Re: Credibility issues

[Guest guest]

Sherry, I think your advice is appreciated, and I hope that some of the women will make use of it. I don't think you are being insulted, by the way. You are welcome to come here and share your thoughts, but can we not also share ours regarding what you are saying? You may have it figured out, but why not give us the benefit of also sharing our experiences regarding doctors? There are many of us, and maybe we have done what you said, and it didn't work. I am wondering how we as patients can go to a doctor and make a claim about mold or fungus when, as new patients, we don't even know what is happening to our bodies? I didn't have a clue about mold or fungus when I got sick. What I did as a patient was go to my rheumatologist and TELL HIM what I was experiencing. All I can do is testify to what I experienced. I made no claims other than I

was well before implants, sick after implants, and made the only connection that made sense to me. For this, my physician washed his hands of me. I made no other claims other than I was well before implants, sick after, and my blood work proved it. Yet, he didn't want anything to do with me because I had implants. It is up to the physicians to draw the appropriate conclusions with the information that the patient is presenting. The onus is on them, not the patient, to come up with a diagnosis. Their job is to figure out what is going on, regardless of what a patient claims. The problem with doctors is that they've already made up their mind. They are closed to the idea that implants might be making women ill. I know you want to help us be able to help the physicians, but why do you fault a patient for only speaking what they have

experienced? If someone wants to draw a conclusion that does not seem at first plausible, there is no harm in it...and actually, it is only by talking about our various symptoms that we are able to find commonalities. If my feet hurt, it may not seem to be implant related, but if all the women who had implants have painful feet, then maybe something is there to consider. We need the freedom to do that. Please, don't feel that we are insulting you or your efforts. I think we are just sharing our experiences. Please, just allow us the freedom to speak, as we allow you. It is nice that you are a physician, and we appreciate your work, but we are all equals here. Patty _00_ <5678@...> wrote: I thank everyone who offered information and hospitality. I don't want to be insulted further without even the benefit of anyone recognizing the validity of my advice. When patients are dismissed "as nut cases", it is because they made claims that made no scientific sense. I have explained that most physicians are unaware of the fungus and mold association that does make sense. Claiming to have a list of symptoms that I have heard here - such as prominent veins in the hand - and associating that with the mere presence of implants - without associating the migration and presence of fungus - is a sure way to be dismissed as a nut case. Best wishes for health to all. Sherry

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[Guest guest]

Not in the US, they haven't Sherry. They probably will, but the FDA has still

not approved

them.

> > > > > > >

> > > > > > > The medical community largely dismisses the notion that

> > the

> > > > foreign body, silicone,

> > > > > > implanted into the body causes illness. This is dismissed

> > > > because there has been no

> > > > > > presentation regarding the formation of mold and fungus.

> > Were

> > > > THAT presented with

> > > > > > results from cultures, the medical community would

> > BELIEVE.

> > > > That the mere presence

> > > > > of a

> > > > > > silicone implant is responsible for so many illnesses is

> > > > dismissed because it makes no

> > > > > > sense UNTIL the development of fungus is presented.

> > Please

> > > > know that this theory has

> > > > > not

> > > > > > made its way into the medical literature.

> > > > > > >

> > > > > > > Can anyone send me actual culture results along with

> > > > implant histories?

> > > > > > >

> > > > > > > Thank you,

> > > > > > > Sherry

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > Opinions expressed are NOT meant to take the place of

> > advice

> > > > given by licensed health

> > > > > care professionals. Consult your physician or licensed health

> > > > care professional before

> > > > > commencing any medical treatment.

> > > > > >

> > > > > > " Do not let either the medical authorities or the

> > politicians

> > > > mislead you. Find out what

> > > > > the facts are, and make your own decisions about how to live

> > a

> > > > happy life and how to work

> > > > > for a better world. " - Linus ing, two-time Nobel Prize

> > Winner

> > > > (1954, Chemistry; 1963,

> > > > > Peace)

> > > > > >

> > > > > > See our photos website! Enter " implants " for access at

> > this

> > > > link:

> > > > > > http://.shutterfly.com/action/

> > > > > >

> > > > > >

[Guest guest]

This is good advice, Sherry. What doctors SHOULD do and what they DO are

different

things. The more specific we can be, the more factual, without 'emotion' in

describing our

problems, the better chance we have. One thing that I have found helpful is to

write down

specifics so when I go to the doctor, I have it to refer to.

> > >Statements like " it was in my brain all the way to my feet " get

> in

> > >the way of physicians taking you seriously. Physicians are literal

> > >creatures and when patients make such statements, since they are

> not

> > >literally factual, credibility is lost. Instead, present yourself

> > >with accuracy and without any drama.

> > >

> > >How would you feel about saying, instead, " Soon after my

> > >implantation, I developed numerous systemic symptoms such that I

> > >felt overwhelmingly ill and was unable to impact any improvement

> in

> > >my health regardless of what remedies various physicians

> prescribed.

> > >I became more and more ill. Eventually, I was encouraged to

> consider

> > >a linkage between my debilitating symptoms and my implants and

> > >encouraged to have them removed. When they were removed, the

> > >implants were found to have deteriorated and, in addition to

> having

> > >leaked into my lymphatic system, they were actually infiltrated by

> > >mold and fungus. Soon after explantation, my illnesses began to

> ease

> > >and recovery seemed to be in progress. I look forward to

> physicians

> > >looking more closely at cases such as mine so as to avoid

> > >recurrences of these grave problems for other women. "

> > > Sherry

> > > Re: Credibility issues

> > >

> > >Lea,

> > >

> > >AMEN to that story. I am going to read your story and so sorry

> > >those things destroyed your health. I am talking Saline for me

> and

> > >in one year and 4 months destroyed me so I understand. I don't

> feel

> > >like we have to convince anyone of this we know the truth. I am a

> > >firm believer, I don't have the pathologist reports back, but when

> I

> > >get them I will let everyone know what was growing in my one year

> > >old saline implants. Whatever it was no antibiotics could kill

> it,

> > >it was in my brain all the way to my feet. I believe every word

> > >anyone says about silicone and saline, I am living proof of the

> fact.

> > >

> > >Donna

> > >

> > >

> > >Opinions expressed are NOT meant to take the place of advice given

> > >by licensed health care professionals. Consult your physician or

> > >licensed health care professional before commencing any medical

> treatment.

> > >

> > > " Do not let either the medical authorities or the politicians

> > >mislead you. Find out what the facts are, and make your own

> > >decisions about how to live a happy life and how to work for a

> > >better world. " - Linus ing, two-time Nobel Prize Winner (1954,

> > >Chemistry; 1963, Peace)

> > >

> > >See our photos website! Enter " implants " for access at this link:

> >

> ><http://.shutterfly.com/action/>http://.shu

> tterfly.com/action/

> > >

> > >

[Guest guest]

Patty,

I always think that it was too bad we trusted our PS, for as long as we did. I went to the I thought was the best a 30 year PS. If he can't tell me I have a grade 3 cc or not. Well if you ask me they are a a lot of PS who don't take us serious and should that is for sure.

Donna

[Guest guest]

Molly,

I got back my operative report call me sometime if you want to get sick. I almost threw up reading it. I just don't understand how a PS of 30 years chief of Yale my ass.

Donna

[Guest guest]

Donna,

That is so very true. I have about zero respect for most plastic surgeons.

>

> Patty,

>

> I always think that it was too bad we trusted our PS, for as long as we did.

> I went to the I thought was the best a 30 year PS. If he can't tell me I

> have a grade 3 cc or not. Well if you ask me they are a a lot of PS who don't

> take us serious and should that is for sure.

>

> Donna

>

[Guest guest]

Sherry,

E-mail me at auntsisnj@... and I'll give you the

rheumatologist's name again. I don't want to put her name here

without her permission, even though she totally supports the concept

of implant illness.

Also, I think what you're seeing here (the anger with doctors) is

basically venting, I know I didn't go into any of my doctors offices

calling them names or not speaking clearly about my symptoms, and

I'm sure most of us didn't do that either. I was very clear and I

know the history of when various symptoms started. It's just years

of frustration that gets built up and people end up angry. Don't

take it personally, even though you're in the medical profession as

well, it's probably the only place alot of us can go where we can

vent and actually have people understand where it's coming from.

Sis

> > >Statements like " it was in my brain all the way to my feet "

get

> in

> > >the way of physicians taking you seriously. Physicians are

literal

> > >creatures and when patients make such statements, since they

are

> not

> > >literally factual, credibility is lost. Instead, present

yourself

> > >with accuracy and without any drama.

> > >

> > >How would you feel about saying, instead, " Soon after my

> > >implantation, I developed numerous systemic symptoms such

that I

> > >felt overwhelmingly ill and was unable to impact any

improvement

> in

> > >my health regardless of what remedies various physicians

> prescribed.

> > >I became more and more ill. Eventually, I was encouraged to

> consider

> > >a linkage between my debilitating symptoms and my implants

and

> > >encouraged to have them removed. When they were removed, the

> > >implants were found to have deteriorated and, in addition to

> having

> > >leaked into my lymphatic system, they were actually

infiltrated by

> > >mold and fungus. Soon after explantation, my illnesses began

to

> ease

> > >and recovery seemed to be in progress. I look forward to

> physicians

> > >looking more closely at cases such as mine so as to avoid

> > >recurrences of these grave problems for other women. "

> > > Sherry

> > > Re: Credibility issues

> > >

> > >Lea,

> > >

> > >AMEN to that story. I am going to read your story and so

sorry

> > >those things destroyed your health. I am talking Saline for

me

> and

> > >in one year and 4 months destroyed me so I understand. I

don't

> feel

> > >like we have to convince anyone of this we know the truth. I

am a

> > >firm believer, I don't have the pathologist reports back, but

when

> I

> > >get them I will let everyone know what was growing in my one

year

> > >old saline implants. Whatever it was no antibiotics could

kill

> it,

> > >it was in my brain all the way to my feet. I believe every

word

> > >anyone says about silicone and saline, I am living proof of

the

> fact.

> > >

> > >Donna

> > >

> > >

> > >Opinions expressed are NOT meant to take the place of advice

given

> > >by licensed health care professionals. Consult your physician

or

> > >licensed health care professional before commencing any

medical

> treatment.

> > >

> > > " Do not let either the medical authorities or the politicians

> > >mislead you. Find out what the facts are, and make your own

> > >decisions about how to live a happy life and how to work for

a

> > >better world. " - Linus ing, two-time Nobel Prize Winner

(1954,

> > >Chemistry; 1963, Peace)

> > >

> > >See our photos website! Enter " implants " for access at this

link:

> >

>

><http://.shutterfly.com/action/>http://.sh

u

> tterfly.com/action/

> > >

> > >