Thank you

March 30, 2004

In a message dated 3/30/2004 2:32:56 PM Pacific Standard Time,

ma46368@... writes:

> I leave a week from today for California. I have my revision and DS

> done on the 14th of April. I am looking forward to meeting alot of

> you at the meeting on the 13th.

>

> Kathy

Godspeed, Kathy. Travel safely, arrive rested and have an uneventful surgery

and easy recovery (and great losses afterward). I'll keep you in my prayers.

Hugs and blessings,

Ann

March 30, 2004

Kathy...have a safe trip out here from Indiana! I'll be at the

support meeting... evil grin...that day you will be on clear liquids

and will need to drink to " poop juice " ....is going to drag you

to all our eating adventures that day? I hope you do go, not so we

can be evil and eat in front of you...but because its a great time

to get to know each other.

Wishing you the speediest, uneventful post-op recovery.

Hugs

Jo

April 3, 2004

Best of everything to you on your surgery, Kathy! May you have a

smooth, easy, boring recovery!

Tracey

>

> I leave a week from today for California. I have my revision and

DS

> done on the 14th of April. I am looking forward to meeting alot

of

> you at the meeting on the 13th.

>

> Kathy

February 2, 2007

Welcome la!

Raven

Co-Administrator

February 2, 2007

Welcome from me too :-)

>

> Welcome la!

>

> Raven

> Co-Administrator

>

March 7, 2007

Barb,

You have made the best choice for Evan. Max was in a brace for 3

months and his curve still doubled. I really wish I would've gone

with the casting sooner instead of the brace. I had many

apprehensions with casting, but is what has saved Max from having

growing rod surgery at the age of 13 months. He may still need it,

but if we can buy time until he is older that is beneficial to Max

in the long run.

Max is in his 4th cast with his spine being the straightest ever.

And he's 1.25 inches taller in cast!

You have many parents who will support you in this journey with

Evan. You will learn so much from him and about him.

Please keep us posted. We'll be thinking of you and Evan on the 25th!

Aekta

Maxwell age 19 months

Cast 4 from Shriners Hospital-Chicago

>

> I just wanted to say " Thank You " to everyone who has posted

messages to

> this site. It has really helped to educate me. My son Evan (who

is

> now 11 months) was diagnosed with infantile scoliosis at 4 months

and

> currently has a 32 degree curve. I did not find the CAST site

until he

> was 9 months old and he was being observed every 4 months by his

local

> Ortho.

> After reading all the posts and information, I decided to send his

X-

> Rays to Erie and he has been approved for Casting! Our

appointment

> with Dr. is on March 25th. We are going to his local

Ortho

> this Friday just to see what he has to say about casting in

general.

> We will take his comments to Erie and hopefully move forward with

what

> is best for Evan. I am excited and nervous at the same time:)

>

> Thanks again for all your help

>

> Barb - Evan's Mom

>

March 7, 2007

Barb,

What great news. I think you will be very happy with Dr. ! Good luck on

the 25th and be sure to post when you get back and let us know how it goes.

Noelle (12-2-01)

Ian (8-15-04)

Thank You

I just wanted to say " Thank You " to everyone who has posted messages to

this site. It has really helped to educate me. My son Evan (who is

now 11 months) was diagnosed with infantile scoliosis at 4 months and

currently has a 32 degree curve. I did not find the CAST site until he

was 9 months old and he was being observed every 4 months by his local

Ortho.

After reading all the posts and information, I decided to send his X-

Rays to Erie and he has been approved for Casting! Our appointment

with Dr. is on March 25th. We are going to his local Ortho

this Friday just to see what he has to say about casting in general.

We will take his comments to Erie and hopefully move forward with what

is best for Evan. I am excited and nervous at the same time:)

Thanks again for all your help

Barb - Evan's Mom

March 7, 2007

Dear Barb, congratulations! This group continually educates me with things I

never knew before about casting!

What a fabulous decision you are making for your son. He is at a great age to

have his curve resolved! (I'm assuming he has progressive infantile scoliosis)

Please let us know of his progress!

Take care,

Claflin wrote:

Barb,

What great news. I think you will be very happy with Dr. ! Good luck on

the 25th and be sure to post when you get back and let us know how it goes.

Noelle (12-2-01)

Ian (8-15-04)

Thank You

I just wanted to say " Thank You " to everyone who has posted messages to

this site. It has really helped to educate me. My son Evan (who is

now 11 months) was diagnosed with infantile scoliosis at 4 months and

currently has a 32 degree curve. I did not find the CAST site until he

was 9 months old and he was being observed every 4 months by his local

Ortho.

After reading all the posts and information, I decided to send his X-

Rays to Erie and he has been approved for Casting! Our appointment

with Dr. is on March 25th. We are going to his local Ortho

this Friday just to see what he has to say about casting in general.

We will take his comments to Erie and hopefully move forward with what

is best for Evan. I am excited and nervous at the same time:)

Thanks again for all your help

Barb - Evan's Mom

April 28, 2007

Great Imogene! Do let us know how it turns out. If this works, have

to come up with an idea for hygiene!

>

> Hi All,

>

> About my DD who couldn't do her laundry: As was suggested by

several of you, I have negotiated a chore switch with her. I will do

the laundry, if she will sweep the kitchen floor. She has agreed.

May 2, 2007

" Thank you

" Thanks for the birthday greetings everyone. I had a good birthday. "

It's a pleasure to see that you are still here.

Tom

Administrator

May 2, 2007

" Thank you

" Thanks for the birthday greetings everyone. I had a good birthday. "

It's a pleasure to see that you are still here.

Tom

Administrator

June 7, 2007

Thank you for such a great idea of remembrance and with Star's own words showing how she was such a positive person and yes with hope she shared with us in group. and with the other mods help we need to come up with ideas for a Group Memorial Page. Love and Hugs. Deb <kcpapa2@...> wrote: Here’s a few memories of Star, She always had hope and a sense of humor. Re: MELD Rating Good Evening Kathy, All I can do is give it my best effort. And, I'm not going to take no as a answer. My thanks go to this group, they have taught me way more than any doctor has ever even tried to explain to me, In terms I can understand. Good Day Del,

You just crack me up, with a way of words you have.And how you succeed in putting them all together. As, I said before Lactulose has worked for me, and kept my ammonia level around 55 last time it was checked. Star Cookwhomeinnc@...whomeinnc Dec 10, 2006 1:42 pm Re: Re: Questions - Deb Good Day Dear Deb, I'm doing alright. Last Weds. they went down my throat just to look, ordered by UNC the transplant hospital. They ended up putting 6 more bands in my throat, and did some kind of bios Hi Deb and Everyone, I am looking into information on what is available in today's treatments. Helping a friend out, plus, I know that when this transplant comes, so will treatment, and I know I myself will have to do it again. I need to educate myself ... Re: Super Bowl Sunday.. Evening Del, I'm not much for Football. My understanding of the game is, there are two sides. One wants the ball one way, the other team the other way. Sounds exciting to me. Good Day Tim, Just keep a positive attitude, this is what is most important. Keep stress out of your life as much as possible. I have lived with this dragon for 30 plus years. Though I am now end stage, I still hold hope. What does south mean? I am in NC Good Evening Dannegrl, Relax, breath slowly, and think of all the creative way of disciplining the children. I raised eight, one girl, seven boys, and any kind of break, it threw me off of my schedule, of working, college. Re: Suzie - Del - Glenda - Star //

DEB!!!! Na Del, I just always appear this way. Happy, care free. The lactulose only helps me to keep the toxins out of my blood stream. But, of course, I can act anyway you choice me to act. Star1956 Del Compton <go_deliman@... wrote: Do we seem Lack-a-Lactulose Hi Deb, Yes, actually I do feel better. I have always been one to hold my feelings in. A long term process Italian's were taught, to be seen but not heard. I know I can over come any thing. I proved this when I made an appointment back to Duke, It's all just so crazy. I don't know what to believe at times. Especially when it comes to the doctors. And, if you can't trust what the doctors do for you, even

if it is hurting you more. What the hell! I've never been much of a complainer, Gail/ ] Treatment outcomes Hi Gail, If I could do treatment, I certainly would. But, I am end stage and can't. All I can hope for now is a transplant. But, I do have hope, and a positive attitude. Treatment outcomes I didn't fail, treatment failed me. Geno 1A 18 month of just interferon in 1990's. Star1956 Deb <posttransplant@... wrote: Need to add - Failed Responder. I didn't fail tx failed me. Love and Hugs. Deb Thank you Pat. Me, I'm doing a lot of prayers these days But, I keep reminding myself, how lucky I am. May God guide us all through the days. And may he hold each and everyone of our hands. Amen Sincerely Star1956 Dannegrl Sorry Dannerl, it has taken me to long to write you. I've had a few problems. And was not on line much. But, I hope you are feeling better. And that each and every day will be easier on you. Many thoughts and prayers, your way. Star1956.

August 24, 2007

My parents use an ointment for arthritis that I have tried (and got

relief) when joints are in pain---it is called " Unkers " . It is not

sold in retail stores, but they get from a rep. in TN. You might be

able to find it online. I have used Biofreeze and it is helpful as well.

IL

My mom has just told me about a rub called Biofreeze which helps with

pain. She uses it and it seems to work for her. Has anyone here ever

heard of it or used it and if so what were the results?

> Sherry

August 24, 2007

My parents use an ointment for arthritis that I have tried (and got

relief) when joints are in pain---it is called " Unkers " . It is not

sold in retail stores, but they get from a rep. in TN. You might be

able to find it online. I have used Biofreeze and it is helpful as well.

IL

My mom has just told me about a rub called Biofreeze which helps with

pain. She uses it and it seems to work for her. Has anyone here ever

heard of it or used it and if so what were the results?

> Sherry

August 24, 2007

My parents use an ointment for arthritis that I have tried (and got

relief) when joints are in pain---it is called " Unkers " . It is not

sold in retail stores, but they get from a rep. in TN. You might be

able to find it online. I have used Biofreeze and it is helpful as well.

IL

My mom has just told me about a rub called Biofreeze which helps with

pain. She uses it and it seems to work for her. Has anyone here ever

heard of it or used it and if so what were the results?

> Sherry

August 26, 2007

I use a product called OthoGel. I get it from my Chiropractor. It is made by the

same company that makes BioFreeze. I have found that Orthogel works even better

than BioFreeze.

---------------------------------

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lay it on us.

August 26, 2007

I use a product called OthoGel. I get it from my Chiropractor. It is made by the

same company that makes BioFreeze. I have found that Orthogel works even better

than BioFreeze.

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and

lay it on us.

August 26, 2007

I use a product called OthoGel. I get it from my Chiropractor. It is made by the

same company that makes BioFreeze. I have found that Orthogel works even better

than BioFreeze.

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and

lay it on us.

December 7, 2007

Breathing is good. )

I've found, on our journey through trying to figure out this OCD, that

knowledge is power. If you know what you are dealing with, and how to

battle it, you feel you have some control over it instead of it just

having control over you and your loved one.

BJ

>

> I am not sure who to thank first for all the wonderful

> answers/replies/ideas/suggestions/knowledge/support being offered to

> me!! It is truly wonderful and for the first time in a long time I

> actaully took a breathe!!! THANK YOU!!! Colette

>

December 7, 2007

Breathing is good. )

I've found, on our journey through trying to figure out this OCD, that

knowledge is power. If you know what you are dealing with, and how to

battle it, you feel you have some control over it instead of it just

having control over you and your loved one.

BJ

>

> I am not sure who to thank first for all the wonderful

> answers/replies/ideas/suggestions/knowledge/support being offered to

> me!! It is truly wonderful and for the first time in a long time I

> actaully took a breathe!!! THANK YOU!!! Colette

>

March 31, 2008

Hi Mandy,

I'm so sorry you are not in good shape right now,take out your sword and start

swinging,your bound to at least nick the dragon! About your meds and insurance,I

know I've read here before that sometimes if you contact the drug company that

makes what you take,you can contact them,explain the circumstances and they will

sometimes give you either samples or the whole prescription.Others know more

about this than I do, but I know someday I will need the info,so I'd like to

know also.I know my Rheumy gives samples,maybe yours will too.It can't hurt to

ask.I wish you well and good luck with your meds.I hope you will not get a full

fledged flare,try not to stress too much,we know what that does to us.Good Luck,

Elly

Mandy wrote:

Hello Everyone,

I want to thank all of you who replied to my last post. All of your messages

helped a lot and I thought a lot about what all of you have said. You all had a

lot of useful information.

Edited by Moderator

March 31, 2008