Re: introduction

January 5, 2002

Which type of medication is Glyburide? Is it one that limits carbohydrate

absorption, or one that beats up on the pancreas?

Masha

January 5, 2002

Glyburide is the generic name for Diabeta, and I would think it is one that

beats up on the pancreas, as you say, since it stimulates the production of

insulin.

Actos is a drug that deals with insulin resistance or cells that do not

allow insulin to be absorbed within them, thus causing metabolic problems

within that cell.

Re: introduction

> Which type of medication is Glyburide? Is it one that limits carbohydrate

> absorption, or one that beats up on the pancreas?

>

> Masha

>

January 5, 2002

What is your basis for asserting that the American Diabetes Association

does not have good information? I have visited its Web site but rarely:

I don't remember how accessible it was using speech output at that point,

and I didn't find whatever I was looking for. But I certainly would have

used it as a starting point for help I might not easily get from my other

sources of information.

Do you know of a similar source that you think is better than the American

Diabetes Association, or do you think it necessary to gather up pieces of

the information puzzle from various Web sites and elsewhere?

Thanks!

Al

> Harry, this is quite true, and a sad truth, too boot. Most doctors do not

> know the half about diabetes. Mine thinks a blood glucose reading of 214

> is just fine, he is nuts. I order my own tests from his nurse and tell her

> which prescriptions to have him write and he simply does what I tell him to

> because I am the expert on my particular diabetes, just as everyone with

> the disease must be.

>

> We cannot trust doctors to do the best for us, not because they are

> malicious, but because they simply cannot keep up, and frankly, because

> they think the American Diabetes Association has good information, which it

> does not.

>

> Dan

>

January 5, 2002

It worked. It is the right list.

Sharon

introduction

> I have type II diabetes, and I would like to know the best medications to

> treat this disease.

> This is also a test message to see if it is being posted to the right list

> serve.

>

January 5, 2002

The American Diabetes Association is, to a large degree, funded by

companies that are vested in the production of high carb foods, Kraft,

being a good example.

They constantly tell us diabetics how we can get away with eating grains,

pasta and fruits when it is simply a lie. A few diabetics can do this.

The vast majority will do far better on a low carbohydrate diet and they

will suffer far fewer long term side effects from the diabetes, something

the ADA seems to either be unaware of or not care about.

Dan

January 9, 2002

Hi Leigh, And Welcome! So glad you found us. I'm 48 yr old and I have a tethered cord (my 3 children do not) and am going to have an operation in late Feb or early March to un-tether it. I didn't know I had Spina Bifida or TCS until 1987. Since then I've had 2 operations, each in a different location in the spine, to un-tether the cord. I also had some leg pain when I was growing up. I do have scoliosis that was treated during my teens. I wore a brace for about 4 yrs. My right foot turns out, it has since birth. I'm so glad to hear that you were assertive and got your daughter referred to a neurologist and that she had an MRI. It sounds like you and your daughter are in good hands. If you have any questions just ask away. There's a lot of experience, knowledge and understanding here in this group. Sue Mc Introduction Hello,My name is Leigh. I have a 10 year old daughter, . was born witha lipomyelomeningocele. She had surgery at the age of 2 and apart from minorfoot and leg issues seemed to be doing fine. About 2 years ago she startedto get pains in her legs which were dismissed as growing pains. Her footalso started to to turn outwards. After a lot of pushing on my part Imanaged to get her referred to a neurologist who arranged an MRI and was finally diagnosed with tethered cord. She is currently keeping a paindiary and we go back to see the NS at the beginning of February.I look forward to getting to know you all.Leigh

January 9, 2002

Hi Jan,

Thanks for writing. Good luck with your MRI; I hope it turns out this time.

Pam J.

Jan Willem Weijers wrote:

Hello Pam,

My name is Jan Willem ,

un tethered in 1995.

And today my fifth MRI.

But something was wrong with the scan.

Have to do all again next week

January 17 , they scan then My head , neck , and back.

Next week ore at after 23 Jan. i know more .

introduction

Hi,

I am a new member of the group. My name is Pam s. I wanted to thank everyone who responded to my post about travelling in wheelchairs. I am not in a wheelchair yet, but I like to think ahead, just in case.

I had surgery for a Chiari Malformation on May 31, 2001 (my lower skull was pressing on my brain, causing a herniation). However, I have not improved, because there is still something wrong with my spinal cord.

In my neck, my spinal cord presses up against my vertebrae. When I lower my head even slightly, my cord presses into the bone, and I can see the indent in my cord on the MRI.

I don't have the foggiest why this is happening. The cord is supposed to float freely in the spinal fluid, but I guess mine is not. My doctor looked on my MRI's for a tether, but couldn't find one. I also looked. I did not see a tether, but I do see that my cord presses against my vertebrae in my lower back, as well as the neck.

My neurosurgeon calls this "posterior spinal cord displacement". It is a form of cervical stenosis. I have searched the internet about cervical stenosis, but everyone I found has a problem with bulging discs or vertebrae pushing into their cord, or too small of a spinal column. I don't have any problem with my discs or vertebrae, and my spinal column is a normal width. For some reason, my cord won't behave like it is supposed to!

If anyone has any ideas or has heard of this, I would appreciate the help. I still have a sneaking suspicion my cord could be tethered - that's why I joined this group.

Pam J.

April 7, 2002

Welcome to the list. Many good recipes are shared on the list. Do you like

zuccini? You can fix spaghetti zuccini with a tasty marinara sauce and if

you like meat, you can make it with ground turkey. It sounds like you have

done a tremendous job of changing your diet. Keep up the good work.

Introduction

> Hello List,

>

> I have just -- within the past three days -- joined this list. My

> reason for doing so was because, I've been classified as a type two

> diabetic. That was several months ago. At the time, my sugar was

> almost 400. The doctor went bananas. My wife went into immediate

> action and removed all white flour and sugar. Within a few months my

> sugar was stablized at around 75-90 depending on whether or not I was

> awake allnight before my blood sugar test.

>

> Anyway, I am stablized to the point that I so long for the foods I used

> to eat. I love spaghetti, but can't tolerate the wheat pasta. Does

> anyone know of anything that will help in changing that taste?

>

> And, before I forget it. Why is it that when I try and obtain

> information from the local diabetic center -- and the home association,

> I get a different answer for everyone I ask the question. It's as if

> you ask a question and some idiot types it into a computer and gives you

> the answer whether it's right or wrongdot dot dot.

>

> Thanks for your time,

>

> S

>

April 7, 2002

Hello Nelly,

Thanks for the Welcome. Nope! Don't like zucchini, nor broccoli. Just

want something to change the taste of the " Wheat pasta. "

My only problem now is trying to get my exercise scheduled.

Something for the list: Chicken breast baked and smeared with sugar

free pizza sauce and Motzoreli cheese and placed between two slices of

Rye bread.

S

Your message was:

>Welcome to the list. Many good recipes are shared on the list. Do you

>like zucchini? You can fix spaghetti zucchini with a tasty marinara sauce

>and if you like meat, you can make it with ground turkey. It sounds

>like you have done a tremendous job of changing your diet. Keep up the

>good work.

April 7, 2002

SG99, spaghetti squash is a good, low calorie sub for pasta and it is vey

good cooked for 20 minutes in the microwave then cut open and taken out of

the shell with a fork. it llks like spaghetti and is very good with any

kind of sauce on it. Congrats on getting your diabetes under such good

control. Keeping it there is the trick!

Introduction

Hello List,

I have just -- within the past three days -- joined this list. My

reason for doing so was because, I've been classified as a type two

diabetic. That was several months ago. At the time, my sugar was

almost 400. The doctor went bananas. My wife went into immediate

action and removed all white flour and sugar. Within a few months my

sugar was stablized at around 75-90 depending on whether or not I was

awake allnight before my blood sugar test.

Anyway, I am stablized to the point that I so long for the foods I used

to eat. I love spaghetti, but can't tolerate the wheat pasta. Does

anyone know of anything that will help in changing that taste?

And, before I forget it. Why is it that when I try and obtain

information from the local diabetic center -- and the home association,

I get a different answer for everyone I ask the question. It's as if

you ask a question and some idiot types it into a computer and gives you

the answer whether it's right or wrongdot dot dot.

Thanks for your time,

S

April 7, 2002

Hello Dan ,

I do allow myself to have a submarine sandwich once in a while, but

always get the Wheat roll. That isn't bad, it's just the wheat pasta

that I can't stand.

S

Your message was:

>S, there is, sadly, a wide variety of misinformation in the diabetic

>community. The main reason for this is the perfidy of the American

>Diabetic Association. They have been providing incorrect information

>for years. Many other diabetic groups realize this to one point or

>other and try to give some good info while still toeing the company

>line, it does not work.

>

>You've hit a real truth, most grain products do not work for type two

>diabetics. The ADA will lie to you about this and feed you the baloney

>about substitutions and how healthful pasta is, for us, it is not healthful.

>

>I miss it more than almost any other food. I fear the low carb pasta on

>the market are junk, you won't find any of them satisfying. The way to

>make up for it is to have lots of other things you can enjoy instead, it is

>all I can do, too.

>

>There are times when I fancy I would kill for a submarine sandwich, mostly

>for the bun. Most of the stuff inside is just fine on low carb, but not

>the bread, and do I love bread!

>

>You will survive, and if you make a point of keeping your diet varied so

>you do not get bored, you'll survive quite well, hang in there.

>

>Dan

July 15, 2002

Hi Hank and Welcome !

This is a great place to find info, support and answers to many

questions, whether you are a type 1 or 2 . This is also a great

place to share ideas and concerns.

I hope that you find this group to be as helpful as I have found it

to be.

Have a Great day,

Diane

October 7, 2002

S, there is, sadly, a wide variety of misinformation in the diabetic

community. The main reason for this is the perfidy of the American

Diabetic Association. They have been providing incorrect information for

years. Many other diabetic groups realize this to one point or other and

try to give some good info while still toeing the company line, it does not

work.

You've hit a real truth, most grain products do not work for type two

diabetics. The ADA will lie to you about this and feed you the baloney

about substitutions and how healthful pasta is, for us, it is not healthful.

I miss it more than almost any other food. I fear the low carb pasta on

the market are junk, you won't find any of them satisfying. The way to

make up for it is to have lots of other things you can enjoy instead, it is

all I can do, too.

There are times when I fancy I would kill for a submarine sandwich, mostly

for the bun. Most of the stuff inside is just fine on low carb, but not

the bread, and do I love bread!

You will survive, and if you make a point of keeping your diet varied so

you do not get bored, you'll survive quite well, hang in there.

Dan

October 8, 2002

I enjoyed reading your e-mail. It sounds like you have been through a lot,

but you also have a positive attitude and that will go a long way. Good

luck. Each day is a new opportunity to be thankful for what we have.

Introduction

> Hello all,

>

> I just joined this list, and I thought that I should introduce myself.

>

> My name is Harold, and I'm from Winston-Salem, North Carolina, U S A.

>

> I'm 34, and I have been blind for alittle over 2 years. I was diagnosed

with

> diabetes in 1997. My loss of sight was a direct result of my diabetes,

even

> though I had had very good control from the beginning. The doctors just

say

> that I have an unusually aggressive advancement that very rapidly attacked

my

> eyes and kidneys.

>

> I have just recently undergone a kidney transplant, and I am doing fairly

> well, except for the control of the sugar, and that is slowly getting back

in

> line. Don't you love drugs that drive the sglucose up? hehe

>

> Anyway, I am told that I am adapting to my ever expanding new world well,

and

> I have managed to pick up a new hobbies, and interest. Talking on line,

and

> email list are a wonderful way to pass the hours while my body mends, and

I

> wait to return to the work force. ::smiles:: I recently graduated with my

> degree in Paralegal Technologies, and i hope to begin working within that

> field soon. Wish me luck? ::grins::

>

> I guess that is about it for now, Thanks for your time, and I hope to get

to

> know everyone.

>

> Harold G. Phibbs

>

October 8, 2002

Welcome to the list, Harold. Right now it is pretty quiet, but it isn't

always this quiet. The people seem a friendly and well informed bunch so

just feel free to ask any question you have or contribute any information

you get. We have all types of diabetics, both type 1 and type 2. LaWanda

October 9, 2002

Hi harold,

Welcome to the list. It sounds like you have had your share of new things

to cope with. But it sounds like you have things going in the right

direction. Yes, I know how those drugs can really drive up the sugars. I

have to use Prednisone for my asthma sometimes and it sure can cause some

horrendous problems.

I hope you find the list helpful. Having been blind from birth it is

awesome to me how you have adjusted so well! Again, enjoy the list and

welcome!

Introduction

> Hello all,

>

> I just joined this list, and I thought that I should introduce myself.

>

> My name is Harold, and I'm from Winston-Salem, North Carolina, U S A.

>

> I'm 34, and I have been blind for alittle over 2 years. I was diagnosed

with

> diabetes in 1997. My loss of sight was a direct result of my diabetes,

even

> though I had had very good control from the beginning. The doctors just

say

> that I have an unusually aggressive advancement that very rapidly attacked

my

> eyes and kidneys.

>

> I have just recently undergone a kidney transplant, and I am doing fairly

> well, except for the control of the sugar, and that is slowly getting back

in

> line. Don't you love drugs that drive the sglucose up? hehe

>

> Anyway, I am told that I am adapting to my ever expanding new world well,

and

> I have managed to pick up a new hobbies, and interest. Talking on line,

and

> email list are a wonderful way to pass the hours while my body mends, and

I

> wait to return to the work force. ::smiles:: I recently graduated with my

> degree in Paralegal Technologies, and i hope to begin working within that

> field soon. Wish me luck? ::grins::

>

> I guess that is about it for now, Thanks for your time, and I hope to get

to

> know everyone.

>

> Harold G. Phibbs

>

October 9, 2002

So glad you are on the list, Harold. I was your age when I became blind

from diabetes-and suddenly here it is-25 years later! I'm glad to hear you

had a successful kidney transplant, but know how th drugs can mess up the

glucose levels. I have several friends who have had transplants and have

been able to get their blood glucose levels under control, but it does take

a lot of juggling.

As a rehab counselor, I'm also glad to hear you so determined to get back to

work. Congrats on getting through school. I went back to school after

becoming blind and eventually went back to work-and now I am approching

retirement age. How does that happen so quickly! (laugh).

Keep up with the list. Some of these guys on the list are wonderful with

getting new informatin out to us. I'm not so good on the internet, so don't

go ooking around much. Seeral of the peopol on the list are really good at

his, however.

Pat

Re: Introduction

Hi harold,

Welcome to the list. It sounds like you have had your share of new things

to cope with. But it sounds like you have things going in the right

direction. Yes, I know how those drugs can really drive up the sugars. I

have to use Prednisone for my asthma sometimes and it sure can cause some

horrendous problems.

I hope you find the list helpful. Having been blind from birth it is

awesome to me how you have adjusted so well! Again, enjoy the list and

welcome!

Introduction

> Hello all,

>

> I just joined this list, and I thought that I should introduce myself.

>

> My name is Harold, and I'm from Winston-Salem, North Carolina, U S A.

>

> I'm 34, and I have been blind for alittle over 2 years. I was diagnosed

with

> diabetes in 1997. My loss of sight was a direct result of my diabetes,

even

> though I had had very good control from the beginning. The doctors just

say

> that I have an unusually aggressive advancement that very rapidly attacked

my

> eyes and kidneys.

>

> I have just recently undergone a kidney transplant, and I am doing fairly

> well, except for the control of the sugar, and that is slowly getting back

in

> line. Don't you love drugs that drive the sglucose up? hehe

>

> Anyway, I am told that I am adapting to my ever expanding new world well,

and

> I have managed to pick up a new hobbies, and interest. Talking on line,

and

> email list are a wonderful way to pass the hours while my body mends, and

I

> wait to return to the work force. ::smiles:: I recently graduated with my

> degree in Paralegal Technologies, and i hope to begin working within that

> field soon. Wish me luck? ::grins::

>

> I guess that is about it for now, Thanks for your time, and I hope to get

to

> know everyone.

>

> Harold G. Phibbs

>

October 9, 2002

Hello ,

Thank you for the welcome, It is always good to meet new people. ::smiles::

I hope that I can be a productive part of the list, and bring something

useful along with me. I do have a rathered off the wall sens of humor, and

sometimes, that can get me into some hot water. ::grins::

I'm in a rather good mood today. Yesterday, my sugar levels stayed below 200

since the transplant. I am pleased with that, even if they are still alittle

high, it is much better than the 350 to 400 range I had just after the

operation. This morning, my level was actually 106, and it is great to be

back into the normal range, even for a few hours, again.

I hope you are well, and that I hear from you soon,

Harold

October 9, 2002

Hello Pat,

Thank you for the welcome. ::smiles:: My glucose levels are slowly coming

down. For the first time since the operation, they stayed under 200 all day,

yesterday, and this morning, they were " normal. " Atleast for the moment. It

will take time, but, we will get it worked out. I do have a general question

though. I have found a device to fill my insoline shots, but, I'm having a

hell of a time finding the right needles for the thing. One month, the

pharmacy has them, and then, they will have everything under the sun, except

for the one's I need. Any advice on how to get the things filled without the

device? This is one of the real pains, since I am determined to do it myself,

and can't seem to get control of it.

Harold

October 9, 2002

Hi Herold:

Hey it is good to see you on this list. I knew you from Blind. How is the

thing with you and Giulia doing? I hope all is going well in that direction.

Congratulations on getting your sugars in the normal range now. I know how

hard that is.

Reguards, Wishy and Moka cool kitty.

----- Original sMessage -----

To: <blind-diabetics >

Sent: Wednesday, October 09, 2002 4:32 AM

Subject: Re: Introduction

Hello ,

Thank you for the welcome, It is always good to meet new people. ::smiles::

I hope that I can be a productive part of the list, and bring something

useful along with me. I do have a rathered off the wall sens of humor, and

sometimes, that can get me into some hot water. ::grins::

I'm in a rather good mood today. Yesterday, my sugar levels stayed below 200

since the transplant. I am pleased with that, even if they are still alittle

high, it is much better than the 350 to 400 range I had just after the

operation. This morning, my level was actually 106, and it is great to be

back into the normal range, even for a few hours, again.

I hope you are well, and that I hear from you soon,

Harold

October 9, 2002

Hi Herold:

I was just wondering what kind of device you are using to measure your

insulin? I have been looking for something for a while as I would like to

be able to measure by myself. Right now I have to get to measure it

for me and if he is ever out of town, then I have to get a public health

nurse to do it for me. It is so much better to be as independent as

possible.

Reguards, Wishy and Moka kitty.