status

[Guest guest]

Marta,

I understand that the HAPPY99 virus is still in my machine and is being

sent with my e-mail. To all, please don't open that attachment. Can you

give me the web site for the fix?

Concerning me, the local internist and neurologist say no Lyme. Dr. J

said Lyme but try the immunoglobulin. Immunogolubin is not a steroid but a

human blood product. Based on my reading, the studies say this may

interrupt any autoimune process going on and most importantly, foster

remyelation. I went for 2 1/2 years without evidence of demyelination, the

Mayo said no MS so I deliver no MS. I am still experiencing many Lyme

symptoms, extreme ringing in my ears, popping and clicking of the neck, sore

neck, headache and Bell's palsy of the left face as well as spacity of the

left leg and arm. I am concerned about the demyelination. I would really

like to speak to Dr. B or some Lyme specialist concerning immunoglobulin.

I'll keep you posted.

Larry NV

[Guest guest]

Hi Larry:

Please let us know what you find out about the treatments?

thank you

lea

[Guest guest]

Hi Larry,

Thanks for the update....but what do you think? Don't you think that

your illness is Lyme-related? I remember when you had that awful herx when

you were in court. I don't know very much about those High-Dose

Intravenous Immunoglobulin treatments. I hope they will not be harmful to

your Lyme disease. I DO know that any kind of steroid treatment will really

harm you if indeed you do have LD. I wish you could talk to Dr Burrascano

or some other knowledgeable Lyme doctor before you spend your money on these

expensive treatments. I am going to try to get you an email address for a

prominent Lyme doctor, (not Burrascano) I hope that he will respond and let

you know if this treatment protocol would be harmful. For all I know it may

be a good treatment, but I will feel better if you get another opinion. I

will send you the email address offlist as soon as I get it.

Hugs,

Marta

The best things in life are free!

Like love. And hope. And laughter.

-----Original Message-----

From: larryyenko <larryy@...>

>Marta,

> I finished with Rocephin (60 days) Sunday (without much improvement).

I

>went to the internist (that Dr J. required) in Vegas and what, no more abx.

>The neurologist he refered me to also believes I never had Lyme but MS. No

>evidence of anything but Lyme, however, no Lyme.

> I have convenced the Vegas internist (supported by Dr. J.) to perscribe

>high dose immunoglobulin (based on this abstract: Mechanisms of High-Dose

>Intravenous Immunoglobulins in Demyelinating Diseases

>

>

> Stangel, MD; Klaus V. Toyka, MD; Ralf Gold, MD

>

>

>Administration of high-dose intravenous immunoglobulins has become one of

>the most successful new treatment regimens for demyelinating diseases. In a

>decade of molecular medicine, it came as a surprise that a natural blood

>product would prove effective in several disorders, including

Guillain-Barré

>syndrome, chronic inflammatory demyelinating polyneuropathy, multifocal

>motor neuropathy, and, probably, multiple sclerosis. Many experimental

>studies, both in vivo and in vitro, have shown that intravenous

>immunoglobulins can interfere with the immune system at several levels. In

>addition, intravenous immunoglobulins may promote remyelination in

>demyelinating disease associated with viral infections. At present, no

>single mode of action has been identified as the crucial mechanism, which

>leads us to suggest that multiple effects may act in concert.

>

>Arch Neurol. 1999;56:661-663)

>

>It's very expensive, I'll keep you posted.

>Larry NV

[Guest guest]

Hi Larry,

I am sending you a long list of sites about the Happy.exe virus, I

haven't noticed the attachments coming through on your mail lately though.

I am sure one of the sites will explain removal from your computer.

As for the Immunogolubin treatment, I am glad to hear it is not like a

steroid, I really have no medical expertise or knowledge at all. I just am

suspicious of any treatment I have not heard of relating to LD. I wrote a

friend of mine who has the email address of a doctor I know who would be a

great guy to talk to about this, I forgot she is away for the weekend, I

will probably hear back from her on Monday.

Since Carol Fisch mentioned she has been wanting this expensive

treatment, she must know more about it, maybe you two could discuss it and

share info.

The symptoms you mention are so LD.....never hear of MS patient with

Bell's palsy, don't these doctors have a clue???

Do keep us all posted on how you make out.

Hugs,

Marta

From: larryyenko <larryy@...>

>Marta,

> I understand that the HAPPY99 virus is still in my machine and is being

>sent with my e-mail. To all, please don't open that attachment. Can you

>give me the web site for the fix?

> Concerning me, the local internist and neurologist say no Lyme. Dr. J

>said Lyme but try the immunoglobulin. Immunogolubin is not a steroid but a

>human blood product. Based on my reading, the studies say this may

>interrupt any autoimune process going on and most importantly, foster

>remyelation. I went for 2 1/2 years without evidence of demyelination, the

>Mayo said no MS so I deliver no MS. I am still experiencing many Lyme

>symptoms, extreme ringing in my ears, popping and clicking of the neck,

sore

>neck, headache and Bell's palsy of the left face as well as spacity of the

>left leg and arm. I am concerned about the demyelination. I would really

>like to speak to Dr. B or some Lyme specialist concerning immunoglobulin.

> I'll keep you posted.

>Larry NV

[Guest guest]

Hi Larry,

Sorry to hear the IgG infusion was so hard on you, hopefully you are

feeling better now. I doubt that it was stopping the Rocephin that caused

this though, I think more like herx. My latest IV of 28 days, ending March

18, was in the middle of a herx. Did you figure out your herxing cycle and

compare? Please keep us all posted of how this works for you, glad you are

still on abx, and Biaxin is good I hear.

Hang in there,

Marta

-From: larryyenko <larryy@...>

>Marta,

> I had the IgG infusion last Wednesday and Thursday (8 1/2 hours each

>day). The stuff made me so sick I couldn't get to bed by myself. I've

been

>feeling really bad and flu like since the infusion. The literature

explains

>side effects similar to the ones I experienced, however, it supposedly last

>only 48 hours.

> I saw Dr. J. on Saturday and he just wants to follow my progress. He

>did give me Biaxon and another abx to take. He thinks that terminating

>Rocphen my be the cause of the increased symptoms. I see the LV internist

>Thursday. I'll keep you posted.

>Larry NV

>

[Guest guest]

*hugs*

Kim, Honey,

4 bowls of cereal is way way to much. You can do this, we all can, Don't finish off the cereal, just throw it out in the yard for the birds, they will really enjoy it. What's going on to make you feel this way? If you need to talk just send me an email. I won't mind and I'm a good listener. Remember nothing tastes as good as being thin feels. It is so easy to make bad choices, but we have to be strong enough to say no to ourselves. I screw up all the time, but try to get back on as quickly as possible, not stay on the junkfood for as long as I can. When you toss the cereal out for the birds, take a quick walk to clear your head to try and figure out what's brought you to this point.

*thinking of you*

Beth Young

~~~Barrett Mackenzie 7-29-93~~~ ~~~~ Braid 8-9-01~~~~~~~~~Anja Dancy 11-27-02~~~~~

Status

Last night I purchased some junk cereal and a bakery treat specifically to binge on them. This was after I ate 3 pieces of cold pizza that didn't taste so good.I couldn't think of anything positive to say after that.Today's food has been off plan so far. This was a conscious choice I made as well.Breakfast:2 bowls Peanut Butter Crunch cereal with milkLunch:4 bowls Peanut Butter Crunch cereal with milkThe cereal is nearly gone. I plan to finish the box before getting back on track.Thank you for the kind words and encouragement.Kim_________________________________________________________________Send and receive larger attachments with Hotmail Extra Storage. http://join.msn.com/?PAGE=features/es

To unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe:100-plus/join

[Guest guest]

> The cereal is nearly gone. I plan to finish the box before getting back

on

> track.

This is how I did it with those chocolate chip cookies. Just *don't* do what

I did and go out and buy *more*! LOL

And please, make sure you get some decent food into you for dinner -

veggies, protein, etc., or else you'll just feel even worse tomorrow.

[Guest guest]

Kim!!!!

Oh my... I wish I could say " Hey.. what are ya doing? " , but after the

past couple of weeks I have no right. The girls got down the bag of

ch.chips this afternoon and I let them finish it off... well, all but

a few of them anyways. I just didn't need an open bag of them

sitting around.

Finish off that box if you must. I know I can't throw out food

unless it tastes awful or has mold on it... so I totally understand.

Just dont' tell me I have to get back on the straight and narrow to

get you back on! Ok.... *if* I must.

a

who hopes to see you back on track tomorrow!

[Guest guest]

info. if interested:

Dr. Schultz: www.800herbdoc.com

Dr. Marijah McCain: www.herbalhealer.com This address has Essiac Tea

(4-Herb)

which has helped my familly. Testimonies are awesome in her catalog, with

lots of

wonderful informaiton.

www.jonbarron.com has a book you can download that is awesome entitled

" Lessons From The Miracle Doctors " .

www.getandstaywell.com, and www.gethealthyagain.com/cancer.html

With prayers,

Monalisa

On Thu, 15 Jan 2004 22:25:09 -0500 Looks-Twice <loopy@...>

writes:

> Hello,

> I'm sorry I didn't know people were following. They told

> us

> Tuesday it could be that day, or the day after, now it is Thursday.

>

> When we got her out of hospital, and into a local

> palliative care

> place that is very much like home, we were able to surround her with

> all

> she loves. I was able to bring in tapes of the shows we like to

> watch

> together in the background, her photos, and even her dogs have

> visited, all

> things to make her feel comfortable and at home. My father

> remarked that

> she has not deteriorated again since that first day, and that is

> good. When we brought the first dog the first day, my goodness she

> opened

> her eyes and pet the dog, and even as she went back to sleep, her

> hands

> moved over it, patting it.

>

> Now, they are keeping her sedated much of the time.

> There is no

> chance in her condition now. Hopefully, she is getting a very good

> rest.

>

> Oh, I wanted to mention to all those who wished us well

> that it's

> much appreciated, but those people often say " now she is out of

> pain. " She

> has always been fortunate in her cancer that she has never had any

> pain, at

> the beginning, nor at the end. Difficulty breathing, but no actual

>

> pain. Mostly it has been fear and depression.

>

> I suppose it is foolish to hold out any hope of a recovery

> *now*,

> but I feel I should be positive and have hope right up until it

> really is

> the end. Then, there will be time to grieve and feel loss, and I

> can let

> go. The only things that MUST be thought of relating to the end,

> arrangements, and so on, have been done.

>

> -LL2

>

> Werewolves - scary on the outside, sweet on the inside

>

>

>

[Guest guest]

>but I find keeping up with my water

> and veggies does help that. It takes forever to eat 20 baby carrots.

At least it keeps you too busy to grab something gooey and sweet! LOL

> My butt and stomach are yielding--woohooo!!

Have you been keeping track of those measurements for your " before and

after " comparisons for the future? You'll be amazed when the time comes that

you actually lost all those inches.

Sue in NJ

[Guest guest]

> > My butt and stomach are yielding--woohooo!!

>

> Have you been keeping track of those measurements for your " before

and

> after " comparisons for the future? You'll be amazed when the time

comes that

> you actually lost all those inches.

No, not yet. It was such a huge deal to simply get eating well

again. A monthly measure would probably be sort of fun. Maybe the

first of each month.

Kim

[Guest guest]

SMTP: Please confirm the attached message.

[Guest guest]

Waiting for a Response. Please read the attachment.

[Guest guest]

Hi group,

I didn't send this message so the spammers must be up and about again.

This whole spamming thing is getting out of hand and is really annoying

- unfortunately we can't do anything about it.

Chris.

On 09/09/2004, at 12:25 AM, cadlard@... wrote:

>

>

> Waiting for a Response. Please read the attachment.

>

>

>

>

>

[Guest guest]

Partial message is available.

[Guest guest]

You have received an extended message. Please read the instructions.

[Guest guest]

Sally ,keep track of when you hit your 1st negitive ya know 8 ,12 weeks ,yes and

you should have a baseline pcr ,cbc ,liver panel . the 1st pcr neg is extremely

important this will give you an idea of how much time you really need to spend

on tx ,an old lab formula of mine worked out with the greatest of care . My 1st

doc gave me 0% of svr ,so i found a doc who would go along with my game plan ,

took me 7 ,8 months to clear ,considered a non responder even by todays

standards .My doc goes must be something to this i know you would not go through

18 months of torture unless you really believe you got something . So been

negitive now fpr 33 months last pcr at month 32 , doc says he uses my standard

for the tough cases but tells em you might be in for a long ride .

[Guest guest]

Yea, but an old boyfriend calling in lust sure boosts

the spirits (if not the hormones), hey?

And you'll have to get used to planning your trips so

you can have some recovery time after.

We'll be with you, I've done the Pegasys thing for 15

months, and it's survivable. . .

Michele

--- Sally Hines <shines@...> wrote:

> Well, had a nice visit with the shrink. Took her 7

> abstracts about IFN and

> serotonin. We have plans to watch me closely once

> the juice starts in on me.

>

> And got a call from the Gastro office, they are

> calling the script for

> Pegasys in to the correct pharmacy today. And

> getting answers to other

> questions, like shouldn't I have a PCR? And what to

> do about the Welchol for

> the colon-end-oscopy.

>

> And a long lost boyfriend chatted me up today. Seems

> he's suffering lust.

> Poor dear.

>

> I don't know why a short trip to the shrink should

> wear me out like this.

>

> Sally

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

Sally,

Hope you don't mind me asking but what's your riba dose and weight? I

can convert it to mg/kg and give you an idea of how high a dose it

is.

Looks like once you get enough INF more don't help but more riba

means better odds of svr. Bet your looking forward to another

injection. Really gonna miss the weekly jab in the thigh once this

is over, assuming it ever ends.

Sigh,

Mike

>

> Well, had a nice visit with the shrink. Took her 7 abstracts about

IFN and

> serotonin. We have plans to watch me closely once the juice starts

in on me.

>

> And got a call from the Gastro office, they are calling the script

for

> Pegasys in to the correct pharmacy today. And getting answers to

other

> questions, like shouldn't I have a PCR? And what to do about the

Welchol for

> the colon-end-oscopy.

>

> And a long lost boyfriend chatted me up today. Seems he's suffering

lust.

> Poor dear.

>

> I don't know why a short trip to the shrink should wear me out like

this.

>

> Sally

>

[Guest guest]

I don't have the riba dose yet, but my doc believes in dosing by weight. We

shall see.

Thanks for the support. And I hope that yours ends for you someday.

's plan sounds... daunting? But if it works, hey! Better than stopping

and starting again.

Sally

Re: Status

Sally,

Hope you don't mind me asking but what's your riba dose and weight? I

can convert it to mg/kg and give you an idea of how high a dose it

is.

Looks like once you get enough INF more don't help but more riba

means better odds of svr. Bet your looking forward to another

injection. Really gonna miss the weekly jab in the thigh once this

is over, assuming it ever ends.

Sigh,

Mike

>

> Well, had a nice visit with the shrink. Took her 7 abstracts about

IFN and

> serotonin. We have plans to watch me closely once the juice starts

in on me.

>

> And got a call from the Gastro office, they are calling the script

for

> Pegasys in to the correct pharmacy today. And getting answers to

other

> questions, like shouldn't I have a PCR? And what to do about the

Welchol for

> the colon-end-oscopy.

>

> And a long lost boyfriend chatted me up today. Seems he's suffering

lust.

> Poor dear.

>

> I don't know why a short trip to the shrink should wear me out like

this.

>

> Sally

>

[Guest guest]

Hey, Michele! You know it! I'll take all the spirit boosts I can get. Might

even manage a pre-combo fling.

I appreciate you're good wishes. Did 10 months on regular combo, this is my

first try at pegylated.

Sally

Re: Status

Yea, but an old boyfriend calling in lust sure boosts

the spirits (if not the hormones), hey?

And you'll have to get used to planning your trips so

you can have some recovery time after.

We'll be with you, I've done the Pegasys thing for 15

months, and it's survivable. . .

Michele

--- Sally Hines <shines@...> wrote:

> Well, had a nice visit with the shrink. Took her 7

> abstracts about IFN and

> serotonin. We have plans to watch me closely once

> the juice starts in on me.

>

> And got a call from the Gastro office, they are

> calling the script for

> Pegasys in to the correct pharmacy today. And

> getting answers to other

> questions, like shouldn't I have a PCR? And what to

> do about the Welchol for

> the colon-end-oscopy.

>

> And a long lost boyfriend chatted me up today. Seems

> he's suffering lust.

> Poor dear.

>

> I don't know why a short trip to the shrink should

> wear me out like this.

>

> Sally

>

>

__________________________________________

DSL - Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

,

I'll keep your message saved. Last time around I was negative by week 12.

But didn't stay that way.

Sally

Re: Status

Sally ,keep track of when you hit your 1st negitive ya know 8 ,12 weeks ,yes

and you should have a baseline pcr ,cbc ,liver panel . the 1st pcr neg is

extremely important this will give you an idea of how much time you really

need to spend on tx ,an old lab formula of mine worked out with the greatest

of care . My 1st doc gave me 0% of svr ,so i found a doc who would go along

with my game plan , took me 7 ,8 months to clear ,considered a non responder

even by todays standards .My doc goes must be something to this i know you

would not go through 18 months of torture unless you really believe you got

something . So been negitive now fpr 33 months last pcr at month 32 , doc

says he uses my standard for the tough cases but tells em you might be in

for a long ride .

[Guest guest]

Sally Oh yea its real important to take the riba as it states in product info

50 grms fat 50 grms carbs 50 grms protein, says the up take is 70% better take

this at pill time i used a spoon of peanut butter and a beer or 2 or 3 just get

the dietary crap that suites you, remember i had no liver damage so beer didnt

matter non alcoholic beer will work but what ever you like that fits the bill .

[Guest guest]

Sally i been keepin track of some the other forums and quite a few of the nons

and hard to treaters are doing the 72 weeks with excelent results one girl on

infergen said 72 weeks was my magic no and she stoped at 14 months got a pos and

hoped right back on tx for an extra 4 months now shes neg and had to call doc 3

times to confirm ,said she couldnt believe it ,story should still be on janis

site ,i saw it 3 days back

[Guest guest]

Hot dam Mike ,if i can make 18 months and you can satisfy a 28 yr old theirs an

= in their some where . Youll finish, at 48 its not that bad . Why hell if ya

brought that 28 year old up for a roll ide probably have a heart attack for real

..