update

[Guest guest]

I know you have said this in the past. So you do not believe that the PRA has to

be => 20. Problem is most will tell you it has to be => 20 before you have PA.

What do you use for difference and how would teach others that your numbers may

be more right then standard ratio.

Other then 's Dr I don't think there is any other Dr at the WRJ VA that has

clue about PA. Don't know how it should be done but there has to be a way to

teach all Dr at this VA what PA is.

> > >

> > > > Just wanted to update you on my quest. Still no diagnosis. The

> > > > doctor did the ACTH stim test and checked only cortisol levels

> > which

> > > > were 7.5 at 8 am, then 19.6 at 30 min and then 22.6 at 60 min.

> > They

> > > > said it was normal. Have not gone to see the doc again yet. My

> > > > deoxycortisol previous to test was 99 (norm under52) and

> > > > deoxycorticosterone was 33 (norm less than 10). So to me, she did

> > > > not check the deoxycortisol or the ACTH to start with. Not sure it

> > > > gave me any other clues. It is obvious that the precursers to

> > > > cortisol and aldosterone are high but cortisol and aldosterone are

> > > > normal. Any advice to talk to the doctor about would be great. If

> > > > she writes me off, I am going to see about the NIH trial.

> > > > Good news, off Spiro and on DASH, very good at keeping the NA down

> > > > to under 1500mg and K to as close to 4700 as I can each day and my

> > > > BP is 114/70 avg. No BP meds at all. I have been feeling weak

> > again

> > > > and palpitations, so not sure if my K is still normal. Has not

> > been

> > > > tested in 2 months. Stacey

> > > > Thumbnail:

> > > > I have low renin, normal Aldo, low K, high deoxycoticosterone and

> > > > deoxycortisol. Sxs like everyone else. Also have hypothyroid,

> > > > hypogammaglobulinemia, 24/7 headache for 3.5 years. High BP but

> > > > labile, can go low and I had 2 near syncopal episodes. Last

> > > > treatment has been on Spiro and BP running 136/86. Taking 40 meq k

> > > > daily. Last Renin was less than .15 and Aldo was 12. Has not been

> > > > tested in many months. K was at 4.0 which was the highest in 3

> > years

> > > > last time it was tested. MRI done 2 years ago, normal adrenals.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I know you have said this in the past. So you do not believe that the PRA has to

be => 20. Problem is most will tell you it has to be => 20 before you have PA.

What do you use for difference and how would teach others that your numbers may

be more right then standard ratio.

Other then 's Dr I don't think there is any other Dr at the WRJ VA that has

clue about PA. Don't know how it should be done but there has to be a way to

teach all Dr at this VA what PA is.

> > >

> > > > Just wanted to update you on my quest. Still no diagnosis. The

> > > > doctor did the ACTH stim test and checked only cortisol levels

> > which

> > > > were 7.5 at 8 am, then 19.6 at 30 min and then 22.6 at 60 min.

> > They

> > > > said it was normal. Have not gone to see the doc again yet. My

> > > > deoxycortisol previous to test was 99 (norm under52) and

> > > > deoxycorticosterone was 33 (norm less than 10). So to me, she did

> > > > not check the deoxycortisol or the ACTH to start with. Not sure it

> > > > gave me any other clues. It is obvious that the precursers to

> > > > cortisol and aldosterone are high but cortisol and aldosterone are

> > > > normal. Any advice to talk to the doctor about would be great. If

> > > > she writes me off, I am going to see about the NIH trial.

> > > > Good news, off Spiro and on DASH, very good at keeping the NA down

> > > > to under 1500mg and K to as close to 4700 as I can each day and my

> > > > BP is 114/70 avg. No BP meds at all. I have been feeling weak

> > again

> > > > and palpitations, so not sure if my K is still normal. Has not

> > been

> > > > tested in 2 months. Stacey

> > > > Thumbnail:

> > > > I have low renin, normal Aldo, low K, high deoxycoticosterone and

> > > > deoxycortisol. Sxs like everyone else. Also have hypothyroid,

> > > > hypogammaglobulinemia, 24/7 headache for 3.5 years. High BP but

> > > > labile, can go low and I had 2 near syncopal episodes. Last

> > > > treatment has been on Spiro and BP running 136/86. Taking 40 meq k

> > > > daily. Last Renin was less than .15 and Aldo was 12. Has not been

> > > > tested in many months. K was at 4.0 which was the highest in 3

> > years

> > > > last time it was tested. MRI done 2 years ago, normal adrenals.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Not PRA BUT Aldo/renin ratio. I would send the director of the VA THE article from the UC DAVIS VA and suggest his staff. Reds an update. Perhaps both u and JC should send the letter. Would copy to chief of Internal Med, cardiology, Endo and Nephro. Might so send note to your Senator and congressman. Include my evolution article as well. Would be happy to write a cover letter with you both. Indeed I recall JC DXED another vet with PA but don't recall follow up. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 5:22, Francis Bill SUSPECTED PA <georgewbill@...> wrote:

I know you have said this in the past. So you do not believe that the PRA has to be => 20. Problem is most will tell you it has to be => 20 before you have PA. What do you use for difference and how would teach others that your numbers may be more right then standard ratio.

Other then 's Dr I don't think there is any other Dr at the WRJ VA that has clue about PA. Don't know how it should be done but there has to be a way to teach all Dr at this VA what PA is.

> > >

> > > > Just wanted to update you on my quest. Still no diagnosis. The

> > > > doctor did the ACTH stim test and checked only cortisol levels

> > which

> > > > were 7.5 at 8 am, then 19.6 at 30 min and then 22.6 at 60 min.

> > They

> > > > said it was normal. Have not gone to see the doc again yet. My

> > > > deoxycortisol previous to test was 99 (norm under52) and

> > > > deoxycorticosterone was 33 (norm less than 10). So to me, she did

> > > > not check the deoxycortisol or the ACTH to start with. Not sure it

> > > > gave me any other clues. It is obvious that the precursers to

> > > > cortisol and aldosterone are high but cortisol and aldosterone are

> > > > normal. Any advice to talk to the doctor about would be great. If

> > > > she writes me off, I am going to see about the NIH trial.

> > > > Good news, off Spiro and on DASH, very good at keeping the NA down

> > > > to under 1500mg and K to as close to 4700 as I can each day and my

> > > > BP is 114/70 avg. No BP meds at all. I have been feeling weak

> > again

> > > > and palpitations, so not sure if my K is still normal. Has not

> > been

> > > > tested in 2 months. Stacey

> > > > Thumbnail:

> > > > I have low renin, normal Aldo, low K, high deoxycoticosterone and

> > > > deoxycortisol. Sxs like everyone else. Also have hypothyroid,

> > > > hypogammaglobulinemia, 24/7 headache for 3.5 years. High BP but

> > > > labile, can go low and I had 2 near syncopal episodes. Last

> > > > treatment has been on Spiro and BP running 136/86. Taking 40 meq k

> > > > daily. Last Renin was less than .15 and Aldo was 12. Has not been

> > > > tested in many months. K was at 4.0 which was the highest in 3

> > years

> > > > last time it was tested. MRI done 2 years ago, normal adrenals.

> > > >

> > > >

> > >

> >

> >

>