hello!

[Guest guest]

I am so thankful that my little Micah's birth mom allowed him to have life and

give him up. We cannot imagine our lives without him. He lights up the entire

family. He was a great and precious gift sent to us from God and we consider

ourselves soooo blessed!!!!

Loree

Re: hello!

In a message dated 4/14/02 7:58:19 AM Central Daylight Time,

wildwards@... writes:

> But I will tell you something else too. Not all the pictures they paint are

> as grim as what unshakeable image the parents may already have. Sometimes

> the

> messages they receive from professionals about DS become shaded by their

> own

> misconceptions. Some of the people that chosen abortion here do so after

> they

> have met our parents, seen our kids pictures, listened to our stories.

> They

> tell us " we don't want our child to suffer in this world " and there is no

> convincing them that is not the case. I sometimes think that the decisions

>

> they make are based on what they feel their lives will be like caring for a

>

> child or the shame and embarrassment they may feel having a child that is

> MR.

>

> I cannot tell you how many times I say my thanks that we did not have a

> prenatal diagnosis and were not forced to undergo what some of these

> parents

> nowadays do. Much easier to face whatever someone says when that sweet

> baby

> is in your arms!!

>

> Cheryl in VA

>

> Amen Cheryl. Some parents are unreachable.

Jessie, Mom to , 37 and the light of my life.

[Guest guest]

In a message dated 4/15/02 8:47:41 AM Central Daylight Time, Mom2lfm@...

writes:

> I agree with you wholeheartedly, but be careful what you say here. I got

> some very nasty emails from someone offline when I said I'm so glad I had

> my

> son.

>

> Kathy, Liam's mom(4)

>

What in the world were they thinking???? Hard to believe anyone here

would be that way. Takes all kinds I guess, but some we could do without.

Now they can turn on me.

Jessie, mom of , age 37, the light of my life.

[Guest guest]

I'm glad I had MY son and I don't care who reads it, see it, How they feel

about

it............................................................................

...............

He and my other children are the light of my life and there is no difference

between them

[Guest guest]

Hi! Welcome....I'm Diane and my son is 5. He was born w/ Av Canal

defect, asd,common valve (and they closed his PDA) . He had corrective surgery

at 11 weeks old. You'd never know it (except for his " zipper " on his chest).

Where do you lve? we are in Pennsylvania and his surgery was in New Jersey at

the Deborah Heart and Lung Center.

Having a child w/ DS has made me a much better person. I don't take things for

granted and I have MUCH more patience now than before. LOL

Looking forward to knowing you all better.

Di

[Guest guest]

<<I agree with you wholeheartedly, but be careful what you say here. I got

some very nasty emails from someone offline when I said I'm so glad I had my

son.

Kathy, Liam's mom(4)>>

That is outragous Kathy! This one really has me puzzled!

Gail, mom to Ted (10) and I am very, very VERY, glad I have him!

[Guest guest]

That is so absurd, your son/daughter is your flesh and blood, the people

that sebnd nasty stuff about choosing whethter to keep your child should not

voice that type of opinion anywhere

Re: hello!

> <<I agree with you wholeheartedly, but be careful what you say here. I

got

> some very nasty emails from someone offline when I said I'm so glad I had

my

> son.

>

> Kathy, Liam's mom(4)>>

>

> That is outragous Kathy! This one really has me puzzled!

> Gail, mom to Ted (10) and I am very, very VERY, glad I have him!

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

[Guest guest]

I have to agree with you on that one, I became a much calmer and far more

patience than I had before I had my son Tayler and now I think I need to

Gain a little more with my daughter, Cierra, who is two going on 10

Sherri mom to TAyler 3 1/2 and Cierra 2

Re: hello!

> Hi! Welcome....I'm Diane and my son is 5. He was born w/ Av

Canal defect, asd,common valve (and they closed his PDA) . He had corrective

surgery at 11 weeks old. You'd never know it (except for his " zipper " on his

chest). Where do you lve? we are in Pennsylvania and his surgery was in New

Jersey at the Deborah Heart and Lung Center.

> Having a child w/ DS has made me a much better person. I don't take things

for granted and I have MUCH more patience now than before. LOL

> Looking forward to knowing you all better.

>

> Di

>

>

>

>

[Guest guest]

how funny, my doc made my hubby sit down. He said mom's and babies are

always fine, but dad's hit the floor!!haha

Re: hello!

> I have told this story before but some of you probably haven't

heard

> it. When my daughter was expecting her husband insisted she have an

amnio.

> She said, OK but he'd have to go with her. She called me when it was over

> and said she was fine, the baby was fine, and Ric only needed 15 stitches.

> It seems when they brought out the big needle he knew he was going to be

sick

> so he started for the door and didn't make it. He passed out and hit the

> floor hard. Since he's well over 6 feet tall it was a long way down. He

> said he woke up and saw all these feet in shoes a round him and wondered

why

> they were standing on his bed. The rest of us all felt justice was

served.

> He was a real SOB anyway. they have been divorced now for some years.

>

> Jessie, Mom to , 37 and the light of my life.

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

[Guest guest]

really? Well, they can bring it on. I can take it. haha

Re: hello!

> In a message dated 4/14/2002 6:18:01 PM Eastern Daylight Time,

> kspilious@... writes:

>

> << I wish that somehow

> I could get hooked up where I could talk to people before they make that

> decision. They need to hear from positive people, not just statistics.

>>

>

> ,

>

> I agree with you wholeheartedly, but be careful what you say here. I got

> some very nasty emails from someone offline when I said I'm so glad I had

my

> son.

>

> Kathy, Liam's mom(4)

[Guest guest]

,

I agree with you wholeheartedly, but be careful what you say here. I got

some very nasty emails from someone offline when I said I'm so glad I had my

son.

Kathy, Liam's mom(4)

Kathy,

If someone from this list writes something like that, forward it on to me or

Kathy. I remember making a comment like that when was a baby and

someone got offended, too. Turns out she was still in the grieving process and

with time, she became one heck of an advocate for her child and others with DS.

ps hope no one is afraid to post here......

[Guest guest]

hi lisa,

i think you have found the right place to get answers to alot of your

questions. i myself am mom to ben 17 ds and alex 14 nda. i am involved in a

support group and we have had two new families in the last few months that

have joined because they were expecting a child with ds. i am happy to say

that the on family was thrilled to get as much info as possible and still

attends now after her little boy was born. the other family is still

pregnant so hopefully we are helping them also.

there are a wide range of kids with ds in our group: six months (everyone

wants to hold him so you have to get there early to get in line, lol), three,

four, six, eight, ten, 12 and my ben who is the oldest at 17. i think its

nice to have the new parents see all the different kids, with their different

abilities and strengths. hopefully we have given them so info to get them

started when their baby does arrive. we also have a kit that we have at the

local hospitals that are given to new parents with a ds baby. let me know if

you would be interested and i can see if i can send one to you and your

family.

one thing, we didnt find out our son had ds until he was about four months

old. by that time we loved him so very much that nothing they told us could

ever make a difference. he did have some major heart problems that actually

were diagnosed first so that was our biggest concern. once we were past the

sugeries, life was great!

enjoy you new baby and congrats!

let me know if you ever want to talk. i may be an oldie but i still remember

when my ben was a baby. lol

kerrie mom to ben 17ds and alex 14 nda (but really adhd)

[Guest guest]

Tony,

I hope this works for you. Maybe this will be an answer to prayer.

Carol

rmeeks3230@... wrote:

Hello!

I hope that

this e-mail finds you well! Lydia I'm also in constant prayer for you.

I know it has to be so hard to endure your loss.

Well I have

spent the past 48 hours doing a lot of research and

looking at

all my options and after been in touch with several research centers throught

the country and submiting my situation to them I just heard from Cabrini

Medical Center in New York where Dr Dieterich which is the Chief

of Gastroenterology/Hepatology for the Department of Medicine in

New York

is conducting a clinical trial using the new treatment.

The reason

that I need to move quickly on my situation is because my co-infection

with HIV could make my wait for treatment to be fatal. Since I also have

relatives that live in New York I believe that I'm going to go for it.

I will have to stay in New York for the first 30 days then I can come back

to Atlanta and fly

once a month

for my doctors appointments. I'm meeting with my

liver specialist

tommorow and will talk to my family and pastor. So things a beginning to

look a lot brighter for me again. I'm going to go ahead and go see my grandma

next week and get through a trip to mexico that I have for memorial day

so I'm looking at the begining of june to start. I just wanted to keep

you

updated on

my situation and keep me on your prayers. Take Care!

TONY

[Guest guest]

Tony,

Good for you. You are being positive and taking control. have fun on your trip and good luck, hope you get a lot of good memories. Please keep us posted and don't forget we all care and are here for you.

AIH W.Va.

[Guest guest]

Hello Carol!

I feel extremelly comfortable with the trial since is conducted by

Dr Rieterich since he specialize in cases like mine where a co-infection

exist. He has written several books about hepatitis C and is the president of the Hepatitis Resource Network. I spoke to my family last night and my mother and sisters are going to meet me in New York . I'm

on my way to see Dr Rubin now to discuss this with him. About this nice

weather that we are having here!!! Take Care and have a great day!

TONY

[Guest guest]

Thanks !!!

God Bless,

TONY

[Guest guest]

Tony...

The New York trip sounds very promising....good for you to go out and find the help you need....

I wish you lots of luck in getting what you are looking for...

best wishes

Luanne Ty's mom

[Guest guest]

Tony,

thinking of you,pulling for you,and keeping you in my prayers

blessings

Amber

>From: rmeeks3230@...

>Reply-

>

>Subject: [ ] Hello!

>Date: Thu, 18 Apr 2002 14:56:37 EDT

>

>Hello!

>

>I hope that this e-mail finds you well! Lydia I'm also in constant prayer

>for

>you. I know it has to be so hard to endure your loss.

>Well I have spent the past 48 hours doing a lot of research and

>looking at all my options and after been in touch with several research

>centers throught the country and submiting my situation to them I just

>heard

>from Cabrini Medical Center in New York where Dr Dieterich which is

>the Chief of Gastroenterology/Hepatology for the Department of Medicine in

>New York is conducting a clinical trial using the new treatment.

>The reason that I need to move quickly on my situation is because my

>co-infection with HIV could make my wait for treatment to be fatal. Since I

>also have relatives that live in New York I believe that I'm going to go

>for

>it. I will have to stay in New York for the first 30 days then I can come

>back to Atlanta and fly

>once a month for my doctors appointments. I'm meeting with my

>liver specialist tommorow and will talk to my family and pastor. So things

>a

>beginning to look a lot brighter for me again. I'm going to go ahead and go

>see my grandma next week and get through a trip to mexico that I have for

>memorial day so I'm looking at the begining of june to start. I just wanted

>to keep you

>updated on my situation and keep me on your prayers. Take Care!

>

>TONY

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

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[Guest guest]

Thanks Luanne!

Tony

[Guest guest]

Thank You Amber!

That is very sweet!

TONY

[Guest guest]

Tony,

that is wonderful news. My goodness, this place sure has gotten busy

lately. It's so hard to keep up. My very best wishes to you! You

remind me to keep the faith when I thhink I " m losing it. Laurie

>

> > Hello!

> >

> > I hope that this e-mail finds you well! Lydia I'm also in constant

> > prayer for you. I know it has to be so hard to endure your loss.

> > Well I have spent the past 48 hours doing a lot of research and

> > looking at all my options and after been in touch with several

> > research centers throught the country and submiting my situation

to

> > them I just heard from Cabrini Medical Center in New York where Dr

> > Dieterich which is the Chief of

Gastroenterology/Hepatology

> > for the Department of Medicine in

> > New York is conducting a clinical trial using the new treatment.

> > The reason that I need to move quickly on my situation is because

my

> > co-infection with HIV could make my wait for treatment to be

fatal.

> > Since I also have relatives that live in New York I believe that

I'm

> > going to go for it. I will have to stay in New York for the first

30

> > days then I can come back to Atlanta and fly

> > once a month for my doctors appointments. I'm meeting with my

> > liver specialist tommorow and will talk to my family and pastor.

So

> > things a beginning to look a lot brighter for me again. I'm going

to

> > go ahead and go see my grandma next week and get through a trip to

> > mexico that I have for memorial day so I'm looking at the

begining of

> > june to start. I just wanted to keep you

> > updated on my situation and keep me on your prayers. Take Care!

> >

> > TONY

> >

[Guest guest]

Thank You Laurie!

I hope things are going well for you. Take Care!

TONY

[Guest guest]

Tony, best wishes in your preparations for this shower. A cake in the shape of Noah's ark. That will be interesting.. You sure do seem to have the energy..I am so glad to hear you are feeling up to doing these things.. You put me to shame though.. Take care and let us know how the shower goes.

Lyn in Ark

rmeeks3230@... wrote: Hello!I truly hope that everyone is doing okay. My mailbox is loaded and I been trying to read all the e-mail but I just got drafted toprepare the reception for a baby shower that we are giving to a member of our church next saturday and is keeping me quite busy. I'm making all the remembrances , baby letters to guest, invitations and will be baking a cake in the shape of noah's ark but I promise to answer them. Luanne I also missed your post onTy so don't know the situation but you are in my prayers. Everybody I promise to answer once I get thru my little rush here. The baby shower is for a good friend; she is not married since the gentleman, if I can call him that, failed to acknowledgehis responsibility as a father so I want something special for heras a way for me to visually show her that is going to be okay andlive goes on and the world is still a beautiful place regarless of how some people try to make it otherwise. Wish me luck with allmy preparations. God Bless You !Tony

[Guest guest]

Dear Tony,

Wow! I am sure it will be a wonderful

event! Hope you are feeling much better!

[ ] Hello!

Hello!

I truly hope that everyone is doing okay. My mailbox is loaded and I been

trying to read all the e-mail but I just got drafted to

prepare the reception for a baby shower that we are giving to a member of our

church next saturday and is keeping me quite busy. I'm making all the

remembrances , baby letters to guest, invitations and will be baking a cake in

the shape of noah's ark but I promise to answer them. Luanne I also missed your

post on

Ty so don't know the situation but you are in my prayers. Everybody I promise

to answer once I get thru my little rush here. The baby shower is for a good

friend; she is not married since the gentleman, if I can call him that, failed

to acknowledge

his responsibility as a father so I want something special for her

as a way for me to visually show her that is going to be okay and

live goes on and the world is still a beautiful place regarless of how some

people try to make it otherwise. Wish me luck with all

my preparations. God Bless You !

Tony

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[Guest guest]

Good Morning Lyn!

I hope everything is going well with you. I actually done the cake

once before for one of my sisters and it came out really pretty. This one has to be a bit bigger because there is more people but

I'm just going to take my time so everything will come out right. Since I already have everything in order for my trip to New York; I just wanted to keep my mind occupied in between and at the same time be there for my friend Cheryl. I promise not to overdo

myself ! Take Care!

Tony

[Guest guest]

Tony It is so good to have you back again you are always missed when we don't hear from you. Oh how I wish I lived closer to you it amazes me how you manage to do so much for other people and how much you give of yourself that is a true gift I am just a bit jealous lol.I would love to see the cake that you are going to make it is a work of love. Please take care of yourself during this busy time. Love and Hugs Jeanette UK AIH dx 1998 Cirrhosis dx2001

rmeeks3230@... wrote: Hello!I truly hope that everyone is doing okay. My mailbox is loaded and I been trying to read all the e-mail but I just got drafted toprepare the reception for a baby shower that we are giving to a member of our church next saturday and is keeping me quite busy. I'm making all the remembrances , baby letters to guest, invitations and will be baking a cake in the shape of noah's ark but I promise to answer them. Luanne I also missed your post onTy so don't know the situation but you are in my prayers. Everybody I promise to answer once I get thru my little rush here. The baby shower is for a good friend; she is not married since the gentleman, if I can call him that, failed to acknowledgehis responsibility as a father so I want something special for heras a way for me to visually show her that is going to be okay andlive goes on and the world is still a beautiful place regarless of how some people try to make it otherwise. Wish me luck with allmy preparations. God Bless You !Tony