Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Thank you Susie. It is very comforting to know that there are people out there that understand and want to help. Thank you for your support, it is greatly appreciated. > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Thank you Susie. It is very comforting to know that there are people out there that understand and want to help. Thank you for your support, it is greatly appreciated. > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Welcome ! When it gets down to stress management I found that the first and second tiers of self-correcting ( has us write down a list of them) really are about stress management or renewing. Referring back to that list has really helped me on many occasions. Over the last few days, though, stress became a little bit too much and as a consequence, my eating really took a turn for the worse. Alas, today is a new day and I am self-correcting. This morning, I meditated, listened to an IOWL episode (Gift of the flab) and I will take a Yoga class tonight. Continued success on your weight loss journey! Jantje > > > From: kellyperry40 <kellyperry40@...> > Subject: New to the group > weightloss > Date: Saturday, June 5, 2010, 8:32 PM > > > Â > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > Hopefully, I will get better at blogging as time goes on! > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Welcome ! When it gets down to stress management I found that the first and second tiers of self-correcting ( has us write down a list of them) really are about stress management or renewing. Referring back to that list has really helped me on many occasions. Over the last few days, though, stress became a little bit too much and as a consequence, my eating really took a turn for the worse. Alas, today is a new day and I am self-correcting. This morning, I meditated, listened to an IOWL episode (Gift of the flab) and I will take a Yoga class tonight. Continued success on your weight loss journey! Jantje > > > From: kellyperry40 <kellyperry40@...> > Subject: New to the group > weightloss > Date: Saturday, June 5, 2010, 8:32 PM > > > Â > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > Hopefully, I will get better at blogging as time goes on! > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Ahem. FORTUNATELY, today is a new day and you are self correcting. No " alas " about it--it means you're using the method correctly!! Yay, Jantje!! :-) ________________________________ From: Nixe708 <jantje.gerdes@...> weightloss Sent: Mon, June 7, 2010 11:02:00 AM Subject: Re: New to the group  Welcome ! When it gets down to stress management I found that the first and second tiers of self-correcting ( has us write down a list of them) really are about stress management or renewing. Referring back to that list has really helped me on many occasions. Over the last few days, though, stress became a little bit too much and as a consequence, my eating really took a turn for the worse. Alas, today is a new day and I am self-correcting. This morning, I meditated, listened to an IOWL episode (Gift of the flab) and I will take a Yoga class tonight. Continued success on your weight loss journey! Jantje > > > From: kellyperry40 <kellyperry40@...> > Subject: New to the group > weightloss > Date: Saturday, June 5, 2010, 8:32 PM > > >  > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > Hopefully, I will get better at blogging as time goes on! > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Hello Jantje and , Thank you so much for your insights. I do remember the pod cast on renewing ourselves. I also remember having a hard time trying to figure out what exactly recharges me. , you asked my an excellent question as to how I will recharge today. I have never really asked myself that question before. It has always been how will I stop the feeling of being overwhelmed, but never does my solutions recharge me. I think my intent for today is to answer the question of renewing and recharging myself. Thank you so much for this support and insight! > > > > > > From: kellyperry40 <kellyperry40@> > > Subject: New to the group > > weightloss > > Date: Saturday, June 5, 2010, 8:32 PM > > > > > > Â > > > > > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Hello Jantje and , Thank you so much for your insights. I do remember the pod cast on renewing ourselves. I also remember having a hard time trying to figure out what exactly recharges me. , you asked my an excellent question as to how I will recharge today. I have never really asked myself that question before. It has always been how will I stop the feeling of being overwhelmed, but never does my solutions recharge me. I think my intent for today is to answer the question of renewing and recharging myself. Thank you so much for this support and insight! > > > > > > From: kellyperry40 <kellyperry40@> > > Subject: New to the group > > weightloss > > Date: Saturday, June 5, 2010, 8:32 PM > > > > > > Â > > > > > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Yes, you are right. Thanks for keeping me grounded! Jantje > > > > > > From: kellyperry40 <kellyperry40@> > > Subject: New to the group > > weightloss > > Date: Saturday, June 5, 2010, 8:32 PM > > > > > >  > > > > > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Yes, you are right. Thanks for keeping me grounded! Jantje > > > > > > From: kellyperry40 <kellyperry40@> > > Subject: New to the group > > weightloss > > Date: Saturday, June 5, 2010, 8:32 PM > > > > > >  > > > > > > > > Hi my name is . This is the first time I have ever blogged. As put it I have always thought of myself as a " lone ranger " . I have been listening to IOWL podcasts for a while and love them! But I have found that I can't do this alone. I have definitely felt a shift in my thoughts about eating, but have a difficult time when my life is full of stress ( which is always) This causes drinking more wine which leads to choosing the wrong foods. I really need help in dealing with stress and learning to relax. The pod casts help but my stress gets the best of me. I was wondering if anyone else has this problem. I'm 45 years old with 3 kids,husband and a dog. I work full time. I found these pod casts because I was looking for something that was permanent. I always knew that it wasn't about the food, so when I found these pod casts it was a perfect fit. Sorry if this post is kinda scattered I am kinda nervous about letting my feelings out. > > Hopefully, I will get better at blogging as time goes on! > > > > Thanks for being here and I appreciate any support on my journey. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 Hi there Shonda! I live in Fort Worth & have extra scoby is you are interested in meeting maybe this weekend? Oh & welcome to the group!! Patti ________________________________ From: " swilliams@... " <swilliams@...> kombucha tea Sent: Mon, July 12, 2010 2:12:18 PM Subject: New to the Group Good afternoon! I just joined this group earlier today. I am learning about the amazing benefits of consuming Kombucha. I have a family history of autoimmune diseases. My grandma died at age 52, my mom died at age 64, etc. Now, my two sisters have autoimmune diseases. I have a very strong desire to stop the chain of early deaths and help heal the family! I have bought a book by Betsy Pryor. The next step is to get a Kombucha culture. I live in the Dallas, TX area. Does anyone have any suggestions on how I can obtain a good, clean culture? Thank you so much for your time. Shonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2010 Report Share Posted July 13, 2010 Thanks so much, Patti! I got an immediate response after posting that message and ended up ordering a free (cost of shipping only) one from Kombuchick. I didn't realize that there would be people in this area that would offer to give me a scoby. I got your message after my order! Thank you for being so nice! I really appreciate the e-mail. Let's hope I'm as successful as you at harvesting this Kombucha! I hope you have a wonderful day! Shonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 > > I look forward to learning all about what/who we really are and how we can overcome all of this together as a family. > Welcome to the group. You're not alone, 2 brothers were diagnosed last year with asperger and they are also in their 40. But knowing what is going on will help you understand yourself and makes it easier to explain to others. You might also be interested in the http://www.wrongplanet.net forum. A lot of asperger / autistic people do visit it regulary. Also (apserger)parents. Wish you the best! Greetings, Martijn van der Kooij Developer of Picto Selector - www.PECSforAll.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Welcome Ashton. Thank You for sharing your family's story. When I began to teach my daughter to read at 3, it made a tremendous difference in her vocabulary, as well as giving her the ability to, indeed, read. I used the Doman method (How to Teach Your Baby to Read). Bits of information are another good way of enhancing speech. www.iahp.org where these ideas were developed 50 years ago (and they are still unsung heroes) is a good place to look at the materials (which You can either make or buy. If You have any questions, just ask. Sincerely, Francine Speak with Him Thou for He hearest. Spirit with Spirit can speak. Closer is Love than breathing, Nearer than hands and feet. (with appreciation for Tennyson) New to the Group Hi, My name is Ashton. I am a mom/wife (married 18 years) of 2 boys, a 5-year-old and a 16-year-old. We just recently had our 5 yo evalled for aspergers/autism. The tests revealed he is in fact autistic with low IQ due to very limited vocabulary. This has opened up something big in our family. It turns out I have Aspergers (I am 42, same symptoms as my son, except for the vocal issues he has, I didn't/don't have, but everything else is the same. My 16-year-old also is Autistic (Verbal issues), but we didn't know that until they diagnosed my 5 yo and started looking into myself and my oldest as well. So much has been explained about how we are and what we do and how I was as a kid. What makes me the happiest is to be able to tell my family I wasn't a bad kid, I wasn't stupid, I wasn't lazy, I wasn't not doing things I was told on purpose, that I had a legit problem, but NO ONE knew it! I will tell you, my growing up without any knowledge of Aspergers/Autism was NOT fun, heck in fact, and makes me sad to think about. I could write a book, I think. Anyway, we are only a few days into this diagnosis, and still seeking and trying to find what to do next, what to do to help my son become more vocal so that he stops the rages out of frustration. I look forward to learning all about what/who we really are and how we can overcome all of this together as a family. Ashton from WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Here are some great sites, helps for youngest to you. http://www.apple.com/accessibility/resources/macosx.html You are embarking on the journey of becoming THE expert re your children and you. How fortunate that they have your difficult experiences to grow from. You are going to make such a positive and healthy difference for them, and in turn, you will help make sense of your own misunderstood (and painful) experiences. Listen to your " gut " and your heart, THEN listen to the " experts " . Priscilla in Kansas > > Hi, > > My name is Ashton. I am a mom/wife (married 18 years) of 2 boys, a 5-year-old and a 16-year-old. We just recently had our 5 yo evalled for aspergers/autism. The tests revealed he is in fact autistic with low IQ due to very limited vocabulary. This has opened up something big in our family. It turns out I have Aspergers (I am 42, same symptoms as my son, except for the vocal issues he has, I didn't/don't have, but everything else is the same. > > My 16-year-old also is Autistic (Verbal issues), but we didn't know that until they diagnosed my 5 yo and started looking into myself and my oldest as well. So much has been explained about how we are and what we do and how I was as a kid. > > What makes me the happiest is to be able to tell my family I wasn't a bad kid, I wasn't stupid, I wasn't lazy, I wasn't not doing things I was told on purpose, that I had a legit problem, but NO ONE knew it! I will tell you, my growing up without any knowledge of Aspergers/Autism was NOT fun, heck in fact, and makes me sad to think about. I could write a book, I think. > > Anyway, we are only a few days into this diagnosis, and still seeking and trying to find what to do next, what to do to help my son become more vocal so that he stops the rages out of frustration. > > I look forward to learning all about what/who we really are and how we can overcome all of this together as a family. > > Ashton from WA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 A men to that realization!! That you weren't lazy, stupid, etc. It makes you feel better at some level. However, my relationship with my parents is damaged beyond repair (especially with my father, who is also probably has AS and doesn't know it). He was so upset that my first born listened to nothing I said. I was supposed to yell and beat him to get him to listen and because I didn't do this (he said I ignored his behavior) I was labeled by him as a bad mother. I sure my story is not unique. Good luck in your journey. You are an adult now and you don't need that negativity in your life anymore. This has been my lesson learned this year after trying to make things work for the last 7 yrs. for my son's sake, so he could have a Grandpa in his life, but the risks out weighed the benefits in OUR situation. Good luck and best wishes. I don't think I have Aspergers like my son does, but I do have ADD although I have not been dx'd. From: "sunrose101@..." <sunrose101@...>Autism and Aspergers Treatment Sent: Thu, July 22, 2010 11:38:30 PMSubject: Re: New to the Group Welcome Ashton. Thank You for sharing your family's story. When I began to teach my daughter to read at 3, it made a tremendous difference in her vocabulary, as well as giving her the ability to, indeed, read. I used the Doman method (How to Teach Your Baby to Read). Bits of information are another good way of enhancing speech. www.iahp.org where these ideas were developed 50 years ago (and they are still unsung heroes) is a good place to look at the materials (which You can either make or buy. If You have any questions, just ask. Sincerely, Francine Speak with Him Thou for He hearest.Spirit with Spirit can speak.Closer is Love than breathing,Nearer than hands and feet.(with appreciation for Tennyson) New to the Group Hi, My name is Ashton. I am a mom/wife (married 18 years) of 2 boys, a 5-year-old and a 16-year-old. We just recently had our 5 yo evalled for aspergers/autism. The tests revealed he is in fact autistic with low IQ due to very limited vocabulary. This has opened up something big in our family. It turns out I have Aspergers (I am 42, same symptoms as my son, except for the vocal issues he has, I didn't/don't have, but everything else is the same. My 16-year-old also is Autistic (Verbal issues), but we didn't know that until they diagnosed my 5 yo and started looking into myself and my oldest as well. So much has been explained about how we are and what we do and how I was as a kid.What makes me the happiest is to be able to tell my family I wasn't a bad kid, I wasn't stupid, I wasn't lazy, I wasn't not doing things I was told on purpose, that I had a legit problem, but NO ONE knew it! I will tell you, my growing up without any knowledge of Aspergers/Autism was NOT fun, heck in fact, and makes me sad to think about. I could write a book, I think. Anyway, we are only a few days into this diagnosis, and still seeking and trying to find what to do next, what to do to help my son become more vocal so that he stops the rages out of frustration.I look forward to learning all about what/who we really are and how we can overcome all of this together as a family. Ashton from WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Welcome Ashton. I don't often comment. My son is 9 1/2 and was diagnosed with Aspergers when he was 5. My husband was diagnosed with Aspergers when he was as well. I know for my husband it was a great encouragement to finally put all the peices together of his childhood behavior and who heis today. It has been such an encouragement to him as well as being able to relate to our son. His experiences he went through as a child has helped us tremendously when trying to deal with our son.. Try to think of it all in a positive way and how it will help you move forward. This is a great place to come to for great ideas and encouragemnet. Welcome From: "sunrose101@..." <sunrose101@...>Autism and Aspergers Treatment Sent: Thu, July 22, 2010 11:38:30 PMSubject: Re: New to the Group Welcome Ashton. Thank You for sharing your family's story. When I began to teach my daughter to read at 3, it made a tremendous difference in her vocabulary, as well as giving her the ability to, indeed, read. I used the Doman method (How to Teach Your Baby to Read). Bits of information are another good way of enhancing speech. www.iahp.org where these ideas were developed 50 years ago (and they are still unsung heroes) is a good place to look at the materials (which You can either make or buy. If You have any questions, just ask. Sincerely, Francine Speak with Him Thou for He hearest.Spirit with Spirit can speak.Closer is Love than breathing,Nearer than hands and feet.(with appreciation for Tennyson) New to the Group Hi, My name is Ashton. I am a mom/wife (married 18 years) of 2 boys, a 5-year-old and a 16-year-old. We just recently had our 5 yo evalled for aspergers/autism. The tests revealed he is in fact autistic with low IQ due to very limited vocabulary. This has opened up something big in our family. It turns out I have Aspergers (I am 42, same symptoms as my son, except for the vocal issues he has, I didn't/don't have, but everything else is the same. My 16-year-old also is Autistic (Verbal issues), but we didn't know that until they diagnosed my 5 yo and started looking into myself and my oldest as well. So much has been explained about how we are and what we do and how I was as a kid.What makes me the happiest is to be able to tell my family I wasn't a bad kid, I wasn't stupid, I wasn't lazy, I wasn't not doing things I was told on purpose, that I had a legit problem, but NO ONE knew it! I will tell you, my growing up without any knowledge of Aspergers/Autism was NOT fun, heck in fact, and makes me sad to think about. I could write a book, I think. Anyway, we are only a few days into this diagnosis, and still seeking and trying to find what to do next, what to do to help my son become more vocal so that he stops the rages out of frustration.I look forward to learning all about what/who we really are and how we can overcome all of this together as a family. Ashton from WA Welcom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Hey -- Welcome! We casted our son at 9 months old. He started off with a 45 degree curve and as of last march he is 7 out of cast. We are currently in our 14th cast. Yes....14th! We are now into 26 months of casting...so just a little over 2 years. I freaked out over EVERYTHING and I actually think I posted something in this forum daily about WTHs.... We actually used pampers cruisers and these did great. They are thinner and hold more than the avg....also a smidge pricer...but it was worth it for us. We have a couple of mamas out there that do/did cloth diapering. holy moly. I salute them. We also invested in plastic bibs. or at least the one with plastic backing. Those saved the casts a many of times. Some parents will actually duct tape the bottom of the cast to prevent absorption from accidents. We havent do that yet. We did have a #2 accident one time that touched the cast---I used Cetaphor...I think its called. Its basically a lotion/soap. It did a fatastic job and Logan actually wore the cast 3 weeks past that and no smell. Clean as a whistle. Hopefully this will help a little. Dont worry too much about EVERYTHING. The casts kids are amazing and much stronger than I could ever think about being. Logan's mama (45 down to 7, 14th cast, 3 years old) From: G <deznsw1230@...>infantile scoliosis treatment Sent: Tuesday, June 26, 2012 11:06 AMSubject: New to the Group Good Morning!My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. 'Thank you for taking the time to read our story. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Hi laura,Welcome to our family my son is 5 years old so I'm not sure on the diapers but a lot of others do know.There is a lot of emotional stress goes on with this casting, but so so so worth it all. Just don't forget, we are here for you and we've been or going through it ourselves. Don't hesitate to ask anything at all :)Live, laugh, and loveJoyOn Jun 26, 2012, at 11:06 AM, "G" <deznsw1230@...> wrote: Good Morning! My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' Thank you for taking the time to read our story. = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Hi laura,Welcome to our family my son is 5 years old so I'm not sure on the diapers but a lot of others do know.There is a lot of emotional stress goes on with this casting, but so so so worth it all. Just don't forget, we are here for you and we've been or going through it ourselves. Don't hesitate to ask anything at all :)Live, laugh, and loveJoyOn Jun 26, 2012, at 11:06 AM, "G" <deznsw1230@...> wrote: Good Morning! My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' Thank you for taking the time to read our story. = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Thank you! Yes, we do cloth diapering too. I was wondering if we could still do the cloth with the cast. That would be super helpful! > > Hey -- >  > Welcome! > We casted our son at 9 months old. He started off with a 45 degree curve and as of last march he is 7 out of cast. We are currently in our 14th cast. Yes....14th! We are now into 26 months of casting...so just a little over 2 years. I freaked out over EVERYTHING and I actually think I posted something in this forum daily about WTHs.... > We actually used pampers cruisers and these did great. They are thinner and hold more than the avg....also a smidge pricer...but it was worth it for us. We have a couple of mamas out there that do/did cloth diapering. holy moly. I salute them. >  > We also invested in plastic bibs. or at least the one with plastic backing. Those saved the casts a many of times. >  > Some parents will actually duct tape the bottom of the cast to prevent absorption from accidents. We havent do that yet. We did have a #2 accident one time that touched the cast---I used Cetaphor...I think its called. Its basically a lotion/soap. It did a fatastic job and Logan actually wore the cast 3 weeks past that and no smell. Clean as a whistle. >  > Hopefully this will help a little. Dont worry too much about EVERYTHING. The casts kids are amazing and much stronger than I could ever think about being. >  > > Logan's mama (45 down to 7, 14th cast, 3 years old) > > From: G <deznsw1230@...> > infantile scoliosis treatment > Sent: Tuesday, June 26, 2012 11:06 AM > Subject: New to the Group > > >  > Good Morning! > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > Thank you for taking the time to read our story. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Thank you! Yes, we do cloth diapering too. I was wondering if we could still do the cloth with the cast. That would be super helpful! > > Hey -- >  > Welcome! > We casted our son at 9 months old. He started off with a 45 degree curve and as of last march he is 7 out of cast. We are currently in our 14th cast. Yes....14th! We are now into 26 months of casting...so just a little over 2 years. I freaked out over EVERYTHING and I actually think I posted something in this forum daily about WTHs.... > We actually used pampers cruisers and these did great. They are thinner and hold more than the avg....also a smidge pricer...but it was worth it for us. We have a couple of mamas out there that do/did cloth diapering. holy moly. I salute them. >  > We also invested in plastic bibs. or at least the one with plastic backing. Those saved the casts a many of times. >  > Some parents will actually duct tape the bottom of the cast to prevent absorption from accidents. We havent do that yet. We did have a #2 accident one time that touched the cast---I used Cetaphor...I think its called. Its basically a lotion/soap. It did a fatastic job and Logan actually wore the cast 3 weeks past that and no smell. Clean as a whistle. >  > Hopefully this will help a little. Dont worry too much about EVERYTHING. The casts kids are amazing and much stronger than I could ever think about being. >  > > Logan's mama (45 down to 7, 14th cast, 3 years old) > > From: G <deznsw1230@...> > infantile scoliosis treatment > Sent: Tuesday, June 26, 2012 11:06 AM > Subject: New to the Group > > >  > Good Morning! > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > Thank you for taking the time to read our story. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Thank you Joy! I'm so thrilled that I found this group! > > > Good Morning! > > > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > > > Thank you for taking the time to read our story. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 Thank you Joy! I'm so thrilled that I found this group! > > > Good Morning! > > > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > > > Thank you for taking the time to read our story. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2012 Report Share Posted June 27, 2012 Our son, Brayden, got his first cast at 15 months and we had the same questions about diapering. We changed from Seventh Generation diapers to Pampers because they seemed to hold more and fit better around his cast. I have heard Huggies are great for girls but have no experience since we have no girls.Even though our son slept through the night my husband and I take turns getting up in the middle of the night and changing his diaper. We also place a poise pad on the top front of the diaper (belly area) for extra protection at night in case he pees too much and we don't wake up in time to change him.We also limit his fluids after dinner with his snack before bedtime. These have helped us to limit accidents.Best of luck! Eryn,Mom to Brayden, 20 months, 3rd cast From: G <deznsw1230@...> infantile scoliosis treatment Sent: Tuesday, June 26, 2012 11:06 AM Subject: New to the Group Good Morning! My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. The ortho looked at her spine and said "this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out." We had the x-ray done and after checking it he said "Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting." Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next "We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed." Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' Thank you for taking the time to read our story. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2012 Report Share Posted June 27, 2012 Thank you Eryn! Yeah I was thinking about doing the middle of the night diaper change. My concern though is waking her and then it being playtime. Currently we do cloth diapering at night. I'm hoping that maybe the cloth diapers will still fit with the cast and then the poise pads will do it. We'll see. We just spoke with the casting doctor last night and he was telling us how we'll have to stay over the first night of her cast at the hospital so she can be observed. Did you have to do this? How did it go? Thank you for your response. Being a part of this group is going to be a huge help for me! > > Our son, Brayden, got his first cast at 15 months and we had the same questions about diapering. We changed from Seventh Generation diapers to Pampers because they seemed to hold more and fit better around his cast. I have heard Huggies are great for girls but have no experience since we have no girls. > > Even though our son slept through the night my husband and I take turns getting up in the middle of the night and changing his diaper. We also place a poise pad on the top front of the diaper (belly area) for extra protection at night in case he pees too much and we don't wake up in time to change him. > > We also limit his fluids after dinner with his snack before bedtime. These have helped us to limit accidents. > > Best of luck! > > Eryn, > Mom to Brayden, 20 months, 3rd cast > > > ________________________________ > From: G <deznsw1230@...> > infantile scoliosis treatment > Sent: Tuesday, June 26, 2012 11:06 AM > Subject: New to the Group > > >  > Good Morning! > > My name is and I just joined this support group following my daughter Olivia's diagnosis of idiopathic infantile scoliosis. My little one is 15 months old. At 13 months my mother and I noticed that the back of her ribs felt funny. Her left side protruded out, while her right side was caved in. I looked it up and found the infantile scoliosis support page. I instantly panicked and the next day made an appointment with the pediatrician. She noticed what we noticed and referred us to a specialist at the children's hospital. We got in there the following week. > The ortho looked at her spine and said " this is usually one of those things that straighten out on their own, but we'll take an x-ray to check it out. " We had the x-ray done and after checking it he said " Well I didn't expect that! I really thought she had maybe a 10 degree curve. She is at a 35 degree curve and is a perfect candidate for casting. " Having seen the x-ray as it was being taken, and having done my research, I wasn't surprised. What I wasn't ready for was what he said next " We're going to schedule an MRI to make sure there's nothing causing the curve before we proceed. " Now this didn't occur to me. I hadn't read about cord tethering or brain stem issues. This frightened me. > On Friday we went in for her MRI. This was very stressful as this was the first time being sedated. The hospital was behind due to emergency procedures so we were in the prep room for 2 hours before she was taken in. She was a real trooper when they put her IV in and Mama made sure not to cry until after the nurses were gone. I couldn't go into the MRI room where she was going to be sedated because of a previous eye injury I had obtained as a child as a precaution so my husband went in with her. He read her a story and out she went. The nurses had to comment about how great my husband is, which they're right! Olivia was a real trooper and did great with the sedation and came out of it fine. > The great news is that the scoliosis is officially idiopathic. The MRI came back clear. What's amazing is how one's perspective changes. I was initially dreading casting and now I welcome it over the alternative. We are yet to be scheduled for her cast. I will keep everyone posted on that. > My biggest casting concern is diapering. Olivia drinks like a fish and her diapers fill fast. She also (sorry TMI coming) saves her bowel movements for one massive, messy one 9 out of 10 times. I am terrified that she is going to seriously soil this cast and I'm not going to know what to do with it. Any advice on this would be greatly appreciated. We are all nervous about the road ahead, but are doing what we can to prepare ourselves. I truly believe this will be harder on Mama and Daddy than it will be on her. Any advice would be greatly appreciated. ' > > Thank you for taking the time to read our story. > > > Quote Link to comment Share on other sites More sharing options...
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