Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Sally, What summameants are you doing now? J is like this too. He has a peradoxal effect to most meds and some supplaments. Lois Re: Adderall or Geodon Mess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Lois, Let me see if I can remember these from memory. We do 10,000 IU of Vit. A/ and 400 IU of vit. D per day (we did high dose A years ago and it had a DRAMATIC positive impact for Tom, so I always try to keep him on A). Also, 50 mg. 5htp (more than that can make him even more hyper/stimmy/silly), vit. K, vsl#3 (a probiotic), 40 mg. zinc, zyme prime enzyme with every meal and candex (for yeast) at night. He's been on a ridiculously strict diet for years and years, but we have lightened up on it periodically just this summer to no ill effect (that we can tell - still breaking the diet only once in a while). We started bh-4 (it's a supplement but you have to have an rx for it) last spring and it *seems* to have really helped the meltdowns aggression. He has only had one meltdown (no aggression) since we started it (so scared of jinxing myself by writing this down!). For meds, we do spironolactone, which is good for inflamation and supposedly kids who have the ACE deletion (genetics, per Yasko and a contributor toward aggression). We tried the spiro last fall and it seemed to bring on aggression, but we were within a month of another b- 12 trial at the time, so that may have messed up what we were seeing. Tom has been on the spiro for about 2 months now and so far so good. The rilutek is the last new thing we are trying this summer. It blocks the production of glutamate, which should help calm him down and help with behaviors. Other things we have tried to balance glutamate (like gaba) have been awful for Tom. But, again, so far so good with the rilutek. I don't really think it has calmed him down, but he does seem more " involved " with what's going on around him. It's hard to tell with his behaviors, because school will bring on the meltdowns / aggression more than anything at home (but during the bad periods, we deal with it here too!). But, like I said, he was doing great even at school last year after we started the bh-4. I'm a nervous wreck thinking about school starting in Aug. Tom will go to middle school this year, so new school, new teachers, new everything - yikes! If we're not out of the clear with these behaviors, I'll know it the first week of school. HTH. There are so many stressful aspects of autism, but IMHO, aggression is the WORST! Sally > > Sally, > What summameants are you doing now? J is like this too. He has a peradoxal effect to most meds and some supplaments. Lois > Re: Adderall or Geodon Mess > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > My son is on 160 mg of Geodon and 78 mg of Strattera > and 150 mg of Wellbutrin. He has been on both the > Geodon and Strattera since October 2006, gradually > increasing the dose and he was just put on the > Wellbutrin a few weeks ago. > > I want him off of the medications mainly because his > behavior hasn't changed, for the better. He screams, > hits, kicks, bites and throws terrible tantrums. So > bad sometimes that the neighbors complain. > > All I have been told is that this is going to get > worse before it gets better. How much worse? How > long do I have to endure the hitting, kicking, > screaming and biting? He has a picture schedule, time > timer, MRDD working with us and in home behavior > specialists. Nothing is working. I am at my wits > end. I had my mom and sister come and pick him up > yesterday and they took him to my mom's house for 2 > weeks. Mainly to give all of us a break and to keep > us from being evicted. We have already been kicked > out of 2 apartments since September because of his > behavior. We can't find a house where we live that is > affordable. > > > I feel your pain,that is very extreme,his behavior, getting you kicked out of two appartments,wow,very stressful! I have had the best luck for my daughter with aspergers, with abilify and strattera,she is 9 and even says she feels less angry. She was on risperdall and did good,but we went off because I was afraid how bad the weight gain side affects could get,when we tried trileptal she was so super angry and agressive,it was at the end of the school year and she was suspended two days in a row,two differant issues and that has improved so much.I would keep looking for the right balance of meds,you family cant continue to function this way and your son is so frustrated with whatever imbalance he is experiancing.good luck... > > ______________________________________________________________________ ______________ > Get your own web address. > Have a HUGE year through Yahoo! Small Business. > http://smallbusiness.yahoo.com/domains/?p=BESTDEAL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 Where do you get the vitiamin A from. thanks! Lois Re: Adderall or Geodon Mess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 I usually use Carlson A and D Sally > > Where do you get the vitiamin A from. thanks! Lois > Re: Adderall or Geodon Mess > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Thanks! Where do you get it? order it or just get it at a store? Lois Re: Adderall or Geodon Mess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Most health food stores carry it, or you could order on line. When we first did a high dose vit. A protocol, I gave 400,000 IU over the course of two days (I think, it's been a while). Most mainstream docs would say no way to this, but the theory was that the measles virus uses up vit. A, and this would get vit. A stores up again in the body. Tom is a MMR regresser - high fever and measles rash 10 days after the MMR at 14 mo. old, and he's never really been the same since :-(. Anyway, the high dose vit. A brought him right out of a regression and he was going to the park, making friends, really aware and happy. It didn't last (most of the stuff we do helps for a while and then fades or things get worse). I would repeat the high dose A every 6 months or so and always got a nice little boost. Now, I just give him the 10,000 IU every day. I hope that helps. I think most of these kids are probably depleted in vit. A. Most things (even multivitamins) only have carotenoids as a vit. A source and the body has to convert it to vit. A. I doubt most of our kids do the conversion very well, so a fat soluable vit. A (as long as the child can handle it) is probably a good idea. Sally > > Thanks! Where do you get it? order it or just get it at a store? Lois > Re: Adderall or Geodon Mess > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Thanks, I will check it out at the health store tomorow. Lois Re: Adderall or Geodon Mess Quote Link to comment Share on other sites More sharing options...
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