question

[Guest guest]

Elly,

please do not feel that you have to come here and apologize for being absent.

We all have our problems and reasons why we can't always be reading and

responding to posts and everyone, I'm sure, completely understands.

Sorry to hear that you were diagnosed with Osteoarthrosis. I hope the pain gets

better. Here are a few sites for you to look at:

Marilyn

a..

1.. Osteoarthritis (osteoarthrosis)

1.. Osteoarthritis (osteoarthrosis) With age, injury or overuse,

cartilage covering articulating surfaces of bones breaks down; underlying bone

becomes thickened and distorted, restricting joint movement and sometimes

causing episodes of inflammation,

http://www.drlockie.com/disease/osteoar.htm

a..

1.. Wiley :: Studies in Osteoarthrosis: Pathogenesis, Intervention, Assessment

1.. Shopping Cart My Account Help Contact Us By Keyword By Title By

Author By ISBN By ISSN Wiley > Life & Medical Sciences > Medical Sciences >

Endocrinology > General Endocrinology > Studies in Osteoarthrosis: Pathogenesis,

Intervention, Assessment

http://www.wiley.com/Corporate/Website/Objects/Products/0%2C9049%2C89737%2C00.ht\

ml

a..

1.. Knee products for Osteoarthrosis

1.. Indications: mild strains, sprains, joint swelling and joint pain,

subpatellar burstis, meniscus tear, osteoarthrosis, and patellar tendonitis.

http://www.kneesupport.com/osteoarthrosis

a..

1.. Arbete och Hälsa 1999:12 Knee osteoarthrosis in relation to physical

workload and lifestyle factors - epidemiological s

1.. Arbete och Hälsa 1999:12 Knee osteoarthrosis in relation to physical

workload and lifestyle factors - epidemiological studies

http://www.niwl.se/ah/1999-12.html

a..

1.. Read Reviews and Compare Prices on The Arthritis Bible: A Comprehensive

Guide to Alternative Therapies & Conventional T

1.. Epinions has the best comparison shopping information on The

Arthritis Bible: A Comprehensive Guide to Alternative Therapies & Conventional

Treatments for Arthritic Diseases Including Osteoarthrosis, Rheumatoid

Arthritis, Gout, Fibromyalgia & More.

http://www.epinions.com/book_mu-3566332?sp=ink

a..

1.. Thyroid functions in patients with primary deformative osteoarthrosis and

laserotherapy treatment efficiency

1.. Thyroid functions in patients with primary deformative

osteoarthrosis and laserotherapy treatment efficiency Name L.A. Lepilina, L.R.

Gabitova, O.V. Minyaeva, R.G.Kamalova Address Bashkir State Medical University,

Ufa, Russia We have observed 34

http://www.icmart.org/icmabs/p82.html

a..

1.. e-MDs | Services | ICD-9 Search | 715 - Osteoarthrosis and allied

disorders

1.. e-MDs' ICD-9 Search. 715 - Osteoarthrosis and allied disorders

http://www.amt-solutions.com/icd9/715

a..

1.. ICL-Osteotomies About the Hip for the Prevention and Treatment of

Osteoarthrosis (Congress Center Room 202)

1.. American Academy of Orthopaedic Surgeons 1996 Annual Meeting

Instructional Course Lectures and Lecture Demonstration Courses Osteotomies

About the Hip for the Prevention and Treatment of Osteoarthrosis Course Number:

392 TLD: Three hour Lecture

http://www.aaos.org/wordhtml/anmeet96/icl96/392.htm

a..

1.. THE MERCK MANUAL, Sec. 5, Ch. 52, Osteoarthritis And Neurogenic

Arthropathy

1.. This Publication Is Searchable The Merck Manual of Diagnosis and

Therapy Section 5. Musculoskeletal And Connective Tissue Disorders Chapter 52.

Osteoarthritis And Neurogenic Arthropathy Topics Osteoarthritis Neurogenic

Arthropathy Osteoarthritis

http://www.merck.com/pubs/mmanual/section5/chapter52/52a.htm

a..

1.. Lei Wei: Doctor´sThesis from Karolinska Institutet

1.. search / help / search staff Doctor´s Thesis from Karolinska

Institutet Wei, Lei Guinea pig osteoarthrosis: morphological and biochemical

studies Thursday, February 25, 1999 Thesis Frame Original [PDF] Acrobat Reader

ISBN: 91-628-3361-8 Diss: 99:37

http://diss.kib.ki.se/1999/91-628-3361-8

a..

1.. Wheeless' Textbook of Orthopaedics

1.. Main Menu Home Page Glenohumeral osteoarthrosis. A late complication

of the Putti-Platt repair. Hawkins-RJ; Angelo-RL J-Bone-Joint-Surg-Am. 1990 Sep;

72(8): 1193-7 Osteoarthrosis of the glenohumeral joint is a potential late

complication of anterior

http://www.medmedia.com/lib6/12.htm

a..

1.. Wheeless' Textbook of Orthopaedics

1.. Main Menu Home Page Heterotopic bone after hip arthroplasty.

Defining the patient at risk. Ahrengart L. Lindgren U. Clinical Orthopaedics &

Related Research. [JC:dfy] (293):153-9, 1993 Aug. Periarticular heterotopic bone

(HB) formation after hip

http://www.medmedia.com/a5/129.htm

a..

1.. Knee support for mild strains, sprains and joint swelling

1.. Indications: mild strains, sprains, joint swelling and joint pain,

contusion, effusion, infrapatellar, subpatellar burstis, meniscus tear,

osteoarthrosis, patellar tendonitis, per anserinus tendonitis, prepatellar

tendonitis, and sprain.

http://www.kneesupport.com/bioskin/universal_buttress.htm

question

Dear Friends, I'm so sorry I haven't been posting lately,I have been in alot

of pain for some time now,which isn't a good excuse for ignoring my

friends,but hopefully explains a little and I ask you to forgive me.Welcome

to all the new members and I am so glad you found us,but so sad you needed

to.

Now on to my question,as some of you know I have been having a problem with

my left arm and shoulder.I had an Mri two weeks ago and the diagnosis was

Osteo-Arthrosis of the ACjoint.I was wondering if anyone else has been

diagnosed with this and what the treatment(s) is? I am totally in the dark

and only hope it's fixable!I have to make an appt. with an Orthopedic Doc as

soon as possible according to my Rheumy. I've had physical therapy which my

rheumy said only irritated the problem.So any input into this problem would

sure be helpful.Thanks for listening and try to have a physically and

mentally happy day.

Love Elly

[Guest guest]

Elly,

please do not feel that you have to come here and apologize for being absent.

We all have our problems and reasons why we can't always be reading and

responding to posts and everyone, I'm sure, completely understands.

Sorry to hear that you were diagnosed with Osteoarthrosis. I hope the pain gets

better. Here are a few sites for you to look at:

Marilyn

a..

1.. Osteoarthritis (osteoarthrosis)

1.. Osteoarthritis (osteoarthrosis) With age, injury or overuse,

cartilage covering articulating surfaces of bones breaks down; underlying bone

becomes thickened and distorted, restricting joint movement and sometimes

causing episodes of inflammation,

http://www.drlockie.com/disease/osteoar.htm

a..

1.. Wiley :: Studies in Osteoarthrosis: Pathogenesis, Intervention, Assessment

1.. Shopping Cart My Account Help Contact Us By Keyword By Title By

Author By ISBN By ISSN Wiley > Life & Medical Sciences > Medical Sciences >

Endocrinology > General Endocrinology > Studies in Osteoarthrosis: Pathogenesis,

Intervention, Assessment

http://www.wiley.com/Corporate/Website/Objects/Products/0%2C9049%2C89737%2C00.ht\

ml

a..

1.. Knee products for Osteoarthrosis

1.. Indications: mild strains, sprains, joint swelling and joint pain,

subpatellar burstis, meniscus tear, osteoarthrosis, and patellar tendonitis.

http://www.kneesupport.com/osteoarthrosis

a..

1.. Arbete och Hälsa 1999:12 Knee osteoarthrosis in relation to physical

workload and lifestyle factors - epidemiological s

1.. Arbete och Hälsa 1999:12 Knee osteoarthrosis in relation to physical

workload and lifestyle factors - epidemiological studies

http://www.niwl.se/ah/1999-12.html

a..

1.. Read Reviews and Compare Prices on The Arthritis Bible: A Comprehensive

Guide to Alternative Therapies & Conventional T

1.. Epinions has the best comparison shopping information on The

Arthritis Bible: A Comprehensive Guide to Alternative Therapies & Conventional

Treatments for Arthritic Diseases Including Osteoarthrosis, Rheumatoid

Arthritis, Gout, Fibromyalgia & More.

http://www.epinions.com/book_mu-3566332?sp=ink

a..

1.. Thyroid functions in patients with primary deformative osteoarthrosis and

laserotherapy treatment efficiency

1.. Thyroid functions in patients with primary deformative

osteoarthrosis and laserotherapy treatment efficiency Name L.A. Lepilina, L.R.

Gabitova, O.V. Minyaeva, R.G.Kamalova Address Bashkir State Medical University,

Ufa, Russia We have observed 34

http://www.icmart.org/icmabs/p82.html

a..

1.. e-MDs | Services | ICD-9 Search | 715 - Osteoarthrosis and allied

disorders

1.. e-MDs' ICD-9 Search. 715 - Osteoarthrosis and allied disorders

http://www.amt-solutions.com/icd9/715

a..

1.. ICL-Osteotomies About the Hip for the Prevention and Treatment of

Osteoarthrosis (Congress Center Room 202)

1.. American Academy of Orthopaedic Surgeons 1996 Annual Meeting

Instructional Course Lectures and Lecture Demonstration Courses Osteotomies

About the Hip for the Prevention and Treatment of Osteoarthrosis Course Number:

392 TLD: Three hour Lecture

http://www.aaos.org/wordhtml/anmeet96/icl96/392.htm

a..

1.. THE MERCK MANUAL, Sec. 5, Ch. 52, Osteoarthritis And Neurogenic

Arthropathy

1.. This Publication Is Searchable The Merck Manual of Diagnosis and

Therapy Section 5. Musculoskeletal And Connective Tissue Disorders Chapter 52.

Osteoarthritis And Neurogenic Arthropathy Topics Osteoarthritis Neurogenic

Arthropathy Osteoarthritis

http://www.merck.com/pubs/mmanual/section5/chapter52/52a.htm

a..

1.. Lei Wei: Doctor´sThesis from Karolinska Institutet

1.. search / help / search staff Doctor´s Thesis from Karolinska

Institutet Wei, Lei Guinea pig osteoarthrosis: morphological and biochemical

studies Thursday, February 25, 1999 Thesis Frame Original [PDF] Acrobat Reader

ISBN: 91-628-3361-8 Diss: 99:37

http://diss.kib.ki.se/1999/91-628-3361-8

a..

1.. Wheeless' Textbook of Orthopaedics

1.. Main Menu Home Page Glenohumeral osteoarthrosis. A late complication

of the Putti-Platt repair. Hawkins-RJ; Angelo-RL J-Bone-Joint-Surg-Am. 1990 Sep;

72(8): 1193-7 Osteoarthrosis of the glenohumeral joint is a potential late

complication of anterior

http://www.medmedia.com/lib6/12.htm

a..

1.. Wheeless' Textbook of Orthopaedics

1.. Main Menu Home Page Heterotopic bone after hip arthroplasty.

Defining the patient at risk. Ahrengart L. Lindgren U. Clinical Orthopaedics &

Related Research. [JC:dfy] (293):153-9, 1993 Aug. Periarticular heterotopic bone

(HB) formation after hip

http://www.medmedia.com/a5/129.htm

a..

1.. Knee support for mild strains, sprains and joint swelling

1.. Indications: mild strains, sprains, joint swelling and joint pain,

contusion, effusion, infrapatellar, subpatellar burstis, meniscus tear,

osteoarthrosis, patellar tendonitis, per anserinus tendonitis, prepatellar

tendonitis, and sprain.

http://www.kneesupport.com/bioskin/universal_buttress.htm

question

Dear Friends, I'm so sorry I haven't been posting lately,I have been in alot

of pain for some time now,which isn't a good excuse for ignoring my

friends,but hopefully explains a little and I ask you to forgive me.Welcome

to all the new members and I am so glad you found us,but so sad you needed

to.

Now on to my question,as some of you know I have been having a problem with

my left arm and shoulder.I had an Mri two weeks ago and the diagnosis was

Osteo-Arthrosis of the ACjoint.I was wondering if anyone else has been

diagnosed with this and what the treatment(s) is? I am totally in the dark

and only hope it's fixable!I have to make an appt. with an Orthopedic Doc as

soon as possible according to my Rheumy. I've had physical therapy which my

rheumy said only irritated the problem.So any input into this problem would

sure be helpful.Thanks for listening and try to have a physically and

mentally happy day.

Love Elly

[Guest guest]

Hey there Elly; so glad your tests came back!! At least you and your doctor

know what is the nasty cause of all your pain and hopefully the other guy

can give you some options. I will be most interested you know since my

whatever that was has been the most active for me also. Keep us informed

ok? Good to see your post, till soon, Melt

question

> Dear Friends, I'm so sorry I haven't been posting lately,I have been in

alot

> of pain for some time now,which isn't a good excuse for ignoring my

> friends,but hopefully explains a little and I ask you to forgive

me.Welcome

> to all the new members and I am so glad you found us,but so sad you needed

> to.

> Now on to my question,as some of you know I have been having a problem

with

> my left arm and shoulder.I had an Mri two weeks ago and the diagnosis was

> Osteo-Arthrosis of the ACjoint.I was wondering if anyone else has been

> diagnosed with this and what the treatment(s) is? I am totally in the dark

> and only hope it's fixable!I have to make an appt. with an Orthopedic Doc

as

> soon as possible according to my Rheumy. I've had physical therapy which

my

> rheumy said only irritated the problem.So any input into this problem

would

> sure be helpful.Thanks for listening and try to have a physically and

> mentally happy day.

> Love Elly

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Tammy,

I tried the diet on my son for almost a year. It did nothing for us.

All the diet did was make my son and including the rest of us

miserable!! I also know of many other parents who have tried and had

no success with this GFCF diet. I think many parents who had no

success may be hesitant to post here because you will get many

parents who write back and say things like, " Well, maybe you were

doing it wrong " , " There must have been cross contamination " , or " Give

it more time, sometimes a year isn't long enough " I just wanted you

to know that you are not alone. I'm not saying that the diet doesn't

work at all. Because it may work for some children, but there are

many others who it does nothing for. All our children are so

different and what may work for one family may not work for another.

What has helped with our son is ABA, meds, and lots of love and

attention. I feel for you, sounds like you have your hands very full.

I am a single mother raising 4 kids. My husband has recently left our

home to go live with my son's ex nanny. We are all just trying to

make it day by day without going crazy. Hang in there Tammy.

Chris

> I wonder is there anyone else on this list who's child was

diagnosed with

> severe autism and if there is someone is your child on this diet if

so how is

> it going. Is there any " real " changes or is it redirection like

Angel's no

> longer biting her arm nope she is biting her shirt sleeves now.

How many

> folks here have children who have autism plus blindness mental

retardation or

> deafness? What is the autism? Pdd, sensory integration, aspergs?

If there

> is someone on this list with a child or children with multiple

handicapps are

> these children on the diet if so how is the diet really going?

> Is there anyone else on this list that has a child who's autism is

so severe

> that it's cause challenges that break up a happy marriage? If so

is this

> child on the diet? If so how is it going? You know I know that

there are

> all walks of life on this list. I know that some are more severe

than others

> I have noticed that when a parent vents or ask for advice all the

diet or if

> it's a really severe situation that no one else has experienced

most of us

> don't write back. All it takes to get on that level to understand

is

> questions and then mentally attempting to place yourself in their

shoes and

> then thinking what would I do if I were in this situation. There

is at least

> on family that has social services 3 feet up their behind I am sure

and all

> we can offer is try this diet that could be impossible for them to

try for

> what ever reason or give this child an epsom salt bath (which I am

a fan of I

> know that is relaxing). What are we accomplishing here? You keep

swearing

> on a diet that is out of reach for some of us while cps in removing

one of

> our children on of our list family members is that cool? I am not

saying

> it's happening but if there aren't anymore ideas that a diet and a

bath what

> kind of support is this. Please I am not downing your diet or

anything but

> do you know that my happy healthy marriage is almost over due to a

challenge

> with my severely autistic blind child. For now there is no support

for us at

> all. MHMRA is standing still I cannot even reach my caseworker,

commission

> for the blind is not able to do anything because the school will

not

> cooperate with them even. Yes, I am calling an ARD, yes I am still

trying to

> reach my case worker from MHMRA, but my child has really not had

any progress

> there is no other family outside of this marriage, there is no

respite at all

> and my husband's lease is up he is out on a limb paying month by

month on his

> lease now because he wants to come home but the problems that

forced him to

> have to leave are still there and there is no money outside of

bills and food

> and all you can say is diet. Diet does not work for everyone diet

is not

> attainable due to income sometimes or the amount the child eats to

begin

> with. The child's autism is so deep you can't communicate or reach

her so

> there is no way to have alone time with your spouse and the

exercises you

> have learned has showed little or no improvement for years. When

the child

> finally sleeps it's either briefly or sleep walking. Isn't there

anyone on

> this list who can at least imagine you are in these shoes what

would you do?

> for the other familys who are experiencing severe problems again

ask

> questions put your self in there shoes in thought and do more than

say,

> " diet " I don't know about you but I don't like having a child

that cannot

> function in my home, cannot sleep and has challenges that force my

wonderful

> husband to have to leave his family. No maybe you do not know the

details

> maybe you don't understand because you don't know the details but

it's true

> if no other family experiencing this that I guess I am alone but

surely

> someone on this list has to say something than diet. It's a nice

idea but is

> impossible for now.

>

> Tammy

>

>

>

[Guest guest]

I agree the GF/Cf diet is not for everybody...not all children with autism

or within the autism spectrum have intestinal issues. Betsy R.N.

Re: Question

> Tammy,

>

> I tried the diet on my son for almost a year. It did nothing for us.

> All the diet did was make my son and including the rest of us

> miserable!! I also know of many other parents who have tried and had

> no success with this GFCF diet. I think many parents who had no

> success may be hesitant to post here because you will get many

> parents who write back and say things like, " Well, maybe you were

> doing it wrong " , " There must have been cross contamination " , or " Give

> it more time, sometimes a year isn't long enough " I just wanted you

> to know that you are not alone. I'm not saying that the diet doesn't

> work at all. Because it may work for some children, but there are

> many others who it does nothing for. All our children are so

> different and what may work for one family may not work for another.

> What has helped with our son is ABA, meds, and lots of love and

> attention. I feel for you, sounds like you have your hands very full.

> I am a single mother raising 4 kids. My husband has recently left our

> home to go live with my son's ex nanny. We are all just trying to

> make it day by day without going crazy. Hang in there Tammy.

> Chris

>

>

> > I wonder is there anyone else on this list who's child was

> diagnosed with

> > severe autism and if there is someone is your child on this diet if

> so how is

> > it going. Is there any " real " changes or is it redirection like

> Angel's no

> > longer biting her arm nope she is biting her shirt sleeves now.

> How many

> > folks here have children who have autism plus blindness mental

> retardation or

> > deafness? What is the autism? Pdd, sensory integration, aspergs?

> If there

> > is someone on this list with a child or children with multiple

> handicapps are

> > these children on the diet if so how is the diet really going?

> > Is there anyone else on this list that has a child who's autism is

> so severe

> > that it's cause challenges that break up a happy marriage? If so

> is this

> > child on the diet? If so how is it going? You know I know that

> there are

> > all walks of life on this list. I know that some are more severe

> than others

> > I have noticed that when a parent vents or ask for advice all the

> diet or if

> > it's a really severe situation that no one else has experienced

> most of us

> > don't write back. All it takes to get on that level to understand

> is

> > questions and then mentally attempting to place yourself in their

> shoes and

> > then thinking what would I do if I were in this situation. There

> is at least

> > on family that has social services 3 feet up their behind I am sure

> and all

> > we can offer is try this diet that could be impossible for them to

> try for

> > what ever reason or give this child an epsom salt bath (which I am

> a fan of I

> > know that is relaxing). What are we accomplishing here? You keep

> swearing

> > on a diet that is out of reach for some of us while cps in removing

> one of

> > our children on of our list family members is that cool? I am not

> saying

> > it's happening but if there aren't anymore ideas that a diet and a

> bath what

> > kind of support is this. Please I am not downing your diet or

> anything but

> > do you know that my happy healthy marriage is almost over due to a

> challenge

> > with my severely autistic blind child. For now there is no support

> for us at

> > all. MHMRA is standing still I cannot even reach my caseworker,

> commission

> > for the blind is not able to do anything because the school will

> not

> > cooperate with them even. Yes, I am calling an ARD, yes I am still

> trying to

> > reach my case worker from MHMRA, but my child has really not had

> any progress

> > there is no other family outside of this marriage, there is no

> respite at all

> > and my husband's lease is up he is out on a limb paying month by

> month on his

> > lease now because he wants to come home but the problems that

> forced him to

> > have to leave are still there and there is no money outside of

> bills and food

> > and all you can say is diet. Diet does not work for everyone diet

> is not

> > attainable due to income sometimes or the amount the child eats to

> begin

> > with. The child's autism is so deep you can't communicate or reach

> her so

> > there is no way to have alone time with your spouse and the

> exercises you

> > have learned has showed little or no improvement for years. When

> the child

> > finally sleeps it's either briefly or sleep walking. Isn't there

> anyone on

> > this list who can at least imagine you are in these shoes what

> would you do?

> > for the other familys who are experiencing severe problems again

> ask

> > questions put your self in there shoes in thought and do more than

> say,

> > " diet " I don't know about you but I don't like having a child

> that cannot

> > function in my home, cannot sleep and has challenges that force my

> wonderful

> > husband to have to leave his family. No maybe you do not know the

> details

> > maybe you don't understand because you don't know the details but

> it's true

> > if no other family experiencing this that I guess I am alone but

> surely

> > someone on this list has to say something than diet. It's a nice

> idea but is

> > impossible for now.

> >

> > Tammy

> >

> >

> >

[Guest guest]

In a message dated 2/6/2003 1:29:13 PM Central Standard Time,

anissajryland@... writes:

> Tammy,

> I have been reading your posts and relate to many of

> the issues you are going through. I certainly

> understand the pain, exhaustion, and frustration that

> you are feeling. And as for financially, I can relate

> because my husband has been laid off twice in the last

> 14 months and is still looking for a job. I will not

> weigh in on whether or not the diet would work for

> your child, because I think that it helps some

> greatly, helps some a little and others not as much.

> However, I will say this...most of the interventions

> and treatments that will help our children are

> unfortunately very expensive. ABA, DAN doctors,

> speech, OT, and Sensory Integration when not covered

> by Medicaid, and the like are all very costly...but

> also very worth trying. You may be able to find some

> help with MHMR, an understanding school district (if

> you are knowledgeable on the law), social security. It

> seems like with your income (and I say seems like

> because I don't know your exact situation) you should

> be able to get Social Security and Medicaid for your

> daughter that can help with some of the expense. You

> should also look into food stamps to help stretch your

> dollars even further. Every penny you can save can go

> toward help for your daughter. To start working with

> her on your own you could read many of the books

> mentioned on this list often: The Out of Sync Child

> for Sensory Integration, Behavioral Interventions for

> Young Children with Autism for ABA, etc. I certainly

> know the panic you feel when you think many of these

> therapies are out of reach, but after the initial

> shock, you can get creative. I hope you see this list

> as a place to hear many points of view and what has

> worked for them. I do not believe anyone is trying to

> make you feel bad; quite the opposite, I think they

> are trying to share what has helped their children so

> that you can do the same for yours.

> Good luck, Anissa

Thank you Anissa,

About the income both of my children are on ssi if not for

the ssi and child support we would have no income. My children's needs are

too great for me to get a job. I have I keep it for 4 months then the stress

takes over things become over whelming and my children my husband and I get

sick. My comments were not just for me though. Everytime someone even tries

to vent the next thing they get is a letter saying well if this child on the

diet if this person says no then the other person get's kind of evangalistic

when actually what works for you doesn't always work for me. We are a big

list and I know for sure that if anyone one on this list is having serious

problems we have enough brain power to fork out more ideas than just a diet,

or epsom salt, melatonin, and sensory exercises. The only thing I have not

tried is the diet. While all of these ideas are fantastic in some situations

they show little or no improvement. So while I am looking for my own answers

I also want others to be helped hear as well. Don't get me wrong you are all

great I love this list and I have had some good advice from time to time but

can't we do better then the normal four ideas. Is there someone on this list

that teaches special needs children mainly autistic and multi-handicaps? If

so please speak up and let us all pick your brain. While I am working on

working on calling and ARD and getting my foot all the way in the MHMRA door

my world is turning upside down. I know I am not the only one going through

this though.

Tammy

[Guest guest]

In a message dated 2/6/2003 1:40:11 PM Central Standard Time,

wdaviss@... writes:

> I agree the GF/Cf diet is not for everybody...not all children with autism

> or within the autism spectrum have intestinal issues. Betsy R.N.

Bingo you hit the nail on the head!!!

[Guest guest]

In a message dated 2/6/2003 9:08:38 PM Central Standard Time,

anissajryland@... writes:

> Tammy,

> I think you need to go back and read the archives of

> this list. There are so many therapies that are talked

> about and advocated it is not even funny - way beyond

> any diet. I've learned about ABA, SonRise, Listening

> Therapy, Vitamin Therapy, Chelation, OT, Speech, SI,

> Secretin, MT Promoter, PECS, public school education,

> private placements...and that is just to name a few.

> We may not talk a lot about multi handicapped children

> because this is mainly a list dedicated to autism

> advocacy, but I truly believe everyone here is

> dedicated to supporting all parents of children with

> special needs. Please keep an open mind, an open heart

> and read what we have done in the past. You will get a

> much better picture of what you have come in to and

> figure out if what you need is here. I hope you find

> the support you need.

> Anissa

Thank you Annissa.

[Guest guest]

My son was diagnosed with severe autism around age 3 -- he no longer fits

that label. He has also had other labels and challenges including SI

dysfunction, toxic encephalopathy, motor issues bordering on mild cerebral

palsy, ADHHHHHHD, major visual challenges and immune system dysregulation.

We took milk out when he was 3-1/2 and it made a very quick, huge difference

especially a decrease in hyperactivity and spaciness. At first, I rotated it

every four days to see if I would notice a difference. When I did, I removed

it for two weeks and then retried it. That day, he ran -- and I mean wildly

ran -- for hours and hours, crazily like a banshee until he finally collapsed

in exhaustion. Several years later, he got some milk sugar accidentally in a

homeopathic remedy and my then sweet, passive little boy turned into a

monster, running screaming through the house brandishing a knife. It took

months to recover from that exposure.

Other allergens affected him greatly as well -- corn = no eye contact and

monotonous humming; oranges would make him wild, sometimes violent and

totally unreachable; bananas would make him walk around with his mouth

hanging open, tongue hanging out and drooling like a labotamy patient, etc

etc. Others were not as drastic and had to be weeded out over time. Now

that he is healthier and has had many allergy treatments, he can handle more

food without reaction or with limited reaction.

If you understand that many of these kids have dysregulated immune systems

causing their bodies to under-react to pathogens and over-react to typical

things, you can begin to understand the dramatic impact foods can have on

their bodies. As they get healthier, they can often add back in some of the

foods but in the early stages when they are in such a fight/flight pattern,

you need to lighten their load as much as possible.

Gaylen

[Guest guest]

Tammy,

I replied to your message asking about folks with severely affected kids

before I read the end of it. I think the reason so many folks are suggesting

diet to you is that it is the simplist, lowest-cost option that could really

help.

Other than that, have you considered the option of hospitalizing your child

temporarily to see if they can work out some medication that can help her?

Sounds like a scary option but if things are as bad as you say they are,

perhaps finding a good placement where she can be closely monitored while

they work out drug options might be worth considering. I know of several

people who have done this and it was helpful for them. It could also give

you a little bit of respite to try to get your head together so you can think

more clearly about how to help Angel. Lack of sleep and the constant stress

of monitoring a severely affected child just puts you in such a state where

you are unable to think (been there).

Also, a possibility to get help with the school is the Family to Family

organization in Houston. I think they may have one in The Woodlands as well.

They are wonderful at helping folks negotiate the maze of school and legal

stuff.

Gaylen

[Guest guest]

In a message dated 2/6/2003 12:39:56 PM Central Standard Time,

christina95132@... writes:

> Tammy,

>

> I tried the diet on my son for almost a year. It did nothing for us.

> All the diet did was make my son and including the rest of us

> miserable!! I also know of many other parents who have tried and had

> no success with this GFCF diet. I think many parents who had no

> success may be hesitant to post here because you will get many

> parents who write back and say things like, " Well, maybe you were

> doing it wrong " , " There must have been cross contamination " , or " Give

> it more time, sometimes a year isn't long enough " I just wanted you

> to know that you are not alone. I'm not saying that the diet doesn't

> work at all. Because it may work for some children, but there are

> many others who it does nothing for. All our children are so

> different and what may work for one family may not work for another.

> What has helped with our son is ABA, meds, and lots of love and

> attention. I feel for you, sounds like you have your hands very full.

> I am a single mother raising 4 kids. My husband has recently left our

> home to go live with my son's ex nanny. We are all just trying to

> make it day by day without going crazy. Hang in there Tammy.

> Chris

Thank you for the support. Sounds like we are in the same boat in alot

of ways. ABA is what I what for Angel they do provide that in the school

Angel attends as well as music therapy. I was told that Angel should go in

music therapy next year but as always I am sure they have recanted that as

well. You can bet that will be on her iep for next year. Meds didn't work

for Angel she has been on everything according to her drs there was always

either no change or the behaviors were even more aggressive and self

mutilating. Everytime I meet a new dr whether pediatrictian genetisist etc.

The observe Angel just briefly then say " impossible " and " how do you stay

sane? " The school says this is normal okay then what ever lol. Drs are also

amazed that whether or not my husband and I are seperated we are very close

and it's obvious that we work together and love our children. They always

say they have never seen a case of children so extreeme where a marriage has

actually survived. Now, I know there are new drugs coming out maybe we will

find one eventually that will be magic but for now nothing has worked. Angel

was on risperidal for a very long time and for a very long time it did work

she finally reached the max dose and eventually it did nothing at all for

her. I have even went the extra mile to get a pet for each of my children

because pets can be very healing but for Angel it's just another obsession.

She has a cat the cat is amazing he is so calm and cool if she hurts him he

must sense she is different because he will not scratch her instead he will

yep while he will tear Rebekah up lol. On the same token though this poor

cat cannot potty eat or drink when Angel is around because she will not let

go of this cat even if her life depended on it. He loves Angel very much

and lucky for him his is young and can adapt to pottying and eating when she

is not around but on the weekends he is miserable because he cannot care for

his needs until she falls asleep and guess what then we never know when she

will wake, roam and stalk him lol.

Tammy

[Guest guest]

In a message dated 2/6/2003 12:39:56 PM Central Standard Time,

christina95132@... writes:

> Tammy,

>

> I tried the diet on my son for almost a year. It did nothing for us.

> All the diet did was make my son and including the rest of us

> miserable!! I also know of many other parents who have tried and had

> no success with this GFCF diet. I think many parents who had no

> success may be hesitant to post here because you will get many

> parents who write back and say things like, " Well, maybe you were

> doing it wrong " , " There must have been cross contamination " , or " Give

> it more time, sometimes a year isn't long enough " I just wanted you

> to know that you are not alone. I'm not saying that the diet doesn't

> work at all. Because it may work for some children, but there are

> many others who it does nothing for. All our children are so

> different and what may work for one family may not work for another.

> What has helped with our son is ABA, meds, and lots of love and

> attention. I feel for you, sounds like you have your hands very full.

> I am a single mother raising 4 kids. My husband has recently left our

> home to go live with my son's ex nanny. We are all just trying to

> make it day by day without going crazy. Hang in there Tammy.

> Chris

Thank you for the support. Sounds like we are in the same boat in alot

of ways. ABA is what I what for Angel they do provide that in the school

Angel attends as well as music therapy. I was told that Angel should go in

music therapy next year but as always I am sure they have recanted that as

well. You can bet that will be on her iep for next year. Meds didn't work

for Angel she has been on everything according to her drs there was always

either no change or the behaviors were even more aggressive and self

mutilating. Everytime I meet a new dr whether pediatrictian genetisist etc.

The observe Angel just briefly then say " impossible " and " how do you stay

sane? " The school says this is normal okay then what ever lol. Drs are also

amazed that whether or not my husband and I are seperated we are very close

and it's obvious that we work together and love our children. They always

say they have never seen a case of children so extreeme where a marriage has

actually survived. Now, I know there are new drugs coming out maybe we will

find one eventually that will be magic but for now nothing has worked. Angel

was on risperidal for a very long time and for a very long time it did work

she finally reached the max dose and eventually it did nothing at all for

her. I have even went the extra mile to get a pet for each of my children

because pets can be very healing but for Angel it's just another obsession.

She has a cat the cat is amazing he is so calm and cool if she hurts him he

must sense she is different because he will not scratch her instead he will

yep while he will tear Rebekah up lol. On the same token though this poor

cat cannot potty eat or drink when Angel is around because she will not let

go of this cat even if her life depended on it. He loves Angel very much

and lucky for him his is young and can adapt to pottying and eating when she

is not around but on the weekends he is miserable because he cannot care for

his needs until she falls asleep and guess what then we never know when she

will wake, roam and stalk him lol.

Tammy

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

> Other than that, have you considered the option of hospitalizing your child

> temporarily to see if they can work out some medication that can help her?

>

> Sounds like a scary option but if things are as bad as you say they are,

> perhaps finding a good placement where she can be closely monitored while

> they work out drug options might be worth considering.

Been there done that

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

> Also, a possibility to get help with the school is the Family to Family

> organization in Houston. I think they may have one in The Woodlands as

> well.

> They are wonderful at helping folks negotiate the maze of school and legal

> stuff.

> Gaylen

Very cool how do I find them though and would they really help someone in

Deer Park, Tx or just Houston?

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

> Also, a possibility to get help with the school is the Family to Family

> organization in Houston. I think they may have one in The Woodlands as

> well.

> They are wonderful at helping folks negotiate the maze of school and legal

> stuff.

> Gaylen

Very cool how do I find them though and would they really help someone in

Deer Park, Tx or just Houston?

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

>

> Lack of sleep and the constant stress

> of monitoring a severely affected child just puts you in such a state where

>

> you are unable to think (been there).

Very very true.

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

>

> Lack of sleep and the constant stress

> of monitoring a severely affected child just puts you in such a state where

>

> you are unable to think (been there).

Very very true.

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

> I replied to your message asking about folks with severely affected kids

> before I read the end of it. I think the reason so many folks are

> suggesting

> diet to you is that it is the simplist, lowest-cost option that could

> really

> help.

>

I can't by the end of the month if I have anything at all to each it's not

very much this would just make it go faster. When I get some help through

MHMRA I will try it, but I can't right now there just isn't enough money.

Tell me can you feed a family of 4 on less than $200 a week and not run out

by the end of the month? See, my income is monthly the bills and rent come

off the top and then I have to divide the rest by 4 or sometimes 5 when there

are 5 weeks in a month. By the last 2 days of every month there is very

little because that's the last drop of my income. I have to be so tight with

my money or it won't even last the entire month. Yes you guys say the diet

is not all about taking things away that's the problem if you take things

awya my kids will starve if you add things all four of us will starve for

now. My husband eats with us due to his rent, car payment, bills of his own,

car insurance etc. His bills exceed his income by about $200 everymonth so

things are very very tight and I have to help him with food and by the end of

the month gas in his car just to get back and forth to work which is 45 mins

away. God forbid there is an illness or celebration and we have to fork out

for meds, dr visits, a birthday present or what ever we don't have anything

to eat at the end of the month during those times. I am not against the diet

it's just impossible at the moment. During this time I need other ideas yes

I am getting them tonight thank you all.

Tammy

[Guest guest]

In a message dated 2/6/2003 9:55:53 PM Central Standard Time,

Googahly@... writes:

> I replied to your message asking about folks with severely affected kids

> before I read the end of it. I think the reason so many folks are

> suggesting

> diet to you is that it is the simplist, lowest-cost option that could

> really

> help.

>

I can't by the end of the month if I have anything at all to each it's not

very much this would just make it go faster. When I get some help through

MHMRA I will try it, but I can't right now there just isn't enough money.

Tell me can you feed a family of 4 on less than $200 a week and not run out

by the end of the month? See, my income is monthly the bills and rent come

off the top and then I have to divide the rest by 4 or sometimes 5 when there

are 5 weeks in a month. By the last 2 days of every month there is very

little because that's the last drop of my income. I have to be so tight with

my money or it won't even last the entire month. Yes you guys say the diet

is not all about taking things away that's the problem if you take things

awya my kids will starve if you add things all four of us will starve for

now. My husband eats with us due to his rent, car payment, bills of his own,

car insurance etc. His bills exceed his income by about $200 everymonth so

things are very very tight and I have to help him with food and by the end of

the month gas in his car just to get back and forth to work which is 45 mins

away. God forbid there is an illness or celebration and we have to fork out

for meds, dr visits, a birthday present or what ever we don't have anything

to eat at the end of the month during those times. I am not against the diet

it's just impossible at the moment. During this time I need other ideas yes

I am getting them tonight thank you all.

Tammy

[Guest guest]

Tammy,

I'll try to track down a contact number for Family to Family for you. I used

to attend their meetings off and on when I lived in Houston but that was

years ago. It is a support group of families but at least when I attended,

they seemed very wise and helpful with school and legal issues. When I find

a contact, I'll e-mail it to you.

Gaylen

PS if any of you Houston folks, know how to contact this group, please let

Tammy and I know

In a message dated 2/6/03 10:19:01 PM Central Standard Time,

smiles2322@... writes:

> > Also, a possibility to get help with the school is the Family to Family

> > organization in Houston. I think they may have one in The Woodlands as

> > well.

> > They are wonderful at helping folks negotiate the maze of school and

> legal

> > stuff.

> > Gaylen

>

> Very cool how do I find them though and would they really help someone in

> Deer Park, Tx or just Houston?

>

[Guest guest]

Tammy,

I'll try to track down a contact number for Family to Family for you. I used

to attend their meetings off and on when I lived in Houston but that was

years ago. It is a support group of families but at least when I attended,

they seemed very wise and helpful with school and legal issues. When I find

a contact, I'll e-mail it to you.

Gaylen

PS if any of you Houston folks, know how to contact this group, please let

Tammy and I know

In a message dated 2/6/03 10:19:01 PM Central Standard Time,

smiles2322@... writes:

> > Also, a possibility to get help with the school is the Family to Family

> > organization in Houston. I think they may have one in The Woodlands as

> > well.

> > They are wonderful at helping folks negotiate the maze of school and

> legal

> > stuff.

> > Gaylen

>

> Very cool how do I find them though and would they really help someone in

> Deer Park, Tx or just Houston?

>

[Guest guest]

In a message dated 2/7/2003 12:37:56 AM Central Standard Time,

Googahly@... writes:

> Tammy,

>

> I'll try to track down a contact number for Family to Family for you. I

> used

> to attend their meetings off and on when I lived in Houston but that was

> years ago. It is a support group of families but at least when I attended,

>

> they seemed very wise and helpful with school and legal issues. When I

> find

> a contact, I'll e-mail it to you.

> Gaylen

> PS if any of you Houston folks, know how to contact this group, please let

> Tammy and I know

You are awesome Gaylen thank you

[Guest guest]

Here you go Tammy!

F2F (Family To Family)

13150 FM 529, Suite 106

Houston, TX 77041

Phone:

Fax: 466-6319

F2FNetwork@...

<A

HREF= " http://www.familytofamilynetwork.org/f2fCalendar.html " >www.familytofamilyn\

etwork.org</A>

Go for it! They're great, loving, supportive, and they know LOTS!

Sandi

[Guest guest]

Here you go Tammy!

F2F (Family To Family)

13150 FM 529, Suite 106

Houston, TX 77041

Phone:

Fax: 466-6319

F2FNetwork@...

<A

HREF= " http://www.familytofamilynetwork.org/f2fCalendar.html " >www.familytofamilyn\

etwork.org</A>

Go for it! They're great, loving, supportive, and they know LOTS!

Sandi

[Guest guest]

In a message dated 2/7/2003 1:13:47 AM Central Standard Time,

D22@... writes:

> Here you go Tammy!

Thank you so very much I have searched and search lol but couldn't find it.