Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Eleanor! Hope all is well with you! Yes, my leukocytosis was elevated, but I'm not sure the level and I did have migratory joint pain...and still do. It was not as bad at the beginning as it is now. Most of my disease was systemic at onset and joint pain (migratory) is setting in strong now. Love, Kim --- Elan727@... wrote: > Gang, > Could you please tell me if on the onset of this > disease if any of you " did > not " have leukocytosis ( elevated white blood cell > count) and if your > arthritis was " migratory " - meaning you would feel > stiffness/ pain in a joint > for a few days and then it would move to another > joint. > > Thanks, > Eleanor > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 , I am rather put off by this note. I think that you perhaps are confusing people feeling comfortable talking about the " sad " parts of this illness with a lack of hope. I am happy that obviously you've been fortunate and not had the feelings that many of us (myself included) have experienced. I am not a sad sack sort of person and never have been. But, I have found that when I am very down by this sickness and pain, I can (if I want to) write to this group and find that I am unconditionally accepted. What I am greeted with are people who tell funny stories for tell me " this moment will pass " and just BELIEVE. When other such notes are written, I do not think for an instant that these individuals are just sitting around in a depressed stupor, just waiting their turn to write to the group. We are people trying to get on with our lives, yet once in a while, a bizarre depression comes on and who are we to turn to? Our families, our close friends? I think not. The reason is that most of us love our little circle of friends and families so much (painfully so), and see their pain due to our illness on their faces. I see it on my father's face every time I see him. Do you think in a million years that I would tell him yet another thing that he would worry about and carry with him? I/We would rather not burden them with even more pain. You see we are not selfish and realize that it is unhealthy to carry our concerns within ourselves. We must share...and this is the forum that many of us choose. Actually, I find it strange that this sort of sharing is apparently the only thing you see in this group. I feel sad for you that you are missing out on so much more. Maybe you are missing all the layers that exist that are FULL of sharing happiness. Have you missed all of the notes about possible new therapies and medications that give us all hope that a cure is just around the corner? Enough said. , I simply don't understand you, perhaps I am mistaken by your point. Perhaps you didn't mean to sound so harsh such that it would make some people in need to think twice about writing when they are in pain. I wish you the best in your next group if you so wish to leave. Most Sincerely, Kathi M I've not given up hope and can't imagine that I ever will. I've been with this illness for 14 yrs now and with this group on and off for a few years. Question > > > > Hi Gang... > > I just got back from going to another rheumatologist, (Dr. Reginatto in > > Cherry Hill, NJ). > > He said it's quite possible that if I don't get another flare after my > > initial onset that what I have wasn't Stills but a viral infection of some > > type. He said this because my arthritic symptoms were " migratory " , by > > ferritin level was high, but not as high as some people with Stills and I > > didn't have leucocytosis ( a high white blood cell count). > > He says if I get another flare after the inital onset, then it was > probably > > Stills. > > Can anyone share any insight on this? Does this make sense? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 , I am rather put off by this note. I think that you perhaps are confusing people feeling comfortable talking about the " sad " parts of this illness with a lack of hope. I am happy that obviously you've been fortunate and not had the feelings that many of us (myself included) have experienced. I am not a sad sack sort of person and never have been. But, I have found that when I am very down by this sickness and pain, I can (if I want to) write to this group and find that I am unconditionally accepted. What I am greeted with are people who tell funny stories for tell me " this moment will pass " and just BELIEVE. When other such notes are written, I do not think for an instant that these individuals are just sitting around in a depressed stupor, just waiting their turn to write to the group. We are people trying to get on with our lives, yet once in a while, a bizarre depression comes on and who are we to turn to? Our families, our close friends? I think not. The reason is that most of us love our little circle of friends and families so much (painfully so), and see their pain due to our illness on their faces. I see it on my father's face every time I see him. Do you think in a million years that I would tell him yet another thing that he would worry about and carry with him? I/We would rather not burden them with even more pain. You see we are not selfish and realize that it is unhealthy to carry our concerns within ourselves. We must share...and this is the forum that many of us choose. Actually, I find it strange that this sort of sharing is apparently the only thing you see in this group. I feel sad for you that you are missing out on so much more. Maybe you are missing all the layers that exist that are FULL of sharing happiness. Have you missed all of the notes about possible new therapies and medications that give us all hope that a cure is just around the corner? Enough said. , I simply don't understand you, perhaps I am mistaken by your point. Perhaps you didn't mean to sound so harsh such that it would make some people in need to think twice about writing when they are in pain. I wish you the best in your next group if you so wish to leave. Most Sincerely, Kathi M I've not given up hope and can't imagine that I ever will. I've been with this illness for 14 yrs now and with this group on and off for a few years. Question > > > > Hi Gang... > > I just got back from going to another rheumatologist, (Dr. Reginatto in > > Cherry Hill, NJ). > > He said it's quite possible that if I don't get another flare after my > > initial onset that what I have wasn't Stills but a viral infection of some > > type. He said this because my arthritic symptoms were " migratory " , by > > ferritin level was high, but not as high as some people with Stills and I > > didn't have leucocytosis ( a high white blood cell count). > > He says if I get another flare after the inital onset, then it was > probably > > Stills. > > Can anyone share any insight on this? Does this make sense? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I've had a normal WBC count since my symptoms started in 1997. Wish (in a way) that I had experienced high white counts once in a while. Maybe I would have been diagnosed sooner and treated sooner! This is one strange disease (like...yah, we ALL KNOW THAT!)...LOL! OR, maybe it's just us! LMAO! Just kidding! Happy New Year to everyone! Jul (lilac_rose@...) Question Am I the only one in the support group who had a normal WBC at the onset of this illness? All my other symtoms were that of Stills, though. I wonder if an elevated WBC is key to making a more definitive diagnosis. Thanks, Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I've had a normal WBC count since my symptoms started in 1997. Wish (in a way) that I had experienced high white counts once in a while. Maybe I would have been diagnosed sooner and treated sooner! This is one strange disease (like...yah, we ALL KNOW THAT!)...LOL! OR, maybe it's just us! LMAO! Just kidding! Happy New Year to everyone! Jul (lilac_rose@...) Question Am I the only one in the support group who had a normal WBC at the onset of this illness? All my other symtoms were that of Stills, though. I wonder if an elevated WBC is key to making a more definitive diagnosis. Thanks, Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I've had a normal WBC count since my symptoms started in 1997. Wish (in a way) that I had experienced high white counts once in a while. Maybe I would have been diagnosed sooner and treated sooner! This is one strange disease (like...yah, we ALL KNOW THAT!)...LOL! OR, maybe it's just us! LMAO! Just kidding! Happy New Year to everyone! Jul (lilac_rose@...) Question Am I the only one in the support group who had a normal WBC at the onset of this illness? All my other symtoms were that of Stills, though. I wonder if an elevated WBC is key to making a more definitive diagnosis. Thanks, Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Eleanor - I DID have leukocytosis as well as arthritis that was migratory. One day it is in my knee, the next in my wrist with absolutely no pain in the knee at all. It's the strangest thing! Are you looking for people who did not have leukocytosis AND migratory arthritis? Hope this helps a little! Jen P. Original Message ----- From: Elan727@... To: Stillsdisease Sent: Sunday, December 30, 2001 5:56 PM Subject: question Gang, Could you please tell me if on the onset of this disease if any of you " did not " have leukocytosis ( elevated white blood cell count) and if your arthritis was " migratory " - meaning you would feel stiffness/ pain in a joint for a few days and then it would move to another joint. Thanks, Eleanor Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Eleanor - I DID have leukocytosis as well as arthritis that was migratory. One day it is in my knee, the next in my wrist with absolutely no pain in the knee at all. It's the strangest thing! Are you looking for people who did not have leukocytosis AND migratory arthritis? Hope this helps a little! Jen P. Original Message ----- From: Elan727@... To: Stillsdisease Sent: Sunday, December 30, 2001 5:56 PM Subject: question Gang, Could you please tell me if on the onset of this disease if any of you " did not " have leukocytosis ( elevated white blood cell count) and if your arthritis was " migratory " - meaning you would feel stiffness/ pain in a joint for a few days and then it would move to another joint. Thanks, Eleanor Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Eleanor - I DID have leukocytosis as well as arthritis that was migratory. One day it is in my knee, the next in my wrist with absolutely no pain in the knee at all. It's the strangest thing! Are you looking for people who did not have leukocytosis AND migratory arthritis? Hope this helps a little! Jen P. Original Message ----- From: Elan727@... To: Stillsdisease Sent: Sunday, December 30, 2001 5:56 PM Subject: question Gang, Could you please tell me if on the onset of this disease if any of you " did not " have leukocytosis ( elevated white blood cell count) and if your arthritis was " migratory " - meaning you would feel stiffness/ pain in a joint for a few days and then it would move to another joint. Thanks, Eleanor Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Kathi, Again , I dont want to diminish the importance of this group, from which I have benefited from. I agree with you. I am not here to discourage people or diminish the importance of each persons feelings. Question > > > > Hi Gang... > > I just got back from going to another rheumatologist, (Dr. Reginatto in > > Cherry Hill, NJ). > > He said it's quite possible that if I don't get another flare after my > > initial onset that what I have wasn't Stills but a viral infection of some > > type. He said this because my arthritic symptoms were " migratory " , by > > ferritin level was high, but not as high as some people with Stills and I > > didn't have leucocytosis ( a high white blood cell count). > > He says if I get another flare after the inital onset, then it was > probably > > Stills. > > Can anyone share any insight on this? Does this make sense? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Kathi, Again , I dont want to diminish the importance of this group, from which I have benefited from. I agree with you. I am not here to discourage people or diminish the importance of each persons feelings. Question > > > > Hi Gang... > > I just got back from going to another rheumatologist, (Dr. Reginatto in > > Cherry Hill, NJ). > > He said it's quite possible that if I don't get another flare after my > > initial onset that what I have wasn't Stills but a viral infection of some > > type. He said this because my arthritic symptoms were " migratory " , by > > ferritin level was high, but not as high as some people with Stills and I > > didn't have leucocytosis ( a high white blood cell count). > > He says if I get another flare after the inital onset, then it was > probably > > Stills. > > Can anyone share any insight on this? Does this make sense? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Kathi, Again , I dont want to diminish the importance of this group, from which I have benefited from. I agree with you. I am not here to discourage people or diminish the importance of each persons feelings. Question > > > > Hi Gang... > > I just got back from going to another rheumatologist, (Dr. Reginatto in > > Cherry Hill, NJ). > > He said it's quite possible that if I don't get another flare after my > > initial onset that what I have wasn't Stills but a viral infection of some > > type. He said this because my arthritic symptoms were " migratory " , by > > ferritin level was high, but not as high as some people with Stills and I > > didn't have leucocytosis ( a high white blood cell count). > > He says if I get another flare after the inital onset, then it was > probably > > Stills. > > Can anyone share any insight on this? Does this make sense? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 I don't think this went through the first time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 I don't think this went through the first time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 I personally (my opinion only!) believe that after a stressful event symptoms can come on strong-but I really believe it is a deep seated immune or other problem that causes things to get out of control. I will also say, that when I take the time to practice stress reduction exercises I am really better for it- I just need to remind myself of that so that I do them! I have always felt that probably everyone has the potential to get some sort of disease (don't know if that is right word), but it is a series of things that determine whether or not your body comes down with the illness. My grandmother had lupus and I have some speculation of what caused me then to come down with an autoimmune illness- like I said, an outside agent like a virus or vaccination that pushed my system over the edge. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 I personally (my opinion only!) believe that after a stressful event symptoms can come on strong-but I really believe it is a deep seated immune or other problem that causes things to get out of control. I will also say, that when I take the time to practice stress reduction exercises I am really better for it- I just need to remind myself of that so that I do them! I have always felt that probably everyone has the potential to get some sort of disease (don't know if that is right word), but it is a series of things that determine whether or not your body comes down with the illness. My grandmother had lupus and I have some speculation of what caused me then to come down with an autoimmune illness- like I said, an outside agent like a virus or vaccination that pushed my system over the edge. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 I personally (my opinion only!) believe that after a stressful event symptoms can come on strong-but I really believe it is a deep seated immune or other problem that causes things to get out of control. I will also say, that when I take the time to practice stress reduction exercises I am really better for it- I just need to remind myself of that so that I do them! I have always felt that probably everyone has the potential to get some sort of disease (don't know if that is right word), but it is a series of things that determine whether or not your body comes down with the illness. My grandmother had lupus and I have some speculation of what caused me then to come down with an autoimmune illness- like I said, an outside agent like a virus or vaccination that pushed my system over the edge. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Hi Eleanor, Yes, but there is still no " scientific proof " on the " stress factor. " Many will agree on this stress thing I'm sure! Stress almost killed me! But...not quite. Tricia question > For those of you who have gone into remission without meds and did well for > awhile and then experienced another flare. > Can you attribute your flare to stresses in your life? Just want to see if > there is a correlation? > > Thanks, > Eleanor > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Hi Eleanor, Yes, but there is still no " scientific proof " on the " stress factor. " Many will agree on this stress thing I'm sure! Stress almost killed me! But...not quite. Tricia question > For those of you who have gone into remission without meds and did well for > awhile and then experienced another flare. > Can you attribute your flare to stresses in your life? Just want to see if > there is a correlation? > > Thanks, > Eleanor > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Hi Eleanor, Yes, but there is still no " scientific proof " on the " stress factor. " Many will agree on this stress thing I'm sure! Stress almost killed me! But...not quite. Tricia question > For those of you who have gone into remission without meds and did well for > awhile and then experienced another flare. > Can you attribute your flare to stresses in your life? Just want to see if > there is a correlation? > > Thanks, > Eleanor > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Dear Eleanor - I attribute the original onset of Stills to some enormous stresses in my life, but they actually were still present when I went into remission, and I can't attribute the recurrence of the disease to any particular life stresses. I think we always look for causes and reasons. For me, having them would decrease my sense of helplessness. Unfortunately, they often aren't there, in my experience. It is the arbitrariness of this disease that is so difficult. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Dear Eleanor - I attribute the original onset of Stills to some enormous stresses in my life, but they actually were still present when I went into remission, and I can't attribute the recurrence of the disease to any particular life stresses. I think we always look for causes and reasons. For me, having them would decrease my sense of helplessness. Unfortunately, they often aren't there, in my experience. It is the arbitrariness of this disease that is so difficult. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Dear Eleanor - I attribute the original onset of Stills to some enormous stresses in my life, but they actually were still present when I went into remission, and I can't attribute the recurrence of the disease to any particular life stresses. I think we always look for causes and reasons. For me, having them would decrease my sense of helplessness. Unfortunately, they often aren't there, in my experience. It is the arbitrariness of this disease that is so difficult. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 There was one major, formal study done on Still's that did discover a correlation between stress and the onset of Still's Disease. However, a correlation is not the same as a causation, so this finding has to be interpreted cautiously. --- Dennis & Tricia Looker wrote: > Hi Eleanor, > > Yes, but there is still no " scientific proof " on the > " stress > factor. " Many will agree on this stress thing I'm > sure! > Stress almost killed me! But...not quite. > > Tricia > > > question > > > > For those of you who have gone into remission > without meds and did well > for > > awhile and then experienced another flare. > > Can you attribute your flare to stresses in your > life? Just want to see if > > there is a correlation? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 There was one major, formal study done on Still's that did discover a correlation between stress and the onset of Still's Disease. However, a correlation is not the same as a causation, so this finding has to be interpreted cautiously. --- Dennis & Tricia Looker wrote: > Hi Eleanor, > > Yes, but there is still no " scientific proof " on the > " stress > factor. " Many will agree on this stress thing I'm > sure! > Stress almost killed me! But...not quite. > > Tricia > > > question > > > > For those of you who have gone into remission > without meds and did well > for > > awhile and then experienced another flare. > > Can you attribute your flare to stresses in your > life? Just want to see if > > there is a correlation? > > > > Thanks, > > Eleanor > > > > > > Visit the Still's Disease Message Board > > http://disc.server.com/Indices/148599.html > > > > Quote Link to comment Share on other sites More sharing options...
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