Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 rhonda m pineau <scottron2@...> wrote: I feel so bad for all out there who are having problems getting services. I'm new to all this and just took for granted that it was there for the asking. My daughter Olivia was 13 months when she started receiving EI. Her neurologist wrote a referral, I called the EI people, they came out that week for an eval and have been coming twice a week since. Right now they charge my insurance company but they told us that even if our insurance didn't cover it she would recieve these services til she's 3. I live in New Hampshire, maybe you guys should all move out here!! LOL Now, I don't know what happens once she turns three but I've heard a different program kicks in at that point and covers her til she's 8. Good luck, Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 What kind of sensory issues does your daughter have? Olivia hates to have her hands touched. That's where most of her sensory issues are. She seems to be a little better with it, just a little mind you, since we started the DMG. Is EI the only therapy you use? Do you do any of the vitamin therapy? And what is ESY? Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Dear Rhonda, I'm not sure who you were addressing your questions to, but my daughter , who is now 13, had the dame type of tactile defensiveness as your daughter. We were able to get her to tolerate any kind of touch through sensory integration/OT services. Brushing her hands and arms as well as her legs and back got rid of the hand touching issue. Also continually exposing her to tactile stimulation in the form of playdough, shaving cream, jello etc. aslo helped. Re: Extended school year services > What kind of sensory issues does your daughter have? Olivia hates to > have her hands touched. That's where most of her sensory issues are. > She seems to be a little better with it, just a little mind you, since we > started the DMG. Is EI the only therapy you use? Do you do any of the > vitamin therapy? And what is ESY? > Rhonda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 ESY means extended year services. -- Re: Extended school year services Dear Rhonda, I'm not sure who you were addressing your questions to, but my daughter , who is now 13, had the dame type of tactile defensiveness as your daughter. We were able to get her to tolerate any kind of touch through sensory integration/OT services. Brushing her hands and arms as well as her legs and back got rid of the hand touching issue. Also continually exposing her to tactile stimulation in the form of playdough, shaving cream, jello etc. aslo helped. Re: Extended school year services > What kind of sensory issues does your daughter have? Olivia hates to > have her hands touched. That's where most of her sensory issues are. > She seems to be a little better with it, just a little mind you, since we > started the DMG. Is EI the only therapy you use? Do you do any of the > vitamin therapy? And what is ESY? > Rhonda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Extended School Year Re: Extended school year services Dear Rhonda, I'm not sure who you were addressing your questions to, but my daughter , who is now 13, had the dame type of tactile defensiveness as your daughter. We were able to get her to tolerate any kind of touch through sensory integration/OT services. Brushing her hands and arms as well as her legs and back got rid of the hand touching issue. Also continually exposing her to tactile stimulation in the form of playdough, shaving cream, jello etc. aslo helped. Re: Extended school year services > What kind of sensory issues does your daughter have? Olivia hates to > have her hands touched. That's where most of her sensory issues are. > She seems to be a little better with it, just a little mind you, since we > started the DMG. Is EI the only therapy you use? Do you do any of the > vitamin therapy? And what is ESY? > Rhonda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 hi Rhonda, Isabella's main sensory problems are touch. Six months ago she really wouldn't touch a whole lot. She ate with her hands but could only be grilled cheese or pizza cut up into little pieces and if anything got on her hands watch out. Popicles dripping on her hands or body could send her off and water poured over her head. Also as far back as I can remember she would cry and fuss when someone would laugh. The larger the crowd and more laughter the worse the reaction. A few months ago she would just poke at playdough never squeezing or shaping. She wouldn't use her hands at all to play with it. Now she digs right it pushing patting pulling. She loves deep presure and would often seek it out by jumping and crashing against furniture and putting the pillows on her. She wears a neopreen pressure vest now. She has done so well with it that we only use it when we expose her to a new enviroment that may be stressful. We couldn't even take her into the stores before. She would scream at the doors. But, now she is so much better. She is coping great I wonder now if maybe she doesn't have ASD then she has a bad day. Her language is still a little off. Sorry so long tell me about your daughter. Where was she dx's and how long ago. Are you making much progress. Also, ESY is extended school year (summer program). rhonda m pineau <scottron2@...> wrote: What kind of sensory issues does your daughter have? Olivia hates to have her hands touched. That's where most of her sensory issues are. She seems to be a little better with it, just a little mind you, since we started the DMG. Is EI the only therapy you use? Do you do any of the vitamin therapy? And what is ESY? Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Rhonda, No we don't use vitiman therapy or any other drugs. I have felt we are making great progress at this point. Since EI ends when the child turns three we are now in the school system so we are no longer with EI as of June. We did Isabella's IEP in May and now she is all set with services for the next year. The only therapy we get outside of school is horesback riding therapy it is great for sensory. I feel this has made a huge difference. Ask your ot about it. Remember all kids are different what works with one may not work with another but ask about it. rhonda m pineau <scottron2@...> wrote: What kind of sensory issues does your daughter have? Olivia hates to have her hands touched. That's where most of her sensory issues are. She seems to be a little better with it, just a little mind you, since we started the DMG. Is EI the only therapy you use? Do you do any of the vitamin therapy? And what is ESY? Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Hi , I've been so busy lately I'm not even sure if I replied to this e=mail. Olivia was diagnosed at 13 months with PDD. I had a second opinion who said she was " developmentally delayed with signs of an ASD " . They recommended EI twice a week but never went beyond that. They didn't tell me other options or what to expect or anything. Nothing worse than not knowing ANYTHING. We're basically focusing on brush therapy right now cause her " touchy feelly " issues seem to be holding her back. I just started doing the brushing on a regular basis, every couple hours. I didn't realize that the 2 times a week her therapist did it just wasn't enough - duh- mother of the year! Anyway, I'm seeing a difference so that's a good thing. Right now I'm really wishing she'd just start walking. She's 21 months and just has no desire at all to walk. I think I mentioned that she " scooches " to get around. She has no problems in stores and actually seems to enjoy shopping. We've been giving her DMG for almost 3 weeks now and I don't know if it's a coincidence or not but I am now able to console her when she's fussy. She now even hugs me and lets me rock her to sleep. Still, I'd like to see something BIG. Walking or even talking, maybe eating with a spoon... you know what I mean? She does say momma and she babbles so sometimes I swear she says other things but I'm never really sure. Ok, I've written a book here. Ever tried the cod liver oil? Rhonda Quote Link to comment Share on other sites More sharing options...
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