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My daughter did this for several years but doesn't do a lot of it anymore at age 14. Our therapist/psych dr wasn't too concerned ,saying this fantasy world was a 'safer place' for her and that's why she liked it so much. My daughter usually did it in her bedroom when others weren't around though...

mari

-----Original Message-----From: Bruce Sent: Monday, April 14, 2003 8:51 AMTo: autism-aspergers Subject: HELP

How would you respond to this???

E's focus teacher sent me an e-mail stating that E carried on an imaginary, silent conversation using gestures, animation, and facial expressions while in her room. I discussed this with E, and he said that he was thinking of a way to describe something in his writing. I explained to him that other people would think that this behavior was weird or strange and that he probably should not do it any more when he was in a public place. Perhaps you could also discuss the situation with him when you are talking about his day.

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My daughter did this for several years but doesn't do a lot of it anymore at age 14. Our therapist/psych dr wasn't too concerned ,saying this fantasy world was a 'safer place' for her and that's why she liked it so much. My daughter usually did it in her bedroom when others weren't around though...

mari

-----Original Message-----From: Bruce Sent: Monday, April 14, 2003 8:51 AMTo: autism-aspergers Subject: HELP

How would you respond to this???

E's focus teacher sent me an e-mail stating that E carried on an imaginary, silent conversation using gestures, animation, and facial expressions while in her room. I discussed this with E, and he said that he was thinking of a way to describe something in his writing. I explained to him that other people would think that this behavior was weird or strange and that he probably should not do it any more when he was in a public place. Perhaps you could also discuss the situation with him when you are talking about his day.

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  • 1 month later...
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ann,

I can't help you with the child care issue since I am in San

. I can pass on to you that I took a year of FMLA to help my

son. I waited about 8 months after diagnosis, had our doctor fill

out the leave slip and then packed up my personal items and left the

school district I was working for. After a good year off helping my

son, I was able to return to the same district but chose a different

position that was more flexible with hours.

This leave was unpaid and could have been taken for less than a

year. This is the same act my husband and I used after each child

was born but that was for only a month of leave.

My understanding is that they do not have to hold your position but

they do need to have a similar one available if you return within the

leave time. Hopefully someone like Jeff Sell or another knowledgeable

person can clarify this for you. I was just hoping to ease some of

your concern. This is a big transition for all of you. I wish you

the best of luck, Theresa in SA

> 1) Does anyone know of any child care in the Texas City, TX area?

> (north of Galveston and south of Houston)

2) Christian's mother called us at 3:30am last night stating that if

we wanted him, we could have him, if not, she was going to put him in

an institution b/c she just couldn't handle this anymore. Christian's

father and I do not have child care and wanted to know if FMLA

(family medical leave act) would cover his father to leave work to

take care of him, in order to find out our options.

> Thanks for any info. ann

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ann,

I can't help you with the child care issue since I am in San

. I can pass on to you that I took a year of FMLA to help my

son. I waited about 8 months after diagnosis, had our doctor fill

out the leave slip and then packed up my personal items and left the

school district I was working for. After a good year off helping my

son, I was able to return to the same district but chose a different

position that was more flexible with hours.

This leave was unpaid and could have been taken for less than a

year. This is the same act my husband and I used after each child

was born but that was for only a month of leave.

My understanding is that they do not have to hold your position but

they do need to have a similar one available if you return within the

leave time. Hopefully someone like Jeff Sell or another knowledgeable

person can clarify this for you. I was just hoping to ease some of

your concern. This is a big transition for all of you. I wish you

the best of luck, Theresa in SA

> 1) Does anyone know of any child care in the Texas City, TX area?

> (north of Galveston and south of Houston)

2) Christian's mother called us at 3:30am last night stating that if

we wanted him, we could have him, if not, she was going to put him in

an institution b/c she just couldn't handle this anymore. Christian's

father and I do not have child care and wanted to know if FMLA

(family medical leave act) would cover his father to leave work to

take care of him, in order to find out our options.

> Thanks for any info. ann

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  • 1 month later...
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Yes, magnesium has also helped my son. The mg brings moisture to the stool

so it can be passed.

In a message dated 7/24/03 11:39:55 AM Eastern Daylight Time,

jreirdon@... writes:

> With my son, Magnesium and selenium supplements fixed that problem and he

> moves his bowel daily. We use supplements from Kirkmans Labs.

> http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/>

>

> But check with your Doctor before making any medical decisions for your son.

> I am not a Doctor nor do I have any medical training

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Yes, magnesium has also helped my son. The mg brings moisture to the stool

so it can be passed.

In a message dated 7/24/03 11:39:55 AM Eastern Daylight Time,

jreirdon@... writes:

> With my son, Magnesium and selenium supplements fixed that problem and he

> moves his bowel daily. We use supplements from Kirkmans Labs.

> http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/>

>

> But check with your Doctor before making any medical decisions for your son.

> I am not a Doctor nor do I have any medical training

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Guest guest

Yes, magnesium has also helped my son. The mg brings moisture to the stool

so it can be passed.

In a message dated 7/24/03 11:39:55 AM Eastern Daylight Time,

jreirdon@... writes:

> With my son, Magnesium and selenium supplements fixed that problem and he

> moves his bowel daily. We use supplements from Kirkmans Labs.

> http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/>

>

> But check with your Doctor before making any medical decisions for your son.

> I am not a Doctor nor do I have any medical training

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Guest guest

After my daughter was on medications she went through the same problem. I did

not like the medications they gave her to help her constipation so I did what my

dear old grandmother told me to do and it worked. I snuck in 1/4 to 1/2

teaspoon of sweet oil in my daughter's chocoate milk since she drinks it all day

long. I did this right before she went to bed and she had soft stool the next

day. I did not have to do this every day but I did this every time she started

getting constipated again. After she was prescribed Paxil, the constipation

problems went away since one of the side effects for Paxil was diarrhea.

However, for my daughter she never has had that but it has softened her stool

and made her very regular (thank God!).

Good Luck,

CL

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Guest guest

After my daughter was on medications she went through the same problem. I did

not like the medications they gave her to help her constipation so I did what my

dear old grandmother told me to do and it worked. I snuck in 1/4 to 1/2

teaspoon of sweet oil in my daughter's chocoate milk since she drinks it all day

long. I did this right before she went to bed and she had soft stool the next

day. I did not have to do this every day but I did this every time she started

getting constipated again. After she was prescribed Paxil, the constipation

problems went away since one of the side effects for Paxil was diarrhea.

However, for my daughter she never has had that but it has softened her stool

and made her very regular (thank God!).

Good Luck,

CL

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Guest guest

After my daughter was on medications she went through the same problem. I did

not like the medications they gave her to help her constipation so I did what my

dear old grandmother told me to do and it worked. I snuck in 1/4 to 1/2

teaspoon of sweet oil in my daughter's chocoate milk since she drinks it all day

long. I did this right before she went to bed and she had soft stool the next

day. I did not have to do this every day but I did this every time she started

getting constipated again. After she was prescribed Paxil, the constipation

problems went away since one of the side effects for Paxil was diarrhea.

However, for my daughter she never has had that but it has softened her stool

and made her very regular (thank God!).

Good Luck,

CL

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Guest guest

You may try old fashion mineral oil. I used to give that to my SI

younger daughter. She was constipated not from meds but from

refusing to go and would interpret BM as very painful however they

looked normal.

It did not matter how much fruit, veggies we gave her, she would

continue to hold the BM for days and miserable. It is only recently

she can go to the bathroom on her own.

Mineral oil helped us at least to initiate a BM pattern w/her but it

took alot of praise and coaching. Lots of ASD kids have SI issues

that may effect toileting- plus constipating meds only add to the

problem. I only learned that recently after attending a conference

and after months of struggling.

Cod liver oil may be option too w/ benefit of extra vit A but you may

want to get that at a HFS.

Good luck

Jeneane

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Guest guest

You may try old fashion mineral oil. I used to give that to my SI

younger daughter. She was constipated not from meds but from

refusing to go and would interpret BM as very painful however they

looked normal.

It did not matter how much fruit, veggies we gave her, she would

continue to hold the BM for days and miserable. It is only recently

she can go to the bathroom on her own.

Mineral oil helped us at least to initiate a BM pattern w/her but it

took alot of praise and coaching. Lots of ASD kids have SI issues

that may effect toileting- plus constipating meds only add to the

problem. I only learned that recently after attending a conference

and after months of struggling.

Cod liver oil may be option too w/ benefit of extra vit A but you may

want to get that at a HFS.

Good luck

Jeneane

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  • 8 months later...
Guest guest

(and all concerned parties),

Yes, many experienced therapists have waiting lists. I find experienced

therapists who are AVAILABLE IMMEDIATELY. (It takes time and footwork, but they

are out there...)

If anyone is interested in hearing more about therapists who are available,

please call me (Amy Benninger) at , or email me at

AmyBenninger@....

Amy

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(and all concerned parties),

Yes, many experienced therapists have waiting lists. I find experienced

therapists who are AVAILABLE IMMEDIATELY. (It takes time and footwork, but they

are out there...)

If anyone is interested in hearing more about therapists who are available,

please call me (Amy Benninger) at , or email me at

AmyBenninger@....

Amy

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Guest guest

(and all concerned parties),

Yes, many experienced therapists have waiting lists. I find experienced

therapists who are AVAILABLE IMMEDIATELY. (It takes time and footwork, but they

are out there...)

If anyone is interested in hearing more about therapists who are available,

please call me (Amy Benninger) at , or email me at

AmyBenninger@....

Amy

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  • 1 month later...
Guest guest

There is some hope out there for the belly (visceral fat). Recently a study was shown on our listserv that I made a copy of.

They will be having a phase 3 study available in the United States and Canada within a few months I believe they said

when I contacted them. This is the link:

http://www.theratech.com/english/press/2004/0415-2004.htm

>>>>>Used to be shaply female lipo ruining my life I look 9 months pregnant I am ashamed to socialize anymore.Im depressed interested in any study to alleviate or improve symptoms.........

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  • 5 months later...

Dear Corinna,

Is Garrett under the care of a psychiatrist? If so, call the good doctor

and state that you are afraid for your son (use the suicide word if you have

to) and need an appointment ASAP. Explain that your son was discharged from the

hospital but that you think he is still extremely ill. I'm afraid that one of

the many problems with our mental health system is that the doctors who treat

inpatients aren't usually the ones who follow up after the patient's

discharge. This gap in care causes the doctors in the hospital to think that

their job

is done, and the regular psych. thinks that if the patient was discharged,

then he must be better. Doctors don't like to second-guess each other. Another

problem is that hospitalization is so expensive that most places medicate a

patient until he is seemingly better and then ship them out. Your son probably

needs a lot of therapy in addition to medication. After being put back in the

hospital, he was discharged and then sent back to middle school? From your

description, it sounds as if your son is not ready to be back in school. Why not

more outpatient or partial hospitalization until he is truly better? You may

have to fight a bit, but it would be worth it.

Remember, you are his mom and you are the only real expert on your son.

Trust your instincts and demand that he be treated further. I don't want to be

alarmist, but suicide rates among teenagers are very high, and your son is at

risk. Remind his doctors of this - that may set the alarm bells ringing. They

will probably act, if only because they are afraid of lawsuits (sorry that

sounds so cynical, but it is what it is)

Let us know what happens!

in NV

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Hi Corinna,

Is he sleeping much at home (vs school)?

I'm sorry this is dragging out so much, ((hugs))!

I have lots of " maybes " :

Maybe the meds haven't had a time to really work/settle in yet.

Maybe the meds aren't quite the right dosage each.

Maybe he's irritable since he's not feeling well/normal yet (if meds

making him sleepy, etc.)

Maybe with all he's been through - and he is suffering depression -

that he's just frustrated, feeling down about himself & what he is

having to deal with, embarrassed, the " why can't I just be normal or

why do I have to deal with this? " type grouchiness and doesn't want

to talk about it or doesn't want to act like things are normal as

right now & recently they haven't been for him. Just saying he might

be dealing with a lot internally. Which you know and as parents we

want to help but they don't want to let us in.

Maybe if he's the same for the next couple weeks - well, how would he

feel about going back there?

How long has it been since he's been off all meds?

I would think the hospital personnel would work with the family on

what to expect when " patient " comes home and how to handle/act around

them. If they didn't, I would call, tell them you are very concerned

and explain and ask them for guidance. And don't take " no " for an

answer or any answers that are no help. Go up the ladder to

administrator or whoever if need be.

Please keep us updated on you and Garrett. Even if he doesn't want

to hear you, I think I'd sit him down, talk anyway about how you

worry about him, you can't just guess accurately how he's feeling,

that you wonder....this/that...he might get grouchy and not want to

hear it but he *will* have heard it so if you're not paying attention

to him he'll know why (you felt he wanted to be left alone) and if

you are paying too much attention, he'll know why, etc.

Even with supposedly typical teens (moody, emotional years), it's

hard to know how to handle their emotional ups/downs and how to

respond (they seem to expect some certain response from us parents).

>

> I don't even know where to begin. Garrett was in the hospital for

> two full weeks. Then he started an outpatient program. He was in

> that four about two days and went back to the hospital for another

> week. After completing a full week in the outpatient program, he

is

> now home and back to his middle school. I am very concerned about

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  • 11 months later...

, a few months ago I looked like I was pregnant too from the lipodystrophy. My doctor told me that the belly is a sign of insulin resistence. So it made sense to me to go on a diet that was made for people who have diabetes, even though I don't have diabetes. It worked! My belly is much much smaller now. Everyone is commenting on it. It's such an easy diet for me. The book that I recommend to you is "The G.I. (Glycemic Index) Diet" by Rick Gallop. For a more detailed book on the same diet, you can also looked at "The New Glucose Revolution" by Jennie Brand- et al. In about 3 months I went from a size 10 pants (to make up for my belly size), to my normal size 8. The book recommends exercise too, which I do by walking on a treadmill and doing light weight training. I swear by this diet. It should help with cholesterol and triglycerides too because of the elimination of sugar and eating healthier fats. I can't wait to see the results of my next blood tests. I will post them in here when I receive them very soon. I will not eat any differently. I hope that you give it a try.

My best to you,

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  • 4 years later...

Look at web site:

http://web.me.com/willwinter/traditionalfoodsmn.mac.com/Welcome.html

 

302 W 61 st St Minneapolis MN 55419

 

 

We are open Tues, Thurs 10 am to 8 pm and Sat  9 am to 2 pm.

 

Thanks,

Warren

Subject: Help

To: trad-foods-MN

Date: Monday, November 16, 2009, 9:18 AM

 

I had heard about the food warehouse, but now can't remember where it is -

anyone that can help??

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Look at web site:

http://web.me.com/willwinter/traditionalfoodsmn.mac.com/Welcome.html

 

302 W 61 st St Minneapolis MN 55419

 

 

We are open Tues, Thurs 10 am to 8 pm and Sat  9 am to 2 pm.

 

Thanks,

Warren

Subject: Help

To: trad-foods-MN

Date: Monday, November 16, 2009, 9:18 AM

 

I had heard about the food warehouse, but now can't remember where it is -

anyone that can help??

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  • 1 year later...

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