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Re: Wagers for AS shuting down??

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Why would a parent that doesnt agree with what these orgs are doing

with the money they raised from other parents want to raise a dime

for them?

I am personally sick and tired of organizations lik NAAR, AS, CAN and

all the other genetic Nazis out there that discount research into

environmental causes and do purely genetic research. That call

parents like myself who believe their is a connection between the

MMR, thimerosal, and vaccines and my childs autism/mercury

poisoning " delusional. That call my son's regression after his MMR

and sound proof that my child is getting better through

chelation " anecdotal " .....Org's like AS claim they are " funding

global biomedical research into the causes, prevention, treatments,

and cure for autism " and theyre NOT.....if theyre duping parents into

raising money for them under the guise that theyre doing this type of

research, then we as parents have a right to criticize the way they

spend money that they bleed out of fellow parents who spend their

time and energies raising money for org's lying to them.....

I for one have talked yet another parent out of walking for AS this

September here in NJ and I am damn proud of it...every dime I deprive

them of while insigificant in the grand scheme of things is a victory

to me.....

If you cant understand this Pamela, well too goddamn bad.....

Ellen

> >

> > As one who was never involved in NAAR or AS, I think what she

said was

> > not arrogant or mean-spirited. What I took she was saying is there

> > hasn't been enough progress and if those who have been using the

> > research money in a certain direction can't change course, then

let

> > someone else. IMO, her statement wasn't toward people, it was

toward

> > answers. She even came back & said it wasn't her intent. Saying

> > answers need to be found isn't to me arrogant.

> >

> > I totally understand what your saying that grant money often has

> > stipulations attached and genetic does have a place. But, only a

part

> > of the place. As I've said before, no more than 33% genetic, at

least

> > 33% environmental, and 33% behavioral, then you'll have a good

> > blending of how to help the kids.

> >

> > Debi

> >

>

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I'd be surprised if Pamela has a child on the spectrum. Correct me

if I'm wrong, Pamela. But being " nice " isn't what this group is all

about. Getting the word out and doing something about

vaccines/mercury causing autism is. If Pamela wants to get answers

to her questions - fine. But when she gives her opinions, she needs

to be able to handle opinions back (wether they are typed in all

caps or not). We're all willing to share information and fight for

the truth, but not with someone who pretends to be interested and

seems to only be here to cast some doubt on the matter. There is no

doubt in my mind what caused my son, nephew and brother's autism

(all born since 1990), but there are people out there reading this

board that don't know (yet). I think Pamela is here to act like a

concerned (and oh so rational), but in reality is here to cast

doubt. After reading all her comments, I also feel that it is she

who posts with condensation but stands behind " don't respond with

anger " comments (which is condescending in itself). Just my

observations here and I'm happy to hear her side of the story if she

wants to share.

Lenny is right that we just need to do something about it and that

while complaining is good to a certain extent it becomes counter

productive. But, for those of us who don't know exactly what to do

or how to do it, we vent. And when Autism United is up and running -

I'll be on board to do whatever I can.

As far as AS, I'd just like to say that it's disappointing what they

are doing. Ignoring biomed and mercury is a slap in the face. I

was hopeful that they'd actually pull off what they said they were

going to do, but honestly anyone who thinks they are innocently

missing doing research in these areas are only kidding themselves

and or trying to fool us. I accidentally donated money to them this

year. I was so hopeful that maybe with the s on board and

knowing what they know about their own grandson's progress, that the

world would come to know too. Alas, it's time for me to let go of

that dream and realize that this sets us back. Most People

unaffected by autism don't know what we know about vaccines, so they

are just donating hoping they are helping. It's a shame really.

> > > > >

> > > > > I am trying to understand various factions in the autism

community.

> > > > > You stated you were never involved in NAAR or AS. I assume

you mean

> > > > > you never raised money for either organization, if this is

the case

> > > > > why do you think you have the right to tell them how to

spend their

> > > > > money and what direction their research dollars should go?

> > > > >

> > > > > One of the great things about this country is the

capitalist system.

> > > > > If you earn the money, it is yours to spend as you see

fit, within

> > > > the

> > > > > law.

> > > > >

> > > > > Please dont respond in anger (as many on this board do), I

am only

> > > > > trying to understand.

> > > > >

> > > > > Pamela

> > > >

> > >

> >

> >

>

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I don't have any right to tell them how to spend, nor am I asserting

that I do. What I'm saying is if the groups were more equitable in the

way they spend, they wouldn't have so many people getting upset that

they aren't spending it. I agree, they have every right to spend it as

they want, but as a member of the ASD community I also have a right to

say I disagree in that their use of their money isn't helping my child

in any way, shape or form that I see.

What I'm saying is that if we (autism community collectively) did

spend in more of a 1/3-1/3-1/3 fashion I believe we would see faster

advances and better outcomes for our kids. I think it would also stop

a lot of the infighting.

Not responded in anger, hopefully I clarified...

Debi

> >

> > As one who was never involved in NAAR or AS, I think what she said was

> > not arrogant or mean-spirited. What I took she was saying is there

> > hasn't been enough progress and if those who have been using the

> > research money in a certain direction can't change course, then let

> > someone else. IMO, her statement wasn't toward people, it was toward

> > answers. She even came back & said it wasn't her intent. Saying

> > answers need to be found isn't to me arrogant.

> >

> > I totally understand what your saying that grant money often has

> > stipulations attached and genetic does have a place. But, only a part

> > of the place. As I've said before, no more than 33% genetic, at least

> > 33% environmental, and 33% behavioral, then you'll have a good

> > blending of how to help the kids.

> >

> > Debi

> >

>

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Autism existed before our current insanely overdone vaccination

schedule. If all vaccine- or environmentally- damaged kids out there

were healed or recovered, I believe there will still be those who have

autism.

ASD is currently a catch-all for some definitely genetic disorders

(Rett's) and some that don't appear to be genetic at all. I imagine

the future will bring about various sub-types of ASDs as well as

contributing factors (e.g. q22 deletion syndrome often manifests as

autism/ADHD though it is genetic in nature and those parents ARE told

not to vaccinate their children because of the syndrome).

My son is definitely a case of regressive autism. However, he is very

aware of me, attached to me, cuddly, and doesn't like it when I leave

him, which are not "typical" autistic traits. I don't believe he is

classically autistic, I also am not sure vaccinations were completely

at fault. In his case, it seems that the early, high doses of

antibiotics and leaky gut (how else can you explain a neonatal

infection of e. coli in the bloodstream?) combined with the live

attenuated viruses of the MMR played into his regression.

I want answers, but I am not prepared to lay the blame solely at the

foot of vaccines. I do believe vaccinations have caused damage to

countless children, but I also believe there are kids out there who

have never been vaccinated who are autistic. It is not coincidental

that autism rates in North Dakota are obscenely low with not much of a

spike in recent years, but when you overlay a map of Superfund sites

and environmentally toxic areas in the US you see corresponding

increases in autism rates. I want to see more research, but I want ALL

of the bases covered, not just the vaccine ones. My newborn has not

and will not see any vaccines if I have anything to say about it, but

if she turns out to be autistic (at 4 months old she is already

receiving EI services for visual/social issues - doesn't watch

faces/make eye contact as much as babies should), then I can hardly

blame that on vaccines.

Amber

Ellen Sweeney wrote:

Why would a parent that doesnt agree with what these orgs are

doing

with the money they raised from other parents want to raise a dime

for them?

I am personally sick and tired of organizations lik NAAR, AS, CAN and

all the other genetic Nazis out there that discount research into

environmental causes and do purely genetic research. That call

parents like myself who believe their is a connection between the

MMR, thimerosal, and vaccines and my childs autism/mercury

poisoning "delusional. That call my son's regression after his MMR

and sound proof that my child is getting better through

chelation "anecdotal".....Org's like AS claim they are "funding

global biomedical research into the causes, prevention, treatments,

and cure for autism" and theyre NOT.....if theyre duping parents into

raising money for them under the guise that theyre doing this type of

research, then we as parents have a right to criticize the way they

spend money that they bleed out of fellow parents who spend their

time and energies raising money for org's lying to them.....

I for one have talked yet another parent out of walking for AS this

September here in NJ and I am damn proud of it...every dime I deprive

them of while insigificant in the grand scheme of things is a victory

to me.....

If you cant understand this Pamela, well too goddamn bad.....

Ellen

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People are being fooled by AS and the other " Genetic Nazis " (perfect

term) because they have have no idea that vaccines/mercury cause

ASD. Main stream doctors backed up by the CDC, AAP, etc. and media

keep them blind. So they donate to the first really big Autism

group that appears to have their stuff together. Autism is an

epidemic (I know you all know) so everyone is becoming affected by

it. AS is pushing full steam ahead on fund raising and many, if not

most ASD families are going along with them.

The thing to keep in mind is just because these people don't know

that vaccines/mercury cause autism, doesn't mean it isn't so. And

the people at AS KNOW.

> > >

> > > As one who was never involved in NAAR or AS, I think what she

> said was

> > > not arrogant or mean-spirited. What I took she was saying is

there

> > > hasn't been enough progress and if those who have been using

the

> > > research money in a certain direction can't change course,

then

> let

> > > someone else. IMO, her statement wasn't toward people, it was

> toward

> > > answers. She even came back & said it wasn't her intent. Saying

> > > answers need to be found isn't to me arrogant.

> > >

> > > I totally understand what your saying that grant money often

has

> > > stipulations attached and genetic does have a place. But, only

a

> part

> > > of the place. As I've said before, no more than 33% genetic,

at

> least

> > > 33% environmental, and 33% behavioral, then you'll have a good

> > > blending of how to help the kids.

> > >

> > > Debi

> > >

> >

>

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This is wonderful, what Lenny wrote: We have better places to gothan AS. It's better to compete, than complain. Better chance forgetting the results we want. I wonder what I can do to help convince other parents here in Canada of that, without getting my own head sliced off in the process. On most of the list groups I belong to (in Canada), many think that Autism Speaks is a wonderful organization, and members there knock themselves out to raise money for AS as they did earlier for NAAR. Trying to tell them that AS is not all it seems, will not go over easily with them. Hell, even Toronto District School Board special education teachers and consultants will advocate for, and join in on NAAR (previously) and Autism Speaks walks. It's bad enough that AS is not supporting or providing funding for the most obvious sorts of "environmental" research that need to be done (i.e.,

regarding vaccines/vaccine ingredients and neurodevelopmental disorders), but it may give other parents a bit of a jolt once they see how AS is spending their money. It may provide a little "reality check" for these parents, to show them where their contributions to AS may be headed. I don't think too many of them will be happy once they hear about the excesses, especially those which benefit a few in the organization and do nothing to help their children. Aasa schaferatsprynet <schafer@...> wrote: I happen to agree with most of Pamela's point. People do have a rightto spend their money as they see fit. Other people, of course, have aright to complain about their choices. Complaining does serve afunction of raising awareness of the public about the choicesavailable to them, specifically here about whee to donate to autismresearch and treatments. Complaining alone is a losers game, however. Instead of us spendingso much energy whining about how Autism Speaks spends their money, weshould focus our energy on creating positive alternatives. This ishappening. Autism United, the Autism Research Institute and the NAAall are focusing on raising funds for functional research. Localgroups like TACA and FEAT, for example, raise money for the individualtreatment advocacy of damaged children. We have better places to gothan AS. It's better to compete, than

complain. Better chance forgetting the results we want.As for factions, there seems to be emerging two basic camps within theautism community: those who suspect vaccines as the culprit behind theautism epidemic, and those who defend vaccines. There is of course,many trying to bridge or overlap the two positions, which ultimatelyare mutually exclusive. Lenny > >> > As one who was never involved in NAAR or AS, I think what she said was> > not arrogant or mean-spirited. What I took she was saying is there> > hasn't been enough progress and if those who have been using the> > research money in a certain direction can't change course, then let> > someone else. IMO, her statement wasn't toward people, it was toward> > answers. She even came back & said it wasn't her intent. Saying> > answers need to be found isn't to me arrogant. > > > >

I totally understand what your saying that grant money often has> > stipulations attached and genetic does have a place. But, only a part> > of the place. As I've said before, no more than 33% genetic, at least> > 33% environmental, and 33% behavioral, then you'll have a good> > blending of how to help the kids. > > > > Debi> >>

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As a matter of fact, I do. I also have two nephews with autism and a

cousins child is autistic as well.

Pamela

> > >

> > > As one who was never involved in NAAR or AS, I think what she

> said was

> > > not arrogant or mean-spirited. What I took she was saying is there

> > > hasn't been enough progress and if those who have been using the

> > > research money in a certain direction can't change course, then

> let

> > > someone else. IMO, her statement wasn't toward people, it was

> toward

> > > answers. She even came back & said it wasn't her intent. Saying

> > > answers need to be found isn't to me arrogant.

> > >

> > > I totally understand what your saying that grant money often has

> > > stipulations attached and genetic does have a place. But, only a

> part

> > > of the place. As I've said before, no more than 33% genetic, at

> least

> > > 33% environmental, and 33% behavioral, then you'll have a good

> > > blending of how to help the kids.

> > >

> > > Debi

> > >

> >

>

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Hi all,

I haven't kept up with most of the posts on this

topic. However,I feel the need to say that as a parent

I have the right to tell AS how to spend the money.

They claim to represent " our " entire community. They

use my child to promote the organization & raise

money. When someone meets my child and learns he has

autism they may want to contribute to help kids like

him. They will most likely go to AS since it is the

largest and most well known org. Someone mentioned

..... " capitalism " and that they can spend as they see

fit " . I respectfully disagree- AS is not a " for profit

business " and it holds itself out to represent the

entire ASD community. Therefore, they need to listen

to ALL voices or not misrepresent their fundraising

motives. In the end they will do as they see fit, but

I do have that right. Just my two cents,

--- Debi <fightingautism@...> wrote:

> I don't have any right to tell them how to spend,

> nor am I asserting

> that I do. What I'm saying is if the groups were

> more equitable in the

> way they spend, they wouldn't have so many people

> getting upset that

> they aren't spending it. I agree, they have every

> right to spend it as

> they want, but as a member of the ASD community I

> also have a right to

> say I disagree in that their use of their money

> isn't helping my child

> in any way, shape or form that I see.

>

> What I'm saying is that if we (autism community

> collectively) did

> spend in more of a 1/3-1/3-1/3 fashion I believe we

> would see faster

> advances and better outcomes for our kids. I think

> it would also stop

> a lot of the infighting.

>

> Not responded in anger, hopefully I clarified...

>

> Debi

>

>

> > >

> > > As one who was never involved in NAAR or AS, I

> think what she said was

> > > not arrogant or mean-spirited. What I took she

> was saying is there

> > > hasn't been enough progress and if those who

> have been using the

> > > research money in a certain direction can't

> change course, then let

> > > someone else. IMO, her statement wasn't toward

> people, it was toward

> > > answers. She even came back & said it wasn't her

> intent. Saying

> > > answers need to be found isn't to me arrogant.

> > >

> > > I totally understand what your saying that grant

> money often has

> > > stipulations attached and genetic does have a

> place. But, only a part

> > > of the place. As I've said before, no more than

> 33% genetic, at least

> > > 33% environmental, and 33% behavioral, then

> you'll have a good

> > > blending of how to help the kids.

> > >

> > > Debi

> > >

> >

>

>

>

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Ellen what I can understand is that your " Nazi " reference is repulsive

and has no place on any autism list.

Marty

> > >

> > > As one who was never involved in NAAR or AS, I think what she

> said was

> > > not arrogant or mean-spirited. What I took she was saying is there

> > > hasn't been enough progress and if those who have been using the

> > > research money in a certain direction can't change course, then

> let

> > > someone else. IMO, her statement wasn't toward people, it was

> toward

> > > answers. She even came back & said it wasn't her intent. Saying

> > > answers need to be found isn't to me arrogant.

> > >

> > > I totally understand what your saying that grant money often has

> > > stipulations attached and genetic does have a place. But, only a

> part

> > > of the place. As I've said before, no more than 33% genetic, at

> least

> > > 33% environmental, and 33% behavioral, then you'll have a good

> > > blending of how to help the kids.

> > >

> > > Debi

> > >

> >

>

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I find it interesting that you can use such a pejorative term " Genetic

Nazis " so freely but I am sure would take great offense to anyone one

who would classify your views in that manner.

Marty

> > > >

> > > > As one who was never involved in NAAR or AS, I think what she

> > said was

> > > > not arrogant or mean-spirited. What I took she was saying is

> there

> > > > hasn't been enough progress and if those who have been using

> the

> > > > research money in a certain direction can't change course,

> then

> > let

> > > > someone else. IMO, her statement wasn't toward people, it was

> > toward

> > > > answers. She even came back & said it wasn't her intent. Saying

> > > > answers need to be found isn't to me arrogant.

> > > >

> > > > I totally understand what your saying that grant money often

> has

> > > > stipulations attached and genetic does have a place. But, only

> a

> > part

> > > > of the place. As I've said before, no more than 33% genetic,

> at

> > least

> > > > 33% environmental, and 33% behavioral, then you'll have a good

> > > > blending of how to help the kids.

> > > >

> > > > Debi

> > > >

> > >

> >

>

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Marty,

I didn't find it any more offensive than TV Seinfeld's hyperbolic

usage of " Soup Nazi " .

Lenny

>

>

> I find it interesting that you can use such a pejorative term " Genetic

> Nazis " so freely but I am sure would take great offense to anyone one

> who would classify your views in that manner.

>

> Marty

>

>

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Marty, While I can understand your being repulsed by Ellen's reference to "Nazi's" in this regard, I can also totally understand her using Nazis as a reference point with what is going on with vaccines these days. Here our governments are (both in the US and in Canada), trying to convince us of the genetic basis for several neurological "disorders". If one follows the "science", the actual science, not what is delivered to us in the mainstream news, one may think differently. If any of us were sit down and do even a bit of research on the Internet, it would not take long to unearth information contrary to what some of our countries are telling us. Those epidemiological studies which originated in Scandinavia are full of holes. Worse, some were conducted by researchers who worked for the SSI, Staten Serum Institut, i.e., the local vaccine manufacturer/provider. While no-one has acknowledged what has happened with children nowadays, I would not

be surprised to read years from now, if I am still alive, that this comes near to another holocaust, but this time it is an assault on children with various vaccines and drugs that have gone awry. Aasamartinx2us <martyx2@...> wrote: Ellen what I can understand is that your "Nazi" reference is repulsiveand has no place on any autism list.Marty> > >> > > As one who was never involved in NAAR or AS, I think what she> said was> > > not arrogant or mean-spirited. What I took she was saying is there> > > hasn't been enough progress and if those who have been using

the> > > research money in a certain direction can't change course, then> let> > > someone else. IMO, her statement wasn't toward people, it was> toward> > > answers. She even came back & said it wasn't her intent. Saying> > > answers need to be found isn't to me arrogant.> > >> > > I totally understand what your saying that grant money often has> > > stipulations attached and genetic does have a place. But, only a> part> > > of the place. As I've said before, no more than 33% genetic, at> least> > > 33% environmental, and 33% behavioral, then you'll have a good> > > blending of how to help the kids.> > >> > > Debi> > >> >>

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Lenny, as you may be aware; I live in the camp in which one is neither convinced nor unconvinced of any connection between vaccines and autism. While I neither defend nor advocate any position except to explore all possibilities I am often criticized by individuals who believe there is such a connection.

Recently I was told that if I loved my child I would not have vaccinated him. It is quite sad that it has come to this in that another parent could say such a thing. While I agree with you that individuals have a right to complain about how any not-for-profit spends its funds, I find it deeply sad that there remains such intolerance in the autism community in that person's indicidual beliefs often are not respected if they differ from some.

I am not sure if we will ever bridge the gap the first step is for tolerance and shifting focus where it belongs and away from other parent's of children with ASD's.

Marty

> > >> > > As one who was never involved in NAAR or AS, I think what she said was> > > not arrogant or mean-spirited. What I took she was saying is there> > > hasn't been enough progress and if those who have been using the> > > research money in a certain direction can't change course, then let> > > someone else. IMO, her statement wasn't toward people, it was toward> > > answers. She even came back & said it wasn't her intent. Saying> > > answers need to be found isn't to me arrogant. > > > > > > I totally understand what your saying that grant money often has> > > stipulations attached and genetic does have a place. But, only a part> > > of the place. As I've said before, no more than 33% genetic, at least> > > 33% environmental, and 33% behavioral, then you'll have a good> > > blending of how to help the kids. > > > > > > Debi> > >> >>

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I never really cared for that either but...

Marty

> >

> >

> > I find it interesting that you can use such a pejorative term

" Genetic

> > Nazis " so freely but I am sure would take great offense to anyone

one

> > who would classify your views in that manner.

> >

> > Marty

> >

> >

>

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Marty, they already do. I can handle being offended, I cannot handle

my child being damaged and other's who have the ability to help not

doing it (especially knowingly).

> > > > >

> > > > > As one who was never involved in NAAR or AS, I think what

she

> > > said was

> > > > > not arrogant or mean-spirited. What I took she was saying

is

> > there

> > > > > hasn't been enough progress and if those who have been

using

> > the

> > > > > research money in a certain direction can't change course,

> > then

> > > let

> > > > > someone else. IMO, her statement wasn't toward people, it

was

> > > toward

> > > > > answers. She even came back & said it wasn't her intent.

Saying

> > > > > answers need to be found isn't to me arrogant.

> > > > >

> > > > > I totally understand what your saying that grant money

often

> > has

> > > > > stipulations attached and genetic does have a place. But,

only

> > a

> > > part

> > > > > of the place. As I've said before, no more than 33%

genetic,

> > at

> > > least

> > > > > 33% environmental, and 33% behavioral, then you'll have a

good

> > > > > blending of how to help the kids.

> > > > >

> > > > > Debi

> > > > >

> > > >

> > >

> >

>

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Marty,

There is a growing camp of people who believe, based on the evidence

already at hand, that there is a vaccine connection to autism. The

growth of this list is one indicator. Among this group you will find

a spectrum of tolerance or intolerance towards those who are perceived

as mercury apologists or towards those who are perceived as seeking

refuge from conviction in being undecided.

When I say, for example, that I have seen my son damaged from vaccines

before my eyes, and am told in response by someone from your camp that

I am not to be believed, I just might get a little pissed. Or I might

get downright angry.

When I am say that my son has dramatically improved from poison

reducing treatments, and am told in response, that it is probably a

placebo effect, I just might get a little pissed. Or I might get

downright angry.

Only a small percentage of list members actually post to this list,

most lurk. So who knows for sure what the group think really is. Do

not be so shocked that you catch some flack here for your doubts.

The discussion and dissection of Autism Speaks is a good exercise,

beyond venting, even if they contain fellow autism parents. I believe

the focus will shift away from bashing the organization eventually.

But their mistakes deserve exposure to make room for competition. I

may not think much of Autism Speaks' agenda, but they are not the ones

who put dirty vaccines into my son's body. They are not main " the

enemy " , even if accessories after the fact.

I cannot moderate the level of tolerance here, but I can as host try

to encourage an atmosphere polite discourse. No guarantees, so think

cliche, heat, kitchen.

Lenny

> > > >

> > > > As one who was never involved in NAAR or AS, I think what she said

> was

> > > > not arrogant or mean-spirited. What I took she was saying is there

> > > > hasn't been enough progress and if those who have been using the

> > > > research money in a certain direction can't change course, then

> let

> > > > someone else. IMO, her statement wasn't toward people, it was

> toward

> > > > answers. She even came back & said it wasn't her intent. Saying

> > > > answers need to be found isn't to me arrogant.

> > > >

> > > > I totally understand what your saying that grant money often has

> > > > stipulations attached and genetic does have a place. But, only a

> part

> > > > of the place. As I've said before, no more than 33% genetic, at

> least

> > > > 33% environmental, and 33% behavioral, then you'll have a good

> > > > blending of how to help the kids.

> > > >

> > > > Debi

> > > >

> > >

> >

>

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They are millionaires or probably billionaires. They do not get any

money from AS, nor do they need it. This line of thinking makes no

sense to me. I do not understand why they have not come out publicly

like did if their grandson is improving. I do not think money or

power are the reasons. Bob ran gigantic corporations, I don't

think he is bewitched by the $$ & power of AS.

>

> If Bob and Suzanne had any integrity they would walk away from

> AS and expose the group for what it really is. Oh, but the $$$$$$$$

> seems to get in the way. Maybe they are taking their chances with the

> bouncer at the Pearly Gates.

>

>

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They are millionaires or probably billionaires. They do not get any

money from AS, nor do they need it. This line of thinking makes no

sense to me. I do not understand why they have not come out publicly

like did if their grandson is improving. I do not think money or

power are the reasons. Bob ran gigantic corporations, I don't

think he is bewitched by the $$ & power of AS.

>

> If Bob and Suzanne had any integrity they would walk away from

> AS and expose the group for what it really is. Oh, but the $$$$$$$$

> seems to get in the way. Maybe they are taking their chances with the

> bouncer at the Pearly Gates.

>

>

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I NEVER stated Bob received money from AS.

Bob 's retirement $$$$ does come from GE though. GE owns a

thimerosal plant. It doesn't look like he is about to bite the hand

that feeds him extremely well in his retirement. Hope that makes more

sense, now.

BTW - for those who don't know, I'm not shouting, I use caps for

emphasis - same way I would emphasis a word when talking - not being

rude, and no, I'm not going to change the way I write messages. I

don't use spellcheck, edit my messages for proper grammar usage or any

of that other stuff - it is what it is! : )

> >

> > If Bob and Suzanne had any integrity they would walk away from

> > AS and expose the group for what it really is. Oh, but the $$$$$$$$

> > seems to get in the way. Maybe they are taking their chances with the

> > bouncer at the Pearly Gates.

> >

> >

>

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when they AS are benefiting from their grand sons pain relief. When Christian's symptoms are the same as my sons and they are sitting on that knowledge and want help any other children. Maybe its his stock at GE after all they would not want it proven their product caused any of this damage oh! in case you did not know GE owns a thimerosal facility. If they AS are in

it for the right reason. Then If true science goes were the evidence leads why want they share that christian is speaking after chealation and he is sleeping after pentasin 6mp after all I thought they were going to declare war on autism. It seems to me they are doing what they were created for steering away from a pharma cause. Its like if you lose your wallet in the bedroom but you are looking for it every where but the bed room. It should be all over the press

that Bob 's grand child is getting better instead they are hiding it from the public and he should be touting DR.Wakefield was right and helping out a courageous heroinstead of letting him be persecuted by a corrupted system here and abroad.mommiepie2000 <mommiepie2000@...> wrote: They are millionaires or probably billionaires. They do not get any money from AS, nor do they need it. This line of thinking makes no sense to me. I do not understand why they have not come out publicly like did if their grandson is improving. I do not think money or power are the reasons. Bob ran gigantic corporations, I don't think he is bewitched by the $$ & power of AS. >> If Bob and Suzanne had any integrity they would walk away from> AS and expose the group for what it really is. Oh, but the $$$$$$$$> seems to get in the way. Maybe they are taking their chances with the> bouncer at the

Pearly Gates. > >

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I am sure they are waiting for Christian Genetics testing to come back

( I know a Sarcastic remark)

Your so right, its been repeated over and over again. Something

Rotten in tall cotton with AS and their supporters.

In EOHarm , JOE HARRIS` <ccdaddy57@...> wrote:

>

> when they AS are benefiting from their grand sons pain relief.

When

> Christian's symptoms are the same as my

> sons and they are sitting on that knowledge

> and want help any other children. Maybe its

> his stock at GE after all they would not want

> it proven their product caused any of this

> damage oh! in case you did not know GE

> owns a thimerosal facility. If they AS are

> in it for the right reason. Then If true science

> goes were the evidence leads why want

> they share that christian is speaking after

> chealation and he is sleeping after pentasin

> 6mp after all I thought they were going to

> declare war on autism. It seems to me they are

> doing what they were created for steering away

> from a pharma cause. Its like if you lose your

> wallet in the bedroom but you are looking for it

> every where but the bed room. It should be all

> over the press that Bob 's grand child is

> getting better instead they are hiding it from the

> public and he should be touting DR.Wakefield

> was right and helping out a courageous hero

> instead of letting him be persecuted by a

> corrupted system here and abroad.

>

>

> mommiepie2000 <mommiepie2000@...> wrote:

> They are millionaires or probably billionaires. They do

not get any

> money from AS, nor do they need it. This line of thinking makes no

> sense to me. I do not understand why they have not come out

publicly

> like did if their grandson is improving. I do not think money

or

> power are the reasons. Bob ran gigantic corporations, I

don't

> think he is bewitched by the $$ & power of AS.

>

>

> >

> > If Bob and Suzanne had any integrity they would walk away

from

> > AS and expose the group for what it really is. Oh, but the

$$$$$$$$

> > seems to get in the way. Maybe they are taking their chances with

the

> > bouncer at the Pearly Gates.

> >

> >

>

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I posted a reply to your comment, but it did not show up, so two

replies may show up. I did not state that Bob receives money

from AS. But as Joe has already replied, Bob receives his

retirement $$$ from GE, and GE does own a thimerosal plant. Bob

is not biting the hand that feeds him extremely well in his retirement

years. Hope it makes more sense to you now.

y

> >

> > If Bob and Suzanne had any integrity they would walk away from

> > AS and expose the group for what it really is. Oh, but the $$$$$$$$

> > seems to get in the way. Maybe they are taking their chances with the

> > bouncer at the Pearly Gates.

> >

> >

>

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Calling a medical fascist a Nazi.

Quite appropriate.

Re: Re: Wagers for AS shuting down??

Marty,

While I can understand your being repulsed by Ellen's reference to "Nazi's" in this regard, I can also totally understand her using Nazis as a reference point with what is going on with vaccines these days. Here our governments are (both in the US and in Canada), trying to convince us of the genetic basis for several neurological "disorders". If one follows the "science", the actual science, not what is delivered to us in the mainstream news, one may think differently. If any of us were sit down and do even a bit of research on the Internet, it would not take long to unearth information contrary to what some of our countries are telling us. Those epidemiological studies which originated in Scandinavia are full of holes. Worse, some were conducted by researchers who worked for the SSI, Staten Serum Institut, i.e., the local vaccine manufacturer/provider.

While no-one has acknowledged what has happened with children nowadays, I would not be surprised to read years from now, if I am still alive, that this comes near to another holocaust, but this time it is an assault on children with various vaccines and drugs that have gone awry.

Aasamartinx2us <martyx2rcn> wrote:

Ellen what I can understand is that your "Nazi" reference is repulsiveand has no place on any autism list.Marty> > >> > > As one who was never involved in NAAR or AS, I think what she> said was> > > not arrogant or mean-spirited. What I took she was saying is there> > > hasn't been enough progress and if those who have been using the> > > research money in a certain direction can't change course, then> let> > > someone else. IMO, her statement wasn't toward people, it was> toward> > > answers. She even came back & said it wasn't her intent. Saying> > > answers need to be found isn't to me arrogant.> > >> > > I totally understand what your saying that grant money often has> > > stipulations attached and genetic does have a place. But, only a> part> > > of the place. As I've said before, no more than 33% genetic, at> least> > > 33% environmental, and 33% behavioral, then you'll have a good> > > blending of how to help the kids.> > >> > > Debi> > >> >>

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Fair. But acknowledging the non-exclusive, but primary role of vaccines in the epidemic will get us a long way to solving the problem and allocating resources appropriately.

Re: Re: Wagers for AS shuting down??

Autism existed before our current insanely overdone vaccination schedule. If all vaccine- or environmentally- damaged kids out there were healed or recovered, I believe there will still be those who have autism.ASD is currently a catch-all for some definitely genetic disorders (Rett's) and some that don't appear to be genetic at all. I imagine the future will bring about various sub-types of ASDs as well as contributing factors (e.g. q22 deletion syndrome often manifests as autism/ADHD though it is genetic in nature and those parents ARE told not to vaccinate their children because of the syndrome).My son is definitely a case of regressive autism. However, he is very aware of me, attached to me, cuddly, and doesn't like it when I leave him, which are not "typical" autistic traits. I don't believe he is classically autistic, I also am not sure vaccinations were completely at fault. In his case, it seems that the early, high doses of antibiotics and leaky gut (how else can you explain a neonatal infection of e. coli in the bloodstream?) combined with the live attenuated viruses of the MMR played into his regression. I want answers, but I am not prepared to lay the blame solely at the foot of vaccines. I do believe vaccinations have caused damage to countless children, but I also believe there are kids out there who have never been vaccinated who are autistic. It is not coincidental that autism rates in North Dakota are obscenely low with not much of a spike in recent years, but when you overlay a map of Superfund sites and environmentally toxic areas in the US you see corresponding increases in autism rates. I want to see more research, but I want ALL of the bases covered, not just the vaccine ones. My newborn has not and will not see any vaccines if I have anything to say about it, but if she turns out to be autistic (at 4 months old she is already receiving EI services for visual/social issues - doesn't watch faces/make eye contact as much as babies should), then I can hardly blame that on vaccines.AmberEllen Sweeney wrote:

Why would a parent that doesnt agree with what these orgs are doing with the money they raised from other parents want to raise a dime for them?I am personally sick and tired of organizations lik NAAR, AS, CAN and all the other genetic Nazis out there that discount research into environmental causes and do purely genetic research. That call parents like myself who believe their is a connection between the MMR, thimerosal, and vaccines and my childs autism/mercury poisoning "delusional. That call my son's regression after his MMR and sound proof that my child is getting better through chelation "anecdotal".....Org's like AS claim they are "funding global biomedical research into the causes, prevention, treatments, and cure for autism" and theyre NOT.....if theyre duping parents into raising money for them under the guise that theyre doing this type of research, then we as parents have a right to criticize the way they spend money that they bleed out of fellow parents who spend their time and energies raising money for org's lying to them.....I for one have talked yet another parent out of walking for AS this September here in NJ and I am damn proud of it...every dime I deprive them of while insigificant in the grand scheme of things is a victory to me.....If you cant understand this Pamela, well too goddamn bad.....Ellen

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I agrre with most of what Lenny says. My concern is, that a lot of money is donated under certain premise/s and this doesn't always play out well for those who need it. Many celebrities or corporate guys come into the Autism mix and believe that they know more, can do more than those who've been involved for years. There is a sense of arrogance that can offend............ I think of the statement coming from one of Autism speaks founders.."autism knocked at the wrong door" yes it infers a tenacious disposition to really get at doing something to "cure" Autism, but how they've gone about it has ruffled some feathers ! Individual egos all too often seem to take precedence over focussing on substantive goals and achievement. The asumptions that the "experts" know better than the parents is one area which ticks many off. Raising money

is great but, if those for whom the money purportedly iraised is supposed to help don't seem to, or perceive that they're deriving the direct benefit therefrom, they become discouraged and feel sleighted to a degree. Autism's rapid exponential growth has given it a facade and characteristic unlike any other "disease" Answers are required more quickly than any other because, time is of such an essence. Our kids can't wait for research just to roll merrily along. They need help " yesterday" ! ! Unfortunately not enough is being done in the practical realm to help families struggling to just get by day to day. So when these parents see huge fundraisers raising !5 million etc from one event and this doesn't translate into direct help for them, they become suspicious and feel disenfranchised. Yes capitalism does afford those with the money

to spend it how they wish, but it doesn't licence corruption and arrogant condescention. The "money raised pie", needs to be re-sliced using more practical common sense. We have an organization here in Michigan called the Friendship Circle (www.friendshipcircle.org) They have done many great things. One thing they always do when considering a project is to invite ordinary parents like us, for example. to meetings. They do this to get our input as parents and best of all they really listen to what we say and often include our suggestions and views when deciding how to proceed with the project. And they get things done very quickly. I do know that they have started chapters all over the place. Look for them in your neck of the woods Even though they are a Jewish organization, their doors are open to all who need help and support. Check

out their website, see what they do, you won't be disappointed. Maybe you can negotiate to start a chapter in your area Take care n I happen to agree with most of Pamela's point. People do have a rightto spend their money as they see fit. Other people, of course, have aright to complain about their choices. Complaining does serve afunction of raising awareness of the public about the choicesavailable to them, specifically here about whee to donate to autismresearch and treatments. Complaining alone is a losers game, however. Instead of us spendingso much energy whining about how Autism Speaks spends their money, weshould focus our energy on creating positive alternatives. This ishappening. Autism United, the Autism Research Institute and the NAAall are focusing on raising funds for functional research. Localgroups like TACA and FEAT, for

example, raise money for the individualtreatment advocacy of damaged children. We have better places to gothan AS. It's better to compete, than complain. Better chance forgetting the results we want.As for factions, there seems to be emerging two basic camps within theautism community: those who suspect vaccines as the culprit behind theautism epidemic, and those who defend vaccines. There is of course,many trying to bridge or overlap the two positions, which ultimatelyare mutually exclusive. Lenny > >> > As one who was never involved in NAAR or AS, I think what she said was> > not arrogant or mean-spirited. What I took she was saying is there>

> hasn't been enough progress and if those who have been using the> > research money in a certain direction can't change course, then let> > someone else. IMO, her statement wasn't toward people, it was toward> > answers. She even came back & said it wasn't her intent. Saying> > answers need to be found isn't to me arrogant. > > > > I totally understand what your saying that grant money often has> > stipulations attached and genetic does have a place. But, only a part> > of the place. As I've said before, no more than 33% genetic, at least> > 33% environmental, and 33% behavioral, then you'll have a good> > blending of how to help the kids.

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