Re: Sandi

June 21, 2000

Hello Sandi! I must say that before I had joint swelling I was developing at

an above average rate. The doctors had told my parents I may be over 6ft

tall. I am 5'6. I didn't reach 6 ft and the doctors seem to thinks thats due

to my JRA but who knows. My wrists are a little smaller than the rest of my

body but not really noticable unless pointed out. As a child, I was noticably

stiff. I was so used to the pain it was hard for me to notice that I walked

with a limp during those not so good flare-ups. Although my mother was very

in tune to my disease, it was hard for her to take notice of my stiffness and

limping because she got so used to it. Sometimes parents would tell her that

I looked like I was an old lady with the way that I walked. It wasn't that my

mom didn't know I was in pain, she just didn't see my JRA as my friends

parents did. I eventually wound up at A.I. Dupont where they treated my JRA

very aggressively. I was in and out of the hospital and therapy. I began to

be able to lead a normal childhood. I played softball for a couple of years.

Of course I couldn't play all of the games or go to all of the practices due

to pain and stiffness but it made me feel good to be a memeber of the team.

Later I found that it was too taxing on my body. Because the arthritis had

damaged my spine I could not do a summersault, headstand, cartwheel,

gymnastics or any contact sport. It really upset me not to do those things at

first even though I knew why. My mom got me into dancing and singing. She had

to really educate anyone that dealt with me on a physical level so my dance

teacher knew all about my JRA and the limitations that I had. I ended up

dancing for 6 years. I am still singing. In middle school and high school I

was in all of the talent shows singing. I even got special permission to

leave the hospital to sing in a middle school talent show. Going into

college, I sang in weddings, was in the college musicals, and I was a

resident assistant that counciled other students . I wasn't active in any

sports throughout school but I was active in so much more like student

council, peer helping, choir, and band. To see me now, you could never geuss

that I have a debilitating disease. I credit alot of my strength to my mother

who cried with me when I was in pain and advocated for me to lead an active

childhood. Talking to my mom today, she has mentioned how happy she was with

the aggressive medical treatment. She said that at first, she was very scared

and worried that they were using so many drugs. I had nightmares where I

would sleepwalk and I had extreme emotions with the prendisone not to

mention the weightgain among other things. Yet, she had to educate herself

while also trusting that the aggressiveness was for the sole reason that my

body and bones were growing and the doctors wanted them to grow the right

way. Well, I am certainly writing quite a bit to you! I hope this answers

your question. I would be glad to chat with you or Ashli. I always thought

it was so neat meeting someone else with JRA. Most of the older girls that I

met as a child were not in good shape and hadn't been treated as aggressively

as a child and therefore suffered with permanent disability. I can understand

where you and your daughter are right now and I know it is so tough. Please

feel free to contact me at any time.

Take Care!

Melodi

August 3, 2000

Sandi,

Great job on your homepage, it looks great! Ashli is adorable, I love the

little costume!

November 29, 2001

Sandi: Hang in there! This has got to be hard on you and as far as I'm

concerned, you can vent all you need to. I am sorry that things are not

going well. I'll be keeping you and

both in my thoughts and prayers. Please, let us know the results of

the MRI.

-mom to , dysgammaglobulinemia; etc.

November 29, 2001

Sandi: Hang in there! This has got to be hard on you and as far as I'm

concerned, you can vent all you need to. I am sorry that things are not

going well. I'll be keeping you and

both in my thoughts and prayers. Please, let us know the results of

the MRI.

-mom to , dysgammaglobulinemia; etc.

March 18, 2002

Wenoka ----

I couldn't have said it any better. Life will always be filled with == what

if's, why me's, if only's. It doesn't change life and we can't change every

aspect of it. We can learn from it, deal with it and become stronger. We can

love our children no matter what and show them how wonderful life can be. We

are all strong people and we need to find that within ourselves. We have no

control over what portions of our genetic makeup our children may obtain and

there is no way for all of us to know our exact makeup before we make each step.

My grandmother always said, " If you wait till you have enough money for a baby,

you will never have one. " Same rule here. If you wait till everything is in

perfect shape with your genetics, etc., you may never have a child. No one

intentionally passes something on to their children, unless they are doing

obvious drugs or something during their pregnancy, but sometimes these things

happen.

I want to thank all of you for the support over the past week it has been a

rough month and I hope it will slow down soon. We are just back in from the

hospital again and will be going again tomorrow. We are exhausted but we have a

sleep deprivation EEG tomorrow so it will be little sleep tonight for us.

Have a nice afternoon everyone.

Hugs,

, & Kaylin

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March 25, 2002

Dawn,

We are still waiting to hear for sure but he has been e-mailing us offen to let us know he hasn't forgotten.He said as soon as the accutane confrence is over he will be in touch with more details,So I guess it's not official yet but I feel real good about it.I have talked to mom about this and even if they don't let us speak I think we will be attending I know we have so much information they need to hear and one way or the other.

How have things been going on your end,Have you signed a contract yet,we are still waiting to hear from the Attorney working on the Prozac case.I think it's time to contact him again,We had a depostion last friday with our attorney here in Omaha and the Pyschairtist and his Attorney,It went very well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr. Rich) claimed he wasn't aware Dad was his patient!Can you belive that.He was the specialist that was called in when Dads primary Doctor hospitalized him for dehydration,He was the Dr. that signed Dad out of the hospital,Dad was to meet with this Dr. the same day that he was released which mom and dad went to his office but instead of being seen by this Dr. they were seen by a therapist,He calmed that it was up to dad to request a meeting with him and he said Dad never called him our he would have seen him personally,Dad was in no shape to do this and it was the Drs. release orders that the dr. wrote in his own hand writting to see him in his office that day.Any way he said he knew dad was in a safe place at the hospital yet he signed him out he said the primary dr. wanted to keep dad there 2 or 3 more days.He also said that the therapist came into his office on the 17th the day dad was there for the last time 3 days before he committed suicide and talked to the dr. about upping dads dose that the family was concerned that it was the medicine that was making dad so sick and that the family request he be hospitalized,but he said he told the therapist to assure the family that he was well with in the theraputic limits of prozac and that the hospital would do no more than what was already being done.Yet Dad wasn't his patient.Can you belive this!!!

The last question asked by our Attorney was have you ever been sued before after a long pause he said yes,Dawn this man had one lawsuit in 1985 that was settled out of court and since Dads death ther have been 2 more a total of 4 lawsuites.Mom said she remembered that at least one other was a suicide death but couldn't remember what the third suit was she was writting down info on the second death after dad and missed it but we are getting a copy of the deposition so we'll know more about that then.

Mom feels even if this dosen't get to court she got to see the S.O.B.squirm.

I personally think they will come back with a settlement offer but I told mom not to settle that this man needs to lose his licience.I belive we will force it to court he had no defence for his actions at all,He was also asked if this death could have been prevented and his answer was possibly.Possibly my ASS,If they would have put Dad back in the hospital and got him off the Prozac he would be with us today.

Well got to get the animals tended to so I can get myself ready for work I'll let you know more about the what's going on as soon as we know more.

Love Ya Sandi

March 25, 2002

Dawn,

We are still waiting to hear for sure but he has been e-mailing us offen to let us know he hasn't forgotten.He said as soon as the accutane confrence is over he will be in touch with more details,So I guess it's not official yet but I feel real good about it.I have talked to mom about this and even if they don't let us speak I think we will be attending I know we have so much information they need to hear and one way or the other.

How have things been going on your end,Have you signed a contract yet,we are still waiting to hear from the Attorney working on the Prozac case.I think it's time to contact him again,We had a depostion last friday with our attorney here in Omaha and the Pyschairtist and his Attorney,It went very well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr. Rich) claimed he wasn't aware Dad was his patient!Can you belive that.He was the specialist that was called in when Dads primary Doctor hospitalized him for dehydration,He was the Dr. that signed Dad out of the hospital,Dad was to meet with this Dr. the same day that he was released which mom and dad went to his office but instead of being seen by this Dr. they were seen by a therapist,He calmed that it was up to dad to request a meeting with him and he said Dad never called him our he would have seen him personally,Dad was in no shape to do this and it was the Drs. release orders that the dr. wrote in his own hand writting to see him in his office that day.Any way he said he knew dad was in a safe place at the hospital yet he signed him out he said the primary dr. wanted to keep dad there 2 or 3 more days.He also said that the therapist came into his office on the 17th the day dad was there for the last time 3 days before he committed suicide and talked to the dr. about upping dads dose that the family was concerned that it was the medicine that was making dad so sick and that the family request he be hospitalized,but he said he told the therapist to assure the family that he was well with in the theraputic limits of prozac and that the hospital would do no more than what was already being done.Yet Dad wasn't his patient.Can you belive this!!!

The last question asked by our Attorney was have you ever been sued before after a long pause he said yes,Dawn this man had one lawsuit in 1985 that was settled out of court and since Dads death ther have been 2 more a total of 4 lawsuites.Mom said she remembered that at least one other was a suicide death but couldn't remember what the third suit was she was writting down info on the second death after dad and missed it but we are getting a copy of the deposition so we'll know more about that then.

Mom feels even if this dosen't get to court she got to see the S.O.B.squirm.

I personally think they will come back with a settlement offer but I told mom not to settle that this man needs to lose his licience.I belive we will force it to court he had no defence for his actions at all,He was also asked if this death could have been prevented and his answer was possibly.Possibly my ASS,If they would have put Dad back in the hospital and got him off the Prozac he would be with us today.

Well got to get the animals tended to so I can get myself ready for work I'll let you know more about the what's going on as soon as we know more.

Love Ya Sandi

March 26, 2002

Dear Sandi: This doctor sounds like the typical drug pusher, shucking his responsibilities and passing the buck -- or the Prozac. It's unforgiveable that such ignorant asses are in charge of anything much less human life. GO GET 'EM!!!

March 26, 2002

Dear Sandi: This doctor sounds like the typical drug pusher, shucking his responsibilities and passing the buck -- or the Prozac. It's unforgiveable that such ignorant asses are in charge of anything much less human life. GO GET 'EM!!!

March 26, 2002

Sandi, you are my inspiration, you are a normal family fighting the

system and you are doing it.... thank you for this detailed post... i

really do admire you and my heart aches for the loss of you dad. I

was an Air Force brat, lived in Bellview for 4 years during the late

50's and early 60's, when SAC opened and all the B-52's made their

mark on the world, still remember them shaking our house as they

landed...I loved Omaha and have fond memories of the corn fields

higher than anyone can imagine.... you are from the true heartland of

this huge country, best of everything in exposing this sad sad tale,

hugs

> Dawn,

> We are still waiting to hear for sure but he has been e-mailing

us offen to

> let us know he hasn't forgotten.He said as soon as the accutane

confrence is

> over he will be in touch with more details,So I guess it's not

official yet

> but I feel real good about it.I have talked to mom about this and

even if

> they don't let us speak I think we will be attending I know we have

so much

> information they need to hear and one way or the other.

> How have things been going on your end,Have you signed a contract

yet,we are

> still waiting to hear from the Attorney working on the Prozac

case.I think

> it's time to contact him again,We had a depostion last friday with

our

> attorney here in Omaha and the Pyschairtist and his Attorney,It

went very

> well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr.

Rich)

> claimed he wasn't aware Dad was his patient!Can you belive that.He

was the

> specialist that was called in when Dads primary Doctor hospitalized

him for

> dehydration,He was the Dr. that signed Dad out of the hospital,Dad

was to

> meet with this Dr. the same day that he was released which mom and

dad went

> to his office but instead of being seen by this Dr. they were seen

by a

> therapist,He calmed that it was up to dad to request a meeting with

him and

> he said Dad never called him our he would have seen him

personally,Dad was in

> no shape to do this and it was the Drs. release orders that the dr.

wrote in

> his own hand writting to see him in his office that day.Any way he

said he

> knew dad was in a safe place at the hospital yet he signed him out

he said

> the primary dr. wanted to keep dad there 2 or 3 more days.He also

said that

> the therapist came into his office on the 17th the day dad was

there for the

> last time 3 days before he committed suicide and talked to the dr.

about

> upping dads dose that the family was concerned that it was the

medicine that

> was making dad so sick and that the family request he be

hospitalized,but he

> said he told the therapist to assure the family that he was well

with in the

> theraputic limits of prozac and that the hospital would do no more

than what

> was already being done.Yet Dad wasn't his patient.Can you belive

this!!!

> The last question asked by our Attorney was have you ever been sued

before

> after a long pause he said yes,Dawn this man had one lawsuit in

1985 that was

> settled out of court and since Dads death ther have been 2 more a

total of 4

> lawsuites.Mom said she remembered that at least one other was a

suicide death

> but couldn't remember what the third suit was she was writting down

info on

> the second death after dad and missed it but we are getting a copy

of the

> deposition so we'll know more about that then.

> Mom feels even if this dosen't get to court she got to see the

S.O.B.squirm.

> I personally think they will come back with a settlement offer but

I told

> mom not to settle that this man needs to lose his licience.I belive

we will

> force it to court he had no defence for his actions at all,He was

also asked

> if this death could have been prevented and his answer was

possibly.Possibly

> my ASS,If they would have put Dad back in the hospital and got him

off the

> Prozac he would be with us today.

> Well got to get the animals tended to so I can get myself ready for

work I'll

> let you know more about the what's going on as soon as we know more.

> Love Ya Sandi

March 26, 2002