children -but they are even proven to help prevent asthma http://www.theage.com.au/articles/2004/02/20/1077072840758.html And they may be coming to a school lunch near you -if you live in an area of savvy parents http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C Regarding your specific question: (and to answer your question Chris) ProEFA is an Omega 3 (DHA and higher EPA) formula with a small amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - not from the liver of the fish -so no vitamin A. Only fish oil made from the liver of the fish contain vitamin A. Children's DHA is cod liver oil which since it's from the liver of the cod fish, it naturally contains Vitamin A. Cod liver oil only contains Omega 3 (DHA and EPA) about that point: " Most of our experience is with one, 1.0 gram capsule of ProEFA (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of GLA. We know that this combination appeared to work well. There were some other supplements used but we could not conclude anything about them. I can only say that both EPA and DHA are important and GLA appears to have an additional positive effect on speech. ALA, linoleic and oleic acids in " The Total Omega " contribute very little to the EPA, DHA, and GLA effect. I see at least 2 possibilities that you could use if you decide to make the transition from short-chain omega-3s in plants (flax seed oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and 230 mg DHA). Both of these have been anecdotally successful in the past. Coromega can be divided in two and taken one half in the morning the other in the evening. If you choose this mode you will provide your son with the equivalent EPA+DHA of 2 ProEFA capsules per day without the GLA. Flax seed oil or freshly ground flax seeds are an excellent source of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is the quintessential parent member of the omega-3 family of essential fatty acids (EFAs). The body transforms it into EPA and the EPA into DHA. This transformation is very inefficient (the yield is about 10%) and is further inhibited by over consumption of omega-6 fatty acids from most vegetable oils or certain disease states. Therefore, it is advisable to independently consume also ready made EPA and DHA from good quality fish of from high quality fish oil supplements. Some recommended intakes are listed on the Introductory lecture on EFAs that I gave at the First Conference on Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( http://www.cherab.org/news/scientific.html ) The CHERAB Foundation's positive research results on potential improvement in speech following EFA supplementation are based on the use of ProEFA (Complete Omega) and that contains also another essential fatty acid, GLA which is an omega-6 fatty acid. The latter appears to be beneficial to children with apraxia. It is not present in flax seed/flaxseed oil. None of these materials present with any known side effects or known toxicity in an otherwise healthy person. Nevertheless, we advise every user of supplements to use them under medical supervision. We don't know your child and we cannot provide you with medical advice. Sincerely, Katz, Ph.D. " About mercury and fish oil (vs. eating fish) " Fish oils have been tested for various heavy metals like mercury and there has been enough preliminary proof through studies, as well as theory from reputable sources, that as I've posted many times I've heard that the oils from fish may be the safest way to get the benefits of the EFAs without the toxins due to the fact that mercury etc. binds to the proteins/muscles of the fish. " Measurement of mercury levels in concentrated over-the-counter fish oil preparations: is fish oil healthier than fish? " " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract And one other thing to keep in mind for those like me who do eat both fish and take fish oil, there are toxins in the fish you eat that won't be in the oil For example while mercury etc. binds to the protein (muscle of the fish) so it's not in the oil of the fish. From what I've read -the largest problem with fish oil itself is rancidity. Oxygen and fish oil doesn't mix well. Consumer Reports had this to say (most likely because toxins in many cases bind to the protein and most oils are not tested for rancidity) " Consumer Reports tested 16 top-selling fish-oil pills which, like other supplements, aren't closely regulated by the FDA. Consumer Reports' Metcalf says the test results are reassuring, " We found that all 16 brands that we tested had the amount of Omega-3s that they said they did, which is good news. And, we don't always find that with supplements. " Since fish can contain toxins, Metcalf says Consumer Reports also checked the supplements for purity, " We tested for three kinds of toxins that often appear in fish - mercury, dioxin, and PCBs. " Testers didn't find significant levels of toxins in any of the pills tested, so you don't have to worry about contaminants. " http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_omega3.html " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html Here is an archive answer to answer more on EFAs: " I will use the following examples with the brand name ProEFA since that's the formula/dosage that seems to work the best for most of us (Efalex and EyeQ are similar Omega 3/6 formulas that also have good reports) For any brand name of Omega 3/6 formula -you could make the same formula by mixing together fish oil and either primrose or borage seed oil if you prefer -or as found -another brand name with a similar formula (and I hope also a good quality) If you mix two fish oils together which is fine if you know why you are doing that: Look at the amount of DHA, EPA (Omega 3) and the amount of GLA (Omega 6) and then add them all together to see what formula and dosage you now have is. So for those of you that ask - you can mix any brand names together you would like -however what you could change is the three things above (dosage, formula and *quality (*if one of the companies you start using has rancid oils which is not uncommon when it comes to fish oils -so make sure all brands you use are pure) Keep in mind in anecdotal feedback done by parents from all over through CHERAB -that pure Omega 3 or pure Omega 6 either showed no results -or very little results in almost all cases. Pure Omega 3 would include pure cod liver oil, fish oil, flax seed oil without any Omega 6. So even though there is only a small amount of GLA (Omega 6) in the formulas we found to be successful -GLA appears to be important to be there for some reason. GLA has anti-inflammatory properties which perhaps enable to DHA and EPA to get to where it's needed in the brain? Dosage of one capsule a day ProEFA that at the lowest dosage appears to be the best - 148 mg EPA 99 mg DHA 40 mg GLA Here is what many of us have found to be the best plan anecdotally: ....start with the basic formula, one ProEFA a day, we saw surges in a few days to three weeks which continued for months - we then reached a plateau after around 6 months. At this point we raised the dosage to two capsules of ProEFA a day and once again had those surges which lasted again for months. When we reached the next plateau after around a year, instead of going to three a day - we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of ProEFA and for almost all of us that try -that created another surge. Over time -you may raise the dosage up higher -and you may slightly change the formula to raise the Omega 3 over the Omega 6 ratio. Most found raising the EPA vs. the DHA or GLA to be best -but you need to know your own child, keep track of his progress through both your own observations and that of the professionals -with the advice of your child's doctor -to know what is best for him/her. There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet http://www.speechville.com Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 I would give more fish oil and, even more importantly IMO, carnaware - carnaware can produce amazing changes in language (carnaware.com). I saw a big difference after just a week, and I've heard other parents say the same thing. I would also consider essential GSH (liposomal glutathione) from wellnesshealth.com. Carnaware and the lipo glut really got my daughter talking (she was diagnosed with ASD and apraxia). I added extra vit E (400 IU) to my son's supps (above what he gets in carnaware and his multi-vitamin) about a week ago, but have not noticed any changes. But my son has only ASD, not apraxia. > > Hi, > > I have an 11 year old, 75 lb autistic son who has severe apraxia. I can understand his speech for the most part but most strangers cannot understand him. He uses an augmentative communication device that has been very helpful. > > I started my son on ProEFA 2 capsules per day (1 am, 1 pm) 4 months ago and noticed a slight improvement in my son's clarity of speech. I was wondering if I am giving a good dose or if there any other things I should try. I have read a few recent posts about vit E and wondering if many are using these? Also, wondering if many list members have tried different types of EFA's or different doses before finding a combination that really works well. Thanks! > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 It's probably a bit too low of a dosage you are using Dave for an 11 YO. 2 capsules is what many start 2 year olds on -and today in this group most are using 2 capsules of the ProEFA and 1 of the ProEPA 3 times a day with 2 and 3 year olds! With success too!! And...the natural alpha and gamma E about 400 IUs/mg The fact you have seen a little surge on the low dosage is awesome...keep us posted on the future good news ahead!! Below is an archive on more... The following is an old EFA archive from this group which has worked in this group for years so it's up on the Speechville message board. Recently there are a few members who are staying with the same formula -but raising the dosage to multi dosing two to three times a day and anecdotally they are observing even more dramatic and accelerated surges. Due to recent messages I want to clarify that the following was for the average new member who in the majority will have a child that is 2 to 4 years old. If your child is around 5 or older you will probably want to start at one a day just for a week or so and then increase right away to two. Not that you won't see any changes on the lower dosage but for older children the one a day (which is comparable to the dosage in infant formula) may not be enough. Also most see the first plateau somewhere between 3-6 months and the second somewhere between 6 months to a year following the lower dosage way. We don't know yet as a group if and when plateaus are reached with higher dosage supplementation. If however you hit a plateau at any point -you probably want to look to increase dosage -especially if you are at one a day with a 4 year old say. You can run by your child's MD -start with the basic and observe and go from there. With fish oils typically the changes are within one day to three weeks almost across the board -so you'll know pretty soon whether it's " working " ! Let us know the good news! From http://www.speech-express.com/boards/viewtopic.php?t=620 What fish oil should I give to my baby? What fish oil should I give to my child? The confusion is more the brand names than the formulas. In actuality there really is no such thing as a " children's EFA " perfect for all children yet. However fish oils can be marketed to children by making fun flavorings and smaller capsules. Most of the parents I know squeeze the oil out of the capsule anyway -so that's besides the point for most of our group. EFAs are now in baby formula and food, and EFAs come and are used in a variety of formulas for children for various reasons. Mainly we hear about the use of them for healthy brain development in regards to children -but they are even proven to help prevent asthma http://www.theage.com.au/articles/2004/02/20/1077072840758.html And they may be coming to a school lunch near you -if you live in an area of savvy parents http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C Regarding your specific question: (and to answer your question Chris) ProEFA is an Omega 3 (DHA and higher EPA) formula with a small amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - not from the liver of the fish -so no vitamin A. Only fish oil made from the liver of the fish contain vitamin A. Children's DHA is cod liver oil which since it's from the liver of the cod fish, it naturally contains Vitamin A. Cod liver oil only contains Omega 3 (DHA and EPA) about that point: " Most of our experience is with one, 1.0 gram capsule of ProEFA (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of GLA. We know that this combination appeared to work well. There were some other supplements used but we could not conclude anything about them. I can only say that both EPA and DHA are important and GLA appears to have an additional positive effect on speech. ALA, linoleic and oleic acids in " The Total Omega " contribute very little to the EPA, DHA, and GLA effect. I see at least 2 possibilities that you could use if you decide to make the transition from short-chain omega-3s in plants (flax seed oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and 230 mg DHA). Both of these have been anecdotally successful in the past. Coromega can be divided in two and taken one half in the morning the other in the evening. If you choose this mode you will provide your son with the equivalent EPA+DHA of 2 ProEFA capsules per day without the GLA. Flax seed oil or freshly ground flax seeds are an excellent source of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is the quintessential parent member of the omega-3 family of essential fatty acids (EFAs). The body transforms it into EPA and the EPA into DHA. This transformation is very inefficient (the yield is about 10%) and is further inhibited by over consumption of omega-6 fatty acids from most vegetable oils or certain disease states. Therefore, it is advisable to independently consume also ready made EPA and DHA from good quality fish of from high quality fish oil supplements. Some recommended intakes are listed on the Introductory lecture on EFAs that I gave at the First Conference on Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( http://www.cherab.org/news/scientific.html ) The CHERAB Foundation's positive research results on potential improvement in speech following EFA supplementation are based on the use of ProEFA (Complete Omega) and that contains also another essential fatty acid, GLA which is an omega-6 fatty acid. The latter appears to be beneficial to children with apraxia. It is not present in flax seed/flaxseed oil. None of these materials present with any known side effects or known toxicity in an otherwise healthy person. Nevertheless, we advise every user of supplements to use them under medical supervision. We don't know your child and we cannot provide you with medical advice. Sincerely, Katz, Ph.D. " About mercury and fish oil (vs. eating fish) " Fish oils have been tested for various heavy metals like mercury and there has been enough preliminary proof through studies, as well as theory from reputable sources, that as I've posted many times I've heard that the oils from fish may be the safest way to get the benefits of the EFAs without the toxins due to the fact that mercury etc. binds to the proteins/muscles of the fish. " Measurement of mercury levels in concentrated over-the-counter fish oil preparations: is fish oil healthier than fish? " " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract And one other thing to keep in mind for those like me who do eat both fish and take fish oil, there are toxins in the fish you eat that won't be in the oil For example while mercury etc. binds to the protein (muscle of the fish) so it's not in the oil of the fish. From what I've read -the largest problem with fish oil itself is rancidity. Oxygen and fish oil doesn't mix well. Consumer Reports had this to say (most likely because toxins in many cases bind to the protein and most oils are not tested for rancidity) " Consumer Reports tested 16 top-selling fish-oil pills which, like other supplements, aren't closely regulated by the FDA. Consumer Reports' Metcalf says the test results are reassuring, " We found that all 16 brands that we tested had the amount of Omega-3s that they said they did, which is good news. And, we don't always find that with supplements. " Since fish can contain toxins, Metcalf says Consumer Reports also checked the supplements for purity, " We tested for three kinds of toxins that often appear in fish - mercury, dioxin, and PCBs. " Testers didn't find significant levels of toxins in any of the pills tested, so you don't have to worry about contaminants. " http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_omega3.html " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html Here is an archive answer to answer more on EFAs: " I will use the following examples with the brand name ProEFA since that's the formula/dosage that seems to work the best for most of us (Efalex and EyeQ are similar Omega 3/6 formulas that also have good reports) For any brand name of Omega 3/6 formula -you could make the same formula by mixing together fish oil and either primrose or borage seed oil if you prefer -or as found -another brand name with a similar formula (and I hope also a good quality) If you mix two fish oils together which is fine if you know why you are doing that: Look at the amount of DHA, EPA (Omega 3) and the amount of GLA (Omega 6) and then add them all together to see what formula and dosage you now have is. So for those of you that ask - you can mix any brand names together you would like -however what you could change is the three things above (dosage, formula and *quality (*if one of the companies you start using has rancid oils which is not uncommon when it comes to fish oils -so make sure all brands you use are pure) Keep in mind in anecdotal feedback done by parents from all over through CHERAB -that pure Omega 3 or pure Omega 6 either showed no results -or very little results in almost all cases. Pure Omega 3 would include pure cod liver oil, fish oil, flax seed oil without any Omega 6. So even though there is only a small amount of GLA (Omega 6) in the formulas we found to be successful -GLA appears to be important to be there for some reason. GLA has anti-inflammatory properties which perhaps enable to DHA and EPA to get to where it's needed in the brain? Dosage of one capsule a day ProEFA that at the lowest dosage appears to be the best - 148 mg EPA 99 mg DHA 40 mg GLA Here is what many of us have found to be the best plan anecdotally: ....start with the basic formula, one ProEFA a day, we saw surges in a few days to three weeks which continued for months - we then reached a plateau after around 6 months. At this point we raised the dosage to two capsules of ProEFA a day and once again had those surges which lasted again for months. When we reached the next plateau after around a year, instead of going to three a day - we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of ProEFA and for almost all of us that try -that created another surge. Over time -you may raise the dosage up higher -and you may slightly change the formula to raise the Omega 3 over the Omega 6 ratio. Most found raising the EPA vs. the DHA or GLA to be best -but you need to know your own child, keep track of his progress through both your own observations and that of the professionals -with the advice of your child's doctor -to know what is best for him/her. There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet http://www.speechville.com Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 I would give more fish oil and, even more importantly IMO, carnaware - carnaware can produce amazing changes in language (carnaware.com). I saw a big difference after just a week, and I've heard other parents say the same thing. I would also consider essential GSH (liposomal glutathione) from wellnesshealth.com. Carnaware and the lipo glut really got my daughter talking (she was diagnosed with ASD and apraxia). I added extra vit E (400 IU) to my son's supps (above what he gets in carnaware and his multi-vitamin) about a week ago, but have not noticed any changes. But my son has only ASD, not apraxia. > > Hi, > > I have an 11 year old, 75 lb autistic son who has severe apraxia. I can understand his speech for the most part but most strangers cannot understand him. He uses an augmentative communication device that has been very helpful. > > I started my son on ProEFA 2 capsules per day (1 am, 1 pm) 4 months ago and noticed a slight improvement in my son's clarity of speech. I was wondering if I am giving a good dose or if there any other things I should try. I have read a few recent posts about vit E and wondering if many are using these? Also, wondering if many list members have tried different types of EFA's or different doses before finding a combination that really works well. Thanks! > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Thanks for the great info! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Thanks for the great info! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 You did a great job of covering it all De..Thanks .. RE: basic questions See answers below…. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Saturday, July 28, 2007 6:41 PMTo: HepatitisCSupportGroupForDummies Subject: basic questions Is it possible for a person to drive a car under these drugs? I drove myself to & from work every day, but let my daughter drive anywhere else party because she had her learner’s & needed practice and partly because of the fatigue. Also my son was locked up in south GA & I had to drive there to visit. Mom usually went with me to help with driving because I wasn’t comfortable in one position for a long time (body aches), but when they evacuated the Youth Academy for a hurricane, I left work at 5 after working all day and drove through the night down & back in the pouring rain and we made it safe & sound. What about eating do you need help or bathroom on bathroom what is more prevalent The only time I needed help with everyday stuff was after that drive when I was totally fatigued the next couple days and needed a steadying hand up the stairs to my sister’s wedding. Sometimes in the grocery, I had to lean on the cart – but remember, I worked overtime the whole time I was on tx – so I was TIRED. Diarrhea or Constipation ? Can’t remember. The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. Comes & goes. You’ll learn to not stand up too quickly if it bothers you, then you’ll be fine. I have been reading about bad headaches I had headaches and I put icepacks on the back of my neck. That helped a lot. Don’t know if this happens to everyone. I’ve had migraines my whole life. and Cough's and Chest congesion how do treat this or do you just learn to live with it. Mine was sporadic and just annoying. Not enough to actually treat. More like I wanted to clear my throat a lot. Someone mentioned taking your temperature every day all the time ? No way! That’s crazy! What about being able to relax enough to read or watch TV or for that mater That’s all I did when I wasn’t at work. I was a pure couch potato. I watched so many movies I ran out of stuff to rent from blockbuster.com! to walk ? Walking is good. I didn’t feel like it after working 9-12 hours a day Thank god I don't work.I don't shop or prepare meals should not that make it easier? More time for reading and watching tv! Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? I drank a lot of WalMart brand crystal light and propel. You just don’t want to load up on sugar & caffeine drinks instead of water. What about sleep can .I use this spay Melinonin does that help ? Ask your liver doc about the melatonin. The tx can cause insomnia and often someone will be one here to talk to in the middle of the night. If the insomnia is a big problem, your doc can give you something. Someone suggested taking the pills in the afternoon instead at night ? I think the goal is to take the pills about 12 hours apart to keep them steady in your system. I guess what I hear is the pills are worse than the shot...Doesn’t really matter since we have to take them both together. The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. I almost never actually threw up. Just that queasy feeling you get before. Mostly just a yucky feeling. Does this get any easier after say 30days ? YES!!!!! Really, after the 2nd week, as I recall. The first shot is the worst, we’ll tell you want to expect when it’s time. Then it gets better. Then the fatigue will build over time. I know there are other side effects but I have not heard of them yet? Everyone is different. What you have to remember is that no one gets every possible side there is, and you aren’t going to either. So quit stressing over it. Some people lose weight, some gain. Some can’t work, most can. Dick never missed a beat in his busy travel work schedule the whole time. I worked overtime and didn’t use a single day of vacation, even though I had plenty of days off for appts and rest days after visiting my son. Tim is halfway thru tx now and hasn’t missed any work, is a single dad with a 3 year old and his biggest complaint is fatigue and thrush. Bill, the anticipation is the worst part. Tx is doable for most people. And like my doc said – the worst that can happen is you have to quit. Regards Bill I am using the free version of SPAMfighter for private users.It has removed 4058 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 You did a great job of covering it all De..Thanks .. RE: basic questions See answers below…. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Saturday, July 28, 2007 6:41 PMTo: HepatitisCSupportGroupForDummies Subject: basic questions Is it possible for a person to drive a car under these drugs? I drove myself to & from work every day, but let my daughter drive anywhere else party because she had her learner’s & needed practice and partly because of the fatigue. Also my son was locked up in south GA & I had to drive there to visit. Mom usually went with me to help with driving because I wasn’t comfortable in one position for a long time (body aches), but when they evacuated the Youth Academy for a hurricane, I left work at 5 after working all day and drove through the night down & back in the pouring rain and we made it safe & sound. What about eating do you need help or bathroom on bathroom what is more prevalent The only time I needed help with everyday stuff was after that drive when I was totally fatigued the next couple days and needed a steadying hand up the stairs to my sister’s wedding. Sometimes in the grocery, I had to lean on the cart – but remember, I worked overtime the whole time I was on tx – so I was TIRED. Diarrhea or Constipation ? Can’t remember. The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. Comes & goes. You’ll learn to not stand up too quickly if it bothers you, then you’ll be fine. I have been reading about bad headaches I had headaches and I put icepacks on the back of my neck. That helped a lot. Don’t know if this happens to everyone. I’ve had migraines my whole life. and Cough's and Chest congesion how do treat this or do you just learn to live with it. Mine was sporadic and just annoying. Not enough to actually treat. More like I wanted to clear my throat a lot. Someone mentioned taking your temperature every day all the time ? No way! That’s crazy! What about being able to relax enough to read or watch TV or for that mater That’s all I did when I wasn’t at work. I was a pure couch potato. I watched so many movies I ran out of stuff to rent from blockbuster.com! to walk ? Walking is good. I didn’t feel like it after working 9-12 hours a day Thank god I don't work.I don't shop or prepare meals should not that make it easier? More time for reading and watching tv! Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? I drank a lot of WalMart brand crystal light and propel. You just don’t want to load up on sugar & caffeine drinks instead of water. What about sleep can .I use this spay Melinonin does that help ? Ask your liver doc about the melatonin. The tx can cause insomnia and often someone will be one here to talk to in the middle of the night. If the insomnia is a big problem, your doc can give you something. Someone suggested taking the pills in the afternoon instead at night ? I think the goal is to take the pills about 12 hours apart to keep them steady in your system. I guess what I hear is the pills are worse than the shot...Doesn’t really matter since we have to take them both together. The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. I almost never actually threw up. Just that queasy feeling you get before. Mostly just a yucky feeling. Does this get any easier after say 30days ? YES!!!!! Really, after the 2nd week, as I recall. The first shot is the worst, we’ll tell you want to expect when it’s time. Then it gets better. Then the fatigue will build over time. I know there are other side effects but I have not heard of them yet? Everyone is different. What you have to remember is that no one gets every possible side there is, and you aren’t going to either. So quit stressing over it. Some people lose weight, some gain. Some can’t work, most can. Dick never missed a beat in his busy travel work schedule the whole time. I worked overtime and didn’t use a single day of vacation, even though I had plenty of days off for appts and rest days after visiting my son. Tim is halfway thru tx now and hasn’t missed any work, is a single dad with a 3 year old and his biggest complaint is fatigue and thrush. Bill, the anticipation is the worst part. Tx is doable for most people. And like my doc said – the worst that can happen is you have to quit. Regards Bill I am using the free version of SPAMfighter for private users.It has removed 4058 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 Thank you all For all the help A group kiss I wish I could I wish we could all go out and get drunk together without any effects ! XOXOX Warmest Regards Bazooka Bill RE: basic questions See answers below…. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Saturday, July 28, 2007 6:41 PMTo: HepatitisCSupportGroupForDummies Subject: basic questions Is it possible for a person to drive a car under these drugs? I drove myself to & from work every day, but let my daughter drive anywhere else party because she had her learner’s & needed practice and partly because of the fatigue. Also my son was locked up in south GA & I had to drive there to visit. Mom usually went with me to help with driving because I wasn’t comfortable in one position for a long time (body aches), but when they evacuated the Youth Academy for a hurricane, I left work at 5 after working all day and drove through the night down & back in the pouring rain and we made it safe & sound. What about eating do you need help or bathroom on bathroom what is more prevalent The only time I needed help with everyday stuff was after that drive when I was totally fatigued the next couple days and needed a steadying hand up the stairs to my sister’s wedding. Sometimes in the grocery, I had to lean on the cart – but remember, I worked overtime the whole time I was on tx – so I was TIRED. Diarrhea or Constipation ? Can’t remember. The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. Comes & goes. You’ll learn to not stand up too quickly if it bothers you, then you’ll be fine. I have been reading about bad headaches I had headaches and I put icepacks on the back of my neck. That helped a lot. Don’t know if this happens to everyone. I’ve had migraines my whole life. and Cough's and Chest congesion how do treat this or do you just learn to live with it. Mine was sporadic and just annoying. Not enough to actually treat. More like I wanted to clear my throat a lot. Someone mentioned taking your temperature every day all the time ? No way! That’s crazy! What about being able to relax enough to read or watch TV or for that mater That’s all I did when I wasn’t at work. I was a pure couch potato. I watched so many movies I ran out of stuff to rent from blockbuster.com! to walk ? Walking is good. I didn’t feel like it after working 9-12 hours a day Thank god I don't work.I don't shop or prepare meals should not that make it easier? More time for reading and watching tv! Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? I drank a lot of WalMart brand crystal light and propel. You just don’t want to load up on sugar & caffeine drinks instead of water. What about sleep can .I use this spay Melinonin does that help ? Ask your liver doc about the melatonin. The tx can cause insomnia and often someone will be one here to talk to in the middle of the night. If the insomnia is a big problem, your doc can give you something. Someone suggested taking the pills in the afternoon instead at night ? I think the goal is to take the pills about 12 hours apart to keep them steady in your system. I guess what I hear is the pills are worse than the shot...Doesn’t really matter since we have to take them both together. The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. I almost never actually threw up. Just that queasy feeling you get before. Mostly just a yucky feeling. Does this get any easier after say 30days ? YES!!!!! Really, after the 2nd week, as I recall. The first shot is the worst, we’ll tell you want to expect when it’s time. Then it gets better. Then the fatigue will build over time. I know there are other side effects but I have not heard of them yet? Everyone is different. What you have to remember is that no one gets every possible side there is, and you aren’t going to either. So quit stressing over it. Some people lose weight, some gain. Some can’t work, most can. Dick never missed a beat in his busy travel work schedule the whole time. I worked overtime and didn’t use a single day of vacation, even though I had plenty of days off for appts and rest days after visiting my son. Tim is halfway thru tx now and hasn’t missed any work, is a single dad with a 3 year old and his biggest complaint is fatigue and thrush. Bill, the anticipation is the worst part. Tx is doable for most people. And like my doc said – the worst that can happen is you have to quit. Regards Bill I am using the free version of SPAMfighter for private users.It has removed 4058 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 RE: basic questions Drink that gallon of water if you want the sides to be less.I use Crystal light,no sugar but water tastes good with it.You Have To Drink The Water So Start Now And Get Used To It If You Want Treatment To Go Better. There were times I couldn't drive,so you make sure there is enough groceries in the house in advance and that will be at aboat the 3/4 mark of treatment when that happens.The forgetfulness or brain fog will set in within the first three months.A lot of people don't get the cough of sinis problems.A lot get the headaces.Everyone is so different in how they react to treatment and we help them along the way when the sides come.We use our own experience on what we did with the sides.Don't let your fear win this battle cause it would be a high price to pay if you don't get treated. Gail Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end .......Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 RE: basic questions Drink that gallon of water if you want the sides to be less.I use Crystal light,no sugar but water tastes good with it.You Have To Drink The Water So Start Now And Get Used To It If You Want Treatment To Go Better. There were times I couldn't drive,so you make sure there is enough groceries in the house in advance and that will be at aboat the 3/4 mark of treatment when that happens.The forgetfulness or brain fog will set in within the first three months.A lot of people don't get the cough of sinis problems.A lot get the headaces.Everyone is so different in how they react to treatment and we help them along the way when the sides come.We use our own experience on what we did with the sides.Don't let your fear win this battle cause it would be a high price to pay if you don't get treated. Gail Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end .......Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Drink that gallon of water if you want the sides to be less.I use Crystal light,no sugar but water tastes good with it.You Have To Drink The Water So Start Now And Get Used To It If You Want Treatment To Go Better. There were times I couldn't drive,so you make sure there is enough groceries in the house in advance and that will be at aboat the 3/4 mark of treatment when that happens.The forgetfulness or brain fog will set in within the first three months.A lot of people don't get the cough of sinis problems.A lot get the headaces.Everyone is so different in how they react to treatment and we help them along the way when the sides come.We use our own experience on what we did with the sides.Don't let your fear win this battle cause it would be a high price to pay if you don't get treated. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: July 28, 2007 3:41 PMTo: HepatitisCSupportGroupForDummies Subject: basic questions Is it possible for a person to drive a car under these drugs? What about eating do you need help or bathroom on bathroom what is more prevalent Diareaha or Constipation ? The dizziness is this a normal effect is it 24x7x365 do these effects stop and go or are they on 100% of the time. I have been reading about bad headaches and Cough's and Chest congesion how do treat this or do you just learn to live with it. Someone mentioned taking your temperature every day all the time ? What about being able to relax enough to read or watch TV or for that mater to walk ? Thank god I don't work.I don't shop or prepare meals should not that make it easier? Drinking a gallon of water a day will make me sick I hate water how about a light Lemonaid sweetend with Stevia? What about sleep can .I use this spay Melinonin does that help ? Someone suggested taking the pills in the afternoon instead at night ? I guess what I hear is the pills are worse than the shot...The nausea I used an ice pack behind my neck can that help or am I most likely going to keep throwing up everything. Does this get any easier after say 30days ? I know there are other side effects but I have not heard of them yet? Regards Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Now wouldn’t THAT be cool? XOXOXOX to all /De Re: basic questions Thank you all For all the help A group kiss I wish I could I wish we could all go out and get drunk together without any effects ! XOXOX Warmest Regards Bazooka Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Now wouldn’t THAT be cool? XOXOXOX to all /De Re: basic questions Thank you all For all the help A group kiss I wish I could I wish we could all go out and get drunk together without any effects ! XOXOX Warmest Regards Bazooka Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Bill, if you have issues that require you to have a caregiver, you might consider having someone spend the night with you the first shot night. It’s a rough one, but after that they are OK. Remember that Gail did the old tx, 3 shots a week of straight interferon. It was MUCH harder on a body. You’ll do pegylated which is time released so it won’t have the peaks and valleys like the old kind did. Most of us were never house-bound with pegylated tx. You won’t be alone and sick though Bill, you’ll have US!!!!!!!!! And don’t you forget it! Re: basic questions Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end ........Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Bill, if you have issues that require you to have a caregiver, you might consider having someone spend the night with you the first shot night. It’s a rough one, but after that they are OK. Remember that Gail did the old tx, 3 shots a week of straight interferon. It was MUCH harder on a body. You’ll do pegylated which is time released so it won’t have the peaks and valleys like the old kind did. Most of us were never house-bound with pegylated tx. You won’t be alone and sick though Bill, you’ll have US!!!!!!!!! And don’t you forget it! Re: basic questions Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end ........Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Maybe if he will let us know what night his first shot is, some of us can make sure we are online that night. I know I will, If I know I'm needed. Hugs, VickieG Motley wrote: Bill, if you have issues that require you to have a caregiver, you might consider having someone spend the night with you the first shot night. It’s a rough one, but after that they are OK. Remember that Gail did the old tx, 3 shots a week of straight interferon. It was MUCH harder on a body. You’ll do pegylated which is time released so it won’t have the peaks and valleys like the old kind did. Most of us were never house-bound with pegylated tx. You won’t be alone and sick though Bill, you’ll have US!!!!!!!!! And don’t you forget it! -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Sunday, July 29, 2007 2:03 AMTo: HepatitisCSupportGroupForDummies Subject: Re: basic questions Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end .......Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Bill wrote RE: basic questions Maybe if he will let us know what night his first shot is, some of us can make sure we are online that night. I know I will, If I know I'm needed. Hugs, VickieG Motley wrote: Bill, if you have issues that require you to have a caregiver, you might consider having someone spend the night with you the first shot night. That might have been a bad choice of words.My assistant ,helper as I have goten older my disability has become worse.In 1970 I ran into a tree on a Huskvarna 400 motorcycle practicing for the Baja 500 it did not heal so they operated got HEP lucky for me I had 35 good years. Dora my assistant the family hired in 1986 to take care of my life because I had become a mess.She has her own family but she is about the only family I have. We are more brother & Sister after 21 years I reli on her for everything...Every liver doctor who comes in contact with me thinks I must have been a drunk.When I got Jaundiced and they cured me. The doctor said I could drink in moderation but if I got pain to stop.For some reason I can only assume is spiritual I got 35 years for free lucky years safe years. Without Dora I would've died a long time ago and I am counting on her to get me through she is kind of my ACE IN THE HOLE ! It’s a rough one, but after that they are OK. Remember that Gail did the old tx, 3 shots a week of straight interferon. It was MUCH harder on a body. You’ll do pegylated which is time released so it won’t have the peaks and valleys like the old kind did. Most of us were never house-bound with pegylated tx. You won’t be alone and sick though Bill, you’ll have US!!!!!!!!! And don’t you forget it! AND DORA! -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Sunday, July 29, 2007 2:03 AMTo: HepatitisCSupportGroupForDummies Subject: Re: basic questions Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end .......Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Bill wrote RE: basic questions Maybe if he will let us know what night his first shot is, some of us can make sure we are online that night. I know I will, If I know I'm needed. Hugs, VickieG Motley wrote: Bill, if you have issues that require you to have a caregiver, you might consider having someone spend the night with you the first shot night. That might have been a bad choice of words.My assistant ,helper as I have goten older my disability has become worse.In 1970 I ran into a tree on a Huskvarna 400 motorcycle practicing for the Baja 500 it did not heal so they operated got HEP lucky for me I had 35 good years. Dora my assistant the family hired in 1986 to take care of my life because I had become a mess.She has her own family but she is about the only family I have. We are more brother & Sister after 21 years I reli on her for everything...Every liver doctor who comes in contact with me thinks I must have been a drunk.When I got Jaundiced and they cured me. The doctor said I could drink in moderation but if I got pain to stop.For some reason I can only assume is spiritual I got 35 years for free lucky years safe years. Without Dora I would've died a long time ago and I am counting on her to get me through she is kind of my ACE IN THE HOLE ! It’s a rough one, but after that they are OK. Remember that Gail did the old tx, 3 shots a week of straight interferon. It was MUCH harder on a body. You’ll do pegylated which is time released so it won’t have the peaks and valleys like the old kind did. Most of us were never house-bound with pegylated tx. You won’t be alone and sick though Bill, you’ll have US!!!!!!!!! And don’t you forget it! AND DORA! -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SegalSent: Sunday, July 29, 2007 2:03 AMTo: HepatitisCSupportGroupForDummies Subject: Re: basic questions Thank you gail. In some respects It be a little easier for me cause I have been a hermit for years rarely get out of the house. for weeks,months on end .......Being alone and sick will be the hardest part especially at night after Dora my care giver leaves.months Thank you g Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 And I'm on Eastern. Don't worry folks, I gave Bill my phone # a while back & you know me - insomniac central here. If you need anybody Bill, you know where to find me. Just let us know when you start, we'll be ready for anything. Hugs, SuZie & Sir SpYke the Skunk-loverVickieG wrote: I'm in central time gail <gaila@....ca> wrote: I can be on line that night too.If we rotate then he will have someone handyi all night with the different time zones.I am in Atlantic Time. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of MotleySent: July 30, 2007 4:32 AMTo: HepatitisCSupportGroupForDummies Subject: RE: basic questions Bill, I can be available by phone if you do it on Friday or Saturday, but would appreciate it if someone else would step up if it’s another day since I have to work and I’m 3 hours ahead. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of VickieGSent: Sunday, July 29, 2007 10:01 AMTo: HepatitisCSupportGroupForDummies Subject: RE: basic questions Maybe if he will let us know what night his first shot is, some of us can make sure we are online that night. I know I will, If I know I'm needed. Hugs, VickieG Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
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