question

December 30, 2001

Hi Eleanor! Hope all is well with you! Yes, my

leukocytosis was elevated, but I'm not sure the level

and I did have migratory joint pain...and still do.

It was not as bad at the beginning as it is now. Most

of my disease was systemic at onset and joint pain

(migratory) is setting in strong now.

Love, Kim

--- Elan727@... wrote:

> Gang,

> Could you please tell me if on the onset of this

> disease if any of you " did

> not " have leukocytosis ( elevated white blood cell

> count) and if your

> arthritis was " migratory " - meaning you would feel

> stiffness/ pain in a joint

> for a few days and then it would move to another

> joint.

>

> Thanks,

> Eleanor

>

__________________________________________________

December 31, 2001

, I am rather put off by this note. I think that you perhaps are

confusing people feeling comfortable talking about the " sad " parts of this

illness with a lack of hope. I am happy that obviously you've been

fortunate and not had the feelings that many of us (myself included) have

experienced. I am not a sad sack sort of person and never have been. But,

I have found that when I am very down by this sickness and pain, I can (if I

want to) write to this group and find that I am unconditionally accepted.

What I am greeted with are people who tell funny stories for tell me " this

moment will pass " and just BELIEVE.

When other such notes are written, I do not think for an instant that these

individuals are just sitting around in a depressed stupor, just waiting

their turn to write to the group. We are people trying to get on with our

lives, yet once in a while, a bizarre depression comes on and who are we to

turn to? Our families, our close friends? I think not. The reason is that

most of us love our little circle of friends and families so much (painfully

so), and see their pain due to our illness on their faces. I see it on my

father's face every time I see him. Do you think in a million years that I

would tell him yet another thing that he would worry about and carry with

him? I/We would rather not burden them with even more pain. You see we are

not selfish and realize that it is unhealthy to carry our concerns within

ourselves. We must share...and this is the forum that many of us choose.

Actually, I find it strange that this sort of sharing is apparently the only

thing you see in this group. I feel sad for you that you are missing out on

so much more. Maybe you are missing all the layers that exist that are FULL

of sharing happiness. Have you missed all of the notes about possible new

therapies and medications that give us all hope that a cure is just around

the corner? Enough said.

, I simply don't understand you, perhaps I am mistaken by your point.

Perhaps you didn't mean to sound so harsh such that it would make some

people in need to think twice about writing when they are in pain.

I wish you the best in your next group if you so wish to leave.

Most Sincerely, Kathi M

I've not given up hope and can't imagine that I ever will. I've been with

this illness for 14 yrs now and with this group on and off for a few years.

Question

>

> > Hi Gang...

> > I just got back from going to another rheumatologist, (Dr. Reginatto in

> > Cherry Hill, NJ).

> > He said it's quite possible that if I don't get another flare after my

> > initial onset that what I have wasn't Stills but a viral infection of

some

> > type. He said this because my arthritic symptoms were " migratory " , by

> > ferritin level was high, but not as high as some people with Stills and

I

> > didn't have leucocytosis ( a high white blood cell count).

> > He says if I get another flare after the inital onset, then it was

> probably

> > Stills.

> > Can anyone share any insight on this? Does this make sense?

> >

> > Thanks,

> > Eleanor

> >

> > Visit the Still's Disease Message Board

> > http://disc.server.com/Indices/148599.html

> >

December 31, 2001