Re: I'm new

[Guest guest]

Hi ! I am new to this board as well. My daughter was diagnosed

with high functioning autism at age 4. She is also regularly

constipated... I have been attributing that to her limited diet and

some heredity issues, but have always wondered if there wasn't more

to it than just that. My dd is fully included in a 1st grade

classroom with parapros coming in for 3 hours per day. She also gets

OT support in the classroom. Our biggest issue is behavior. I

cannot say whether autism affects girls differently than boys or

whether it just affects all our children differently... if that made

any sense.

One of our newest problems is that my daughter has been diagnosed

with precocious puberty. Our doctor has informed us that we can

expect a period any day now. She is being monitored and is set to

begin monthly injections to prevent further development in March. Is

anyone familiar with this problem? I have wondered if there might be

a connection between the autism and this. Any and all input would be

helpful.

I am so glad to have found this group!

Lyn

[Guest guest]

Hi ! I am new to this board as well. My daughter was diagnosed

with high functioning autism at age 4. She is also regularly

constipated... I have been attributing that to her limited diet and

some heredity issues, but have always wondered if there wasn't more

to it than just that. My dd is fully included in a 1st grade

classroom with parapros coming in for 3 hours per day. She also gets

OT support in the classroom. Our biggest issue is behavior. I

cannot say whether autism affects girls differently than boys or

whether it just affects all our children differently... if that made

any sense.

One of our newest problems is that my daughter has been diagnosed

with precocious puberty. Our doctor has informed us that we can

expect a period any day now. She is being monitored and is set to

begin monthly injections to prevent further development in March. Is

anyone familiar with this problem? I have wondered if there might be

a connection between the autism and this. Any and all input would be

helpful.

I am so glad to have found this group!

Lyn

[Guest guest]

Hi ! I am new to this board as well. My daughter was diagnosed

with high functioning autism at age 4. She is also regularly

constipated... I have been attributing that to her limited diet and

some heredity issues, but have always wondered if there wasn't more

to it than just that. My dd is fully included in a 1st grade

classroom with parapros coming in for 3 hours per day. She also gets

OT support in the classroom. Our biggest issue is behavior. I

cannot say whether autism affects girls differently than boys or

whether it just affects all our children differently... if that made

any sense.

One of our newest problems is that my daughter has been diagnosed

with precocious puberty. Our doctor has informed us that we can

expect a period any day now. She is being monitored and is set to

begin monthly injections to prevent further development in March. Is

anyone familiar with this problem? I have wondered if there might be

a connection between the autism and this. Any and all input would be

helpful.

I am so glad to have found this group!

Lyn

[Guest guest]

Hi, My daughter's constipation was severe for year's, once we found out

she was hypothyroid and treated the thyroid problem the constipation

problem disappeared. She started her period at 10 years 9 month's of

age. How old is your daughter?

Shirley

sadams@...

monee101@... wrote:

> Hi ! I am new to this board as well. My daughter was diagnosed

> with high functioning autism at age 4. She is also regularly

> constipated... I have been attributing that to her limited diet and

> some heredity issues, but have always wondered if there wasn't more

> to it than just that. My dd is fully included in a 1st grade

> classroom with parapros coming in for 3 hours per day. She also gets

> OT support in the classroom. Our biggest issue is behavior. I

> cannot say whether autism affects girls differently than boys or

> whether it just affects all our children differently... if that made

> any sense.

>

> One of our newest problems is that my daughter has been diagnosed

> with precocious puberty. Our doctor has informed us that we can

> expect a period any day now. She is being monitored and is set to

> begin monthly injections to prevent further development in March. Is

> anyone familiar with this problem? I have wondered if there might be

> a connection between the autism and this. Any and all input would be

> helpful.

>

> I am so glad to have found this group!

>

> Lyn

>

>

>

>

>

>

[Guest guest]

Hi, My daughter's constipation was severe for year's, once we found out

she was hypothyroid and treated the thyroid problem the constipation

problem disappeared. She started her period at 10 years 9 month's of

age. How old is your daughter?

Shirley

sadams@...

monee101@... wrote:

> Hi ! I am new to this board as well. My daughter was diagnosed

> with high functioning autism at age 4. She is also regularly

> constipated... I have been attributing that to her limited diet and

> some heredity issues, but have always wondered if there wasn't more

> to it than just that. My dd is fully included in a 1st grade

> classroom with parapros coming in for 3 hours per day. She also gets

> OT support in the classroom. Our biggest issue is behavior. I

> cannot say whether autism affects girls differently than boys or

> whether it just affects all our children differently... if that made

> any sense.

>

> One of our newest problems is that my daughter has been diagnosed

> with precocious puberty. Our doctor has informed us that we can

> expect a period any day now. She is being monitored and is set to

> begin monthly injections to prevent further development in March. Is

> anyone familiar with this problem? I have wondered if there might be

> a connection between the autism and this. Any and all input would be

> helpful.

>

> I am so glad to have found this group!

>

> Lyn

>

>

>

>

>

>

[Guest guest]

Our daughter has long beautiful hair too and one evening she came downstairs

with half of it cut off and the other half just cut short in some places

with some long strands hanging down. She was about 9 when she did this. At

the same time she was cutting her clothes also in school. Her teacher at

the time suggested I send some scrap material with her. He told her if she

felt like cutting something at any time, just pull out the material and cut

away. Believe it or not it worked.

Betty

I'm new

> >

> >

> > > Hi, my name is .

> > > I have a 4yr old that was diagnosed with Asperger,

> > > Psycotic disorder,and odd. And that has sever cronic

> > > constipation.

> > > I have been searching for a site that

> > > is for girls with autism. Since i am new to all of

> > > this,and only know boys with this spectrum. I know

> > > alot about the boys,and how autism affects them, i

> > > need info on how it affects girls. I had read, it is

> > > different for them. I am searching on the how's and

> > > why " s.

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

> >

>

>

>

>

>

[Guest guest]

Our daughter has long beautiful hair too and one evening she came downstairs

with half of it cut off and the other half just cut short in some places

with some long strands hanging down. She was about 9 when she did this. At

the same time she was cutting her clothes also in school. Her teacher at

the time suggested I send some scrap material with her. He told her if she

felt like cutting something at any time, just pull out the material and cut

away. Believe it or not it worked.

Betty

I'm new

> >

> >

> > > Hi, my name is .

> > > I have a 4yr old that was diagnosed with Asperger,

> > > Psycotic disorder,and odd. And that has sever cronic

> > > constipation.

> > > I have been searching for a site that

> > > is for girls with autism. Since i am new to all of

> > > this,and only know boys with this spectrum. I know

> > > alot about the boys,and how autism affects them, i

> > > need info on how it affects girls. I had read, it is

> > > different for them. I am searching on the how's and

> > > why " s.

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

> >

>

>

>

>

>

[Guest guest]

I am curious about the hair pulling. Hannah is into hair cutting. She has

the most beautiful thick naturally curly hair. But when she was five she

began cutting it off. Now I know most kids do that - heck, I did. But now,

she will find scissors now matter where you hide them and cut her hair to

bald spots. It looks terrible. She even managed to cut one of her

classmates hair before the teacher grabbed the scissors. Does anyone have a

daughter with long hair that loves it?

Jeanie

I'm new

>

>

> > Hi, my name is .

> > I have a 4yr old that was diagnosed with Asperger,

> > Psycotic disorder,and odd. And that has sever cronic

> > constipation.

> > I have been searching for a site that

> > is for girls with autism. Since i am new to all of

> > this,and only know boys with this spectrum. I know

> > alot about the boys,and how autism affects them, i

> > need info on how it affects girls. I had read, it is

> > different for them. I am searching on the how's and

> > why " s.

> >

> >

> >

> >

>

>

>

>

>

>

[Guest guest]

I am curious about the hair pulling. Hannah is into hair cutting. She has

the most beautiful thick naturally curly hair. But when she was five she

began cutting it off. Now I know most kids do that - heck, I did. But now,

she will find scissors now matter where you hide them and cut her hair to

bald spots. It looks terrible. She even managed to cut one of her

classmates hair before the teacher grabbed the scissors. Does anyone have a

daughter with long hair that loves it?

Jeanie

I'm new

>

>

> > Hi, my name is .

> > I have a 4yr old that was diagnosed with Asperger,

> > Psycotic disorder,and odd. And that has sever cronic

> > constipation.

> > I have been searching for a site that

> > is for girls with autism. Since i am new to all of

> > this,and only know boys with this spectrum. I know

> > alot about the boys,and how autism affects them, i

> > need info on how it affects girls. I had read, it is

> > different for them. I am searching on the how's and

> > why " s.

> >

> >

> >

> >

>

>

>

>

>

>

[Guest guest]

My daughter is 4 and has Asbergers Syn. She has always had long hair.

I was reading a post here about long hair and how everyone was having a hard

time with it. After talking to her Dr. the other day we CUT it and I mean we

cut it short! It was halfway down her back and now it is just below her ears.

What a relief! She no longer cries " it hurts Mommy " when I wash or brush her

hair. But the problem now is the scissors. They have to stay hidden from

her or she will cut her own hair to be pretty. I look at it this way....It

is just hair it will always grow back!!

Mother of Katelynn Ann 4 1/2 (autistic)

[Guest guest]

My daughter is 4 and has Asbergers Syn. She has always had long hair.

I was reading a post here about long hair and how everyone was having a hard

time with it. After talking to her Dr. the other day we CUT it and I mean we

cut it short! It was halfway down her back and now it is just below her ears.

What a relief! She no longer cries " it hurts Mommy " when I wash or brush her

hair. But the problem now is the scissors. They have to stay hidden from

her or she will cut her own hair to be pretty. I look at it this way....It

is just hair it will always grow back!!

Mother of Katelynn Ann 4 1/2 (autistic)

[Guest guest]

My daughter is 4 and has Asbergers Syn. She has always had long hair.

I was reading a post here about long hair and how everyone was having a hard

time with it. After talking to her Dr. the other day we CUT it and I mean we

cut it short! It was halfway down her back and now it is just below her ears.

What a relief! She no longer cries " it hurts Mommy " when I wash or brush her

hair. But the problem now is the scissors. They have to stay hidden from

her or she will cut her own hair to be pretty. I look at it this way....It

is just hair it will always grow back!!

Mother of Katelynn Ann 4 1/2 (autistic)

[Guest guest]

I don't know if you've already contacted the school district and they are the

one's telling you that he can only have a few hours each month. Too bad he's too

old for Early Childhood Intervention.

You might try getting him services through PPCD, if you haven't already. I

searched the Texas Education Agency sight and found these from a school in San

. It may not provide a lot of information, but it has phone numbers to

call!

http://www.tea.state.tx.us/special.ed/preschool/pdf/se.pdf

http://www.tea.state.tx.us/special.ed/preschool/2000/se.html

Alison

i'm new

Hello everyone.

I'm new here and just wanted to intoduce myself. My name is Robyn. I

have a VERY cute little boy named . He is 3 years old. Yesterday

i found out that he is severly autisic. We just moved here to San

a few months ago. I really at lose of what to do now about my

boy's autisim. They said that he is severe but all they can provide

him for the summer is a few hours for a month. Then I guess he has to

wait untill school starts. I have tryed calling the health care

center here and they said that there was nothing they could do to

help until he turns 5. So i'm at lose of what to do next to help my

little one. Anyways its nice to meet all of you.

Robyn

[Guest guest]

I don't know if you've already contacted the school district and they are the

one's telling you that he can only have a few hours each month. Too bad he's too

old for Early Childhood Intervention.

You might try getting him services through PPCD, if you haven't already. I

searched the Texas Education Agency sight and found these from a school in San

. It may not provide a lot of information, but it has phone numbers to

call!

http://www.tea.state.tx.us/special.ed/preschool/pdf/se.pdf

http://www.tea.state.tx.us/special.ed/preschool/2000/se.html

Alison

i'm new

Hello everyone.

I'm new here and just wanted to intoduce myself. My name is Robyn. I

have a VERY cute little boy named . He is 3 years old. Yesterday

i found out that he is severly autisic. We just moved here to San

a few months ago. I really at lose of what to do now about my

boy's autisim. They said that he is severe but all they can provide

him for the summer is a few hours for a month. Then I guess he has to

wait untill school starts. I have tryed calling the health care

center here and they said that there was nothing they could do to

help until he turns 5. So i'm at lose of what to do next to help my

little one. Anyways its nice to meet all of you.

Robyn

[Guest guest]

I don't know if you've already contacted the school district and they are the

one's telling you that he can only have a few hours each month. Too bad he's too

old for Early Childhood Intervention.

You might try getting him services through PPCD, if you haven't already. I

searched the Texas Education Agency sight and found these from a school in San

. It may not provide a lot of information, but it has phone numbers to

call!

http://www.tea.state.tx.us/special.ed/preschool/pdf/se.pdf

http://www.tea.state.tx.us/special.ed/preschool/2000/se.html

Alison

i'm new

Hello everyone.

I'm new here and just wanted to intoduce myself. My name is Robyn. I

have a VERY cute little boy named . He is 3 years old. Yesterday

i found out that he is severly autisic. We just moved here to San

a few months ago. I really at lose of what to do now about my

boy's autisim. They said that he is severe but all they can provide

him for the summer is a few hours for a month. Then I guess he has to

wait untill school starts. I have tryed calling the health care

center here and they said that there was nothing they could do to

help until he turns 5. So i'm at lose of what to do next to help my

little one. Anyways its nice to meet all of you.

Robyn

[Guest guest]

Thank you for your help and info. My son is currently in PPCD. But he is in

northside independent school district. It is the school telling me that he can

only get a few hours a day 5 days a week for a month of summer break.

i'm new

Hello everyone.

I'm new here and just wanted to intoduce myself. My name is Robyn. I

have a VERY cute little boy named . He is 3 years old. Yesterday

i found out that he is severly autisic. We just moved here to San

a few months ago. I really at lose of what to do now about my

boy's autisim. They said that he is severe but all they can provide

him for the summer is a few hours for a month. Then I guess he has to

wait untill school starts. I have tryed calling the health care

center here and they said that there was nothing they could do to

help until he turns 5. So i'm at lose of what to do next to help my

little one. Anyways its nice to meet all of you.

Robyn

[Guest guest]

Thank you for your help and info. My son is currently in PPCD. But he is in

northside independent school district. It is the school telling me that he can

only get a few hours a day 5 days a week for a month of summer break.

i'm new

Hello everyone.

I'm new here and just wanted to intoduce myself. My name is Robyn. I

have a VERY cute little boy named . He is 3 years old. Yesterday

i found out that he is severly autisic. We just moved here to San

a few months ago. I really at lose of what to do now about my

boy's autisim. They said that he is severe but all they can provide

him for the summer is a few hours for a month. Then I guess he has to

wait untill school starts. I have tryed calling the health care

center here and they said that there was nothing they could do to

help until he turns 5. So i'm at lose of what to do next to help my

little one. Anyways its nice to meet all of you.

Robyn

[Guest guest]

Hi ,

I'm not sleeping tonight either. One of the many gifts of HCV. I've had this thing for 30 years now, with minimal damage. Last liver scan showed stage one fibrosos and my liver enzymes are only slightly elevated at the last blood test.

Having this has made me much more aware of what I put in my body, I can tell you. I've never done drugs and was, long ago, a social drinker only. Always made me sick. lol Now, I am much more careful of the amounts of ibuprofen I take for pain and do not drink at all. Every prescription must be weighed against what damage it might do to my liver and I have many days when I feel a far below normal range of energy. Lack of energy being my worst symptom, thankfully.

I took one 6 month round of treatment a couple of years ago, and coralled the virus, but relapsed 4 months later. The second round, I was taken off after 6 weeks with deep depression. I believe I could have made it through, did the first time, but my husband is not quite grown up and was not facing the prospect of a sick wife for a year very well, so I allowed myself to be disuaded.

I would say, given the benefit of stopping the progress of the disease, I would take the treatment. You, however, have other serious concerns to factor in and only your doc can help you decide if the toll on your body would be worth it. Most people have some degree if side affects, many have severe sides. I am 62 and cannot go through it alone, just don't have that degree of strength, so will wait for the next generation of treatment, which promises to be of much shorter duration and much more effective.

My doc once told me, I will not die of HCV, but rather with it, for whatever that means. Meantime, I read the posts of this group and absorb as much of the info and hope and caring I can.

LOng winded devil, aren't I. Hope you will enjoy some of the jokes, they are not overwhelming in volume and sometimes give a chuckle in an otherwise toooooo grim world.

A laugh a day keeps the blues away.

Sharon

Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.

[Guest guest]

Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful

man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been

blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackieSHARON CROSBY

wrote: Hi , I'm not sleeping tonight either. One of the many gifts of HCV. I've had this thing for 30 years now, with minimal damage. Last liver scan showed stage one fibrosos and my liver enzymes are only slightly elevated at the last blood test. Having this has made me much more aware of what I put in my body, I can tell you. I've never done drugs and was, long ago, a social drinker only. Always made me sick. lol Now, I am much more careful of the amounts of ibuprofen I take for pain and do not drink at all. Every prescription must be weighed

against what damage it might do to my liver and I have many days when I feel a far below normal range of energy. Lack of energy being my worst symptom, thankfully. I took one 6 month round of treatment a couple of years ago, and coralled the virus, but relapsed 4 months later. The second round, I was taken off after 6 weeks with deep depression. I believe I could have made it through, did the first time, but my husband is not quite grown up and was not facing the prospect of a sick wife for a year very well, so I allowed myself to be disuaded. I would say, given the benefit of stopping the progress of the disease, I would take the treatment. You, however, have other serious concerns to factor in and only your doc can help you decide if the toll on your body would be worth it. Most people have some degree if side affects, many have severe sides. I am 62 and cannot go through it

alone, just don't have that degree of strength, so will wait for the next generation of treatment, which promises to be of much shorter duration and much more effective. My doc once told me, I will not die of HCV, but rather with it, for whatever that means. Meantime, I read the posts of this group and absorb as much of the info and hope and caring I can. LOng winded devil, aren't I. Hope you will enjoy some of the jokes, they are not overwhelming in volume and sometimes give a chuckle in an otherwise toooooo grim world. A laugh a day keeps the blues away. Sharon Ok, everyone I'll give it another go. I was just really shocked to receive my first email from

the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/Happy Posting Jackie

[Guest guest]

Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful

man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been

blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackieSHARON CROSBY

wrote: Hi , I'm not sleeping tonight either. One of the many gifts of HCV. I've had this thing for 30 years now, with minimal damage. Last liver scan showed stage one fibrosos and my liver enzymes are only slightly elevated at the last blood test. Having this has made me much more aware of what I put in my body, I can tell you. I've never done drugs and was, long ago, a social drinker only. Always made me sick. lol Now, I am much more careful of the amounts of ibuprofen I take for pain and do not drink at all. Every prescription must be weighed

against what damage it might do to my liver and I have many days when I feel a far below normal range of energy. Lack of energy being my worst symptom, thankfully. I took one 6 month round of treatment a couple of years ago, and coralled the virus, but relapsed 4 months later. The second round, I was taken off after 6 weeks with deep depression. I believe I could have made it through, did the first time, but my husband is not quite grown up and was not facing the prospect of a sick wife for a year very well, so I allowed myself to be disuaded. I would say, given the benefit of stopping the progress of the disease, I would take the treatment. You, however, have other serious concerns to factor in and only your doc can help you decide if the toll on your body would be worth it. Most people have some degree if side affects, many have severe sides. I am 62 and cannot go through it

alone, just don't have that degree of strength, so will wait for the next generation of treatment, which promises to be of much shorter duration and much more effective. My doc once told me, I will not die of HCV, but rather with it, for whatever that means. Meantime, I read the posts of this group and absorb as much of the info and hope and caring I can. LOng winded devil, aren't I. Hope you will enjoy some of the jokes, they are not overwhelming in volume and sometimes give a chuckle in an otherwise toooooo grim world. A laugh a day keeps the blues away. Sharon Ok, everyone I'll give it another go. I was just really shocked to receive my first email from

the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/Happy Posting Jackie

[Guest guest]

Hi , IM SO GLAD you decided to give us another shot at being helpful. THATS what we are here for.. I had a scare with PBC last month. I had my gallbladder removed and while they were in there ,, took another liver biopsy and the lab pathology report suggested that I had this and had to have that AMA test and thank God it was negative.. scared me a lot and I dont scare easily... So I know what you have gone through in coming to terms with that!! And having hep c on top of that is pretty scary. I wish I had some specific info to help you in making a decision regarding treating your hep,, but I dont. I have known another gal who had Hep C and Autoimmune hep,, so she treated her hep c AFTER she treated her Autoimmune hep.. very complicated for sure! Please feel free to ask ANY question or make any comment regarding Hep and how it has affected your life! God Bless you and HAPPY THANKSGIVING!!! jaxgingertumeric wrote: Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find

out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.Plus what I've read so far re HCV, type 1 (unknown subtype) isn't very promising for treatment. If anyone knows otherwise I'd love to hear about it. My GI suggested that treatment for HCV would worsen my PBC, but I'm seeing a hepatologist tomorrow and hopefully I'll know more.I'd sure love to hear peoples take on the treatment and whether it is worth it. Interestingly I do not nor have I ever had elevated LFTs (odd I believe for both illnesses). I'm trying to look at that as a positive thing. Well I've probably written far more than I should have, but can't sleep.Thanks in advance for any info, suggested sites or research. Jackie

[Guest guest]

Hi , IM SO GLAD you decided to give us another shot at being helpful. THATS what we are here for.. I had a scare with PBC last month. I had my gallbladder removed and while they were in there ,, took another liver biopsy and the lab pathology report suggested that I had this and had to have that AMA test and thank God it was negative.. scared me a lot and I dont scare easily... So I know what you have gone through in coming to terms with that!! And having hep c on top of that is pretty scary. I wish I had some specific info to help you in making a decision regarding treating your hep,, but I dont. I have known another gal who had Hep C and Autoimmune hep,, so she treated her hep c AFTER she treated her Autoimmune hep.. very complicated for sure! Please feel free to ask ANY question or make any comment regarding Hep and how it has affected your life! God Bless you and HAPPY THANKSGIVING!!! jaxgingertumeric wrote: Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find

out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.Plus what I've read so far re HCV, type 1 (unknown subtype) isn't very promising for treatment. If anyone knows otherwise I'd love to hear about it. My GI suggested that treatment for HCV would worsen my PBC, but I'm seeing a hepatologist tomorrow and hopefully I'll know more.I'd sure love to hear peoples take on the treatment and whether it is worth it. Interestingly I do not nor have I ever had elevated LFTs (odd I believe for both illnesses). I'm trying to look at that as a positive thing. Well I've probably written far more than I should have, but can't sleep.Thanks in advance for any info, suggested sites or research. Jackie

[Guest guest]

Oh Jackie, you got through my sense of humor shield like no one has for a very long time. Thank you for your concern and support. It truly touched me.

I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time.

I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug.

A laugh a day keeps the blues away.

Sharon

Re: I'm new

Sharon,

Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,,

I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE???

I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant...

God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER!

What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that..

Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby..

Happy Thanksgiving!

love

jackie

[Guest guest]

Oh Jackie, you got through my sense of humor shield like no one has for a very long time. Thank you for your concern and support. It truly touched me.

I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time.

I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug.

A laugh a day keeps the blues away.

Sharon

Re: I'm new

Sharon,

Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,,

I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE???

I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant...

God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER!

What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that..

Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby..

Happy Thanksgiving!

love

jackie

[Guest guest]

Hi Sharon Well I too am very glad you rejoined... YOUR laugh a day is good to remember,, laughter help our immune system so many laughs a day is even better!!! Im glad you were not offended by my response about your husband... we can love them, but they really stink when we are sick...lol.. Anyway, I hope you had a great Thanksgiving... I did and Im full,, lol, going to do my mod in chat time tonite and then hit the sack! tired,, you know ,, all that eating,, haha loves ya jaxSHARON CROSBY wrote: Oh Jackie, you got through my sense of humor shield like no one has for a very long

time. Thank you for your concern and support. It truly touched me. I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time. I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug. A laugh a day keeps the blues away. Sharon Re: I'm new Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours

I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR

LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think

about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackie Jackie