Newbie

[Guest guest]

Ha ha!

> > > Hello everyone. Very sad to here of others medical

> > problems. We that

> > > have them can only try to work together with real time

> information when

> > > possible. Monroe

> > >

> >

>

[Guest guest]

Well fortunately, we don't seem to have that problem here. Not sure why you're getting those, because I'm not. doesn't usually let too many slip through the system. pennyvickisoul <vodkavicki@...> wrote: I want to be a member of it! But till today I haven't received anyposts except spam offering to increase my penis size!Vicki> Hello everyone. Very sad to here of others medicalproblems. We that > have them can only try to work together with real time information when > possible. Monroe>

[Guest guest]

I know, sorry, I meant to send the post to the 'cystitis' group and pressed the wrong button! Sorry about that.Does anyone here get recurrent cystitis, urethral pain or pelvic floor dysfunction?Vicki

On 04/03/07, Penny Houle <pennyhoule@...> wrote:

Well fortunately, we don't seem to have that problem here. Not sure why you're getting those, because I'm not. doesn't usually let too many slip through the system.

pennyvickisoul <vodkavicki@...> wrote:

I want to be a member of it! But till today I haven't received anyposts except spam offering to increase my penis size!Vicki

> Hello everyone. Very sad to here of others medicalproblems. We that > have them can only try to work together with real time information when > possible. Monroe>

[Guest guest]

Those enhancement spams were supposed to be directed at MD's to

complement their big egos and paychecks. Dr. 's little

helper pills puts the inflamation where they need it most.

Now if they could only grasp the concept that inflamation and

most " autoimmunity " is collatoral damage cused by an underlying

stealth infection, there might be more cures and fewer expensive

maintanance programs offered by those blokes.

> > Hello everyone. Very sad to here of others medical

> problems. We that

> > have them can only try to work together with real time

information when

> > possible. Monroe

> >

>

[Guest guest]

--- <dboskma@...> wrote:

> I am , just joined, I have 3 kids and live in the UK.

> I recently bought a copy of Nourishing Traditions and am looking

> around on the net for more stuff like that and found this group, so I

> decided to join.

Welcome aboard . There's a lot of great info in the archives

that you can access using the search box at the top of the NN group

web page.

You can also search some related using:

http://onibasu.com/

And of course, if you're lazy like most of us, just tell us what's on

your mind

[Guest guest]

Hi ,

I am sorry about the people around you, alot of us have had the same problem.

That is what is so great about this group we all understand.

Welcome.

Marsha

[ ] Newbie

I wanted to introduce myself. I am 32, married with 2 children. I

was diagnosed with Fibromyalgia a week ago. I am looking to talk with

people who understand this life. I am not getting a lot of support

from family and have a hard time at work.

Look forward to talking to you,

Jen

[Guest guest]

In a message dated 5/31/07 7:18:49 PM, ptbvisiongrrl@... writes:

> I just came from a very frustrating doctor's appointment, and have

> decided that I have to be much more active in my treatment and health

> and stop relying so much on doctors who aren't any smarter than me and

> don't really understand what's wrong with me>>>>

>

This is what my rheumie told me....

" I will not take an active role in helping you until you take an active role

in helping yourself " .

Pris

**************************************

See what's free at http://www.aol.com.

[Guest guest]

NELLIESTAR@... wrote:

>

> >This is what my rheumie told me....

> " I will not take an active role in helping you until you take an

> active role

> in helping yourself " .

>

I wish for just one week my rheumy could have RA. Just one week my

neursurgeon could have fractured vertebrae, and for one week my primary

care doctor could have every disease I do. Then maybe they would be

more sympathetic and eager to help me.

Nina

[Guest guest]

I wear a hearing aid in one ear and 3 months after being diagnosed with

RA, I noticed more of a hearing loss. It came and went periodically so

my PCP didn't do anything about it. After 2 months on Methotrexate the

hearing returned and has stayed -- yea!

Judy from Central Ill.

> Can anybody tell me more about hearing problems/ear problems and RA? I

> would really appreciate it. I plan on taking the time to look through

> the group more closely, but I just had to start by asking. I feel so

> very angry and rather desperate right now.

[Guest guest]

Hi,

I don't post much but felt I should with this topic. I have severe RA and

hearing loss in both ears. I wear hearing aids and I'm only 39-I've worn hearing

aids for 20 years now and probably had the RA for most of that time but I wasn't

formally diagnosed until 2 years ago. So yes, I believe that hearing loss and

autoimmune diseases go hand in hand. That's just my personal opinion...I seem to

remember reading somewhere that Rush Limbaugh has an autoimmune disease and

hearing loss also! ' in SC

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

[Guest guest]

Nina.....AMEN!!!!!!!!!!!!!

Rose

Nina <ncampbell@...> wrote:

NELLIESTAR@... wrote:

>

> >This is what my rheumie told me....

> " I will not take an active role in helping you until you take an

> active role

> in helping yourself " .

>

I wish for just one week my rheumy could have RA. Just one week my

neursurgeon could have fractured vertebrae, and for one week my primary

care doctor could have every disease I do. Then maybe they would be

more sympathetic and eager to help me.

Nina

[Guest guest]

Welcome!!!! Sorry to hear you have so many health problems. I didn't

think RA affected hearing. May I ask what type of meds your on? I

have read a possible side effect from Hydrocodone can cause loss in

hearing,(especially with high doses for long periods.) Which is

scary, I've been on it for about 5yrs now. I hope you can get some

answers on the group, were all here to try and help out with support.

Keep us posted, Tawny

[Guest guest]

, This is an interesting post, so glad it was brought up. I hope

to hear from others, I had no idea:( Tawny

[Guest guest]

Hi ,

Both of my children were very sensitive to corn - my dd was actually very,

very sick from it as an infant - it's in virtually every single formula on

the market. Have you eliminated corn from your daughter's diet?

Kristy

Newbie

Hi...

I'm so happy to have found this group. It looks like exactly what I'm

looking for! I was misdiagnosed with CFIDS/FM back in '96 and luckily

was diagnosed with Lyme Disease with co-infections in 2000 because I

was dying. I've gotten very aggressive treatment and I'm almost 100%

now. In Jan 2005 I gave birth to our only daughter after treating

aggressively with antibiotics during my pregnancy to prevent

transmission. All early tests showed things were fine but my husband

(who contracted LD from me years earlier) and I knew that the tests

were not close to accurate most of the time. We chose to avoid

vaccinations for our daughter due to the fear that she was not well.

She immediately showed allergy to her milk based formula with eczema

so we put her on a medical formula with just amino acids in it rather

than whole proteins. She did well but she refused spoon feeding and

regular foods made her rashes come back. I did an elmination diet and

she improved... dairy was the obvious one and I assumed wheat b/c her

father couldn't eat gluten as a child.

My daughter is being treated for gestational Lyme and Bartonella and

she is making amazing progress between that, the GFCF diet and the

therapies she receives. She is starting a special preschool on sept 5.

I want to bring her to see a lyme literate DAN doctor who is in the

area to get detox, vitamin help for her.... to fill the gaps in her

treatment now. What doctors do you guys see? Are there " NID " doctors?

I found the NID diet info interesting... that some kids can tolerate

non-whole grains (we're a " whole wheat family " . My daughter tolerates

a tapioca GFCF bread. What about the dairy used in making white bread?

Anyway, thanks for reading and any info would be helpful.

mom to emery 31 months LD/PDD-NOS

[Guest guest]

,

I am on SSD I applied Jan 2005, and was approved in May 2005(very

quick not the norm.) My Doctor had X-Rays done on my hands and feet so

that they would see the severe deformities that I have. The only DX I

have is RA, but like I said mine was approved very quickly. Good luck

to you, If you have any other question just ask someone will be able to

help.

Trudy

>

> Hi, my name is and I just joined the group. I have been

> suffering from RA/fibro for the last 6 years. I just had to buckle

> down and apply for disability since it's getting too hard for me to

> work.

> Has anyone here applied for SSD w/ RA/fibro as your main dx? I have

> other problems but that is the one of main reasons why. Everyone who

> I have talked to has gone on SSD for mental reasons. Since mine is

> mostly physical, I don't know what to expect.

> I didn't want to apply, it was a last resort, but after having a long

> talk w/ my husband, doctor and therapist...it's the best thing for

> me. I just feel like a waste of a person though. I am still young,

> I'm 30, so it has been a difficult choice for me. Any ideas? Thanks.

>

>

>

[Guest guest]

Trudy,

I haven't had x-rays of my hands and feet done in several years, but my

rheumatologist is OK w/ me filing for SSD. I told her I finally hit my breaking

point. I don't have any deformities yet, but hands bruise when I have flare up

making hard to do anything. Plus I have some other problems from a botched

surgery which leaves me in even more pain. All I can do is hope since I don't

have nothing else. Thanks for the words of encouragement. Hopefully w/ all that

is wrong with me will be enough and I physically took my medical records for the

past 2 years to the nearest SSD office where my claim is being handled. Thanks

again.

tru0204 <tru0204@...> wrote:

,

I am on SSD I applied Jan 2005, and was approved in May 2005(very

quick not the norm.) My Doctor had X-Rays done on my hands and feet so

that they would see the severe deformities that I have. The only DX I

have is RA, but like I said mine was approved very quickly. Good luck

to you, If you have any other question just ask someone will be able to

help.

Trudy

>

> Hi, my name is and I just joined the group. I have been

> suffering from RA/fibro for the last 6 years. I just had to buckle

> down and apply for disability since it's getting too hard for me to

> work.

> Has anyone here applied for SSD w/ RA/fibro as your main dx? I have

> other problems but that is the one of main reasons why. Everyone who

> I have talked to has gone on SSD for mental reasons. Since mine is

> mostly physical, I don't know what to expect.

> I didn't want to apply, it was a last resort, but after having a long

> talk w/ my husband, doctor and therapist...it's the best thing for

> me. I just feel like a waste of a person though. I am still young,

> I'm 30, so it has been a difficult choice for me. Any ideas? Thanks.

>

>

>

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and more!

[Guest guest]

Hi ,

If I didn't welcome you before , welcome to the group. My memory is about

as long as a horses tail. Anyway there are a lot of wonderful people here

can offer advise, an ear, or even a laugh when ya need it. I look forward to

getting to know ya.

Heidi M

On 9/19/07, tru0204 <tru0204@...> wrote:

>

> ,

> I am on SSD I applied Jan 2005, and was approved in May 2005(very

> quick not the norm.) My Doctor had X-Rays done on my hands and feet so

> that they would see the severe deformities that I have. The only DX I

> have is RA, but like I said mine was approved very quickly. Good luck

> to you, If you have any other question just ask someone will be able to

> help.

> Trudy

>

>

> >

> > Hi, my name is and I just joined the group. I have been

> > suffering from RA/fibro for the last 6 years. I just had to buckle

> > down and apply for disability since it's getting too hard for me to

> > work.

> > Has anyone here applied for SSD w/ RA/fibro as your main dx? I have

> > other problems but that is the one of main reasons why. Everyone who

> > I have talked to has gone on SSD for mental reasons. Since mine is

> > mostly physical, I don't know what to expect.

> > I didn't want to apply, it was a last resort, but after having a long

> > talk w/ my husband, doctor and therapist...it's the best thing for

> > me. I just feel like a waste of a person though. I am still young,

> > I'm 30, so it has been a difficult choice for me. Any ideas? Thanks.

> >

> >

> >

>

>

>

[Guest guest]

Hello and welcome!! There are a lot of people in this group, but I

assure you that you will come away with many friends, family, and so

much support. Feel free to write and know that you will not be

judged. If we can assist you, we will. If you just need someone to

listen, we will. If you are going through something and are not sure

if it is immune related, then post and you will get the replys that may

help. Just know that the weekends are usually a bit slow so there may

not be too many postings then. When you are ready, please feel free to

give us the download on who you are and what is going on in your life.

As for the chat room, it rarely gets used, though there are some in

this group who have posted an interest in getting people together at a

set time to chat. So, when you want, just post that request. But,

remember that not many people post much on weekends, so your request

may not get any replies until Monday. Welcome to the

group........Hugs, Marina

>

> Hi, everyone, just found these message boards and wanted to connect

> with someone. I just went to a new rheumatologist today. He's

sending

> me for tests for Lupus, RA, Sjogren's, and other AI diseases. Not

sure

> if I will have any blood left after all this. Haha Is there a chat

room

> for RA-Support? Thanks for being here.

>

[Guest guest]

Hello and welcome! Unfortunately, removed the chat feature from

groups some time ago. Messenger is the suggested alternative.

Not an MD

[ ] newbie

> Hi, everyone, just found these message boards and wanted to connect

> with someone. I just went to a new rheumatologist today. He's sending

> me for tests for Lupus, RA, Sjogren's, and other AI diseases. Not sure

> if I will have any blood left after all this. Haha Is there a chat room

> for RA-Support? Thanks for being here.

[Guest guest]

Hmm. Didn't know that. Thanks, . Hugs,,,Marina

--- In , " " <Matsumura_Clan@...>

wrote:

>

> Hello and welcome! Unfortunately, removed the chat feature

from

> groups some time ago. Messenger is the suggested alternative.

>

>

>

> Not an MD

[Guest guest]

Hi Welcome

I've got Lupus, if you wish to chat whether confirmed diagnosis of lupus or

not, feel free to email me personally. Always looking for new people to chat

with.

a

---------------------------------

Ask a question on any topic and get answers from real people. Go to

Answers.

[Guest guest]

Leanne, I have a friend who has this, and she is being treated with

prednisone. I understand that it is quite painful, but is not supposed

to do permanent damage to the joints. Prednisone can raise your blood

sugar, so make sure that your doctor keeps an eye on that. Sorry that

you have to go through this, but this is a very supportive group.

Sue

On Wednesday, November 21, 2007, at 10:27 PM, Leanne wrote:

> He suspects polymyalgia rheumatica, and wants to start me on

> prednisone.

>

> Does anyone have any experience with this, and/or any suggestions?

[Guest guest]

Hi Leanne

Welcome to the group. I can't say that know anything about your Dx but I

do know with prednisone you need to make sure you take some kind of vitimin

with Vitamin D in it. Of course you need to ask your Dr first, but pred can

lead to bone loss and as women we already are lacking in that area.It may

cause moods swings as well at fist until your body gets used to it. This

group has given me such suppport and information that has helped. Godd luck

and have a Happy Thanksgiving

Heidi M

On 11/21/07, Sue <marysue@...> wrote:

>

> Leanne, I have a friend who has this, and she is being treated with

> prednisone. I understand that it is quite painful, but is not supposed

> to do permanent damage to the joints. Prednisone can raise your blood

> sugar, so make sure that your doctor keeps an eye on that. Sorry that

> you have to go through this, but this is a very supportive group.

>

> Sue

>

> On Wednesday, November 21, 2007, at 10:27 PM, Leanne wrote:

>

> > He suspects polymyalgia rheumatica, and wants to start me on

> > prednisone.

> >

> > Does anyone have any experience with this, and/or any suggestions?

>

>

>

[Guest guest]

MEg,

Rest rest rest and try to avoid stress. I try to do thing just a little at

a time.Nothing completely takes the pain and decreased range of motion away

but it does halep some.

Heidi M

On 1/7/08, megsbyte <megsbyte@...> wrote:

>

> Hi all,

> Have just joined this group looking for information on RA. I've been

> diagnosted since August and am on methotrexate. Some days I feel fine,

> then others I feel like I can bearly move. This past weekend was

> terrible. The pain is mostly in my hands, feet and knees, but over the

> weekend it seemed as though my back was involved too. I now feel as

> though my feet are made of glass and are breaking with every move.

> I've also developed a rash. My husband has been wonderful, but I miss

> being able to move freely. Any suggestions would be greatly

> appreciated.

>

> Meg in MO

>

>

>

[Guest guest]

Heidi,

Ok, this is going to take some doing, but I have an hour commute

each way and since I work for the government, nothing but stress. Is

stress a component of RA or does it make things worse? My doc didn't

seem to think stress had any impact. Sorry if I sound like I'm

whining, but I'm starting to think I'll have to go on disability if I

can't get this under control.

Meg in MO

> >

> > Hi all,

> > Have just joined this group looking for information on RA. I've

been

> > diagnosted since August and am on methotrexate. Some days I feel

fine,

> > then others I feel like I can bearly move. This past weekend was

> > terrible. The pain is mostly in my hands, feet and knees, but

over the

> > weekend it seemed as though my back was involved too. I now feel

as

> > though my feet are made of glass and are breaking with every move.

> > I've also developed a rash. My husband has been wonderful, but I

miss

> > being able to move freely. Any suggestions would be greatly

> > appreciated.

> >

> > Meg in MO

> >

> >

> >

>

>

>