hello!

[Guest guest]

In a message dated 9/14/05 1:33:33 AM GMT Daylight Time,

paris_abell@... writes:

> Hello all! I think this group is what I've been looking for. My

name is

> Paris. I am 30 years old and presently live in New York City,

Hi Paris,

I don't know if I have already said hello. I am well behind on the mail and

don't know whether I am coming or going now. lol Even If I have answered

before it won't do any harm to do so again.

Support is something that you will certainly get from this group. You can

use us to ask questions, get info or advice, vent your frustrations with or

laugh with if your are feeling good.

The one thing is that I'm sure now that you are with us here, you won't feel

like you are fighting this battle alone. (Cue the music. lol)

Take care,

[Guest guest]

Welcome to the group . I am glad to hear that you are scheduled for surgery. Is the surgery going to be open or done laproscopic? Who is your surgeon? Depending on which one you have the recovery time will be different. The laproscopic surgery is normally a short recovery time maybe a few weeks till you fell back to 100%. The open surgery the recovery time is a lot longer. The surgery is not to bad and you should see some improvement in eating shortly after the surgery is done. As for eating normal again well, do not get your hopes up to high. This disease is a progressive one and the surgery improves our ability in how we eat. You will not have the same swallowing function that you had in your early years of life. The disease effects all of us in different way when it comes to foods that you will or will not have problems eating. For me I have a lot of problems with popcorn but then soda helps me get the food down if I feel some sticking. This might not be true for others in the group. We all have our DARK STAY AWAY from foods. IF you have any other questions please feel free to ask. We are glad you are here and that you are in our family.

in Suffolk

[Guest guest]

Hi Dave You won't regret having the surgery. I was diagnosed in September, and had a Myotomy December 5. Breathing and sleeping have improved tremendously. I was only in the hospital for 2 nights, and took very little pain medication. This is a great site for information and support. Welcome! Jo- in SW Michigandjclancy5 <djclancy5@...> wrote: Hi there! My name is & I have resently been told that I have Achalasia. Of coarse I had no idea what it was, so I have been doing some research. Luckily I came across this sight. Maybe some of you can help me out W/ some things. First of all, quick background. I am 34 & live in Central Illinois. After 2 dialations & 75 ilbs. later, I found out the last

week of Dec. I have Acha. I am scheduled for a Myotomy & Fundoplication on Feb. 9th at Hospital in ST. Louis. I am scared(for obvious reasons) & anxious at the same time. It would be nice to eat again w/out eyeing the bathroom. Some of the things I have concerns w/ are: Will I be able to eat normally again? What are some things I will have problems with(eating or Physically)? How bad is the surgery? Recovery time? Acid Reflux? You know, the basics. If you have taken time to read this, I would like to say thank you & I appreciate your responses. Hopefully I will get to know some of you in the future.

Thanks, Dave C.

Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

How is Jake doing?

My 12 yr. old daughter was just diagnosed last week by Dr. . She

has been affected neurologically with LD. She was put on 300mg

omnifex daily & I was told to keep her on this for 2 months, after

which she'd return for a follow up exam & re-evaluate.

>

> Hi All,

> My 7 yr-old son, Jake, has " finally " been diagnosed with LD. We

live in

> TN and were told by a pediatric infectious disease doctor that

there

> was no such thing as Lyme Disease in TN. This was after 2

> hospitalizations, once in early June, and again in August. Severe

> headache, fever, chills, nightsweats, severe muscle/joint pain,

> cognitive changes, behavioral changes

(rage/agitation/irritability),

> parathesias, rash/bite mark and the list goes on and on. I, too,

have

> been made to feel as if I was " crazy " or " wanting my child to be

> sick " ...which is just plain insane! We have had a son with a life-

> threatening, terminal illness and I can assure you, we would NEVER

want

> another sick child, nor to have to go through that horrific

experience

> again.

>

> Like so many of you, I'm sure, convincing a doctor to even

entertain,

> treat, & send blood work to a " Lyme literate " lab, was awful. It

seems

> like now we've found the diagnosis...would be a relief, however,

now

> how and what to treat with is controversial. We are lucky to have a

> family physician who is lyme literate, but he treats very

> conservatively, IMO. Right now, Jake is getting Zithromax 2

days/month.

> He previously did Amoxicillan for 3 - 4 wks prophylactically

(before we

> knew it was LD & only on my persistence. I am interested in knowing

> what other's childrens have been treated with, for how long,

results,

> etc., especially in children who are too young for the Doxycycline,

> Flagyl, etc...

>

> Thanks!

> (TN)

>

[Guest guest]

Hi Marcia

what sort of drug is Omnifex?? This is one I think we have NOT yet

tried, so Id be very interested!!! thanks

Finette

> >

> > Hi All,

> > My 7 yr-old son, Jake, has " finally " been diagnosed with LD. We

> live in

> > TN and were told by a pediatric infectious disease doctor that

> there

> > was no such thing as Lyme Disease in TN. This was after 2

> > hospitalizations, once in early June, and again in August.

Severe

> > headache, fever, chills, nightsweats, severe muscle/joint pain,

> > cognitive changes, behavioral changes

> (rage/agitation/irritability),

> > parathesias, rash/bite mark and the list goes on and on. I, too,

> have

> > been made to feel as if I was " crazy " or " wanting my child to be

> > sick " ...which is just plain insane! We have had a son with a

life-

> > threatening, terminal illness and I can assure you, we would

NEVER

> want

> > another sick child, nor to have to go through that horrific

> experience

> > again.

> >

> > Like so many of you, I'm sure, convincing a doctor to even

> entertain,

> > treat, & send blood work to a " Lyme literate " lab, was awful. It

> seems

> > like now we've found the diagnosis...would be a relief, however,

> now

> > how and what to treat with is controversial. We are lucky to

have a

> > family physician who is lyme literate, but he treats very

> > conservatively, IMO. Right now, Jake is getting Zithromax 2

> days/month.

> > He previously did Amoxicillan for 3 - 4 wks prophylactically

> (before we

> > knew it was LD & only on my persistence. I am interested in

knowing

> > what other's childrens have been treated with, for how long,

> results,

> > etc., especially in children who are too young for the

Doxycycline,

> > Flagyl, etc...

> >

> > Thanks!

> > (TN)

> >

>

[Guest guest]

Sorry - I spelled it wrong. It's Omnicef. Have you heard of it?

finlerm24 <FinRussak@...> wrote: Hi Marcia

what sort of drug is Omnifex?? This is one I think we have NOT yet

tried, so Id be very interested!!! thanks

Finette

> >

> > Hi All,

> > My 7 yr-old son, Jake, has " finally " been diagnosed with LD. We

> live in

> > TN and were told by a pediatric infectious disease doctor that

> there

> > was no such thing as Lyme Disease in TN. This was after 2

> > hospitalizations, once in early June, and again in August.

Severe

> > headache, fever, chills, nightsweats, severe muscle/joint pain,

> > cognitive changes, behavioral changes

> (rage/agitation/irritability),

> > parathesias, rash/bite mark and the list goes on and on. I, too,

> have

> > been made to feel as if I was " crazy " or " wanting my child to be

> > sick " ...which is just plain insane! We have had a son with a

life-

> > threatening, terminal illness and I can assure you, we would

NEVER

> want

> > another sick child, nor to have to go through that horrific

> experience

> > again.

> >

> > Like so many of you, I'm sure, convincing a doctor to even

> entertain,

> > treat, & send blood work to a " Lyme literate " lab, was awful. It

> seems

> > like now we've found the diagnosis...would be a relief, however,

> now

> > how and what to treat with is controversial. We are lucky to

have a

> > family physician who is lyme literate, but he treats very

> > conservatively, IMO. Right now, Jake is getting Zithromax 2

> days/month.

> > He previously did Amoxicillan for 3 - 4 wks prophylactically

> (before we

> > knew it was LD & only on my persistence. I am interested in

knowing

> > what other's childrens have been treated with, for how long,

> results,

> > etc., especially in children who are too young for the

Doxycycline,

> > Flagyl, etc...

> >

> > Thanks!

> > (TN)

> >

>

For up to date information about Lyme disease and the known co-infections

delivered to your email address see:

Robynns_Lyme_List/

[Guest guest]

Well we are new to this group so I thought I would

introduce us.My name is Mandy and my fiance and I are

AH.We have a daughter 27 months that is undiagnosed

with bone dysplasia.They are thinking hypo.Her x-rays

and other tests have been sent to cedars in LA.

We live in southern Michigan. is healthy and

happy.She can almost do everything that a 2 year old

does.A little delayed in speach but we just started

therapy for it.She is such a great blessing to us.Who

knew that we would be blessed with someone so

energetic outgoing and epressive.IF thats what you

wanna call it.In our house we call being put in our

place. likes to do things on her own and never

wants any help until she relizes she needs

it.Extremely independant.Between my fiance and I we

have 4 children including ANdrea and she is our only

LP.

Well thats all from us.Thanks for having us.

Mandy mom of 27 months

--- memoak13 <memoak13@...> wrote:

> I am a person with dwarfism that just recently

> married an AP. Married

> life is great and I'm trying to start up my Kay

> business. Anyone

> interested in purchasing Kay products can do so

> on my personal

> website www.marykay.com/memoak. Thanks!

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Welcome !

( ) Hello!

Hi everyone. I just joined and have read a few posts and I can

honestly say that I'm very glad I found this place. I've been on

others and it didn't seem to fit us, but this one feels so " right " , I

can relate to many posts!

I have two sons with AS- 9-1/2 and 11. They were originally diagnosed

with only sensory integration disorder when they were under 3yo, but a

couple of years ago were " informally " diagnosed with AS and possible

auditory processing disorder.

My 11 yo was in a special ed class starting when he was 3 through the

1st grade, but that was only for being developmentally delayed

academically. When he was caught up, they put him in a regular class

which was a nightmare, so we have been homeschooling for the last 4+

years and it is so much better.

Glad to be here.

- in OKC

www.OrWhatever.net

www.GodsPreciousGifts.org

[Guest guest]

Yeah I need some advice on the homeschooling thing...I have 2 boys

also and I tried homeschooling until I found out that they both had

Muscular Dystrophy and they would benefit from the OT, PT offered in

the school. But after school I try to give them the quiz and tests

from the homeschool curriculum to boost them acedemically because I

think their school's curriculum is kind of behind. My boys argue

with me though and especially my boy with AS hates doing the work,

so what's your secret?

Sandy

>

> Hi everyone. I just joined and have read a few posts and I can

> honestly say that I'm very glad I found this place. I've been on

> others and it didn't seem to fit us, but this one feels

so " right " , I

> can relate to many posts!

> I have two sons with AS- 9-1/2 and 11. They were originally

diagnosed

> with only sensory integration disorder when they were under 3yo,

but a

> couple of years ago were " informally " diagnosed with AS and

possible

> auditory processing disorder.

> My 11 yo was in a special ed class starting when he was 3 through

the

> 1st grade, but that was only for being developmentally delayed

> academically. When he was caught up, they put him in a regular

class

> which was a nightmare, so we have been homeschooling for the last

4+

> years and it is so much better.

> Glad to be here.

> - in OKC

> www.OrWhatever.net

> www.GodsPreciousGifts.org

>

[Guest guest]

I use tons of hands on learning, lots of music/art/crafts...keep them busy so

theydon't even know they are learning! Then we put everything together (pics

of projects of course) in a scrapbook and she loves to see what she has

accomplished. If you can get them excited about learning, the rest is easy. I

took Lily to OT and PT at the local rehab center (she has SSI) and they trained

ME to implement her therapy here. That has helped a lot. Also, just because you

homeschool, the school district in MOST states still need to provide services

such as speech/ot/etc...look into it, they won't offer, you need to ask.

Oak Meadow is a good curriculum if you want to buy one, but I make my own

according to a method called Charlotte Mason Method (you can do a google search)

which is really " a living education " ...very little textbook work. I love it and

my daughter loves it.

Let me know if I can helo you anymore!

( ) Re: Hello!

Yeah I need some advice on the homeschooling thing...I have 2 boys

also and I tried homeschooling until I found out that they both had

Muscular Dystrophy and they would benefit from the OT, PT offered in

the school. But after school I try to give them the quiz and tests

from the homeschool curriculum to boost them acedemically because I

think their school's curriculum is kind of behind. My boys argue

with me though and especially my boy with AS hates doing the work,

so what's your secret?

Sandy

>

> Hi everyone. I just joined and have read a few posts and I can

> honestly say that I'm very glad I found this place. I've been on

> others and it didn't seem to fit us, but this one feels

so " right " , I

> can relate to many posts!

> I have two sons with AS- 9-1/2 and 11. They were originally

diagnosed

> with only sensory integration disorder when they were under 3yo,

but a

> couple of years ago were " informally " diagnosed with AS and

possible

> auditory processing disorder.

> My 11 yo was in a special ed class starting when he was 3 through

the

> 1st grade, but that was only for being developmentally delayed

> academically. When he was caught up, they put him in a regular

class

> which was a nightmare, so we have been homeschooling for the last

4+

> years and it is so much better.

> Glad to be here.

> - in OKC

> www.OrWhatever.net

> www.GodsPreciousGifts.org

>

[Guest guest]

Hi! This is a great place, so much advice and to hear other people dealing with

the same issues, it's great to have! Welcome! Tami

( ) Hello!

Hi everyone. I just joined and have read a few posts and I can

honestly say that I'm very glad I found this place. I've been on

others and it didn't seem to fit us, but this one feels so " right " , I

can relate to many posts!

I have two sons with AS- 9-1/2 and 11. They were originally diagnosed

with only sensory integration disorder when they were under 3yo, but a

couple of years ago were " informally " diagnosed with AS and possible

auditory processing disorder.

My 11 yo was in a special ed class starting when he was 3 through the

1st grade, but that was only for being developmentally delayed

academically. When he was caught up, they put him in a regular class

which was a nightmare, so we have been homeschooling for the last 4+

years and it is so much better.

Glad to be here.

- in OKC

www.OrWhatever.net

www.GodsPreciousGifts.org

[Guest guest]

Hi Sandy,

I gave up on the schools here. I have had nothing to do with them

from the day I pulled my boys out. I found that OT, PT and speech

therapy was much better through referrals from our doctor. All the

therapy was one-on-one and they progressed so rapidly that they

don't even need any of it now. Their OT and PT were at the hospital

rehabilitation center and the speech was at a clinic. We don't

receive SSI or anything, but the boys do have medicaid insurance

coverage through the state.

As far as homeschooling goes: We " un " school. Unschooling is child

led. Child led is not lack of teaching or letting them do anything

they want. It is where we use their interests and strengths to teach

them and then it is easier to teach the things that are harder for

them. We go at their own pace and are able to go into more depth on

subjects or lessons they really enjoy.

I think it is very confusing for the child to go back and forth from

homeschooling to public school because ther are different rules,

teaching methods, etc. The child will tend to see you as the parent

and the school teacher as the teacher, so there will still be the

arguing with you until he realizes that you are the teacher now.

It takes a while for the child and you to get used to everything

when you first start homeschooling. Usually the first year is spent

getting to know each other in the new setting.

The biggest mistake new homeschoolers make is thinking they have to

teach a lot in the first year. Because it is more one-on-one, the

kids will learn easier and faster.

If he hates to do the school work, try something different until you

find what he likes.

We don't do quizzes at all and not many formal tests. When you

homeschool, you already know what they've learned, so there's really

no reason for the tests unless your state requires it.

We do a lot of hands on learning. I don't buy any pre-packaged

curriculum because you won't ever use half of it, it's too expensive

and most of it is daunting. I make my own worksheets or print some

off the internet. Ocassionally I buy small workbooks from Wal-Mart,

Mardel or Wal-Greens.

I have a lot of resources if you're interested you can email me.

ablessedfamily@... You might want to check out hslda.org

(Homeschooling Legal Defense Association) for the laws of your state

to get a heads up. Hope this helps some.

- :-)

www.OrWhatever.net

www.GodsPreciousGifts.org

> >

> > Hi everyone. I just joined and have read a few posts and I can

> > honestly say that I'm very glad I found this place. I've been on

> > others and it didn't seem to fit us, but this one feels

> so " right " , I

> > can relate to many posts!

> > I have two sons with AS- 9-1/2 and 11. They were originally

> diagnosed

> > with only sensory integration disorder when they were under 3yo,

> but a

> > couple of years ago were " informally " diagnosed with AS and

> possible

> > auditory processing disorder.

> > My 11 yo was in a special ed class starting when he was 3

through

> the

> > 1st grade, but that was only for being developmentally delayed

> > academically. When he was caught up, they put him in a regular

> class

> > which was a nightmare, so we have been homeschooling for the

last

> 4+

> > years and it is so much better.

> > Glad to be here.

> > - in OKC

> > www.OrWhatever.net

> > www.GodsPreciousGifts.org

> >

>

[Guest guest]

I did the same, fortunatley, I have SSI for my daughter due to her MR and was

able to get outside services. She has blossomed under the care of the people out

of the school district and is doing great with homeschooling. Best decision I

ever made.

( ) Re: Hello!

Hi Sandy,

I gave up on the schools here. I have had nothing to do with them

from the day I pulled my boys out. I found that OT, PT and speech

therapy was much better through referrals from our doctor. All the

therapy was one-on-one and they progressed so rapidly that they

don't even need any of it now. Their OT and PT were at the hospital

rehabilitation center and the speech was at a clinic. We don't

receive SSI or anything, but the boys do have medicaid insurance

coverage through the state.

As far as homeschooling goes: We " un " school. Unschooling is child

led. Child led is not lack of teaching or letting them do anything

they want. It is where we use their interests and strengths to teach

them and then it is easier to teach the things that are harder for

them. We go at their own pace and are able to go into more depth on

subjects or lessons they really enjoy.

I think it is very confusing for the child to go back and forth from

homeschooling to public school because ther are different rules,

teaching methods, etc. The child will tend to see you as the parent

and the school teacher as the teacher, so there will still be the

arguing with you until he realizes that you are the teacher now.

It takes a while for the child and you to get used to everything

when you first start homeschooling. Usually the first year is spent

getting to know each other in the new setting.

The biggest mistake new homeschoolers make is thinking they have to

teach a lot in the first year. Because it is more one-on-one, the

kids will learn easier and faster.

If he hates to do the school work, try something different until you

find what he likes.

We don't do quizzes at all and not many formal tests. When you

homeschool, you already know what they've learned, so there's really

no reason for the tests unless your state requires it.

We do a lot of hands on learning. I don't buy any pre-packaged

curriculum because you won't ever use half of it, it's too expensive

and most of it is daunting. I make my own worksheets or print some

off the internet. Ocassionally I buy small workbooks from Wal-Mart,

Mardel or Wal-Greens.

I have a lot of resources if you're interested you can email me.

ablessedfamily@... You might want to check out hslda.org

(Homeschooling Legal Defense Association) for the laws of your state

to get a heads up. Hope this helps some.

- :-)

www.OrWhatever.net

www.GodsPreciousGifts.org

> >

> > Hi everyone. I just joined and have read a few posts and I can

> > honestly say that I'm very glad I found this place. I've been on

> > others and it didn't seem to fit us, but this one feels

> so " right " , I

> > can relate to many posts!

> > I have two sons with AS- 9-1/2 and 11. They were originally

> diagnosed

> > with only sensory integration disorder when they were under 3yo,

> but a

> > couple of years ago were " informally " diagnosed with AS and

> possible

> > auditory processing disorder.

> > My 11 yo was in a special ed class starting when he was 3

through

> the

> > 1st grade, but that was only for being developmentally delayed

> > academically. When he was caught up, they put him in a regular

> class

> > which was a nightmare, so we have been homeschooling for the

last

> 4+

> > years and it is so much better.

> > Glad to be here.

> > - in OKC

> > www.OrWhatever.net

> > www.GodsPreciousGifts.org

> >

>

[Guest guest]

I am a new mother with a 9 month old baby whos left eye is half blue

and half dark brown. I went to the pediatric opthamologist and he told

me that it was a result of incomplete development of the iris. Is your

vision alright? He sad that it was just cosmetic

>

> hello there. just signed up to this group. never met anyone with two

> different coloured eyes before. Im blue/brown in my left eye. its

> spreading too. it started as a dot when i was born and now its about

> half my eye (im now 29). has anyone else experienced this heard of

> this before? My mom has green eyes and my dad has blue eyes.

> I'll try and submit a photo soon...

> take it easy

> rory

>

[Guest guest]

Hello sonja_kathleen!

My vision is perfect and has been since I was a kid.

I wouldn't worry about it. My parents didn't. It was great growing up

with two different eyes. I never once had anyone say anything

insulting about it, but rather the opposite. The girls seemed to love

it...(!)

> >

> > hello there. just signed up to this group. never met anyone with

two

> > different coloured eyes before. Im blue/brown in my left eye. its

> > spreading too. it started as a dot when i was born and now its

about

> > half my eye (im now 29). has anyone else experienced this heard

of

> > this before? My mom has green eyes and my dad has blue eyes.

> > I'll try and submit a photo soon...

> > take it easy

> > rory

> >

>

[Guest guest]

,

you are not alone. I think every member on this board thought that they

wouldn't be here long! My daughter is on Humira, and she does most

normal activities. Once in awhile we hit a stumbling block. I asked

the DR. about decreasing her medicine, and he was really not in favor.

Obviously I would love to stop dumping this junk in my daughter's body,

but it really does make her feel better.

As for the Naproxen, the Dr. at the time told us it can cause mood

swings. We went from happy to lucky to the terrorizer! We couldn't get

her off from that stuff soon enough. She then went to Vioxx! HA! So,

since that was pulled from the market, we are now on Pheldine. It seems

to do the trick with the methotrexate, and humira. I don't know much

about your cold sores, but does she take Folic Acid with her

Methotrexate? That seems to help the mouth sores. Allie never had

them, but she was loosing hair. I believe that has stopped with the 3mg

of folic acid.

Anyway, good luck. We are here if you need us.

And Allie (10 poly)

________________________________

From: [mailto: ] On

Behalf Of laurafinlinson

Sent: Saturday, March 10, 2007 10:44 AM

Subject: Hello!

Hi everyone. My name is , and my 3-year-old daughter was

diagnosed with pauciarticular JRA in september of last year. I

thought it would just go away with the medication, especially when we

started MTX, but it hasn't been helping, so now we've just passed

round two of her remicade treatments and I'm feeling much more like

we're into this for the long haul. Did anyone else have

that " realization " months after getting the diagnosis?

Anyway, I have a question. Izzie keeps getting cold sores, and I've

wondered if anyone else has seen that. Also, I think the naproxen she

was taking was making her REALLY moody, so we switched her back to

Ibuprofen and she seems to be better. Has anyone else seen that?

Those are just two things we've experienced that I haven't seen

documented anywhere else, so wanted to ask.

The Remicade seems to be helping so far, and we're hoping she'll be

completely into a remission state next year sometime. Wish us luck!

Isabel's story is at www.caringbridge.com - username isabel_rose

It probably sounds a lot like yours!

[Guest guest]

Is your daughter still on methotrexate? I know that made my son

extremely moody. After a year and half, we finally stopped and his

mood has improved -- though the arthritis got worse. We started enbrel

three weeks ago. Have seen minor improvement, so we're hopeful it will

only get better as time goes on. Anyway, you might want to question

the methotrexate causing mood swings if it continues. If it is that

and you and your daughter can't tolerate it, check with your doctor

about alternatives. Andy got switched to arava and no mood swings.

[Guest guest]

Yes, I think many of us have felt like that. I know I didn't really

believe the dr at the first visit when she said had arthritis. It

took a follow up phone call when I was checking on blood test results

for it to really sink in.

About the mouth sores - does get them when on MTX. Is your

daughter taking a folic acid supplement? That does help a lot.

Also, rinsing his mouth with Listerine is also helpful, but I think with

a 3 year old, that might be hard. I would check with the dr about the

folic acid.

Welcome to the list, Michele ( 19, spondy)

________________________________

From: [mailto: ] On

Behalf Of laurafinlinson

Sent: Saturday, March 10, 2007 10:44 AM

Subject: Hello!

Hi everyone. My name is , and my 3-year-old daughter was

diagnosed with pauciarticular JRA in september of last year. I

thought it would just go away with the medication, especially when we

started MTX, but it hasn't been helping, so now we've just passed

round two of her remicade treatments and I'm feeling much more like

we're into this for the long haul. Did anyone else have

that " realization " months after getting the diagnosis?

Anyway, I have a question. Izzie keeps getting cold sores, and I've

wondered if anyone else has seen that. Also, I think the naproxen she

was taking was making her REALLY moody, so we switched her back to

Ibuprofen and she seems to be better. Has anyone else seen that?

Those are just two things we've experienced that I haven't seen

documented anywhere else, so wanted to ask.

The Remicade seems to be helping so far, and we're hoping she'll be

completely into a remission state next year sometime. Wish us luck!

Isabel's story is at www.caringbridge.com - username isabel_rose

It probably sounds a lot like yours!

[Guest guest]

Hi ,

Yes, I know what you mean about the moodiness when on naproxen! Elaney was 8

at the time. She went from being a happy kid to a kid that refused to go to

school and threw awful fits. Our first doctor had told us this was possible but

very rare. Not all doctors seem to know this. We are now on our 4th doctor. I

also understand that " realization " thing. Elaney was born with heart defects and

after her surgery I figured that was it for health problems. Then when she was

diagnosed at the age of 8 with JRA I figured it would be easy to fix especially

when compared to heart problems. Wow, was I wrong!!! Anyway, at some point you

begin to just take things as they come. (I can't exactly say I am at that point

yet...I still freak out a lot!) Elaney has been on MTX for about 7 or 8 months.

She does get mouth sores but they are not very bad. I am still not quite sure

about what to do about them. I know that doesn't help you but at least it

validates what you and your daughter are

going through. I will pray that she gets into remission soon!--- &

Elaney(12 JRA, heart defects, scoliosis) & Elyssa(8 Tourette's Syndrome)

laurafinlinson <finnyla@...> wrote:

Hi everyone. My name is , and my 3-year-old daughter was

diagnosed with pauciarticular JRA in september of last year. I

thought it would just go away with the medication, especially when we

started MTX, but it hasn't been helping, so now we've just passed

round two of her remicade treatments and I'm feeling much more like

we're into this for the long haul. Did anyone else have

that " realization " months after getting the diagnosis?

Anyway, I have a question. Izzie keeps getting cold sores, and I've

wondered if anyone else has seen that. Also, I think the naproxen she

was taking was making her REALLY moody, so we switched her back to

Ibuprofen and she seems to be better. Has anyone else seen that?

Those are just two things we've experienced that I haven't seen

documented anywhere else, so wanted to ask.

The Remicade seems to be helping so far, and we're hoping she'll be

completely into a remission state next year sometime. Wish us luck!

Isabel's story is at www.caringbridge.com - username isabel_rose

It probably sounds a lot like yours!

---------------------------------

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

Are you aware that when you look at 5 year stats RNY patients only keep their weight off by 1% more than banded patients? If you look at stats it is the bypass patients changing to bands vs. band changing to bypass after all is done and over. Byass (due to surgical risks) have a much lower success rate than bands. But, after deaths and complications are excluded from the stats, bypass maintains weight loss at a rate of 1% better than banded. Personally, I'd prefer to survive 5 years to be a part of the stats.

Banding, my personal opinion...it's the only way to go. Considering that 1 in 200 DIE of bypass vs. banding, is there really any other alternative?

Yep, you are correct, with bypass you are looking at weeks and weeks off work. With banding you are looking at days.

Is your daughter going to Mexicali for you for support or is she having surgery too?

BTW, you can't miss with Dr. A. He really honestly is the best. Six weeks after my own surgery I brought a friend for her surgery. As a nurse do you think I would bring a friend for a half rated surgery by a crappy surgeon? ;o))))))) Not a chance, I need a band sister for support. ;o)

On 3/16/07, E <henglis911@...> wrote:

My daughter (17) and I are both going to Mexicali in early June (no set date yet) We are very excited. I am unsure if I am going to go with the band or the rny. I am worried that I won't lose enough with the band. But I am also worried that I cannot afford to take of too much time from work sop teh RNY may be out.I am so thankful that this board is here. I have learned so much reading your posts. Thanks in Portland OR

[Guest guest]

Hi , welcome to the board! Do your research on both surgeries

to see which one suits you best. If you don't know already, there is a

great site called Obesityhelp.com, they break down all the surgeries

and you can talk to other people as well to gather more information on

both, and know what the success rates are. I have to say, I am very

pleased with the lapband and would gladly tell others to get it as

well, but then again I am biased towards the band..ha ha. I wish you

the best of luck on your research on the surgeries. One thing for sure

you've picked a great surgeon for you and your daughter. The Mexicali

team is really great and more than willing to accomodate your needs.

Kelli

>

> My daughter (17) and I are both going to Mexicali in early June (no

set date yet)

> We are very excited. I am unsure if I am going to go with the band

or the rny.

> I am worried that I won't lose enough with the band. But I am also

worried that I cannot

> afford to take of too much time from work sop teh RNY may be out.

> I am so thankful that this board is here. I have learned so much

reading your posts.

> Thanks

> in Portland OR

>

[Guest guest]

I was afraid I wouldn't lose much with the band either. I had my surgery 13 months ago. I have lost almost 100 pounds. For me, that is enough in one year! Jenni E <henglis911@...> wrote: My daughter (17) and I are both going to Mexicali in early June (no set date yet) We are very excited. I am unsure if I am going to go with the band or the rny. I am worried that I won't lose enough with the band. But I am also worried that I cannot afford to

take of too much time from work sop teh RNY may be out.I am so thankful that this board is here. I have learned so much reading your posts. Thanks in Portland OR

Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains.

[Guest guest]

Hi,

All I can say to you regarding this issue (Band or RNY) is that

everything will depend on one thing: How much do you trust yourself

around food? I did an experiement w/ my band today. I'm on week 7

post-op (banded 1/31/2007) and I finally decided to give chicken a

try for the 1st time today. I wanted to be extra-careful, so instead

of following Dr. Aceves's advice (don't drink 30 minutes before and 2

hours afterwards), I had a huge-ass mug of water w/ my chicken. I

ate 2 pieces of chicken (1 leg and 1 thigh), a small portion of

veggies (about 4 oz.) and a thing of Jell-O (1st time I had Jell-O in

3 weeks). Let me tell you, I got it all down because of one thing:

I was drinking water after every 2 bites. It was able to flush down

the food past the area of the band, so I was able to eat a little

more food. I'm glad I know this, because like everyone told me @ the

hospital, the lap-band is a tool, not a solution. Think about this

when you finally set about a date and put forth total conviction in

making a life-long change to yourself. Needless to say, in the end

this is your decision. You also have to ask yourself if work is

really worth doing one type of surgery over the other. To me, work

shouldn't even be in the equation: This is your life! Put that 1st,

then you'll find your answer.

Cheers,

Rich

----------------------------------------------------------------------

Banded: 1/31/2007 Weight: 378

3/13/2007 Weight: 340

----------------------------------------------------------------------

[Guest guest]

Rich, Rich, Rich!

All I can say is just wait until you get a good fill!!!!!!!

Penny

PS: If you really want the band to work you now know why you need to

follow the rules!

>

> Hi,

>

> All I can say to you regarding this issue (Band or RNY) is that

> everything will depend on one thing: How much do you trust

yourself

> around food? I did an experiement w/ my band today. I'm on week 7

> post-op (banded 1/31/2007) and I finally decided to give chicken a

> try for the 1st time today. I wanted to be extra-careful, so

instead

> of following Dr. Aceves's advice (don't drink 30 minutes before and

2

> hours afterwards), I had a huge-ass mug of water w/ my chicken. I

> ate 2 pieces of chicken (1 leg and 1 thigh), a small portion of

> veggies (about 4 oz.) and a thing of Jell-O (1st time I had Jell-O

in

> 3 weeks). Let me tell you, I got it all down because of one

thing:

> I was drinking water after every 2 bites. It was able to flush

down

> the food past the area of the band, so I was able to eat a little

> more food. I'm glad I know this, because like everyone told me @

the

> hospital, the lap-band is a tool, not a solution. Think about this

> when you finally set about a date and put forth total conviction in

> making a life-long change to yourself. Needless to say, in the end

> this is your decision. You also have to ask yourself if work is

> really worth doing one type of surgery over the other. To me, work

> shouldn't even be in the equation: This is your life! Put that

1st,

> then you'll find your answer.

>

> Cheers,

>

> Rich

>

> --------------------------------------------------------------------

--

>

> Banded: 1/31/2007 Weight: 378

> 3/13/2007 Weight: 340

>

> --------------------------------------------------------------------

--

>

[Guest guest]

Oh thanks Rosy. Definately send me your number.

Mu mother had banding done here in Portland about 5 years ago.

She lost about 100 pounds but recently went through some extreme stress

involving my

older sister and gained 40 back.

My daughter and i are so excited about going down in June.

It is exciting to heat that you are doing so well so quickly.

> > > >

> > > > My daughter (17) and I are both going to Mexicali in early

> June (no set

> > > > date yet)

> > > > We are very excited. I am unsure if I am going to go with the

> band or the

> > > > rny.

> > > > I am worried that I won't lose enough with the band. But I am

> also worried

> > > > that I cannot

> > > > afford to take of too much time from work sop teh RNY may be

> out.

> > > > I am so thankful that this board is here. I have learned so

> much reading

> > > > your posts.

> > > > Thanks

> > > > in Portland OR

> > > >

> > > >

> > > >

> > >

> >

>