Re: I'm new

[Guest guest]

Hi Sharon Well I too am very glad you rejoined... YOUR laugh a day is good to remember,, laughter help our immune system so many laughs a day is even better!!! Im glad you were not offended by my response about your husband... we can love them, but they really stink when we are sick...lol.. Anyway, I hope you had a great Thanksgiving... I did and Im full,, lol, going to do my mod in chat time tonite and then hit the sack! tired,, you know ,, all that eating,, haha loves ya jaxSHARON CROSBY wrote: Oh Jackie, you got through my sense of humor shield like no one has for a very long

time. Thank you for your concern and support. It truly touched me. I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time. I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug. A laugh a day keeps the blues away. Sharon Re: I'm new Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours

I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR

LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think

about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackie Jackie

[Guest guest]

Hiya Ginger...What Province are you in? I can give you all types of links for Canadian Liver Foundation...and Gastroenterolgy. My husband has been diagnosed with HCV...4th stage cirr and gall stones. He is also had 1 gasttroscope for varices and 2 more to go for banding, they've already banded 6. They have him on medication for that too...so if you'd let me know your province I've researched pretty much all of them as we are in Manitoba, and are receiving AWESOME medical attention. They have him with a team of doctors that communicate everytime we visit one, it's absolutely extrodinary care. gingertumeric wrote: Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV.

So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.Plus what I've read so far re HCV, type 1 (unknown subtype) isn't very promising for treatment. If anyone knows otherwise I'd love to hear about it.

My GI suggested that treatment for HCV would worsen my PBC, but I'm seeing a hepatologist tomorrow and hopefully I'll know more.I'd sure love to hear peoples take on the treatment and whether it is worth it. Interestingly I do not nor have I ever had elevated LFTs (odd I believe for both illnesses). I'm trying to look at that as a positive thing. Well I've probably written far more than I should have, but can't sleep.Thanks in advance for any info, suggested sites or research.

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