Update

[Guest guest]

Oh Kate, we are so very sorry your birthday wishes are late. Happy Birthday

dear. Since you are 18 all year I guess it's not tooooo late? lol. Rest up

today and you will be better to do your paper. And don't frett too much

about one missed appointment. Do you have a daily planner? That might help

or silly as it sounds one of my sister puts a calender in her bathroom so

she sees her appointments each day while dressing. Good luck with the week

and talk with you soon, Patty

update

> Hi everyone. I hope you are all having a nice day, and those that arent

so

> well, my thoughts are with you and get well soon!

>

> I thought id send an update about this week, which has been pretty hectic!

> It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

> pretty busy! Last night some friends and I hired a mini bus and we went

to

> a big nightclub out of town...which was a lot of fun but I am feeling so

> 'overdone' today! I can hardly walk today, it must have been my heels

> lol. In the midst of things I really feel terrible about it, but i missed

a

> doctors appointment, I just dont know how it slipped my mind, ive been

doing

> that a lot lately, forgetting and misplacing things, its rather worrying,

i

> think it may be the increase in pred? Im not sure.

>

> So i feel v. silly for overdoing things this weekend, since i also have a

> big piece of work due in on friday, and i really do not know how i am

going

> to manage it, it takes so much for me to be able to sit down and

concentrate

> hard enough to get things done properly!

>

> , Kim, Marty, Terri...all those who are not very well at the moment

> (sorry if i missed anyone!) im thinking of you and wish you well...till

> soon, lots of love, Kate xxx

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Oh Kate, we are so very sorry your birthday wishes are late. Happy Birthday

dear. Since you are 18 all year I guess it's not tooooo late? lol. Rest up

today and you will be better to do your paper. And don't frett too much

about one missed appointment. Do you have a daily planner? That might help

or silly as it sounds one of my sister puts a calender in her bathroom so

she sees her appointments each day while dressing. Good luck with the week

and talk with you soon, Patty

update

> Hi everyone. I hope you are all having a nice day, and those that arent

so

> well, my thoughts are with you and get well soon!

>

> I thought id send an update about this week, which has been pretty hectic!

> It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

> pretty busy! Last night some friends and I hired a mini bus and we went

to

> a big nightclub out of town...which was a lot of fun but I am feeling so

> 'overdone' today! I can hardly walk today, it must have been my heels

> lol. In the midst of things I really feel terrible about it, but i missed

a

> doctors appointment, I just dont know how it slipped my mind, ive been

doing

> that a lot lately, forgetting and misplacing things, its rather worrying,

i

> think it may be the increase in pred? Im not sure.

>

> So i feel v. silly for overdoing things this weekend, since i also have a

> big piece of work due in on friday, and i really do not know how i am

going

> to manage it, it takes so much for me to be able to sit down and

concentrate

> hard enough to get things done properly!

>

> , Kim, Marty, Terri...all those who are not very well at the moment

> (sorry if i missed anyone!) im thinking of you and wish you well...till

> soon, lots of love, Kate xxx

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Dear Kate,

So happy you enjoyed a good time with your friends, and had a

happy 18th!!

But, missing your doctors appointment...oh.oh. Patty had a great

suggestion. Do you have your own calendar for the year?? I have

one right next to the phone, and I write down appointments as soon

as I get them, and then each morning I look over the calendar...well,

I also look at it before I go to bed to make sure I don't miss an appoint-

ment. Just a suggestion, but it works for me!

One more hint sweety...I *know* you want to wear those " high heels, "

but somewhere down the road you will wish you hadn't. I know I sound

like a mean old witch, but it's the truth. I used to have some of the cutest

heels. One pair was my favorite, they had rhinestones on then. (only a few)

and they were so cute!! I sadly gave all of my high heeled shoes to my

sister,

as she wore the same size. It sounds dumb, but...I felt so bad, but I knew I

had to do it for my feet. You can wear " heels " of a sort if they are more

chunky, "

and not real thin narrow little things. I know it's not the same...but when

our feet

hurt, we hurt all over!

Your recent problem with forgetting and misplacing things could be that

there

is just so much going on all at once, and that's probably why you missed the

doctor's appointment...so much going on.

Have fun honey, but always remember to take it just a " wee bit easy. "

Love and hugs,

your friend, ~tricia~

-- update

Hi everyone. I hope you are all having a nice day, and those that arent so

well, my thoughts are with you and get well soon!

I thought id send an update about this week, which has been pretty hectic!

It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

pretty busy! Last night some friends and I hired a mini bus and we went to

a big nightclub out of town...which was a lot of fun but I am feeling so

'overdone' today! I can hardly walk today, it must have been my heels

lol. In the midst of things I really feel terrible about it, but i missed a

doctors appointment, I just dont know how it slipped my mind, ive been doing

that a lot lately, forgetting and misplacing things, its rather worrying, i

think it may be the increase in pred? Im not sure.

So i feel v. silly for overdoing things this weekend, since i also have a

big piece of work due in on friday, and i really do not know how i am going

to manage it, it takes so much for me to be able to sit down and concentrate

hard enough to get things done properly!

, Kim, Marty, Terri...all those who are not very well at the moment

(sorry if i missed anyone!) im thinking of you and wish you well...till

soon, lots of love, Kate xxx

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Dear Kate,

So happy you enjoyed a good time with your friends, and had a

happy 18th!!

But, missing your doctors appointment...oh.oh. Patty had a great

suggestion. Do you have your own calendar for the year?? I have

one right next to the phone, and I write down appointments as soon

as I get them, and then each morning I look over the calendar...well,

I also look at it before I go to bed to make sure I don't miss an appoint-

ment. Just a suggestion, but it works for me!

One more hint sweety...I *know* you want to wear those " high heels, "

but somewhere down the road you will wish you hadn't. I know I sound

like a mean old witch, but it's the truth. I used to have some of the cutest

heels. One pair was my favorite, they had rhinestones on then. (only a few)

and they were so cute!! I sadly gave all of my high heeled shoes to my

sister,

as she wore the same size. It sounds dumb, but...I felt so bad, but I knew I

had to do it for my feet. You can wear " heels " of a sort if they are more

chunky, "

and not real thin narrow little things. I know it's not the same...but when

our feet

hurt, we hurt all over!

Your recent problem with forgetting and misplacing things could be that

there

is just so much going on all at once, and that's probably why you missed the

doctor's appointment...so much going on.

Have fun honey, but always remember to take it just a " wee bit easy. "

Love and hugs,

your friend, ~tricia~

-- update

Hi everyone. I hope you are all having a nice day, and those that arent so

well, my thoughts are with you and get well soon!

I thought id send an update about this week, which has been pretty hectic!

It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

pretty busy! Last night some friends and I hired a mini bus and we went to

a big nightclub out of town...which was a lot of fun but I am feeling so

'overdone' today! I can hardly walk today, it must have been my heels

lol. In the midst of things I really feel terrible about it, but i missed a

doctors appointment, I just dont know how it slipped my mind, ive been doing

that a lot lately, forgetting and misplacing things, its rather worrying, i

think it may be the increase in pred? Im not sure.

So i feel v. silly for overdoing things this weekend, since i also have a

big piece of work due in on friday, and i really do not know how i am going

to manage it, it takes so much for me to be able to sit down and concentrate

hard enough to get things done properly!

, Kim, Marty, Terri...all those who are not very well at the moment

(sorry if i missed anyone!) im thinking of you and wish you well...till

soon, lots of love, Kate xxx

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Dear Kate,

So happy you enjoyed a good time with your friends, and had a

happy 18th!!

But, missing your doctors appointment...oh.oh. Patty had a great

suggestion. Do you have your own calendar for the year?? I have

one right next to the phone, and I write down appointments as soon

as I get them, and then each morning I look over the calendar...well,

I also look at it before I go to bed to make sure I don't miss an appoint-

ment. Just a suggestion, but it works for me!

One more hint sweety...I *know* you want to wear those " high heels, "

but somewhere down the road you will wish you hadn't. I know I sound

like a mean old witch, but it's the truth. I used to have some of the cutest

heels. One pair was my favorite, they had rhinestones on then. (only a few)

and they were so cute!! I sadly gave all of my high heeled shoes to my

sister,

as she wore the same size. It sounds dumb, but...I felt so bad, but I knew I

had to do it for my feet. You can wear " heels " of a sort if they are more

chunky, "

and not real thin narrow little things. I know it's not the same...but when

our feet

hurt, we hurt all over!

Your recent problem with forgetting and misplacing things could be that

there

is just so much going on all at once, and that's probably why you missed the

doctor's appointment...so much going on.

Have fun honey, but always remember to take it just a " wee bit easy. "

Love and hugs,

your friend, ~tricia~

-- update

Hi everyone. I hope you are all having a nice day, and those that arent so

well, my thoughts are with you and get well soon!

I thought id send an update about this week, which has been pretty hectic!

It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

pretty busy! Last night some friends and I hired a mini bus and we went to

a big nightclub out of town...which was a lot of fun but I am feeling so

'overdone' today! I can hardly walk today, it must have been my heels

lol. In the midst of things I really feel terrible about it, but i missed a

doctors appointment, I just dont know how it slipped my mind, ive been doing

that a lot lately, forgetting and misplacing things, its rather worrying, i

think it may be the increase in pred? Im not sure.

So i feel v. silly for overdoing things this weekend, since i also have a

big piece of work due in on friday, and i really do not know how i am going

to manage it, it takes so much for me to be able to sit down and concentrate

hard enough to get things done properly!

, Kim, Marty, Terri...all those who are not very well at the moment

(sorry if i missed anyone!) im thinking of you and wish you well...till

soon, lots of love, Kate xxx

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Thankyou for the birthday wishes, and the help with remembering things ect.

I do use a diary and daily planner, i knew i had to go, i guess it was just

one time that i slipped up, and i didnt sleep very well that night for

worrying about it! I feel so bad. I just hope i can get a new appointment

sooner rather than later. I'll keep you posted...(hope to chat soon!). Love

Kate x

>

>Reply-To: Stillsdisease

>To: <Stillsdisease >

>Subject: Re: update

>Date: Sun, 14 Apr 2002 11:19:58 -0500 (Central Daylight Time)

>

>Dear Kate,

>

>So happy you enjoyed a good time with your friends, and had a

>happy 18th!!

>

>But, missing your doctors appointment...oh.oh. Patty had a great

>suggestion. Do you have your own calendar for the year?? I have

>one right next to the phone, and I write down appointments as soon

>as I get them, and then each morning I look over the calendar...well,

>I also look at it before I go to bed to make sure I don't miss an appoint-

>ment. Just a suggestion, but it works for me!

>

>One more hint sweety...I *know* you want to wear those " high heels, "

>but somewhere down the road you will wish you hadn't. I know I sound

>like a mean old witch, but it's the truth. I used to have some of the

>cutest

>heels. One pair was my favorite, they had rhinestones on then. (only a few)

>and they were so cute!! I sadly gave all of my high heeled shoes to my

>sister,

>as she wore the same size. It sounds dumb, but...I felt so bad, but I knew

>I

>had to do it for my feet. You can wear " heels " of a sort if they are more

>chunky, "

>and not real thin narrow little things. I know it's not the same...but when

>our feet

>hurt, we hurt all over!

>

>Your recent problem with forgetting and misplacing things could be that

>there

>is just so much going on all at once, and that's probably why you missed

>the

>doctor's appointment...so much going on.

>

>Have fun honey, but always remember to take it just a " wee bit easy. "

>

>Love and hugs,

>your friend, ~tricia~

>

>

>-- update

>

>Hi everyone. I hope you are all having a nice day, and those that arent so

>well, my thoughts are with you and get well soon!

>

>I thought id send an update about this week, which has been pretty hectic!

>It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

>pretty busy! Last night some friends and I hired a mini bus and we went to

>a big nightclub out of town...which was a lot of fun but I am feeling so

>'overdone' today! I can hardly walk today, it must have been my heels

>lol. In the midst of things I really feel terrible about it, but i missed a

>doctors appointment, I just dont know how it slipped my mind, ive been

>doing

>

>that a lot lately, forgetting and misplacing things, its rather worrying, i

>think it may be the increase in pred? Im not sure.

>

>So i feel v. silly for overdoing things this weekend, since i also have a

>big piece of work due in on friday, and i really do not know how i am going

>to manage it, it takes so much for me to be able to sit down and

>concentrate

>

>hard enough to get things done properly!

>

>, Kim, Marty, Terri...all those who are not very well at the moment

>(sorry if i missed anyone!) im thinking of you and wish you well...till

>soon, lots of love, Kate xxx

>

>_________________________________________________________________

>Join the world’s largest e-mail service with MSN Hotmail.

>http://www.hotmail.com

>

>

>

>Visit the Still's Disease Message Board

>http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Thankyou for the birthday wishes, and the help with remembering things ect.

I do use a diary and daily planner, i knew i had to go, i guess it was just

one time that i slipped up, and i didnt sleep very well that night for

worrying about it! I feel so bad. I just hope i can get a new appointment

sooner rather than later. I'll keep you posted...(hope to chat soon!). Love

Kate x

>

>Reply-To: Stillsdisease

>To: <Stillsdisease >

>Subject: Re: update

>Date: Sun, 14 Apr 2002 11:19:58 -0500 (Central Daylight Time)

>

>Dear Kate,

>

>So happy you enjoyed a good time with your friends, and had a

>happy 18th!!

>

>But, missing your doctors appointment...oh.oh. Patty had a great

>suggestion. Do you have your own calendar for the year?? I have

>one right next to the phone, and I write down appointments as soon

>as I get them, and then each morning I look over the calendar...well,

>I also look at it before I go to bed to make sure I don't miss an appoint-

>ment. Just a suggestion, but it works for me!

>

>One more hint sweety...I *know* you want to wear those " high heels, "

>but somewhere down the road you will wish you hadn't. I know I sound

>like a mean old witch, but it's the truth. I used to have some of the

>cutest

>heels. One pair was my favorite, they had rhinestones on then. (only a few)

>and they were so cute!! I sadly gave all of my high heeled shoes to my

>sister,

>as she wore the same size. It sounds dumb, but...I felt so bad, but I knew

>I

>had to do it for my feet. You can wear " heels " of a sort if they are more

>chunky, "

>and not real thin narrow little things. I know it's not the same...but when

>our feet

>hurt, we hurt all over!

>

>Your recent problem with forgetting and misplacing things could be that

>there

>is just so much going on all at once, and that's probably why you missed

>the

>doctor's appointment...so much going on.

>

>Have fun honey, but always remember to take it just a " wee bit easy. "

>

>Love and hugs,

>your friend, ~tricia~

>

>

>-- update

>

>Hi everyone. I hope you are all having a nice day, and those that arent so

>well, my thoughts are with you and get well soon!

>

>I thought id send an update about this week, which has been pretty hectic!

>It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

>pretty busy! Last night some friends and I hired a mini bus and we went to

>a big nightclub out of town...which was a lot of fun but I am feeling so

>'overdone' today! I can hardly walk today, it must have been my heels

>lol. In the midst of things I really feel terrible about it, but i missed a

>doctors appointment, I just dont know how it slipped my mind, ive been

>doing

>

>that a lot lately, forgetting and misplacing things, its rather worrying, i

>think it may be the increase in pred? Im not sure.

>

>So i feel v. silly for overdoing things this weekend, since i also have a

>big piece of work due in on friday, and i really do not know how i am going

>to manage it, it takes so much for me to be able to sit down and

>concentrate

>

>hard enough to get things done properly!

>

>, Kim, Marty, Terri...all those who are not very well at the moment

>(sorry if i missed anyone!) im thinking of you and wish you well...till

>soon, lots of love, Kate xxx

>

>_________________________________________________________________

>Join the world’s largest e-mail service with MSN Hotmail.

>http://www.hotmail.com

>

>

>

>Visit the Still's Disease Message Board

>http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Thankyou for the birthday wishes, and the help with remembering things ect.

I do use a diary and daily planner, i knew i had to go, i guess it was just

one time that i slipped up, and i didnt sleep very well that night for

worrying about it! I feel so bad. I just hope i can get a new appointment

sooner rather than later. I'll keep you posted...(hope to chat soon!). Love

Kate x

>

>Reply-To: Stillsdisease

>To: <Stillsdisease >

>Subject: Re: update

>Date: Sun, 14 Apr 2002 11:19:58 -0500 (Central Daylight Time)

>

>Dear Kate,

>

>So happy you enjoyed a good time with your friends, and had a

>happy 18th!!

>

>But, missing your doctors appointment...oh.oh. Patty had a great

>suggestion. Do you have your own calendar for the year?? I have

>one right next to the phone, and I write down appointments as soon

>as I get them, and then each morning I look over the calendar...well,

>I also look at it before I go to bed to make sure I don't miss an appoint-

>ment. Just a suggestion, but it works for me!

>

>One more hint sweety...I *know* you want to wear those " high heels, "

>but somewhere down the road you will wish you hadn't. I know I sound

>like a mean old witch, but it's the truth. I used to have some of the

>cutest

>heels. One pair was my favorite, they had rhinestones on then. (only a few)

>and they were so cute!! I sadly gave all of my high heeled shoes to my

>sister,

>as she wore the same size. It sounds dumb, but...I felt so bad, but I knew

>I

>had to do it for my feet. You can wear " heels " of a sort if they are more

>chunky, "

>and not real thin narrow little things. I know it's not the same...but when

>our feet

>hurt, we hurt all over!

>

>Your recent problem with forgetting and misplacing things could be that

>there

>is just so much going on all at once, and that's probably why you missed

>the

>doctor's appointment...so much going on.

>

>Have fun honey, but always remember to take it just a " wee bit easy. "

>

>Love and hugs,

>your friend, ~tricia~

>

>

>-- update

>

>Hi everyone. I hope you are all having a nice day, and those that arent so

>well, my thoughts are with you and get well soon!

>

>I thought id send an update about this week, which has been pretty hectic!

>It was my 18th birthday on April 12th (Fri) and so my birthday weekend was

>pretty busy! Last night some friends and I hired a mini bus and we went to

>a big nightclub out of town...which was a lot of fun but I am feeling so

>'overdone' today! I can hardly walk today, it must have been my heels

>lol. In the midst of things I really feel terrible about it, but i missed a

>doctors appointment, I just dont know how it slipped my mind, ive been

>doing

>

>that a lot lately, forgetting and misplacing things, its rather worrying, i

>think it may be the increase in pred? Im not sure.

>

>So i feel v. silly for overdoing things this weekend, since i also have a

>big piece of work due in on friday, and i really do not know how i am going

>to manage it, it takes so much for me to be able to sit down and

>concentrate

>

>hard enough to get things done properly!

>

>, Kim, Marty, Terri...all those who are not very well at the moment

>(sorry if i missed anyone!) im thinking of you and wish you well...till

>soon, lots of love, Kate xxx

>

>_________________________________________________________________

>Join the world’s largest e-mail service with MSN Hotmail.

>http://www.hotmail.com

>

>

>

>Visit the Still's Disease Message Board

>http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Steph,

my heart goes out to you. It has to be so difficult as a single mom. Raising a special needs kid is hard for two parents to do together; it has to be so much harder as a single parent.

It's hard when we see our kids as no one else does...the soft side, the scared side. They so often have walls up everywhere but at home....

Hang in there. Good luck with the new doctor...

mari

-----Original Message-----From: likeawillow Sent: Monday, March 17, 2003 11:38 PMTo: autism-aspergers Subject: UpdateHey all,Sorry to have been so silent as of late, as usual life is a zoo. I keep expecting things to get better, quieter, slower .... and what happens? They get more confusing, louder and faster ... go figure.I finally found out when goes to court for the misdemeanor charges from December (kicking the principal in the course of being carried into the time out room, resisting getting the handcuffs put on, kicking the squad car in the midst of a panic attack). The pretrial conference will be April 8 at 9:30 a.m. CST. has FINALLY got an appointment with a new therapist. First is was going to be one person and then his dads insurance wouldnt pay for that guy, then another and the insurance wouldnt pay for him either. Finally, this morning they called and said that this other guy will see him. HOORAY! Ive seen this guy in the past, for PTSD, he is VERY familiar with the goings on within the family - knows both dad and I - and has known since he was in like 4th grade or before. It is to him that I will appeal for an evaluation for AS. More and more people that work with are expressing that they, too, see AS qualities in , including the intervention/homeschool teacher hes had for the past three weeks. He IS getting work done, not as fast as the school would l ike (they want him to keep up with the kids at school) but he IS getting work completed and in. She is fabulous with him. If he is hyper and needs to pace, she lets him. H e will dictate the answers to her questions (and 99% of the time they are correct) and she says she doesnt care if he is pacing, just so long as he his working.'s probation worker doesnt think things look real good for - in December the goals were for him to complete the Day Treatment program (they discharged him because he kept blurting out and disrupting their program. He wasnt aggressive or violent, just too disruptive to the other clients.) and that he was to stay in school ( the incident with needing to go to the bathroom and being told to wait and then getting mad and asking if the teacher wanted him to pee all over the floor leading to the teacher pulling the desk out from under him and THEN him going off.). I told the PO that if it was determined that the behaviors were as a result of his diagnoses or disabilities, then I was not comfortable with him pleading guilty. It is my hope that finally we will get some answers!!! I am so tired of people saying "Oh, its just the ODD - hes deliberately doing these things just to be in control." To those people I wish they could have seen him this morning (or heard). I got five phone calls while at work (tears, sobbing, ""I dont want to be alone, mom. Can I come up to work, or can you come home?" He has not had an aggressive incident since January 31. Again, sorry about the silence. Between working, schooling, and looking for a second part time job. I am exhausted when I get home and have little strength to deal with email. I do read as much of it as I can - but often have no time to reply and for that I am sorry. I do think about you guys, all the time, please know that.Heres hoping that life is treating you more gently,StephPS If you have an ideas or insights ... please feel free to share them. I can use all the help I can get. Sorry about the typing. My apostrophe key keeps sticking.

[Guest guest]

Hi Steph,

Sorry, I cant help with any words of advice. Just wanted to say that you

and your family are in my thoughts and I wish the best for you.

C

Mum to Lloyd, 13yrs. AS

Sydney NSW

----Original Message Follows----

Reply-To: autism-aspergers

To: autism-aspergers

Subject: Update

Date: Tue, 18 Mar 2003 05:38:23 -0000

Hey all,

Sorry to have been so silent as of late, as usual life is a zoo. I

keep expecting things to get better, quieter, slower .... and what

happens? They get more confusing, louder and faster ... go figure.

I finally found out when goes to court for the misdemeanor

charges from December (kicking the principal in the course

of being carried into the time out room, resisting getting the

handcuffs put on, kicking the squad car in the midst of a panic

attack). The pretrial conference will be April 8 at 9:30 a.m. CST.

has FINALLY got an appointment with a new therapist. First is

was going to be one person and then his dads insurance

wouldnt pay for that guy, then another and the insurance wouldnt pay

for him either. Finally, this morning they called and

said that this other guy will see him. HOORAY! Ive seen this guy in

the past, for PTSD, he is VERY familiar with the goings

on within the family - knows both dad and I - and has known

since he was in like 4th grade or before. It is to him that I

will appeal for an evaluation for AS. More and more people that work

with are expressing that they, too, see AS

qualities in , including the intervention/homeschool teacher hes

had for the past three weeks. He IS getting work done,

not as fast as the school would l ike (they want him to keep up with

the kids at school) but he IS getting work completed and

in. She is fabulous with him. If he is hyper and needs to pace, she

lets him. H e will dictate the answers to her questions (and

99% of the time they are correct) and she says she doesnt care if he is

pacing, just so long as he his working.

's probation worker doesnt think things look real good for

- in December the goals were for him to complete the

Day Treatment program (they discharged him because he kept blurting out

and disrupting their program. He wasnt aggressive

or violent, just too disruptive to the other clients.) and that he was

to stay in school ( the incident with needing to go to the

bathroom and being told to wait and then getting mad and asking if the

teacher wanted him to pee all o

_________________________________________________________________

MSN Instant Messenger now available on Australian mobile phones. Go to

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[Guest guest]

Our prayers are with you in this

[Guest guest]

Annie I will pray for you daily.

We 3 will also.

[Guest guest]

Annie, I am so sorry to hear this. Please know you are in our prayers. My Father is a minister and I will have him and the church pray for you and your family. If you need anything even to talk, please email me anytime. Please keep us updated. God bless, Sharon(moderator)

[Guest guest]

Thank you all so much. You are all wonderful.

Annie, who loves ya annie@...

[Guest guest]

Annie,

I know you don't know me,cause I don't post very much,,but I have

always enjoyed reading your posts. I have always felt better after

reading " Annie,who loves ya " ,I don't know what it is about that,,but its

kinda like a secret friendship,that we all share. I just wanted you to

know that you are in my prayers. I can only imagine how hard this must be

on you,and your family. Please keep us posted. I'll ask all my other

groups to pray for you,also.

Kim,mom to Meaghan 13,,,Katelyn 11 Bipolar,OCD,,,Logan 5

Aspergers,JRA, & some kind of connective tissue disorder, & last,but not

least,,Ethan 4 & 100% BOY

________________________________________________________________

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[Guest guest]

You are all wonderful people, and I am blessed to know you. Thank you.

Annie, who loves ya annie@...

[Guest guest]

((((ANNIE))))) You are in my thoughts and Prayers as always!

*lights one candle and passes it on*

DES

[Guest guest]

Annie,

You and your family will be in all our thoughts and prayers during this

difficult time. Please take good care of yourself!!

All our love and support,

in Ajax

xoxoxo

>

>Reply-To: autism-aspergers

>To: Autism-Aspergers <autism-aspergers >

>Subject: Update

>Date: Wed, 27 Aug 2003 15:58:53 -0600

>

>I have been diagnosed with liver cancer. The dr. feels that if they try

>and resect it, I will go into liver failure because I have significant

>damage to my liver. They are starting the wheels rolling for a

>transplant; I'll have a slew of appointments in the next few weeks. I

>will have to go, after all that, for a week to Denver for tests and

>paperwork, and they will give me a pager. Then I come home. When the

>pager goes off, I must go to Denver immediately because it means they've

>found a liver for me. I've contacted Kris (our daughter, for those who

>don't know) and she will be staying and caring for our place. Telling

>her about this was the hardest thing I have ever done. The dr. says

>that I will not be left out in the cold just because we're poor; they

>have things they can do.

>

>I am monumentally depressed, frightened, and very very tired. Pray for

>me, please. I've put it all in G-d's hands. It's all I know to do.

>

>I can't write any more just now. I'll keep you apprised of things as

>they happen.

>

>Annie annie@...

_________________________________________________________________

The new MSN 8: smart spam protection and 2 months FREE*

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[Guest guest]

Annie,

I'm so sorry. I will be praying for you. Hugs, a

> I have been diagnosed with liver cancer. The dr. feels that if

they try

> and resect it, I will go into liver failure because I have

significant

> damage to my liver. They are starting the wheels rolling for a

> transplant; I'll have a slew of appointments in the next few

weeks. I

> will have to go, after all that, for a week to Denver for tests and

> paperwork, and they will give me a pager. Then I come home. When

the

> pager goes off, I must go to Denver immediately because it means

they've

> found a liver for me. I've contacted Kris (our daughter, for those

who

> don't know) and she will be staying and caring for our place.

Telling

> her about this was the hardest thing I have ever done. The dr. says

> that I will not be left out in the cold just because we're poor;

they

> have things they can do.

>

> I am monumentally depressed, frightened, and very very tired. Pray

for

> me, please. I've put it all in G-d's hands. It's all I know to do.

>

> I can't write any more just now. I'll keep you apprised of things

as

> they happen.

>

> Annie annie@r...

[Guest guest]

Annie, we will be praying for you! This is very scary stuff!

What hospital will you be coming to in Denver? I work in downtown

Denver, & live in the northern suburbs. If you'd like someone to

come hold your hand or just " be there " , let me know, okay?

Even though we've never met, through sharing this forum with you the

past couple of months, I feel like we're acquainted.

Concerned Candy in Colorado

> I have been diagnosed with liver cancer. I

> will have to go, after all that, for a week to Denver for tests and

> paperwork, and they will give me a pager. Then I come home. When

the

> pager goes off, I must go to Denver immediately because it means

they've

> found a liver for me. I've contacted Kris (our daughter, for those

who

> don't know) and she will be staying and caring for our place.

Telling

> her about this was the hardest thing I have ever done. The dr. says

> that I will not be left out in the cold just because we're poor;

they

> have things they can do.

>

> I am monumentally depressed, frightened, and very very tired. Pray

for

> me, please. I've put it all in G-d's hands. It's all I know to do.

>

> I can't write any more just now. I'll keep you apprised of things

as

> they happen.

>

> Annie annie@r...

[Guest guest]

Hi Kim, that's great that was willing to share a bit more about how

OCD is tormenting him. I'm glad to hear he is more open to the idea of

finding a doctor who can help.

ERP basically is repeated exposure to the feared idea or thing, whatever is

scaring the OCDer so. In his case, apparently, is having repugnant

obsessions that he wants to have incestuous relations with his sister, and

avoids her and even her name to try to avoid triggering the thoughts.

Sexual obsessions (being gay, being a pedophile, sexually attracted to a

parent, sister or etc. etc.) are very common in OCD even in kids. It's no

wonder they are so extremely reluctant to tell family or even their

therapists about these types of obsessions! OCD torments them mercilessly

with the doubt, how can they be sure they *don't* want to, or *won't* do,

the repugnant thing?

ERP for this type of obsession could be having rank various exposures

from easiest to hardest to do: hearing the name '', seeing her photo,

talking with her on the phone, sitting in the same room with her, etc.

perhaps all the way up to going swimming with her wearing a bathing suit.

He could start with the easiest exposure, do it repeatedly while refraining

from spitting or shielding his private area for longer and longer periods,

until his anxiety falls and the exposure is boring to him. Then, on to the

next one.

As far as finding a therapist, I'll pass on some excellent advice from

Aureen Pinto Wagner, to check at any nearby university affiliated med

centers/hospitals for anxiety clinics. These tend to be staffed with

top-notch therapists current on effective treatment of OCD, and as a bonus

frequently offer a sliding fee schedule based on income.

What is the Dad-hating thing, another obsession?

Good luck to you both!

Kathy R. in Indiana

----- Original Message -----

> Hi, all! I got some more pieces to my son's puzzle today. Through a

> series of yes/no questions and various codes (eye blinks, grunts, beeps,

> etc.) I have finally found out that my son walked in on my daughter

> when she was changing her clothes 2 years ago. He left the room

> immediately and she apparently didn't know he had seen her. This part

> is a guess, but from how he acts I think maybe he had an unwanted and

> confusing physical reaction. (When he hears her name or her voice he

> has to spit and shield his private area. If he sees her it is even

> worse.) He told me that he doesn't hate her, only hates his dad, and

> for the first time he said he is willing to let me try to find someone

> to help him " get over it. " He seemed sad when I told him some scenerios

> from the future: her wedding day, knowing her brother was still

> shunning her; her telling her children, " you have an Uncle , too,

> but you will probably never meet him. " He seems like he doesn't want a

> totally -less future after all.

>

> Now the problem of finding a therapist. I need someone withing a few

> hours of Sioux City, Iowa if anyone knows of someone. Insurance is a

> problem. Our " main " insurance doesn't cover mental health at all, and

> he is on Iowa Title 19 for that.

>

> How would one do CBT/ERP on something like this? Obviously I wouldn't

> want to show him nude pictures. Any ideas?

>

> Kim in IA

[Guest guest]

Hi Kim,

My daughter had a problem with thoughts that she " may " cheat on a test. If she

saw the corner of someone's paper or glanced at her classmates desk, she felt

that she might have seen an answer and her compulsion was to erase every answer

and fill them in differently! Made for some bad grades for awhile...even

happened on a standardized test! Her psychologist suggested using a " loop

tape " . She had my daughter write down the worst scenario that could ever happen

if she just left her answers alone. She encouraged her to really make it

dramatic...something she would be very uncomfortable with. We then taped it on

a tape recorder (she taped it in her own voice) and she listened to the story

over and over. We started out

with listening to it 5 times, 3 times a day and had her rank her discomort on a

scale of 1 to 10. By the 2nd week, her discomfort had really lessened quite a

bit and after a few more weeks, she just thought the story was kind of absurd

and the obsession disappeared altogether.

All the best to you and to . I know that you all are going through a rough

time. Things do get better. Keep us posted.

Sallie

[Guest guest]

Our computer got infected with a virus over the holidays, and has taken a

long time to cleanup, so I haven't been posting or reading until today.

Thought I'd post an update.

We saw the pdoc in early Dec., bringing in several of the manic lists

had been compulsively writing. He recommended we go back into therapy and

switch meds. Prescribed 5 mg of Prozac with the 5 mg of Celexa, then to take

off the Celexa after a week, continue with the Prozac, and up to 10 mg after

3 weeks. I was very frustrated when he did not recommend weaning off the

Celexa, given the hell we went through last time we tried to get him off that

med. He basically told me there were no hard and fast rules on how to do it,

so if I wanted to wean him more gradually I could, but I got the sense he was

sort of patronizing me. I stuck to my guns though, and tapered him off by .5

mgs every 3-4 days. There were STILL withdrawal symptoms (headache,

lightheadedness, mood swings, emotional rawness etc.), but we got through those

bumps by knowing what it was and hoping the next day would just be better...

On to the therapy. I called our former ERP guy, whom we loved, only to find

out he had moved to Chicago to start up an anxiety disorders specialty

clinic in Linden Oaks hospital. I was devastated to learn this, as I felt I

had

spoken to almost every child therapist in this city trying to find an OCD

therapist, and he was the only one. The practice he worked for called him in

Chicago and within 5 minutes he was calling me at home! Mind you, we hadn't

actually seen him in over a year. As a follow up, he sent us a letter with some

referrals and a personal hello to . If anyone ever needs a great

therapist in the Chicago area, I have a great referral for you!!

I found one woman who said she had some experience and seemed to know the

lingo, but could only see us during the day, which means pulling out of

school for 2 hours each week. For now, I've decided to see how these new

meds go. He's on the full dose of Prozac now for about 5 days, and seems oh so

much happier! No list writing for over a week. The anxiety has started up

again now that school is back in session, but I'm hoping that once he gets

readjusted in might calm down. We also started him on meds for nighttime

wetting, as it became a huge nightly problem ever since we started the Prozac.

Anyone else experience that? I also heard Prozac was in the news this week,

but

haven't heard the details. Watch it get pulled from the market like Vioxx

or something!

We were very nervous to try a new med, but this board gave me the

encouragement to try, as I know many of you have gone through many meds, and

often say

that it takes many trials to find the right thing. We'll keep our fingers

crossed! Thanks for listening. - in MI

[Guest guest]

What a wonderful thing!!!!!!!!!!!! I only know from my NT daughter --- she was 4 and I really thought she'd go on her first date at 16 in princess pull-ups...it was one of the best days in my life, other than her birth, the day she was fully potty trained. LOL

I know it will be a bit tougher with , but listening to Devin's and your story gives me lots of hope.

e

To: AutismBehaviorProblems Sent: Thursday, January 15, 2009 4:34:37 AMSubject: Update

..

[Guest guest]

Great news Lesley. Hugs to you both.

Stacie

I just wanted to thank you all the tips and support. Devin is doing great on the potty and i think he is well on his way to being a big boy.

It's been a 3 yr long journy and i think were almost there.

Lesley

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