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Hi Ben!

So you were diagnosed at age 18! That's the youngest I've heard of, and

mostly it's women....May I ask you: when you said you've had relapses over

the years, was it after you've gone off the meds completely? Or did the

relapse occur during a medication dosage taper? I hope you don't mind

answering these questions, because I feel that everyone's experience is

different, and the more we learn about each other's experiences, the more

facets of AIH we get to understand.

Hope to hear from you....and keep up the good work!

aisha (Seattle)

>From: " bjfox1974 " <bjfox@...>

>Reply-

>

>Subject: [ ] Hello!

>Date: Fri, 28 Jun 2002 21:38:14 -0000

>

>Hello everyone I just ran across this group. My name is Ben I am 28

>and was diagnosed with autoimmune hepatitis in 1992 Doing well! Have

>had a few relapses over the years. But doing good now. Look forward

>to seeing what goes on here

>

>

>

>

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Welcome Ben!

You have found a very caring group of people. I am glad to hear you

are doing so well with the AIH! :o} Here's hoping it continues for

many years to come! :o}

Hugs-

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I have been told my case is very strange. Getting this at 18 years of

age. My relapses usually occur when I go off the meds after about

four months or so. I have had this for so long now I will usually

taper the prednisone down to zero and stay on 50 mg/d of Imuran. When

I start to feel symptoms kick in I'll jump back on the prednisone 15

to 20 mg/d and start to taper down again. Managed to stay at 5 mg/d

for about three years. Then tried to go down again last year. I was

wondering, I tend to relapse during times of stress. Or if I am not

getting enough sleep for extended periods of time. Has anyone else

experienced this?? I have had two liver biopsies, one in '92 and one

in '96 Other than that it doesn't really affect my life much, only

when it decides to act up and that is when I forget to take the meds

or run around too much. Getiing older and wiser now, not trying to be

an invincible teenager anymore :) And my wife keeps me in line

hahaha..

Ben

> Hi Ben!

>

> So you were diagnosed at age 18! That's the youngest I've heard

of, and

> mostly it's women....May I ask you: when you said you've had

relapses over

> the years, was it after you've gone off the meds completely? Or did

the

> relapse occur during a medication dosage taper? I hope you don't

mind

> answering these questions, because I feel that everyone's

experience is

> different, and the more we learn about each other's experiences,

the more

> facets of AIH we get to understand.

>

> Hope to hear from you....and keep up the good work!

>

> aisha (Seattle)

>

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Hi [ ] Re: Hello! I have been told my case is very strange. Getting this at 18 years ofage. My relapses usually occur when I go off the meds after aboutfour months or so. I have had this for so long now I will usuallytaper the prednisone down to zero and stay on 50 mg/d of Imuran. WhenI start to feel symptoms kick in I'll jump back on the prednisone 15to 20 mg/d and start to taper down again. Managed to stay at 5 mg/dfor about three years. Then tried to go down again last year. I waswondering, I tend to relapse during times of stress. Or if I am notgetting enough sleep for extended periods of time. Has anyone elseexperienced this?? I have had two liver biopsies, one in '92 and onein '96 Other than that it doesn't really affect my life much, onlywhen it decides to act up and that is when I forget to take the medsor run around too much. Getiing older and wiser now, not trying to bean invincible teenager anymore :) And my wife keeps me in linehahaha..Ben> Hi Ben!>> So you were diagnosed at age 18! That's the youngest I've heardof, and> mostly it's women....May I ask you: when you said you've hadrelapses over> the years, was it after you've gone off the meds completely? Or didthe> relapse occur during a medication dosage taper? I hope you don'tmind> answering these questions, because I feel that everyone'sexperience is> different, and the more we learn about each other's experiences,the more> facets of AIH we get to understand.>> Hope to hear from you....and keep up the good work!>> aisha (Seattle)>

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Hi Ben, That was so very enlightening! May I clarify with you a few more things: How old are you now? (You do sound like a very responsible young husband!) Now, you said that your relapse occurs when you forget to take your meds, and run around too much - Just to clarify: Has your relapse ever occurred after a period of good resting and taking your meds "responsibly"? If the answer is no, then we can all be more assured that two factors that could contribute to a relapse are in fact controllable. Finally, when you said that your start feeling the symptoms - can you tell me what they are? I was mostly an asymptomatic patient, except when the enzymes got to 1000+, which was once, we nipped that in the bud with 40mg Prednisone. I am not so good about the rest and sleep part, which I agree with you is VERY VERY CRITICAL to recovery and healing. But I am RELIGIOUS about the meds. One thing that helps me is, I make this my morning routine, without fail. After I get up in the morning, I make sure even if I am not hungry at all, to have something in my stomach, whether it's two crackers, a banana, a glass of carrot juice or soymilk, then I take my container of meds. (I prepare the week's supply on Sundays), which include the imuran (I stopped the steroid couple weeks ago), the blood pressure medicine, pancreatic enzymes (because I am so naturally low on those hence my multiple food allergies), calcium and Vit D, and a herbal supplement to remove the bacterial pathogen in my colon. Ben, one suggestion you may pose to your doctor - Have you considered tapering slowly on prednisone from 20mg to zero, but increase the imuran to 75mg? more later...have a super weekend....it's cloudy in Seattle (after one continuous week of sunny days), hope you have a better weather where you are! aisha [ ] Re: Hello! I have been told my case is very strange. Getting this at 18 years ofage. My relapses usually occur when I go off the meds after aboutfour months or so. I have had this for so long now I will usuallytaper the prednisone down to zero and stay on 50 mg/d of Imuran. WhenI start to feel symptoms kick in I'll jump back on the prednisone 15to 20 mg/d and start to taper down again. Managed to stay at 5 mg/dfor about three years. Then tried to go down again last year. I waswondering, I tend to relapse during times of stress. Or if I am notgetting enough sleep for extended periods of time. Has anyone elseexperienced this?? I have had two liver biopsies, one in '92 and onein '96 Other than that it doesn't really affect my life much, onlywhen it decides to act up and that is when I forget to take the medsor run around too much. Getiing older and wiser now, not trying to bean invincible teenager anymore :) And my wife keeps me in linehahaha..Ben> Hi Ben!>> So you were diagnosed at age 18! That's the youngest I've heardof, and> mostly it's women....May I ask you: when you said you've hadrelapses over> the years, was it after you've gone off the meds completely? Or didthe> relapse occur during a medication dosage taper? I hope you don'tmind> answering these questions, because I feel that everyone'sexperience is> different, and the more we learn about each other's experiences,the more> facets of AIH we get to understand.>> Hope to hear from you....and keep up the good work!>> aisha (Seattle)>

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Ben,

From articles I have read there are a number young people that do get this disease. Most of them are female. My daughter was diagnosed at 12 and is now 21. Even though she had other things before i..e. vitilago, unexplained rashes etc., (I''m sure she had AIH way before diagnosis). She was taken off all medicine about 5-6 years ago (even though she told me later she had stopped taking it earlier). I think having a chronic disease makes a young person mature faster than than others. I admire those with chronic diseases and the strength and courage it takes. It puts things in perspective.

GG

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Aisha

Good to hear back from you! It seems that if i am being resonably

responsible (almost never hehehehe) I am ok as long as I have been on

the 50mg/d Imuran and at least 7.5 mg/d prednisone. The prednisone

seems to be what keeps me in one piece. I have been on as much as 100

mg/d Imuran, but 50 seems to do ok, however just taking the 50 mg/d

alone with no prednisone doesn't seem to work which bothers me. I

really would like to kick the prednisone thing, I've been on it for

10 years (28 years old now) not sure how everything is going to hold

up as I get older if I keep taking 10-20 mg a day!

As far as symtoms go, usually starts with fatigue, and muscle aches.

I have found that I experience heatburn, upset stomach, not always

nausea though. Then on several occasions if I didn't jump on it right

away, the jaundice would show up (yellow eyes, skin) and loss of

appetite, then nausea.

> Hi Ben,

>

> That was so very enlightening! May I clarify with you a few more

things:

>

> How old are you now? (You do sound like a very responsible young

husband!)

>

> Now, you said that your relapse occurs when you forget to take your

meds, and run around too much - Just to clarify: Has your relapse

ever occurred after a period of good resting and taking your

meds " responsibly " ? If the answer is no, then we can all be more

assured that two factors that could contribute to a relapse are in

fact controllable.

>

> Finally, when you said that your start feeling the symptoms - can

you tell me what they are? I was mostly an asymptomatic patient,

except when the enzymes got to 1000+, which was once, we nipped that

in the bud with 40mg Prednisone.

>

> I am not so good about the rest and sleep part, which I agree with

you is VERY VERY CRITICAL to recovery and healing. But I am

RELIGIOUS about the meds. One thing that helps me is, I make this my

morning routine, without fail. After I get up in the morning, I make

sure even if I am not hungry at all, to have something in my stomach,

whether it's two crackers, a banana, a glass of carrot juice or

soymilk, then I take my container of meds. (I prepare the week's

supply on Sundays), which include the imuran (I stopped the steroid

couple weeks ago), the blood pressure medicine, pancreatic enzymes

(because I am so naturally low on those hence my multiple food

allergies), calcium and Vit D, and a herbal supplement to remove the

bacterial pathogen in my colon.

>

> Ben, one suggestion you may pose to your doctor - Have you

considered tapering slowly on prednisone from 20mg to zero, but

increase the imuran to 75mg?

>

> more later...have a super weekend....it's cloudy in Seattle (after

one continuous week of sunny days), hope you have a better weather

where you are!

>

> aisha

>

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Hi Ben,

Welcome to the group. It's nice to have someone around who has been

doing pretty ok with the AIH for such a long time. You've been 10

yrs. and no transplant? How nice to have you. Hope you keep coming

back.

Debbie/FL

AIH 11/00

> Hello everyone I just ran across this group. My name is Ben I am 28

> and was diagnosed with autoimmune hepatitis in 1992 Doing well!

Have

> had a few relapses over the years. But doing good now. Look forward

> to seeing what goes on here

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Debbie/Ben, The reason why I was not terrified the first time I was diagnosed with AIH last year is because I have a girlfriend who's had it for 20 years, mostly on 5mg prednisone/50 mg imuran. As soon as I was diagnosed I called her up, and she repeatedly said, sensible low fat diet, sensible low fat diet, sensible low fat diet. As I mentioned before, if you happen to be lucky and respond to the meds, esp. imuran, take advantage of it and multiply its effect by having a good diet, good rest/sleep, and never ever forgetting to take the meds. Being young helps, 'cos the body heals faster. Stay positive everyone! You can make it to a ripe old age! aisha [ ] Re: Hello! Hi Ben,Welcome to the group. It's nice to have someone around who has beendoing pretty ok with the AIH for such a long time. You've been 10yrs. and no transplant? How nice to have you. Hope you keep comingback.Debbie/FLAIH 11/00> Hello everyone I just ran across this group. My name is Ben I am 28> and was diagnosed with autoimmune hepatitis in 1992 Doing well!Have> had a few relapses over the years. But doing good now. Look forward> to seeing what goes on here

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  • 1 month later...
Guest guest

Barb-

My daughter is 3. She was diagnosed with pauci at 17 mos. Started in one

knee. It spread to 4 joints and she went on mtx. I couldn't tell from your

note if e is having side effects or you're just worried about them.

Since she just started on it, I'm assuming you're just nervous. I think

you'll find that most of us putting our children on mtx start out very

nervous about it. I felt like I was literally giving her poison at first.

My husband refused point blank to give it to her. However, I'm happy to say

she has had virtually no side effects. She's been on it since December. When

she first started, and later when the dosage was increased, she was a little

tired on those weekends. Other than that -- nothing. And it's made all the

difference in the world. With regular monitoring, you should certainly be

able to catch any potentially serious problem early. Most kids on this

tolerate it just fine. As with all meds, you will hear of some exceptions.

How many joints does e have affected now? What was the progression?

Best of luck on the mtx. I hope it works as well for e as it has for

. Welcome to the group.

Diane (, 3, pauci)

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Barb,,

Sorry to hear about e. My son is 5 and was diagnosed in April. I

don't have any experience with mtx.,,yet,,my son is on Naprosyn. I just

wanted to welcome you to the group. It has been a lifesaver for me. My

husband can hardly bring himself to say Logan has arthritis,,let alone

talk about all the ups and downs of it all. Hope e will have painfree

days soon.

Kim and Logan 5

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Welcome Barb,

My daughter is 15, diagnosed 11 months ago with poly. She takes MTX and although the side effects sound awful I think for JRA they are low in occurence because our kids take a much lower dosage than if it was cancer (at least that is what my pharmacist told me). Some have troubles but the majority seem to do just fine. It can take 6-8 weeks to work so you have to be patient (which is not easy). My daughter becomes tired with it but otherwise okay. Our doc has her take it at bedtime. Hope your daughter has success with it as well.

e, mom to 15yo daughter joe

cpksmom2002 wrote:

Hello everyone!I'm new to your board, but so thankful I found all of you. My daughter, e, is 23 mos. old and was diagnosed with paucy JRA 8 mos. ago. As of Thursday, she has moved to poly. We have tried all the NSAIDS and have now moved to MTX with Celebrex. I am having a terrible time giving this to her due to the side effects. Is anyone else on the same? Any luck? We gave her the first dose on Friday. I think I cried pretty much the whole day. As for her, she's doing great. I'm pretty new at all of this, and feel like my days are totally consumed with JRA. I guess you always think that this happens to OTHER people's kids. I would love to hear from anyone with the MTX experience. What should I expect? Thanks! Barb

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  • 2 months later...
  • 3 weeks later...

Dear tig6902-

I too suffer from esophageal spasms about twice a month . And

thats after having 2 myotomies,as t he first one didn't take,so to

speak.

My Dr. has given me a med called procardia, which is really

given to treat high blood pressure. however,the drug works on the

smooth muscle of the esophagus which in turn stops the spasm. For me,

it is a godsend. It stops the spasms within seconds. The capsule is a

liquid. I stick the top of the capsule with a pin swallow the

liquid,and in a few moments the feeling that I'm having a heart attack

goes away.

I've been taking it since 1996 when I first was diagnosed. I

didn't think I would need it after my surgeries,but I do,and I'm glad I

have it. Not all meds are for all people,but ask your Doc about it. It

might help you. Let me know if you need more info. I work in a

hospital and have access to many many Drs. ,surgeons and GI's.

Abby

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Hi -

Welcome to the site--Glad to have you here. As you may have noticed,

this is a pretty active site--even more so when exam time is near.

Jeanetta has some great tutorials in the files section and we are

very well linked, indeed! You say you've only been a tech for a

little over a year and yet your post says you are an

educator and serve on the SDSHSP board. Please tell us about yourself

and how got to where you are. Your story could be an inspiration for

other techs.

Sincerely,

Dora

Group Moderator

> I would like to introduce myself. My name is I am from

> San Diego, Ca. I have been a Pharm Tech for a little over a year

now

> and have been certified the same. I work at a retail pharmacy and

I

> sub at a vocational college. I also serve on the San Diego Society

> of health system pharmacy board as technician liason.

>

> I'm excited about being able to resource all of youe education and

> knowledge.

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Welcome : I am a pharmacy technician in Spokane, WA and help train

technicians coming out of school and finishing their externship. This is a very

informative site and you will see many topics come up--feel free to join in. We

enjoy getting all different opinions as well as gain some better insight. Chat

with ya soon--Char

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Daer All,

I would like to say that I had the pleasure of meeting Ms Murhpy

at the NPTA Seminar 2002, where we both spoke on Depression. We made

a great team. Clearly Ms has a great background for teaching.

She is a retail tech, who was just given Technician of the Year Award

this past Saturday at the SDSHP Industry Night Event. and I took

a liking to each other and great respect for each other's work in the

field of education. She has been trying to become a member of this

site and my RX Tech Educator's Advisory Group for about 3 months.

Cookis just would not let her in!

Some of you know that I was out of town at the SDSHP annual event

this past weekend, but you do not know is that it was Ms

who invited me and asked me to represent Technicians at this event. I

put together a Technician Book with a list of the avenues for techs,

resource material, internet sites and PTCB information. I had a great

time at this Industry night and clearly as Technician Liason for this

Chapter of CSHP, Ms is doing a fantastic job.

Ms and I also met at the Anaheim CSHP 2002 Seminar, where she

supported my STP for Tech Checking Tech and for the minimu national

stanadard of education that I spoke about at the NPTA Convention.

As a past Tech Liason for Orange County and as Delegate of the Tech

Division for the past 3 yr I am very honored and proud to know Ms

. Further to have Ms on this site to share her

knowledge is an honor in and of itself. I look forward to her being a

member of the formal educators group and to her input on this site.

While Ms is a great tech and educator and needs no reassurance

from me, she is self-motivated and independant, I urge her to become

more active and to stay involved in the arena of recogntion and

education of pharmacy technicians.

Respectfully,

Jeanetta Mastron CPhT

t<Ms

> I would like to introduce myself. My name is I am from

> San Diego, Ca. I have been a Pharm Tech for a little over a year

now

> and have been certified the same. I work at a retail pharmacy and

I

> sub at a vocational college. I also serve on the San Diego Society

> of health system pharmacy board as technician liason.

>

> I'm excited about being able to resource all of youe education and

> knowledge.

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Hi Abby, I've never heard of that, of course I haven't consulted with

my doctors in over a year....I have just given up on them..I will

however ask my general physician about it...He was the one that pushed

my gastroligist to do something and do it now!!! LOL

Thank you again!!!

-- In achalasia@y..., abby294@w... wrote:

> Dear tig6902-

> I too suffer from esophageal spasms about twice a month . And

> thats after having 2 myotomies,as t he first one didn't take,so to

> speak.

> My Dr. has given me a med called procardia, which is really

> given to treat high blood pressure. however,the drug works on the

> smooth muscle of the esophagus which in turn stops the spasm. For me,

> it is a godsend. It stops the spasms within seconds. The capsule is a

> liquid. I stick the top of the capsule with a pin swallow the

> liquid,and in a few moments the feeling that I'm having a heart attack

> goes away.

> I've been taking it since 1996 when I first was diagnosed. I

> didn't think I would need it after my surgeries,but I do,and I'm glad I

> have it. Not all meds are for all people,but ask your Doc about it. It

> might help you. Let me know if you need more info. I work in a

> hospital and have access to many many Drs. ,surgeons and GI's.

> Abby

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  • 1 month later...

Hi ,

I am so happy for you. Your new life has begun. I will continue

to keep you in my prayers and I wish you all the best. If there is

anything that I can do for you, please let me know. God bless you and

your family.

Newton

Medical Records Manager

www.clos.net

shn@...

(704)871-0031

(704)682-1392

Hello!

Hi to all! I'm a new memeber of the Post-Op Group. My MGB was done

on 12/18/02 by Dr. Rutledge in Statesville. My primary goal, and

hope for benifit, from the surgery, is to arrest and/or reverse to

the extent possibe, my diabetes, hypertention and sleep apnea. I'm

delighted to report that the diabetes is now controlled with diet

alone. Blood surgars are now in the normal range without the

applicaton of medications. I remain, for now at least, on

hypertensive medications. Further, their is not yet, any noticeable

change in the sleep apnea.

I weigh once a week and try not to be a scale watcher. Tomorrow is

the forth week post-op and I'm looking forward to seeing progress

confirmed on the beam scale. My weight the day of surgery was 314 and

last Wednesday I was down to 292.

I have had no significant problems to date. Only small ones that I

caused myself. Eating too much too fast. It's strange how even tiny

amounts of food eaten to quickly can cause discompfort. The new

smaller stomach is a powerfull tool from controlling food intake.

Tom

Lincoln,NE

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,

Great to hear that your no longer needing your blood sugar

medications. Some patients have needed their hypertension medications a

little longer and do wean off them fairly early in their first few

months. Same with the C-Pap machine.

Your just under a month post op and doing great with 22 pounds gone

already!

Kathy Goodman

klg@...

Patient Representative

CLOS

Office phone 704-871-0031

Cell 704-682-1723

Hello!

Hi to all! I'm a new memeber of the Post-Op Group. My MGB was done

on 12/18/02 by Dr. Rutledge in Statesville. My primary goal, and

hope for benifit, from the surgery, is to arrest and/or reverse to

the extent possibe, my diabetes, hypertention and sleep apnea. I'm

delighted to report that the diabetes is now controlled with diet

alone. Blood surgars are now in the normal range without the

applicaton of medications. I remain, for now at least, on

hypertensive medications. Further, their is not yet, any noticeable

change in the sleep apnea.

I weigh once a week and try not to be a scale watcher. Tomorrow is

the forth week post-op and I'm looking forward to seeing progress

confirmed on the beam scale. My weight the day of surgery was 314 and

last Wednesday I was down to 292.

I have had no significant problems to date. Only small ones that I

caused myself. Eating too much too fast. It's strange how even tiny

amounts of food eaten to quickly can cause discompfort. The new

smaller stomach is a powerfull tool from controlling food intake.

Tom

Lincoln,NE

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  • 1 month later...

In a message dated 2/16/2003 10:31:30 PM Pacific Standard Time,

jcalla5152@... writes:

> I have been tested twice over the past few years for thyroid problems

> but the test results said " normal. " Getting the normal results didn't take

> away my problems (dry skin, lump in the throat, lack of energy, weight

> gain,

> kidney stones, being cold all the time, poor memory, miscarriages, toxemia

> during pregnancies, etc.) but it has made me unenthusiastic about visiting

> my

> doctor. I'm tired of being told it's all in my head and that my weight gain

>

> is simply due to not pushing away from the table.

Dear Jenelle,

Sad to hear of yet another case of patient discrimination based on doctor's

ignorance! I'm sorry you've had to go through this. I think fifty years

from now, treatment for subclinical hypothyroidism (basing diagnosis and

treatment on your symptoms, not your blood test numbers) will be another

standard for treating obvious hypothyroid patients who don't fit the standard

pattern. For more information or listings for docs who treat this way now,

check out <A HREF= " www.wilsonssyndrome.com " >www.wilsonssyndrome.com</A>. Look

under the patient area for the doc

referrals. Even if you don't have 's Syndrome, their doctors are more

skilled in treating people, not numbers. You might find someone kind an

caring and knowlegable right near you!

Good luck and let us know how you're doing,

in LA

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  • 1 month later...
Guest guest

> Dear Readers,

>

> As owner, I have set this site for the main purpose of study for

the

> Pharmacy Technician Certification Board Exam. However I do allow

some

> conversation outside of this area, particularly during what I and

> Dora, my moderator, call 'down time'. This down time is usually

(like

> now) during the time people are waiting to hear from the PTCB about

> their scores and or passing of the last (March) exam.

>

> However I would prefer IF YOU HAVE A NEW TOPIC THAT YOU CHANGE THE

> TITLE OF THE DISCUSSION so that it is easier for others to follow

and

> for archive purposes. For an example: It is very hard to follow

when

> some one is writing about " A New Drug " and that is the post topic

or

> title and then after a Reply post or two on the same topic, someone

> uses the same topic title inthe 'window' but switches the topic to

> something different like " State Law and Regulations " .

>

> PLEASE out of courtesy and for ease in finding pertainent

information

> I ask each of you to reply only when your response is on the same

or

> related subject, otherwise please begin a new topic.

>

> Secondly, as a reminder when we get closer to the July exam around

> May or so, this site will or should become more active again with

> study questions. Let us not forget the main and primary purpose of

> this site. Therefore once again I let you all know ESPECIALLY NEW

> MEMBERS:

>

> YOU MAY ASK ANY STUDY QUESTION AT ANY TIME. PLEASE DO NOT THINK

THAT

> CONVERSATIONS OR DISCUSSION ON THIS SITE WHICH IS NOT RELATED TO

> STUDY MEANS THAT YOU CAN NOT ASK STUDY QUESTIONS.

>

> YOUR QUESTIONS ARE WELCOME AT ANY TIME.

>

> Likewise discussion on Pharmacy Tech issues are acceptable, with

the

> understanding that they are to be kept to a minimum during the more

> active study time, closer to the test date.

>

> Having said this, PLEASE CONTINUE ON EVERYONE!!!! Enjoy!

>

> Respectfully,

> Jeanetta Mastron CPhT BS Chemistry

> Pharmacy Tech Educator

> Founder/Owner

Please let me know when I cross the line for not being on topic.

Preachers, as you know, tend to be longwinded and go off on

tangents. I am no exception. That reminds me of when I was a

student at the University of Georgia ... well, maybe another time.

In Light,

Enoch

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Guest guest

Welcome to the group, ! Sorry about your RA diagnosis.

a, the list owner and lead moderator, has created a Web site full of

useful information:

http://rheumatoid.arthritis.freehosting.net/ (this link appears at the

bottom of every email).

Of course, we're all here to help support you or answer any specific

questions you may have.

[ ] HELLO!

> my name is shannon, I'm 27 years old and was just diagnosed with RA,

> I thought I'd write to you all because this is all very new and I

> could use a liitle advice. I am a pharmacist by profession so I know

> all the science behind this disease but coping is a little different.

> I'd appreciate any info you could share!!

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Guest guest

Welcome . Sorry about your diagnosis. You'll get a lot of ideas

from the very knowledgeable members on this list. Keeping a good sense of

humor is a definite necessity for surviving RA. I'm looking forward to

getting to know you. Feel free to ask any questions.

a

> my name is shannon, I'm 27 years old and was just diagnosed with RA,

> I thought I'd write to you all because this is all very new and I

> could use a liitle advice. I am a pharmacist by profession so I know

> all the science behind this disease but coping is a little different.

> I'd appreciate any info you could share!!

>

>

>

>

>

>

>

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  • 1 month later...
Guest guest

Hey, Rusty! It has been nice up here too! Was outside all weekend,

enjoying the weather. I wanted to tell you about a website I found and I

don't know if you know about it - spondyville.com Just thought you

might find it interesting. You're driving buddy is doing ok with

his driving. Got to drive dad's road runner a little over where he parks

it - not quite on the street yet! Keep enjoying the great weather!

Michele

Hello!

Hey all, just wanted to say howdy' I know

I've been absent from the groups! for a while

it is just spring and so nice to be inside to much. But I do try to keep

up on the posts, and for certain your all in my thoughts daily.

Big Hugs! for all!

HPLTA Uncle Rusty Limbs

and everyone get outside and enjoy the

wonderful spring while its here!

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