Re: Sandi

[Guest guest]

What's next? Sandi in stilettos? Sandi in a little black dress?

>

>

> Yep, Maggie is Right I see it too... Sandi in Lace!! She was

writing to Noton ... yep here it is...

>

> Carolyn

>

>

>

> ...and if you run into any of the Three Stooge's offspring taking

care of you during your hospital stay, maybe Heidi could just bop'm in

the head!!! LOL>>

>

> Sandi in lace w:st= " on " >No CAlace>>>

>

>

>

> Wooleeacre Productions

> Custom Screenprinting

> on a small scale!

>

>

>

>

>

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

[Guest guest]

LOL I will be the foot model LOL!!!

From:

achalasia [mailto:achalasia ] On Behalf Of m4myjn5@...

Sent: Thursday, November 10, 2005

11:58 AM

achalasia

Subject: Re: Re: Sandi

Hmmmmmmm.... on to evening wear now

huh. Are we going to have a fashion show? I can be a judge.....lol

in Suffolk

[Guest guest]

Left most definitely!!! LMAO

From:

achalasia [mailto:achalasia ] On Behalf Of m4myjn5@...

Sent: Thursday, November 10, 2005

3:25 PM

achalasia

Subject: Re: Re: Sandi

Left or right foot? lol

in Suffolk

[Guest guest]

I’ve been away from my computer all

day today….Are you all having fun without me?????? At my expense???? LOL

You guys are nuts!!! LOL

Sandi…in No CA!!!!

Not in lace, but it’s still early in the evening…too tall already

for stilettos, but a fashion show sounds like fun!!! , are you going to

model your apron and thong?????LOL

From:

achalasia [mailto:achalasia ] On Behalf Of m4myjn5@...

Sent: Thursday, November 10, 2005

1:22 PM

achalasia

Subject: Re: Re: Sandi

oh goody I the left side. I am kind

of partial to it seeing i am left handed....lol

in Suffolk

[Guest guest]

You think. I do not think I have the body for it now......lol

in Suffolk

[Guest guest]

Well, it might be intact but some parts have been modified a little....lol

in Suffolk

[Guest guest]

No . You would be really wasted as a judge. You can be one of the models.>> Hmmmmmmm.... on to evening wear now huh. Are we going to have a fashion > show? I can be a judge.....lol > > in Suffolk>

[Guest guest]

Don't be so coy, . Don't forget. I've seen your photograph! Everything seemed to be intact!>> You think. I do not think I have the body for it now......lol > > in Suffolk>

[Guest guest]

-Sandi in lace and stilettos.

-- In achalasia , " J. " <jsmith21703@y...> wrote:

>

>

> What's next? Sandi in stilettos? Sandi in a little black dress?

>

>

> >

> >

> > Yep, Maggie is Right I see it too... Sandi in Lace!! She was

> writing to Noton ... yep here it is...

> >

> > Carolyn

> >

> >

> >

> > ...and if you run into any of the Three Stooge's offspring taking

> care of you during your hospital stay, maybe Heidi could just bop'm

in

> the head!!! LOL>>

> >

> > Sandi in lace w:st= " on " >No CAlace>>>

> >

> >

> >

> > Wooleeacre Productions

> > Custom Screenprinting

> > on a small scale!

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > FareChase - Search multiple travel sites in one click.

> >

>

[Guest guest]

Yep we would be a great bunch, stilletos, lace, no bras, frilly aprons

and what next. I think there could be other symptoms to A we have not

yet discovered.

Haha

>

> Hmmmmmmm.... on to evening wear now huh. Are we going to have a

fashion

> show? I can be a judge.....lol

>

> in Suffolk

>

[Guest guest]

Hmmmmmmm there is the aprons again....lol

in Suffolk

[Guest guest]

Sandi:

It is so good to see your very positive post about Hunter's progress. We

all so well remember the first throes of the arthritis journey, and how

hard that time was. Its so good to see that you now have, as you put it

so well, the 'upper hand'. Hooray!

Congratulations to Hunter on the contest! That is so awesome. I think it

is so wonderful an idea that you had, to start a support group at your

school for families of kids with chronic illness. What a great idea! Do

keep us posted on how it is going. It could be a model for others in our

shoes..

I'm hoping to go to Atlanta next year, with or without my family (hubbie

may not get off work, Rob isn't interested too much). Hmmm, maybe I could

disguise it as a trip to check out colleges, and say, oh, the AJAO is

close by! (Although Indiana is not that close to Georgia, tee hee)

Anyway, good to see you posting such wonderful news all the way around!

and Rob 16 Spondy

On Sat, 3 Dec 2005 18:35:43 EST deerhuntert6@... writes:

Sorry I haven't posted this earlier - this second year of Hunter's

illness

has been so different from the first year. I remember all the fear and

uncertainess we had that first year and how much the disease controlled

our family.

Happy to report that this second year we have had the upper hand. Hunter

was

the Honoree for our First Annual Arthritis Walk in Columbus, GA. Our

goal for

the foundation was $20000 and that we made. Hunter's Team raised $2500

toward

the goal. We had a great time but Hunter really got tired of talking

about

" Arthritis " . I told her after the Walk we would get back to normal and

less

talking about the disease. Then she entered a contest for the Children's

Miracle Network (she did it herself)

she drew a reindeer family and she won. Her drawing was used on the 6th

Annual Reindeer Run sweatshirt sponsored by the CMN. Hunter is doing

well so far

the cold temperatures have caused only minor aches and pains. We are

coming

up on our two year anniversary with " Arthritis " . Ken is working 60 hours

weeks so that I continue to stay at home. He is getting in alittle

hunting. As

for me - I am spending alot of time at the school and working with our

PTA to

get a new playground. I am also in the process of starting a support

group

through the school with families who have chronically ill children.

Hunter is

the only child with JRA but we have several other families who deal with

other

serious diseases. It so helps to feel that we are not alone. I hope

all is

going well with all the other families on this site. I can't wait to

meet

many of you this summer in Atlanta. Happy Holidays - Sandi Ken Hunter (7

Systemic)

[Guest guest]

- thank you for the post. The trip was amazing - God gave us

beautiful weather - sunny skies and mild days. Hunter did great - although

today she

is somewhat sore in her legs. It was so great to get home. Hope all is

well with your family. Sandi Ken and Hunter (7 Systemic)

[Guest guest]

Thanks !

=)Sandi

[Guest guest]

In a message dated 3/21/2006 3:36:33 PM Pacific Standard Time,

catholicmomof3@... writes:

Did you leaving your friend ped ruin the friendship, or have you guys stayed

friends through it all. I know it was a stressful time for you.. And I

hope that you guys were able to stay friends.

No, we have not stayed friends. Bri is still quite angry with him and I

can't say that I blame him. We're using this experience as a lesson in

forgiveness. But lives quite far away from us, so it's not like we run

into each

other or anything.

Sandi, Mom to --age 13--CVID

[Guest guest]

I really like the sound of your new GI Doc. He sounds like my kind

of a Dr........but that would be one heck long drive for me. LOL!

Jo in SW Michigan

..

>

> Hello Everyone,

> Well I go in for my endoscopy on Monday to find out how the

esophageal

> ulcer has healed after having had the balloon dilatation last

August.

> I've also changed doctors seeing as though I am only having the

> endoscopy with no dilatations. I couldn't see the need to bother

anyone

> to drive me into the city and back home just to have it done by Dr

> Ostroff...nothing personal against him, but he is a very busy man

and

> very difficult to get to speak to personally and I don't like

having to

> talk to his nurse practitioner for questions that I need answered.

> Nothing personal against her either, but if I wanted her for a

doctor, I

> would have requested her as my physician and not Dr.

> Ostroff......Soooooo, I have decided that any GI doc can do the

> endoscopy so I went to my nearest and dearest Dr. Taborga (my PCP)

with

> my dilemma and he immediatly set me up with this new GI doc...and

when I

> say immediatly, he had the referral sent over and had called back

to

> inform me of the news within 5 minutes!!! Wow!!!!

> I think I have a pretty great caring team of doctors caring for me

right

> here in my neighborhood. Dr. Gallopudi is doing the endoscopy. I

went in

> to see him a couple of weeks ago. He is very nice. He has had

several

> patients with Achalasia before but it has been a few years. I told

him

> my story and he told me to stop because I was scaring him, and

when I

> asked him if he would be my doctor he said to me " do I have a

> choice " ???? LOL...he was just kidding and he said of course, he

sees all

> of my Dr Taborga's patients.I spoke with him regarding my

medications I

> was taking for the ulcer and he decided to take me off of a couple

them,

> telling me that they were working against others that I was

taking. For

> instance, I was taking Zelnorm for constipation and gastric

emptying

> (which I don't think I have a problem with)...well apparantly the

> Zelnorm works just the opposite of the Adalat (nifidipine) which I

take

> for my blood pressure and my esophageal spasms. He's going to do a

> gastric emptying test to find out if I do indeed have a problem

with

> this which makes very good sense to me...especially since my

insurance

> doesn't cover the Zelnorm and it is very expensive. He also took

me off

> the Pepcid because I was taking both Pepcid and Protonix, and he

said

> that these two meds will work against eachother, so I have just

been

> taking the Protonix for my ulcer...I tried to get in touch with Dr

> Ostroff regarding my problems with the meds, but I was only able to

> speak to the nurse practitioner and she only confused me to the

point

> that I just wanted to quit taking them all (I get overwhelmed very

> easily), so this was really my biggest reason to change

doctors...Dr

> Ostroff is very good Dr, but I personally need one who will take

the

> time to call me back...himself.

>

> My new doctor is also concerned about my not being able to feel the

> reflux (as I am) that has caused the ulcer and he thinks we might

need

> to have routine endoscopies to make sure the ulcer doesn't come

back

> again...not sure how often I will have them, but it only took 4

months

> for this ulcer to progress to such a state it was in after having

the

> dilatation, so I imagine we would need to have them more

frequently for

> a while until we see how the medications are working.

>

> I liked this new GI doc. We seem to be on the same page and that

is very

> important to me....plus, the added benefit is that he is so close

and

> now I have someone to bring me home from the hospital after the

> endoscopy....and if I need to have anything more exciting than a

simple

> endoscopy, I will go to someone with more experience.....just

thought I

> would clarify this!

>

> Other than this, everything has been kind of wonderful in my

life...Mr

> Toad's wild adventure ride has been wild and adventurous, but

without

> all the highs and lows, which I seem to like much better! LOL

>

> is having eye surgery on Monday too...it should go well,

it is

> outpatient surgery...I guess we'll see who gets out of recovery

> first...hopefully it will be an all around happy/good news kind of

day!

>

> Love and Hugs to you all...

> Sandi in No CA

>

[Guest guest]

> >

> > Hello Everyone,

> > Well I go in for my endoscopy on Monday to find out how the

> esophageal

Thanks Jo,

Will let you know how good he is after the endoscopy! If I make it

through the procedure without waking up gagging, that is a big + in my

opinion!!!

Really he is not an " achalasia specialist " but simply someone close to

me that I can have a more personable doctor/patient relationship

with...but you never know...after a few visits with me we might be

able to give him the " title " and then everyone will want to travel

from far and wide to see him!!! LOL

And you could just hop on a plane!!!

> > ulcer has healed after having had the balloon dilatation last

> August.

> > I've also changed doctors seeing as though I am only having the

> > endoscopy with no dilatations. I couldn't see the need to bother

> anyone

> > to drive me into the city and back home just to have it done by Dr

> > Ostroff...nothing personal against him, but he is a very busy man

> and

> > very difficult to get to speak to personally and I don't like

> having to

> > talk to his nurse practitioner for questions that I need answered.

> > Nothing personal against her either, but if I wanted her for a

> doctor, I

> > would have requested her as my physician and not Dr.

> > Ostroff......Soooooo, I have decided that any GI doc can do the

> > endoscopy so I went to my nearest and dearest Dr. Taborga (my PCP)

> with

> > my dilemma and he immediatly set me up with this new GI doc...and

> when I

> > say immediatly, he had the referral sent over and had called back

> to

> > inform me of the news within 5 minutes!!! Wow!!!!

> > I think I have a pretty great caring team of doctors caring for me

> right

> > here in my neighborhood. Dr. Gallopudi is doing the endoscopy. I

> went in

> > to see him a couple of weeks ago. He is very nice. He has had

> several

> > patients with Achalasia before but it has been a few years. I told

> him

> > my story and he told me to stop because I was scaring him, and

> when I

> > asked him if he would be my doctor he said to me " do I have a

> > choice " ???? LOL...he was just kidding and he said of course, he

> sees all

> > of my Dr Taborga's patients.I spoke with him regarding my

> medications I

> > was taking for the ulcer and he decided to take me off of a couple

> them,

> > telling me that they were working against others that I was

> taking. For

> > instance, I was taking Zelnorm for constipation and gastric

> emptying

> > (which I don't think I have a problem with)...well apparantly the

> > Zelnorm works just the opposite of the Adalat (nifidipine) which I

> take

> > for my blood pressure and my esophageal spasms. He's going to do a

> > gastric emptying test to find out if I do indeed have a problem

> with

> > this which makes very good sense to me...especially since my

> insurance

> > doesn't cover the Zelnorm and it is very expensive. He also took

> me off

> > the Pepcid because I was taking both Pepcid and Protonix, and he

> said

> > that these two meds will work against eachother, so I have just

> been

> > taking the Protonix for my ulcer...I tried to get in touch with Dr

> > Ostroff regarding my problems with the meds, but I was only able to

> > speak to the nurse practitioner and she only confused me to the

> point

> > that I just wanted to quit taking them all (I get overwhelmed very

> > easily), so this was really my biggest reason to change

> doctors...Dr

> > Ostroff is very good Dr, but I personally need one who will take

> the

> > time to call me back...himself.

> >

> > My new doctor is also concerned about my not being able to feel the

> > reflux (as I am) that has caused the ulcer and he thinks we might

> need

> > to have routine endoscopies to make sure the ulcer doesn't come

> back

> > again...not sure how often I will have them, but it only took 4

> months

> > for this ulcer to progress to such a state it was in after having

> the

> > dilatation, so I imagine we would need to have them more

> frequently for

> > a while until we see how the medications are working.

> >

> > I liked this new GI doc. We seem to be on the same page and that

> is very

> > important to me....plus, the added benefit is that he is so close

> and

> > now I have someone to bring me home from the hospital after the

> > endoscopy....and if I need to have anything more exciting than a

> simple

> > endoscopy, I will go to someone with more experience.....just

> thought I

> > would clarify this!

> >

> > Other than this, everything has been kind of wonderful in my

> life...Mr

> > Toad's wild adventure ride has been wild and adventurous, but

> without

> > all the highs and lows, which I seem to like much better! LOL

> >

> > is having eye surgery on Monday too...it should go well,

> it is

> > outpatient surgery...I guess we'll see who gets out of recovery

> > first...hopefully it will be an all around happy/good news kind of

> day!

> >

> > Love and Hugs to you all...

> > Sandi in No CA

> >

>

[Guest guest]

Jo,

I will let you know how well I like this new GI doctor after the

endoscopy...If I make it through the procedure without waking up on the

table gagging that is a big + in my opinion!!!!

And even though he isn't really an achalasia specialist, he might just

become one after a few visits with me and maybe we will have to give

him the "title"!

Sandi in No CA

> > >> > > Hello Everyone,> > > Well I go in for my endoscopy on Monday to find out how the > > esophageal> Thanks Jo,> Will let you know how good he is after the endoscopy! If I make it> through the procedure without waking up gagging, that is a big + in my> opinion!!!> Really he is not an "achalasia specialist" but simply someone close to> me that I can have a more personable doctor/patient relationship> with...but you never know...after a few visits with me we might be> able to give him the "title" and then everyone will want to travel> from far and wide to see him!!! LOL > And you could just hop on a plane!!! > > > > > > ulcer has healed after having had the balloon dilatation last > > August.> > > I've also changed doctors seeing as though I am only having the> > > endoscopy with no dilatations. I couldn't see the need to bother > > anyone> > > to drive me into the city and back home just to have it done by Dr> > > Ostroff...nothing personal against him, but he is a very busy man > > and> > > very difficult to get to speak to personally and I don't like > > having to> > > talk to his nurse practitioner for questions that I need answered.> > > Nothing personal against her either, but if I wanted her for a > > doctor, I> > > would have requested her as my physician and not Dr.> > > Ostroff......Soooooo, I have decided that any GI doc can do the> > > endoscopy so I went to my nearest and dearest Dr. Taborga (my PCP) > > with> > > my dilemma and he immediatly set me up with this new GI doc...and > > when I> > > > > say immediatly, he had the referral sent over and had called back > > to> > > inform me of the news within 5 minutes!!! Wow!!!!> > > I think I have a pretty great caring team of doctors caring for me > > right> > > here in my neighborhood. Dr. Gallopudi is doing the endoscopy. I > > went in> > > to see him a couple of weeks ago. He is very nice. He has had > > several> > > patients with Achalasia before but it has been a few years. I told > > him> > > my story and he told me to stop because I was scaring him, and > > when I> > > asked him if he would be my doctor he said to me "do I have a> > > choice"???? LOL...he was just kidding and he said of course, he > > sees all> > > of my Dr Taborga's patients.I spoke with him regarding my > > medications I> > > was taking for the ulcer and he decided to take me off of a couple > > them,> > > telling me that they were working against others that I was > > taking. For> > > instance, I was taking Zelnorm for constipation and gastric > > emptying> > > (which I don't think I have a problem with)...well apparantly the> > > Zelnorm works just the opposite of the Adalat (nifidipine) which I > > take> > > for my blood pressure and my esophageal spasms. He's going to do a> > > gastric emptying test to find out if I do indeed have a problem > > with> > > this which makes very good sense to me...especially since my > > insurance> > > doesn't cover the Zelnorm and it is very expensive. He also took > > me off> > > the Pepcid because I was taking both Pepcid and Protonix, and he > > said> > > that these two meds will work against eachother, so I have just > > been> > > taking the Protonix for my ulcer...I tried to get in touch with Dr> > > Ostroff regarding my problems with the meds, but I was only able to> > > speak to the nurse practitioner and she only confused me to the > > point> > > that I just wanted to quit taking them all (I get overwhelmed very> > > easily), so this was really my biggest reason to change > > doctors...Dr> > > Ostroff is very good Dr, but I personally need one who will take > > the> > > time to call me back...himself.> > > > > > My new doctor is also concerned about my not being able to feel the> > > reflux (as I am) that has caused the ulcer and he thinks we might > > need> > > to have routine endoscopies to make sure the ulcer doesn't come > > back> > > again...not sure how often I will have them, but it only took 4 > > months> > > for this ulcer to progress to such a state it was in after having > > the> > > dilatation, so I imagine we would need to have them more > > frequently for> > > a while until we see how the medications are working.> > > > > > I liked this new GI doc. We seem to be on the same page and that > > is very> > > important to me....plus, the added benefit is that he is so close > > and> > > now I have someone to bring me home from the hospital after the> > > endoscopy....and if I need to have anything more exciting than a > > simple> > > endoscopy, I will go to someone with more experience.....just > > thought I> > > would clarify this!> > > > > > Other than this, everything has been kind of wonderful in my > > life...Mr> > > Toad's wild adventure ride has been wild and adventurous, but > > without> > > all the highs and lows, which I seem to like much better! LOL> > > > > > is having eye surgery on Monday too...it should go well, > > it is> > > outpatient surgery...I guess we'll see who gets out of recovery> > > first...hopefully it will be an all around happy/good news kind of > > day!> > > > > > Love and Hugs to you all...> > > Sandi in No CA> > >> >>

[Guest guest]

I lived in California for 16 years, so if I came your way, my

husband and I would have to visit the grave of our infant daughter

and the park where we were married in San Diego. We have spoken

about making the trip for years. I know you are still hours north of

there, but talk of California always brings back memories.

Jo

> > >

> > > Hello Everyone,

> > > Well I go in for my endoscopy on Monday to find out how the

> > esophageal

> Thanks Jo,

> Will let you know how good he is after the endoscopy! If I make it

> through the procedure without waking up gagging, that is a big +

in my

> opinion!!!

> Really he is not an " achalasia specialist " but simply someone

close to

> me that I can have a more personable doctor/patient relationship

> with...but you never know...after a few visits with me we might be

> able to give him the " title " and then everyone will want to travel

> from far and wide to see him!!! LOL

> And you could just hop on a plane!!!

>

>

>

> > > ulcer has healed after having had the balloon dilatation last

> > August.

> > > I've also changed doctors seeing as though I am only having the

> > > endoscopy with no dilatations. I couldn't see the need to

bother

> > anyone

> > > to drive me into the city and back home just to have it done

by Dr

> > > Ostroff...nothing personal against him, but he is a very busy

man

> > and

> > > very difficult to get to speak to personally and I don't like

> > having to

> > > talk to his nurse practitioner for questions that I need

answered.

> > > Nothing personal against her either, but if I wanted her for a

> > doctor, I

> > > would have requested her as my physician and not Dr.

> > > Ostroff......Soooooo, I have decided that any GI doc can do the

> > > endoscopy so I went to my nearest and dearest Dr. Taborga (my

PCP)

> > with

> > > my dilemma and he immediatly set me up with this new GI

doc...and

> > when I

>

>

> > > say immediatly, he had the referral sent over and had called

back

> > to

> > > inform me of the news within 5 minutes!!! Wow!!!!

> > > I think I have a pretty great caring team of doctors caring

for me

> > right

> > > here in my neighborhood. Dr. Gallopudi is doing the endoscopy.

I

> > went in

> > > to see him a couple of weeks ago. He is very nice. He has had

> > several

> > > patients with Achalasia before but it has been a few years. I

told

> > him

> > > my story and he told me to stop because I was scaring him, and

> > when I

> > > asked him if he would be my doctor he said to me " do I have a

> > > choice " ???? LOL...he was just kidding and he said of course,

he

> > sees all

> > > of my Dr Taborga's patients.I spoke with him regarding my

> > medications I

> > > was taking for the ulcer and he decided to take me off of a

couple

> > them,

> > > telling me that they were working against others that I was

> > taking. For

> > > instance, I was taking Zelnorm for constipation and gastric

> > emptying

> > > (which I don't think I have a problem with)...well apparantly

the

> > > Zelnorm works just the opposite of the Adalat (nifidipine)

which I

> > take

> > > for my blood pressure and my esophageal spasms. He's going to

do a

> > > gastric emptying test to find out if I do indeed have a

problem

> > with

> > > this which makes very good sense to me...especially since my

> > insurance

> > > doesn't cover the Zelnorm and it is very expensive. He also

took

> > me off

> > > the Pepcid because I was taking both Pepcid and Protonix, and

he

> > said

> > > that these two meds will work against eachother, so I have

just

> > been

> > > taking the Protonix for my ulcer...I tried to get in touch

with Dr

> > > Ostroff regarding my problems with the meds, but I was only

able to

> > > speak to the nurse practitioner and she only confused me to

the

> > point

> > > that I just wanted to quit taking them all (I get overwhelmed

very

> > > easily), so this was really my biggest reason to change

> > doctors...Dr

> > > Ostroff is very good Dr, but I personally need one who will

take

> > the

> > > time to call me back...himself.

> > >

> > > My new doctor is also concerned about my not being able to

feel the

> > > reflux (as I am) that has caused the ulcer and he thinks we

might

> > need

> > > to have routine endoscopies to make sure the ulcer doesn't

come

> > back

> > > again...not sure how often I will have them, but it only took

4

> > months

> > > for this ulcer to progress to such a state it was in after

having

> > the

> > > dilatation, so I imagine we would need to have them more

> > frequently for

> > > a while until we see how the medications are working.

> > >

> > > I liked this new GI doc. We seem to be on the same page and

that

> > is very

> > > important to me....plus, the added benefit is that he is so

close

> > and

> > > now I have someone to bring me home from the hospital after the

> > > endoscopy....and if I need to have anything more exciting than

a

> > simple

> > > endoscopy, I will go to someone with more experience.....just

> > thought I

> > > would clarify this!

> > >

> > > Other than this, everything has been kind of wonderful in my

> > life...Mr

> > > Toad's wild adventure ride has been wild and adventurous, but

> > without

> > > all the highs and lows, which I seem to like much better! LOL

> > >

> > > is having eye surgery on Monday too...it should go

well,

> > it is

> > > outpatient surgery...I guess we'll see who gets out of recovery

> > > first...hopefully it will be an all around happy/good news

kind of

> > day!

> > >

> > > Love and Hugs to you all...

> > > Sandi in No CA

> > >

> >

>

[Guest guest]

Sandi- if we can make it back to California, I will try to arrange a

meeting that is centerally located. I would like to meet so many

members of this group.

Jo

> >

> > I lived in California for 16 years, so if I came your way, my

> > husband and I would have to visit the grave of our infant

daughter

> > and the park where we were married in San Diego. We have spoken

> > about making the trip for years. I know you are still hours

north of

> > there, but talk of California always brings back memories.

>

[Guest guest]

I can't imagine waking during the procedure! You are very brave.

What acid reducer will you be on?

Jo

>

> I had my endoscopy yesterday afternoon. I still have 3 ulcers. I'm

not

> sure if they are all the same as the one I had before, but they

weren't

> bad so it looks like the worst one from December's endoscopy has

healed

> considerably.

>

> I just need to be on an acid reducing medication for life now. He

said

> my esophagus looked very good and I didn't have any of the

twisting that

> I had previously. I am wondering if this could be from taking the

Adalat

> (nifidipine) on a daily basis because I just started taking it

again in

> the last couple of months and it really helps me with the

esophageal

> spasms...or maybe the acid medication helps keep my esophagus

healthy.

> I'm certainly not complaing, but I would sure like to know what it

is

> that has reversed the twisting of my E and made it nice and

straight

> again!

> Good to know that this is possible!

>

> All in all it was a good experience. I woke up at the end of the

> procedure when the doctor was doing the biopsy. It was very

surreal. I

> was watching the monitor and listening to the voices around me

telling

> me what was going on, but I hadn't quite realized where I was

yet...I

> didn't feel anything down my throat and that was odd, but then

while I

> was watching him do the biopsy, suddenly I felt a tug down in my E

and

> that's when I put it all together that I was watching my own

> biopsy.....very strange feeling. I think I went back to sleep again

> afterwards and woke up about a half hour later in recovery and

then they

> sent me home after Dr Gollapudi came in to talk to me....and I was

awake

> enough to remember everything he told me......Oh yes, and he said

that

> my esophagus was opened up at the bottom so the food should be

going

> down. I have been noticing that soft foods like ice cream go down

easier

> without any assistance, but I still need to force most everything

down

> and it is still a struggle, but he said I didn't need another

> dilatation...don't want to go there again anyways!

>

> Hugs to you all...

> Sandi in No CA

>

[Guest guest]

In a message dated 4/24/2006 2:41:19 PM Pacific Daylight Time,

catholicmomof3@... writes:

Sandi, so sorry to hear about 's sinus infection. I'm sure you guys

are already doing the Neti pot (sinus washes) and such. Have you ever tried

the sinuneb or something like that?

Hi Pattie,

Until now, his sinus infections have been under control. His Ped doesn't

think sinus washes are good for kids. However, I think this Ped is talking

about Bri as if he didn't have a PID.

Last week he told me the only two reasons that kids get constipated was

lack of fiber or water. I wanted to add: or they have a PID. But I kept my

mouth shut. I knew it would be better to talk to him a different visit. I'm

going to give him the IDF number for physicians so he can ask them and not just

take my word for it. After all, I'm just the Mom, what do I know?? LOL, only 13

years of experience!!! Okay, I'm done!

Sandi, Mom to --age 13--CVID

[Guest guest]

In a message dated 4/24/2006 2:41:19 PM Pacific Daylight Time,

catholicmomof3@... writes:

There is also a doctor in Seattle who

prescribes an antibacterial ointment mix that you swab up the nose to help

get rid of infections-try doing a search for that

Pattie,

I forgot about this part of your e-mail--sorry. Bri's Immuno prescribed

this but in true Bri form--he is allergic to this abx! Great idea though.

Sandi, Mom to --age 13--CVID

[Guest guest]

In a message dated 4/24/2006 6:25:56 PM Pacific Daylight Time,

megoonie99@... writes:

Does anyone else

feel like this??????

___________________________________________________________________________

Meg,

Obviously, I do!! Plus, these well-meaning Docs are referring to kids

without PID's. How that relates to our kids, I have no idea.

Sandi, Mom to --age 13--CVID

[Guest guest]

" Last week he told me the only two reasons that kids get constipated was

lack of fiber or water. "

LOL... I can show him Jacen if you would like... that would surely disprove

his theroy!

Sorry, that just struck me really funny!

sassykay59@... wrote:

In a message dated 4/24/2006 2:41:19 PM Pacific Daylight Time,

catholicmomof3@... writes:

Sandi, so sorry to hear about 's sinus infection. I'm sure you guys

are already doing the Neti pot (sinus washes) and such. Have you ever tried

the sinuneb or something like that?

Hi Pattie,

Until now, his sinus infections have been under control. His Ped doesn't

think sinus washes are good for kids. However, I think this Ped is talking

about Bri as if he didn't have a PID.

Last week he told me the only two reasons that kids get constipated was

lack of fiber or water. I wanted to add: or they have a PID. But I kept my

mouth shut. I knew it would be better to talk to him a different visit. I'm

going to give him the IDF number for physicians so he can ask them and not just

take my word for it. After all, I'm just the Mom, what do I know?? LOL, only 13

years of experience!!! Okay, I'm done!

Sandi, Mom to --age 13--CVID