Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Dayna: Hello! We live in Ohio, south of Cleveland. Yes, we do receive IG Living, it has a lot of good resources, thats how I found the group! Besides my boys with PID I also have 2 older boys, is 12 and is 10. Where do you have your IVIG done? We have been lucky enough to be blessed with the most wonderful nurse in the world, she comes here and does ours..and it is so much easier for us then going to the clinic, which we used to do. Talk soon, dfladhammer@... wrote: . Welcome to the group. Where are you located? We are in a suburb north of Los Angeles and have three pid kids Tommy 2, Kate 4, Charlie 5. All three are on IVIG. Do you get IG Living? www.igliving.com If not! Its free! Dayna S Fladhammer re: new to the group Hi! I am the mother of three boys with selective immune deficiency. Austin is five and has been off IVIG for a little over a year but now they are seeing some problems. Kaleb is four and he has been on therapy for three years with no sign of ever going off and Kamden who is almost one and not far from being put on IVIG therapy. It would be nice to talk to other parents who have an idea what it is like to dealt with these issues. thanks, angela --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Hi Donna, My 8-year-old daughter sounds very much like your son. She was diagnosed with OCD at 5 yrs old, but my husband and I noticed symptoms when she was 3. Her first signs were her clothes not feeling " just right " and her shoes needing to be tied and retied and retied to feel right. We are perplexed sometimes because her symptoms most definitely wax and wane and change all the time. What bothered her last month seems to have " balanced out " and now she will be on to something else. This is one of the reasons why CBT hasn't worked so great. We will have " homework " from her therapist to work on one of her issues, when it just goes away by itself, then we have to try to pick another area to work on. So she is not beating her OCD, its just........changing! She is on 10 mg of Prozac which takes the edge off and still gives us something to work with. Very frustrating! I have found this group very helpful and very FULL of information. I hope that you can find the help you need for your son. Just know that you are not alone! Kath ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Hi Donna, My 8-year-old daughter sounds very much like your son. She was diagnosed with OCD at 5 yrs old, but my husband and I noticed symptoms when she was 3. Her first signs were her clothes not feeling " just right " and her shoes needing to be tied and retied and retied to feel right. We are perplexed sometimes because her symptoms most definitely wax and wane and change all the time. What bothered her last month seems to have " balanced out " and now she will be on to something else. This is one of the reasons why CBT hasn't worked so great. We will have " homework " from her therapist to work on one of her issues, when it just goes away by itself, then we have to try to pick another area to work on. So she is not beating her OCD, its just........changing! She is on 10 mg of Prozac which takes the edge off and still gives us something to work with. Very frustrating! I have found this group very helpful and very FULL of information. I hope that you can find the help you need for your son. Just know that you are not alone! Kath ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Hi Donna and welcome. This is a great group for info and support. Our son is 16, OCD/Bipolar/???, diagnosis is still in process. We are in coping mode, no treatment beyond medication at this point. Our son was initially on only celexa,high dose, which triggered hypomania and then a mood stabilizer was added and the celexa lowered. We are still challenged with behavior issues and are currently considering lowering celexa and possibly removing. Big challenge to treat these two disorders together. The ssri's are problematic for many, particularily if there is bipolar....do watch this carefully. Re waxing and waning, that is the norm with ocd, as is switching from germs to bad thoughts or other stuff. Just when you think something might be conquered, something else shows up. Our son has had pretty much all types of ocd, currently a mix of many. Again, welcome. Barb > > Hi everyone! > > I just joined the group. My 7-year-old son has OCD > and anxiety issues. He is currently on medication for > possible Bi-polar disorder (Abilify) and it has helped > some with the OCD symptoms. His biggest issues are > with his clothing, re-tying shoes, finding correct > fitting socks, sometimes pulling his laces so tightly > that his feet get sores and bleed. When he was three > and four years old he would say that he felt " crooked " > in clothing. What I find so funny is that it's like a > love/hate relationship with his clothing. He loves > clothes but changes outfits at least three times a day > because he doesn't " feel right " in them. > > He also goes in and out with having germ issues. Is > this normal to have a cycle of behaviors or symptoms > that seem to wax and wane? We just recently started > him on Zoloft in addition to the Abilify but we've > noticed his behavior worsen as of late. He is very > defiant and his behavior is absolutely awful. We have > a meeting with the psychiatrist soon and really aren't > sure what to do or where to turn next. > > Well I am anxious to meet and share experiences with > everyone! > > Donna > > > > > " Even the smallest person can change the course of the future. " > Lord of the Rings, Return of the King > > > > > > ______________________________________________________________________ ______________ > Get the toolbar and be alerted to new email wherever you're surfing. > http://new.toolbar./toolbar/features/mail/index.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Thank you all for the warm welcome! Our appointment is tomorrow and I'm almost certain she'll want to either switch anti-depressant meds or lower the dose. It is so confusing trying to remember which behavior started when and what might be a reaction to what! I feel like I know exactly what to say when I make the appointment but then once it finally gets here either the behaviors have switched or I'm not so sure I still feel the same way! It's all so confusing! One thing I am certain of is that there is a definite change for the worse when/if he's hungry or depending on what he eats. It's like he needs to eat something every couple of hours or he's a total mess. The other day he ate a great (healthy) lunch and ate a lot. 45 minutes later he was out of control and his behavior was awful. I finally made him go eat something with sugar in it even though he swore he didn't want it. Immediately after he was done it was as if the light switched and he was snapped out of it and immediately better again. He even said, " I feel much better now, Mommy " . I have asked about a possible relationship to sugar but one of the docs said that it's almost impossible to zero in on that type of problem becuase you almost have to keep taking blood work until you catch it happening at that exact moment. Does anyone else experience anything like this??? I would be so interested in hearing about it. Thanks! --- <@...> wrote: > Hi Donna, welcome! Let us know how your next psych > appt goes. If > your son's increase defiance and behavior is since > beginning Zoloft, > the doctor might want to try another med or maybe > just lower the dose > (split pills?) to see if that helps and go up > slower. Some people > are more sensitive to medications. Plus with > possible bipolar, from > what I've read, it can be tricky treating OCD and > bipolar for some. > > When OCD first began for my son (now age 18, he was > in 6th grade when > it began), some of his initial behaviors stayed, > some went away and > at times it seemed a new one (or more) would pop up > daily > (hourly...). Anyway, for him this seemed to settle > down some after a > while. But, as you've read, OCD can wax and wane > too, so the same > behavior might get worse at times while be more in > the background at > others times. > > Have you talked with your son yet about OCD?? There > are some good > children books on it. > > > > > > > > > > Hi everyone! > > > > I just joined the group. My 7-year-old son has > OCD > > and anxiety issues. He is currently on medication > for > > > > " Even the smallest person can change the course of the future. " Lord of the Rings, Return of the King ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Thank you all for the warm welcome! Our appointment is tomorrow and I'm almost certain she'll want to either switch anti-depressant meds or lower the dose. It is so confusing trying to remember which behavior started when and what might be a reaction to what! I feel like I know exactly what to say when I make the appointment but then once it finally gets here either the behaviors have switched or I'm not so sure I still feel the same way! It's all so confusing! One thing I am certain of is that there is a definite change for the worse when/if he's hungry or depending on what he eats. It's like he needs to eat something every couple of hours or he's a total mess. The other day he ate a great (healthy) lunch and ate a lot. 45 minutes later he was out of control and his behavior was awful. I finally made him go eat something with sugar in it even though he swore he didn't want it. Immediately after he was done it was as if the light switched and he was snapped out of it and immediately better again. He even said, " I feel much better now, Mommy " . I have asked about a possible relationship to sugar but one of the docs said that it's almost impossible to zero in on that type of problem becuase you almost have to keep taking blood work until you catch it happening at that exact moment. Does anyone else experience anything like this??? I would be so interested in hearing about it. Thanks! --- <@...> wrote: > Hi Donna, welcome! Let us know how your next psych > appt goes. If > your son's increase defiance and behavior is since > beginning Zoloft, > the doctor might want to try another med or maybe > just lower the dose > (split pills?) to see if that helps and go up > slower. Some people > are more sensitive to medications. Plus with > possible bipolar, from > what I've read, it can be tricky treating OCD and > bipolar for some. > > When OCD first began for my son (now age 18, he was > in 6th grade when > it began), some of his initial behaviors stayed, > some went away and > at times it seemed a new one (or more) would pop up > daily > (hourly...). Anyway, for him this seemed to settle > down some after a > while. But, as you've read, OCD can wax and wane > too, so the same > behavior might get worse at times while be more in > the background at > others times. > > Have you talked with your son yet about OCD?? There > are some good > children books on it. > > > > > > > > > > Hi everyone! > > > > I just joined the group. My 7-year-old son has > OCD > > and anxiety issues. He is currently on medication > for > > > > " Even the smallest person can change the course of the future. " Lord of the Rings, Return of the King ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Donna, I have no experience with OCD and blood sugar levels, but my son's ADHD friend's grandma always asks me to feed him something if he's over after school, because he has problems when he doesn't eat. Could you talk to your pediatrician about your child's blood sugar, separate from any OCD issues? --- Donna Henry <donna_michael@...> wrote: > > One thing I am certain of is that there is a > definite > change for the worse when/if he's hungry or > depending > on what he eats. It's like he needs to eat > something > every couple of hours or he's a total mess. The > other > day he ate a great (healthy) lunch and ate a lot. > 45 > minutes later he was out of control and his behavior > was awful. I finally made him go eat something with > sugar in it even though he swore he didn't want it. > Immediately after he was done it was as if the light > switched and he was snapped out of it and > immediately > better again. He even said, " I feel much better > now, > Mommy " . I have asked about a possible relationship > to > sugar but one of the docs said that it's almost > impossible to zero in on that type of problem > becuase > you almost have to keep taking blood work until you > catch it happening at that exact moment. Does > anyone > else experience anything like this??? I would be so > interested in hearing about it. > > Thanks! > > > --- <@...> wrote: > > > Hi Donna, welcome! Let us know how your next > psych > > appt goes. If > > your son's increase defiance and behavior is since > > beginning Zoloft, > > the doctor might want to try another med or maybe > > just lower the dose > > (split pills?) to see if that helps and go up > > slower. Some people > > are more sensitive to medications. Plus with > > possible bipolar, from > > what I've read, it can be tricky treating OCD and > > bipolar for some. > > > > When OCD first began for my son (now age 18, he > was > > in 6th grade when > > it began), some of his initial behaviors stayed, > > some went away and > > at times it seemed a new one (or more) would pop > up > > daily > > (hourly...). Anyway, for him this seemed to > settle > > down some after a > > while. But, as you've read, OCD can wax and wane > > too, so the same > > behavior might get worse at times while be more in > > the background at > > others times. > > > > Have you talked with your son yet about OCD?? > There > > are some good > > children books on it. > > > > > > > > > > > > > > > > > > Hi everyone! > > > > > > I just joined the group. My 7-year-old son has > > OCD > > > and anxiety issues. He is currently on > medication > > for > > > > > > > > > > > " Even the smallest person can change the course of > the future. " > Lord of the Rings, Return of the King > > > > > > ________________________________________________________________________________\ ____ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Donna, I have no experience with OCD and blood sugar levels, but my son's ADHD friend's grandma always asks me to feed him something if he's over after school, because he has problems when he doesn't eat. Could you talk to your pediatrician about your child's blood sugar, separate from any OCD issues? --- Donna Henry <donna_michael@...> wrote: > > One thing I am certain of is that there is a > definite > change for the worse when/if he's hungry or > depending > on what he eats. It's like he needs to eat > something > every couple of hours or he's a total mess. The > other > day he ate a great (healthy) lunch and ate a lot. > 45 > minutes later he was out of control and his behavior > was awful. I finally made him go eat something with > sugar in it even though he swore he didn't want it. > Immediately after he was done it was as if the light > switched and he was snapped out of it and > immediately > better again. He even said, " I feel much better > now, > Mommy " . I have asked about a possible relationship > to > sugar but one of the docs said that it's almost > impossible to zero in on that type of problem > becuase > you almost have to keep taking blood work until you > catch it happening at that exact moment. Does > anyone > else experience anything like this??? I would be so > interested in hearing about it. > > Thanks! > > > --- <@...> wrote: > > > Hi Donna, welcome! Let us know how your next > psych > > appt goes. If > > your son's increase defiance and behavior is since > > beginning Zoloft, > > the doctor might want to try another med or maybe > > just lower the dose > > (split pills?) to see if that helps and go up > > slower. Some people > > are more sensitive to medications. Plus with > > possible bipolar, from > > what I've read, it can be tricky treating OCD and > > bipolar for some. > > > > When OCD first began for my son (now age 18, he > was > > in 6th grade when > > it began), some of his initial behaviors stayed, > > some went away and > > at times it seemed a new one (or more) would pop > up > > daily > > (hourly...). Anyway, for him this seemed to > settle > > down some after a > > while. But, as you've read, OCD can wax and wane > > too, so the same > > behavior might get worse at times while be more in > > the background at > > others times. > > > > Have you talked with your son yet about OCD?? > There > > are some good > > children books on it. > > > > > > > > > > > > > > > > > > Hi everyone! > > > > > > I just joined the group. My 7-year-old son has > > OCD > > > and anxiety issues. He is currently on > medication > > for > > > > > > > > > > > " Even the smallest person can change the course of > the future. " > Lord of the Rings, Return of the King > > > > > > ________________________________________________________________________________\ ____ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Hi Donna,, My kids act the same way when hungry. I have hypoglycemia, and if I don't eat every three hours, I will start to feel panicky from the sugar dropping, which makes my panic disorder much worse. I think this may have a lot to do with my kids anxiety. I try to give them healthy snacks every few hours. I have had my kids tested for diabetes, and they both came out negative, but I have not had the eight hour glucose fasting test done. That is about the only test that can accurately tell what your blood sugar is doing.I don't want to put them through it at this point unless I really suspect diabetes. Hope this helps Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Good luck mark I am sure tx is not any easier the the third time around God bless I will be praying raindog_54 wrote: Hi everyone My name is Mark and I just joined the group today. I live in Arcata, California...it's up in the NW corner of the state. I'm 52 and I've had HCV for about 30 years now. Just finishing my 4th month of Pegasys/Copegus. My starting viral load was supposedly 23 million but that result, in my opinion, is invalid. I discovered the VA clinic up here didn't know they needed to freeze the samples and they were just shipping them refridgerated. Whats even more disturbing is that the VA lab in Palo Alto that runs the test was accepting them unfrozen and running them anyway. That would never happen in a civilian lab. Having been a lab tech for 30 years I am very familiar with the handling requirements and know that unfrozen the virus degrades and you end up with falsely elevated numbers. So I think it's safe to say that my starting viral load was at least a few to several million. It had been 4 million a year ago. It was 600,000 after the first month of treatment and 58,000 after 3 months. Will be getting another viral load soon an I guess this one will determine if I am still responding. I'm genotype 1A and had previously failed 3 courses of interferon back in the 90's...Intron A alone, Infergen, and Intron A/ribaviron combo. So being a 3 time loser...I have my fingers crossed. Check out the hottest 2008 models today at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Hi Mark and welcome to the group. You display a lot of tenacity and courage in doing tx! I admire you. I'm glad your viral load is dropping and I pray that it will continue to do so. I'm still considering whether to do tx or not. I'm not in a real hot fire danger zone so I'm thinking about doing it next summer when I will only be working (from home) and not going to school too. Anyway, best of luck and keep us updated on what goes on with you. We would welcome the opportunity to be on your "support team." Blessings,raindog_54 wrote: Hi everyone My name is Mark . Blessings,=========The light at the end of someone's tunnel may be you========= Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I agree with you, Danne. There is no way that a new treatment will be out in a couple of months. Stage III clinical trials are just beginning on some of these new treatments. Colleen danne wrote: The thing with waiting for the next type is they have been saying it will be available in a few years for 5+ yrs now. In '02 We was hearing that they should have something newer and better than the peg/reba in a "few years" My hep dr told my hubby and I last year that it would be at least 5 years before they would have some new meds ready. Even with the FDA FAST TRACK. The sooner you treat, the better off your liver can be. If I could do tx today I would. I want to stop the damage this dragon is doing to my liver as soon as I can. My Two Cents. draindog_54 wrote: Thanks , If your liver can take it, you might as well wait until the next class of drugs come out in a few years. The treatment will be much shorter...only a couple months I think. take care, Mark . Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. ************************************************* I cannot live without books. --- Jefferson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi MsTigerhawk. I don't remember if I introduced myself or not. Hi I'm Deliman. I've been here for about 2 1/2 years and I am glad for that. I have a thought that you are Colleen.. Is it true? It makes it hard for am encepholotic prone person to keep up with others with different idenities, or handles, or names. Are you also Colleen?? This is like a mystery novel.. I have figured out some others, and FYNALLY realize that that Jack is Jill who was Damion and is now Running Bear, but still signs in as Gertrude.... It's a trip, for sure!! HAHAHAHA.. keeps me scatchin' my head, anyway..... The situation you are in regarding trick or treat... is, to me... akin to the young man that could not decide between the 911 Carrrera Porsche his Daddy was giving him, just because he graduated, (wasn't he supposed to do that anyway???) or the Testarosa Lamborghini, in Red..... of course...hahaha It troubled him long nights and he would even burden his friends with his " PROBLEM. " Never realizing it's a matter of PERSONAL choice, and not his friends..... In Life, some of us are destined to ride the bus, public transportation, because we can't handle driving. We won't get the oportunity to choose our poison, so to speak, before needing the TP, or dying before a CURE is discovered... In other words, we experience life threatening adverse effects from the treatment, and cannot do it.. I tried twice, 5 weeks each, with 4 months in between of no tx. Same thing. different time. minimum 4 wks in hosp. and max 7 wks. Isolation. You know that old story, about the little boy that cried because he had no new shoes.....until he saw the little boy with no feet??? Please, try to stop crying, and be thankful to God for what is available to you.. you are one of the lucky ones that has this " DELIMA " affecting you so strongly. Be Thankful you have it. I hope that you or anyone else, (mostly the newbies) HI NEWBIES!!!! will not feel as if they need to walk on eggshells around me, because that is not true. I am only asking, OK... maybe reminding, to please be thankful for what you have available to you,a possible, and proven so, sometimes.... way to be victorious over this Insidious, sometimes life taking, (with PAIN!!!), socially stigmatized disease. Oh yeah.. no pain pills either. My doc says it could easily back up into my brain, along with the rest of the unprocessed poison, and tell my brain to inform my body it doesn't need to breath anymore.. God Bless Us All. Deliman --- MsTigerHawk wrote: > I agree with you, Danne. There is no way that a new treatment > will be out in a couple of months. Stage III clinical trials are > just beginning on some of these new treatments. > > Colleen > > > danne wrote: > The thing with waiting for the next type is they have > been saying it will be available in a few years for 5+ yrs now. > In '02 We was hearing that they should have something newer and > better than the peg/reba in a " few years " My hep dr told my hubby > and I last year that it would be at least 5 years before they > would have some new meds ready. Even with the FDA FAST TRACK. > The sooner you treat, the better off your liver can be. If I > could do tx today I would. I want to stop the damage this dragon > is doing to my liver as soon as I can. > My Two Cents. > d > > raindog_54 wrote: > Thanks , If your liver can take it, you might as well > wait until > the next class of drugs come out in a few years. The treatment > will > be much shorter...only a couple months I think. take care, Mark > > > . > > > > > --------------------------------- > Be a better Globetrotter. Get better travel answers from > someone who knows. > Yahoo! Answers - Check it out. > > > ************************************************* > I cannot live without books. > --- Jefferson > ________________________________________________________________________________\ ____ Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 I have so many of these same unanswered questions and trips to the many drs. I have not taken my dd to a neurologist. Have many people? Am I missing a big link? e25 <southernfire25@...> wrote: Hello everyone im kinda new to the group i been reading some of your emails , and fount out their is alot of people that is in the same boat that i am. My son started doin odd behaviors last year that i noticed and took him to many different doctors, that i never got a answer for. Then this year it just got worse, and i took him to more and more doctors still no answers. Well i started looking on the net for answers of his symptoms. Only thing that coming up was OCD. Well i took him to a child eva center, and he was diagnosed with anxiety/Ocd. Now that i know what this is, what do i do from here, cause im still not getting any help. He has been on many different meds. That do not work. He will soon be seeing his neurologist. But I was wondering what the 504 plan is? and ERP? And i have been having trouble finding him a good therapsit for CBT. He is desperate need of help, and it seems alot ppl dont know what to do. He is going down hill with school work... He has tons of medical history that could have led the OCD on.. But was wondering anyone could help.. Thanks Drake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hi Drake, To help me understand your son's situation a bit more, sorry I have questions! You mentioned medication - so he has tried the SSRI's? Which ones and for how long? You said they didn't work, was there no reaction or did he have some unwanted side effects? Is he taking anything now? ERP stands for Exposure & Response Prevention (or ritual prevention). The OCD Foundation website has info you can read about therapy (CBT and ERP). It also has info for medication for kids and also a place to search for therapists in your area. Have you tried this already? We live in a sort of rural area, larger cities near but no experienced therapist near enough to us and managed on our own for a long time (with the help of this great group and all that reading we parents do about OCD). Though we recently found a therapist last July that my son is now seeing. His OCD began in 6th grade, he's now in his first year of college. (We've had some calm years, it's hasn't been 24hr OCD throughout this time!) You mentioned medical history? Is that more physical type things or other like ADHD or something? For 504 Plans - I know there's recent posts on this you can look through, I did one with some links in it too. But a 504 Plan is a plan that the school can set up for people with disabilities. The plan is used to set up accommodations and/or modifications needed. You'll read it sort of " levels the playing field " for those with disabilities vs those without in school. This is for physical or mental disabilities. You may read about IEP's. Does your son already have an IEP for special education services? If he has an IEP, then he doesn't need a 504 Plan. What are some of his OC behaviors that are affecting his schoolwork? And what about ones affecting home and family? My son's OCD began with more physical type compulsions/rituals. Sigh, it was like 24/7 OCD! Those are long gone now and his OCD centers around bad thoughts, pretty much it's now called " scrupulosity OCD " where he has constant bad thoughts about God, Jesus and is sure he'll not go to heaven.... If you don't mind sharing where you live (city or area) sometimes others here know of help nearby. single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers/mild > > Hello everyone im kinda new to the group i been reading some of your > emails , and fount out their is alot of people that is in the same > boat that i am. My son started doin odd behaviors last year that i > noticed and took him to many different doctors, that i never got a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Welcome, Drake. It looks like answered the questions you had, but I just wanted to say welcome to the group. I'm sad you are here, because that means you have a child suffering, and we all know what that is like. But, I'm also glad you are here, because having others who understand, helps. Plus, sharing information can be a huge help. BJ > > Hello everyone im kinda new to the group i been reading some of your > emails , and fount out their is alot of people that is in the same > boat that i am. My son started doin odd behaviors last year that i > noticed and took him to many different doctors, that i never got a > answer for. Then this year it just got worse, and i took him to more > and more doctors still no answers. Well i started looking on the net > for answers of his symptoms. Only thing that coming up was OCD. Well i > took him to a child eva center, and he was diagnosed with anxiety/Ocd. > Now that i know what this is, what do i do from here, cause im still > not getting any help. He has been on many different meds. That do not > work. He will soon be seeing his neurologist. But I was wondering what > the 504 plan is? and ERP? And i have been having trouble finding him a > good therapsit for CBT. He is desperate need of help, and it seems > alot ppl dont know what to do. He is going down hill with school > work... He has tons of medical history that could have led the OCD > on.. But was wondering anyone could help.. Thanks Drake > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Im not sure if the neurologist is going to help with the ocd. But my son has seen him in the past for his history of seizures, and sesory dysfunction. And now that i know he has OCD, im wondering if he can help. I wil take him on the 19th of this month , i'll let ya know what he says. Colette Myers <mctommom@...> wrote: I have so many of these same unanswered questions and trips to the many drs. I have not taken my dd to a neurologist. Have many people? Am I missing a big link? e25 <southernfire25@...> wrote: Hello everyone im kinda new to the group i been reading some of your emails , and fount out their is alot of people that is in the same boat that i am. My son started doin odd behaviors last year that i noticed and took him to many different doctors, that i never got a answer for. Then this year it just got worse, and i took him to more and more doctors still no answers. Well i started looking on the net for answers of his symptoms. Only thing that coming up was OCD. Well i took him to a child eva center, and he was diagnosed with anxiety/Ocd. Now that i know what this is, what do i do from here, cause im still not getting any help. He has been on many different meds. That do not work. He will soon be seeing his neurologist. But I was wondering what the 504 plan is? and ERP? And i have been having trouble finding him a good therapsit for CBT. He is desperate need of help, and it seems alot ppl dont know what to do. He is going down hill with school work... He has tons of medical history that could have led the OCD on.. But was wondering anyone could help.. Thanks Drake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hello I dont know where to start really, But i will start by telling about my son's medical history. At 4 months old he was diagnosed with crainostenosis ( sorry about the spelling) which is where the " soft spot " closes to early putting pressure on the brain and deforming the skull. He had the surgery at 6 months old. And they took the bones out that closed, and reopen tha for a " soft spot " . Took the forhead out ( that shaped into like a " bow of a boat , wide in the back , narrow in the front) And place it with plasture to look normal. Re worked the eye sockets and eye mucles to be where they were suppose to be etc etc. He made a great recovery and was home by the 4th day. Then after at 17months old he started having grandmal seizures. And was diagnosed with epliepsy. But in the MRI showed he had Chairi Malformation ( which is the brain tissue pulled down into the spinal cord) " birth defect " . But the doctors wasnt concerned at that time. Well he got worse, by not walking. I took it upon myself to take those films to his recent neurosurgeon to get a second oppion. and for sure he needed the surgery right away. He had the surgery. And they removed part of his top vertbrae to relieve the pressure of the brain. After that he started a program called first steps, for OT, Speech, physical therapy. He was also dignosed of having sensory dsyfunction , and learning delays, moderate speech imparement. I could actually right a book on him up til now , so im gonaa skip a few years. Anyway last year, I noticed him doing odd things like puttin the trash in the trash can a certain way, going back and rechecking it, Clinging to things like his sisters diapers. Putting things away in a certain order . Straghting up gravel in the drive way as he walked on it. And i noticed it right away and knew somethin strange was happing. Like i said i took him to doctors, and never an answer. But i got with a pschyologist about these issues, and she put him on zoloft, didnt help, rehmemon ( sp?) that seemed to help for awhile but then stopped. Lexapro seemed it made him worse. and prozac, i thought it helped then he started havin the urge to urinate like 15 times in 5 min.. he was staying in the bathrooms all day and night and not peeing. And then i thought kidney, uti , bladder infection or somethin. Had him back at the doctors, and everything was normal, did a vucg test with cathertor, bad experience, but it seemed fine except he couldnt release his self with a cathertor in and the radiologist thout that was kinda weird,. So the doc took him off prozac. and He did stop the urge to urinate 15+ times in 5 min. ( thankful for) But went to retracing his steps. And when he plays with toys or example a bouncy ball, he will retrace that balls bounce and everythin all they way back to his hand. That takes alot of memory. I cant do that!! He retraces his words, as talking in a sentence and totally say it backwards without puttin much thought in it. He will blow on his hands when he touches something , or flick them as if he is trying to get somethin off his hand everytime he touches something. So I took him to a child eva., center , and thats where he got diagnosed with OCD, anxiety, impulsive,, and goes back for more evaluation soon. At the moment he is not on any meds. except his inhaler , he has asmatha. With school he does have a IEP program. But is in a reg. classroom, and goes out for speech and OT therapy. The OCD is 24/hours. If he is not retracing his steps, he putting things in order, retracing his words, objects, etc etc At school, he is not finishing any school work that he starts, he is not staying focas. He worry about lil things all the time. He cant handle transitions/changes. He is behind anyway in learnining from the brain trauma as a infant. And his teacher and I have both noticed his speech has really got worse. Its really slurred and cant understand what he is saying most of the time. At home.. He has always been my baby.. But a very challenging kido . Everything has to go his way, and our lives revovle around him to get through just a day. Because of everything he has been through and still going through on top of OCD. Its impossiable to just to grocery shop or dine out. I have asked him if he thinks of anything bad, or what is wrong to tell me.. and he just says I dont know. What can expect out of a 6 yr old ya know. We have a impact worker/ theraptist, but she says she cannot help. She sets up meetings at the school just to see what is new , or what he has accompished, Other than that im not getting anywhere. But like i said he has more evaultion comeing up. Plus his neurologist appointment. He had recent MRI scan on his brain /spine in august, cause they believed he had theatherd spine that could have been causing the problems of urge to urianate constant. But he didnt. But does have scolosis, and blocked l2;l3 vertbrae of the spine. Anyhow i belive that was a bad case of OCD during that time, now i know more then back in august. But im gonna have the neurologist take a look at them scans while in in his office on the 19th. Im hoping this wasnt to long of a letter. And hoped i answerd most of ur answers. Thanks again L.Drake North Central kentucky Ps thanks for the OCD foundation i have to check that out! <@...> wrote: Hi Drake, To help me understand your son's situation a bit more, sorry I have questions! You mentioned medication - so he has tried the SSRI's? Which ones and for how long? You said they didn't work, was there no reaction or did he have some unwanted side effects? Is he taking anything now? ERP stands for Exposure & Response Prevention (or ritual prevention). The OCD Foundation website has info you can read about therapy (CBT and ERP). It also has info for medication for kids and also a place to search for therapists in your area. Have you tried this already? We live in a sort of rural area, larger cities near but no experienced therapist near enough to us and managed on our own for a long time (with the help of this great group and all that reading we parents do about OCD). Though we recently found a therapist last July that my son is now seeing. His OCD began in 6th grade, he's now in his first year of college. (We've had some calm years, it's hasn't been 24hr OCD throughout this time!) You mentioned medical history? Is that more physical type things or other like ADHD or something? For 504 Plans - I know there's recent posts on this you can look through, I did one with some links in it too. But a 504 Plan is a plan that the school can set up for people with disabilities. The plan is used to set up accommodations and/or modifications needed. You'll read it sort of " levels the playing field " for those with disabilities vs those without in school. This is for physical or mental disabilities. You may read about IEP's. Does your son already have an IEP for special education services? If he has an IEP, then he doesn't need a 504 Plan. What are some of his OC behaviors that are affecting his schoolwork? And what about ones affecting home and family? My son's OCD began with more physical type compulsions/rituals. Sigh, it was like 24/7 OCD! Those are long gone now and his OCD centers around bad thoughts, pretty much it's now called " scrupulosity OCD " where he has constant bad thoughts about God, Jesus and is sure he'll not go to heaven.... If you don't mind sharing where you live (city or area) sometimes others here know of help nearby. single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers/mild > > Hello everyone im kinda new to the group i been reading some of your > emails , and fount out their is alot of people that is in the same > boat that i am. My son started doin odd behaviors last year that i > noticed and took him to many different doctors, that i never got a --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 answering the last question 1st NO I don't think tv/cartoons causes autism. That article was so full of BS takes us back to the parents caused it thinking of 50 years ago. Some of the kids learn a lot from a movie or other DVD If he was strapped to the tv 24/7 may have a problem but I am sure that is not the case. Does his development as you described it sound like a cause for concern? To me yes I would get him into an early intervention preschool and see if it was just one of those 1 step forward 2 steps back times in development or if it continues to point toward a possible autism diagnose new to the group > Hi my name is , I am a mother of 4 children ages 11,9,8 and a > 21 month old baby boy. > I joined this group as I was researching information on autism and > developmental delays. My 8 year old son had a developmental delay > with speech and social skills and I had him evaluated at 2 1/2. I > didnt really think much of it before then, I just thought he was the > baby of the family and therefor was a little slower . He was never > actually diagnosed with autism but initially a receptive delay. > Though as he got older he still continued to " flap " his arms and ran > more akward than other kids his age, socially seemed more young and > naive etc. so I still question he being in the autism spectrum...and > though he has come a long way, actually advanced academically ... I > am having a follow up evaluation in the fall. Which he hasnt had one > since he was 3. At 3 the school district determined he did not > qualify for any special services and I just enrolled him in regular > pre-school and went from there. > Then almost 2 years ago...after a 6 year gap in having babies I had a > beautiful baby boy, . Full term pregnancy, average weight, very > expressive and seemed to be developing normally...until about 15 > months. At 15 months he was still not walking and I worried about > that but nothing else. He started walking at 18 months...finally..and > then seemed too busy and " distracted ? " to interact with us any > longer. I noticed less eye contact, no more peeka-boo games..etc... > but I assumed it was because he was finally walking and too busy to > be bothered with. > But this continued...and then I noticed he wasnt pointing anymore. He > never did say any words but it was these other forms of communication > I noticed regressed. > At his checkup when he was 19 months his pediatrician said he was > behind and by two I might want to consider getting him screened- by > the same center that screened my 8 year old son. I was again worried. > That weekend I took him to the zoo and I really tried to point things > out, and though he was happy and smiley he didnt really acknowledge > anything I was trying to show him. He would prefer to pull his velcro > on his shoes, rub a bar that was in front of an exhibit etc. After > that weekend I decided not to wait until he was two I scheduled a > screening, based on what I said on the phone he qualified as delayed > enough for an evaluation. > So we are still waiting for his evaluation thats in a couple weeks. > He is now 21 months old. He jibber-jabbers happily through out the > house, loves walking ( kind of back and forth) and " doing his own > thing " . He will make eye contact if we swing him in a swing and play > animated goofy games with him, tickle him and such. > He doesnt mind being touch, though he doesnt seek it out or ask to be > held much. If you hold your arms out and say " up " he will respond > with also reaching his arms up to be picked up...but its not usually > his idea. > He sleeps well and through the night. And eats pretty well though he > has gotten pickier and likes alot of the same things. > He is still taking a bottle also, though I know he shouldnt be. > Every day I try to get him to roll a ball back to me things like that > and for the most part he will drop the ball behind him or get up and > do something else. > He has siblings but isnt as interested in what they are doing, like > he use to before walking. > He liked it when they would come in his play area and would hand them > things and such but this has stopped since walking. > So dont know what to think, is he just delayed? Regressed after > walking? He does seem very babyish- more baby than a toddler...other > than the walking. > I guess we are just researching all we can and know that early > intervention is best. > I know he is still pretty young to know for sure whats going on. > Sorry to make this so long. Just looking for any information and > advice thats out there. > > One more thing- does anyone do special no dairy , gluten diets? I was > reading about that but worried to change his diet, especially if his > diet might not be the cause of his delay. > > Also does anyone question cartoons/t.v. contributing or causing > delays? My son loves cartoons, I have cut back recently but before we > were concerned with his development we let him watch pixar movies > etc. he loves them so much we thought it was cute...and now I worry > that maybe he watched too much? > Thank you, > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 Dear , I know how painful regression is to watch, and the helpless feeling. We watched vaccination regression, and it was a nightmare. However, whatever the diagnosis might be, there is much that you can do to heal your child -- to help your child heal. In our experience diet is really important, and casein free/gluten free is probably a benefit to just about everyone, not just those with problems, as it is supportive of the immune system. You might want to get and read McCandless's book: Children with starving brains. It's $10 cheaper on amazon; however, if you order it from her website, you can be on her email list and she answers questions. She also participates in the autism_ldn list. Another wonderful resource is www.IAHP.org for getting kids and adults better. And welcome to the list! Francine In a message dated 7/23/2008 11:45:26 P.M. Eastern Daylight Time, jesslavelle77@... writes: He is still taking a bottle also, though I know he shouldnt be.Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 interested in knowing what his I.Q is if he has been tested? From: probablebubble <probablebubble@...>Subject: New to the GroupAutism and Aspergers Treatment Date: Monday, September 29, 2008, 12:55 PM Hello. I would like to introduce myself. My name is . I have an eight year old male who has been succeeding with Aspergers. He has been diagnosed for 3 (give or take) years now. He does PT twice a week and OT twice a week. I thank God every day for his OT, Quinn, who helped us into the world of differently abled kids! She is our out side rock who helps keep us in check when we want to bite the worlds head off! Let me tell you about Ian. He is our first child. One of three. He has always been different. Wonderfully different. When he was one year old, and we when would go out to eat, Ian would do the maze on his coloring sheet, put the crayon down and engage us in conversation! ! There was never throwing spoons or acting crazy. School has been a challenge. Ian does not make eye contact with strangers. He has never said this, but I think eye contact for Ian is private, personal, so he saves it. But it is hard to convince people he is listening. He has a photo genic memory. Anything you say, he has heard, and stored in his memory, for later use! Getting him to write is a bear. How do you convince people he know all the material, when he REFUSES to write!! Outside bonding does not happen, either. I am lucky if he know the kids name he just played with all day. But every one knows his name!! We walk through a local store and all I hear is "Hi, Ian!!," when I ask him who that was, he shrugs his shoulders!!! Anyway, That is a little bit about us. I would love to hear other stories! Meet with other local families. We are in Vilonia Arkansas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Hello Beth Welcome to the group.. I just had to reply because our family's are so much alike.Well not exactly.. LOL My son is 6 will be 7 in October has Autism.. I have 2 girls 1 is 13 and 1 is 10... I'm 34 and have been married 14 almost 15 in November.. My son is just like yours with behavior and sensory issues... I recently bought a weighted blanket have not got it yet but I'm Hoping he will like it. He has a weighted vest that he does like.. He loves deep pressure... He does have some language but no conversational speech... But can say I want chicken please.. Or anything else he may want.. Well I just wanted to say welcome to our family this group is wonderful.. Lesley -- New to the group Hello Everyone I am new to the group and so glad I found this group and was accepted. We have a 7 yr old boy, Bobby, who has recently been diagnosised. We have been dealing with sensory integration issues since almost birth with him. He was first referred to Birth to 3 because he wasn't talking, which I figured had to do with him having 2 older sisters. He started to attend group speech 2 times a week and they started to see what we were seeing.....sensitivities to touch, sound, and social issues. So they worked OT with him for sound and touch and he seemed to be doing really well. When he turned 3 and transitioned from birth to 3 into the Public school system they saw no reason for OT and very little reason for most of his interventions. After many failed attempts we pulled him out of k3 and did therapy here. He attended the same school for K4 and K5 they felt he was fine and dropped his IEP. We changed schools this year and well things blew......He is having alot of social issues, rigid with his routine, aggressive behaviors since he isn't able to communicate his needs, hard time with sounds. So luckily we have an angel of a teacher who got the school psychologist involved ASAP. We are going through the IEP process and we are going thru Neuropsychology for a medical approach also. At school they are using headphones with music for him, a special area for just him to help regulate, the psychologist works with him 2 times a week. We are relieved someone is helping him but are so in need of help with behaviors and sensory issues in home. Currently we have a yoga ball that he bounces on and it helps.......we have "The out of sync child" which has been my guide book!! So any ideas would be great!! Oh and also I am making him a weighted lap pad. I am 34 yrs old and we have 3 wonderful kids. 2 Girls who are 12 and 10 and Bobby who is 7. Me and my husband have been married for 13 yrs and we live in Milwaukee Wi. I look forward to getting to know everyone and learning lots!! Love Beth "We don't know the true value of moments until they have undergone the test of memory" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Hello Beth Welcome to the group.. I just had to reply because our family's are so much alike.Well not exactly.. LOL My son is 6 will be 7 in October has Autism.. I have 2 girls 1 is 13 and 1 is 10... I'm 34 and have been married 14 almost 15 in November.. My son is just like yours with behavior and sensory issues... I recently bought a weighted blanket have not got it yet but I'm Hoping he will like it. He has a weighted vest that he does like.. He loves deep pressure... He does have some language but no conversational speech... But can say I want chicken please.. Or anything else he may want.. Well I just wanted to say welcome to our family this group is wonderful.. Lesley -- New to the group Hello Everyone I am new to the group and so glad I found this group and was accepted. We have a 7 yr old boy, Bobby, who has recently been diagnosised. We have been dealing with sensory integration issues since almost birth with him. He was first referred to Birth to 3 because he wasn't talking, which I figured had to do with him having 2 older sisters. He started to attend group speech 2 times a week and they started to see what we were seeing.....sensitivities to touch, sound, and social issues. So they worked OT with him for sound and touch and he seemed to be doing really well. When he turned 3 and transitioned from birth to 3 into the Public school system they saw no reason for OT and very little reason for most of his interventions. After many failed attempts we pulled him out of k3 and did therapy here. He attended the same school for K4 and K5 they felt he was fine and dropped his IEP. We changed schools this year and well things blew......He is having alot of social issues, rigid with his routine, aggressive behaviors since he isn't able to communicate his needs, hard time with sounds. So luckily we have an angel of a teacher who got the school psychologist involved ASAP. We are going through the IEP process and we are going thru Neuropsychology for a medical approach also. At school they are using headphones with music for him, a special area for just him to help regulate, the psychologist works with him 2 times a week. We are relieved someone is helping him but are so in need of help with behaviors and sensory issues in home. Currently we have a yoga ball that he bounces on and it helps.......we have "The out of sync child" which has been my guide book!! So any ideas would be great!! Oh and also I am making him a weighted lap pad. I am 34 yrs old and we have 3 wonderful kids. 2 Girls who are 12 and 10 and Bobby who is 7. Me and my husband have been married for 13 yrs and we live in Milwaukee Wi. I look forward to getting to know everyone and learning lots!! Love Beth "We don't know the true value of moments until they have undergone the test of memory" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 Hello, I'm new to this group. I'm an adult with aspergers . Are there any adults with aspergers on this list? All I see are scores of parents with affected children. Thanks, Hugh From: lesley hicks <lesley_hcks@...>Autism and Aspergers Treatment Sent: Thursday, February 26, 2009 5:27:02 AMSubject: Re: New to the group Hello Beth Welcome to the group.. I just had to reply because our family's are so much alike.Well not exactly.. LOL My son is 6 will be 7 in October has Autism.. I have 2 girls 1 is 13 and 1 is 10... I'm 34 and have been married 14 almost 15 in November.. My son is just like yours with behavior and sensory issues... I recently bought a weighted blanket have not got it yet but I'm Hoping he will like it. He has a weighted vest that he does like.. He loves deep pressure... He does have some language but no conversational speech... But can say I want chicken please.. Or anything else he may want.. Well I just wanted to say welcome to our family this group is wonderful.. Lesley -- New to the group Hello Everyone I am new to the group and so glad I found this group and was accepted. We have a 7 yr old boy, Bobby, who has recently been diagnosised. We have been dealing with sensory integration issues since almost birth with him. He was first referred to Birth to 3 because he wasn't talking, which I figured had to do with him having 2 older sisters. He started to attend group speech 2 times a week and they started to see what we were seeing.....sensitiv ities to touch, sound, and social issues. So they worked OT with him for sound and touch and he seemed to be doing really well. When he turned 3 and transitioned from birth to 3 into the Public school system they saw no reason for OT and very little reason for most of his interventions. After many failed attempts we pulled him out of k3 and did therapy here. He attended the same school for K4 and K5 they felt he was fine and dropped his IEP. We changed schools this year and well things blew......He is having alot of social issues, rigid with his routine, aggressive behaviors since he isn't able to communicate his needs, hard time with sounds. So luckily we have an angel of a teacher who got the school psychologist involved ASAP. We are going through the IEP process and we are going thru Neuropsychology for a medical approach also. At school they are using headphones with music for him, a special area for just him to help regulate, the psychologist works with him 2 times a week. We are relieved someone is helping him but are so in need of help with behaviors and sensory issues in home. Currently we have a yoga ball that he bounces on and it helps....... we have "The out of sync child" which has been my guide book!! So any ideas would be great!! Oh and also I am making him a weighted lap pad. I am 34 yrs old and we have 3 wonderful kids. 2 Girls who are 12 and 10 and Bobby who is 7. Me and my husband have been married for 13 yrs and we live in Milwaukee Wi. I look forward to getting to know everyone and learning lots!! Love Beth "We don't know the true value of moments until they have undergone the test of memory" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Welcome. I've an adult daughter Hugh, only she's not yet interested in email! And yes, Pamela is. Francine New to the group Hello Everyone I am new to the group and so glad I found this group and was accepted. We have a 7 yr old boy, Bobby, who has recently been diagnosised. We have been dealing with sensory integration issues since almost birth with him. He was first referred to Birth to 3 because he wasn't talking, which I figured had to do with him having 2 older sisters. He started to attend group speech 2 times a week and they started to see what we were seeing.....sensitiv ities to touch, sound, and social issues. So they worked OT with him for sound and touch and he seemed to be doing really well. When he turned 3 and transitioned from birth to 3 into the Public school system they saw no reason for OT and very little reason for most of his interventions. After many failed attempts we pulled him out of k3 and did therapy here. He attended the same school for K4 and K5 they felt he was fine and dropped his IEP. We changed schools this year and well things blew......He is having alot of social issues, rigid with his routine, aggressive behaviors since he isn't able to communicate his needs, hard time with sounds. So luckily we have an angel of a teacher who got the school psychologist involved ASAP. We are going through the IEP process and we are going thru Neuropsychology for a medical approach also. At school they are using headphones with music for him, a special area for just him to help regulate, the psychologist works with him 2 times a week. We are relieved someone is helping him but are so in need of help with behaviors and sensory issues in home. Currently we have a yoga ball that he bounces on and it helps....... we have "The out of sync child" which has been my guide book!! So any ideas would be great!! Oh and also I am making him a weighted lap pad. I am 34 yrs old and we have 3 wonderful kids. 2 Girls who are 12 and 10 and Bobby who is 7. Me and my husband have been married for 13 yrs and we live in Milwaukee Wi. I look forward to getting to know everyone and learning lots!! Love Beth "We don't know the true value of moments until they have undergone the test of memory" Get there faster with the MapQuest Toolbar. Try it now. Quote Link to comment Share on other sites More sharing options...
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