Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 http://www.mostateparks.com/hahatonka/geninfo.htm long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Fri, October 9, 2009 9:47:12 PM Subject: Re: (unknown) Debbie, below the cliff at Ha Ha Tonka there is the most beautiful spring. I think this is likely part of the naming of it, and am curious if it translated to laughing rocks. No idea for sure, but am going to check. Peace and comfort, Dave ____________ _________ _________ __ From: drgonflyblue <pita54meyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Fri, October 9, 2009 5:48:54 PM Subject: Re: (unknown) Have a safe trip Dave. I have heard of Lake Ozark but not Ha-Ha Tonka but anyplace with the word HAHA in it has to be a good place right? Enjoy the family...Best wishes~~~Debbie > > > > Thank you Lyncia, I could use one. After I wrote earlier the wife of my best buddy since we were 2 yrs. old called. I have been kind of a secondary caregiver for him now 2 yrs. He is battling cancer, and the hospice nurse says he will likely have maybe a month left. He is becoming very mentally disoriented now, and she says it will only get worse. He is not to be alone, so while she is working I will be there. Quite depressing watching your best friend inch closer and closer to death. > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Lyncia <lmlangdon@ ..> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Thu, October 8, 2009 2:19:17 PM > > Subject: Re: (unknown) > > > > > > Dave, > > > > I wish that I could comfort you more ........ .... you need a big (((((((((((( (hug))))) )))))))). We are here for you when needed. > > > > Love, Lyncia > > > > > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoe@ yahoo. com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Thu, October 8, 2009 10:09:22 AM > > Subject: (unknown) > > > > > > I am sorry Debbie, that you are having this conflict with your daughter. I'm sure your precious little 2 yr. old grand baby leaving is particularly difficult. It seems too often be a common thread, this conflict between mothers and daughters. My daughter just phoned me to tell me her mother had been diagnosed with cirrhosis. My baby girl, now 30 with a whirlwind sweet two year old boy, was our only child. When she was 4, I gained custody of her. We have a great relationship, whereas her relationship with her mom has been torturous at best. But she loves her mother, and even though we both knew her mother had liver problems, she was quite upset. My X and self rarely talk. She is remarried, and I remarried for a while. She still drinks along with assorted other liver unfriendly items. Knowledge of Hep C didn't slow her down. Maybe cirrhosis will. Makes me feel so bad that my child had to deal with our stupidity in her younger > > years, and is still having to deal with this cirrhosis all around her. Her lil' guy could easily loose both his grandparents at a very young age. But I have already kicked myself really hard numerous times, and am working on getting over that. It is so true that addiction is a family disease, and so is this disease. Just rambling. Got things I need to be doing. Peace and comfort to you all, > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 As difficult as it is, it is such a blessing to have those in our lives who have shared all the seasons of life and here we are, blessed to share this last season of our life on this earth. I have to tell you that, even though it was the hardest thing I have ever done, being there for and with Terry as he took his last breath was one of the most precious moments of my life. Whatever the future holds Dave, I know you will do well because you are a giver and that comes back to you in ways you may not yet realize. My prays are with you. Warm Hugs........... Di http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Friday, October 9, 2009 10:29:03 PM Subject: Re: (unknown) Thank you Diane..I know practically everyone here can relate..I was there today, watching him while his wife was working, and he is becoming more and more disoriented. I am afraid he will pull his pain pump out, or God knows what. I am afraid he may have to go into a nursing home soon, because I don't think she can take much more, or handle him much longer. I know that is the last thing he would want, but she is looking so weak herself. I am glad his family will have to reach that decision and not me. Thw tumor is his side just keeps getting bigger and bigger. Honestly close to grapefruit size. Poor guy. We have been through everything in life together. I guess it is fitting we go through this together as well. Dave ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Fri, October 9, 2009 4:10:17 AM Subject: Re: (unknown) Dave, I am so sorry. Yes, it is very difficult to watch your loved one dying. Please know you and your friend are in my thoughts and prayers. Warm Hugs........ ... Di http://auntdisexper imentallife. blogspot. com/ ____________ _________ _________ __ From: dave dodds <daveliltoe@ yahoo. com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Thursday, October 8, 2009 2:54:59 PM Subject: Re: (unknown) Thank you Lyncia, I could use one. After I wrote earlier the wife of my best buddy since we were 2 yrs. old called. I have been kind of a secondary caregiver for him now 2 yrs. He is battling cancer, and the hospice nurse says he will likely have maybe a month left. He is becoming very mentally disoriented now, and she says it will only get worse. He is not to be alone, so while she is working I will be there. Quite depressing watching your best friend inch closer and closer to death. Dave ____________ _________ _________ __ From: Lyncia <lmlangdonyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Thu, October 8, 2009 2:19:17 PM Subject: Re: (unknown) Dave, I wish that I could comfort you more ........ .... you need a big (((((((((((( (hug))))) )))))))). We are here for you when needed. Love, Lyncia ____________ _________ _________ __ From: dave dodds <daveliltoe@ yahoo. com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Thu, October 8, 2009 10:09:22 AM Subject: (unknown) I am sorry Debbie, that you are having this conflict with your daughter. I'm sure your precious little 2 yr. old grand baby leaving is particularly difficult. It seems too often be a common thread, this conflict between mothers and daughters. My daughter just phoned me to tell me her mother had been diagnosed with cirrhosis. My baby girl, now 30 with a whirlwind sweet two year old boy, was our only child. When she was 4, I gained custody of her. We have a great relationship, whereas her relationship with her mom has been torturous at best. But she loves her mother, and even though we both knew her mother had liver problems, she was quite upset. My X and self rarely talk. She is remarried, and I remarried for a while. She still drinks along with assorted other liver unfriendly items. Knowledge of Hep C didn't slow her down. Maybe cirrhosis will. Makes me feel so bad that my child had to deal with our stupidity in her younger years, and is still having to deal with this cirrhosis all around her. Her lil' guy could easily loose both his grandparents at a very young age. But I have already kicked myself really hard numerous times, and am working on getting over that. It is so true that addiction is a family disease, and so is this disease. Just rambling. Got things I need to be doing. Peace and comfort to you all, Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2009 Report Share Posted October 10, 2009 Thanks Dave, I'm getting ready to head back to bed hoping for sleep and that's going to be my " happy place " that I'm going to. I'm going to lie on the rocks in the sun and feel the warmth of them on my aching back and listen to the wind rustle the trees and the sound of the spring and then after I've basked in the sunlight I'm going to go down to the spring and have a nice cool drink and lie in the shade with my hand in the water and with the wonderful, earthy smells all around...gee, I'd forgotten how much I miss all that. Heck while I'm at it, after I rest I'm going to get up and find the most loaded Morel patch I've ever seen and then I'm going home and fry up a batch of those and Hep C be dammed...mmmm...that does all make for sweet dreams...Enjoy your trip...Best wishes~~~Debbie > > > > > > Thank you Lyncia, I could use one. After I wrote earlier the wife of my best buddy since we were 2 yrs. old called. I have been kind of a secondary caregiver for him now 2 yrs. He is battling cancer, and the hospice nurse says he will likely have maybe a month left. He is becoming very mentally disoriented now, and she says it will only get worse. He is not to be alone, so while she is working I will be there. Quite depressing watching your best friend inch closer and closer to death. > > > Dave > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Lyncia <lmlangdon@ ..> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Thu, October 8, 2009 2:19:17 PM > > > Subject: Re: (unknown) > > > > > > > > > Dave, > > > > > > I wish that I could comfort you more ........ .... you need a big (((((((((((( (hug))))) )))))))). We are here for you when needed. > > > > > > Love, Lyncia > > > > > > > > > > > > ____________ _________ _________ __ > > > From: dave dodds <daveliltoe@ yahoo. com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Thu, October 8, 2009 10:09:22 AM > > > Subject: (unknown) > > > > > > > > > I am sorry Debbie, that you are having this conflict with your daughter. I'm sure your precious little 2 yr. old grand baby leaving is particularly difficult. It seems too often be a common thread, this conflict between mothers and daughters. My daughter just phoned me to tell me her mother had been diagnosed with cirrhosis. My baby girl, now 30 with a whirlwind sweet two year old boy, was our only child. When she was 4, I gained custody of her. We have a great relationship, whereas her relationship with her mom has been torturous at best. But she loves her mother, and even though we both knew her mother had liver problems, she was quite upset. My X and self rarely talk. She is remarried, and I remarried for a while. She still drinks along with assorted other liver unfriendly items. Knowledge of Hep C didn't slow her down. Maybe cirrhosis will. Makes me feel so bad that my child had to deal with our stupidity in her > younger > > > years, and is still having to deal with this cirrhosis all around her. Her lil' guy could easily loose both his grandparents at a very young age. But I have already kicked myself really hard numerous times, and am working on getting over that. It is so true that addiction is a family disease, and so is this disease. Just rambling. Got things I need to be doing. Peace and comfort to you all, > > > Dave > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2009 Report Share Posted October 10, 2009 I didn't mention that right now my " happy place " has a precious 9 yr. old grandaughter in it and 2 chi/pekenise puppies who are generous enough to let me share their bed...ahhhh...life! > > > > > > > > Thank you Lyncia, I could use one. After I wrote earlier the wife of my best buddy since we were 2 yrs. old called. I have been kind of a secondary caregiver for him now 2 yrs. He is battling cancer, and the hospice nurse says he will likely have maybe a month left. He is becoming very mentally disoriented now, and she says it will only get worse. He is not to be alone, so while she is working I will be there. Quite depressing watching your best friend inch closer and closer to death. > > > > Dave > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > From: Lyncia <lmlangdon@ ..> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Thu, October 8, 2009 2:19:17 PM > > > > Subject: Re: (unknown) > > > > > > > > > > > > Dave, > > > > > > > > I wish that I could comfort you more ........ .... you need a big (((((((((((( (hug))))) )))))))). We are here for you when needed. > > > > > > > > Love, Lyncia > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > From: dave dodds <daveliltoe@ yahoo. com> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Thu, October 8, 2009 10:09:22 AM > > > > Subject: (unknown) > > > > > > > > > > > > I am sorry Debbie, that you are having this conflict with your daughter. I'm sure your precious little 2 yr. old grand baby leaving is particularly difficult. It seems too often be a common thread, this conflict between mothers and daughters. My daughter just phoned me to tell me her mother had been diagnosed with cirrhosis. My baby girl, now 30 with a whirlwind sweet two year old boy, was our only child. When she was 4, I gained custody of her. We have a great relationship, whereas her relationship with her mom has been torturous at best. But she loves her mother, and even though we both knew her mother had liver problems, she was quite upset. My X and self rarely talk. She is remarried, and I remarried for a while. She still drinks along with assorted other liver unfriendly items. Knowledge of Hep C didn't slow her down. Maybe cirrhosis will. Makes me feel so bad that my child had to deal with our stupidity in her > > younger > > > > years, and is still having to deal with this cirrhosis all around her. Her lil' guy could easily loose both his grandparents at a very young age. But I have already kicked myself really hard numerous times, and am working on getting over that. It is so true that addiction is a family disease, and so is this disease. Just rambling. Got things I need to be doing. Peace and comfort to you all, > > > > Dave > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Well put,Dave. Thanks! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, October 16, 2009 4:22:51 PM Subject: (unknown) This group is like other groups. Made up of people with varied beliefs and backgrounds. Brought together by a common factor, End Stage Liver Disease, (ESLD). We could not possibly all think about all issues the same, but we share our experiences and knowledge about this life changing condition. And because of that we share a bond. We know, like no one else can, an empathy for each other. I care about all of you, and hope for your peace and comfort through this trying and difficult time in our lives. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Very well said Dave! Warm Hugs........... Di http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Friday, October 16, 2009 3:22:51 PM Subject: (unknown) This group is like other groups. Made up of people with varied beliefs and backgrounds. Brought together by a common factor, End Stage Liver Disease, (ESLD). We could not possibly all think about all issues the same, but we share our experiences and knowledge about this life changing condition. And because of that we share a bond. We know, like no one else can, an empathy for each other. I care about all of you, and hope for your peace and comfort through this trying and difficult time in our lives. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Very well said Dave! Warm Hugs........... Di http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Friday, October 16, 2009 3:22:51 PM Subject: (unknown) This group is like other groups. Made up of people with varied beliefs and backgrounds. Brought together by a common factor, End Stage Liver Disease, (ESLD). We could not possibly all think about all issues the same, but we share our experiences and knowledge about this life changing condition. And because of that we share a bond. We know, like no one else can, an empathy for each other. I care about all of you, and hope for your peace and comfort through this trying and difficult time in our lives. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Sounds like you are doing great Dave! Roni > Less than 1%, if I researched correctly, spontaneously shed the Hep > C virus without treatment..I am one of them according to my > hepatologist. For two yrs. now the Hep C has been undetectable. I > have had a hepatic vein thrombosis aka blood clot's in the portal > vein that are now history. My MEL score is at 8 as of last blood > work, Doc. says 16 for transplant..varices alone not determining > factor for him unless uncontrollable bleeding..same with as- > cites..tells me to keep on keeping on with what I am doing. As of > now doing very well, he says. Real tell will be the blood work I > did Friday last. Hoping for acceptable levels of ammonia, > bilirubin, carotene, etc. Still am chronic Hep B carrier. And have > as-cites, controllable by medication and by current diet, varices, > and cirrhosis. Looks like I'm going to prove the doc's that gave me > 5 yrs., 4 yrs. ago, wrong. My Hepatologist never gave me a time > line, though. He is the > man...peace and comfort,Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 It does...kind of surreal... Dave ________________________________ To: livercirrhosissupport Sent: Mon, November 9, 2009 3:43:25 PM Subject: Re: (unknown) Sounds like you are doing great Dave! Roni > Less than 1%, if I researched correctly, spontaneously shed the Hep > C virus without treatment..I am one of them according to my > hepatologist. For two yrs. now the Hep C has been undetectable. I > have had a hepatic vein thrombosis aka blood clot's in the portal > vein that are now history. My MEL score is at 8 as of last blood > work, Doc. says 16 for transplant..varices alone not determining > factor for him unless uncontrollable bleeding..same with as- > cites..tells me to keep on keeping on with what I am doing. As of > now doing very well, he says. Real tell will be the blood work I > did Friday last. Hoping for acceptable levels of ammonia, > bilirubin, carotene, etc. Still am chronic Hep B carrier. And have > as-cites, controllable by medication and by current diet, varices, > and cirrhosis. Looks like I'm going to prove the doc's that gave me > 5 yrs., 4 yrs. ago, wrong. My Hepatologist never gave me a time > line, though. He is the > man...peace and comfort,Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 You know me , I have a crazy sense of humor. I laughed and laughed at your post ! My sister will love it when I tell her! LOL!!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, December 28, 2009 7:37:35 PM Subject: Re: (unknown)  Oh gosh Jan,now I'm sitting here wondering if my friend got the joke also?Maybe I just have a bad sence of humore?? Jill,help me out here,hell I can't spell humor either.Now this is funny,my grandpa told me to put chicken poop on my chapped lips and then I wouldn't lick them.??? ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Mon, December 28, 2009 7:05:30 PM Subject: Re: (unknown) [?][?][?][?] [?]Jan H On Mon, Dec 28, 2009 at 5:01 PM, wendy miller <italybell69@ yahoo.com> wrote: > Oh now here I go,as I' was just making diner I remembered when I came home > from the hospital almost 2 yrs ago from near death,and a friend ran into me > at the grocery store and said " gosh you look great,just how do you stay so > thin? " and I politely said " Oh,Bulemia " smiled and walked away...(guess you > had to be there to see the look on her face)LOL! > > > > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Mon, December 28, 2009 6:49:03 PM > Subject: Re: (unknown) > > Gloria - I hope you can find the humor( our spelling for your humour) > button. Maybe that is the problem, you have been spelling it wrong. [?] It > really does help to have a sense of humor about medical problems. I can't > say how I will be when I get worse, and pray that I will die of one of my > other medical problems so I don't hang around to the end with the liver > problems, but I told our Pastor's husband that I wanted to go out laughing, > and he said he thinks I will do it if anyone can. We do get into a > laughing mood around here every so often, hope we keep this up for awhile > and give you some ideas of what you can laugh about.  Jan H > > On Mon, Dec 28, 2009 at 4:04 PM, Gloria <gadamscanyahoo (DOT) ca> wrote: > > > Jill > > > > What is it about daughter-in- laws??? Are they really that frightened > that > > their hubby's still have feelings for another woman (their mother)??? > > > > I think it's absolutely great that you and your sister can laugh in the > > middle of these horrendous health problems!! I do okay with the humour > as > > long as I'm feeling okay; but, if I'm already away down, I can't seem to > > find that humour button. > > > > Gloria > > > > > > > > > > ____________ _________ _________ __ > > > > Lyncia..I know what you mean....I have a daughter-in- law that thinks I'm > > faking al my problenms and Ed's cirrhosis is not really serious. People! > My > > sister has end stage kidney failure and cannot have a transplant. She's > lost > > alot of weight. When someone sees her that hasn't for awhile...they tell > her > > how good she looks and ask how she lost all that weight and what diet she > > used. She answers--kidney failure,but she wouldn't recommend it! HA HA HA > !! > > Luckiky ,even with all her problems,she still has a good sense of humor. > I > > tell her to gather up $2000.00 and we'll go get her a kidney in Palistan. > We > > are bad!! > > > > > >                  Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that take > > our breath away. > > > > ____________ _________ _________ __ > > From: Lyncia <lmlangdonyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Mon, December 28, 2009 2:53:27 PM > > Subject: Re: (unknown) > > > > > > I did mail it to my son's. To them there is nothing wrong with > me.....only > > my middle son knows differently because he lived with me for a year. > > > > Thanks for this day and for our tomorrows > > > > Love, Lyncia > > > > > > > > > > > > From: dave dodds <daveliltoe@ yahoo. com> > > Subject: (unknown) > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Monday, December 28, 2009, 11:29 AM > > > > > > > > It does get annoying when people constantly ask you how you are feeling. > > It is just normal conversation, but is bothersome. Or when you go eat > at > > someones and can't eat much of what they fix. They just don't get it > with > > the sodium and beef and whatever, and they seem offended. I think I read > > much more into their comments than is really there often, also. Such a > > roller coaster ride. What you wrote Abijan, about this thing is very > true. > > I think of e-mailing it to some family members, but then I think they > will > > just feel I am whining. The deal with live donor, do you still have to > be > > near death and have high MEL score to get a transplant that way? Like > you > > would waiting for a liver while on the transplant list?Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 That's hilarious!! My sister and I do things like that with her kidney.Thanks for the great story and laugh!  Way Too funny!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, December 28, 2009 8:33:30 PM Subject: Re: (unknown)  I agree that we have to have a sense of humor. Here's a few laughs for you all. When we went to the 1st center for my husband's evaluation we waited in a darkened hallway until 7:30 am when the clinic opened. When it did, the guy behind the counter was telling people to take a number. My son was with us and said to me, " it's like a deli counter. You give them your number and they give you a liver in a bag, then you take it down the hall and they put it in. "  I answered, " we better get on line before they run out of livers. I'm desperate! I'll take one without onions! "  Here's another laugh: My other son (we have twins) was at the diner with a friend who ordered liver and onions. When the order came he took a picture of the plate on his cell phone and sent it to me with a comment: 'this is so wrong!' And finally another laugh: We had been told that they do transplant surgery every tuesday at the center where we go. We were there on a tuesday once when my husband was having a proceedure done. I got on an elevator with a hospital worker who had a cart full of coolers and I'm thinking 'take your pick! Which ones have livers? Yup! That one looks like it'll fit! "  You gotta be able to laugh! Love to all, Jackie > > From: dave dodds <daveliltoe@ yahoo. com> > Subject: (unknown) > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Monday, December 28, 2009, 11:29 AM > > > > It does get annoying when people constantly ask you how you are feeling. > It is just normal conversation, but is bothersome. Or when you go eat at > someones and can't eat much of what they fix. They just don't get it with > the sodium and beef and whatever, and they seem offended. I think I read > much more into their comments than is really there often, also. Such a > roller coaster ride. What you wrote Abijan, about this thing is very true.. > I think of e-mailing it to some family members, but then I think they will > just feel I am whining. The deal with live donor, do you still have to be > near death and have high MEL score to get a transplant that way? Like you > would waiting for a liver while on the transplant list?Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 yeah. it was. Hope you get both! Jackie > > From: dave dodds <daveliltoe@ yahoo. com> > Subject: (unknown) > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Monday, December 28, 2009, 11:29 AM > > > > It does get annoying when people constantly ask you how you are feeling. > It is just normal conversation, but is bothersome. Or when you go eat at > someones and can't eat much of what they fix. They just don't get it with > the sodium and beef and whatever, and they seem offended. I think I read > much more into their comments than is really there often, also. Such a > roller coaster ride. What you wrote Abijan, about this thing is very true... > I think of e-mailing it to some family members, but then I think they will > just feel I am whining. The deal with live donor, do you still have to be > near death and have high MEL score to get a transplant that way? Like you > would waiting for a liver while on the transplant list?Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Lyncia, we will laugh at anything. [?][?][?]I hope you get them. I know I won't, so cheering for you. But, my kidneys are holding at 30 GFR since April. YEA. Jan H > Well, I need a kidney and liver so I should have twice the > fun...........just like Doublemint gum.......Was that funny? > > > > Thanks for this day and for our tomorrows > > Love, Lyncia > > > > > > > > From: dave dodds <daveliltoe@ yahoo. com> > > Subject: (unknown) > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Monday, December 28, 2009, 11:29 AM > > > > > > > > It does get annoying when people constantly ask you how you are feeling. > > It is just normal conversation, but is bothersome. Or when you go eat at > > someones and can't eat much of what they fix. They just don't get it with > > the sodium and beef and whatever, and they seem offended. I think I read > > much more into their comments than is really there often, also. Such a > > roller coaster ride. What you wrote Abijan, about this thing is very > true.. > > I think of e-mailing it to some family members, but then I think they > will > > just feel I am whining. The deal with live donor, do you still have to be > > near death and have high MEL score to get a transplant that way? Like you > > would waiting for a liver while on the transplant list?Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Yep...That's funny!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, December 28, 2009 10:43:27 PM Subject: Re: (unknown)  Well, I need a kidney and liver so I should have twice the fun......... ..just like Doublemint gum.......Was that funny? Thanks for this day and for our tomorrows  Love, Lyncia   > > From: dave dodds <daveliltoe@ yahoo. com> > Subject: (unknown) > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Monday, December 28, 2009, 11:29 AM > > > > It does get annoying when people constantly ask you how you are feeling. > It is just normal conversation, but is bothersome. Or when you go eat at > someones and can't eat much of what they fix. They just don't get it with > the sodium and beef and whatever, and they seem offended. I think I read > much more into their comments than is really there often, also. Such a > roller coaster ride. What you wrote Abijan, about this thing is very true.. > I think of e-mailing it to some family members, but then I think they will > just feel I am whining. The deal with live donor, do you still have to be > near death and have high MEL score to get a transplant that way? Like you > would waiting for a liver while on the transplant list?Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 I love each and everyone one of you! The only place that I can be me totally!!!!!! Thanks for this day and for our tomorrows  Love, Lyncia   > > > > From: dave dodds <daveliltoe@ yahoo. com> > > Subject: (unknown) > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Monday, December 28, 2009, 11:29 AM > > > > > > > > It does get annoying when people constantly ask you how you are feeling. > > It is just normal conversation, but is bothersome. Or when you go eat at > > someones and can't eat much of what they fix. They just don't get it with > > the sodium and beef and whatever, and they seem offended. I think I read > > much more into their comments than is really there often, also. Such a > > roller coaster ride. What you wrote Abijan, about this thing is very > true.. > > I think of e-mailing it to some family members, but then I think they > will > > just feel I am whining. The deal with live donor, do you still have to be > > near death and have high MEL score to get a transplant that way? Like you > > would waiting for a liver while on the transplant list?Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Thanks,Lyncia..you said it for all of us!! It's so great to be able to talk to others that totally understand!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, December 28, 2009 10:54:59 PM Subject: Re: (unknown)  I love each and everyone one of you! The only place that I can be me totally!!!!! ! Thanks for this day and for our tomorrows  Love, Lyncia   > > > > From: dave dodds <daveliltoe@ yahoo. com> > > Subject: (unknown) > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Monday, December 28, 2009, 11:29 AM > > > > > > > > It does get annoying when people constantly ask you how you are feeling. > > It is just normal conversation, but is bothersome. Or when you go eat at > > someones and can't eat much of what they fix. They just don't get it with > > the sodium and beef and whatever, and they seem offended. I think I read > > much more into their comments than is really there often, also. Such a > > roller coaster ride. What you wrote Abijan, about this thing is very > true.. > > I think of e-mailing it to some family members, but then I think they > will > > just feel I am whining. The deal with live donor, do you still have to be > > near death and have high MEL score to get a transplant that way? Like you > > would waiting for a liver while on the transplant list?Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 I'm laughing Lyncia!! Sorry for being such a poop head last evening,everything just got to me all at once,and I felt like crawling in the corner and crying,and that is so out of character for me.I put on such a fake fasade with my family that I'm always alright,that sometimes I 'm just NOT,and when everyone comes at me at once for favores,I wanna say any of you gonna give me a new liver!!Even though I know I can't have a live donor.My mom did pick up the liver from my turkey from my sink on thanksgiving and put it under my ribcage and said NAW,to small....:)--You guys are the best medicine the doctor could ever order!! Love you all! Hugs, ________________________________ To: livercirrhosissupport Sent: Mon, December 28, 2009 10:43:27 PM Subject: Re: (unknown) Well, I need a kidney and liver so I should have twice the fun...........just like Doublemint gum.......Was that funny? Thanks for this day and for our tomorrows Love, Lyncia > > From: dave dodds <daveliltoe@ yahoo. com> > Subject: (unknown) > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Monday, December 28, 2009, 11:29 AM > > > > It does get annoying when people constantly ask you how you are feeling. > It is just normal conversation, but is bothersome. Or when you go eat at > someones and can't eat much of what they fix. They just don't get it with > the sodium and beef and whatever, and they seem offended. I think I read > much more into their comments than is really there often, also. Such a > roller coaster ride. What you wrote Abijan, about this thing is very true.. > I think of e-mailing it to some family members, but then I think they will > just feel I am whining. The deal with live donor, do you still have to be > near death and have high MEL score to get a transplant that way? Like you > would waiting for a liver while on the transplant list?Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Thank you for those words, !! There are just some days that I just feel too emotional to play the fake facade!! I'll come home and crawl into bed and pull the covers up then. One reason that I do put on a facade in one area of my life, is for my mother... Bless her heart, I love her too dearly to want to put anymore stress on her and her heart. In September, I took her (she's 79 now) with me to Vancouver when I had to have my CT Scan for the possible cancer. Even though we spent the night there, it was still such a tiring trip. When I saw how absolutely exhausted she was, when we got home, I vowed never to do that with her again. Then, about 3 weeks later, she threatened to come with me for my clinic visit, if I didn't have another driver with me, because she was worried about the cancer news. I very quickly found another driver. So, I still try to downplay somethings and simply won't call her if I can't hide it well enough.... Gloria ________________________________ I'm laughing Lyncia!! Sorry for being such a poop head last evening,everything just got to me all at once,and I felt like crawling in the corner and crying,and that is so out of character for me.I put on such a fake fasade with my family that I'm always alright,that sometimes I 'm just NOT,and when everyone comes at me at once for favores,I wanna say any of you gonna give me a new liver!!Even though I know I can't have a live donor.My mom did pick up the liver from my turkey from my sink on thanksgiving and put it under my ribcage and said NAW,to small....: )--You guys are the best medicine the doctor could ever order!! Love you all! Hugs, ____________ _________ _________ __ From: Lyncia <lmlangdonyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Mon, December 28, 2009 10:43:27 PM Subject: Re: (unknown) Well, I need a kidney and liver so I should have twice the fun......... ..just like Doublemint gum.......Was that funny? Thanks for this day and for our tomorrows Love, Lyncia > > From: dave dodds <daveliltoe@ yahoo. com> > Subject: (unknown) > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Monday, December 28, 2009, 11:29 AM > > > > It does get annoying when people constantly ask you how you are feeling. > It is just normal conversation, but is bothersome. Or when you go eat at > someones and can't eat much of what they fix. They just don't get it with > the sodium and beef and whatever, and they seem offended. I think I read > much more into their comments than is really there often, also. Such a > roller coaster ride. What you wrote Abijan, about this thing is very true.. > I think of e-mailing it to some family members, but then I think they will > just feel I am whining. The deal with live donor, do you still have to be > near death and have high MEL score to get a transplant that way? Like you > would waiting for a liver while on the transplant list?Dave > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.