Newbie

[Guest guest]

Welcome . You'll learn most everything there is to know about RA and

it's treatment. We have several very knowledgable and helpful members.

a

>

>

>

> Newbie here...just wanted to say Hi! I'm also new to RA...diagnosed

> about a year ago. Looking forward to the support and information I

> hope to gather here!

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Welcome ,...Glad that you found the group, sorry for your dx.

There is great information here, and wonderful people. I also have

RA, and hope to know more about you, Tawny

>

>

> Newbie here...just wanted to say Hi! I'm also new to RA...diagnosed

> about a year ago. Looking forward to the support and information I

> hope to gather here!

[Guest guest]

In our house, we have 2 adults, 3 kids (ages 6, 4, and 19 months)

Breakfast: smoothies with pancakes/muffins/toasted bread

scrambled or fried eggs with side of veggies/stir fried greens

broth/soup and toast

coconut/mixed nut cereal with cream/kefir

oatmeal with either nut/fruit or cheese/nut toppings

Lunches - soups, green salads with meat atop, chicken salad, leftovers from

dinner

Dinner - roast, baked chicken, meatloaf, spaghetti with brown rice pasta,

chops, stir fry, nachos, pizza, vegetable salads, brown rice,

sauteed or steamed veggies, baked yams

Snacks for kids - yogurt and fruit, jerky, nut butters and apples or celery,

trail mix, muffins

Desserts - brownies, cookies, homemade ice cream

Generous use of NT condiments of salad dressings ketchup, mayo, etc., and

fermented vegs like saurkraut, etc.

Newbie

I am new to most of this information, although I am a registered dietitian.

They do not teach you these things in school :-(

I have started taking kefir about 2 months ago...yummy. I purchased Nourishing

Traditions and love it!! Funny when I was younger (I'm 45) my mother and

grandmother ate that way..much stock, chicken livers etc... my grandmother lived

to be 96, unforunately my mom succomed to lung cancer at 63.

My question is..can you share with me a typical menu of wat you eat daily??

Thanks

[Guest guest]

> I am new to most of this information, although I am a registered

dietitian. They do not teach you these things in school :-(

It's late here, so I can't answer right now about what I eat, but I

just wanted to say it's so sad that they don't teach you this

information at dietitian school. I hope they're still not teaching

the whole low-fat/high grains theory. SCARY!

Dawn

[Guest guest]

>My question is..can you share with me a typical menu of wat you eat daily??

>

>Thanks

>

>

Breakfast: Grapefruit (or some other fruit) sometimes with MCT oil.

Lunch: Big salad with lox or anchovies, or more fruit, maybe a peanut butter

apple.

Dinner: Stew, baked chicken, noodles and meat, hash browns and steak,

GF toast with garlic ... basically meats and vegies. Usually with kimchi.

Snack: wine, kefir-beer, toast with garlic and olive oil.

I basically aim to eat fresh fruits and vegies during the day, cooked

vegies and meats in the evening.

Heidi Jean

[Guest guest]

Hi ! Welcome to the board. I'm pretty new here too. My 7 1/2 month old

son will be casted on Nov. 3rd and will get his band on the 17th

through cranial tech. I'm also emotion mama and along with my husband on

casting day i'm bringing my sister (also emotional). When we had his

evaluation at CT in Sept. I started crying during the appt. I felt silly

but i'm sure i'm not the only one who has. It's very stressful going

through something like this and not knowing if it's the right thing to do or

not. I am not looking forward to seeing my son be forced down (hubby's job)

while I give him a bottle/passie/toy. My sister will be there to take pic's

and videotape. My son will be in his band for a guestimate of 3 months.

Don't think that really helps you out but may give you an idea. will

be almost 9 months by the time we finally get his helmet. Where are you

located at ?

Ashburn, VA

>From: " & Amber " <ginaandamber@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Newbie

>Date: Wed, 20 Oct 2004 19:36:50 -0000

>

>

>Hi all,

>

>I am new to this board, so I wanted to intro myself and my

>situation. My 10 month old son Cole has Plagio. We have our first

>appointment with Cranial Tech next Friday the 29th. I am VERY

>apprehensive about it due to the fact that he will be casted that

>day. sighhhhhh. I know this will all be for the better, but I

>just can't bear the thought of someone holding him down for " 10-12

>minutes " with his eyes covered. He is going to be sooo scared! This

>Mama cries just thinking about it! I though about calling my pedi to

>see about giving him something to relax him. Has anyone else

>considered this? Does anyone have any other tips for casting day?

>Also can anyone tell me the average time an 11 month old (he will be

>11 months by the time he gets his DOCband) will spend in a band?

>

>Thanks!!!

>

>Mom to Cole, 10 months, casting Oct 29th

>

>

>

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

[Guest guest]

,

Every baby handles the casting differently. I was a nervous wreck

the weeks before my son's casting and couldn't sleep at all the

night before. I brought a friend with me because I'm a single mom,

and I made her hold my son's arms. I gave him a bottle during the

first part and gave him a pacifier during the second part. He

actually FELL ASLEEP during the second part and didn't wake up until

they pulled the cast off. It was hilarious. I was completely

relieved and had fun bathing him after where he was in a great mood

(he loves bath time).

I hope your son handles it just as well. You're doing the right

thing for your son.

My son was 6.5 months old when he started his helmet and I was given

an estimate of 10 - 12 weeks.

Good luck!

Mommy to

DOC Banded 9/13/2004 - present

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our

first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting

day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

is there any way that they can do the casting without covering the

eyes? My son had a local helmet made, and the casting was not a

problem at all b/c his face wasn't covered (he was about 10.5 months

when he had it done and he just sat in my lap and ate cheerios the

whole time!!).

, mom to Ethan

Local helmet grad, Dec 2003

Vancouver, BC

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our

first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting

day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

Hello

Welcome to the group.

Being nervous is totally normal, but I do want to tell you that

casting looks much much worse than it really is.

We took a bottle, and a paci for my daughter. She was ok till the

cast came off, and then she screamed b/c she was angry at us, not

hurt. What also helps in my opinion is that someone else hold Cole,

not you. I know from my little worm that when she bumps herself,

and I'm close it is much much muuuuuch worse than if I'm not

around. Take a fav toy, or a lollipop (whatever he likes)

About the weartime of the band really depends on how much he grows,

how severe the plagio is, all kinds of things really.

Let us know how the appointment goes, and maybe you can take someone

for moral support. )

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our

first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting

day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

Hi . Welcome to the group. My 6 month old just got her helmet

last week. I was a nervous wreck about the casting process and I

didn't know what to expect. I, too, asked the group for some advice

and suggestions for casting day. Someone told me to go to the links

or database section on the left and there were some pictures of the

casting process. (I am sorry that I don't remember which category

it was in). At least I could get a sense of what to expect. It

looked sooooooooooo much worse than it actually was. My daughter

handled it great. They didn't cover her face at all. She had a

stocking over her head but a cut out for her whole face. I brought

a trillion things with me like her pacifier, toys and my mom! She

smiled through most of the casting but cried when the ortho casted

the back of her head. I think it was more that she was sitting in a

strange position and didn't like that! IT was super quick...maybe

10 minutes at the most. I was a wreck before the casting but during

it I found it to be not a big deal. Now she has her helmet and the

treatment is in the works.

Best of luck to you. It is normal to feel worried but it really is

over quickly and before you know it you will have the helmet. I

used hanger facilities and found the ortho to be excellent.

Let us know how it goes!! He will do great...and so will you.

Shari

mom to Hannah 6 mos.

banded 10/15/04

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our

first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting

day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

Hi !

I am located in East Texas so we will be going to the Cranial Tech in

Dallas. I completely identify with you crying during the eval. I

have cried every single time I talk to the Pedi (who is awesome BTW!)

I cried when she said he would need to be banded. I cried when the

nurse called me with the xray appointment time. I cried when the

nurse told me we had to have a CAT scan. I cried when I spoke with

the Pedi about the results. I especially cried when I looked at

the " casting day " pics on the board....you get the picture....you

know, until my son was born, I was not even close to this

emotional....LOL!

- Mama to Cole, casting Oct 29th

East Texas

> Hi ! Welcome to the board. I'm pretty new here too. My 7 1/2

month old

> son will be casted on Nov. 3rd and will get his band on the

17th

> through cranial tech. I'm also emotion mama and along with my

husband on

> casting day i'm bringing my sister (also emotional). When we had

his

> evaluation at CT in Sept. I started crying during the appt. I felt

silly

> but i'm sure i'm not the only one who has. It's very stressful

going

> through something like this and not knowing if it's the right thing

to do or

> not. I am not looking forward to seeing my son be forced down

(hubby's job)

> while I give him a bottle/passie/toy. My sister will be there to

take pic's

> and videotape. My son will be in his band for a guestimate of 3

months.

> Don't think that really helps you out but may give you an idea.

will

> be almost 9 months by the time we finally get his helmet. Where

are you

> located at ?

>

>

> Ashburn, VA

[Guest guest]

Thanks for the postive words ! I am hoping Cole handles it

well though I suspect that is an unrealistic dream. He has very much

entered the search for independance stage. He doesn't take well to

being forced to do anything. Gosh he is going to be soooooo mad at

me! Hopefully the bath will redeem me a little. He LOVES the bath

too!

> ,

> Every baby handles the casting differently. I was a nervous wreck

> the weeks before my son's casting and couldn't sleep at all the

> night before. I brought a friend with me because I'm a single mom,

> and I made her hold my son's arms. I gave him a bottle during the

> first part and gave him a pacifier during the second part. He

> actually FELL ASLEEP during the second part and didn't wake up

until

> they pulled the cast off. It was hilarious. I was completely

> relieved and had fun bathing him after where he was in a great mood

> (he loves bath time).

>

> I hope your son handles it just as well. You're doing the right

> thing for your son.

>

> My son was 6.5 months old when he started his helmet and I was

given

> an estimate of 10 - 12 weeks.

>

> Good luck!

>

>

> Mommy to

> DOC Banded 9/13/2004 - present

[Guest guest]

I am not sure. I am def going to ask! How long was your son in his

helment?

>

> is there any way that they can do the casting without covering the

> eyes? My son had a local helmet made, and the casting was not a

> problem at all b/c his face wasn't covered (he was about 10.5

months

> when he had it done and he just sat in my lap and ate cheerios the

> whole time!!).

>

> , mom to Ethan

> Local helmet grad, Dec 2003

> Vancouver, BC

>

>

> >

> > Hi all,

> >

> > I am new to this board, so I wanted to intro myself and my

> > situation. My 10 month old son Cole has Plagio. We have our

> first

> > appointment with Cranial Tech next Friday the 29th. I am VERY

> > apprehensive about it due to the fact that he will be casted that

> > day. sighhhhhh. I know this will all be for the better, but I

> > just can't bear the thought of someone holding him down for " 10-

12

> > minutes " with his eyes covered. He is going to be sooo scared!

> This

> > Mama cries just thinking about it! I though about calling my

pedi

> to

> > see about giving him something to relax him. Has anyone else

> > considered this? Does anyone have any other tips for casting

> day?

> > Also can anyone tell me the average time an 11 month old (he will

> be

> > 11 months by the time he gets his DOCband) will spend in a band?

> >

> > Thanks!!!

> >

> > Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

You know Cole does the same thing! When he bumps himself, he looks

up to see if I saw it and if so then the tears start

flowing...otherwise he just goes about his merry way. LOL! I am

calling reinforcements today!

> Hello

> Welcome to the group.

> Being nervous is totally normal, but I do want to tell you that

> casting looks much much worse than it really is.

> We took a bottle, and a paci for my daughter. She was ok till the

> cast came off, and then she screamed b/c she was angry at us, not

> hurt. What also helps in my opinion is that someone else hold

Cole,

> not you. I know from my little worm that when she bumps herself,

> and I'm close it is much much muuuuuch worse than if I'm not

> around. Take a fav toy, or a lollipop (whatever he likes)

> About the weartime of the band really depends on how much he grows,

> how severe the plagio is, all kinds of things really.

> Let us know how the appointment goes, and maybe you can take

someone

> for moral support. )

> Sandy Willow's Mom

> Torticollis resolved

> Cranio Germany Grad

>

>

> >

> > Hi all,

> >

> > I am new to this board, so I wanted to intro myself and my

> > situation. My 10 month old son Cole has Plagio. We have our

> first

> > appointment with Cranial Tech next Friday the 29th. I am VERY

> > apprehensive about it due to the fact that he will be casted that

> > day. sighhhhhh. I know this will all be for the better, but I

> > just can't bear the thought of someone holding him down for " 10-

12

> > minutes " with his eyes covered. He is going to be sooo scared!

> This

> > Mama cries just thinking about it! I though about calling my

pedi

> to

> > see about giving him something to relax him. Has anyone else

> > considered this? Does anyone have any other tips for casting

> day?

> > Also can anyone tell me the average time an 11 month old (he will

> be

> > 11 months by the time he gets his DOCband) will spend in a band?

> >

> > Thanks!!!

> >

> > Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

HI ...You have gotten so may great replies already so I am just

going to say welcome to the group. I hope the casting goes well for

you, I will be thinking of you both ont he 29th. Please let us know

how it goes.

Becky ('s mom) in Pgh, PA

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our

first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting

day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

,

My daughter was casted two weeks ago (we get our Starband tomorrow)

and they cut out a area in the stocking thingy on her head so her

eyes, nose and mouth were out. SHe got to lay on my lap with her head

on my knees so she could look at me the whole time. What worked for

us was the pacifier and we sand the whole time. The ortho even sang

with my mom and I. She never cried at all (and I was up the whole

night before dreading it too!) So don't worry, sing, and it will be

over before you know it! Good luck!

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

When our baby was casted on the 15th they left the whole in the

stocking for his face too. They had lots of " noisy " toys and he

didn't cry either. They did cut the plaster off and the saw was

loud. They leave a piece of tubing underneath the cast for that

part. That was the only thing that bothered him. It really was no

big deal!!! Don't worry, it will be fast and everything will work

out. Even the plaster part wasn't that messy. IF they don't have

something there, bring a noisy fun toy. All you need is a little

distraction. Best of luck!

Also, they didn't hold our son down. He is 5 months so I held him in

a sitting up position. It was mom and dad doing that part and he was

upright looking around etc. Not bad at all!

Janna

> >

> > Hi all,

> >

> > I am new to this board, so I wanted to intro myself and my

> > situation. My 10 month old son Cole has Plagio. We have our

first

> > appointment with Cranial Tech next Friday the 29th. I am VERY

> > apprehensive about it due to the fact that he will be casted that

> > day. sighhhhhh. I know this will all be for the better, but I

> > just can't bear the thought of someone holding him down for " 10-

12

> > minutes " with his eyes covered. He is going to be sooo scared!

> This

> > Mama cries just thinking about it! I though about calling my

pedi

> to

> > see about giving him something to relax him. Has anyone else

> > considered this? Does anyone have any other tips for casting

day?

> > Also can anyone tell me the average time an 11 month old (he will

> be

> > 11 months by the time he gets his DOCband) will spend in a band?

> >

> > Thanks!!!

> >

> > Mom to Cole, 10 months, casting Oct 29th

[Guest guest]

Hi ,

Welcome to the group. Cole will be able to see through the stocking. It's not a clear view but it's not black either. I would take a lollipop (get one that will stay on the stick). This will be a huge treat and will most likely keep him calm. It worked for my daughter at her DOCband exit cast at 8 1/2 months. Here are some pics. As long as we didn't take her lollipop she was fine. Take a helper. Sometimes they ask you to help hold your child. It's more comforting to the child and an extra set of hands is always welcome when they get wiggly. Take a camera. Your helper can be the photographer. When they take the stocking off the little bit of plaster left is very cute. Usually they have a big smile on their faces at this time because they are free. If he likes a paci or his bottle you can also use them. The

bottle can be used in the first part while he is lying down getting the front of the cast done. If he has a favorite toy (that is washable) that might be good too.

mom to na & Amber <ginaandamber@...> wrote:

Hi all,I am new to this board, so I wanted to intro myself and my situation. My 10 month old son Cole has Plagio. We have our first appointment with Cranial Tech next Friday the 29th. I am VERY apprehensive about it due to the fact that he will be casted that day. sighhhhhh. I know this will all be for the better, but I just can't bear the thought of someone holding him down for "10-12 minutes" with his eyes covered. He is going to be sooo scared! This Mama cries just thinking about it! I though about calling my pedi to see about giving him something to relax him. Has anyone else considered this? Does anyone have any other tips for casting day? Also can anyone tell me the average time an 11 month old (he will be 11 months by the time he gets his

DOCband) will spend in a band?Thanks!!!Mom to Cole, 10 months, casting Oct 29thFor more plagio info

[Guest guest]

Hi !

Thanks for all of the info. From all of the great tips I have

gotten, I will be carrying a suitcase of entertainment in with us.

LOL!

(mom to Cole, 10 months, casting Friday Oct 29th)

>

> Hi all,

>

> I am new to this board, so I wanted to intro myself and my

> situation. My 10 month old son Cole has Plagio. We have our first

> appointment with Cranial Tech next Friday the 29th. I am VERY

> apprehensive about it due to the fact that he will be casted that

> day. sighhhhhh. I know this will all be for the better, but I

> just can't bear the thought of someone holding him down for " 10-12

> minutes " with his eyes covered. He is going to be sooo scared!

This

> Mama cries just thinking about it! I though about calling my pedi

to

> see about giving him something to relax him. Has anyone else

> considered this? Does anyone have any other tips for casting day?

> Also can anyone tell me the average time an 11 month old (he will

be

> 11 months by the time he gets his DOCband) will spend in a band?

>

> Thanks!!!

>

> Mom to Cole, 10 months, casting Oct 29th

>

>

>

>

>

> For more plagio info

[Guest guest]

Welcome Joyce. These rheumatic diseases can be so difficult to diagnosis

and it¹s frustrating.

Doctors have to be sleuths to put the pieces of the puzzle together and

figure out what is going on.

Do you know what your blood tests indicate? You can get copies of your

blood tests, which is a good idea to keep copies of. RA and Lupus can¹t be

diagnosed with just blood tests, but it is an important piece of the puzzle.

Here is a good site with lupus symptoms:

http://www.mtio.com/lupus/lfasymp1.htm

I¹m glad you are going back to see the rheumy. Finding out what is going on

is the only way you can start treatment.

I have some links that my help you learn about lupus and RA:

http://rheumatoid.arthritis.freehosting.net

Enjoy your trip to Florida.

a

>

> Hi All,

>

> I have been reading all your posts and have been afraid

> to jump in. My doctor doesn't know if I have Lupua or RA

> and I have been avoiding reality for a couple years now.

>

> I had surgery on my right hand years ago after it was

> injured at work, for trigger fingers (2 middle ones) and

> subsequent carpal tunnel - so it has ached for years.

> A couple years ago, my left one hurt so bad I told my

> doctor. He had given me Celebrex for a shoulder injury -

> imagine my surprise when my hands didn't hurt! Nice side

> effect - but then I realized how much they had been hurting.

> He was concerned and sent me to a rheumy. I saw the nurse

> practitioner, rheumy was booked, and within a few minutes she

> was handing me pamphlets on quinine stuff, lupus and RA.

> Scared me to death. Then she examined me and my hands were cold

> from fear but she said " Reynauds. " No, my husband has that in one

> finger from an injury, my hands are cold 'cause you are scaring

> me. I left and never went back. Been on Celebrex 1x day since.

>

> This summer, went back to my doctor cause my hands hurt worse and

> I was sooo tired. He had blood work done and I'm anemic. Had

> a hyterectomy 11 years ago, so he sent me to an internist - had

> endoscopy, colonoscopy and swallowed a camera...no internal bleeding.

> Still anemic (I'm trying to keep this short :- )

>

> She (internist) said, well, I think you have RA, possibly lupus.

> I said I didn't want to hear it. I knew a lady who had lupus

> 20 years ago and she was in bad shape, and all I could think

> of was the actor Carridene (?) and his gnarled hands.

> She said it wasn't like that anymore but told me to take iron

> supplements and come talk to her in 2 months, but urged me to go back

> to the rheumy. That was last week.

>

> Yesterday I went back to my family doctor, and was told, yes,

> go to the rheumy, you need to face this. Let me tell you up front,

> my reaction to this for 2 years has surprised even me, I'm normally

> a head-on person...hmmm

>

> Well, I go Dec. 9th. Not to his nurse, but to him (Fiechtner).

> I am on 2x Celebrex now and I am tired. No rash, no swelling,

> not really sure between the 2 what I have yet...

>

> Sorry this is so long. I am leaving for Florida tomorrow, so my

> posts will be limited, but I will have my computer with me.

> Any information will be welcome, especially good news ; )

> and God bless.

>

> Joyce in MI

>

>

>

>

>

>

>

[Guest guest]

Welcome to the group, Joyce! Glad you decided to post.

It's normal to be worried when you aren't feeling well and to have

conflicting feelings about finding out exactly what the matter is.

Going to see a rheumatologist is the best thing to do. Trying to get an

accurate diagnosis is the first step to starting the right treatment.

Proper and prompt therapy can help you avoid complications and

progression of whatever process is at work.

Please do go and let us know what your rheumatologist says.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] newbie

>

>

> Hi All,

>

> I have been reading all your posts and have been afraid

> to jump in. My doctor doesn't know if I have Lupua or RA

> and I have been avoiding reality for a couple years now.

>

> I had surgery on my right hand years ago after it was

> injured at work, for trigger fingers (2 middle ones) and

> subsequent carpal tunnel - so it has ached for years.

> A couple years ago, my left one hurt so bad I told my

> doctor. He had given me Celebrex for a shoulder injury -

> imagine my surprise when my hands didn't hurt! Nice side

> effect - but then I realized how much they had been hurting.

> He was concerned and sent me to a rheumy. I saw the nurse

> practitioner, rheumy was booked, and within a few minutes she

> was handing me pamphlets on quinine stuff, lupus and RA.

> Scared me to death. Then she examined me and my hands were cold

> from fear but she said " Reynauds. " No, my husband has that in one

> finger from an injury, my hands are cold 'cause you are scaring

> me. I left and never went back. Been on Celebrex 1x day since.

>

> This summer, went back to my doctor cause my hands hurt worse and

> I was sooo tired. He had blood work done and I'm anemic. Had

> a hyterectomy 11 years ago, so he sent me to an internist - had

> endoscopy, colonoscopy and swallowed a camera...no internal bleeding.

> Still anemic (I'm trying to keep this short :- )

>

> She (internist) said, well, I think you have RA, possibly lupus.

> I said I didn't want to hear it. I knew a lady who had lupus

> 20 years ago and she was in bad shape, and all I could think

> of was the actor Carridene (?) and his gnarled hands.

> She said it wasn't like that anymore but told me to take iron

> supplements and come talk to her in 2 months, but urged me to go back

> to the rheumy. That was last week.

>

> Yesterday I went back to my family doctor, and was told, yes,

> go to the rheumy, you need to face this. Let me tell you up front,

> my reaction to this for 2 years has surprised even me, I'm normally

> a head-on person...hmmm

>

> Well, I go Dec. 9th. Not to his nurse, but to him (Fiechtner).

> I am on 2x Celebrex now and I am tired. No rash, no swelling,

> not really sure between the 2 what I have yet...

>

> Sorry this is so long. I am leaving for Florida tomorrow, so my

> posts will be limited, but I will have my computer with me.

> Any information will be welcome, especially good news ; )

> and God bless.

>

> Joyce in MI

[Guest guest]

Joyce,

I don't know much about Lupus. But if it's RA the best reason I can

give you to face this is that if you don't, you can easily end up

disfigured and disabled, but if you face it and get proper treatment,

there is a good chance you can get it under control and live a normal

life. Let us know what the rheumy says.

Jennie

--- In , " Joyce A " <robins49@m...>

wrote:

>

> Hi All,

>

> I have been reading all your posts and have been afraid

> to jump in. My doctor doesn't know if I have Lupua or RA

> and I have been avoiding reality for a couple years now.

>

> I had surgery on my right hand years ago after it was

> injured at work, for trigger fingers (2 middle ones) and

> subsequent carpal tunnel - so it has ached for years.

> A couple years ago, my left one hurt so bad I told my

> doctor. He had given me Celebrex for a shoulder injury -

> imagine my surprise when my hands didn't hurt! Nice side

> effect - but then I realized how much they had been hurting.

> He was concerned and sent me to a rheumy. I saw the nurse

> practitioner, rheumy was booked, and within a few minutes she

> was handing me pamphlets on quinine stuff, lupus and RA.

> Scared me to death. Then she examined me and my hands were cold

> from fear but she said " Reynauds. " No, my husband has that in one

> finger from an injury, my hands are cold 'cause you are scaring

> me. I left and never went back. Been on Celebrex 1x day since.

>

> This summer, went back to my doctor cause my hands hurt worse and

> I was sooo tired. He had blood work done and I'm anemic. Had

> a hyterectomy 11 years ago, so he sent me to an internist - had

> endoscopy, colonoscopy and swallowed a camera...no internal

bleeding.

> Still anemic (I'm trying to keep this short :- )

>

> She (internist) said, well, I think you have RA, possibly lupus.

> I said I didn't want to hear it. I knew a lady who had lupus

> 20 years ago and she was in bad shape, and all I could think

> of was the actor Carridene (?) and his gnarled hands.

> She said it wasn't like that anymore but told me to take iron

> supplements and come talk to her in 2 months, but urged me to go

back

> to the rheumy. That was last week.

>

> Yesterday I went back to my family doctor, and was told, yes,

> go to the rheumy, you need to face this. Let me tell you up front,

> my reaction to this for 2 years has surprised even me, I'm normally

> a head-on person...hmmm

>

> Well, I go Dec. 9th. Not to his nurse, but to him (Fiechtner).

> I am on 2x Celebrex now and I am tired. No rash, no swelling,

> not really sure between the 2 what I have yet...

>

> Sorry this is so long. I am leaving for Florida tomorrow, so my

> posts will be limited, but I will have my computer with me.

> Any information will be welcome, especially good news ; )

> and God bless.

>

> Joyce in MI

[Guest guest]

Hello

Welcome to the group. Connor is such a cutie. Love the cheeks. I

think you are doing the right thing, and he will round out in no

time at his age. What type of band are you getting for him?

Sandy Willow's Mom

>

> Hello everybody! My name is , my son Connor is 4 months

old. On

> April 11th he has an appt. for casting for the helmet, and then we

> have to go back 3 days later to be fitted and get the helmet. I'm

> nervous, and worried about the $ because the insurance might not

cover

> it because it's considered cosmetic; but I feel it's best for

Connor,

> so we're going thru with it. (My main concern is how he's going to

> feel when he's older and wonders why I didn't do anything about

the

> shape of his head, ear alignment, etc., when I had the chance.) I

look

> forward to meeting other plagio parents! Take care everybody!

>

> P.S. You can check out pics my handsome little man if you'd like,

> they're in the Plagio Kids folder, in the Connor M album.

[Guest guest]

Hi and Welcome to the group. I checked out Connor's pics. He has such a big, bright smile! My own opinion is you are doing the right thing. Connor's asymmetries are noticable and I don't see how repo or time would correct them enough to make you confortable. The bands/helmets are effective and nonevasive. He is at a wonderful age to see good and quick correction.

So where are you getting his helmet? You can read about my daughter's story on our family website and view her pics under DOC band before and afters - na.

mom to na

DOC Grad

South Carolina

www.thefilyaws.com

connorsmumelah <grumpywishbear@...> wrote:

Hello everybody! My name is , my son Connor is 4 months old. On April 11th he has an appt. for casting for the helmet, and then we have to go back 3 days later to be fitted and get the helmet. I'm nervous, and worried about the $ because the insurance might not cover it because it's considered cosmetic; but I feel it's best for Connor, so we're going thru with it. (My main concern is how he's going to feel when he's older and wonders why I didn't do anything about the shape of his head, ear alignment, etc., when I had the chance.) I look forward to meeting other plagio parents! Take care everybody! P.S. You can check out pics my handsome little man if you'd like, they're in the Plagio Kids folder, in the Connor M album. :)For more plagio info

[Guest guest]

Hi Coco,

Welcome to the group. Check out the Insurance files they may help with your fight.

mom to na

DOC Grad

South Carolina

www.thefilyaws.com*Cocomuffin* <evil_skuld@...> wrote:

hey there,i just joined up here so i thought i'd pop in and say hi. my daughter is 7 months old almost and we are fighting w/ our insurance company on coverage for her DOC band. i can't wait to meet everyone ~CocoFor more plagio info