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kirk,

Have you ever heard of a PFO it's a small hole in between the right and left

ventricles of the heart that a lot of people are born with but as we get

older, in some people, these holes get bigger and one of the major signs

that there is a problem with this hole is headaches that nothing will touch.

There is a test that cardiologist do called a TEE that can see if you have

this or not. It might be worth looking into. It could be that you have

both stills and this other problem. We have a friend that has this and he

can't get rid of his migraines without medical maj. He may have a surgery to

close this hole up. There is a headache clinic in Michigan that works with a

cardiologist that specializes in this. It's in Ann Arbor. It might be

really worth looking into.

Anyway - just something to think about.

Good luck - hang in there

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Guest guest

I don't know which specific tests I've had done, but I know my heart was

one of the first things tested & everything was good, soo......., Thanks for

the shot anyway, Kirk.

>

> kirk,

>

>

> Have you ever heard of a PFO it's a small hole in between the right and

> left

> ventricles of the heart that a lot of people are born with but as we get

> older, in some people, these holes get bigger and one of the major signs

> that there is a problem with this hole is headaches that nothing will

> touch.

> There is a test that cardiologist do called a TEE that can see if you have

> this or not. It might be worth looking into. It could be that you have

> both stills and this other problem. We have a friend that has this and he

> can't get rid of his migraines without medical maj. He may have a surgery

> to

> close this hole up. There is a headache clinic in Michigan that works with

> a

> cardiologist that specializes in this. It's in Ann Arbor. It might be

> really worth looking into.

> Anyway - just something to think about.

> Good luck - hang in there

>

>

>

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Guest guest

I don't know which specific tests I've had done, but I know my heart was

one of the first things tested & everything was good, soo......., Thanks for

the shot anyway, Kirk.

>

> kirk,

>

>

> Have you ever heard of a PFO it's a small hole in between the right and

> left

> ventricles of the heart that a lot of people are born with but as we get

> older, in some people, these holes get bigger and one of the major signs

> that there is a problem with this hole is headaches that nothing will

> touch.

> There is a test that cardiologist do called a TEE that can see if you have

> this or not. It might be worth looking into. It could be that you have

> both stills and this other problem. We have a friend that has this and he

> can't get rid of his migraines without medical maj. He may have a surgery

> to

> close this hole up. There is a headache clinic in Michigan that works with

> a

> cardiologist that specializes in this. It's in Ann Arbor. It might be

> really worth looking into.

> Anyway - just something to think about.

> Good luck - hang in there

>

>

>

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Guest guest

I don't know which specific tests I've had done, but I know my heart was

one of the first things tested & everything was good, soo......., Thanks for

the shot anyway, Kirk.

>

> kirk,

>

>

> Have you ever heard of a PFO it's a small hole in between the right and

> left

> ventricles of the heart that a lot of people are born with but as we get

> older, in some people, these holes get bigger and one of the major signs

> that there is a problem with this hole is headaches that nothing will

> touch.

> There is a test that cardiologist do called a TEE that can see if you have

> this or not. It might be worth looking into. It could be that you have

> both stills and this other problem. We have a friend that has this and he

> can't get rid of his migraines without medical maj. He may have a surgery

> to

> close this hole up. There is a headache clinic in Michigan that works with

> a

> cardiologist that specializes in this. It's in Ann Arbor. It might be

> really worth looking into.

> Anyway - just something to think about.

> Good luck - hang in there

>

>

>

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  • 2 months later...
Guest guest

Kirk,

I too am starting kinerete..one shot a day.  and I got the medrol and

methotrexate again after this last flare up..keep me informed on how the kineret

goes for you

Diane..42

p.s. $270.06 for a months supply..and they dont know if it will help...I am

looking to see if there is a program to get it free...there was one for enbral

but that wasnt helping me

Update

Apparantley I'm in a major flare. The reason my RD wanted me their this

morning is that he will be off for the next 3 weeks, so I owe him on that

one. He wants me to start on Kineret (another roller coaster ride from

hell??) along with jacking my prdnisone through the roof for a short time.

He took countless x-rays and gallons of blood. All went well until the ride

home (I made it there this morning quickly....102 miles in 78 minutes...a

rather slow pace by my standards!) but on the way home my headache was in

top form and I had double vision the whole way. It took me just over 3 hours

to get home as I had to keep stopping....that or wrap the wifes' car around

a tree or something like that.

Now I am going to lay down for a bit, and hopefully will be able to go to

the football camp tonight. I only slept 2.5-3 hours last night...and I'm

paying for it.

--

Everything in life sucks except things that should!

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Guest guest

Kirk,

I too am starting kinerete..one shot a day.  and I got the medrol and

methotrexate again after this last flare up..keep me informed on how the kineret

goes for you

Diane..42

p.s. $270.06 for a months supply..and they dont know if it will help...I am

looking to see if there is a program to get it free...there was one for enbral

but that wasnt helping me

Update

Apparantley I'm in a major flare. The reason my RD wanted me their this

morning is that he will be off for the next 3 weeks, so I owe him on that

one. He wants me to start on Kineret (another roller coaster ride from

hell??) along with jacking my prdnisone through the roof for a short time.

He took countless x-rays and gallons of blood. All went well until the ride

home (I made it there this morning quickly....102 miles in 78 minutes...a

rather slow pace by my standards!) but on the way home my headache was in

top form and I had double vision the whole way. It took me just over 3 hours

to get home as I had to keep stopping....that or wrap the wifes' car around

a tree or something like that.

Now I am going to lay down for a bit, and hopefully will be able to go to

the football camp tonight. I only slept 2.5-3 hours last night...and I'm

paying for it.

--

Everything in life sucks except things that should!

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Guest guest

Thank GOD I have state prescription assistence! I will be paying $5.40 as

my co-pay.

Hope to catch you all later, I'm dragging my weary ass to coach @ football

camp. I'm a glutton for a punishment!

Kirk.

2008/6/5 :

> Kirk,

> I too am starting kinerete..one shot a day. and I got the medrol and

> methotrexate again after this last flare up..keep me informed on how the

> kineret goes for you

>

> Diane..42

>

> p.s. $270.06 for a months supply..and they dont know if it will help...I am

> looking to see if there is a program to get it free...there was one for

> enbral but that wasnt helping me

>

>

> Update

>

> Apparantley I'm in a major flare. The reason my RD wanted me their this

>

> morning is that he will be off for the next 3 weeks, so I owe him on that

>

> one. He wants me to start on Kineret (another roller coaster ride from

>

> hell??) along with jacking my prdnisone through the roof for a short time.

>

> He took countless x-rays and gallons of blood. All went well until the ride

>

> home (I made it there this morning quickly....102 miles in 78 minutes...a

>

> rather slow pace by my standards!) but on the way home my headache was in

>

> top form and I had double vision the whole way. It took me just over 3

> hours

>

> to get home as I had to keep stopping....that or wrap the wifes' car around

>

> a tree or something like that.

>

> Now I am going to lay down for a bit, and hopefully will be able to go to

>

> the football camp tonight. I only slept 2.5-3 hours last night...and I'm

>

> paying for it.

>

> --

>

> Everything in life sucks except things that should!

>

>

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Guest guest

Thank GOD I have state prescription assistence! I will be paying $5.40 as

my co-pay.

Hope to catch you all later, I'm dragging my weary ass to coach @ football

camp. I'm a glutton for a punishment!

Kirk.

2008/6/5 :

> Kirk,

> I too am starting kinerete..one shot a day. and I got the medrol and

> methotrexate again after this last flare up..keep me informed on how the

> kineret goes for you

>

> Diane..42

>

> p.s. $270.06 for a months supply..and they dont know if it will help...I am

> looking to see if there is a program to get it free...there was one for

> enbral but that wasnt helping me

>

>

> Update

>

> Apparantley I'm in a major flare. The reason my RD wanted me their this

>

> morning is that he will be off for the next 3 weeks, so I owe him on that

>

> one. He wants me to start on Kineret (another roller coaster ride from

>

> hell??) along with jacking my prdnisone through the roof for a short time.

>

> He took countless x-rays and gallons of blood. All went well until the ride

>

> home (I made it there this morning quickly....102 miles in 78 minutes...a

>

> rather slow pace by my standards!) but on the way home my headache was in

>

> top form and I had double vision the whole way. It took me just over 3

> hours

>

> to get home as I had to keep stopping....that or wrap the wifes' car around

>

> a tree or something like that.

>

> Now I am going to lay down for a bit, and hopefully will be able to go to

>

> the football camp tonight. I only slept 2.5-3 hours last night...and I'm

>

> paying for it.

>

> --

>

> Everything in life sucks except things that should!

>

>

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Guest guest

In a message dated 6/5/2008 7:13:21 P.M. Eastern Daylight Time,

stills_stinks@... writes:

wow your both lucky my doc wanted me try kinerete but my insharnace would

not cover it so my cost was about $1400.00 a month. well I only have about 200

less then that to live on so it was out of the game before it was even tryied

as to me why try some thing and have it work only to not be able later to

use it after 6 months as that is all I could get help for to pay for it.

the rednecks

Marty & G.

Have you checked with the company that makes Kineret? I get my Kineret for

free as I don't have insurance. One time when they were waitin for re-upping my

paper work, I didn't have any for 10 days and boy or boy could I tell the

difference. If you need more info, just write.

Carole from Hollywood FL

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

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Guest guest

wow your both lucky my doc wanted me try kinerete but my insharnace would not

cover it so my cost was about $1400.00 a month. well I only have about 200 less

then that to live on so it was out of the game before it was even tryied as to

me why try some thing and have it work only to not be able later to use it after

6 months as that is all I could get help for to pay for it.

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

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Guest guest

My insurance covered it or else I was going to pay 1500.00 also...that is

ridiculus..there are programs out there because I got the enbral free..

pf you need a number to find out,i got one from the dr. and on this kinerate i

MIGHT get reimbursed..who knows

me..42

Re: Update

In a message dated 6/5/2008 7:13:21 P.M. Eastern Daylight Time,

stills_stinks@... writes:

wow your both lucky my doc wanted me try kinerete but my insharnace would

not cover it so my cost was about $1400.00 a month. well I only have about 200

less then that to live on so it was out of the game before it was even tryied

as to me why try some thing and have it work only to not be able later to

use it after 6 months as that is all I could get help for to pay for it.

the rednecks

Marty & G.

Have you checked with the company that makes Kineret? I get my Kineret for

free as I don't have insurance. One time when they were waitin for re-upping my

paper work, I didn't have any for 10 days and boy or boy could I tell the

difference. If you need more info, just write.

Carole from Hollywood FL

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

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Guest guest

There are numbers on our web site that direct you to the Companies that

provide free drugs?

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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Guest guest

Also if you go to the web site and click on each item in the index you would

be surprised at what you might find??

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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Guest guest

Also if you go to the web site and click on each item in the index you would

be surprised at what you might find??

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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Guest guest

Marty, have you ever applied for assistance? I know it is probably a dumb

question, but seek out everything you can! I was quite successful prior to

getting Stills only to see almost my entire lifes' worth disappear in real

short order. Now I am grateful that there is at least some helpfor us out

there, but they sure don't make it easy to find. My current 'script

costsince January until 5-31-08 was already over $6,000.00!!! There is no

way possible that I could pay for even 25% of that.

I feel for you man, I don't know what I'd do if I couldn't get it as I'm

a total mess, and have been for as long as I can remember. Get on the phone

with your State Health Agencies, call the pharmaceutical companies, call

your state Reps & Senators..whatever it takes.

I'm just hoping that I don't go downhill like I did on Enbrel, but my RD

held off as long a he could with me taking these things. Kirk.

2008/6/5 Marty :

> wow your both lucky my doc wanted me try kinerete but my insharnace would

> not cover it so my cost was about $1400.00 a month. well I only have about

> 200 less then that to live on so it was out of the game before it was even

> tryied as to me why try some thing and have it work only to not be able

> later to use it after 6 months as that is all I could get help for to pay

> for it.

>

>

> the rednecks

> Marty & G.

> Stills ; An illness I know to well!

> To learn about Stills http://www.stillsdisease.org/stills_info

> and Hancock:

> We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

>

> :

> " The general principles upon which the Fathers achieved independence were

> the general principals of Christianity... I will avow that I believed and

> now believe that those general principles of Christianity are as eternal and

> immutable as the existence and attributes of God. "

> • " [July 4th] ought to be commemorated as the day of deliverance by solemn

> acts of devotion to God Almighty. "

> – in a letter written to Abigail on the day the Declaration was

> approved by Congress

>

> Jefferson

> God who gave us life gave us liberty. And can the liberties of a nation be

> thought secure when we have removed their only firm basis, a conviction in

> the minds of the people that these liberties are a gift from God? That they

> are not to be violated but with His wrath? Indeed I tremble for my country

> when I reflect that God is just, and that His justice cannot sleep forever. "

> (excerpts are inscribed on the walls of the Jefferson Memorial in the

> nations capital)

>

>

>

>

>

>

>

>

>

>

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Guest guest

Marty, have you ever applied for assistance? I know it is probably a dumb

question, but seek out everything you can! I was quite successful prior to

getting Stills only to see almost my entire lifes' worth disappear in real

short order. Now I am grateful that there is at least some helpfor us out

there, but they sure don't make it easy to find. My current 'script

costsince January until 5-31-08 was already over $6,000.00!!! There is no

way possible that I could pay for even 25% of that.

I feel for you man, I don't know what I'd do if I couldn't get it as I'm

a total mess, and have been for as long as I can remember. Get on the phone

with your State Health Agencies, call the pharmaceutical companies, call

your state Reps & Senators..whatever it takes.

I'm just hoping that I don't go downhill like I did on Enbrel, but my RD

held off as long a he could with me taking these things. Kirk.

2008/6/5 Marty :

> wow your both lucky my doc wanted me try kinerete but my insharnace would

> not cover it so my cost was about $1400.00 a month. well I only have about

> 200 less then that to live on so it was out of the game before it was even

> tryied as to me why try some thing and have it work only to not be able

> later to use it after 6 months as that is all I could get help for to pay

> for it.

>

>

> the rednecks

> Marty & G.

> Stills ; An illness I know to well!

> To learn about Stills http://www.stillsdisease.org/stills_info

> and Hancock:

> We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

>

> :

> " The general principles upon which the Fathers achieved independence were

> the general principals of Christianity... I will avow that I believed and

> now believe that those general principles of Christianity are as eternal and

> immutable as the existence and attributes of God. "

> • " [July 4th] ought to be commemorated as the day of deliverance by solemn

> acts of devotion to God Almighty. "

> – in a letter written to Abigail on the day the Declaration was

> approved by Congress

>

> Jefferson

> God who gave us life gave us liberty. And can the liberties of a nation be

> thought secure when we have removed their only firm basis, a conviction in

> the minds of the people that these liberties are a gift from God? That they

> are not to be violated but with His wrath? Indeed I tremble for my country

> when I reflect that God is just, and that His justice cannot sleep forever. "

> (excerpts are inscribed on the walls of the Jefferson Memorial in the

> nations capital)

>

>

>

>

>

>

>

>

>

>

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Guest guest

Kirk

 thanks for the ideas but we already have tried that rout. my problem is even

thow I get SSDI it is just enough over there limits to kill me. I even asked

them to cut my pay by 50 dollars a month. then I could get all kinds of help but

that was a no go so here i make just over there line but not enough to get any

of the help I need . just a sucky boat to be in . we are hoping that when the

wife is out of school and working that with any covrage she has with mine then

may be I can get the meds I should be one . so if it is cheap right now then I

get it but thanks for the thought . 

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Update

  Marty, have you ever applied for assistance? I know it is probably a dumb

question, but seek out everything you can! I was quite successful prior to

getting Stills only to see almost my entire lifes' worth disappear in real

short order. Now I am grateful that there is at least some helpfor us out

there, but they sure don't make it easy to find. My current 'script

costsince January until 5-31-08 was already over $6,000.00!!! There is no

way possible that I could pay for even 25% of that.

  I feel for you man, I don't know what I'd do if I couldn't get it as I'm

a total mess, and have been for as long as I can remember. Get on the phone

with your State Health Agencies, call the pharmaceutical companies, call

your state Reps & Senators..whatever it takes.

  I'm just hoping that I don't go downhill like I did on Enbrel, but my RD

held off as long a he could with me taking these things. Kirk.

2008/6/5 Marty :

> wow your both lucky my doc wanted me try kinerete but my insharnace would

> not cover it so my cost was about $1400.00 a month. well I only have about

> 200 less then that to live on so it was out of the game before it was even

> tryied as to me why try some thing and have it work only to not be able

> later to use it after 6 months as that is all I could get help for to pay

> for it.

>

>

> the  rednecks

> Marty & G.

>  Stills ; An illness I know to well!

> To learn about Stills  http://www.stillsdisease.org/stills_info

>  and Hancock:

> We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

>

> :

> " The general principles upon which the Fathers achieved independence were

> the general principals of Christianity... I will avow that I believed and

> now believe that those general principles of Christianity are as eternal and

> immutable as the existence and attributes of God. "

> • " [July 4th] ought to be commemorated as the day of deliverance by solemn

> acts of devotion to God Almighty. "

> – in a letter written to Abigail on the day the Declaration was

> approved by Congress

>

> Jefferson

> God who gave us life gave us liberty. And can the liberties of a nation be

> thought secure when we have removed their only firm basis, a conviction in

> the minds of the people that these liberties are a gift from God? That they

> are not to be violated but with His wrath? Indeed I tremble for my country

> when I reflect that God is just, and that His justice cannot sleep forever. "

> (excerpts are inscribed on the walls of the Jefferson Memorial in the

> nations capital)

>

>

>

>

>

>

>

>

>

>

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Guest guest

Kirk

 thanks for the ideas but we already have tried that rout. my problem is even

thow I get SSDI it is just enough over there limits to kill me. I even asked

them to cut my pay by 50 dollars a month. then I could get all kinds of help but

that was a no go so here i make just over there line but not enough to get any

of the help I need . just a sucky boat to be in . we are hoping that when the

wife is out of school and working that with any covrage she has with mine then

may be I can get the meds I should be one . so if it is cheap right now then I

get it but thanks for the thought . 

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Update

  Marty, have you ever applied for assistance? I know it is probably a dumb

question, but seek out everything you can! I was quite successful prior to

getting Stills only to see almost my entire lifes' worth disappear in real

short order. Now I am grateful that there is at least some helpfor us out

there, but they sure don't make it easy to find. My current 'script

costsince January until 5-31-08 was already over $6,000.00!!! There is no

way possible that I could pay for even 25% of that.

  I feel for you man, I don't know what I'd do if I couldn't get it as I'm

a total mess, and have been for as long as I can remember. Get on the phone

with your State Health Agencies, call the pharmaceutical companies, call

your state Reps & Senators..whatever it takes.

  I'm just hoping that I don't go downhill like I did on Enbrel, but my RD

held off as long a he could with me taking these things. Kirk.

2008/6/5 Marty :

> wow your both lucky my doc wanted me try kinerete but my insharnace would

> not cover it so my cost was about $1400.00 a month. well I only have about

> 200 less then that to live on so it was out of the game before it was even

> tryied as to me why try some thing and have it work only to not be able

> later to use it after 6 months as that is all I could get help for to pay

> for it.

>

>

> the  rednecks

> Marty & G.

>  Stills ; An illness I know to well!

> To learn about Stills  http://www.stillsdisease.org/stills_info

>  and Hancock:

> We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

>

> :

> " The general principles upon which the Fathers achieved independence were

> the general principals of Christianity... I will avow that I believed and

> now believe that those general principles of Christianity are as eternal and

> immutable as the existence and attributes of God. "

> • " [July 4th] ought to be commemorated as the day of deliverance by solemn

> acts of devotion to God Almighty. "

> – in a letter written to Abigail on the day the Declaration was

> approved by Congress

>

> Jefferson

> God who gave us life gave us liberty. And can the liberties of a nation be

> thought secure when we have removed their only firm basis, a conviction in

> the minds of the people that these liberties are a gift from God? That they

> are not to be violated but with His wrath? Indeed I tremble for my country

> when I reflect that God is just, and that His justice cannot sleep forever. "

> (excerpts are inscribed on the walls of the Jefferson Memorial in the

> nations capital)

>

>

>

>

>

>

>

>

>

>

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Guest guest

Carole and me ...42

 when i looked in to it I was under the imprestion they would only give it to me

for 6 months. do you mean to tell me they will go longer? see if it is only 6

month as I have been told then it is not worth it to even try it for me but a

year or more well that changes things !

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Update

In a message dated 6/5/2008 7:13:21 P.M. Eastern Daylight Time,

stills_stinks@ yahoo.com writes:

wow your both lucky my doc wanted me try kinerete but my insharnace would

not cover it so my cost was about $1400.00 a month. well I only have about 200

less then that to live on so it was out of the game before it was even tryied

as to me why try some thing and have it work only to not be able later to

use it after 6 months as that is all I could get help for to pay for it.

the rednecks

Marty & G.

Have you checked with the company that makes Kineret? I get my Kineret for

free as I don't have insurance. One time when they were waitin for re-upping my

paper work, I didn't have any for 10 days and boy or boy could I tell the

difference. If you need more info, just write.

Carole from Hollywood FL

************ **Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food. aol.com/tyler- florence? video=4? & NCID=aolfod00030 000000002)

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Share on other sites

Guest guest

Carole and me ...42

 when i looked in to it I was under the imprestion they would only give it to me

for 6 months. do you mean to tell me they will go longer? see if it is only 6

month as I have been told then it is not worth it to even try it for me but a

year or more well that changes things !

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Update

In a message dated 6/5/2008 7:13:21 P.M. Eastern Daylight Time,

stills_stinks@ yahoo.com writes:

wow your both lucky my doc wanted me try kinerete but my insharnace would

not cover it so my cost was about $1400.00 a month. well I only have about 200

less then that to live on so it was out of the game before it was even tryied

as to me why try some thing and have it work only to not be able later to

use it after 6 months as that is all I could get help for to pay for it.

the rednecks

Marty & G.

Have you checked with the company that makes Kineret? I get my Kineret for

free as I don't have insurance. One time when they were waitin for re-upping my

paper work, I didn't have any for 10 days and boy or boy could I tell the

difference. If you need more info, just write.

Carole from Hollywood FL

************ **Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food. aol.com/tyler- florence? video=4? & NCID=aolfod00030 000000002)

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Share on other sites

Guest guest

The enbral program was only for 6 months free..then I think I was going to have

to pay...but enbral didnt work for me..I am now trying kineret but I think that

is the same company and when I called them they said they might have a program

for the kineret

in the a.m. I can get you their number

me..42

Carole and me ...42

 when i looked in to it I was under the imprestion they would only give it to

me

for 6 months. do you mean to tell me they will go longer? see if it is only 6

month as I have been told then it is not worth it to even try it for me but a

year or more well that changes things !

 

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Share on other sites

Guest guest

The enbral program was only for 6 months free..then I think I was going to have

to pay...but enbral didnt work for me..I am now trying kineret but I think that

is the same company and when I called them they said they might have a program

for the kineret

in the a.m. I can get you their number

me..42

Carole and me ...42

 when i looked in to it I was under the imprestion they would only give it to

me

for 6 months. do you mean to tell me they will go longer? see if it is only 6

month as I have been told then it is not worth it to even try it for me but a

year or more well that changes things !

 

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Share on other sites

Guest guest

good old calif. as they take into count for the county what my step son make and

what the other step son gets in ssi. even tho that is not my money and the ones

has nothing to do with the house as it is so small he can hardly pay his bills

but come dec when the other one loses his ssi things may change. they also count

there money but if there over 18 they do not count as people your taking care

off . but then again I live in one very poor area and there is so so many on the

help or trying to get it and being a white male I have seen the ugly side of

discrimination. as a white male under 50 I have been made to feel I should be

working even my SSI lawyer told me I would get to see and feel it boy was she

right!. when it is all said and done food stamps are out because what the kids

make even tho it is not our money or the houses and they give what they can but

it its very lite and on only give because we charge him for rent as he dropped

out of collage

. but he is the only one that never gives extra and to be honest I would not

care if he left and being a step day I hate saying that even my son who is not

working no income  gave us part of his tax return and all of his stimulus check

but the other one went out and bought a x box so he now has one of each brand.

told my son he was crazy to give it to us. and now can not come up with his

share of the car insurance but I can not cut him a mom go's nuts if i say any

thing she is over protective of him and I understand see he was molested by his

bio father for over three years before it was found out. but some day he needs

to grow up and she has to stop blaming her self as it is doing no good for

either. but his income hurts us  the step daughter gets some welfare help and

her welfare money then also counts ageist us but that money is for her baby and

her needs like diapers and such I am one of the lucky ones that falls in between

the creaks of the

system as how they count things one dose it this way another that way but each

is to limit who gets on the rolls and yet it cost to feed 6 adults and one baby.

o well I know things will get better . the wife will be going into CPS in about

one more year . she has been a single mother for almost 30 years has had to be

on welfare and help and gets so made because of how it now works . if the kids

were younger then we would get help but they can not afford to move out and go

to collage so what are they to do take low paying jobs and never get ahead or

struggle with us and get ahead in life .I want them to get ahead as then the day

comes they can take care of us and not just pick out the home we will be placed

in LOL.

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

Link to comment
Share on other sites

Guest guest

good old calif. as they take into count for the county what my step son make and

what the other step son gets in ssi. even tho that is not my money and the ones

has nothing to do with the house as it is so small he can hardly pay his bills

but come dec when the other one loses his ssi things may change. they also count

there money but if there over 18 they do not count as people your taking care

off . but then again I live in one very poor area and there is so so many on the

help or trying to get it and being a white male I have seen the ugly side of

discrimination. as a white male under 50 I have been made to feel I should be

working even my SSI lawyer told me I would get to see and feel it boy was she

right!. when it is all said and done food stamps are out because what the kids

make even tho it is not our money or the houses and they give what they can but

it its very lite and on only give because we charge him for rent as he dropped

out of collage

. but he is the only one that never gives extra and to be honest I would not

care if he left and being a step day I hate saying that even my son who is not

working no income  gave us part of his tax return and all of his stimulus check

but the other one went out and bought a x box so he now has one of each brand.

told my son he was crazy to give it to us. and now can not come up with his

share of the car insurance but I can not cut him a mom go's nuts if i say any

thing she is over protective of him and I understand see he was molested by his

bio father for over three years before it was found out. but some day he needs

to grow up and she has to stop blaming her self as it is doing no good for

either. but his income hurts us  the step daughter gets some welfare help and

her welfare money then also counts ageist us but that money is for her baby and

her needs like diapers and such I am one of the lucky ones that falls in between

the creaks of the

system as how they count things one dose it this way another that way but each

is to limit who gets on the rolls and yet it cost to feed 6 adults and one baby.

o well I know things will get better . the wife will be going into CPS in about

one more year . she has been a single mother for almost 30 years has had to be

on welfare and help and gets so made because of how it now works . if the kids

were younger then we would get help but they can not afford to move out and go

to collage so what are they to do take low paying jobs and never get ahead or

struggle with us and get ahead in life .I want them to get ahead as then the day

comes they can take care of us and not just pick out the home we will be placed

in LOL.

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

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Carole

 when I called they were the same company. I was approved for enbral but never

got to start it as that was when my divorce happened and the ex did not send me

my male for over 4 months any hoot do send me any info to my e mail as I need to

do some thing things are getting bad again almost to the point when i was dx not

there yet and I will fight not to let it go there as that is not my happy place

LOL. kind of sucks turn 40 get stills get divorced get better get married get

worse and now turn 50 and getting even worse bad hope it is not in ten year

cycles .grrrrrr I can deal with the stills its the other Bs stress that I can

not LOL .

 o just in case no my marriage is great so none of that junk this time just new

stresses a blended family and all that comes with it LOL.

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

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