Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 In a message dated 12/19/2004 1:34:11 PM Pacific Standard Time, DS_Friends_Keshishian writes: Dear Tonnie, I am sorry to hear that you are still struggling - it has been too long. I pray you feel better very soon. I can only say I wish had not been silent. I wish we had no need to speculate. I don't know her motivation for silence - I wish she could have/would have shared her trials. hugs, cindy lee Why anyone would remain silent and not allow their trial and tribulations to be a lesson to others is sad and I just dont understand it personally. It was certainly NOT her fault in any way. I wish she would have shared it so OTHERS will not have the same fate. I am so glad to be healthy. I am so glad for Dee and others who have shared their troubles so that we all may learn from them and take best care of ourselves to avoid such hardships as these. Poor on. I hope he has the best life God has to offer him. Anne in Santee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/29/2004 1:42:37 PM Pacific Standard Time, Tops@... writes: > ! I just wanted to say HI! while I have the chance. How are you? Is everything going well? I think of you often. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Ann the minute I saw your " Positve " signature it gave me a warm feeling. The list just isn't quite the same without you! I am doing very well. Not as thin as some people on this list but a LOT thinner than the day of surgery. I am trying to address some of the issues that helped me to get so heavy in the first place. I don't post a lot but I read this list daily and say prayers wherever they fit. This group is very much in my daily prayer list and I am so happy to do this for my switch siblings. I too felt an incredible peace come over me about my surgery. I knew that the prayers being said for me where what got me through. Loved every word of your update! I am SO PROUD of you! Big hugs from Washington, your friend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/29/2004 6:41:48 PM Pacific Standard Time, Tops@... writes: > Loved every word of your update! I am SO PROUD of you! > Big hugs from Washington, your friend, You're a breath of fresh air, too, ! I'm so glad to hear you are doing well. I know what you mean about the issues that got us to the GR-DS. I know I am still a compulsive eater and I probably always will be. Heavy sigh. Just as Dr. K says, he can fix our bodies we have to work on our heads! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/29/2004 6:41:48 PM Pacific Standard Time, Tops@... writes: > Loved every word of your update! I am SO PROUD of you! > Big hugs from Washington, your friend, You're a breath of fresh air, too, ! I'm so glad to hear you are doing well. I know what you mean about the issues that got us to the GR-DS. I know I am still a compulsive eater and I probably always will be. Heavy sigh. Just as Dr. K says, he can fix our bodies we have to work on our heads! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/30/2004 12:57:57 AM Pacific Standard Time, Sweetsugar1027@... writes: > When you are famous, Sweet words, , but I'm afraid something like this is far, far in the future! LOL Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 , Let me know when and where you will be in Stockton, and maybe we can meet. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 In a message dated 1/2/2005 1:08:13 PM Pacific Standard Time, soarthruwind@... writes: > I am also happy with my results. Congratulations, , and thank you for sharing your story. You've done great for six month! I hope the diarrhea clears up quickly. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 In a message dated 1/2/2005 1:08:13 PM Pacific Standard Time, soarthruwind@... writes: > I am also happy with my results. Congratulations, , and thank you for sharing your story. You've done great for six month! I hope the diarrhea clears up quickly. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 In a message dated 1/2/2005 1:08:13 PM Pacific Standard Time, soarthruwind@... writes: > I am also happy with my results. Congratulations, , and thank you for sharing your story. You've done great for six month! I hope the diarrhea clears up quickly. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Thanks Lynn, I am not looking forward to increasing the MTX, but if it helps, well so be it. I'll keep you posted. --------------------------------- Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 Hi , Yes I had my D.S. done in CA. by Dr. Keshishian on Jan. 2nd 2003..I think he is the best....I had all kinds of fears and worries ..... he made me feel cared for and listened to me..Another doctor had song me this your gonna die routine.. unless I had it done in two parts. Funny thing .....he said if I had to go back under the knife I would surely die and then with the other side of his face he tells me " I should have it done in to parts. " ...I found about Dr. K from the main D.S. list through yahoo one bad thing is they are a flaming bunch..Some one is always taking something that someone said the wrong way and all Hell breaks loose. When you have 3,000 plus members from all over the country as well as some foreign countries.......... it can get a bit dicey...So many people have to take sides and give their opinion that it can run into hundreds of e-mails about crap for days and days till one of the list yells STOP ...You have to wade through stuff. and allot of the times it's just not worth it. This group is allot smaller and the people here care about each other and are willing to give the other person a chance before they take it the wrong way..Everybody here seems to understand that a computer screen does not give the humor that some things are meant to have...and choose to take it that way rather than starting off as something bad...I am a member but not as active as I had been with the other group. This group I love and if my computer is working ( another long sad story) I read every letter....the Main List you can get to them by going to yahoo and checking them out....If you have any problems let me know and I will help you out.. For my money though this one is the best....Now where does a group meet in Los Alamos? and when? When I come back after my TT ,Hernia, bladder repair and hysterectomy the end of Feb.I would love to attend. My surgery by the way is Jan 26th in Delano stick me in your prayer pocket ...if you got one...lol.....Love ya all.....Lilyen (no subject) > > Hi Lilyen, > > Sure I know where T or C is. I live in SF. So do attend group support > meetings in Los Alamos? Did you have your D.S.done is CA? > Also, like Mike, I'd like to know what the " other big list " is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 Hi , Yes I had my D.S. done in CA. by Dr. Keshishian on Jan. 2nd 2003..I think he is the best....I had all kinds of fears and worries ..... he made me feel cared for and listened to me..Another doctor had song me this your gonna die routine.. unless I had it done in two parts. Funny thing .....he said if I had to go back under the knife I would surely die and then with the other side of his face he tells me " I should have it done in to parts. " ...I found about Dr. K from the main D.S. list through yahoo one bad thing is they are a flaming bunch..Some one is always taking something that someone said the wrong way and all Hell breaks loose. When you have 3,000 plus members from all over the country as well as some foreign countries.......... it can get a bit dicey...So many people have to take sides and give their opinion that it can run into hundreds of e-mails about crap for days and days till one of the list yells STOP ...You have to wade through stuff. and allot of the times it's just not worth it. This group is allot smaller and the people here care about each other and are willing to give the other person a chance before they take it the wrong way..Everybody here seems to understand that a computer screen does not give the humor that some things are meant to have...and choose to take it that way rather than starting off as something bad...I am a member but not as active as I had been with the other group. This group I love and if my computer is working ( another long sad story) I read every letter....the Main List you can get to them by going to yahoo and checking them out....If you have any problems let me know and I will help you out.. For my money though this one is the best....Now where does a group meet in Los Alamos? and when? When I come back after my TT ,Hernia, bladder repair and hysterectomy the end of Feb.I would love to attend. My surgery by the way is Jan 26th in Delano stick me in your prayer pocket ...if you got one...lol.....Love ya all.....Lilyen (no subject) > > Hi Lilyen, > > Sure I know where T or C is. I live in SF. So do attend group support > meetings in Los Alamos? Did you have your D.S.done is CA? > Also, like Mike, I'd like to know what the " other big list " is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 > , I am worried that you said you can't afford what > Dr.K " suggested " . We docs usually call those suggestions " orders " , > lol. Please make your health a priority and if you can't afford > something, let him know so he can make another recommendation. > > Marta ================================= Excellent point Marta. I also was courious what calcium Dr. K was suggesting/ordering??? And if he said " why " for that one. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 > Hi Jo, Well when I talked to Dee about not being able to afford the Calcitriol.(When rereading the notice the office sent me states that Calcitriol is Vitamin D. , it is the activated form of Vit D. It is available in a generic form so you should shop around. Don't be afraid to comparison shop! Pharmacies are pretty good about giving out prices. Well, they are to me, anyway. And why not? It is just like buying shoes. You should be able to buy it for less than $50 per month according to my little book, between $25 and $50. Marta going to check costco online pharmacy now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 > Marta > going to check costco online pharmacy now Okay, I found it under the brand name, Rocaltrol,and the 0.5 mcg dose is $65 for a thirty day supply. Ugh! Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 > Thank you for finding that out for me...Thats a considerable savings...I really appreciate you taking the time to check that out for me...Again Thank you so much. Well, it isn't really a savings, but if you buy it one month at a time it is cheaper. Also, if you have insurance, you can use their mail-away service for a three months supply and it is always cheaper. If you have insurance, they should pay for it in the first place, though. You just need the paperwork done correctly. Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Wow!!! Thats great....Thanks for the info....I will check...So you do think its something I really should be taking? Thank you Marta... =============================== Here's the thing...if your Vitamin D is to low it doesn't matter what kind of calcium, or how much calcium you take because you won't absorb enough. What I want you to do is call the 800 number and discuss this with the office. Let them decide if you MUST take it or if something Cheaper can work for you. Even if you think it is too expensive you have to look at how expensive NOT taking care of the problem can become. Call the office. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 > It is cheaper.I was quoted 187.00 per month...Ouch... Oh, I thought you said for 90 days. If not, then it is much cheaper! Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Vasquez Student Box 1097 300 W. Hawthorne Road Spokane, WA 99251 Thanks so much--those brochures are really going to help!! ________________________________ From: Bob Himes Sent: Mon 1/17/2005 1:33 PM To: Stillsdisease Subject: Re: Sharon Hi Kate: If you will send me your regular mailing address including zip code I will send you some of the brochures to distribute among your friends, relatives and Doctors who need them the most. There is no charge for them but donations are gratefully accepted. I can get them out tomorrow if I have your address as I have a bunch to send out. WE WILL WIN Love Y'all " NEVER FIGHT FAIR " Dad Panama City, FL Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org Please Make Tax Deductible DONATIONS to the All Volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave. Panama City, FL 32404 There is now a Third Political Party: The " VPA " , Veterans Party of America. Veterans= " Third Class Citizens " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 At 10:46 AM 1/25/05 -0800, you wrote: > On the radio Governor Warner divided the people into You beat me to it, . Sorry for the duplicates. MFJ Everything connects. The Universe is not THAT chaotic. Beauty can still be found in the most amazing places. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Hi and thank you. Do you think Kirk would mind if I called? I am hardly on here much as I am going through much here with pain and fevers. I would really love to say hello. Hugs; Ginger Kirk Bonanny wrote: Hello all, Kirk is missing everyone and he wanted me to post the phone number of the hospital in case anyone wanted to talk to him ask for room 835. I should have included it before. but he was being insistant!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 lynn, thanks for your reply. i feel a sense of inevitability about disability being in my future. i'm just beginning to come to grips with that. but i LOVE my job so much! and i'm just getting started on my career. i want to do EVERYTHING i possibly can to continue being a pediatrician. so my compromise is to work part-time, and this wheelchair should hopefully help, too. if i can make it five years, or hopefully even more, i'll be satisfied. even if it's just one day a week.. but yes, the financial worry.. i'm right there with you. i'm coming out of residency with $70,000 in med school loans to repay, and they only go away if i die, not if i'm disabled. *panic*! i'm in the midst of signing a contract for my new job and the disability part of it is so complicated! there's a lot to learn about all this. how did you navigate your way through the paperwork and bureaucracy? i can only imagine how hard it must have been to file for disability. i'm beginning to understand what courage it takes. thanks again! tracy ______________________ tracy.wright@... http://www.doctw.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Thanks for the reply Lynn. I tend to be pretty stubborn with this as well. I do pretty good at work but have problems on the weekend when I complete projects around the house. I like too stay busy and it helps me knowing that I will feel better the next day. > Welcome , > Your onset sounds similar to mine in that I kept thinking I had the flu or > something and only have had fevers under 101. I get worse with any exertion > at all also. As with many with these kind of symptoms my diagnosis is only > tentative as most everything else has been ruled out. No matter your > diagnosis, the folks on this site will understand and have been there with > the frustrations of dealing with all of this. I hope they find something to > help, the best advice I can give you at this point is to take it one day at > a time and really pace yourself. I continue to do too much and suffer, > (stubborn norwegian) > Anyway, we are glad to have you, but wish it were under different > circumstances. > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 , I also have ADD and have a hard time sitting still, that has made this very difficult but I can tell you from experience that not pacing will cause you to spend a lot of time in bed. The people here will tell you what a bad listener I am when it comes to that. One thing that has really helped many of us is " The Spoon Theory " You can view this at http://www butyoudontlooksick.com/spoons.htm, I have printed this and given it to people in my life as well!! Lynn -- Re: Thanks for the reply Lynn. I tend to be pretty stubborn with this as well. I do pretty good at work but have problems on the weekend when I complete projects around the house. I like too stay busy and it helps me knowing that I will feel better the next day. > Welcome , > Your onset sounds similar to mine in that I kept thinking I had the flu or > something and only have had fevers under 101. I get worse with any exertion > at all also. As with many with these kind of symptoms my diagnosis is only > tentative as most everything else has been ruled out. No matter your > diagnosis, the folks on this site will understand and have been there with > the frustrations of dealing with all of this. I hope they find something to > help, the best advice I can give you at this point is to take it one day at > a time and really pace yourself. I continue to do too much and suffer, > (stubborn norwegian) > Anyway, we are glad to have you, but wish it were under different > circumstances. > Lynn Quote Link to comment Share on other sites More sharing options...
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