Update

[Guest guest]

Hi , Melt here; I am so glad to read your post about doing better and

having a renewed outlook. I too, go thru the same ups and downs emotionally

and I take an anti-depressant. Your point of getting the proper pain

management hit home though. I do believe that some should walk in our shoes

for just one day without medication to get just a spark of an idea of this

disease. So happy for you and we missed you. Till soon, Patty

Update

> Hello Everyone,

>

> I know it has been awhile. I am doing better. After almost being fired

> because of being sick, losing a promotion because of this, taking a

medical

> leave since mid Oct. I am now back at work. I started back to work on

Jan.

> 4. I am so excited and happy about this. I am going to give it my over

> 100% to make it work. Wish me luck. This has been a struggle but getting

> better each day.

>

> Mentally and Emotionally I am doing very well. I am out of the nasty

> depression I was in for way too long. Physically I still struggle day to

> day but because I have changed my attitude and the way I am dealing and

> coping with my illness, this has been much easier to handle and deal with.

> Of course finally getting some pain relief certainly has helped. That one

> is a long story.

>

> I now consider myself amongst the lucky living. I am working hard at

> improving my quality of life. I have come pretty far from not caring any

> more and just plain giving up. It is difficult when you lose hope and

> faith. I have now found these things again.

>

> I wanted to thank everyone for sticking by me even though I may have

seemed

> impossible to deal with at times. I hope to offer all of you the same

> wonderful support.

>

> I hope everyone is having a wonderful pain free day.

>

> Thanks for listening.

>

> Love,

>

>

> jatw@...

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Hi , Melt here; I am so glad to read your post about doing better and

having a renewed outlook. I too, go thru the same ups and downs emotionally

and I take an anti-depressant. Your point of getting the proper pain

management hit home though. I do believe that some should walk in our shoes

for just one day without medication to get just a spark of an idea of this

disease. So happy for you and we missed you. Till soon, Patty

Update

> Hello Everyone,

>

> I know it has been awhile. I am doing better. After almost being fired

> because of being sick, losing a promotion because of this, taking a

medical

> leave since mid Oct. I am now back at work. I started back to work on

Jan.

> 4. I am so excited and happy about this. I am going to give it my over

> 100% to make it work. Wish me luck. This has been a struggle but getting

> better each day.

>

> Mentally and Emotionally I am doing very well. I am out of the nasty

> depression I was in for way too long. Physically I still struggle day to

> day but because I have changed my attitude and the way I am dealing and

> coping with my illness, this has been much easier to handle and deal with.

> Of course finally getting some pain relief certainly has helped. That one

> is a long story.

>

> I now consider myself amongst the lucky living. I am working hard at

> improving my quality of life. I have come pretty far from not caring any

> more and just plain giving up. It is difficult when you lose hope and

> faith. I have now found these things again.

>

> I wanted to thank everyone for sticking by me even though I may have

seemed

> impossible to deal with at times. I hope to offer all of you the same

> wonderful support.

>

> I hope everyone is having a wonderful pain free day.

>

> Thanks for listening.

>

> Love,

>

>

> jatw@...

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Hi , Melt here; I am so glad to read your post about doing better and

having a renewed outlook. I too, go thru the same ups and downs emotionally

and I take an anti-depressant. Your point of getting the proper pain

management hit home though. I do believe that some should walk in our shoes

for just one day without medication to get just a spark of an idea of this

disease. So happy for you and we missed you. Till soon, Patty

Update

> Hello Everyone,

>

> I know it has been awhile. I am doing better. After almost being fired

> because of being sick, losing a promotion because of this, taking a

medical

> leave since mid Oct. I am now back at work. I started back to work on

Jan.

> 4. I am so excited and happy about this. I am going to give it my over

> 100% to make it work. Wish me luck. This has been a struggle but getting

> better each day.

>

> Mentally and Emotionally I am doing very well. I am out of the nasty

> depression I was in for way too long. Physically I still struggle day to

> day but because I have changed my attitude and the way I am dealing and

> coping with my illness, this has been much easier to handle and deal with.

> Of course finally getting some pain relief certainly has helped. That one

> is a long story.

>

> I now consider myself amongst the lucky living. I am working hard at

> improving my quality of life. I have come pretty far from not caring any

> more and just plain giving up. It is difficult when you lose hope and

> faith. I have now found these things again.

>

> I wanted to thank everyone for sticking by me even though I may have

seemed

> impossible to deal with at times. I hope to offer all of you the same

> wonderful support.

>

> I hope everyone is having a wonderful pain free day.

>

> Thanks for listening.

>

> Love,

>

>

> jatw@...

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Dear Connie,

I am so glad you are getting stronger and stronger each day. It sounds like

your finally getting some answers and some treatment for your problems. The

Adrenal Crisis sounds serious I hope you will take extra care of your self.

You have definitely been through way too much and for way too long. Keep us

posted when you feel up to it. This is something I know so little about but

I would like to know more. I wonder how common this is for our disease.

Your in my thoughts and prayers.

Love,

jatw@...

[Guest guest]

Dear Connie,

I am so glad you are getting stronger and stronger each day. It sounds like

your finally getting some answers and some treatment for your problems. The

Adrenal Crisis sounds serious I hope you will take extra care of your self.

You have definitely been through way too much and for way too long. Keep us

posted when you feel up to it. This is something I know so little about but

I would like to know more. I wonder how common this is for our disease.

Your in my thoughts and prayers.

Love,

jatw@...

[Guest guest]

Connie;

Just keep the wind in your hair the sun on your face and most imported keep the

bugs off you teeth( ug) riide in you dreams and when you can not dream of the

rides you were lucky to have tell then we keep you in our prayers and send you

the thoughts of care and love to you both over there

Marty G.

Re: Re:update

Hi gang been gone for a few days still not feeling up to par but iam getting

stronger and stronger every day, I am working in the cycle shop from 10-2

everyday and that just about wipes me out.. Were not to busy but iam finshing

the year end books for our taxes so its really more mental than anything.

Joes been great,hes been off work this past week for his high blood

pressure,and his diabetes. We both been feeling rotten,and i think alot of

this is stress from me being so sick. I did go into adrenal crisis last

night was throwing up and getting dehydrated i had to take 2 zofran (nausea

med) injections and increase the hydrocortisone yesterday.i have talked with

my Endo doc and i will have to learn how to give myself an injection of

hydrocortisone when something like this happens i already know how to do the

injections. But i have to go thru classes and learn when i should take it and

when not to. and then i also have to watch my blood pressure during adrenal

crisis. i can tell when my blood pressure gets to low and then thats time

when i go to the ER.

i am adjusting to this i have just added it to the list of secondary problems

to stills disease. Only this is a little harder because of all the

complications that can arise from this. Heck i thought my eye probelms and

going blind was bad but this is alot worse due to the reason this can lead to

coma or death. so this has been a little more difficult than the rest. i

would rather be alive so i an deal with going blind if it comes down to it. i

love you all and the support and prayers will never be forgotten you all mean

so much to me

love connie

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Connie;

Just keep the wind in your hair the sun on your face and most imported keep the

bugs off you teeth( ug) riide in you dreams and when you can not dream of the

rides you were lucky to have tell then we keep you in our prayers and send you

the thoughts of care and love to you both over there

Marty G.

Re: Re:update

Hi gang been gone for a few days still not feeling up to par but iam getting

stronger and stronger every day, I am working in the cycle shop from 10-2

everyday and that just about wipes me out.. Were not to busy but iam finshing

the year end books for our taxes so its really more mental than anything.

Joes been great,hes been off work this past week for his high blood

pressure,and his diabetes. We both been feeling rotten,and i think alot of

this is stress from me being so sick. I did go into adrenal crisis last

night was throwing up and getting dehydrated i had to take 2 zofran (nausea

med) injections and increase the hydrocortisone yesterday.i have talked with

my Endo doc and i will have to learn how to give myself an injection of

hydrocortisone when something like this happens i already know how to do the

injections. But i have to go thru classes and learn when i should take it and

when not to. and then i also have to watch my blood pressure during adrenal

crisis. i can tell when my blood pressure gets to low and then thats time

when i go to the ER.

i am adjusting to this i have just added it to the list of secondary problems

to stills disease. Only this is a little harder because of all the

complications that can arise from this. Heck i thought my eye probelms and

going blind was bad but this is alot worse due to the reason this can lead to

coma or death. so this has been a little more difficult than the rest. i

would rather be alive so i an deal with going blind if it comes down to it. i

love you all and the support and prayers will never be forgotten you all mean

so much to me

love connie

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Connie;

Just keep the wind in your hair the sun on your face and most imported keep the

bugs off you teeth( ug) riide in you dreams and when you can not dream of the

rides you were lucky to have tell then we keep you in our prayers and send you

the thoughts of care and love to you both over there

Marty G.

Re: Re:update

Hi gang been gone for a few days still not feeling up to par but iam getting

stronger and stronger every day, I am working in the cycle shop from 10-2

everyday and that just about wipes me out.. Were not to busy but iam finshing

the year end books for our taxes so its really more mental than anything.

Joes been great,hes been off work this past week for his high blood

pressure,and his diabetes. We both been feeling rotten,and i think alot of

this is stress from me being so sick. I did go into adrenal crisis last

night was throwing up and getting dehydrated i had to take 2 zofran (nausea

med) injections and increase the hydrocortisone yesterday.i have talked with

my Endo doc and i will have to learn how to give myself an injection of

hydrocortisone when something like this happens i already know how to do the

injections. But i have to go thru classes and learn when i should take it and

when not to. and then i also have to watch my blood pressure during adrenal

crisis. i can tell when my blood pressure gets to low and then thats time

when i go to the ER.

i am adjusting to this i have just added it to the list of secondary problems

to stills disease. Only this is a little harder because of all the

complications that can arise from this. Heck i thought my eye probelms and

going blind was bad but this is alot worse due to the reason this can lead to

coma or death. so this has been a little more difficult than the rest. i

would rather be alive so i an deal with going blind if it comes down to it. i

love you all and the support and prayers will never be forgotten you all mean

so much to me

love connie

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Hey Cat, I wish we could all come and have moving parties. I'm great

at that sort of thing, did it many times myself and for others lol.

There are a couple of members doing the moving around the island of

late. Maybe when you do get all said and done it will be a wonderful

experience to be in a new place, for the new place you have come to

in the past weeks:) Ironic how life throws things in and sometimes

they happen to be blessings in diguise. Hoping at least they will be

smoother for you, and do wish something would turn around with the

therapy though. Maybe our powers of thought can be stronger than we

hope? We will try, Till soon, Love to you, Melt

> greetings y'all

>

> well its been a wee while since i posted, but my e-mail has been

down..i was able to pop into chat thurs for a few minutes..it was

wonderful and frustrating...wonderful cause i got to natter at my

great friends, frustrating cause i have to try and type with the left

hand...

> ah well......here goes

> i have had to stop physio because my husband pardon...EX..has not

lived up to his part of the agreement HE made with my buddy nancy

while i was still out of it...all about money of course...so, i am

terribly upset about not being able to have physio 2 or three times a

week..but at 40 bucks a visit i just can't make it happen. my doctor

is away and so getting a refferal to the hos[ital for physio may be a

long time in the offing, and with the huge healthcare budget

cuts....well i seem to be falling through the cracks...lol..and since

i am 30lbs lighter since all of this i could very likely REALLY fall

thru them thar cracks....

> the worst part is i cannot pay the rent this month...so will have

to get out by the 15th i guess...the kids found me a mobile in salmon

arm but not avaiable til end of feb...so we must pack up here take my

things to their place then move it all again 2 weeks later and i am

still pretty useless, what with the buggered up hand leg and STILL my

back from the fall almost four weeks ago....

> so, my dear friends, things have not been easy, but, hopefully i

will be able to get it all together soon.....

> the nurses no longer have to come to change the dressing cause

FINALLY the arm has healed..the adhesions are killer and the nerve

damage more than i would have wished for ....BUT gibbled as it might

be i still have the damned thing...lol...things could have so easily

gone the other way that it's hard to be a sad sack...not in my nature

to be down for long, but its been a rough old road, and more to get

through in the weeks ahead.

> okay pooped now...lol

> much love, many smiles

> cat

>

>

>

[Guest guest]

Dear Cat,

Thank you for checking in with us sweety! Still a Southpaw

eh?? (I do understand how difficult it is to pick out the words

using the " other " hand. After the shoulder replacement, I had

to type with the right hand (I'm a lefty) and it was not easy!)

So sorry to hear that you have to leave your home. Don't I

remember though that you had to go out and shovel snow,

and that you fell on the ice more than once?? This move could

turn out to be good Cat. I know you don't want to leave " home, "

but, as you have no other choice, I am sure you will make the

best of things...you always do. Could be there are too many

memories there anyhow, and a fresh start will in the long run

make you feel better...in some ways.

So, the " man " didn't keep his word? Many of them don't,

But, you will continue on,

and when you get moved into the mobile at the end of February,

well...you will make that your " home, " and I just know you will

be happy again. Maybe not today, or tomorrow, but you will be

happy, because that is your nature. That's one reason we all love

you so much! You don't like some of the nasty things life hands

out to you, but you keep going, you keep your sense of humor,

and you still care about others. You are a fighter, and a survivor.

Sometimes the " storm clouds " in life get so thick..we get lost, or

can't see where we're going...but then things clear, and once

again we keep moving along (be it ever so slow) on that road to

where we know we will be " okay " once again. Just keep pushing

on through those clouds Cat. Perhaps there will even be some

pleasant surprises waiting for you in your future. I agree with Melt,

sometimes, the way things happen...they are " blessings in disguise. "

Please keep us as updated as you can, and remember, we love you!!

Love and hugs for a sweetheart!

from your friend, Tricia

wega2@...

update

> greetings y'all

>

> well its been a wee while since i posted, but my e-mail has been down..i

was able to pop into chat thurs for a few minutes..it was wonderful and

frustrating...wonderful cause i got to natter at my great friends,

frustrating cause i have to try and type with the left hand...

> ah well......here goes

> i have had to stop physio because my husband pardon...EX..has not lived up

to his part of the agreement HE made with my buddy nancy while i was still

out of it...all about money of course...so, i am terribly upset about not

being able to have physio 2 or three times a week..but at 40 bucks a visit i

just can't make it happen. my doctor is away and so getting a refferal to

the hos[ital for physio may be a long time in the offing, and with the huge

healthcare budget cuts....well i seem to be falling through the

cracks...lol..and since i am 30lbs lighter since all of this i could very

likely REALLY fall thru them thar cracks....

> the worst part is i cannot pay the rent this month...so will have to get

out by the 15th i guess...the kids found me a mobile in salmon arm but not

avaiable til end of feb...so we must pack up here take my things to their

place then move it all again 2 weeks later and i am still pretty useless,

what with the buggered up hand leg and STILL my back from the fall almost

four weeks ago....

> so, my dear friends, things have not been easy, but, hopefully i will be

able to get it all together soon.....

> the nurses no longer have to come to change the dressing cause FINALLY the

arm has healed..the adhesions are killer and the nerve damage more than i

would have wished for ....BUT gibbled as it might be i still have the damned

thing...lol...things could have so easily gone the other way that it's hard

to be a sad sack...not in my nature to be down for long, but its been a

rough old road, and more to get through in the weeks ahead.

> okay pooped now...lol

> much love, many smiles

> cat

>

>

>

[Guest guest]

Dear Cat,

Thank you for checking in with us sweety! Still a Southpaw

eh?? (I do understand how difficult it is to pick out the words

using the " other " hand. After the shoulder replacement, I had

to type with the right hand (I'm a lefty) and it was not easy!)

So sorry to hear that you have to leave your home. Don't I

remember though that you had to go out and shovel snow,

and that you fell on the ice more than once?? This move could

turn out to be good Cat. I know you don't want to leave " home, "

but, as you have no other choice, I am sure you will make the

best of things...you always do. Could be there are too many

memories there anyhow, and a fresh start will in the long run

make you feel better...in some ways.

So, the " man " didn't keep his word? Many of them don't,

But, you will continue on,

and when you get moved into the mobile at the end of February,

well...you will make that your " home, " and I just know you will

be happy again. Maybe not today, or tomorrow, but you will be

happy, because that is your nature. That's one reason we all love

you so much! You don't like some of the nasty things life hands

out to you, but you keep going, you keep your sense of humor,

and you still care about others. You are a fighter, and a survivor.

Sometimes the " storm clouds " in life get so thick..we get lost, or

can't see where we're going...but then things clear, and once

again we keep moving along (be it ever so slow) on that road to

where we know we will be " okay " once again. Just keep pushing

on through those clouds Cat. Perhaps there will even be some

pleasant surprises waiting for you in your future. I agree with Melt,

sometimes, the way things happen...they are " blessings in disguise. "

Please keep us as updated as you can, and remember, we love you!!

Love and hugs for a sweetheart!

from your friend, Tricia

wega2@...

update

> greetings y'all

>

> well its been a wee while since i posted, but my e-mail has been down..i

was able to pop into chat thurs for a few minutes..it was wonderful and

frustrating...wonderful cause i got to natter at my great friends,

frustrating cause i have to try and type with the left hand...

> ah well......here goes

> i have had to stop physio because my husband pardon...EX..has not lived up

to his part of the agreement HE made with my buddy nancy while i was still

out of it...all about money of course...so, i am terribly upset about not

being able to have physio 2 or three times a week..but at 40 bucks a visit i

just can't make it happen. my doctor is away and so getting a refferal to

the hos[ital for physio may be a long time in the offing, and with the huge

healthcare budget cuts....well i seem to be falling through the

cracks...lol..and since i am 30lbs lighter since all of this i could very

likely REALLY fall thru them thar cracks....

> the worst part is i cannot pay the rent this month...so will have to get

out by the 15th i guess...the kids found me a mobile in salmon arm but not

avaiable til end of feb...so we must pack up here take my things to their

place then move it all again 2 weeks later and i am still pretty useless,

what with the buggered up hand leg and STILL my back from the fall almost

four weeks ago....

> so, my dear friends, things have not been easy, but, hopefully i will be

able to get it all together soon.....

> the nurses no longer have to come to change the dressing cause FINALLY the

arm has healed..the adhesions are killer and the nerve damage more than i

would have wished for ....BUT gibbled as it might be i still have the damned

thing...lol...things could have so easily gone the other way that it's hard

to be a sad sack...not in my nature to be down for long, but its been a

rough old road, and more to get through in the weeks ahead.

> okay pooped now...lol

> much love, many smiles

> cat

>

>

>

[Guest guest]

Dear Cat,

Thanks so much for the update. We have all been quite worried about you.

You are definitely a fighter and an inspiration to all of us. I wish you

didn't have so much to deal with. The medical problems surely are enough to

contend with. You are in my thoughts and prayers.

Love,

jatw@...

[Guest guest]

Cat :

just think they can kick ya down but I know ya will not stay there with out a

fight and when you down just think of all the rung ya get to go up and all the

love ya get from the darn things we call the kids so remember to live long and

hard tell we become our brats trouble LOL but really glad to here from you and

seeing that you are on the go one more time and in the end it all works out so

take care and make it worth will

Marty G and we be praying for ye

update

greetings y'all

well its been a wee while since i posted, but my e-mail has been down..i was

able to pop into chat thurs for a few minutes..it was wonderful and

frustrating...wonderful cause i got to natter at my great friends, frustrating

cause i have to try and type with the left hand...

ah well......here goes

i have had to stop physio because my husband pardon...EX..has not lived up to

his part of the agreement HE made with my buddy nancy while i was still out of

it...all about money of course...so, i am terribly upset about not being able to

have physio 2 or three times a week..but at 40 bucks a visit i just can't make

it happen. my doctor is away and so getting a refferal to the hos[ital for

physio may be a long time in the offing, and with the huge healthcare budget

cuts....well i seem to be falling through the cracks...lol..and since i am 30lbs

lighter since all of this i could very likely REALLY fall thru them thar

cracks....

the worst part is i cannot pay the rent this month...so will have to get out by

the 15th i guess...the kids found me a mobile in salmon arm but not avaiable til

end of feb...so we must pack up here take my things to their place then move it

all again 2 weeks later and i am still pretty useless, what with the buggered up

hand leg and STILL my back from the fall almost four weeks ago....

so, my dear friends, things have not been easy, but, hopefully i will be able to

get it all together soon.....

the nurses no longer have to come to change the dressing cause FINALLY the arm

has healed..the adhesions are killer and the nerve damage more than i would have

wished for ....BUT gibbled as it might be i still have the damned

thing...lol...things could have so easily gone the other way that it's hard to

be a sad sack...not in my nature to be down for long, but its been a rough old

road, and more to get through in the weeks ahead.

okay pooped now...lol

much love, many smiles

cat

[Guest guest]

Cat :

just think they can kick ya down but I know ya will not stay there with out a

fight and when you down just think of all the rung ya get to go up and all the

love ya get from the darn things we call the kids so remember to live long and

hard tell we become our brats trouble LOL but really glad to here from you and

seeing that you are on the go one more time and in the end it all works out so

take care and make it worth will

Marty G and we be praying for ye

update

greetings y'all

well its been a wee while since i posted, but my e-mail has been down..i was

able to pop into chat thurs for a few minutes..it was wonderful and

frustrating...wonderful cause i got to natter at my great friends, frustrating

cause i have to try and type with the left hand...

ah well......here goes

i have had to stop physio because my husband pardon...EX..has not lived up to

his part of the agreement HE made with my buddy nancy while i was still out of

it...all about money of course...so, i am terribly upset about not being able to

have physio 2 or three times a week..but at 40 bucks a visit i just can't make

it happen. my doctor is away and so getting a refferal to the hos[ital for

physio may be a long time in the offing, and with the huge healthcare budget

cuts....well i seem to be falling through the cracks...lol..and since i am 30lbs

lighter since all of this i could very likely REALLY fall thru them thar

cracks....

the worst part is i cannot pay the rent this month...so will have to get out by

the 15th i guess...the kids found me a mobile in salmon arm but not avaiable til

end of feb...so we must pack up here take my things to their place then move it

all again 2 weeks later and i am still pretty useless, what with the buggered up

hand leg and STILL my back from the fall almost four weeks ago....

so, my dear friends, things have not been easy, but, hopefully i will be able to

get it all together soon.....

the nurses no longer have to come to change the dressing cause FINALLY the arm

has healed..the adhesions are killer and the nerve damage more than i would have

wished for ....BUT gibbled as it might be i still have the damned

thing...lol...things could have so easily gone the other way that it's hard to

be a sad sack...not in my nature to be down for long, but its been a rough old

road, and more to get through in the weeks ahead.

okay pooped now...lol

much love, many smiles

cat

[Guest guest]

, you are being so strong to hang in there all these months! And it

has been real good to visit and get to know you too. My hopes are this week

will go very fast and you can get some resolution to your pain. I totally

agree with your philosophy of keeping going. It is when all comes together

at the same time that it gets just that bit overwhelming. You have my

admiration and support. Let us know how your week goes, till soon, Luv,

Melt

Update

> Hello Everyone,

>

> I haven't been on my computer much or keeping up with the group. I just

> haven't been able to do everything that I would like to lately.

>

> I have been thinking about all of you. I have missed everyone. I hope

> everyone is feeling wonderful and enjoying the weekend.

>

> I am still working. Thank Goodness! This is a battle but one that I am

> winning so far. I started out pretty rocky. I missed 4 days since

starting

> back to work on Jan. 4. This was because of my awful back pain that I

get.

> I am lucky that I didn't lose my job because of these 4 abscences. I feel

> blessed, someone is definitely looking out for me. I am trying my best to

> grin and bare the pain and keep working.

>

> Going back to work has been good for me mentally and emotionally. However

> physically I am in more pain, I am exhausted and my disease is worse. .

>

> Most of my joints have been stiff, swollen and painful. I feel tired and

> weak most of the time. I have been getting my rash daily and sometimes it

> itches. I am not feeling well at all.

>

> I feel that as long as I can keep a positive attitude I can keep working.

If

> I continue to have faith and hope I beleive that my quality of life can

and

> will get better. I can handle not feeling well as long as I don't feel

down

> or depressed. Feeling sick and down is the combination that ussually

breaks

> me. So far so good. I have managed to avoid this horrible combination.

>

> I have a lot of goals that I would like to accomplish. I can reach them

if

> I take one day at a time and give myself permission to accomplish these

> goals at my own pace. Or should I say at the pace that my body will allow

> me. I have to learn to be more patient with myself and my body.

>

> Since going back to work I have lost 15lbs and without even trying.

Hurray

> only 20 more pounds to go.

>

> I have an appointment on Tuesday with my Rheumy. I finnally have an

> appointment with a new Pain Clinic on Wednesday. I am hoping that my

Rheumy

> will have some ideas that will help me feel better. Plus hopefully the

new

> Pain Clinic will adequately treat my pain. Then I am hoping that I will

> start feeling better again and working won't be so difficult for me.

>

> Thanks for listening and as always thanks for all of the wonderful

support.

> I am going to try and stay in touch with the group as much as I can.

Right

> now I am finding it hard to keep up. I am sure I will become more active

> when I am feeling better. Just know that all of you are in my thoughts and

> prayers. I wish everyone the best.

>

> Love,

>

>

> jatw@...

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

, you are being so strong to hang in there all these months! And it

has been real good to visit and get to know you too. My hopes are this week

will go very fast and you can get some resolution to your pain. I totally

agree with your philosophy of keeping going. It is when all comes together

at the same time that it gets just that bit overwhelming. You have my

admiration and support. Let us know how your week goes, till soon, Luv,

Melt

Update

> Hello Everyone,

>

> I haven't been on my computer much or keeping up with the group. I just

> haven't been able to do everything that I would like to lately.

>

> I have been thinking about all of you. I have missed everyone. I hope

> everyone is feeling wonderful and enjoying the weekend.

>

> I am still working. Thank Goodness! This is a battle but one that I am

> winning so far. I started out pretty rocky. I missed 4 days since

starting

> back to work on Jan. 4. This was because of my awful back pain that I

get.

> I am lucky that I didn't lose my job because of these 4 abscences. I feel

> blessed, someone is definitely looking out for me. I am trying my best to

> grin and bare the pain and keep working.

>

> Going back to work has been good for me mentally and emotionally. However

> physically I am in more pain, I am exhausted and my disease is worse. .

>

> Most of my joints have been stiff, swollen and painful. I feel tired and

> weak most of the time. I have been getting my rash daily and sometimes it

> itches. I am not feeling well at all.

>

> I feel that as long as I can keep a positive attitude I can keep working.

If

> I continue to have faith and hope I beleive that my quality of life can

and

> will get better. I can handle not feeling well as long as I don't feel

down

> or depressed. Feeling sick and down is the combination that ussually

breaks

> me. So far so good. I have managed to avoid this horrible combination.

>

> I have a lot of goals that I would like to accomplish. I can reach them

if

> I take one day at a time and give myself permission to accomplish these

> goals at my own pace. Or should I say at the pace that my body will allow

> me. I have to learn to be more patient with myself and my body.

>

> Since going back to work I have lost 15lbs and without even trying.

Hurray

> only 20 more pounds to go.

>

> I have an appointment on Tuesday with my Rheumy. I finnally have an

> appointment with a new Pain Clinic on Wednesday. I am hoping that my

Rheumy

> will have some ideas that will help me feel better. Plus hopefully the

new

> Pain Clinic will adequately treat my pain. Then I am hoping that I will

> start feeling better again and working won't be so difficult for me.

>

> Thanks for listening and as always thanks for all of the wonderful

support.

> I am going to try and stay in touch with the group as much as I can.

Right

> now I am finding it hard to keep up. I am sure I will become more active

> when I am feeling better. Just know that all of you are in my thoughts and

> prayers. I wish everyone the best.

>

> Love,

>

>

> jatw@...

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Dear ,

You are to be commended!!! You have a wonderful positive attitude, and

you are such an inspiration!!!!!!!

Hopefully, you get those pain meds you need to make life less painful.

Continue to hang in there my friend, I am thinking of you..and you have

a special place in my heart, and my prayers.

Love you, tricia

-- Update

Hello Everyone,

I haven't been on my computer much or keeping up with the group. I just

haven't been able to do everything that I would like to lately.

I have been thinking about all of you. I have missed everyone. I hope

everyone is feeling wonderful and enjoying the weekend.

I am still working. Thank Goodness! This is a battle but one that I am

winning so far. I started out pretty rocky. I missed 4 days since starting

back to work on Jan. 4. This was because of my awful back pain that I get.

I am lucky that I didn't lose my job because of these 4 abscences. I feel

blessed, someone is definitely looking out for me. I am trying my best to

grin and bare the pain and keep working.

Going back to work has been good for me mentally and emotionally. However

physically I am in more pain, I am exhausted and my disease is worse. .

Most of my joints have been stiff, swollen and painful. I feel tired and

weak most of the time. I have been getting my rash daily and sometimes it

itches. I am not feeling well at all.

I feel that as long as I can keep a positive attitude I can keep working. If

I continue to have faith and hope I beleive that my quality of life can and

will get better. I can handle not feeling well as long as I don't feel down

or depressed. Feeling sick and down is the combination that ussually breaks

me. So far so good. I have managed to avoid this horrible combination.

I have a lot of goals that I would like to accomplish. I can reach them if

I take one day at a time and give myself permission to accomplish these

goals at my own pace. Or should I say at the pace that my body will allow

me. I have to learn to be more patient with myself and my body.

Since going back to work I have lost 15lbs and without even trying. Hurray

only 20 more pounds to go.

I have an appointment on Tuesday with my Rheumy. I finnally have an

appointment with a new Pain Clinic on Wednesday. I am hoping that my Rheumy

will have some ideas that will help me feel better. Plus hopefully the new

Pain Clinic will adequately treat my pain. Then I am hoping that I will

start feeling better again and working won't be so difficult for me.

Thanks for listening and as always thanks for all of the wonderful support.

I am going to try and stay in touch with the group as much as I can. Right

now I am finding it hard to keep up. I am sure I will become more active

when I am feeling better. Just know that all of you are in my thoughts and

prayers. I wish everyone the best.

Love,

jatw@...

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Dear ,

You are to be commended!!! You have a wonderful positive attitude, and

you are such an inspiration!!!!!!!

Hopefully, you get those pain meds you need to make life less painful.

Continue to hang in there my friend, I am thinking of you..and you have

a special place in my heart, and my prayers.

Love you, tricia

-- Update

Hello Everyone,

I haven't been on my computer much or keeping up with the group. I just

haven't been able to do everything that I would like to lately.

I have been thinking about all of you. I have missed everyone. I hope

everyone is feeling wonderful and enjoying the weekend.

I am still working. Thank Goodness! This is a battle but one that I am

winning so far. I started out pretty rocky. I missed 4 days since starting

back to work on Jan. 4. This was because of my awful back pain that I get.

I am lucky that I didn't lose my job because of these 4 abscences. I feel

blessed, someone is definitely looking out for me. I am trying my best to

grin and bare the pain and keep working.

Going back to work has been good for me mentally and emotionally. However

physically I am in more pain, I am exhausted and my disease is worse. .

Most of my joints have been stiff, swollen and painful. I feel tired and

weak most of the time. I have been getting my rash daily and sometimes it

itches. I am not feeling well at all.

I feel that as long as I can keep a positive attitude I can keep working. If

I continue to have faith and hope I beleive that my quality of life can and

will get better. I can handle not feeling well as long as I don't feel down

or depressed. Feeling sick and down is the combination that ussually breaks

me. So far so good. I have managed to avoid this horrible combination.

I have a lot of goals that I would like to accomplish. I can reach them if

I take one day at a time and give myself permission to accomplish these

goals at my own pace. Or should I say at the pace that my body will allow

me. I have to learn to be more patient with myself and my body.

Since going back to work I have lost 15lbs and without even trying. Hurray

only 20 more pounds to go.

I have an appointment on Tuesday with my Rheumy. I finnally have an

appointment with a new Pain Clinic on Wednesday. I am hoping that my Rheumy

will have some ideas that will help me feel better. Plus hopefully the new

Pain Clinic will adequately treat my pain. Then I am hoping that I will

start feeling better again and working won't be so difficult for me.

Thanks for listening and as always thanks for all of the wonderful support.

I am going to try and stay in touch with the group as much as I can. Right

now I am finding it hard to keep up. I am sure I will become more active

when I am feeling better. Just know that all of you are in my thoughts and

prayers. I wish everyone the best.

Love,

jatw@...

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Dear ,

You are to be commended!!! You have a wonderful positive attitude, and

you are such an inspiration!!!!!!!

Hopefully, you get those pain meds you need to make life less painful.

Continue to hang in there my friend, I am thinking of you..and you have

a special place in my heart, and my prayers.

Love you, tricia

-- Update

Hello Everyone,

I haven't been on my computer much or keeping up with the group. I just

haven't been able to do everything that I would like to lately.

I have been thinking about all of you. I have missed everyone. I hope

everyone is feeling wonderful and enjoying the weekend.

I am still working. Thank Goodness! This is a battle but one that I am

winning so far. I started out pretty rocky. I missed 4 days since starting

back to work on Jan. 4. This was because of my awful back pain that I get.

I am lucky that I didn't lose my job because of these 4 abscences. I feel

blessed, someone is definitely looking out for me. I am trying my best to

grin and bare the pain and keep working.

Going back to work has been good for me mentally and emotionally. However

physically I am in more pain, I am exhausted and my disease is worse. .

Most of my joints have been stiff, swollen and painful. I feel tired and

weak most of the time. I have been getting my rash daily and sometimes it

itches. I am not feeling well at all.

I feel that as long as I can keep a positive attitude I can keep working. If

I continue to have faith and hope I beleive that my quality of life can and

will get better. I can handle not feeling well as long as I don't feel down

or depressed. Feeling sick and down is the combination that ussually breaks

me. So far so good. I have managed to avoid this horrible combination.

I have a lot of goals that I would like to accomplish. I can reach them if

I take one day at a time and give myself permission to accomplish these

goals at my own pace. Or should I say at the pace that my body will allow

me. I have to learn to be more patient with myself and my body.

Since going back to work I have lost 15lbs and without even trying. Hurray

only 20 more pounds to go.

I have an appointment on Tuesday with my Rheumy. I finnally have an

appointment with a new Pain Clinic on Wednesday. I am hoping that my Rheumy

will have some ideas that will help me feel better. Plus hopefully the new

Pain Clinic will adequately treat my pain. Then I am hoping that I will

start feeling better again and working won't be so difficult for me.

Thanks for listening and as always thanks for all of the wonderful support.

I am going to try and stay in touch with the group as much as I can. Right

now I am finding it hard to keep up. I am sure I will become more active

when I am feeling better. Just know that all of you are in my thoughts and

prayers. I wish everyone the best.

Love,

jatw@...

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

,

you always amaze me, and like you, have changed my attitude on my outlook with

this disease, and I swear it's helping, really. You have come so far, and to

keep in touch with the group is a wonderful thing also, you are never forgotten

here, no matter how busy that you get. It is wonderful to hear you and see

your positive attitude. I am hoping that your new pain clinic works out as well

for you friend. I know how devastating the results from the last one, were to

you. , be well and keep us the wonderful work and the success in such a

short time. Love you.

Love, Sue #2

[Guest guest]

,

you always amaze me, and like you, have changed my attitude on my outlook with

this disease, and I swear it's helping, really. You have come so far, and to

keep in touch with the group is a wonderful thing also, you are never forgotten

here, no matter how busy that you get. It is wonderful to hear you and see

your positive attitude. I am hoping that your new pain clinic works out as well

for you friend. I know how devastating the results from the last one, were to

you. , be well and keep us the wonderful work and the success in such a

short time. Love you.

Love, Sue #2

[Guest guest]

,

you always amaze me, and like you, have changed my attitude on my outlook with

this disease, and I swear it's helping, really. You have come so far, and to

keep in touch with the group is a wonderful thing also, you are never forgotten

here, no matter how busy that you get. It is wonderful to hear you and see

your positive attitude. I am hoping that your new pain clinic works out as well

for you friend. I know how devastating the results from the last one, were to

you. , be well and keep us the wonderful work and the success in such a

short time. Love you.

Love, Sue #2

[Guest guest]

Dear Kim,

So glad you are back home! There really is no place like home is there??

So sorry to read that you were in the hospital while trying to get some

business ends tied up.

Sounds like you deserve a much needed rest Kim. Please rest now as much

as possible. Know we love you and we care.

Your friend, ~~tricia~~

WWW (We Will Win)

-- Update

Hi to all my fellow stilligans!! I hope everyone is doing well. I have

really had a hard time both physically and emotionally. I went to Va Beach

to do some work for my parents business and ended up stuck there in the

hospital. It was terrible. None of the doctors knew me or my case and it was

almost like starting from scratch. Even though they consulted my doctors in

Charlottesville...they all had their own ideas. Anyway, I'm home now and

doing much better. I'm soooo glad to be back and feeling better. I was

supposed to see Dr. Cush on Monday but was advised not to travel right now..

until I've had more good days. So, I'll be having a phone consultation with

him instead.

I knew I was pushing it...I was drinking 2 pots of coffee a day just to keep

going...I know that's not good, but I don't know what else I'm supposed to

do. I have a 2yr old to take care of and a daughter. I can't afford a nanny

and I have no family where I live. I can't just stay in bed all day. Also I

telecommute for my parents business and I need the income so I can't just

stop that as well. My husband is still working two jobs....so it's like

being a single parent. Anyway, I'm sure you all don't want to hear all about

my problems and they are probably nothing compared to what some of you are

going through. I haven't been on line or read any email lately so I have no

idea how everyone is. I see some subjects about the conference. I hope that

s still on. I will go back and try to read some.

Bob, I did get your brochures and they are fabulous!!!!!!!! So informative

and it's the right information...you know what I mean. You included what was

important to know for those that have never heard of Still's in a way they

would understand. They are just perfect and I can't wait to give a few to my

doctors! I can tell you put a lot of time, thought and effort into them. You

did an outstanding job. This group is lucky to have you.

Well, I'm going to go back to bed for a bit. I probably won't be real active

for a while but I will try to pop in now and then. Rest is at the top of my

list for now.

Take good care! Love you All,

Kim Daves (Charlottesville, VA)

[Guest guest]

Dear ,

I am thrilled that the Remicade seems to be helping you!! You sound so

much better than..say..last year this time. You are a trooper that's for

sure!

Is there any possibility that you would be thinking of making it to the

Vegas

Stills conference??

You will be relieved when that surgery is over and done with. I remember

back

when I had it done for the same reasons you are, and it was such a great

relief

to have it over and done with. Many things in life were better afterwards.

Thank you for the update. It's really nice when someone gives an update from

time to time, so we don't start to worry that something really bad has

possibly

happened to them.

Love, hugs, prayers

Your friend~~tricia~~

-- Update

Hey there all, I am just dropping a quick note to tell you that I have been

ok. I sure do love that Remicade. I did ok with that head thing I got the

last time I went in for a IV. And now wouldn't you know it that it is time

for another one I am getting another head cold. That is ok I will be well

enough to get through this too. My next one is on the 4th. My doctor wanted

me to call and let him know when I " run out " of Remicade and so I called him

on Friday. I ran out about three weeks ago. Yesterday they called and he is

upping mine to 5 units. I am not sure how they are measuring it. So asked

how much I was getting before and she said that I was getting 3. So that is

almost twice as much. I hope it carries me through the end. He said if this

does not make it all the way, they will shorten my time from IV to IV. As

far as the rest I am ok. Still hurting but a lot less than before. Just a

few more months and I can go get a hysterectomy and be done with my cycles

and how they make me feel. I hope that everybody is doing good.

Do you ICQ? I do! My number is 145599444. Drop me a note:)

How about Yahoo IM, I am bigred82799.

Also find me on MSN Messenger with my email address or Bigred.

~~I HOPE YOU DANCE~~

crimsons@...

[Guest guest]

Oh Kate, we are so very sorry your birthday wishes are late. Happy Birthday

dear. Since you are 18 all year I guess it's not tooooo late? lol. Rest up

today and you will be better to do your paper. And don't frett too much

about one missed appointment. Do you have a daily planner? That might help

or silly as it sounds one of my sister puts a calender in her bathroom so

she sees her appointments each day while dressing. Good luck with the week

and talk with you soon, Patty

update

> Hi everyone. I hope you are all having a nice day, and those that arent

so

> well, my thoughts are with you and get well soon!

>

> I thought id send an update about this week, which has been pretty hectic!

> It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

> pretty busy! Last night some friends and I hired a mini bus and we went

to

> a big nightclub out of town...which was a lot of fun but I am feeling so

> 'overdone' today! I can hardly walk today, it must have been my heels

> lol. In the midst of things I really feel terrible about it, but i missed

a

> doctors appointment, I just dont know how it slipped my mind, ive been

doing

> that a lot lately, forgetting and misplacing things, its rather worrying,

i

> think it may be the increase in pred? Im not sure.

>

> So i feel v. silly for overdoing things this weekend, since i also have a

> big piece of work due in on friday, and i really do not know how i am

going

> to manage it, it takes so much for me to be able to sit down and

concentrate

> hard enough to get things done properly!

>

> , Kim, Marty, Terri...all those who are not very well at the moment

> (sorry if i missed anyone!) im thinking of you and wish you well...till

> soon, lots of love, Kate xxx

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>