New member

[Guest guest]

Hi, This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned

some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm@...> wrote: Hi Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... Keep us posted,, and feel free to ask any questions.. thats what we are here for jackiebarron924 <barron924 > wrote: Hi Jax, I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more

support know from ppl who really understand and it means soooo much. Jackie on <redjaxjm > wrote: Hi Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too! I have known several ppl who have had serious depression and were able to successfully treat so I know its possible.. I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has

stopped this virus and she did not have an increase in her depression either.. I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE... We will be here for you and will help you in any way we can.. so DONT be defeated before you even start! jaxbarron924 <barron924 > wrote: Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a

Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on

meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she

was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for

listeningJackie Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Hi, This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned

some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm@...> wrote: Hi Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... Keep us posted,, and feel free to ask any questions.. thats what we are here for jackiebarron924 <barron924 > wrote: Hi Jax, I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more

support know from ppl who really understand and it means soooo much. Jackie on <redjaxjm > wrote: Hi Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too! I have known several ppl who have had serious depression and were able to successfully treat so I know its possible.. I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has

stopped this virus and she did not have an increase in her depression either.. I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE... We will be here for you and will help you in any way we can.. so DONT be defeated before you even start! jaxbarron924 <barron924 > wrote: Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a

Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on

meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she

was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for

listeningJackie Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Do you smoke by any chance ? Here is a link to a site you might find some info on . Now your viral load isn't low but it's not high either , your kinda at a med with those numbers . Now your doctors should have suggested sending you to a specialist for treatment , and you just may have a malpractice suit .

http://www.slovakradiology.sk/star/hrct_of_diffuse_lung_disease.htm

Re: New member

Hi,

This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm > wrote:

Hi

Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it...

Keep us posted,, and feel free to ask any questions.. thats what we are here for

jackiebarron924 <barron924 > wrote:

Hi Jax,

I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much.

Jackie on <redjaxjm > wrote:

Hi

Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too!

I have known several ppl who have had serious depression and were able to successfully treat so I know its possible..

I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either..

I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE...

We will be here for you and will help you in any way we can.. so DONT be defeated before you even start!

jaxbarron924 <barron924 > wrote:

Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for listeningJackie

Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Do you smoke by any chance ? Here is a link to a site you might find some info on . Now your viral load isn't low but it's not high either , your kinda at a med with those numbers . Now your doctors should have suggested sending you to a specialist for treatment , and you just may have a malpractice suit .

http://www.slovakradiology.sk/star/hrct_of_diffuse_lung_disease.htm

Re: New member

Hi,

This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm > wrote:

Hi

Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it...

Keep us posted,, and feel free to ask any questions.. thats what we are here for

jackiebarron924 <barron924 > wrote:

Hi Jax,

I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much.

Jackie on <redjaxjm > wrote:

Hi

Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too!

I have known several ppl who have had serious depression and were able to successfully treat so I know its possible..

I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either..

I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE...

We will be here for you and will help you in any way we can.. so DONT be defeated before you even start!

jaxbarron924 <barron924 > wrote:

Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for listeningJackie

Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

I think that you would be wasting time, energy and money persuing a

malpractice suit. All the doctor has to say is that he didn't think

that you were a candidate for treatment and you loose.

Lee

> Hi,

> I've been reading a lot of messages for a few weeks. I haven't had

> the guts to send a message. I've been diagnosed with chronic hep c

> since 1993..I know I was exposed in 1992. Back then few had much

> info and it took my Dr til 1997 to send me to a Hepatologist. I was

> only 26. She did a liver biopsy and was pleased to tell me it came

> out better than she had thought it would. Mild fibrosis...I can't

> say at that time I understood about the virus. She shed a lot of

> light and talked to me about interferon, however, I have a long

> history (since young teenager) of severe depressive disorder, panic

> disorder, ADHD....many severe suicide attempts that made me a very

> risky candidate and since I had little knowledge about the virus I

> opted NOT to risk ever being that depressed. Well, since then I

have

> done my large share of drinking, been on pretty harsh psych meds

and

> then had my gallbladder out in 1992...the surgeon was nice and he

> took a biopsy while he was in there...he said " you have some

> scarring and DON'T drink! I never went back to a specialist..my

> primary care even said no doctor would do the treatment due to my

> mental history even though I had been stable on meds for many years

> and followed by a repected Psychiatrist. So yrs pasted and I

started

> noticing I got the flu all the time...felt tired and I used to play

> tennis, ice skate..lots of energy!!! In the recent year Ive lost

> weight I can't gain back, my muscles ache, and I came down with a

> severe left lung infectious pneumonia this past year, then another

> infection. My Dr was baffled by the pneumonia until she bothered to

> look at my chart and say " you have hep C? " I'm like " yeah " ...she

> said my immune system was deficient..very comromised and I needed

> vaccines, recommended I see a specialist. I called a very well

> respected specialist (one my ex husband went to and did the

> treatment and is still virus free) I explained my pneumonia and my

> red palms for years....chest rash, weight loss and that it's been

15

> yrs. They wanted to get me in right away but needed a call from my

> primary care....when I asked my primary care she was angry at me

and

> then literally said she had no liver tests on me...I told her she

> has years of then and most recently on 5/16/07 ..I was terrified I

> thought she was losing her mind.....then she laughed at me and said

> I've had it for so long whats the big rush!!!!!! I did call the

> physicians licensing board and make a complaint....but I still have

> to wait til 7/31/07 for my specialist.

> I also have a dull to more aching pain in my right side....my

> skin seems to be changing also. I am scared and I was hoping for

> some feedback, good or bad..honest feedback. I'm scared I won't be

> able to tolerate the treatment...actually I am most terrified at

> what my next biopsy is going to come out like.

> Also, it seems like even the closest people to me just think I

> am exgaggerating about how sick I feel. I don't complain a

lot...but

> I am tired and fatigued, achey on and off. I feel alone.

>

> thanks for listening

>

>

>

>

>

>

>

> Jackie

>

>

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

>

>

>

>

>

>

> Jackie

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

[Guest guest]

I think that you would be wasting time, energy and money persuing a

malpractice suit. All the doctor has to say is that he didn't think

that you were a candidate for treatment and you loose.

Lee

> Hi,

> I've been reading a lot of messages for a few weeks. I haven't had

> the guts to send a message. I've been diagnosed with chronic hep c

> since 1993..I know I was exposed in 1992. Back then few had much

> info and it took my Dr til 1997 to send me to a Hepatologist. I was

> only 26. She did a liver biopsy and was pleased to tell me it came

> out better than she had thought it would. Mild fibrosis...I can't

> say at that time I understood about the virus. She shed a lot of

> light and talked to me about interferon, however, I have a long

> history (since young teenager) of severe depressive disorder, panic

> disorder, ADHD....many severe suicide attempts that made me a very

> risky candidate and since I had little knowledge about the virus I

> opted NOT to risk ever being that depressed. Well, since then I

have

> done my large share of drinking, been on pretty harsh psych meds

and

> then had my gallbladder out in 1992...the surgeon was nice and he

> took a biopsy while he was in there...he said " you have some

> scarring and DON'T drink! I never went back to a specialist..my

> primary care even said no doctor would do the treatment due to my

> mental history even though I had been stable on meds for many years

> and followed by a repected Psychiatrist. So yrs pasted and I

started

> noticing I got the flu all the time...felt tired and I used to play

> tennis, ice skate..lots of energy!!! In the recent year Ive lost

> weight I can't gain back, my muscles ache, and I came down with a

> severe left lung infectious pneumonia this past year, then another

> infection. My Dr was baffled by the pneumonia until she bothered to

> look at my chart and say " you have hep C? " I'm like " yeah " ...she

> said my immune system was deficient..very comromised and I needed

> vaccines, recommended I see a specialist. I called a very well

> respected specialist (one my ex husband went to and did the

> treatment and is still virus free) I explained my pneumonia and my

> red palms for years....chest rash, weight loss and that it's been

15

> yrs. They wanted to get me in right away but needed a call from my

> primary care....when I asked my primary care she was angry at me

and

> then literally said she had no liver tests on me...I told her she

> has years of then and most recently on 5/16/07 ..I was terrified I

> thought she was losing her mind.....then she laughed at me and said

> I've had it for so long whats the big rush!!!!!! I did call the

> physicians licensing board and make a complaint....but I still have

> to wait til 7/31/07 for my specialist.

> I also have a dull to more aching pain in my right side....my

> skin seems to be changing also. I am scared and I was hoping for

> some feedback, good or bad..honest feedback. I'm scared I won't be

> able to tolerate the treatment...actually I am most terrified at

> what my next biopsy is going to come out like.

> Also, it seems like even the closest people to me just think I

> am exgaggerating about how sick I feel. I don't complain a

lot...but

> I am tired and fatigued, achey on and off. I feel alone.

>

> thanks for listening

>

>

>

>

>

>

>

> Jackie

>

>

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

>

>

>

>

>

>

> Jackie

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

[Guest guest]

Hi Lee.. I am basically in the same boat, but older. I may have had the disease since the 80's. I started having high ALT and AST on my yearly CBC (Normal yearly checkup blood work) about 5+ years ago, but my overall tests were signed off as normal or stable until recently. I suffer from severe depression. I was diagnosed in 7/2006 after getting sick and showed up in full Jaundice at the Dr's office. They did a full Liver panel and CBC and connected the dots. I held off on the Liver Biopsy and (tx) because of depression and other medical issues. I have tried most if not all the "alternative" medicines including Neutral Peptides with no luck. Still evaluating my options, but for now it looks like pegylated interferon and ribavirin is the only 50/50 shot we have, besides a miracle...Good Luck!! Lee <leecuate@...> wrote: I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c

> since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some

> scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the

> treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to

tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with

FareChase.>

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

[Guest guest]

I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had a damaged liver and worsening labs .

Re: New member

I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.>

[Guest guest]

Neither the General Practioner (PCP), Psychiatrist / Psychologist nor the Gastroenteroligist/LS should be making the decision alone. It should be a joint effort, with the patient making the final decision. elizabethnv1 <elizabethnv1@...> wrote: I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had

a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee---

In Hepatitis C , barron924 <barron924@...> wrote:>> Hi,> This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my

platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in> right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all again> > Jackie on <redjaxjm@...> wrote:> Hi > Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx

if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... > Keep us posted,, and feel free to ask any questions.. thats what we are here for> jackie> > barron924 <barron924@...> wrote:> Hi Jax,> I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much.> > > > Jackie on <redjaxjm@...> wrote:> Hi > Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome

honey to our group that is now YOUR group too!> I have known several ppl who have had serious depression and were able to successfully treat so I know its possible.. > I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either.. > I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE...

> We will be here for you and will help you in any way we can.. so DONT be defeated before you even start!> jax> > barron924 <barron924@...> wrote:> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and

since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another >

infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the >

physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business

gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.>

Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out.

[Guest guest]

Neither the General Practioner (PCP), Psychiatrist / Psychologist nor the Gastroenteroligist/LS should be making the decision alone. It should be a joint effort, with the patient making the final decision. elizabethnv1 <elizabethnv1@...> wrote: I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had

a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee---

In Hepatitis C , barron924 <barron924@...> wrote:>> Hi,> This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my

platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in> right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all again> > Jackie on <redjaxjm@...> wrote:> Hi > Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx

if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... > Keep us posted,, and feel free to ask any questions.. thats what we are here for> jackie> > barron924 <barron924@...> wrote:> Hi Jax,> I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much.> > > > Jackie on <redjaxjm@...> wrote:> Hi > Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome

honey to our group that is now YOUR group too!> I have known several ppl who have had serious depression and were able to successfully treat so I know its possible.. > I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either.. > I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE...

> We will be here for you and will help you in any way we can.. so DONT be defeated before you even start!> jax> > barron924 <barron924@...> wrote:> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and

since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another >

infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the >

physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business

gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.>

Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out.

[Guest guest]

well I think that it IS IN HER BEST INTEREST to speak with an attorney.. most will not take on a lawsuit if they think they wont win,, especially if they are doing based upon a contingency basis.. I think her doc was very negligent! SO I think that SHE SHOULD speak with a medical malpractice attorney and then make up her mind if she thinks she has a case... but I'd at least talk with someone...elizabethnv1 <elizabethnv1@...> wrote: I disagree with you here Lee . A regular general

practioner is not qualified to say she isn't a candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and

money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however,

I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!!

In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on

5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > >

> Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.> Jackie

[Guest guest]

Hi Lee,, well I think she should at least speak with a medical malpractice attorney because they typically wont take on a case unless they believe they can and WLL win.. My doc saw that my alt/ast were fluxuating between normal and elevated and never checked me for hep c either but I would never sue him for it... because I was an educated person who had a background in medicine too and I "COULD" have asked for a hep c test too and I didnt, I think I was afraid but that is and was my responsibility to ask as well.. but I didnt have a pos hep c test like she did, her doc knew she had hep and never addressed it, so I think she may have a case.. the doc would have to justify his decision to say that she was not a candidate,, I dont think he can just 'say' that and get away with it, he would have to show medical research to validate his word,, and he probably wouldnt! just my 2 cents,, lolLee <leecuate@...> wrote: I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been

diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in

there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex

husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I

won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with

FareChase.>Jackie

[Guest guest]

Hi Barron Im glad you feel that way about our group, most of us do feel that way! Well the only advice I could give you about the malpractice suit would be to talk with an attorney who specializes in medical malpractice.. If you could get one to take your suit on a contingency basis, then you will know if you have a case or not,, most attorneys wont take on a suit unless they believe they can win... so that would be where I'd start.. I'd make sure you get a copy of your ENTIRE medical chart first.. so that you have them before some of it 'might' magically disappear from your file.. I'd go directly to the docs office and ask for the copy right then and there,, you might have to pay a fee to get them but you need to do that before you do anything else.. I have a complete copy of my medical file because when we moved, I wanted to have the copy with me.. and my doc was very sad to see me go and was very willing to give me the

copy.. I still stay in touch with him when we go to Portland, I always stop in and see him and he always gives me a big hug! Good luck hon and keep us updated how things are going! jaxbarron924 <barron924@...> wrote: Hi, This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my

gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying

when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm > wrote: Hi Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... Keep us posted,, and feel free to ask any questions.. thats what we are here

for jackiebarron924 <barron924 > wrote: Hi Jax, I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much. Jackie on <redjaxjm > wrote: Hi Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too! I have known several ppl who have had serious depression and were able to

successfully treat so I know its possible.. I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either.. I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE... We will be here for you and will help you in any way we can.. so DONT be defeated before you even start! jaxbarron924

<barron924 > wrote: Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that

depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was

deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was

hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for listeningJackie Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie Looking for a deal? Find great prices on flights and hotels with FareChase. Jackie

[Guest guest]

Hi Barron Im glad you feel that way about our group, most of us do feel that way! Well the only advice I could give you about the malpractice suit would be to talk with an attorney who specializes in medical malpractice.. If you could get one to take your suit on a contingency basis, then you will know if you have a case or not,, most attorneys wont take on a suit unless they believe they can win... so that would be where I'd start.. I'd make sure you get a copy of your ENTIRE medical chart first.. so that you have them before some of it 'might' magically disappear from your file.. I'd go directly to the docs office and ask for the copy right then and there,, you might have to pay a fee to get them but you need to do that before you do anything else.. I have a complete copy of my medical file because when we moved, I wanted to have the copy with me.. and my doc was very sad to see me go and was very willing to give me the

copy.. I still stay in touch with him when we go to Portland, I always stop in and see him and he always gives me a big hug! Good luck hon and keep us updated how things are going! jaxbarron924 <barron924@...> wrote: Hi, This group is a Godsend for me. I just picked up my med recs from my primary for the specialist I am seeing and I am filing a malpractice suit....since 2003 my liver tests were not good and my biopsy report from another doctor to them when I had my

gallbladder out said I had imflammation and scaaring in the portal area and something about the cells....also my HCV RNA was over 817000 in many tests and Im not sure how bad that is, I do know it was flagged ad High and my ALT was over 140. and AST also high on a constant basis and they never told me!!!!.I was wondering with everyone elses personal experience if those are really worrysome high or just elevated high cause the last tests where the beginning of 2005 and now my WBC is high also and so is my platelets which were VERY high.....also the radiologist report never cleared me totally of that pneumonia and she called me and wanted to vaccinate me saying I was cleared...the radiologist also mentioned some linear density in right lung that was not related to pneumonia....if anyone in their own experience can explain what they know about these tests and results from personal experience....I just keep getting lung infections don't feel well alot and Im praying

when the specialist does a biopsy its not as bad as I know it could be...but I am very hopeful and have a positive attitude and reading the groups postings and the wonderful feedback has been the best medicine so far.....thank you all againJackie on <redjaxjm > wrote: Hi Well hon, you are no longer alone and we will walk with you all the way! I truely hope your doc can see that YOU CAN do this tx if you are prepared for it.. its very very important that YOU take responsibility for CHOOSING NOT to harm yourself no matter how depressed you get while on tx because remember, its NOT FOREVER... IF you are geno 1, you treat for 48 weeks,, its NOT forever altho while on tx it CAN feel like it... Keep us posted,, and feel free to ask any questions.. thats what we are here

for jackiebarron924 <barron924 > wrote: Hi Jax, I have received so many helpful and encouraging stories from members and I can't tell you how much it has helped my outlook in just one day. Im still scared but I feel I have more support know from ppl who really understand and it means soooo much. Jackie on <redjaxjm > wrote: Hi Im jax or Jackie, Im one of the co-owners and moderators here and I'd just like to say welcome honey to our group that is now YOUR group too! I have known several ppl who have had serious depression and were able to

successfully treat so I know its possible.. I knew one lady who signed a contract with her doc that IF she became so depressed that she even 'thought' about harming herself, she promised to call him day or night.. I spoke with her husband and assurred him that she had promised me too not to hurt herself.. and you know what? She treated and is clear now a year!!! After finishing tx,, a whole year,, she has stopped this virus and she did not have an increase in her depression either.. I didnt know I had hep c when going through a very ugly divorce so my doc put me on celexa and then when I got my diagnosis, he upped my dose BEFORE I started tx and quite honestly, I NEVER had once ounce of increased depression.. so I know you CAN do this honey,, its all a matter of YOUR CHOICE... We will be here for you and will help you in any way we can.. so DONT be defeated before you even start! jaxbarron924

<barron924 > wrote: Hi,I've been reading a lot of messages for a few weeks. I haven't had the guts to send a message. I've been diagnosed with chronic hep c since 1993..I know I was exposed in 1992. Back then few had much info and it took my Dr til 1997 to send me to a Hepatologist. I was only 26. She did a liver biopsy and was pleased to tell me it came out better than she had thought it would. Mild fibrosis...I can't say at that time I understood about the virus. She shed a lot of light and talked to me about interferon, however, I have a long history (since young teenager) of severe depressive disorder, panic disorder, ADHD....many severe suicide attempts that made me a very risky candidate and since I had little knowledge about the virus I opted NOT to risk ever being that

depressed. Well, since then I have done my large share of drinking, been on pretty harsh psych meds and then had my gallbladder out in 1992...the surgeon was nice and he took a biopsy while he was in there...he said "you have some scarring and DON'T drink! I never went back to a specialist..my primary care even said no doctor would do the treatment due to my mental history even though I had been stable on meds for many years and followed by a repected Psychiatrist. So yrs pasted and I started noticing I got the flu all the time...felt tired and I used to play tennis, ice skate..lots of energy!!! In the recent year Ive lost weight I can't gain back, my muscles ache, and I came down with a severe left lung infectious pneumonia this past year, then another infection. My Dr was baffled by the pneumonia until she bothered to look at my chart and say "you have hep C?" I'm like "yeah"...she said my immune system was

deficient..very comromised and I needed vaccines, recommended I see a specialist. I called a very well respected specialist (one my ex husband went to and did the treatment and is still virus free) I explained my pneumonia and my red palms for years....chest rash, weight loss and that it's been 15 yrs. They wanted to get me in right away but needed a call from my primary care....when I asked my primary care she was angry at me and then literally said she had no liver tests on me...I told her she has years of then and most recently on 5/16/07 ..I was terrified I thought she was losing her mind.....then she laughed at me and said I've had it for so long whats the big rush!!!!!! I did call the physicians licensing board and make a complaint....but I still have to wait til 7/31/07 for my specialist.I also have a dull to more aching pain in my right side....my skin seems to be changing also. I am scared and I was

hoping for some feedback, good or bad..honest feedback. I'm scared I won't be able to tolerate the treatment...actually I am most terrified at what my next biopsy is going to come out like.Also, it seems like even the closest people to me just think I am exgaggerating about how sick I feel. I don't complain a lot...but I am tired and fatigued, achey on and off. I feel alone.thanks for listeningJackie Building a website is a piece of cake. Small Business gives you all the tools to get online. Jackie Looking for a deal? Find great prices on flights and hotels with FareChase. Jackie

[Guest guest]

He even wrote it in my records that I had a long depression history and not a candidate for tx.........I have it in writing plus like I said they never called me with any of my results when they where flagged or discussed them at anytime. I just want to try to get the treatment if they let me most importantly ...but this Dr's office has been horrible to me since I complained and didnt even give me my full medical record plus she was very angry cause I didnt pick umass memorial (not best reputation and far away but her office is affiliated with them) when I called a specialist myself I picked a reuttable one and closer...she was very angry kept saying "I've never heard of him, where is he located?" and repeated this over and overJackie on <redjaxjm@...> wrote: well I think that it IS IN HER BEST INTEREST to speak with an attorney.. most will not take on a lawsuit if they think they wont win,, especially if they are doing based upon a contingency basis.. I think her doc was very negligent! SO I think that SHE SHOULD speak with a medical malpractice attorney and then make up her mind if she thinks she has a case... but I'd at least talk with someone...elizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a

candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and money persuing a malpractice suit. All the

doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe

depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back,

my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her

mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > >

---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.> Jackie

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

He even wrote it in my records that I had a long depression history and not a candidate for tx.........I have it in writing plus like I said they never called me with any of my results when they where flagged or discussed them at anytime. I just want to try to get the treatment if they let me most importantly ...but this Dr's office has been horrible to me since I complained and didnt even give me my full medical record plus she was very angry cause I didnt pick umass memorial (not best reputation and far away but her office is affiliated with them) when I called a specialist myself I picked a reuttable one and closer...she was very angry kept saying "I've never heard of him, where is he located?" and repeated this over and overJackie on <redjaxjm@...> wrote: well I think that it IS IN HER BEST INTEREST to speak with an attorney.. most will not take on a lawsuit if they think they wont win,, especially if they are doing based upon a contingency basis.. I think her doc was very negligent! SO I think that SHE SHOULD speak with a medical malpractice attorney and then make up her mind if she thinks she has a case... but I'd at least talk with someone...elizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a

candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and money persuing a malpractice suit. All the

doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe

depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back,

my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her

mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > >

---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.> Jackie

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

well just because you have a long history of depression does NOT exclude you from tx, I know many, including myself who had depression before I knew I had hep and I was able to safely treat!barron924 <barron924@...> wrote: He even wrote it in my records that I had a long depression history and not a candidate for tx.........I have it in writing plus like I said they never called me with any of my results when they where flagged or discussed them at anytime. I just want to try to get the treatment if they let me most

importantly ...but this Dr's office has been horrible to me since I complained and didnt even give me my full medical record plus she was very angry cause I didnt pick umass memorial (not best reputation and far away but her office is affiliated with them) when I called a specialist myself I picked a reuttable one and closer...she was very angry kept saying "I've never heard of him, where is he located?" and repeated this over and overJackie on <redjaxjm > wrote: well I think that it IS IN HER BEST INTEREST to speak with an attorney.. most will not take on a lawsuit if they think they wont win,, especially if they are doing based upon a contingency basis.. I think her doc was very negligent! SO I think that SHE SHOULD speak with a medical malpractice attorney and then make up her mind if she thinks she has a

case... but I'd at least talk with someone...elizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: I disagree with you here Lee . A regular general practioner is not qualified to say she isn't a candidate . The whole point is that her doc didn't refer to the specialist for consultation even tho he knew she had a damaged liver and worsening labs . Re: New member I think that you would be wasting time, energy and money persuing a malpractice suit. All the doctor has to say is that he didn't think that you were a candidate for treatment and you loose. Lee> Hi,> I've been reading a lot of messages for a few weeks. I haven't had > the guts to send a message. I've been diagnosed with chronic hep c > since 1993..I know I was exposed in 1992. Back then few had much > info and it

took my Dr til 1997 to send me to a Hepatologist. I was > only 26. She did a liver biopsy and was pleased to tell me it came > out better than she had thought it would. Mild fibrosis...I can't > say at that time I understood about the virus. She shed a lot of > light and talked to me about interferon, however, I have a long > history (since young teenager) of severe depressive disorder, panic > disorder, ADHD....many severe suicide attempts that made me a very > risky candidate and since I had little knowledge about the virus I > opted NOT to risk ever being that depressed. Well, since then I have > done my large share of drinking, been on pretty harsh psych meds and > then had my gallbladder out in 1992...the surgeon was nice and he > took a biopsy while he was in there...he said "you have some > scarring and DON'T drink! I never went back to a specialist..my > primary

care even said no doctor would do the treatment due to my > mental history even though I had been stable on meds for many years > and followed by a repected Psychiatrist. So yrs pasted and I started > noticing I got the flu all the time...felt tired and I used to play > tennis, ice skate..lots of energy!!! In the recent year Ive lost > weight I can't gain back, my muscles ache, and I came down with a > severe left lung infectious pneumonia this past year, then another > infection. My Dr was baffled by the pneumonia until she bothered to > look at my chart and say "you have hep C?" I'm like "yeah"...she > said my immune system was deficient..very comromised and I needed > vaccines, recommended I see a specialist. I called a very well > respected specialist (one my ex husband went to and did the > treatment and is still virus free) I explained my pneumonia and my > red palms for

years....chest rash, weight loss and that it's been 15 > yrs. They wanted to get me in right away but needed a call from my > primary care....when I asked my primary care she was angry at me and > then literally said she had no liver tests on me...I told her she > has years of then and most recently on 5/16/07 ..I was terrified I > thought she was losing her mind.....then she laughed at me and said > I've had it for so long whats the big rush!!!!!! I did call the > physicians licensing board and make a complaint....but I still have > to wait til 7/31/07 for my specialist.> I also have a dull to more aching pain in my right side....my > skin seems to be changing also. I am scared and I was hoping for > some feedback, good or bad..honest feedback. I'm scared I won't be > able to tolerate the treatment...actually I am most terrified at > what my next biopsy is going to

come out like.> Also, it seems like even the closest people to me just think I > am exgaggerating about how sick I feel. I don't complain a lot...but > I am tired and fatigued, achey on and off. I feel alone.> > thanks for listening> > > > > > > > Jackie > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online. > > > > > > > Jackie > > > > > ---------------------------------> Looking for a deal? Find great prices on flights and hotels with FareChase.> Jackie oneSearch: Finally, mobile search that gives answers, not web links. Jackie

[Guest guest]

>

> You are in the right place. Shriners in SLC is a wonderful place,

you

> can contact them yourself if you don't hear anything soon from

your

> own doctor. Do you know Maddox's current COBB and RVAD

measurements

> from recent xrays, has he had an MRI to rule out congenital

> scoliosis? If the curves are still progressing in brace, it is

> important you get a consult with Shriners for them to evaluate

Maddox

> as a possible canidate for serial casting. I wish you all the best

> with your journey. It sounds like you have most certainly been on

a

> roller coaster since his birth. Please feel free to come here to

ask

> questions, vent, etc...these mom's have been such a wonderful

support

> place for me during Matson's diagnoses and treatment so far.

>

> Keep us updated.

> STeph

> Tyler 4

> Matson 16 months (dx 12/06 with 41 degree COBB and 38 RVAD)

> Lily 5 months

>

Thank you for your reply! We go to see our ortho on thurs. the 12th

fo July. Maddox has had an MRI and it came back ok. And I do know

the % of his curves, but I am not sure which is COBB and which is

RVAD.

I know that the numbers were in the high 40s and mid 30s at last x-

ray. I also have that terrible sick feeling in my stomach that it

has worsened. My husband says that I'm crazy and that I couldn't

possibly tell from looking, but I think I can. His " hump " looks

worse. I guess all we can do is pray right now and wait until

Thurs. Please tell me more about your kids! I have an 8 yr old girl,

(Ashton), a 4 yr old boy(Jack), and Maddox(16 mos).

Thanks Again, God Bless,

Dena

[Guest guest]

Hi Jim Welcome to the family!!! hugs dshortylookupalot wrote: Hi Everyone:My name is Jim, I'm a 45 year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired

this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not

to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all..

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

Hi Jim Welcome to the family!!! hugs dshortylookupalot wrote: Hi Everyone:My name is Jim, I'm a 45 year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired

this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not

to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all..

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

Hi Jim Welcome to the family!!! hugs dshortylookupalot wrote: Hi Everyone:My name is Jim, I'm a 45 year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired

this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not

to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all..

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

Hi Jim welcome and big hugs to you. I am 61 name is Pat aka Ww been on tx 15 or 16 weeks ha can't remember. Right now I am showing clear and hope it stays that way. I am now on procrit as my blood work is very low and took first shot last night don't like it one bit, very ill today. My hearing has gone down but not really bad at least not yet. So glad you are here with us and you are not alone in this loving family. hugs...Wwdanne wrote: Hi Jim Welcome to the

family!!! hugs dshortylookupalot <wandererdriftercomcast (DOT) net> wrote: Hi Everyone:My name is Jim, I'm a 45 year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say

the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least

no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all.. Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

Hi Jim welcome and big hugs to you. I am 61 name is Pat aka Ww been on tx 15 or 16 weeks ha can't remember. Right now I am showing clear and hope it stays that way. I am now on procrit as my blood work is very low and took first shot last night don't like it one bit, very ill today. My hearing has gone down but not really bad at least not yet. So glad you are here with us and you are not alone in this loving family. hugs...Wwdanne wrote: Hi Jim Welcome to the

family!!! hugs dshortylookupalot <wandererdriftercomcast (DOT) net> wrote: Hi Everyone:My name is Jim, I'm a 45 year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say

the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least

no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all.. Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

hello jim and photo and all new n old.not much ta say its in otheer post/almost could walk out on my front porch throw a rock in hit ya jim.you just a tad bit south of heredanne wrote: Hi Jim Welcome to the family!!! hugs dshortylookupalot <wandererdriftercomcast (DOT) net> wrote: Hi Everyone:My name is Jim, I'm a 45

year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a

hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all.. Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase. Tim Parsons knoxville,tn 37931 x107 work www.knoxville1.com

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when.

[Guest guest]

hello jim and photo and all new n old.not much ta say its in otheer post/almost could walk out on my front porch throw a rock in hit ya jim.you just a tad bit south of heredanne wrote: Hi Jim Welcome to the family!!! hugs dshortylookupalot <wandererdriftercomcast (DOT) net> wrote: Hi Everyone:My name is Jim, I'm a 45

year old male. who lives just south of Atlanta Georgia.. I fould out that I had hepatitis C back in 1998 while donating my own blood for myself. for an upcoming hip replacement. I was given several blood transfusions back in the mid 80's after being hit by a train..(no car, it's a long story..)so I am "assuming" that is how I acquired this virus..I tried the interferon/peg treatment two seperate times, and while on my second attempt...I awoke one morning in about the third month of treatment, to discover that I had lost 93% of my hearing on the right side..After several test and scans to rule out blood clots, brain tumors, etc. I can only say the peg/interferon was the only other thing that it could be...but then again I am "assuming" here..but I did read several articles on accute hearing lost associated with this treatment.Needless to say, I'm too scared to try this again. so I am now stuck between a rock and a

hard place. as to what to do next..I did a liver bio. and they said that I was stage 2-3But what I need here is ANY AND ALL INPUT all opinions are more than welcomed.. I need to find out all that I can about this "virus"and it seems that just about every web site has a different take on it. so I don't know what to believe and what not to believe.Even the couple of doctors (specialist) that I have seen, don't seem to even know the symptons of hep/c. more less how to properly treat it.. please forgive me for the long windedness here.. but I'm pretty much living the hermit life lately. with no one to talk to about this at all....or at least no one with any kind of intelligence...thank you all in advance for any help or information and for just taking the time to real this at all.. Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase. Tim Parsons knoxville,tn 37931 x107 work www.knoxville1.com

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when.