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Hi Dana,

I read your post here. I appreciate it if you know what might help my

sons stims .

Constant talking, fidgeting with mouth

Flapping (just a little when excited).

Sillyness (yeast?)

We tried Nystatin but he couldn't tolerate it at all! should I try

probiotics & ?

Thank You!

Gabi Love

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I would try probiotics, prebiotics (FOS-feeds only the good bacteria), and

bovine colostrum.

_____

From:

[mailto: ] On Behalf Of eglove

Sent: Tuesday, March 20, 2007 10:16 AM

Subject: Re: Stimming

Hi Dana,

I read your post here. I appreciate it if you know what might help my

sons stims .

Constant talking, fidgeting with mouth

Flapping (just a little when excited).

Sillyness (yeast?)

We tried Nystatin but he couldn't tolerate it at all! should I try

probiotics & ?

Thank You!

Gabi Love

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Dana: Can I ask you. Did your son have visual stims and auditory stims.

My son replays the same segment of a cartoon or movie over and over again.

Sometimes he does it with the begining of the movie, at the intro, and I notice

he is listening to the same sound track again and again.

The other thing I notice is he will visually stim, with is a particular

segment, also he loves to credits.

Did you ever have any of this with your son? Did you find any supplements that

helped particularly?

Thank you...

danasview <danasview@...> wrote:

>

> What is stimming? Is stimming like making weird noises and pretending

> like if he is singing? What supplements, nutrients do you recommend

> for stimming? Is it also true that B6 helps control tantrums? I

> strongly appreciate your help on these questions.

Those behaviors can be stims. There are many different things that

can be a stim. I have eliminated all my son's stims, and he had a

LOT, and it took different supplements for each one. So, if you list

your child's stims, I might be able to let you know what worked for my

son, if he had those stims.

Dana

---------------------------------

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

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my son loves credits also..I was so surprise to see

someone else who child watch them over and over if you

let them..

--- N Ballard <ballard_5610@...> wrote:

> Dana: Can I ask you. Did your son have visual stims

> and auditory stims.

>

> My son replays the same segment of a cartoon or

> movie over and over again. Sometimes he does it with

> the begining of the movie, at the intro, and I

> notice he is listening to the same sound track again

> and again.

>

> The other thing I notice is he will visually stim,

> with is a particular segment, also he loves to

> credits.

>

> Did you ever have any of this with your son? Did

> you find any supplements that helped particularly?

>

> Thank you...

>

>

>

> danasview <danasview@...> wrote:

>

> >

> > What is stimming? Is stimming like making weird

> noises and pretending

> > like if he is singing? What supplements, nutrients

> do you recommend

> > for stimming? Is it also true that B6 helps

> control tantrums? I

> > strongly appreciate your help on these questions.

>

> Those behaviors can be stims. There are many

> different things that

> can be a stim. I have eliminated all my son's stims,

> and he had a

> LOT, and it took different supplements for each one.

> So, if you list

> your child's stims, I might be able to let you know

> what worked for my

> son, if he had those stims.

>

> Dana

>

>

>

>

>

>

> ---------------------------------

> Don't get soaked. Take a quick peek at the forecast

>

> with the Search weather shortcut.

>

> [Non-text portions of this message have been

> removed]

>

>

Amelia McCullough

________________________________________________________________________________\

____

Expecting? Get great news right away with email Auto-Check.

Try the Beta.

http://advision.webevents./mailbeta/newmail_tools.html

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Oh my gosh, my son too! He especially likes to watch the credits

roll on the screen when his head is cocked sideways. He also likes

to wave string or any sort of linear object (fingers too) in front of

his eyes. I'd be interested in hearing what Dana used for these types

of stims (if applicable to her son) and how long it took to eliminate

them.

Rose

On Mar 20, 2007, at 3:18 PM, Amelia McCullough wrote:

> my son loves credits also..I was so surprise to see

> someone else who child watch them over and over if you

> let them..

> --- N Ballard <ballard_5610@...> wrote:

>

> > Dana: Can I ask you. Did your son have visual stims

> > and auditory stims.

> >

> > My son replays the same segment of a cartoon or

> > movie over and over again. Sometimes he does it with

> > the begining of the movie, at the intro, and I

> > notice he is listening to the same sound track again

> > and again.

> >

> > The other thing I notice is he will visually stim,

> > with is a particular segment, also he loves to

> > credits.

> >

> > Did you ever have any of this with your son? Did

> > you find any supplements that helped particularly?

> >

> > Thank you...

> >

> >

> >

> > danasview <danasview@...> wrote:

> >

> > >

> > > What is stimming? Is stimming like making weird

> > noises and pretending

> > > like if he is singing? What supplements, nutrients

> > do you recommend

> > > for stimming? Is it also true that B6 helps

> > control tantrums? I

> > > strongly appreciate your help on these questions.

> >

> > Those behaviors can be stims. There are many

> > different things that

> > can be a stim. I have eliminated all my son's stims,

> > and he had a

> > LOT, and it took different supplements for each one.

> > So, if you list

> > your child's stims, I might be able to let you know

> > what worked for my

> > son, if he had those stims.

> >

> > Dana

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Don't get soaked. Take a quick peek at the forecast

> >

> > with the Search weather shortcut.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> Amelia McCullough

>

> __________________________________________________________

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

> http://advision.webevents./mailbeta/newmail_tools.html

>

>

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jeez! i didnt know there were other children who does this! my son

loves the credits at the end of the programs too!!!! and he'd flap

his hands with excitement everytime he sees them! if he's standing up

he will jump while flapping hands, and if he's sitting he will

straighten his legs in front of him and move them in time with his

hand flapping! sometimes we find it amusing, but sometimes we kind of

get worried.. is this a stim? is this due to yeast or something else?

mia

> >

> > What is stimming? Is stimming like making weird noises and

pretending

> > like if he is singing? What supplements, nutrients do you

recommend

> > for stimming? Is it also true that B6 helps control tantrums? I

> > strongly appreciate your help on these questions.

>

> Those behaviors can be stims. There are many different things that

> can be a stim. I have eliminated all my son's stims, and he had a

> LOT, and it took different supplements for each one. So, if you list

> your child's stims, I might be able to let you know what worked for

my

> son, if he had those stims.

>

> Dana

>

>

>

>

>

>

> ---------------------------------

> Don't get soaked. Take a quick peek at the forecast

> with the Search weather shortcut.

>

>

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we can not leave the movie theater until the very last bit of the credits and

the union seal rolls across the bottom of the screen. my other 2 kids are used

to this. we used to try to get him to leave and he would have a major meltdown.

I just figure its not worth it.

i asked him once, why do you watcht the credits....and very clearly he said " I

just like to, its fun "

amazing so many of us have kids that like the same things,

mia_mantaring <mia_mantaring@...> wrote:

jeez! i didnt know there were other children who does this! my son

loves the credits at the end of the programs too!!!! and he'd flap

his hands with excitement everytime he sees them! if he's standing up

he will jump while flapping hands, and if he's sitting he will

straighten his legs in front of him and move them in time with his

hand flapping! sometimes we find it amusing, but sometimes we kind of

get worried.. is this a stim? is this due to yeast or something else?

mia

> >

> > What is stimming? Is stimming like making weird noises and

pretending

> > like if he is singing? What supplements, nutrients do you

recommend

> > for stimming? Is it also true that B6 helps control tantrums? I

> > strongly appreciate your help on these questions.

>

> Those behaviors can be stims. There are many different things that

> can be a stim. I have eliminated all my son's stims, and he had a

> LOT, and it took different supplements for each one. So, if you list

> your child's stims, I might be able to let you know what worked for

my

> son, if he had those stims.

>

> Dana

>

>

>

>

>

>

> ---------------------------------

> Don't get soaked. Take a quick peek at the forecast

> with the Search weather shortcut.

>

>

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> Hi Dana,

> I read your post here. I appreciate it if you know what might help my

> sons stims .

> Constant talking, fidgeting with mouth

What does he say when he is constantly talking? Is he scripting? If

so, try adding or increasing folic acid.

What exactly does he do when fidgeting with his mouth?

> Flapping (just a little when excited).

For my son, this was caused by B vitamin deficiency and viruses.

> Sillyness (yeast?)

Can be several things, yeast is one of them.

> We tried Nystatin but he couldn't tolerate it at all! should I try

> probiotics & ?

You can try that if you want, see if it helps.

Dana

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>

> Dana: Can I ask you. Did your son have visual stims and auditory stims.

Yes, both. His visuals were constant for many years.

> My son replays the same segment of a cartoon or movie over and

over again. Sometimes he does it with the begining of the movie, at

the intro, and I notice he is listening to the same sound track again

and again.

This can be a few things, one of which is yeast overgrowth.

> The other thing I notice is he will visually stim, with is a

particular segment, also he loves to credits.

My son loved watching the credits also. It was a visual stim for him.

It took a LOT of supplements to eliminate his visuals, which I wrote here

http://www.danasview.net/issues.htm

Some kids just need CLO, so you can try that first, if you want.

Dana

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  • 1 year later...
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Hi-

Research has demonstrated that self-stimulatory behavior is intrinsically

reinforcing. That is, that there's no purposeful intent to the behavior... it's

not to get attention, it's not to get out of something else. The behavior

provides some pleasure to the person that is engaging in it. Lovaas conducted

many studies on self-stimulatory behavior, and the extinction thereof. He found

that even when painful electric shock was applied as a consequence of stimming,

the stimming continued. If a subject was prevented from stimming, they would

just double up on it when they could; as if the subjects had to get a certain

amount of stim time in... a quota.

My son (age 12) has adopted and, subsequently abandoned, several methods of

stimming over the years. His current, and longest lived method, is a

wrist-to-wrist rapid extension and contraction of all of his fingers. If he is

in an intense stim, his palms actually smack together, making a pretty loud

sound. He was a second grader, in General Ed. with a one-to-one aide, when I

read the data on self-stimulatory behavior. Most of the kids had gotten over the

curiosity and just ignored his stimming. I had it written in his I.E.P. that

his stimming would not be addressed by school personnel... it would simply be

ignored. Since it wasn't too distracting, and wasn't hurting him, or anyone

else, I figured he didn't need to be dogged for a behavior that had no

discernable function. My contention was that if they were going to intervene, or

redirect, my son when he demonstrated such behavior, then they had to do so for

every nail biting, lip licking, hair twirling, knee bouncing, eraser chewing kid

in his class, as well. So, when it was time to work and he was stimming, the

aide simply said, " Time to get to work. " And, when it was story time, or a

movie, he could stim to his heart's content.

Low and behold, by the time he was half-way through the fourth grade his

teacher and principal announced that he no longer had any self-stimulatory

behavior. " He never does any of that any more. " LOL!!! I said, you want to

bet? The second he get's the car , after school, I can hear his palms slapping

together, over my shoulder. Once we get home, he's still gettin' with it for the

next hour or so.... hard time! I guess he had noticed that no one else was doing

it, or the pace was so busy that he just couldn't get to the stimming during the

school day. And, consistent with the Lovaas research, he made up for that lost

time.

We don't know why they do it, or what it does for them. My son is

non-verbal. He used to stick his index fingers in his ears and pop them out at

an angle, so that the vacuum he'd created made a " pop " sound as he withdrew his

fingers from the ear canal. For months, I thought he was just stimming. Turns

out he had a great deal of fluid, and pressure, in his ear drums, behind the

tympanic membrane... but no visible infection. The world must have sounded like

he was under water... so he was trying to relieve the pressure, himself. Once he

was tubed, he never did the ear pop again. It's very difficult, and almost

unfair, to address a behavior when we don't know the function of it.

For whatever it's worth... fighting autism is war... pick your battles wisely -

love unconditionally!

Tamberella Mead

juzw8nc@...

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Hi , and All,

I think you nailed it somewhat. The pace of involvement

(redirection?) at school (typically) is such, that he doesn't stim

there. They need our " inter-action, " thereof? ... Whatever it is,

of Communication, to keep them focused on the here and now, (and us)

as simple as that really can be, thereof? .. .

We have the same problem with our son (of a nineteen-year old). He

doesn't stim at school anymore, much (he scratches others, when

pressed, hey! That's not a stim!) but at home when we leave him on

his own, well, there's trouble with that. I Feel I must be honest

about things? .. . to ABA, thereof (!)

I'm of the view almost anyone is better than no one to engage our

children in more meaningful (to existance) activity. Really, though

being with other autistic children is like, imitating the same

problem? of spiraling further downward and out of control? .. . So

don't treat them like that? .. . Not rocket science, thereof? .. .

Things might be easier to deal with than the professions

(complicating professions?) would suggest? .. . From a " pop, " and

missionary, of a pro, thereof? .. . A gutsy SOB, perhaps .. .

Someone has to do The job.. . (!)

My sense of It, of what I'm a " missionary " about, and maybe my son is

being like that, too, especially, of me? of Us? It just might be an

inter-related thing, do you " Feel, " would seem to make sense, more

sense, thereof? .. .

We can learn so much with our children.

Mike,

I ABA

ABA for Understanding More

Let's get everyone (more, of everyone) involved in that

respect? .. . It certainly would make our jobs easier.. . as easy as

the job is, thereof? .. .

I should be sorry for making things seem so simple and easy? No.;)

Think of what we could do (for each other) if we had even " more, "

resources, of the reinforcements, of what the child wants and needs,

going for Us? (Thereof? .. .)+

" That's " being Positive (?!.)

Don't leave these kids alone any more than they want to be

alone? .. . They do what they have to do in that respect is my sense

of it. They can get pretty " annoyed " about that, of the extinction

burst or initial resistance? .. . Be there for them, thereof. Who

better

This does not have to be (so) difficult, people? .. . On getting

along with each other? .. .

The opportunities are even better as our children get older,

thereof? Hey, dare to Communicate.. . (!)

Be there for them of that? .. . Someone should be. I'd like to

give " everyone " credit where credit is deserved... (reinforcing, of a

leadership aspect? thereof?) Thereof.. . Our children lead in " many "

ways.. . Be there for them of that? .. .

I doesn't have to be " difficult " (painful). It *shouldn't* be? .. .

Not for them.. . Not for " me, " either, for them, thereof.. .;=).

Things are moving along " nicely, " in that respect with Us, is my

sense of It.. .

--- In , " Tamberella Mead " <juzw8nc@...>

wrote:

>

>

> Hi-

>

> Research has demonstrated that self-stimulatory behavior is

intrinsically reinforcing. That is, that there's no purposeful intent

to the behavior... it's not to get attention, it's not to get out of

something else. The behavior provides some pleasure to the person

that is engaging in it. Lovaas conducted many studies on self-

stimulatory behavior, and the extinction thereof. He found that even

when painful electric shock was applied as a consequence of stimming,

the stimming continued. If a subject was prevented from stimming,

they would just double up on it when they could; as if the subjects

had to get a certain amount of stim time in... a quota.

>

> My son (age 12) has adopted and, subsequently abandoned,

several methods of stimming over the years. His current, and longest

lived method, is a wrist-to-wrist rapid extension and contraction of

all of his fingers. If he is in an intense stim, his palms actually

smack together, making a pretty loud sound. He was a second grader,

in General Ed. with a one-to-one aide, when I read the data on self-

stimulatory behavior. Most of the kids had gotten over the curiosity

and just ignored his stimming. I had it written in his I.E.P. that

his stimming would not be addressed by school personnel... it would

simply be ignored. Since it wasn't too distracting, and wasn't

hurting him, or anyone else, I figured he didn't need to be dogged

for a behavior that had no discernable function. My contention was

that if they were going to intervene, or redirect, my son when he

demonstrated such behavior, then they had to do so for every nail

biting, lip licking, hair twirling, knee bouncing, eraser chewing kid

in his class, as well. So, when it was time to work and he was

stimming, the aide simply said, " Time to get to work. " And, when it

was story time, or a movie, he could stim to his heart's content.

>

> Low and behold, by the time he was half-way through the fourth

grade his teacher and principal announced that he no longer had any

self-stimulatory behavior. " He never does any of that any more. "

LOL!!! I said, you want to bet? The second he get's the car , after

school, I can hear his palms slapping together, over my shoulder.

Once we get home, he's still gettin' with it for the next hour or

so.... hard time! I guess he had noticed that no one else was doing

it, or the pace was so busy that he just couldn't get to the stimming

during the school day. And, consistent with the Lovaas research, he

made up for that lost time.

>

> We don't know why they do it, or what it does for them. My son

is non-verbal. He used to stick his index fingers in his ears and

pop them out at an angle, so that the vacuum he'd created made

a " pop " sound as he withdrew his fingers from the ear canal. For

months, I thought he was just stimming. Turns out he had a great deal

of fluid, and pressure, in his ear drums, behind the tympanic

membrane... but no visible infection. The world must have sounded

like he was under water... so he was trying to relieve the pressure,

himself. Once he was tubed, he never did the ear pop again. It's very

difficult, and almost unfair, to address a behavior when we don't

know the function of it.

>

> For whatever it's worth... fighting autism is war... pick your

battles wisely - love unconditionally!

>

> Tamberella Mead

> juzw8nc@...

>

>

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  • 10 months later...
Guest guest

Hmmm, his stimming doesn't require any props or toys, he can do it anytime

anywhere...right in the middle of doing activites, eating dinner, etc. I know we

are just supposed to try to re-direct him, but since we are right in the middle

of doing an activity anyways....basically I have no ideas. Other than constantly

telling him to stop. Seems like all we do is nag at him most of the day.

TJ

>

> are your familiar with floortime or play? If you can find a way to intervene

without taking over and turn that activity into a more productive one, you all

should be happy. For example my ot is always saying looking at the swing not

productive, getting on and swinging on it, productive.. for us it was spinning.

someone got my younger son a stacking game where they are half circles and then

can go together into balls. he was obsessed with spinning them. we had to do it

and it had to be just so. It literally kills me just thinking about it! I did

have to take those out of sight eventually because it was constant but it had

improved a ton. We just turned the spin game into other little games with mild

interference gestures etc. good luck!

> we still have plenty of little things that we do here but it's nothing

consistent now.

>

>

> ---- Original Message ----

> From: T <juice00000@...>

>

> Sent: Mon, 23 Mar 2009 4:34 pm

> Subject: ( ) Stimming

>

>

>

>

>

>

> What do you all do about your child(ren)'s stimming behaivors? Since my son is

just 3 1/2 he really doesn't understand yet (or care) why others might view it

as odd and not want to play with him as a result.

> My DH has started telling him to stop or 'you'll hurt your eyes'. I am not

comfortable with that, and it doesn't make a differnce anyways...

> TJ

>

>

>

>

>

>

>

> ________________________________________________________________________

> GameVault: Play free online games at Gamevault.ca. Word arcade, puzzle and

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We started "scheduling" in the time our son could do his stimming activity (make ceiling fans with tinkertoys and spin them with his hands initiating ocular nystagmus). That really helped him not do it quite so much.

We also realized that he has a hard time thinking of what to do. So when left to "think" of something he reverts to stimming behavior. So now we will make a list of options for times he's supposed to initiate his own play.

We do what the other post said as well...try to figure out the sensory "input" he's going for and find a more appropriate way for him to get it.

Hope that helps! Our son is now almost 6.

www.cuddlebugkids.etsy.com

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What stim is he doing?

Roxanna

The government’s view of the economy could be summed up in a few short phrases:If it moves, tax it. If it keeps moving, regulate it.And if it stops moving, subsidize it. Reagan

( ) Stimming

What do you all do about your child(ren)'s stimming behaivors? Since my son is just 3 1/2 he really doesn't understand yet (or care) why others might view it as odd and not want to play with him as a result.My DH has started telling him to stop or 'you'll hurt your eyes'. I am not comfortable with that, and it doesn't make a differnce anyways...TJ

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.24/2018 - Release Date: 03/23/09 06:52:00

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I disagree with the "leave it alone" theory. stims can happen for two reasons - to tune out of the regular world via stimming or a way to calm down when overly excited.

Stimming can greatly interfere with attention and participation in real life activities. You know, while all the kids are gathered around a toy, learning play and social skills, cause and effect relationships, interpersonal communication (the list can go on and on), Autistic boy is where? Standing against the wall doing visual stims. Not only does it mark him as being odd to other kids (which does not help his social skills any) but it prevents him from being in situations where he can learn so many skills. So when it is used to tune out of the regular world, I would want to learn ways to redirect him so that he will participate in appropriate activities.

Someone remarked that trying to fix one stim means you will create another stim. And that is true, which is why getting someone with a background in behavior therapy is a great idea. You want to create an alternate stim which is more acceptable. You also want to learn ways to redirect the stim behavior so that he can participate in activities instead of tuning out. And if he is doing it to calm down, there are many other ways you can teach him to learn to calm down that would be more socially acceptable and still achieve the same goals. You could put together a sensory diet or teach him an alternate stim that works but doesn't ID him as someone who is "odd", which could help his social life and ability to fit in long term.

Stimming is reinforcing so it can just get worse as time goes on. I worked with a little guy who is a master at stimming. He has gone through several good ones and kind of cycles around - , flipping objects in front of his eyes, major handflapping, running back and forth with no goal in mind, crossing his eyes and then finally, the worst was when it all turned into hand biting. So it did not get better in time, it just got worse. The more he stimmed, the more he wanted to stim, the more he escalated the type of stims. Finally, he had to wear a hand brace to protect his skin, which he was chewing off his hand. He really hates that! Then sometimes he wears a weight to prevent the hand flapping. It is past the "oh gee, he might be autistic stimming phase." But it is a great example of why you want to intervene. Someone also suggested giving him specific times to stim, and that often can work as well. You can give him times to stim and then shorten those times a lot. But it would be more helpful to work with someone who can help you figure out why he's doing it and to design alternate ways to meet his needs. If you look into ABA, you should find someone who can do that.

Here are a few links to articles about stimming that you might like. ---->

http://www.geocities.com/AutismPages1/aba/stim2.htm

http://www.autism-help.org/behavior-stimming-autism.htm

When my own 12 yo gets bored or anxious, he will take his hands, put them together and flap the palms together in front of his eyes. I didn't know he was doing that until I met with his teacher and he mentioned "that stim" and I said, "What stim?" lol. Seems they helped create a doosy. He seldom does it now that he is e-schooled. My older ds used to stim by spinning objects and/or spinning himself. He has let go of it over time - maybe up until age 13 or so. But he went through a lot of hard times prior to that. I wish we had gotten him help for it sooner. He probably needed a sensory diet or alternate stim release but he just got yelled at in school instead. So I think waiting for him to notice it isn't socially acceptable might me years of him getting treated badly for stimming. He may not even notice until a later age, in which case, many kids will be avoiding him. AND, the longer he does it, the more ingrained it becomes. It would be easier to change/alter or eliminate stims early on than wait until they are huge big problems to deal with.

Roxanna

The government’s view of the economy could be summed up in a few short phrases:If it moves, tax it. If it keeps moving, regulate it.And if it stops moving, subsidize it. Reagan

( ) Stimming> > > What do you all do about your child(ren)'s stimming behaivors? Since my son is just 3 1/2 he really doesn't understand yet (or care) why others might view it as odd and not want to play with him as a result.> My DH has started telling him to stop or 'you'll hurt your eyes'. I am not comfortable with that, and it doesn't make a differnce anyways...> TJ> > > > > > ----------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 8.0.238 / Virus Database: 270.11.24/2018 - Release Date: 03/23/09 06:52:00>

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Wow Roxanna - great post on stimming! We've definately seen what you described

of stimming just changing from one thing to another. We've been really helped

by our OT to establish a sensory diet and find effective and more appropriate

stims. Stims which were so pervasive they needed scheduling into the day have

really decreased as we've put them in the schedule vs. just doing them anytime

of day.

TJ - I just would like to add that it's been helpful for us as parents to read

accounts of stimming from adults with high-functioning autism. Temple Grandin

talks about some of her childhood stims in her famous book Thinking In Pictures.

Because the stims you describe are both vision related, I would consider an OT

evaluation with a SIPT trained OT and then also consider an evaluation with a

developmental optometrist who does vision therapy. Both of these are sometimes

covered by insurance although OT is more likely to be so.

Hope that helps!

www.cuddlebugkids.etsy.com

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