Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 - We started it 4 months ago and it has helped so much. I think it has helped more than our Prompt Therapists has, for sure. I wish we had started a year ago too. My Daughter gets 10 hours a week but we are doing it privately since I have not heard of any school districts that offer it. Where do you live ? How old is your son ? Does he get the full 3 hours a day 1 on 1 with the therapist ? > > > > > > > > >Hi , > > > > > > > > > >I was reading your post about being careful if a child > > > > >is doing ABA but is not autistic. Can you explain? My > > > > >daughter, is 3, not walking or talking yet with no > > > > >diagnosis. She started ABA to help with finemotor, > > > > >sensory, oral motor and we did see some improvement, > > > > >although my OT and PT, felt we needed to be careful > > > > >too. OUr Behavioral analysis said that since she is a > > > > > " slow learner " (which I think is because of sever > > > > >sensory processing disorder- vestibular/dyspraxia, > > > > >that she should be in an ABA program all day long. > > > > > > > > > >Any further thoughts will be appreciated! > > > > > > > > > >Kathy > > > > > > > > > > > > > > > > > > > >__________________________________________________________ > > > > >Don't get soaked. Take a quick peak at the forecast > > > > >with the Search weather shortcut. > > > > >http://tools.search./shortcuts/#loc_weather > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I attend a parents supp group in Manchester - we get speakers in for half the session and have peer support for 2nd half it's really helpful. We have a library, a group folder of all previous speakers info. and an email list for courses and conferences. I also attended one while in Los Angeles run by services - the parents spent time with a Psychologist and the kids in a Social Skills group, but mine did find some of the more severe kids abit scary - however I wish I could have found the latter back here - they have it now but my son is now too old - Support seems to stop at all at 18 [in 3 weeks time!] - he did have individual work, but it's not the same - the group they do now mixes AS & non-AS teen as well as both sexes & do 2 groups: 10-14 & 14-17 - other mum's say that really helps! We also [in UK] have Aspirations - a wonderful organisation for just the kids [no parents allowed!] ~ they do all sorts of group hobby and social activities, trips out as a group http://www.mentalhealthinmanchester.org.uk/includes/frame.php?url2=http://www.as\ gma.org.uk%2F - I think the kids group needs some professional leadership. On the do symptoms get worse with age strain: ~ a positive note - My experience is that with maturity it does get better - my son knows now that there are things he has to do despite difficulty - like going to dentist, having shots and works out strategies to get through them. Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2009 Report Share Posted March 16, 2009 Shirley, The DuPage Family Disability Network meets monthly at the Lisle Library in the evening. The Dupage Work Group is being re-energized and that has been meeting on Friday mornings and it is a group that could use helping hands to move the agenda forward. It has met at the Pact office in Lombard. The Transition Planning Committee is more of a work group but I have fond it helpful in getting updated information. That group meets in the afternoon at 2525 Cabot in Lisle. Thos are the groups I know of in DuPage. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. To everyone who cares, Lottie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Yes we are-family-and Lottie you are our inspiration!! Aloha Sharon _____ From: [mailto: ] On Behalf Of Lottie Duthu Sent: Tuesday, June 30, 2009 8:45 PM CML Subject: [ ] Support group I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. To everyone who cares, Lottie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Hi Lottie, You summed it up very well!!! Â God Bless, Jackie From: Lottie Duthu <lotajamcomcast (DOT) net> Subject: [ ] Support group " CML " <groups (DOT) com> Date: Wednesday, July 1, 2009, 3:45 AM I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. To everyone who cares, Lottie ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Hi Lottie: You Said It All!! I have found this group better than some others. There is always somebody available to help someone else. All the sharing and support as well as some laughter is what we all need. Lets keep it going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 YES! Well said! From: lotajam@... Date: Tue, 30 Jun 2009 22:45:27 -0500 Subject: [ ] Support group I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. To everyone who cares, Lottie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Hi Lottie, Greetings from Amsterdam. I will have more to say about the New Horizons meeting in Lisbon on the weekend when I get back home. I would to add one more thing that this group does. WE SAVE LIVES! This comes in many colors. The most common one is when a CML patient is being treated by an inexperienced doctor. We point out what he is doing wrong and we direct the patient to an expert CML doctor in his area. The most common error made by an inexperienced doctor is to lower the dose of Gleevec when the patient is suffering from side effects. This, as we all now know leads to becoming resistant to Gleevec. We help by getting patients in touch which the top CML doctors world wide. For those who cannot afford Gleevec we point them to the many programs that provide Gleevec for free. Thank you Lottie, Zavie On 7/1/09, Lottie Duthu <lotajam@...> wrote: > > > > I wanted to share something that happened recently. I was talking to a > friend and mentioned my support group. She asked what we did anyway. I said > well if you think we just cry in each other's beer, you have it all wrong. > We talk about our families, our reports, test results and yes, even filing > and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the > right questions, down to the nitty gritty. I said we exchange jokes and have > a little fun at each other's expense that everyone gets to enjoy, because we > still have our sense of humor intact, down to bathroom jokes. I continued by > telling her that we post pictures of ourselves and grandchildren, and try to > meet whenever the opportunity arises. In two words, we are " friends " and > " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 That is SO TRUE. The group has done both these things for me. A very grateful From: zmiller@... Date: Wed, 1 Jul 2009 18:24:13 +0200 Subject: Re: [ ] Support group Hi Lottie, Greetings from Amsterdam. I will have more to say about the New Horizons meeting in Lisbon on the weekend when I get back home. I would to add one more thing that this group does. WE SAVE LIVES! This comes in many colors. The most common one is when a CML patient is being treated by an inexperienced doctor. We point out what he is doing wrong and we direct the patient to an expert CML doctor in his area. The most common error made by an inexperienced doctor is to lower the dose of Gleevec when the patient is suffering from side effects. This, as we all now know leads to becoming resistant to Gleevec. We help by getting patients in touch which the top CML doctors world wide. For those who cannot afford Gleevec we point them to the many programs that provide Gleevec for free. Thank you Lottie, Zavie On 7/1/09, Lottie Duthu <lotajam@...> wrote: > > > > I wanted to share something that happened recently. I was talking to a > friend and mentioned my support group. She asked what we did anyway. I said > well if you think we just cry in each other's beer, you have it all wrong. > We talk about our families, our reports, test results and yes, even filing > and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the > right questions, down to the nitty gritty. I said we exchange jokes and have > a little fun at each other's expense that everyone gets to enjoy, because we > still have our sense of humor intact, down to bathroom jokes. I continued by > telling her that we post pictures of ourselves and grandchildren, and try to > meet whenever the opportunity arises. In two words, we are " friends " and > " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Dear Lottie, I don't know what I'd do without you on my right and Bobby on my left--hummmmm, is that a political joke? Bob , Granger, IN > > I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 How about me in the middle?????? LOL!! Sharon T _____ From: [mailto: ] On Behalf Of Sent: Wednesday, July 01, 2009 11:51 AM Subject: [ ] Re: Support group Dear Lottie, I don't know what I'd do without you on my right and Bobby on my left--hummmmm, is that a political joke? Bob , Granger, IN > > I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 You guys have sure helped save my life as well as boost my spirits and to let me know I could have a future to look forward to. I thank you all for all the information and all the jokes and yes I have cried a many a tear with you guys. This support group is the best Anita ________________________________ From: Zavie <zmiller@...> Sent: Wednesday, July 1, 2009 11:24:13 AM Subject: Re: [ ] Support group Hi Lottie, Greetings from Amsterdam. I will have more to say about the New Horizons meeting in Lisbon on the weekend when I get back home. I would to add one more thing that this group does. WE SAVE LIVES! This comes in many colors. The most common one is when a CML patient is being treated by an inexperienced doctor. We point out what he is doing wrong and we direct the patient to an expert CML doctor in his area. The most common error made by an inexperienced doctor is to lower the dose of Gleevec when the patient is suffering from side effects. This, as we all now know leads to becoming resistant to Gleevec. We help by getting patients in touch which the top CML doctors world wide. For those who cannot afford Gleevec we point them to the many programs that provide Gleevec for free. Thank you Lottie, Zavie On 7/1/09, Lottie Duthu <lotajamcomcast (DOT) net> wrote: > > > > I wanted to share something that happened recently. I was talking to a > friend and mentioned my support group. She asked what we did anyway. I said > well if you think we just cry in each other's beer, you have it all wrong. > We talk about our families, our reports, test results and yes, even filing > and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the > right questions, down to the nitty gritty. I said we exchange jokes and have > a little fun at each other's expense that everyone gets to enjoy, because we > still have our sense of humor intact, down to bathroom jokes. I continued by > telling her that we post pictures of ourselves and grandchildren, and try to > meet whenever the opportunity arises. In two words, we are " friends " and > " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 You speak for all of us, Bob! : - ) From: bob-stewart@... Date: Wed, 1 Jul 2009 18:51:14 +0000 Subject: [ ] Re: Support group Dear Lottie, I don't know what I'd do without you on my right and Bobby on my left--hummmmm, is that a political joke? Bob , Granger, IN > > I wanted to share something that happened recently. I was talking to a friend and mentioned my support group. She asked what we did anyway. I said well if you think we just cry in each other's beer, you have it all wrong. We talk about our families, our reports, test results and yes, even filing and that is just a few of the things. > > Most importantly, we learn how to stand up for ourselves by asking the right questions, down to the nitty gritty. I said we exchange jokes and have a little fun at each other's expense that everyone gets to enjoy, because we still have our sense of humor intact, down to bathroom jokes. I continued by telling her that we post pictures of ourselves and grandchildren, and try to meet whenever the opportunity arises. In two words, we are " friends " and " family " at the same time. > To everyone who cares, > Lottie > . > > Quote Link to comment Share on other sites More sharing options...
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