help!!!!

December 12, 2002

Now tell the truth, how many of you have cheated with all of these holiday

" festivities " ? I'm finding it impossible to go to all of these parties and not

have atleast ONE thing I'm not supposed to. I went to a dinner party the other

night and there was not one thing for me to eat. I was starving and I couldn't

insult the host so I ate a little.

Anyone else having holiday eating problems?

Ho,Ho,Ho

Lynne

>I know the feeling!!! It's so hard at work! Snacks and goodies are

>everywhere!!!

>

>>--who is crying inside because she is surrounded by donuts

>>and reese's christmas trees that she cannot eat. † Work sucks.

>

December 12, 2002

I have cheated. I quit drinking my usual glass of

wine in the evenings and thought I would try imported

potato vodka What am I thinking==Maybe this negates

the alcohol?! So far I have not cheated on the food,

but am going on a cruise in Feb (my first) and don't

know how I will make it through that.

--- Lynne Batlan Levine <syrene@...>

wrote:

> Now tell the truth, how many of you have cheated

> with all of these holiday " festivities " ? I'm

> finding it impossible to go to all of these parties

> and not have atleast ONE thing I'm not supposed to.

> I went to a dinner party the other night and there

> was not one thing for me to eat. I was starving and

> I couldn't insult the host so I ate a little.

> Anyone else having holiday eating problems?

>

> Ho,Ho,Ho

> Lynne

>

> >I know the feeling!!! It's so hard at work!

> Snacks and goodies are

> >everywhere!!!

> >

> >>--who is crying inside because she is

> surrounded by donuts

> >>and reese's christmas trees that she cannot eat.

> † Work sucks.

> >

December 12, 2002

Have you tried brown rice with stevia, a little salt, and flax seed oil on

top? How about cooked kamut with stevia and flax?

Cream of Buckwheat with stevia.... At least it helps the sweet tooth and

is a good carb source (wheat and gluten free...

Some sources say you can even have oatmeal. I know it's not chocolate,

but at least it's sweet.....

Mic

> I am having so much trouble staying on this eating program! I don't

>know what to eat! I am hungry all the time and I crave lots of

>sweets. I start out the day fine, with an egg usually, and then by 9

>am I'm ravenous. It's like I don't feel full unless I have a

>carbohydrate.

December 12, 2002

I guess I'm confused about the diet then. I thought that carbs were

a no-no. What carbs are good? Are some bad? On a side note, I know

that I for sure have a candida problem or atleast a reaction to

sugar. I broke down and had like six pieces of chocolate. I started

itching all over my body and soon developed little welts on my arms!

Well, at least I know now that its not just in my head.

> Have you tried brown rice with stevia, a little salt, and flax seed

oil on

> top? How about cooked kamut with stevia and flax?

> Cream of Buckwheat with stevia.... At least it helps the sweet

tooth and

> is a good carb source (wheat and gluten free...

> Some sources say you can even have oatmeal. I know it's not

chocolate,

> but at least it's sweet.....

>

> Mic

>

> > I am having so much trouble staying on this eating program! I

don't

> >know what to eat! I am hungry all the time and I crave lots of

> >sweets. I start out the day fine, with an egg usually, and then

by 9

> >am I'm ravenous. It's like I don't feel full unless I have a

> >carbohydrate.

December 12, 2002

Lol, Lynne, you know I've cheated. Not the smartest thing, but I'm

just upping the cleansing stuff. Trying to increase my mental

fortitude again..I'm not really a holiday person.

> Now tell the truth, how many of you have cheated with all of these

holiday " festivities " ? I'm finding it impossible to go to all of >

> >

December 13, 2002

<< I Have to face my first holiday party tomorrow evening, and I am scared

silly. I have not cheated in over a month, but I have NEVER been able to go to

a party and not eat forbidden food >>

I don't know if anyone else feels this way, but I plan on staying on this diet,

or one similar for the rest of my life. I've gotten used to it and it's healthy

and I feel so much better on it. So I allow myself " forbidden food " once in a

while without feeling guilty. I don't feel like I'm cheating at all, I just

feel like I'm allowing myself that rare treat. You can't live like a hermit or

you will be certain to " fall off the wagon " . )

in CA

December 13, 2002

I wouldn't want to be on the candida diet for the rest of my life because it

omits fruit

Re: Re: Help!!!!

> << I Have to face my first holiday party tomorrow evening, and I am scared

silly. I have not cheated in over a month, but I have NEVER been able to go

to a party and not eat forbidden food >>

>

> I don't know if anyone else feels this way, but I plan on staying on this

diet, or one similar for the rest of my life. I've gotten used to it and

it's healthy and I feel so much better on it. So I allow myself " forbidden

food " once in a while without feeling guilty. I don't feel like I'm

cheating at all, I just feel like I'm allowing myself that rare treat. You

can't live like a hermit or you will be certain to " fall off the wagon " .

)

>

> in CA

>

December 14, 2002

If it helps, you can always play make believe and pretend you're a

movie star. They go to tons of parties and still stay thin and

healthy. Eat a salad before hand, stick with some cold cut roast

beef or salad. If there is a bar, ask for water in a wine glass

with lemon in it, or in a short glass with a slice of lime.

Just do whatever it takes to make yourself feel comfortable.

Feeling comfortable reduces the desire to eat and drink for me.

Trust yourself, you'll do fine. And if you slip, you're human and

you'll do fine the next day.

> << I Have to face my first holiday party tomorrow evening, and I

am scared silly. I have not cheated in over a month, but I have

NEVER been able to go to a party and not eat forbidden food >>

>

> I don't know if anyone else feels this way, but I plan on staying

on this diet, or one similar for the rest of my life. I've gotten

used to it and it's healthy and I feel so much better on it. So I

allow myself " forbidden food " once in a while without feeling

guilty. I don't feel like I'm cheating at all, I just feel like I'm

allowing myself that rare treat. You can't live like a hermit or

you will be certain to " fall off the wagon " . )

>

> in CA

>

July 3, 2003

Hi catherine,

I'm a returner too though my knee never got better.

what you said rang a bell,

I'm not particularly athetic,

I'm not overweight (never have been).

It may be in my genetics as my brother had the same problem (but he

is in the army so the athetic thing might apply in his case.)

also you meantion bruises around your knee that you don't remember

knock yourslef to get. I get them too though no one else believes

that they just appear, as I'm quite a clumpsy person so most people

think I knock myself so much I don't notice. but I always have

brusise on my worse knee in the samish area, that is above the knee

cap usually the right hand side but could be on the left sometimes.

I also get pains in the bone at the front of my lower legs. my lower

right leg (my bad lef) gets pins and needles very easily and quicky.

if pins and needles is a english phrase, that is my leg goes numb,

like if you lye on your arm for too long. it does this very easily

like just by being bent. I'm a bit worried about that because it must

mean something in my knee is bloking my blood flow to my lower leg

when I bend it.

I hope that you find something to help you manage or get rid of the

pain, I know I hope I do.

bye for now hannah

> Hi everyone,

>

> I used to be a member of this group for a couple years, but

then

> I stopped posting once I thought my knee problems were over. I

have had

> knee problems since High school, I was very athletic, but continued

to

> have pain all throughout College...I had my first scope done, and

that

> is when I found out that I had C.P. I was told that I would be 50

years

> old or so, before I would need another surgery...WRONG!! It was one

year

> or so later before I started having more knee problems, I then met a

> specialist that found my problem. My knee caps were not where they

> should have been they were pointing to the outside of my knee and

not

> centered. He performed a lateral release, as well as smoothing out

my

> knee the back of my knee cap...within a couple of weeks after the

> surgery I was noticing big changes in my knee pain etc. It has

been yet

> another year, and I am sorry to report that once again I am in pain

> !!!!

> Here is what I learned about C.P.:

> 1) You do NOT have to be athletic to have C.P.

> 2) You do NOT have to be over weight

> 3) You do NOT have to be walking improperly to have C.P.

> 4) it might have something to do with genetics

> 5) It might have something to do with your environment (meaning if

you

> live in places that have a lot of foggy/damp/wet weather)

> 6) do not have to be a certain age to have it either...

> I guess the reason I am writing and have joined the group

again,

> is to see what I should do next...I have knee pain again, tingly

> feeling, bruises on the upper thigh that I do not remember bumping

into

> anything, and it hurts to touch my knee area. Also, have any of you

> with Chondromalacia Patella been put on disability...not able to

work

> anymore because of the knee condition??? Please e-mail me with any

> ideas, and suggestions...thank you !

>

July 3, 2003

HI, I am so sorry you are having such a problem with your knee. I

really do understand your feeling. And yes, I am one of those who

have been on disability for my knee. I finally gave in to my doc

last dec and got a disabled parking placcard. I am not allowed to

stand or walk for more than 30min at a time, sitting restrictions, no

crawling crouching, squating, kneeling ect. And here is the kicker.

I am 28. I will be 29 at the end of August.

So there you go, if there is a question I can help you with let me

know. I can't tell you where to go next, but if you have had a LR

and you still have problems, look and find out what caused your

malaligned kneecap, and if there is any other structual problems.

Avoid surgery as long as you can and use it as a last resort. I

learned this the hard way. Both surgeries on my knee wound up

causing more problems because my OS misdiagnosed me. He never even

thought of CP. It was the bone scans that showed it clearly, and at

that point 3yrs later, it was too late. The damage was done and

severe.

I wish you the best of luck, and two sources of good knee info is

http://www.knee1.com

http://www.kneeguru.com

Tigger

> Hi everyone,

>

> I used to be a member of this group for a couple years, but

then

> I stopped posting once I thought my knee problems were over. I

have had

> knee problems since High school, I was very athletic, but continued

to

> have pain all throughout College...I had my first scope done, and

that

> is when I found out that I had C.P. I was told that I would be 50

years

> old or so, before I would need another surgery...WRONG!! It was one

year

> or so later before I started having more knee problems, I then met a

> specialist that found my problem. My knee caps were not where they

> should have been they were pointing to the outside of my knee and

not

> centered. He performed a lateral release, as well as smoothing out

my

> knee the back of my knee cap...within a couple of weeks after the

> surgery I was noticing big changes in my knee pain etc. It has

been yet

> another year, and I am sorry to report that once again I am in pain

> !!!!

> Here is what I learned about C.P.:

> 1) You do NOT have to be athletic to have C.P.

> 2) You do NOT have to be over weight

> 3) You do NOT have to be walking improperly to have C.P.

> 4) it might have something to do with genetics

> 5) It might have something to do with your environment (meaning if

you

> live in places that have a lot of foggy/damp/wet weather)

> 6) do not have to be a certain age to have it either...

> I guess the reason I am writing and have joined the group

again,

> is to see what I should do next...I have knee pain again, tingly

> feeling, bruises on the upper thigh that I do not remember bumping

into

> anything, and it hurts to touch my knee area. Also, have any of you

> with Chondromalacia Patella been put on disability...not able to

work

> anymore because of the knee condition??? Please e-mail me with any

> ideas, and suggestions...thank you !

>

July 3, 2003

Hannah,

I wouldn't say that is a pins and needles feeling, close to it

but not exactly...the pain also moved up to my lower back today and it

did feel like my whole left leg went sorta numb. I am very concerned,

but at the same time I am frustrated that I have to go through it

again....

As for the bruises, they happen on the outside of my left leg

but between my knee and my hip (closer to my knee though). People think

that I bump into things without knowing it, but you think that I would

remember bumping it...that too worries me!

For a pain killer, there isn't anything really that helps my

knee pain go away...I just grin and bear it...

Thank you for your e-mail...hope to hear from you again !

catherine

Hannah Louise wrote:

> Hi catherine,

>

> I'm a returner too though my knee never got better.

>

> what you said rang a bell,

>

> I'm not particularly athetic,

> I'm not overweight (never have been).

> It may be in my genetics as my brother had the same problem (but he

> is in the army so the athetic thing might apply in his case.)

>

> also you meantion bruises around your knee that you don't remember

> knock yourslef to get. I get them too though no one else believes

> that they just appear, as I'm quite a clumpsy person so most people

> think I knock myself so much I don't notice. but I always have

> brusise on my worse knee in the samish area, that is above the knee

> cap usually the right hand side but could be on the left sometimes.

>

> I also get pains in the bone at the front of my lower legs. my lower

> right leg (my bad lef) gets pins and needles very easily and quicky.

> if pins and needles is a english phrase, that is my leg goes numb,

> like if you lye on your arm for too long. it does this very easily

> like just by being bent. I'm a bit worried about that because it must

> mean something in my knee is bloking my blood flow to my lower leg

> when I bend it.

>

> I hope that you find something to help you manage or get rid of the

> pain, I know I hope I do.

> bye for now hannah

>

> > Hi everyone,

> >

> > I used to be a member of this group for a couple years, but

> then

> > I stopped posting once I thought my knee problems were over. I

> have had

> > knee problems since High school, I was very athletic, but continued

> to

> > have pain all throughout College...I had my first scope done, and

> that

> > is when I found out that I had C.P. I was told that I would be 50

> years

> > old or so, before I would need another surgery...WRONG!! It was one

> year

> > or so later before I started having more knee problems, I then met a

>

> > specialist that found my problem. My knee caps were not where they

> > should have been they were pointing to the outside of my knee and

> not

> > centered. He performed a lateral release, as well as smoothing out

> my

> > knee the back of my knee cap...within a couple of weeks after the

> > surgery I was noticing big changes in my knee pain etc. It has

> been yet

> > another year, and I am sorry to report that once again I am in pain

> > !!!!

> > Here is what I learned about C.P.:

> > 1) You do NOT have to be athletic to have C.P.

> > 2) You do NOT have to be over weight

> > 3) You do NOT have to be walking improperly to have C.P.

> > 4) it might have something to do with genetics

> > 5) It might have something to do with your environment (meaning if

> you

> > live in places that have a lot of foggy/damp/wet weather)

> > 6) do not have to be a certain age to have it either...

> > I guess the reason I am writing and have joined the group

> again,

> > is to see what I should do next...I have knee pain again, tingly

> > feeling, bruises on the upper thigh that I do not remember bumping

> into

> > anything, and it hurts to touch my knee area. Also, have any of you

>

> > with Chondromalacia Patella been put on disability...not able to

> work

> > anymore because of the knee condition??? Please e-mail me with any

> > ideas, and suggestions...thank you !

> >

July 3, 2003

Tigger,

Thank you for writing me back, it is greatly appreciated ! I

am 25 years old, and my problems basically started when I was in High

school. I was diagnosed with cp right off the bat, then my second

surgeon/specialist told me that the first surgery didn't work because my

knee caps were aligned wrong...which was true (it was creepy as to where

my knee caps should have been). So he did a Lateral release on my left

knee just under a year ago, this is upsetting...

As for jumping right into surgery, I try not to do that...I try

to learn as much as I can about alternatives! Although, my doctor's say

I have tried everything under the sun and so now I am worried as to

where I am to go next...

Today, my pain went up to my lower back...then my leg sorta

became warmly numb (make sense?), and the pain got worse ! I didn't

take anything for it, because I was really hoping it would go away...I

do not know what to do....I am seriously thinking about calling my

doctor tonight to make an appointment!

tigluvzpoohbear wrote:

> HI, I am so sorry you are having such a problem with your knee. I

> really do understand your feeling. And yes, I am one of those who

> have been on disability for my knee. I finally gave in to my doc

> last dec and got a disabled parking placcard. I am not allowed to

> stand or walk for more than 30min at a time, sitting restrictions, no

> crawling crouching, squating, kneeling ect. And here is the kicker.

> I am 28. I will be 29 at the end of August.

>

> So there you go, if there is a question I can help you with let me

> know. I can't tell you where to go next, but if you have had a LR

> and you still have problems, look and find out what caused your

> malaligned kneecap, and if there is any other structual problems.

> Avoid surgery as long as you can and use it as a last resort. I

> learned this the hard way. Both surgeries on my knee wound up

> causing more problems because my OS misdiagnosed me. He never even

> thought of CP. It was the bone scans that showed it clearly, and at

> that point 3yrs later, it was too late. The damage was done and

> severe.

>

> I wish you the best of luck, and two sources of good knee info is

> http://www.knee1.com

> http://www.kneeguru.com

>

> Tigger

>

> > Hi everyone,

> >

> > I used to be a member of this group for a couple years, but

> then

> > I stopped posting once I thought my knee problems were over. I

> have had

> > knee problems since High school, I was very athletic, but continued

> to

> > have pain all throughout College...I had my first scope done, and

> that

> > is when I found out that I had C.P. I was told that I would be 50

> years

> > old or so, before I would need another surgery...WRONG!! It was one

> year

> > or so later before I started having more knee problems, I then met a

>

> > specialist that found my problem. My knee caps were not where they

> > should have been they were pointing to the outside of my knee and

> not

> > centered. He performed a lateral release, as well as smoothing out

> my

> > knee the back of my knee cap...within a couple of weeks after the

> > surgery I was noticing big changes in my knee pain etc. It has

> been yet

> > another year, and I am sorry to report that once again I am in pain

> > !!!!

> > Here is what I learned about C.P.:

> > 1) You do NOT have to be athletic to have C.P.

> > 2) You do NOT have to be over weight

> > 3) You do NOT have to be walking improperly to have C.P.

> > 4) it might have something to do with genetics

> > 5) It might have something to do with your environment (meaning if

> you

> > live in places that have a lot of foggy/damp/wet weather)

> > 6) do not have to be a certain age to have it either...

> > I guess the reason I am writing and have joined the group

> again,

> > is to see what I should do next...I have knee pain again, tingly

> > feeling, bruises on the upper thigh that I do not remember bumping

> into

> > anything, and it hurts to touch my knee area. Also, have any of you

>

> > with Chondromalacia Patella been put on disability...not able to

> work

> > anymore because of the knee condition??? Please e-mail me with any

> > ideas, and suggestions...thank you !

> >

July 3, 2003

, if you are having pain that is going into your lower back

and down your leg I would look at your lower back and hips. Think

sciatica (sp?). I know that when my knees are really bad or I am

doing something I shouldn't or using the wrong posture, the muscles

in my hip tighten up and cause refferred pain down my leg and into my

low back.

I would definetly call your doc for an apt and let them know about

the pain in your back and leg. And don't be afraid of taking

something for the pain, that is what they are for ;-) Trust me on

that one, it took me a long time to accept that I needed the pain

mediation just to do day to day things like dishes or cooking

dinner!!! Pretty sad. Also remember that if you take a pain

medication when you are already in extreme pain it won't work as

well. They work better if you take them at the onset, so that it can

control it instead of fight it.

Good luck to you, and please let me know how you are doing, I will

keep you in my thoughts. It really sucks being in pain when you are

young. My whole thing started when I was 23. So I do understand

quite well.

Tigger

> > > Hi everyone,

> > >

> > > I used to be a member of this group for a couple years,

but

> > then

> > > I stopped posting once I thought my knee problems were over. I

> > have had

> > > knee problems since High school, I was very athletic, but

continued

> > to

> > > have pain all throughout College...I had my first scope done,

and

> > that

> > > is when I found out that I had C.P. I was told that I would be

50

> > years

> > > old or so, before I would need another surgery...WRONG!! It was

one

> > year

> > > or so later before I started having more knee problems, I then

met a

> >

> > > specialist that found my problem. My knee caps were not where

they

> > > should have been they were pointing to the outside of my knee

and

> > not

> > > centered. He performed a lateral release, as well as smoothing

out

> > my

> > > knee the back of my knee cap...within a couple of weeks after

the

> > > surgery I was noticing big changes in my knee pain etc. It has

> > been yet

> > > another year, and I am sorry to report that once again I am in

pain

> > > !!!!

> > > Here is what I learned about C.P.:

> > > 1) You do NOT have to be athletic to have C.P.

> > > 2) You do NOT have to be over weight

> > > 3) You do NOT have to be walking improperly to have C.P.

> > > 4) it might have something to do with genetics

> > > 5) It might have something to do with your environment (meaning

if

> > you

> > > live in places that have a lot of foggy/damp/wet weather)

> > > 6) do not have to be a certain age to have it either...

> > > I guess the reason I am writing and have joined the

group

> > again,

> > > is to see what I should do next...I have knee pain again, tingly

> > > feeling, bruises on the upper thigh that I do not remember

bumping

> > into

> > > anything, and it hurts to touch my knee area. Also, have any

of you

> >

> > > with Chondromalacia Patella been put on disability...not able to

> > work

> > > anymore because of the knee condition??? Please e-mail me with

any

> > > ideas, and suggestions...thank you !

> > >

July 4, 2003

tigger,

I wouldn't say that the pain in my leg originated in my back,

I'd say it originated in my knee and then spread down to my feet....then

up to my lower back. what is sciatica??? I have never heard of that

before....my knee problem was thought to have started because my knee

caps were in the wrong place, and therefore making me walk

differently. I dunno, lol !

My mom thinks it had to do with the shoes I wear, which is

mostly my sneakers with orthodics and sandals. I think it has to do

with where I work, see I work at a restaurant in the kitchen...before

this job when I had my first surgery, I worked at a day care...both

probably wrong professions for those of us with CP.

I plan on calling my doctor this morning, he is hard to get in

to go see...I will let you know how things go ! Have a good day !

tigluvzpoohbear wrote:

>

> , if you are having pain that is going into your lower back

> and down your leg I would look at your lower back and hips. Think

> sciatica (sp?). I know that when my knees are really bad or I am

> doing something I shouldn't or using the wrong posture, the muscles

> in my hip tighten up and cause refferred pain down my leg and into my

> low back.

>

> I would definetly call your doc for an apt and let them know about

> the pain in your back and leg. And don't be afraid of taking

> something for the pain, that is what they are for ;-) Trust me on

> that one, it took me a long time to accept that I needed the pain

> mediation just to do day to day things like dishes or cooking

> dinner!!! Pretty sad. Also remember that if you take a pain

> medication when you are already in extreme pain it won't work as

> well. They work better if you take them at the onset, so that it can

> control it instead of fight it.

>

> Good luck to you, and please let me know how you are doing, I will

> keep you in my thoughts. It really sucks being in pain when you are

> young. My whole thing started when I was 23. So I do understand

> quite well.

>

> Tigger

>

> > > > Hi everyone,

> > > >

> > > > I used to be a member of this group for a couple years,

> but

> > > then

> > > > I stopped posting once I thought my knee problems were over. I

> > > have had

> > > > knee problems since High school, I was very athletic, but

> continued

> > > to

> > > > have pain all throughout College...I had my first scope done,

> and

> > > that

> > > > is when I found out that I had C.P. I was told that I would be

> 50

> > > years

> > > > old or so, before I would need another surgery...WRONG!! It was

> one

> > > year

> > > > or so later before I started having more knee problems, I then

> met a

> > >

> > > > specialist that found my problem. My knee caps were not where

> they

> > > > should have been they were pointing to the outside of my knee

> and

> > > not

> > > > centered. He performed a lateral release, as well as smoothing

> out

> > > my

> > > > knee the back of my knee cap...within a couple of weeks after

> the

> > > > surgery I was noticing big changes in my knee pain etc. It has

> > > been yet

> > > > another year, and I am sorry to report that once again I am in

> pain

> > > > !!!!

> > > > Here is what I learned about C.P.:

> > > > 1) You do NOT have to be athletic to have C.P.

> > > > 2) You do NOT have to be over weight

> > > > 3) You do NOT have to be walking improperly to have C.P.

> > > > 4) it might have something to do with genetics

> > > > 5) It might have something to do with your environment (meaning

> if

> > > you

> > > > live in places that have a lot of foggy/damp/wet weather)

> > > > 6) do not have to be a certain age to have it either...

> > > > I guess the reason I am writing and have joined the

> group

> > > again,

> > > > is to see what I should do next...I have knee pain again, tingly

>

> > > > feeling, bruises on the upper thigh that I do not remember

> bumping

> > > into

> > > > anything, and it hurts to touch my knee area. Also, have any

> of you

> > >

> > > > with Chondromalacia Patella been put on disability...not able to

>

> > > work

> > > > anymore because of the knee condition??? Please e-mail me with

> any

> > > > ideas, and suggestions...thank you !

> > > >

July 4, 2003

Sciatica is pain from pressure on the sciatic nerve, which comes out between the

4th and 5th lumbar vertebrae. The pain can be limited to the buttocks, or it

can extend all the way down to your foot. If it's caused by a bulging disc,

and there's a lot of pressure on the nerve, it can hurt like the devil. You

would have trouble getting into a car. I speak from experience.

Here's a site that explains sciatica and has great illustrations of the anatomy:

http://www.spineuniverse.com/displayarticle.php/article1448.html

Ann

Re: Re: HELP!!!!