help!!!!

August 2, 2000

BWH, CL, WW 3x day on an empty stomach for at least 15 days. Don't know

about pumpkin seeds. Take a bunch of them once a week, maybe. You don't

want to have the ensuing loose bowels any more than that.

>From: sdk5@...

>Reply-bowel cleanseegroups

>bowel cleanseegroups

>Subject: Help!!!!

>Date: Wed, 02 Aug 2000 14:41:13 -0000

>

>I need to know the dosage and times to take Green Black Walnut,

>Woormwood, and Cloves..(Can you take the cloves you buy in the

>grocery store)also how many times a week can you take pumpkin seeds?

>I am new to this sight and cannot find the dosages in the archives.

>Thanks for the help!

>

>Subscription email: bowel cleanse-subscribeegroups

>

August 2, 2000

Can you tell me of any of the side effects of doing this and are you able to

work.

Help!!!!

> >Date: Wed, 02 Aug 2000 14:41:13 -0000

> >

> >I need to know the dosage and times to take Green Black Walnut,

> >Woormwood, and Cloves..(Can you take the cloves you buy in the

> >grocery store)also how many times a week can you take pumpkin seeds?

> >I am new to this sight and cannot find the dosages in the archives.

> >Thanks for the help!

> >

> >Subscription email: bowel cleanse-subscribeegroups

> >

August 2, 2000

loose bowels on pumpkin seeds?? I am eating 1/4 a day to no ill effect..

August 2, 2000

In a message dated 8/2/00 10:03:11 PM Eastern Daylight Time,

ASaucyMinx@... writes:

<>

Just for clarification, 1/4 what? I just bought some today and found to my

surprise that I like them, but haven't decided how many to eat. I believe

the general concensus here has been 3 T once a week, but others have said

this was not enough. Any input will be appreciated. Judy

August 3, 2000

sorry eating 1/4 a day, lol

August 3, 2000

1/4 cup a day, sorry

August 3, 2000

Everyone's die off is different, but you should be fine. You'll feel

something, maybe headachy, flu-like, stomach acting up a little bit,

fatigue. Start with a little bit of each herb, then increase the amount you

take to control the die off. Those who get die off that really knocks them

off their feet are probably taking too much for their system to handle all

at once.

>From: " sdk5 " <sdk5@...>

>Reply-bowel cleanseegroups

><bowel cleanseegroups>

>Subject: Re: Help!!!!

>Date: Wed, 2 Aug 2000 12:59:09 -0400

>

>Can you tell me of any of the side effects of doing this and are you able

>to

>work.

> Help!!!!

> > >Date: Wed, 02 Aug 2000 14:41:13 -0000

> > >

> > >I need to know the dosage and times to take Green Black Walnut,

> > >Woormwood, and Cloves..(Can you take the cloves you buy in the

> > >grocery store)also how many times a week can you take pumpkin seeds?

> > >I am new to this sight and cannot find the dosages in the archives.

> > >Thanks for the help!

> > >

> > >Subscription email: bowel cleanse-subscribeegroups

> > >

November 13, 2000

humm that sounds strange...are you moving your

leg at all? I know that massaging help circulation,

maybe you could massage your leg in upward strokes

(towards the heart) to increase the circulation in your

leg, also apply heat to it , normaly when a part of

the body is cold it will go purple and white(i live

in Canada trust me I know brrr). If none of that

works go get a second and third opinion from diffrent

doc, it just seems strange that after the op it went

like that, try to find out as soon as possible.

best wishes Kat

November 14, 2000

Hi Kat, Thanks for your reply. I'm in Dublin,

Ireland & it is quite cold for this time of year. I'm

seeing my physiotherepist again on Friday, so I'll ask

about the bad circulation again & try to find out what

I can do to help it. I'll let you know what she

says - hopefully it can be sorted out before the

weather gets colder!!! Katriona

January 2, 2001

You need to search under Caiti. I found the posts right away. Go back to

Upsndowns messages and try it or jump to the following:

3705 I want YOUR help! SHerscher@... Fri 12/8/2000

3677 Re: Just totally venting....so forgive me.... B. S. Pyle Fri

12/8/2000

3576 Re: Just totally venting....so forgive me.... b4alltoday@... Sat

12/2/2000

3564 Re: Just totally venting....so forgive me.... & Elaine Bonorato

Sat 12/2/2000

3562 Re: Just totally venting....so forgive me.... & Elaine Bonorato

Sat 12/2/2000

3558 Just totally venting. Response --long Deborah Fleischmann Sat

12/2/2000

3553 Re: Just totally venting....so forgive me.... JTesmer799@... Fri

12/1/2000

3552 Re: Just totally venting....so forgive me.... c1ndysue1@... Fri

12/1/2000

3551 Re: Just totally venting....so forgive me.... Doll, Kim L Fri

12/1/2000

3550 Just totally venting....so forgive me....

May 14, 2001

no they kept the old bottle so i have no proof, but as far as mixing, the

pharmacy has no mixing involved, they poured it out of one bottle and into

her prescription bottle. AAAARRRGGGHHH!!!!! Just one more thing in my

already full plate!!!!!!

May 14, 2001

AJ,

Do you still have the old bottle??? I would probably call the doc in the

morning and if she is still having the PP trouble, I would have her checked

out.

If you have the old bottle, I would probably take it somewhere else and see

if they could check it out. Another thought, they could have either gotten

too much or too little of one ingredient in it also???

Talk to you soon.

Angie

help!!!!

>

>I need another opinion of what to do, hope you guys can help. Holly has

been

>on bentyl for undiagnosed stomach pain for 5 weeks, well last monday, we

>refilled it and to me it didnt look quite the same color, but both holly

and

>mark (my husband) couldnt say for sure if it tasted different well she was

>extremely moody,this week, had to " P " urgently atleast once a day, that i

>noticed anyway, may have been more often as she is in school all day and by

>friday her belly was hurting alot so today, i took it back to the

>pharmacy, and they said that it looked and smelled the same, but gave me a

>new bottle anyway, just so i would " feel " better. So i brought it home and

>holly tasted it and said it was definetly different!! very scary!!! and

>now i am not sure what to do, do i have the doctor check her or assume that

>now that we are on the right med, that things will go back to normal, and

>then there is always the problem of the pharmacy and what should be said at

>this point

> we still use the same pharmacy as when holly was diagnosed 6 years ago,

they

>know us very well, its basically a first name basic deal. I am confuse,

>please help!!!

>

May 15, 2001

Hi AJ,

I can imagine how frightened you must have felt. What happened? Did you

make a call to the doctor and pharmacy and explain what happened? Did

the doctor want Holly to be seen? Was the pharmacist able to tell you

what was in the bottle, since it was almost definitely different from

the new med they gave you? Oh, man. I guess it's a lot harder to know

for certain when the med is in a liquid form. Please let us know what

you find out. I hope Holly's okay.

Take care,

Georgina

ajaomom@... wrote:

>

> I need another opinion of what to do, hope you guys can help. Holly has been

> on bentyl for undiagnosed stomach pain for 5 weeks, well last monday, we

> refilled it and to me it didnt look quite the same color, but both holly and

> mark (my husband) couldnt say for sure if it tasted different well she was

> extremely moody,this week, had to " P " urgently atleast once a day, that i

> noticed anyway, may have been more often as she is in school all day and by

> friday her belly was hurting alot so today, i took it back to the

> pharmacy, and they said that it looked and smelled the same, but gave me a

> new bottle anyway, just so i would " feel " better. So i brought it home and

> holly tasted it and said it was definetly different!! very scary!!! and

> now i am not sure what to do, do i have the doctor check her or assume that

> now that we are on the right med, that things will go back to normal, and

> then there is always the problem of the pharmacy and what should be said at

> this point

> we still use the same pharmacy as when holly was diagnosed 6 years ago, they

> know us very well, its basically a first name basic deal. I am confuse,

> please help!!!

June 1, 2001

Hi,

Where abouts in Florida does he want to move to? I live in Florida and my

daughter has ot/pt & speach and has speach at school. She qualifies for

ssi/medicaide because of my income.

Maura

(mom to lese 11yrs5mo & Adelena 8yrs10mo w/ds)

----Original Message Follows----

From: myangel0528@...

Subject: Help!!!!

Date: Fri, 01 Jun 2001 02:44:10 -0000

im really really stressing out here... My dh is thinking about moving

us from MI to FL... and I have no idea what is offerd for jaykob...

Here he gets PT once a month and OT twice a month... From a few other

parents I have talked too.. their kiddos with ds, arent reciving as

much as jaykob is.. Does anyone know any one I can call to see what

the different things that are offered per state???? thank you stacee

mommy to jaykob 5-10-00

my crawling and starting to walking along the couch lil man

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

June 1, 2001

Hi,

10 years ago I moved from NY to Fla and made 87 phone calls just about

placements for amanda, who at that time was 1 year old. I had excellent

early intervention services at Easter Seals near Tampa and UCP was also

excellent and would have taken her. She also got pt at home, but was in

school full time getting, ot and pt there.

When I left to come back to NY, I was in the process of working on

centralizing the services state wide with a parent group I was involved with.

I guess you have to call the state to find out about early intervention

programs, in home care and eventually preschools. The bigger cities may

offer more srevices.

Well, good luck. I'm sure you will find services in fla, it is a pretty

popular state!!!

~ Mom to 10 1/2 DS and 6

September 12, 2001

Hi Emma

One of the major problems with scoliosis is to be imbalanced. It is " normal " to

have a " caphalopelvic

>imbalance

> with the head and shoulders to the right of the pelvis. "

I had the same, with a thoracolumbar curve of 58 degrees at the time of my

surgery. This is one of the goals with surgery: to balance one, in this case,

also in the saggital plane.

It sounds as if your problem might be nerve related (because of your scoliosis).

I think you should go to the ER and let them evaluate you. When your

neurological fall out is so severe, that you're loosing all feeling in your legs

and falling over they might have to do surgery a.s.a.p. to prevent permanent

damage.

Take care,

Sanette

HELP!!!!!

> I am currently 25, and have had scoliosis since I was 12. At the age

> of 20 I was told that my curvature would nor worsen, and that I would

> only need to see the specialist every 5 years.

>

> About 2 years ago I started to lose the feeling in my right leg when

> standing or walking, and now I can only stand or walk for about 3 mins

> without losing all feeling and falling over. My pain has also

> increased considerably.

>

> I have been scheduled for surgery on 24.10.01, but due to the Health

> Service (or lack of!!!) in the UK, I can not see the surgeon for

> another couple of weeks, and therefore do not know exactly what is

> wrong with me.

>

> I have managed to get hold of a report re some x-rays that I have had

> done, but do not not understand exactly what it means. Is there

> anyone out there that can interpret it for me? Or alternatively point

> me to a website that may be of use?

>

> The report reads:

>

> A striking lumbar scoliosis is demonstrated convex to the right,

> extending from T11 to L4 with an apex at L1. The Cobb angle measures

> 50 degrees, there is also an obvious degree of caphalopelvic imbalance

> with the head and shoulders to the right of the pelvis. In this

> weight bearing film, the iliac crests appear roughly the same height

> from the ground, but the shoulders are accordingly tilted, with the

> right shoulder lower than the left.

>

> Insofar as it can be seen from these images, soliosis would appear

> idiopathic. Theres is a slight degree of lumbar lordosis

> approximately 40 degrees, with the shallow thoracolumbar kyphosis.

>

> Any ideas?

>

--

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January 28, 2002

,

The pain you describe may well be esophagheal spasms. Most of us

have found SOMETHING that works. I use arginine (3 500 mg./day,

available at health food store), some use levsin, some use nitrates,

some use calcium channel blockers, some even say Nexium helps. Your

gastroenterologist should be able to help you with advice for these

spasms. If not, SEE ANOTHER ONE!! You may want to take something to

prevent spasms or you may want to take something to treat a spasm once

it starts. Read the past 1000 posts in your spare time....much

discussion of this topic, as many of us suffer from them to varying

degrees. For most of us who have had surgery, they are less severe over

time.

I, and many others, am able to chase mine away by drinking room temp.

water...gulping down an 8 oz. glass. They are quite something, aren't

they? We feel your pain!

January 29, 2002

Hi Alley,

Yes, the spasms are both an uncomfortable

and unfortunate feature of the dilations

and achalasia.

I had two dilations and then did the surgery

thing a few months ago. I still get the chest

pain periodically, but not as frequently. The

pain can be dehabilitating at times.

What works for me best is that I have to shut down

and breath deep and then power down a quart of water

and then a couple alka selzers and then some more water.

That usually always provides semi-immediate relief for

me. Sometimes bitters and soda w/ lime is OK in a

pinch for me also.

Best Wishes

M.

January 29, 2002

, I have a question for you. I recently "replied" to one of your posts with a story of history with my achalasia. You in turn replied with a very nice email. I have asked several questions by hitting "reply" and have never had anyone to answer. I have not seen any of my writings posted on the board. I am wondering if I am doing this wrong. Maybe because I hit "reply" it isn't going to the board as I thought. It goes only to the person who wrote the message. I don't think any one else but you got that message I postage about my being new to the group. Please let me know. I also posted (or thought I did, but never saw it posted) that I don't know how to get to the chat at night. Am I supposed to go directly to the achalasia site to post? I have my password but I forget how to get there. If you get this message, please let me know. Thankfully, Joann

January 29, 2002

Joann, I recently sent a message through. It never came

out on the mailing but it was posted to the message screen.

I got two replies, one through the mailing and one I read only

on the message screen. Guess everything goofs now and again.

I received your message this morning fine.

Magg

January 30, 2002

, when I read the mail or posts, I don't see a "send" button. Only "reply". So does that mean I must read the posts only on the site to be able to send to the board to post? Joann

January 30, 2002

Joanna,

I am not but I can help you. You should be able to post to the group by hitting reply. I did not see you "new to the group" post. I did see your important questions post. Just make sure when you send to the group you have achalasia in the box.

As for chat go to this link Achalasia/chat

for the page go to Achalasia

J.C.

Re: Help!!!!

, I have a question for you. I recently "replied" to one of your posts with a story of history with my achalasia. You in turn replied with a very nice email. I have asked several questions by hitting "reply" and have never had anyone to answer. I have not seen any of my writings posted on the board. I am wondering if I am doing this wrong. Maybe because I hit "reply" it isn't going to the board as I thought. It goes only to the person who wrote the message. I don't think any one else but you got that message I postage about my being new to the group. Please let me know. I also posted (or thought I did, but never saw it posted) that I don't know how to get to the chat at night. Am I supposed to go directly to the achalasia site to post? I have my password but I forget how to get there. If you get this message, please let me know. Thankfully, Joann

January 30, 2002

Joann,

Make sure to hit the send button not the

reply link to post to the board. M.

February 28, 2002

Hi ,

I think it is ok to do an enema and not release the water. They are suppose

to be very hydrating and the tissue will absorb a lot. Do you ever notice

that when your done doing 2-3 bags of fluid that you have to urinate? There

is no direct connection to the bladder, but this is very common. Same with

after a colonic......people usually have to go to the bathroom after. If it

were me I would not worry about it. I've been doing enemas for over 8 years

on a fairly regular basis and I experience this often. Especially with

coffee.....it sometimes seems to take forever to come out and if it weren't

a darker color I wouldn't know it was the coffee coming out when it finally

exited my body. I think it sounds like you are doing great and I think I

would just continue whatever ....

August 9, 2002

Hi Faye,

Yes, you are wigged out over nothing. Everyone reaches plateaus where they

may not lose for two or three weeks. The body is just fighting the starvation

mode you are putting it through. I plateaued at 42# for about 2 weeks, and at

85# for two weeks. You'll start losing again. Good luck.

Tom H. Cape Cod

Dr R. 2/6/02 373/268/???

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help!!!!

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