Great News

[Guest guest]

Marie, what wonderful news! You must be walking on air today!

Marilyn

Great news

Hi everyone,

Great news, my treatment is working. My doctor sent a little note with the

blood test results saying.

Hepatitis C ?

What Hepatitis C ?

Congratulations! Treatment is working!

[Guest guest]

WOW Marie!!

That is the BEST news I've had in over 2 weeks. I'm so glad to hear

you are doing so great. Keep up the good work!

Glad to hear the RBC has come back into the normal range and the

thyroid is behaving too.

LeighAnn

[Guest guest]

Marie,

Like the Hippy-Dippy Weatherman would say, " Like wow, man, do drugs,

they work! "

Glenn

> Hi everyone,

> Great news, my treatment is working. My doctor sent a little note

with the

> blood test results saying.

>

> Hepatitis C ?

> What Hepatitis C ?

> Congratulations! Treatment is working!

>

>

> The results of my PCR (viral load test) is LESS THAN 50, which is

as low as

> the test goes. That's a great improvement over 1.8 million!

>

> I guess this means I continue my treatment. Oh, well, at least I

know it's

> working. 15 weeks down, 33 to go.

>

> The doctor also gave me a prescription for a lower dose of my

thyroid

> medicine. He said I don't need as much, because my thyroid is

working

> better. Another bit of good news.

>

> My red blood cell count is also back to normal. Imagine that. For

some

> reason there was no liver function test done this month, but with

everything

> else OK, I'm sure they're normal, too. It was all normal last month.

> Platelets normal, too.

>

> Well, gotta go spread the good news.

>

> Marie in FL

[Guest guest]

> / 4makelas@s...

> Way, Way Up in Northern Ontario

>

> TREATMENT

> Eves Government Builds Bridge To The Future For Older Children With

Autism

> http://www.newswire.ca/releases/August2003/11/c9317.html

> CNW- The Ernie Eves government is delivering on its promise to help

> older children with autism, making Ontario the first province to

develop a

> program aimed at meeting the unique needs of these children.

,

That's exciting news. Do you live in this area?

Kathy

[Guest guest]

,

That's exciting news. Maybe we will be able to learn from them some ideas as

we too are building a pilot plan here!

F

[Guest guest]

That's great news! That's got to be a great load off your mind. -dz-rick <r_martin85@...> wrote:

Will all dr. called today and last blood test was neg. again. WOOOOOHOOOO said looks like they was wrong and i never had hep c.Still have to go see him on the 16th. I do want to stay in this group you all have became good friends. Rick

[Guest guest]

This is a major milestone!!I am so happy for you!

R

[Guest guest]

-

That is great news !!! At least you can get some help. It sounds

weird, but I have to realize how greatfull my problem was not related

to any work issues, and I had no problem with my insurance (other

than I owe a ton of money to the hospital). I have always heard such

horror stories about workers comp, my only experience was a broken

foot, which was pretty hard to deny it was broken !!! Back stuff is

hard enough to diagnose, much less prove how it happenend. I am

really nervous, living in California with our new Governator and his

ideas on Workers Comp reform how many people will be denied the help

they need. Of course, there is an incredable amount of abuse in the

system, both ways !!!

If you don't mind if I ask, what caused your spondy...I have

absolutely no idea of any injury or anything that caused mine. I

distinctly remember when I blew a disc, but no injuries/accidents

that would have caused the spondy.

Hopefully, you will be up and " running " soon.

Kris

> Ok all, for those of you who listened to my complaining about the

> insurance (Workers Comp) denying my claim and I was basically on my

> own, well that adjuster was either fired (this is what I think) or

> quit, I was given a new adjuster and they have APPROVED me to go

back

> to the Dr. approved my meds and approved the MRI for the possiblity

> of surgery. For those who dont know what is going on with me, I

have

> a grade 2-3 (now) spondylothesis, pars defect @ L5 S1 now with a 3

mm

> displacement at L5 S1. I have since been told that any wrong move

> will place my sorry butt in a wheel chair for the rest of my life,

> the vertabrae has twisted and is now pulling on the spinal cord.

> Ahhh yes I know when it is to because I could easily become a cat

and

> hang from the ceiling when it hits me.

>

> I sympathize with all of you whos lives have been disrupted by your

> wonderful back. I have been placed on bed or chair restriction, no

> movement that isnt necessary at all. I feel like some kind of a

> vegatable, just lying around, watching the world go past me as I

> sit/lie and wait.

>

> Have a good one all.

>

>

[Guest guest]

Glad that you are finally progressing...just be careful. I am surprised they

didn't take you in as an emergency.

Viv in GA

[Guest guest]

Good news Connie. Didn't you have all those other symptoms before? I had

most of that stuff when I was sick, everything except ankle pain. I figured

it was all lyme related. The blood type diet is good if you are from a true

blood line. Nowadays this is not too accurate because of the interbreeding

and all. Most doctors use the metabolic typing tests now to see how you

should eat, have you heard of these? Diet makes a huge difference, if more

people could just realize this. Well anyway, glad you don't have to start

all over again.

-- [ ] great news

Hi Everyone,

I heard from my LLMD today. My Dr. ran the blood test twice to make sure...

....both came back negative for lyme disease.

I am so, so, happy. Most of my symptoms can be explained....most of which I

have found out this past week. My ankle pain, are bone spurs, my hip pain

is an inflamed S-I joint. My sweating is low blood sugar. My fatigue is a

thyroid problem.

My abnormal bp and pulse.......have yet to be explained. I did have an

echocardiogram today...so we will see.

Isn't it odd.........but I'm happy that I have these other health issues and

it isn't lyme disease. I can take care of these health problems so much

easier than dealing with lyme disease.

The only symptom I can't explain was the short period of time with teeth

pain........that has totally subsided.........but was always a barometer

when I had lyme.........I think that is why my LLMD ran the blood tests

twice.

Anyway..........I feel better and better, as we get these other health

issues taken care of.

I even started following Dr. D'Adamo's diet.

Eating according to your blood type. Staying away from the foods I'm

allergic to......is making me feel better and I'm losing weight.

Well, it's too hot to sit at my computer........taking the dogs down to the

lake, so we can all take a swim and cool off.

Hope everyone else is doing ok today.

Connieknwnj

[Guest guest]

Thanks ,

I had some of these symptoms with lyme.

Especially the hip pain..........for years I haven't been able to find a Dr.

that could explain the hip pain. They all kept saying it was coming from my

back. Well, I finally went down to a more populated area, where Drs. see many,

many, patients with lots of different problems.........through my Physical

Therapist and my Dr.....I was dx with an inflamed S-I joint of the Hip.

It has taken seven months of PT, and three S-I joints injections to get the pain

to completely resolve. I am so glad something I have suffered from for 8 years

has finally been resolved.

I am feeling better..........I do much better on the Blood type diet too. I

had some blood testing done (to the tune of $500), and found which foods I have

an allergy to. Some of them are the ones that type O's are allergic to

according to Dr. D'adamo........Like Dairy. I don't touch dairy

anymore........drink rice milk, eat sheep cheese, use soy butter........etc.

I believe when you eat foods that you are intolerant to or allergic

to........you cause your immune system to weaken and also end up with symptoms

like join pain, cough, diarrhea, sleeplessness and sleepiness, etc.

I don't believe I have had the metabolic typing test done.......next time I go

into NY, I'll ask about it.

I have been on the thyroid meds for almost a week now and regulating my body's

sugar levels through food.....it's amazing how different I am starting to feel.

I hope I don't encounter any more ticks this summer.....

Connieknwnj

[Guest guest]

Glad to hear about your hip. You would not think that would be hard to

figure out for a doctor. I had another friend that had been thru 2 years of

testing with pain in leg. The way she described to me, I kept saying it

sounds like your sciatica. They put her through hell, with MRI's and test

after test. They even made her think she had cancer at one point. Then just

recently she tells me it was my sciatica. She also found out with all the

testing that she had heavy metals. thousands of dollars to find out 2 simple

things.

So where on earth to you get sheep cheese?? I have used goat cheese but

never sheep. I think the problem with dairy is what they feed the cows, the

hormones and the antibiotics and also the pasteurization. I am not sure what

has come first the weak immune system and then we cant tolerate foods, or

the foods cause us to have a weak immune. Our ancestors ate the dairy and

gluten, I think there are so many factors in this crazy world we live in.

My thyroid was wrecked with the lyme also, but I have brought it back with

supplements. The metabolic typing test is just a series of questions about

how certain foods makes you feel, about energy during the day and stuff like

that. They are easy to take. They will then tell you is you should be eating

mostly protein, mostly carbs, or mixed. Then they will have explanations of

the different types.

Too bad that once you have lyme disease you do not become immune to it,

like in other things.

-- Re: [ ] great news

Thanks ,

I had some of these symptoms with lyme.

Especially the hip pain..........for years I haven't been able to find a Dr.

that could explain the hip pain. They all kept saying it was coming from

my back. Well, I finally went down to a more populated area, where Drs.

see many, many, patients with lots of different problems.........through my

Physical Therapist and my Dr.....I was dx with an inflamed S-I joint of the

Hip.

It has taken seven months of PT, and three S-I joints injections to get the

pain to completely resolve. I am so glad something I have suffered from

for 8 years has finally been resolved.

I am feeling better..........I do much better on the Blood type diet too.

I had some blood testing done (to the tune of $500), and found which foods I

have an allergy to. Some of them are the ones that type O's are allergic

to according to Dr. D'adamo........Like Dairy. I don't touch dairy

anymore........drink rice milk, eat sheep cheese, use soy butter........etc.

I believe when you eat foods that you are intolerant to or allergic to......

..you cause your immune system to weaken and also end up with symptoms like

join pain, cough, diarrhea, sleeplessness and sleepiness, etc.

I don't believe I have had the metabolic typing test done.......next time I

go into NY, I'll ask about it.

I have been on the thyroid meds for almost a week now and regulating my body

s sugar levels through food.....it's amazing how different I am starting to

feel.

I hope I don't encounter any more ticks this summer.....

Connieknwnj

[Guest guest]

Hi Connie,

What kind of diet are you on? I am trying so hard to eat right

because my Lyme disease is pretty much out of control at this time.

I heard that eating anything with sugar will fuel the Lyme disease,

have you heard anything about that?

Thank You!!

> Hi Everyone,

>

> I heard from my LLMD today. My Dr. ran the blood test twice to

make sure.......both came back negative for lyme disease.

>

> I am so, so, happy. Most of my symptoms can be explained....most

of which I have found out this past week. My ankle pain, are bone

spurs, my hip pain is an inflamed S-I joint. My sweating is low

blood sugar. My fatigue is a thyroid problem.

> My abnormal bp and pulse.......have yet to be explained. I did

have an echocardiogram today...so we will see.

>

> Isn't it odd.........but I'm happy that I have these other health

issues and it isn't lyme disease. I can take care of these health

problems so much easier than dealing with lyme disease.

>

> The only symptom I can't explain was the short period of time with

teeth pain........that has totally subsided.........but was always a

barometer when I had lyme.........I think that is why my LLMD ran the

blood tests twice.

>

> Anyway..........I feel better and better, as we get these other

health issues taken care of.

> I even started following Dr. D'Adamo's diet.

> Eating according to your blood type. Staying away from the foods

I'm allergic to......is making me feel better and I'm losing weight.

>

> Well, it's too hot to sit at my computer........taking the dogs

down to the lake, so we can all take a swim and cool off.

>

> Hope everyone else is doing ok today.

> Connieknwnj

>

>

[Guest guest]

In a message dated 07/13/2005 2:59:21 PM Central Daylight Time,

lindamerkich@... writes:

Hi ... yes the lyme spirochete THRIVE on sugar.. it will make you hurt

worse.it will make everything worse... i about died when i found out no more

gummi bears! also starchy foods..

> Hi Connie,

>

> What kind of diet are you on? I am trying so hard to eat right

> because my Lyme disease is pretty much out of control at this time.

> I heard that eating anything with sugar will fuel the Lyme disease,

> have you heard anything about that?

>

> Thank You!!

>

>

[Guest guest]

Congrats, Deb!

[Guest guest]

In a message dated 8/23/2005 10:39:42 PM Eastern Daylight Time,

dd21597@... writes:

I wanted to share some good news. We just got a call from the

regional center, They are taking our dd on as a client finaly after

along battle. They say that they dont think its as they believe she

does have a devolmental delay and that she needs services. We meet

with them again on the 30th to determin what they feel she needs. We

are already paying for ot/si and speech . The person whom found her

eligable said that we are in need of a behaviorlist. I am so pleased

that she will be getting other service that she needs. I dont care if

they disagree with her dx . Thank you Deb

yeah, Deb! COngrats! I am sure this is a load off your mind!

Roxanna ô¿ò

Autism Happens...

[Guest guest]

>

> I just heard from the Dr. My viral load after 12 weeks is

> undetectable. I have had 1a for 28 years, Today is my first virus

> free day!

>

congrats because i am going to start my treatments by july and i would

b excited to here that

[Guest guest]

CONGRATULATIONS!

That is awesome! I hope that our insurance will do the same for us. That is a great amount to get back. And, I know you son is definitely worth the initial cost.

Kim

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of Sent: Sunday, February 17, 2008 2:27 PMPlagiocephaly Subject: Great News

I just opened my mail and Cigna approved my sons first helmet. We still have 2 more we hope to get approval for but what a relief to know we are getting back $2500 of the $7500 we already spent. I am ecstatic.

[Guest guest]

Congratulations!!!! Hopefully they will cover the others as continuation of treatment.

Angie

Great News

I just opened my mail and Cigna approved my sons first helmet. We still have 2 more we hope to get approval for but what a relief to know we are getting back $2500 of the $7500 we already spent. I am ecstatic.

[Guest guest]

That's awesome...hopefully, they will pay for the other 2.

>

> I just opened my mail and Cigna approved my sons first helmet. We

> still have 2 more we hope to get approval for but what a relief to

know

> we are getting back $2500 of the $7500 we already spent. I am

> ecstatic.

>

[Guest guest]

Cheryl,

I am so happy that you found a good rheummy. I did try adding Arava

to the mix, but I had problems with my blood pressure going up. Keep

an eye on yours. Don't panic over it, because it is one of the side

effects that most people do not have.

I sure hope this works for you.

Shirley

--- In , " cheryl.dines " <cheryl.dines@...>

wrote:

>

> Hi Clora and group

>

> Just wanted to let you know that I have been to my new Rheumy -

soooooo

> nice. Even gives out his home number in case I need him. Anyway,

I

> have to take Arava for a period of 3 months before the Aus govt

will

> allow me to go on the biologics. I have been on it now for 5 weeks

so

> only 2 months to go before I can change. I will no longer feel

left

> out - hehehehhe (just for you Clora)

>

> He took me of my pyralin so I am a bit scared about that. Hoping

it

> will all stay under control. He thinks mtx, plaquenil and Arava

will

> be enough for now. If the pyralin hasn't worked now it probably

won't.

> Has anyone done this? Very frightened of what is to come.....

>

> Cheryl

>

[Guest guest]

I just opened my emails late this afternoon and found one from MDACC.

20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your

megaphone out and I want my number sprinkled with stardust if that is not too

much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie

has his on his cap and he's never without it, but I don't look so good in a hat.

LOL Just wanted to share my good news, I waited 14.5 years to claim it and

announce it.

Another FYI,

Lottie Duthu

[Guest guest]

YIPEE YIPEEEEEEEEEEEEEEEEEEEEEEEEEEE

LOVE YOU

SHARON T

_____

From: [mailto: ] On Behalf Of Lottie

Duthu

Sent: Monday, December 28, 2009 5:03 PM

CML

Subject: [ ] Great News

I just opened my emails late this afternoon and found one from MDACC.

20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is

not too much trouble. Now there is a project, printing Zero numbers on

T-shirts. Zavie has his on his cap and he's never without it, but I don't

look so good in a hat. LOL Just wanted to share my good news, I waited 14.5

years to claim it and announce it.

Another FYI,

Lottie Duthu

[Guest guest]

Oh Lottie!

what great news! - I know how much you wanted this & it couldn't have happened

to a nicer person!

Years of watching others achieve the big zero & now you've got it!!! welcome to

the club!!!!

XXXXXX

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Now there is a project, printing Zero numbers on T-shirts.

Zavie has his on his cap and he's never without it, but I don't look so good in

a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it

and announce it.

>

> Another FYI,

> Lottie Duthu

>

>

[Guest guest]

LOTTIE, I AM SO HAPPY FOR YOU.  IT SURE TOOK YOU LONG ENOUGH, BUT YOU SHOWED

THOSE LITTLE BEASTIES WHO'S THE BOSS!!!!! WOW! CONGRATULATIONS AND YIPPEE, AND

ALL THOSE GOOD WORDS, AND HOW WONDERFUL FOR YOU, I AM SO EXCITED FOR YOU....DID

YOU DANCE A JIG? DID YOU TAKE A SWIG? THAT'S THE BEST NEWS EVER, AND WHAT A XMAS

PRESENT FOR YOU AND JIMMY AND YOUR FAMILY. DOESN'T GET ANY BETTER THAN THAT MY

FRIEND, PRINT THAT EMAIL AND FRAME IT , EVEN HANG ONE IN EVERY ROOM!!!! LOVE,

BOBBY

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

o2/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Great News

" CML " < >

Date: Monday, December 28, 2009, 8:03 PM

 

I just opened my emails late this afternoon and found one from MDACC.

20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your

megaphone out and I want my number sprinkled with stardust if that is not too

much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie

has his on his cap and he's never without it, but I don't look so good in a hat.

LOL Just wanted to share my good news, I waited 14.5 years to claim it and

announce it.

Another FYI,

Lottie Duthu