help

> >

> > FEAT News Information:

> http://www.feat.org/scripts/wa.exe

> > " Healing Autism: No Finer a Cause on the Planet "

> >

June 14, 2002

Are you trying the gf/cf diet? Most of the regular breads have casein in

them. You can find more information at gfcfdiet.com.

Mika

playmaker_mb wrote:

> The brand " Iron Kids " bread that you can buy at any store is it casein

> free? I am trying to find a bread for my son to make PB & J, Grilled

> Cheese etc. I have been giving him " Iron Kids " but maybe Im just not

> sure what some of the ingrediants mean.....for example:

>

> malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> peroxide, calcium carbonate, calcuim sulfate etc.

>

> Does anyone know if " Iron Kids " is Casein free? Also any suggestions

> on the best white type bread thats closest to regular bread?

>

> Thanks!

>

> TEXAS-AUTISM-ADVOCACY WEBSITE: http://www.angelfire.com/tx5/autismlist

>

> FEAT News Information:

> http://www.feat.org

> " Healing Autism: No Finer a Cause on the Planet "

>

June 14, 2002

I called the manufacturer of " Iron Kids " and it indeed does not contain

Casein or dairy.

My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

following day. Im still finding things that I missed in some foods like

whey but he at least 90% dairy free and Im working on 100% CF. I

realize that i am going to have to go GF as well but im am trying to

gradually reduce these items and have begun doing so. Ultimately once I

learn the ropes he will be 100% GF and CF.

But we have noticed improvements already. His eye contact is more

consistent (lasts longer), his stools have improved, his stim play has

decreased (he seems to be playing w/ his trains and such normally.) Im

no expert but for example he used to just go in and out of the tunnels

over and over but now its all around the track etc. He is mumbling a

lot more and the other day he took a doll and actually played like he

was feeding it!!

Im curious, should i have my son tested somehow to make sure that this

diet is necessary? I obtained hi shot records (vaccines) and discovered

that a lot of the shots did contain Thimersol. I am pretty sure that he

has a " leaky gut " but who can I see that can help me to know for sure?

Any advise?

Mika McGough wrote:

>

> Are you trying the gf/cf diet? Most of the regular breads have casein

> in

> them. You can find more information at gfcfdiet.com.

>

> Mika

>

> playmaker_mb wrote:

>

> > The brand " Iron Kids " bread that you can buy at any store is it

> casein

> > free? I am trying to find a bread for my son to make PB & J,

> Grilled

> > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> not

> > sure what some of the ingrediants mean.....for example:

> >

> > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > peroxide, calcium carbonate, calcuim sulfate etc.

> >

> > Does anyone know if " Iron Kids " is Casein free? Also any

> suggestions

> > on the best white type bread thats closest to regular bread?

> >

> > Thanks!

> >

> > TEXAS-AUTISM-ADVOCACY WEBSITE:

> >

> > FEAT News Information:

> > " Healing Autism: No Finer a Cause on the Planet "

> >

June 14, 2002

I am new to the group and I have a 6 1/2year old son who was diagnosed about

3 years ago with autism. I have actually gotten more info from the groups

than any professionals. They all act like everything is a big secret.

I was wondering what " leaky gut " meant.

I live in the Commerce area if there is anyone else from there or nearby.

Thanks,

Christi Dalton

-- Re: Help

I called the manufacturer of " Iron Kids " and it indeed does not contain

Casein or dairy.

My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

following day. Im still finding things that I missed in some foods like

whey but he at least 90% dairy free and Im working on 100% CF. I

realize that i am going to have to go GF as well but im am trying to

gradually reduce these items and have begun doing so. Ultimately once I

learn the ropes he will be 100% GF and CF.

But we have noticed improvements already. His eye contact is more

consistent (lasts longer), his stools have improved, his stim play has

decreased (he seems to be playing w/ his trains and such normally.) Im

no expert but for example he used to just go in and out of the tunnels

over and over but now its all around the track etc. He is mumbling a

lot more and the other day he took a doll and actually played like he

was feeding it!!

Im curious, should i have my son tested somehow to make sure that this

diet is necessary? I obtained hi shot records (vaccines) and discovered

that a lot of the shots did contain Thimersol. I am pretty sure that he

has a " leaky gut " but who can I see that can help me to know for sure?

Any advise?

Mika McGough wrote:

>

> Are you trying the gf/cf diet? Most of the regular breads have casein

> in

> them. You can find more information at gfcfdiet.com.

>

> Mika

>

> playmaker_mb wrote:

>

> > The brand " Iron Kids " bread that you can buy at any store is it

> casein

> > free? I am trying to find a bread for my son to make PB & J,

> Grilled

> > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> not

> > sure what some of the ingrediants mean.....for example:

> >

> > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > peroxide, calcium carbonate, calcuim sulfate etc.

> >

> > Does anyone know if " Iron Kids " is Casein free? Also any

> suggestions

> > on the best white type bread thats closest to regular bread?

> >

> > Thanks!

> >

> > TEXAS-AUTISM-ADVOCACY WEBSITE:

> >

> > FEAT News Information:

> > " Healing Autism: No Finer a Cause on the Planet "

> >

June 14, 2002

Hi Christi:

Welcome to the group.

The leaky gut or LGS is a poorly recognized but extremely common

problem. It is rarely tested for. Essentially, it represents a

hyperpermeable intestinal lining. In other words, large spaces develop

between the cells of the gut wall, and bacteria, toxins and food leak in.

The official definition is an increase in permeability of the intestinal

mucosa to luminal macromolecules, antigens and toxins associated with

inflammatory degenerative and/or atrophic mucosal damage.

If the gut is not healthy, neither is the rest of the body. It is the point

of fuel and nutrient entry. If healing is at a standstill look at the gut

to see if this is the block. Chemical sensitivity, fibromyalgia and

escalating food allergies are among the many problems caused by the leaky

gut. If gas, bloating, abdominal pain, indigestion, alternating

constipation and diarrhea are symptoms, irritable bowel syndrome may not be

all that's going on.

Hope this helps.

Peacefully,

Jeff Sell

Hitt * * Sell

4309 Yoakum Blvd.

Suite 2000

Houston, TX 77006

(fax)

JZSell@... (office)

jzsell@... (home)

(cell/v-mail)

Re: Help

I called the manufacturer of " Iron Kids " and it indeed does not contain

Casein or dairy.

My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

following day. Im still finding things that I missed in some foods like

whey but he at least 90% dairy free and Im working on 100% CF. I

realize that i am going to have to go GF as well but im am trying to

gradually reduce these items and have begun doing so. Ultimately once I

learn the ropes he will be 100% GF and CF.

But we have noticed improvements already. His eye contact is more

consistent (lasts longer), his stools have improved, his stim play has

decreased (he seems to be playing w/ his trains and such normally.) Im

no expert but for example he used to just go in and out of the tunnels

over and over but now its all around the track etc. He is mumbling a

lot more and the other day he took a doll and actually played like he

was feeding it!!

Im curious, should i have my son tested somehow to make sure that this

diet is necessary? I obtained hi shot records (vaccines) and discovered

that a lot of the shots did contain Thimersol. I am pretty sure that he

has a " leaky gut " but who can I see that can help me to know for sure?

Any advise?

Mika McGough wrote:

>

> Are you trying the gf/cf diet? Most of the regular breads have casein

> in

> them. You can find more information at gfcfdiet.com.

>

> Mika

>

> playmaker_mb wrote:

>

> > The brand " Iron Kids " bread that you can buy at any store is it

> casein

> > free? I am trying to find a bread for my son to make PB & J,

> Grilled

> > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> not

> > sure what some of the ingrediants mean.....for example:

> >

> > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > peroxide, calcium carbonate, calcuim sulfate etc.

> >

> > Does anyone know if " Iron Kids " is Casein free? Also any

> suggestions

> > on the best white type bread thats closest to regular bread?

> >

> > Thanks!

> >

> > TEXAS-AUTISM-ADVOCACY WEBSITE:

> >

> > FEAT News Information:

> > " Healing Autism: No Finer a Cause on the Planet "

> >

June 14, 2002

Christie:

One more thing--Here is an article that discusess " leaky gut " . Hope

you find this helpful.

Peacefully,

Jeff Sell

Hitt * * Sell

4309 Yoakum Blvd.

Suite 2000

Houston, TX 77006

(fax)

JZSell@... (office)

jzsell@... (home)

(cell/v-mail)

***************************************************

'Leaky Gut' and the Gluten- / Casein-Free Diet

Written by M. Edelson, Ph.D.

Center for the Study of Autism, Salem, Oregon

Another popular intervention for autism is the gluten-/casein-free diet.

Thousands of parents throughout the world have placed their children on this

restricted diet and have observed dramatic improvements. As a result, many

recipes have been published in specialized cook-books, newsletters, and on

the Internet.

Leaky gut.: Many autistic individuals have tiny holes in their intestinal

tract, and this is often referred to as ‘leaky gut.’ There appears to be

many reasons for the problem of ‘leaky gut’ in autistic individuals, such as

a viral infection (e.g., measles), yeast infection (i.e., an overgrowth of

candida albicans), and a reduction in phenol sulfur transferase (PST; which

lines the intestinal tract and protects it from leakiness). There is also

some speculation that heavy metals in the intestinal tract can lead to an

infection; and this, in turn, can cause ‘leaky gut.’

As far as treating these potential causes of ‘leaky gut’:

Viral -- There are no drugs that can destroy viruses in the body but there

are anti-viral drugs that can 'slow down' the virus.

Candida albicans -- Many children have tested positive to candida albicans

overgrowth and have been treated with anti-fungal medications (see section

on candida albicans in this issue).

Low levels of PST -- Some parents give their children Epson salt baths to

increase levels of PST.

Children are also receiving metal detoxification procedures to rid their

body of excess heavy metals.

Gluten and casein. Gluten is a protein and is contained in the grass foods,

such as wheat, barley, rye and oats. Casein is also a protein and is found

in dairy products such as milk, ice cream, cheese and yogurt. In the

intestinal tract, gluten and casein breakdown into peptides; and these

peptides then breakdown into amino acids.

At the present time, we do not know why the gluten-/ casein-free diet helps

many autistic individuals. One popular theory is that when gluten and casein

are broken down into peptides, they may pass through the small holes in the

intestinal tract. These peptides are termed gliadinomorphin (breakdown of

the gluten protein) and casomorphin (breakdown of the casein protein). Both

peptides act like morphine in the body. They can also pass through the

blood-brain barrier and have a negative impact on brain development.

As stated earlier, the most popular treatment for this problem is to place

the child on a gluten- and/or casein-free diet. When placed on a diet,

children, especially under 5 years of age, should not go ‘cold turkey.’ That

is, if all gluten/casein food ingredients are suddenly removed from the

child’s diet, this could lead to ‘with-drawal’ symptoms, i.e., a worsening

of the condition. , Ph.D., a parent of an autistic child who is

actively involved in disseminating information on the gluten- and

casein-free diet, suggests that young children under age six years should be

placed on a trial diet for three months to see if there are any

improve-ments; and children who are six years and older should be placed on

a trial diet for six months.

Some people suggest that the health status of the child’s intestinal tract

should be examined first; and if there is evidence of a ‘leaky gut,’ then

the child should be placed on a gluten- and/or casein-free diet. The

intestinal permeability test is one way to determine whether a child has a

‘leaky gut.’ This test involves drinking a sweet-tasting solution and then

collecting urine samples afterwards. Most physicians can administer this

test. Parents have also sent their child’s urine samples to laboratories to

test for the presence of abnormal peptides associated with gluten and casein

in the urine. However, some people feel that these tests are not necessary

and suggest that one should simply place the child on a restricted diet and

then observe whether or not there are any improvements in the child.

Resources:

Special Diets for Special Kids (1998) by S.

Unraveling the Mystery of Autism and Pervasive Developmental Disorder (2000)

by Karyn Seroussi

Autism Network for Dietary Intervention (ANDI): www.AutismNDI.com

Celiac (wheat) and casein (milk protein) sensitivity. Information packet

(P-26, $11.00) distributed by the Autism Research Institute

(www.autismresearchinstitute.com). The and Seroussi books can also be

ordered from ARI.

Re: Help

I called the manufacturer of " Iron Kids " and it indeed does not contain

Casein or dairy.

My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

following day. Im still finding things that I missed in some foods like

whey but he at least 90% dairy free and Im working on 100% CF. I

realize that i am going to have to go GF as well but im am trying to

gradually reduce these items and have begun doing so. Ultimately once I

learn the ropes he will be 100% GF and CF.

But we have noticed improvements already. His eye contact is more

consistent (lasts longer), his stools have improved, his stim play has

decreased (he seems to be playing w/ his trains and such normally.) Im

no expert but for example he used to just go in and out of the tunnels

over and over but now its all around the track etc. He is mumbling a

lot more and the other day he took a doll and actually played like he

was feeding it!!

Im curious, should i have my son tested somehow to make sure that this

diet is necessary? I obtained hi shot records (vaccines) and discovered

that a lot of the shots did contain Thimersol. I am pretty sure that he

has a " leaky gut " but who can I see that can help me to know for sure?

Any advise?

Mika McGough wrote:

>

> Are you trying the gf/cf diet? Most of the regular breads have casein

> in

> them. You can find more information at gfcfdiet.com.

>

> Mika

>

> playmaker_mb wrote:

>

> > The brand " Iron Kids " bread that you can buy at any store is it

> casein

> > free? I am trying to find a bread for my son to make PB & J,

> Grilled

> > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> not

> > sure what some of the ingrediants mean.....for example:

> >

> > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > peroxide, calcium carbonate, calcuim sulfate etc.

> >

> > Does anyone know if " Iron Kids " is Casein free? Also any

> suggestions

> > on the best white type bread thats closest to regular bread?

> >

> > Thanks!

> >

> > TEXAS-AUTISM-ADVOCACY WEBSITE:

> >

> > FEAT News Information:

> > " Healing Autism: No Finer a Cause on the Planet "

> >

June 14, 2002

question about Leaky Gut.....

Once your child is on the CFGF diet for " X " amount of time does his

intestinal tract heal? Is the " leaky gut " fixed? Can they then go on

w/ normal diets? Is it possible that once the leaky gut is healed (if

possible) could they then be cured of PDD symptoms?

Jeff Sell wrote:

>

> Christie:

> One more thing--Here is an article that discusess " leaky gut " .

> Hope

> you find this helpful.

> Peacefully,

> Jeff Sell

> Hitt * * Sell

> 4309 Yoakum Blvd.

> Suite 2000

> Houston, TX 77006

>

> (fax)

> www.HittSell.com

> JZSell@... (office)

> jzsell@... (home)

> (cell/v-mail)

> www.vaccineinjury.org

>

> ***************************************************

> 'Leaky Gut' and the Gluten- / Casein-Free Diet

> Written by M. Edelson, Ph.D.

>

> Center for the Study of Autism, Salem, Oregon

> Another popular intervention for autism is the gluten-/casein-free

> diet.

> Thousands of parents throughout the world have placed their children

> on this

> restricted diet and have observed dramatic improvements. As a result,

> many

> recipes have been published in specialized cook-books, newsletters,

> and on

> the Internet.

>

> Leaky gut.: Many autistic individuals have tiny holes in their

> intestinal

> tract, and this is often referred to as ‘leaky gut.’ There appears to

> be

> many reasons for the problem of ‘leaky gut’ in autistic individuals,

> such as

> a viral infection (e.g., measles), yeast infection (i.e., an

> overgrowth of

> candida albicans), and a reduction in phenol sulfur transferase (PST;

> which

> lines the intestinal tract and protects it from leakiness). There is

> also

> some speculation that heavy metals in the intestinal tract can lead to

> an

> infection; and this, in turn, can cause ‘leaky gut.’

> As far as treating these potential causes of ‘leaky gut’:

> Viral -- There are no drugs that can destroy viruses in the body but

> there

> are anti-viral drugs that can 'slow down' the virus.

> Candida albicans -- Many children have tested positive to candida

> albicans

> overgrowth and have been treated with anti-fungal medications (see

> section

> on candida albicans in this issue).

> Low levels of PST -- Some parents give their children Epson salt baths

> to

> increase levels of PST.

> Children are also receiving metal detoxification procedures to rid

> their

> body of excess heavy metals.

> Gluten and casein. Gluten is a protein and is contained in the grass

> foods,

> such as wheat, barley, rye and oats. Casein is also a protein and is

> found

> in dairy products such as milk, ice cream, cheese and yogurt. In the

> intestinal tract, gluten and casein breakdown into peptides; and these

> peptides then breakdown into amino acids.

> At the present time, we do not know why the gluten-/ casein-free diet

> helps

> many autistic individuals. One popular theory is that when gluten and

> casein

> are broken down into peptides, they may pass through the small holes

> in the

> intestinal tract. These peptides are termed gliadinomorphin (breakdown

> of

> the gluten protein) and casomorphin (breakdown of the casein protein).

> Both

> peptides act like morphine in the body. They can also pass through the

> blood-brain barrier and have a negative impact on brain development.

>

> As stated earlier, the most popular treatment for this problem is to

> place

> the child on a gluten- and/or casein-free diet. When placed on a diet,

> children, especially under 5 years of age, should not go ‘cold

> turkey.’ That

> is, if all gluten/casein food ingredients are suddenly removed from

> the

> child’s diet, this could lead to ‘with-drawal’ symptoms, i.e., a

> worsening

> of the condition. , Ph.D., a parent of an autistic child who

> is

> actively involved in disseminating information on the gluten- and

> casein-free diet, suggests that young children under age six years

> should be

> placed on a trial diet for three months to see if there are any

> improve-ments; and children who are six years and older should be

> placed on

> a trial diet for six months.

> Some people suggest that the health status of the child’s intestinal

> tract

> should be examined first; and if there is evidence of a ‘leaky gut,’

> then

> the child should be placed on a gluten- and/or casein-free diet. The

> intestinal permeability test is one way to determine whether a child

> has a

> ‘leaky gut.’ This test involves drinking a sweet-tasting solution and

> then

> collecting urine samples afterwards. Most physicians can administer

> this

> test. Parents have also sent their child’s urine samples to

> laboratories to

> test for the presence of abnormal peptides associated with gluten and

> casein

> in the urine. However, some people feel that these tests are not

> necessary

> and suggest that one should simply place the child on a restricted

> diet and

> then observe whether or not there are any improvements in the child.

>

> Resources:

> Special Diets for Special Kids (1998) by S.

> Unraveling the Mystery of Autism and Pervasive Developmental Disorder

> (2000)

> by Karyn Seroussi

> Autism Network for Dietary Intervention (ANDI): www.AutismNDI.com

> Celiac (wheat) and casein (milk protein) sensitivity. Information

> packet

> (P-26, $11.00) distributed by the Autism Research Institute

> (www.autismresearchinstitute.com). The and Seroussi books can

> also be

> ordered from ARI.

> Re: Help

>

> I called the manufacturer of " Iron Kids " and it indeed does not

> contain

> Casein or dairy.

> My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> following day. Im still finding things that I missed in some foods

> like

> whey but he at least 90% dairy free and Im working on 100% CF. I

> realize that i am going to have to go GF as well but im am trying to

> gradually reduce these items and have begun doing so. Ultimately once

> I

> learn the ropes he will be 100% GF and CF.

> But we have noticed improvements already. His eye contact is more

> consistent (lasts longer), his stools have improved, his stim play has

>

> decreased (he seems to be playing w/ his trains and such normally.)

> Im

> no expert but for example he used to just go in and out of the tunnels

>

> over and over but now its all around the track etc. He is mumbling a

> lot more and the other day he took a doll and actually played like he

> was feeding it!!

> Im curious, should i have my son tested somehow to make sure that

> this

> diet is necessary? I obtained hi shot records (vaccines) and

> discovered

> that a lot of the shots did contain Thimersol. I am pretty sure that

> he

> has a " leaky gut " but who can I see that can help me to know for

> sure?

> Any advise?

> Mika McGough wrote:

> >

> > Are you trying the gf/cf diet? Most of the regular breads have

> casein

> > in

> > them. You can find more information at gfcfdiet.com.

> >

> > Mika

> >

> > playmaker_mb wrote:

> >

> > > The brand " Iron Kids " bread that you can buy at any store is it

> > casein

> > > free? I am trying to find a bread for my son to make PB & J,

> > Grilled

> > > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> > not

> > > sure what some of the ingrediants mean.....for example:

> > >

> > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > peroxide, calcium carbonate, calcuim sulfate etc.

> > >

> > > Does anyone know if " Iron Kids " is Casein free? Also any

> > suggestions

> > > on the best white type bread thats closest to regular bread?

> > >

> > > Thanks!

> > >

> > > TEXAS-AUTISM-ADVOCACY WEBSITE:

> > >

> > > FEAT News Information:

> > > " Healing Autism: No Finer a Cause on the Planet "

> > >

June 14, 2002

Ms. Bellows:

We sure hope so. Some experts say " yes " , some say " maybe " . I think the

jury is still out on the question. Maybe Mika can add to this? Mika, you

out there babe?

As far as cured goes, I will never give up hope that a " cure " will come

along for Ben and Joe (my 8 year-old autistic twins). I think it is safe to

say that a number of kids have improved so significantly, that the diagnosis

of ASD is removed.

Lastly, if you are married to Mike, have him check his cell phone voice

mail--I just got back to the office and returned his call--we have been

trying to talk for a couple of days now. My backline at the office is

. I'll be here late tonight!!

Peacefully,

Jeff Sell

Hitt * * Sell

4309 Yoakum Blvd.

Suite 2000

Houston, TX 77006

(fax)

JZSell@... (office)

jzsell@... (home)

(cell/v-mail)

Re: Help

>

> I called the manufacturer of " Iron Kids " and it indeed does not

> contain

> Casein or dairy.

> My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> following day. Im still finding things that I missed in some foods

> like

> whey but he at least 90% dairy free and Im working on 100% CF. I

> realize that i am going to have to go GF as well but im am trying to

> gradually reduce these items and have begun doing so. Ultimately once

> I

> learn the ropes he will be 100% GF and CF.

> But we have noticed improvements already. His eye contact is more

> consistent (lasts longer), his stools have improved, his stim play has

>

> decreased (he seems to be playing w/ his trains and such normally.)

> Im

> no expert but for example he used to just go in and out of the tunnels

>

> over and over but now its all around the track etc. He is mumbling a

> lot more and the other day he took a doll and actually played like he

> was feeding it!!

> Im curious, should i have my son tested somehow to make sure that

> this

> diet is necessary? I obtained hi shot records (vaccines) and

> discovered

> that a lot of the shots did contain Thimersol. I am pretty sure that

> he

> has a " leaky gut " but who can I see that can help me to know for

> sure?

> Any advise?

> Mika McGough wrote:

> >

> > Are you trying the gf/cf diet? Most of the regular breads have

> casein

> > in

> > them. You can find more information at gfcfdiet.com.

> >

> > Mika

> >

> > playmaker_mb wrote:

> >

> > > The brand " Iron Kids " bread that you can buy at any store is it

> > casein

> > > free? I am trying to find a bread for my son to make PB & J,

> > Grilled

> > > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> > not

> > > sure what some of the ingrediants mean.....for example:

> > >

> > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > peroxide, calcium carbonate, calcuim sulfate etc.

> > >

> > > Does anyone know if " Iron Kids " is Casein free? Also any

> > suggestions

> > > on the best white type bread thats closest to regular bread?

> > >

> > > Thanks!

> > >

> > > TEXAS-AUTISM-ADVOCACY WEBSITE:

<http://www.angelfire.com/tx5/autismlist>

> > >

> > > FEAT News Information:

<http://www.feat.org/scripts/wa.exe>

> > > http://www.feat.org <http://www.feat.org>

> > > " Healing Autism: No Finer a Cause on the Planet "

> > >

June 14, 2002

Mr. Sell,

this is Mike Bellows. I will try and catch you at the office tonight,

once I get my boys out of the bath. If I miss you I will try again or

obviously you can call me at your convenience.

Cell

Home

Jeff Sell wrote:

>

> Ms. Bellows:

> We sure hope so. Some experts say " yes " , some say " maybe " . I

> think the

> jury is still out on the question. Maybe Mika can add to this? Mika,

> you

> out there babe?

> As far as cured goes, I will never give up hope that a " cure " will

> come

> along for Ben and Joe (my 8 year-old autistic twins). I think it is

> safe to

> say that a number of kids have improved so significantly, that the

> diagnosis

> of ASD is removed.

> Lastly, if you are married to Mike, have him check his cell phone

> voice

> mail--I just got back to the office and returned his call--we have

> been

> trying to talk for a couple of days now. My backline at the office is

> . I'll be here late tonight!!

> Peacefully,

> Jeff Sell

> Hitt * * Sell

> 4309 Yoakum Blvd.

> Suite 2000

> Houston, TX 77006

>

> (fax)

> www.HittSell.com

> JZSell@... (office)

> jzsell@... (home)

> (cell/v-mail)

> www.vaccineinjury.org

>

> Re: Help

> >

> > I called the manufacturer of " Iron Kids " and it indeed does not

> > contain

> > Casein or dairy.

> > My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> > following day. Im still finding things that I missed in some foods

> > like

> > whey but he at least 90% dairy free and Im working on 100% CF. I

> > realize that i am going to have to go GF as well but im am trying to

> > gradually reduce these items and have begun doing so. Ultimately

> once

> > I

> > learn the ropes he will be 100% GF and CF.

> > But we have noticed improvements already. His eye contact is more

> > consistent (lasts longer), his stools have improved, his stim play

> has

> >

> > decreased (he seems to be playing w/ his trains and such normally.)

> > Im

> > no expert but for example he used to just go in and out of the

> tunnels

> >

> > over and over but now its all around the track etc. He is mumbling

> a

> > lot more and the other day he took a doll and actually played like

> he

> > was feeding it!!

> > Im curious, should i have my son tested somehow to make sure that

> > this

> > diet is necessary? I obtained hi shot records (vaccines) and

> > discovered

> > that a lot of the shots did contain Thimersol. I am pretty sure

> that

> > he

> > has a " leaky gut " but who can I see that can help me to know for

> > sure?

> > Any advise?

> > Mika McGough wrote:

> > >

> > > Are you trying the gf/cf diet? Most of the regular breads have

> > casein

> > > in

> > > them. You can find more information at gfcfdiet.com.

> > >

> > > Mika

> > >

> > > playmaker_mb wrote:

> > >

> > > > The brand " Iron Kids " bread that you can buy at any store is it

> > > casein

> > > > free? I am trying to find a bread for my son to make PB & J,

> > > Grilled

> > > > Cheese etc. I have been giving him " Iron Kids " but maybe Im

> just

> > > not

> > > > sure what some of the ingrediants mean.....for example:

> > > >

> > > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > > peroxide, calcium carbonate, calcuim sulfate etc.

> > > >

> > > > Does anyone know if " Iron Kids " is Casein free? Also any

> > > suggestions

> > > > on the best white type bread thats closest to regular bread?

> > > >

> > > > Thanks!

> > > >

> > > > TEXAS-AUTISM-ADVOCACY WEBSITE:

> > > http://www.angelfire.com/tx5/autismlist

> <http://www.angelfire.com/tx5/autismlist>

> > > >

> > > > FEAT News Information:

> > > > http://www.feat.org/scripts/wa.exe

> <http://www.feat.org/scripts/wa.exe>

> > > > http://www.feat.org <http://www.feat.org>

> > > > " Healing Autism: No Finer a Cause on the Planet "

> > > >

June 14, 2002

That is great. They had started the pecs with my son before but the speech

therapist was not consistent in what she was asking of him. He became

confused and started new bad behavior like banging his head oh the floor and

slapping himself in the face. I took him out of the school for the rest of

the year and started him in private speech therapy for a full year. He was

only 3 years old when we first started him in school and we were still in

denial that he really had autism. Dan, (my son's father and now my

ex-husband) would not believe that anything was wrong. His family tried to

convince him that he was just slow to talk and that he would " pull out of it

.. I knew it was something more but was pulled between Dan and the

professionals. The professionals wouldn't answer my questions where I could

understand them. It was always abreviations and terms I had never heard of.

I even ran into two different, supposedly highly respected pediatricians,

in our area that wanted to turn me into to social services because my son

wasn't potty trained and not talking. They acted totally clueless about

autism. Seems like it has been a real fight to get anyone to help or

understand. Maybe it is because we are in a small town. Gosh I can really

get distracted in my stories... Back to pecs. Well after a year of private

speech therapy, we had to stop doing that because we had spent every cent we

had to pay for it and still we didn't see any results. At age 5 years old

we decided to put him back in school but I was much stronger and had

accepted it at that point. I made them explain things and if I didn't feel

good about something I had no problem saying it. I had just left my

ex-husband and filed for divorce. I was on my own and ready to be my son's

advocate. School is going pretty well but when I saw the biggest change was

when I removed him from a daycare in town that he had been going to since he

was 2 years old. In one week they had lost him 3 times. My son is just

mildly autistic (that is what the professionals say) and pretty easy to take

care of. He tends to want to be left alone and isn't very demanding. After

putting him in this new daycare we are finally getting him potty trained, he

makes a lot more eye contact and is making a lot more progress in school.

There is nothing special about this daycare except their main focus isn't on

themselves, it is on the kids. The workers there have kids in the daycare

and the lady that watches (my son) the most has a child that has some

special needs but not as noticeable as 's. She is so patient and

caring with . It is amazing the change that we have seen just from

moving him. Though maybe he was due to start making progress, I don't know

but we are really tickled. So anyways, other kids in the class had been

using the pecs and my son had seen them using it. The teacher said one day

he went and got another boy's book because he hadn't been using the pecs so

he didn't have his own. He had evidently watched close enough that when he

picked up the other boys book, he knew what cards to place where and said

the words to get what he wanted. They immediately started him with his own

book and he seems to be doing pretty well with it.

I have a child on the way now. I am 6 months along and really worried that

this one may be autistic too. I try not to think about it too much. My

current husband doesn't have any other children. This one will be his first

His sister had a lot of disabilities and special needs. She passed away

several years ago. (my husband now) is really good with and

seems like the first man that isn't afraid of him. Seems when you mention

that your child is autistic everyone thinks they are a monster. They are

Angels " to me.

Gosh, sorry for writing too much but I don't know a single other person with

a special needs child. At this point, I have no other friends other than

family. When I did have a few people that I would call friends they couldn

t understand the joy I had with my 5 year old son could say cookie or he

learned a new word. He has limited speech but it is getting a lot better.

We are still of course a long way from being caught up but I am really

pleased. I always tell him how smart he is and to me he is really smart. I

am soooo proud of my son.

Just delete this email if it is too long... lol I will understand. If this

isn't what this list is for just let me know.

Huggz to all,

Christi

-- Re: Help

>

> I called the manufacturer of " Iron Kids " and it indeed does not contain

> Casein or dairy.

> My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> following day. Im still finding things that I missed in some foods like

> whey but he at least 90% dairy free and Im working on 100% CF. I

> realize that i am going to have to go GF as well but im am trying to

> gradually reduce these items and have begun doing so. Ultimately once I

> learn the ropes he will be 100% GF and CF.

> But we have noticed improvements already. His eye contact is more

> consistent (lasts longer), his stools have improved, his stim play has

> decreased (he seems to be playing w/ his trains and such normally.) Im

> no expert but for example he used to just go in and out of the tunnels

> over and over but now its all around the track etc. He is mumbling a

> lot more and the other day he took a doll and actually played like he

> was feeding it!!

> Im curious, should i have my son tested somehow to make sure that this

> diet is necessary? I obtained hi shot records (vaccines) and discovered

> that a lot of the shots did contain Thimersol. I am pretty sure that he

> has a " leaky gut " but who can I see that can help me to know for sure?

> Any advise?

> Mika McGough wrote:

> >

> > Are you trying the gf/cf diet? Most of the regular breads have casein

> > in

> > them. You can find more information at gfcfdiet.com.

> >

> > Mika

> >

> > playmaker_mb wrote:

> >

> > > The brand " Iron Kids " bread that you can buy at any store is it

> > casein

> > > free? I am trying to find a bread for my son to make PB & J,

> > Grilled

> > > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> > not

> > > sure what some of the ingrediants mean.....for example:

> > >

> > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > peroxide, calcium carbonate, calcuim sulfate etc.

> > >

> > > Does anyone know if " Iron Kids " is Casein free? Also any

> > suggestions

> > > on the best white type bread thats closest to regular bread?

> > >

> > > Thanks!

> > >

> > > TEXAS-AUTISM-ADVOCACY WEBSITE:

> > >

> > > FEAT News Information:

> > > " Healing Autism: No Finer a Cause on the Planet "

> > >

June 15, 2002

Christi,

My son and I will b taking a two week PEC'S class this summer, July 15 - 26

in Wilmington, DE. He has mastered the limited PEC'S training our consultant

can provide and her recommendation was for us to attend this PEC'S Camp.

My son used to have constipation and diarrhea simultaneously and what I know

now, it could have very well been an obstruction which could have been very

dangerous. It appears to have cleared up with the GFCF Diet, secretin

infusions, bovine colostrum.

My son's leaky gut and candida albicans were confirmed by an endoscopy (if I

remember the info correctly). The endoscopy was not able to confirm celiac

sprue disease because my son had already been gluten free for over a year.

I had a gluten casein urinary peptide test done by The Great Plains Lab

because I wanted proof, not for myself because I have seen great gains in my

son, but, for my son's non DAN doctors. It was a waste of money, time and

effort because all they could say is that they did not have any knowledge of

the GPL.

Hope

In a message dated 6/15/02 12:03:05 AM Eastern Daylight Time,

autism@... writes:

> Subj:RE: Help

> Date:6/15/02 12:03:05 AM Eastern Daylight Time

> From:<A HREF= " mailto:autism@... " >autism@...</A>

> Reply-to:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

> Thank you Jeff for the info. I have heard of that but never heard it

> called

> the " leaky gut " .

>

> I am going to read more about this gfcf diet though I am not sure what I

> can

> do about my son's diet. He is so extremely picky. Right now all he will

> eat is french fries, pizza, eggs, baccon and weinies (and a few other small

> things that can't be considered a meal). I have tried to get him to try

> new

> things but he will literally vomit as soon as it hits his tongue. It isn't

> that he is spitting it out, he actually vomits a significant amount. Much

> more than just the small bite I managed to make him taste. I have given up

> trying to get him to try new stuff. I hope by him seeing it on my plate he

> will try a bite eventually. Any suggestions on this or is this normal?

>

> Is anyone using the PECs system. Picture Exchange System?? If so how does

> it seem to be working for you? My son's school has just started this with

> him. I am wondering if other parents are doing this and if they are having

> any verbal progress with it.

>

> Gosh this is sooo wonderful to find a group of people to talk to. I have

> so

> many questions and so much to say but I will wait and not bomb-bard

> everyone

> with a big novel... lol

>

> Another quick question... why all of the sudden is the media interested in

> autism? Why hasn't this been important before now?? Just wondering.

>

> Huggz,

> Christi Dalton

>

> -- Re: Help

>

> I called the manufacturer of " Iron Kids " and it indeed does not contain

> Casein or dairy.

> My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> following day. Im still finding things that I missed in some foods like

> whey but he at least 90% dairy free and Im working on 100% CF. I

> realize that i am going to have to go GF as well but im am trying to

> gradually reduce these items and have begun doing so. Ultimately once I

> learn the ropes he will be 100% GF and CF.

> But we have noticed improvements already. His eye contact is more

> consistent (lasts longer), his stools have improved, his stim play has

> decreased (he seems to be playing w/ his trains and such normally.) Im

> no expert but for example he used to just go in and out of the tunnels

> over and over but now its all around the track etc. He is mumbling a

> lot more and the other day he took a doll and actually played like he

> was feeding it!!

> Im curious, should i have my son tested somehow to make sure that this

> diet is necessary? I obtained hi shot records (vaccines) and discovered

> that a lot of the shots did contain Thimersol. I am pretty sure that he

> has a " leaky gut " but who can I see that can help me to know for sure?

> Any advise?

> Mika McGough wrote:

> >

> > Are you trying the gf/cf diet? Most of the regular breads have casein

> > in

> > them. You can find more information at gfcfdiet.com.

> >

> > Mika

> >

> > playmaker_mb wrote:

> >

> > > The brand " Iron Kids " bread that you can buy at any store is it

> > casein

> > > free? I am trying to find a bread for my son to make PB & J,

> > Grilled

> > > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> > not

> > > sure what some of the ingrediants mean.....for example:

> > >

> > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > peroxide, calcium carbonate, calcuim sulfate etc.

> > >

> > > Does anyone know if " Iron Kids " is Casein free? Also any

> > suggestions

> > > on the best white type bread thats closest to regular bread?

> > >

> > > Thanks!

> > >

> > > TEXAS-AUTISM-ADVOCACY WEBSITE:

> > >

> > > FEAT News Information:

> > > " Healing Autism: No Finer a Cause on the Planet "

> > >

June 15, 2002

I am well aware of PECS, but what is a PECS camp and how can I find out more

about it?

Re: Help

>

> I called the manufacturer of " Iron Kids " and it indeed does not contain

> Casein or dairy.

> My son was diagnosed 13 days ago w/ PDD and we eliminated dairy the

> following day. Im still finding things that I missed in some foods like

> whey but he at least 90% dairy free and Im working on 100% CF. I

> realize that i am going to have to go GF as well but im am trying to

> gradually reduce these items and have begun doing so. Ultimately once I

> learn the ropes he will be 100% GF and CF.

> But we have noticed improvements already. His eye contact is more

> consistent (lasts longer), his stools have improved, his stim play has

> decreased (he seems to be playing w/ his trains and such normally.) Im

> no expert but for example he used to just go in and out of the tunnels

> over and over but now its all around the track etc. He is mumbling a

> lot more and the other day he took a doll and actually played like he

> was feeding it!!

> Im curious, should i have my son tested somehow to make sure that this

> diet is necessary? I obtained hi shot records (vaccines) and discovered

> that a lot of the shots did contain Thimersol. I am pretty sure that he

> has a " leaky gut " but who can I see that can help me to know for sure?

> Any advise?

> Mika McGough wrote:

> >

> > Are you trying the gf/cf diet? Most of the regular breads have casein

> > in

> > them. You can find more information at gfcfdiet.com.

> >

> > Mika

> >

> > playmaker_mb wrote:

> >

> > > The brand " Iron Kids " bread that you can buy at any store is it

> > casein

> > > free? I am trying to find a bread for my son to make PB & J,

> > Grilled

> > > Cheese etc. I have been giving him " Iron Kids " but maybe Im just

> > not

> > > sure what some of the ingrediants mean.....for example:

> > >

> > > malted barley, thiamin mononitrate, calcuim sulfate,, calcuim

> > > peroxide, calcium carbonate, calcuim sulfate etc.

> > >

> > > Does anyone know if " Iron Kids " is Casein free? Also any

> > suggestions

> > > on the best white type bread thats closest to regular bread?

> > >

> > > Thanks!

> > >

> > > TEXAS-AUTISM-ADVOCACY WEBSITE:

> > >

> > > FEAT News Information:

> > > " Healing Autism: No Finer a Cause on the Planet "

> > >

June 15, 2002

I cant get my machine to get rid of that sent by delineation so I will respond

above your pertinent (to me) comments. Josh is an angel. I am quite sure yours

is an angel too.

Some autistic kids have mental retardation but many don't. Josh is above average

intelligence. A person might not see that when first seeing him but it takes

little time to become aware of it once one is around him. His parents are both

highly intelligent but I sometimes think I see a glint in his eye that says on

the absolute IQ scale he may be a bit beyond both of them. I think there may be

a genius locked inside that autistic brain. But even if not, it is clear he is

as intelligent as his parents.

And it is likely that your son really is smart and not just " to you " . He picked

up PECS when he wasn't even being directly taught. He is bright, very obviously.

ly it is our government, in cahoots with the drug companies and covered for

by the medical community, that is mentally retarded. Or maybe, just plain

stupid. I prefer that angle to the other angle, in which our government et al.

cruelly, evilly, on purpose, did this to our children. That is just too hard for

me to take.

Sorry, I'll get off my soapbox now.

Anyway, if this isn't the list for this, I would like to know which one is. Sure

this list is also for networking and learning, as it should be. But it is, to

me, also support in a fight that is fought mostly without the big help, one

person at a time. We come together on lists like this so that we can be bundles

of sticks, much stronger than we are one by one.

Terri

Seems when you mention

that your child is autistic everyone thinks they are a monster. They are

Angels " to me.

Gosh, sorry for writing too much but I don't know a single other person with

a special needs child. At this point, I have no other friends other than

family. When I did have a few people that I would call friends they couldn

t understand the joy I had with my 5 year old son could say cookie or he

learned a new word. He has limited speech but it is getting a lot better.

We are still of course a long way from being caught up but I am really

pleased. I always tell him how smart he is and to me he is really smart. I

am soooo proud of my son.

July 10, 2002

I live in Kaufman, TX. Kaufman, County. about 25 miles southest of Dallas,

God Bless You on such a quick response.

July 10, 2002

I have his evaluations and on know on one of them it states that he likes the

computer and should continue working on one. But I don't currently have a Dr.

for this specific condition except the one provided by the school and we want

see her until August. That is something else I need to find a good Dr.

familiar with autism. Because the one I use for well visits almost cringes

when we come into the office, because Noah is so hyper and sometimes

aggressive. So if anyone knows of a good Dr. Please let me know. I did call

his caseworker at MHMR but she was already gone.

July 10, 2002

Sndy@...:

Where do you live? I'll see what I can do.

Peacefully,

Jeff Sell

Hitt * * Sell

4309 Yoakum Blvd.

Suite 2000

Houston, TX 77006

(fax)

JZSell@... (office)

jzsell@... (home)

(cell/v-mail)