Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

June 4, 2007

Well said.

I only disagree with one point. I don't think NAAR has to look like fools. The

people who

began NAAR started it because their own children had autism and it was a rare

disorder.

They only had the available research and theories in which to guide them.

I would feel much more gratitude toward them if they could just admit that it is

time to

change direction and look elsewhere. The statement of, " We tried, we failed and

the new

cases have shown us that we were looking in the wrong place all along. We were,

in fact,

pioneers in trying hard to accomplish something and we hope you respect our

efforts. We

are ready to move forward with new avenues and new directions to embark upon. "

The only foolishness is their continued resistance to change.

There are two truths in life.

Insanity is when you keep doing the same things with the hopes of a new result.

Intelligence is not measured in what you know, but in your ability to learn.

Col

> > >

> > > http://www.autismspeaks.org/wrights_statement.php

> > > <http://www.autismspeaks.org/wrights_statement.php>

> > >

> > > Statement from Bob and Suzanne , Co-founders of Autism

> Speaks

> > >

> > > is not a spokesperson for Autism Speaks. Our

> daughter's

> > > personal views differ from ours and do not represent or reflect

> the

> > > ongoing mission of Autism Speaks. Her appearance with Kirby

> was

> > > done without the knowledge or consent of Autism Speaks.

> > >

> > > Autism Speaks is committed to finding the causes of and a cure for

> > > autism. We are proud of our scientifically based research

> programs,

> > > including those established by NAAR and CAN, and will continue to

> pursue

> > > them. The members of our scientific advisory teams have impeccable

> > > credentials and we fully support them. There is no question that

> > > genetics plays the leading role in autism and that environmental

> > > triggers are key issues for many children. These areas, as well as

> > > biomedical treatments, need huge research support.

> > >

> > > Autism Speaks merged with NAAR because it believes in and

> supports its

> > > scientific mission, methods, and advisory board. We are proud of

> the

> > > accomplishments of NAAR and grateful to the families and

> volunteers who

> > > created it. They are a tremendously valued part of Autism Speaks.

> We

> > > welcome input from volunteers and parents/guardians of children

> with

> > > autism of all ages, including adults with autism. We apologize to

> our

> > > valued volunteers who were led to believe otherwise by our

> daughter's

> > > statement.

> > >

> >

>

June 4, 2007

Bob,

Thank you for your continued support and help. I am anticipating great things

from your

new organization.

I will say that I am questioning the public statement because it is reflective

on 's

statements concerning NAAR. was correct when she said that NAAR went down

the

wrong path and are now afraid to admit that. She said (paraphrasing) that it was

time for

them to move over and let the newer folks give it a try.

She is, of course, right.

The public statement was about their gratitude to NAAR. I do think they were

forced into,

what they believed, was a corner. The statement is not saying that they will not

study

environmental triggers, as wants or anyone here wants. They are stating

good things

about NAAR.

It is a PR move to quiet NAAR people and their supporters. They should not have

outed

, but instead just bypassed her statements maybe, if this is where they

intended to go

with it.

I am not saying that AS is in our corner. I am not saying they aren't. I think,

based on

's words, we just have to wait and see. In the meantime, we can't wait for

them either.

Whatever they do, they do. We just have to move forward without them. If they

catch up,

great. If not, their loss.

Eventually, the truth about autism is going to come to light, one way or

another. They can

be a part of that or they can be left in the dust.

Col

> > > >

> > > > http://www.autismsp

> <http://www.autismspeaks.org/wrights_statement.php>

> > eaks.org/wrights_statement.php

> > > > <http://www.autismsp

> <http://www.autismspeaks.org/wrights_statement.php>

> > eaks.org/wrights_statement.php>

> > > >

> > > > Statement from Bob and Suzanne , Co-founders of Autism

> > Speaks

> > > >

> > > > is not a spokesperson for Autism Speaks. Our

> > daughter's

> > > > personal views differ from ours and do not represent or reflect

> > the

> > > > ongoing mission of Autism Speaks. Her appearance with

> > Kirby

> > > was

> > > > done without the knowledge or consent of Autism Speaks.

> > > >

> > > > Autism Speaks is committed to finding the causes of and a cure

> > for

> > > > autism. We are proud of our scientifically based research

> > programs,

> > > > including those established by NAAR and CAN, and will continue

> > to

> > > pursue

> > > > them. The members of our scientific advisory teams have

> > impeccable

> > > > credentials and we fully support them. There is no question that

> > > > genetics plays the leading role in autism and that environmental

> > > > triggers are key issues for many children. These areas, as well

> > as

> > > > biomedical treatments, need huge research support.

> > > >

> > > > Autism Speaks merged with NAAR because it believes in and

> > supports

> > > its

> > > > scientific mission, methods, and advisory board. We are proud

> > of the

> > > > accomplishments of NAAR and grateful to the families and

> > volunteers

> > > who

> > > > created it. They are a tremendously valued part of Autism

> > Speaks. We

> > > > welcome input from volunteers and parents/guardians of children

> > with

> > > > autism of all ages, including adults with autism. We apologize

> > to

> > > our

> > > > valued volunteers who were led to believe otherwise by our

> > > daughter's

> > > > statement.

> > > >

> > >

> > > ---------------------------------

> > > Got a little couch potato?

> > > Check out fun summer activities for kids.

> > >

> >

>

June 4, 2007

Great points. If true, then there has to be some way to give NAAR an out in all of this.

Genetics is not irrelevant here, it is clearly important. It is important in any toxicological result, virtually all biological results.

How to get them to shift emphasis on research to do something real, rather then red herring is perhaps the hardest problem.

Then, of course, there is the Bernie Marcus connection with the CDC, with a significant faction in that organization apparently corrupting everything. And Pharma grants, with clear liability concerns referenced in the background.

How do you deal with all that?

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

Well said.I only disagree with one point. I don't think NAAR has to look like fools. The people who began NAAR started it because their own children had autism and it was a rare disorder. They only had the available research and theories in which to guide them. I would feel much more gratitude toward them if they could just admit that it is time to change direction and look elsewhere. The statement of, "We tried, we failed and the new cases have shown us that we were looking in the wrong place all along. We were, in fact, pioneers in trying hard to accomplish something and we hope you respect our efforts. We are ready to move forward with new avenues and new directions to embark upon."The only foolishness is their continued resistance to change.There are two truths in life.Insanity is when you keep doing the same things with the hopes of a new result.Intelligence is not measured in what you know, but in your ability to learn.Col> > >> > > > > > http://www.autismspeaks.org/wrights_statement.php> > > <http://www.autismspeaks.org/wrights_statement.php>> > > > > > > > > > > > Statement from Bob and Suzanne , Co-founders of Autism > Speaks> > > > > > > > > > > > > > > > > > is not a spokesperson for Autism Speaks. Our > daughter's> > > personal views differ from ours and do not represent or reflect > the> > > ongoing mission of Autism Speaks. Her appearance with Kirby > was> > > done without the knowledge or consent of Autism Speaks.> > > > > > > > > > > > Autism Speaks is committed to finding the causes of and a cure for> > > autism. We are proud of our scientifically based research > programs,> > > including those established by NAAR and CAN, and will continue to > pursue> > > them. The members of our scientific advisory teams have impeccable> > > credentials and we fully support them. There is no question that> > > genetics plays the leading role in autism and that environmental> > > triggers are key issues for many children. These areas, as well as> > > biomedical treatments, need huge research support.> > > > > > > > > > > > Autism Speaks merged with NAAR because it believes in and > supports its> > > scientific mission, methods, and advisory board. We are proud of > the> > > accomplishments of NAAR and grateful to the families and > volunteers who> > > created it. They are a tremendously valued part of Autism Speaks. > We> > > welcome input from volunteers and parents/guardians of children > with> > > autism of all ages, including adults with autism. We apologize to > our> > > valued volunteers who were led to believe otherwise by our > daughter's> > > statement.> > >> >>

June 4, 2007

>

> One thing that just always sticks in my mind is the testimony given at the

recent senate

> appropriations committee. When Harkin began to ask about the number of

vaccines on

the

> schedule, it was Bob that shouted out the number.

>

> The only people who know that number offhand and who would take the effort to

make

> sure Harkin knows it is someone who cares about it.

>

Actually, it was Dana Halvorson, Bob Krakow, and other folks at ACHAMP that we

can

thank for educating Senator Harkin on short notice before the Appropriations

hearing. It

was due to this fact that Sen. Harkin raised the questions that he did regarding

vaccines.

June 5, 2007

Henry,

I have no idea how they can deal with all of that, to be honest. I am not

convinced they will

ever do anything. The only thing I see actually happening at some point is them

finally

fading into the background once more promising research comes to light and

finally

overshadows them.

However, in fairness, I think we also have to give consideration to those

children who

developed autism for other reasons. I have heard from parents who had children

suffer a

lack of oxygen during birth and it left them autistic. What I am curious to

know, ultimately,

is if a lack of oxygen depriving the brain also deprived other vital organs and

systems,

causing a dysfunction in immune system and elsewhere.

In other words, do these kids have gut issues, immune system difficulties and so

on, also?

Or do they dramatically differ from other kids on the spectrum with their

symptoms other

than behavioral? The same goes for fragile X syndrome...etc.

I think we have to keep in mind that research has to be directed toward helping

all kids on

the spectrum, regardless of how they ended up there. But, I also think the

environmental

issues have to take priority right now as too many children are ending up on the

spectrum

due to these issues.

Perhaps (wishful thinking) NAAR would be more inclined to step out of the way if

they got

more thank yous for the job they tried to accomplish in the past rather than

complete

criticism. I wonder sometimes if it isn't egos at play right now and a

determination to

'prove' to us all that they were right because of the harsh words they have

heard.

I know I know...wishful thinking...but at the same time, you do catch more bees

with

honey....

Col

> > > >

> > > > http://www.autismspeaks.org/wrights_statement.php

> > > > <http://www.autismspeaks.org/wrights_statement.php>

> > > >

> > > > Statement from Bob and Suzanne , Co-founders of Autism

> > Speaks

> > > >

> > > > is not a spokesperson for Autism Speaks. Our

> > daughter's

> > > > personal views differ from ours and do not represent or reflect

> > the

> > > > ongoing mission of Autism Speaks. Her appearance with Kirby

> > was

> > > > done without the knowledge or consent of Autism Speaks.

> > > >

> > > > Autism Speaks is committed to finding the causes of and a cure for

> > > > autism. We are proud of our scientifically based research

> > programs,

> > > > including those established by NAAR and CAN, and will continue to

> > pursue

> > > > them. The members of our scientific advisory teams have impeccable

> > > > credentials and we fully support them. There is no question that

> > > > genetics plays the leading role in autism and that environmental

> > > > triggers are key issues for many children. These areas, as well as

> > > > biomedical treatments, need huge research support.

> > > >

> > > > Autism Speaks merged with NAAR because it believes in and

> > supports its

> > > > scientific mission, methods, and advisory board. We are proud of

> > the

> > > > accomplishments of NAAR and grateful to the families and

> > volunteers who

> > > > created it. They are a tremendously valued part of Autism Speaks.

> > We

> > > > welcome input from volunteers and parents/guardians of children

> > with

> > > > autism of all ages, including adults with autism. We apologize to

> > our

> > > > valued volunteers who were led to believe otherwise by our

> > daughter's

> > > > statement.

> > > >

> > >

> >

>

June 5, 2007

> Actually, it was Dana Halvorson, Bob Krakow, and other folks at ACHAMP that we

can

> thank for educating Senator Harkin on short notice before the Appropriations

hearing. It

> was due to this fact that Sen. Harkin raised the questions that he did

regarding vaccines.

>

,

I know. I was one of them.

I wasn't talking about Harkin's general knowledge and his initiative to bring

the subject up.

Yes, that was very much due to all of us at A-Champ that called him and Spector

and

others on the committee, although Harkin and Spector were the main focus with

much

emphasis on Senator Harkin.

I was only speaking of that one moment when Harkin could not remember the exact

number of vaccines given in the first 18 months of life and Bob spoke out

with the

number.

Sorry if I didn't make that clear.

Col

June 5, 2007

Thank you .

Since history is easily forgotten...

If it were not for A-CHAMP no one in the community other than Autism

Speaks and perhaps one other group would even have known about the

Harkin " Combating Autism " hearing.

And yes, the IOWA A-CHAMP contingent (Dana and others) were especially

effective the day before the hearing.) That is why the A-CHAMP

political network is so important. A-CHAMP got wind of the hearing two

business days prior to the event. NO ONE ELSE IN THE COMMUNITY KNEW

ABOUT IT until A-CHAMP announced it to the rest of us.

That is what A-CHAMP has always done. We broadcast the news to the

entire community - about all the secret hearings and insider activity.

We call that autism democracy, as opposed to the autism oligarchy that

now prevails in our community.

It is a fair question for everyone in the autism community to ask: why

did those who who participated in the planning of the hearing for at

least one month not notify their fellow parents and grandparents in the

autism community?

The implications of what happened with the " Combating Autism " hearing

are particularly outrageous and tell us all we need to know about the

state of the autism community, and the lack of responsibility to the

larger community exercised by some self-appointed leaders of the

community.

The point is that this is not about some family dramaâ€“ this affects

each and every one of us in a profound way. We are being forgotten and

disrespected. Our children will suffer as a result.

Raise your voices beyond this damn list and perhaps you won't be

ignored. (Sorry if I am preaching to part of the choir.)

Bob Krakow

President, A-CHAMP

On Jun 5, 2007, at 12:41 AM, analyzinggal wrote:

> Actually, it was Dana Halvorson, Bob Krakow, and other folks at

ACHAMP that we can

> thank for educating Senator Harkin on short notice before the

Appropriations hearing. It

> was due to this fact that Sen. Harkin raised the questions that he

did regarding vaccines.

>

,

I know. I was one of them.

I wasn't talking about Harkin's general knowledge and his initiative

to bring the subject up.

Yes, that was very much due to all of us at A-Champ that called him

and Spector and

others on the committee, although Harkin and Spector were the main

focus with much

emphasis on Senator Harkin.

I was only speaking of that one moment when Harkin could not remember

the exact

number of vaccines given in the first 18 months of life and Bob

spoke out with the

number.

Sorry if I didn't make that clear.

Col

June 5, 2007

But if you raise your voice, prepare yourself to be called lots of

fabulous names by the SHEEPLES who follow Autism Speaks BLINDLY.

I'm continually amazed at how people are led around by the nose and

cannot think for themselves.

CW

>

> > Actually, it was Dana Halvorson, Bob Krakow, and other folks at

> ACHAMP that we can

> > thank for educating Senator Harkin on short notice before the

> Appropriations hearing. It

> > was due to this fact that Sen. Harkin raised the questions that he

> did regarding vaccines.

> >

>

> ,

>

> I know. I was one of them.

>

> I wasn't talking about Harkin's general knowledge and his initiative

> to bring the subject up.

> Yes, that was very much due to all of us at A-Champ that called him

> and Spector and

> others on the committee, although Harkin and Spector were the main

> focus with much

> emphasis on Senator Harkin.

>

> I was only speaking of that one moment when Harkin could not remember

> the exact

> number of vaccines given in the first 18 months of life and Bob

> spoke out with the

> number.

>

> Sorry if I didn't make that clear.

>

> Col

>

June 5, 2007

All true, but relatively rare.

Fading into the background?

Works for me.

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

Henry,I have no idea how they can deal with all of that, to be honest. I am not convinced they will ever do anything. The only thing I see actually happening at some point is them finally fading into the background once more promising research comes to light and finally overshadows them.However, in fairness, I think we also have to give consideration to those children who developed autism for other reasons. I have heard from parents who had children suffer a lack of oxygen during birth and it left them autistic. What I am curious to know, ultimately, is if a lack of oxygen depriving the brain also deprived other vital organs and systems, causing a dysfunction in immune system and elsewhere. In other words, do these kids have gut issues, immune system difficulties and so on, also? Or do they dramatically differ from other kids on the spectrum with their symptoms other than behavioral? The same goes for fragile X syndrome...etc.I think we have to keep in mind that research has to be directed toward helping all kids on the spectrum, regardless of how they ended up there. But, I also think the environmental issues have to take priority right now as too many children are ending up on the spectrum due to these issues.Perhaps (wishful thinking) NAAR would be more inclined to step out of the way if they got more thank yous for the job they tried to accomplish in the past rather than complete criticism. I wonder sometimes if it isn't egos at play right now and a determination to 'prove' to us all that they were right because of the harsh words they have heard. I know I know...wishful thinking...but at the same time, you do catch more bees with honey....Col> > > >> > > > > > > > http://www.autismspeaks.org/wrights_statement.php> > > > <http://www.autismspeaks.org/wrights_statement.php>> > > > > > > > > > > > > > > > Statement from Bob and Suzanne , Co-founders of Autism > > Speaks> > > > > > > > > > > > > > > > > > > > > > > > is not a spokesperson for Autism Speaks. Our > > daughter's> > > > personal views differ from ours and do not represent or reflect > > the> > > > ongoing mission of Autism Speaks. Her appearance with Kirby > > was> > > > done without the knowledge or consent of Autism Speaks.> > > > > > > > > > > > > > > > Autism Speaks is committed to finding the causes of and a cure for> > > > autism. We are proud of our scientifically based research > > programs,> > > > including those established by NAAR and CAN, and will continue to > > pursue> > > > them. The members of our scientific advisory teams have impeccable> > > > credentials and we fully support them. There is no question that> > > > genetics plays the leading role in autism and that environmental> > > > triggers are key issues for many children. These areas, as well as> > > > biomedical treatments, need huge research support.> > > > > > > > > > > > > > > > Autism Speaks merged with NAAR because it believes in and > > supports its> > > > scientific mission, methods, and advisory board. We are proud of > > the> > > > accomplishments of NAAR and grateful to the families and > > volunteers who> > > > created it. They are a tremendously valued part of Autism Speaks. > > We> > > > welcome input from volunteers and parents/guardians of children > > with> > > > autism of all ages, including adults with autism. We apologize to > > our> > > > valued volunteers who were led to believe otherwise by our > > daughter's> > > > statement.> > > >> > >> >>

June 5, 2007

Great points. We need to continue to discuss this issue on this group. Raise

your voice

anyway, AS will not lead with integrity, so it is up to you. These kids and

families are

worth it. Nothing will change without a collaborative effort to change

legislation. You can

bitch and complain on this list all you want and it will do nothing if you

cannot change the

laws. The states are the best opportunity to do this, as well as local media

and even

counties which have listened to groups like A-champ in banning mercury from

vaccines

(see you tube video from H. / thrillcats). You didn't cause all of

this, but, you are

responsible for this, what are you going to do about it?

> >

> > > Actually, it was Dana Halvorson, Bob Krakow, and other folks at

> > ACHAMP that we can

> > > thank for educating Senator Harkin on short notice before the

> > Appropriations hearing. It

> > > was due to this fact that Sen. Harkin raised the questions that he

> > did regarding vaccines.

> > >

> >

> > ,

> >

> > I know. I was one of them.

> >

> > I wasn't talking about Harkin's general knowledge and his initiative

> > to bring the subject up.

> > Yes, that was very much due to all of us at A-Champ that called him

> > and Spector and

> > others on the committee, although Harkin and Spector were the main

> > focus with much

> > emphasis on Senator Harkin.

> >

> > I was only speaking of that one moment when Harkin could not remember

> > the exact

> > number of vaccines given in the first 18 months of life and Bob

>

> > spoke out with the

> > number.

> >

> > Sorry if I didn't make that clear.

> >

> > Col

> >

>

June 5, 2007

Did you mean what are " you " going to do about it, as in me personally?

Or " you " as in all of us collectively as a group.

We all need to speak up -- the money they are raising is exorbitant --

it's the autism community's money. Where is it going? Who is it

going to??

They (AS) just came here to Pittsburgh last weekend and walked out

with $900,000. Those of us in the trenches, struggling to help

families, struggling to get by, to provide SERVICES who actually WORK

WITH THE KIDS can't get any money. Why? Because people give to the

walk and they say " I gave to autism. " They don't know WHO they gave

to or the politics involved.

Will any of this money come back to our community? Doubtful. Are

they working with AutismLink or the AUtism Center of PIttsburgh to

help us fund all of the information we give out and all of the help we

provide to families? No.

You know what they're doing? They're now starting " CHAPTERS " all over

the country to re-invent the wheel YET AGAIN.

> > >

> > > > Actually, it was Dana Halvorson, Bob Krakow, and other folks at

> > > ACHAMP that we can

> > > > thank for educating Senator Harkin on short notice before the

> > > Appropriations hearing. It

> > > > was due to this fact that Sen. Harkin raised the questions

that he

> > > did regarding vaccines.

> > > >

> > >

> > > ,

> > >

> > > I know. I was one of them.

> > >

> > > I wasn't talking about Harkin's general knowledge and his

initiative

> > > to bring the subject up.

> > > Yes, that was very much due to all of us at A-Champ that

called him

> > > and Spector and

> > > others on the committee, although Harkin and Spector were the

main

> > > focus with much

> > > emphasis on Senator Harkin.

> > >

> > > I was only speaking of that one moment when Harkin could not

remember

> > > the exact

> > > number of vaccines given in the first 18 months of life and Bob

> >

> > > spoke out with the

> > > number.

> > >

> > > Sorry if I didn't make that clear.

> > >

> > > Col

> > >

> >

>

June 5, 2007

the average autism family members, not involved in politics, EOH, A-Champ and the like believe in AS and do not question anything they do. I know from my experience with all the autism families in my locale. They do not take their understanding of the organization anyplace but- merely state "Oh, AS, they are making so much money for autism-must be a great organization and look at the CAA-all that money for autism-yeah rah rah- It is our job to educate these people, as best we can, as to what is truly happening---and why the money is not goin g to our families. Maurineautismlink <cindy@...> wrote: Did you mean what are "you" going to do about it, as in me personally?Or "you" as in all of us collectively as a group.We all need to speak up -- the money they are raising is exorbitant --it's the autism community's money. Where is it going? Who is itgoing to??They (AS) just came here to Pittsburgh last weekend and walked outwith $900,000. Those of us in the trenches, struggling to helpfamilies, struggling to get by, to provide SERVICES who actually WORKWITH THE KIDS can't get any money. Why? Because people give to thewalk and they say "I gave to autism." They don't know WHO they gaveto or the politics involved.Will any of this money come back to our community? Doubtful. Arethey working with AutismLink or the AUtism Center of PIttsburgh tohelp us fund all of the information we give

out and all of the help weprovide to families? No.You know what they're doing? They're now starting "CHAPTERS" all overthe country to re-invent the wheel YET AGAIN.> > > > > > > Actually, it was Dana Halvorson, Bob Krakow, and other folks at > > > ACHAMP that we can> > > > thank for educating Senator Harkin on short notice before the > > > Appropriations hearing. It> > > > was due to this fact that Sen. Harkin raised the questionsthat he > > > did regarding vaccines.>

> > > > > > >> > > > > > ,> > > > > > I know. I was one of them.> > > > > > I wasn't talking about Harkin's general knowledge and hisinitiative > > > to bring the subject up.> > > Yes, that was very much due to all of us at A-Champ thatcalled him > > > and Spector and> > > others on the committee, although Harkin and Spector were themain > > > focus with much> > > emphasis on Senator Harkin.> > > > > > I was only speaking of that one moment when Harkin could notremember > > > the exact> > > number of vaccines given in the first 18 months of life and Bob> > > > > spoke out with the> > > number.> > > > > > Sorry if I didn't make that clear.>

> > > > > Col> > >> >>

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

June 5, 2007

No, not you personally , but anyone who sees the injustice and knows things

need to be done, but, they just complain and never become proactive and

take action. AS is just better than all of us at fundraising. We are all envy

the money they raise, yet, most of us don't raise any money or donate time and

resources

to other autism organizations. It gets a little old when people bitch, yet have

no solutions

or are afraid of failure, so they don't try something. We will miss 100% of the

shots we

don't take. Donate or fundraise for your preferred autism groups. AS will gain

major

market share over the local ASA's because they have the money and focus on doing

so.

Lets face it they are a well oiled machine. Just look at their recent 990 form.

We need to

organize and collaborate with the smaller biomedical friendly groups and focus

like a laser

on a few issues. i.e. legislation, services, research. I find it counter

productive for 10

different autism organizations with similar goals not to collaborate. We all

have our views

on why this happens. At the same time we know collaboration works and we must

collaborate if we think AS is not representing the best interests of our kids

and families.

> > > >

> > > > > Actually, it was Dana Halvorson, Bob Krakow, and other folks at

> > > > ACHAMP that we can

> > > > > thank for educating Senator Harkin on short notice before the

> > > > Appropriations hearing. It

> > > > > was due to this fact that Sen. Harkin raised the questions

> that he

> > > > did regarding vaccines.

> > > > >

> > > >

> > > > ,

> > > >

> > > > I know. I was one of them.

> > > >

> > > > I wasn't talking about Harkin's general knowledge and his

> initiative

> > > > to bring the subject up.

> > > > Yes, that was very much due to all of us at A-Champ that

> called him

> > > > and Spector and

> > > > others on the committee, although Harkin and Spector were the

> main

> > > > focus with much

> > > > emphasis on Senator Harkin.

> > > >

> > > > I was only speaking of that one moment when Harkin could not

> remember

> > > > the exact

> > > > number of vaccines given in the first 18 months of life and Bob

> > >

> > > > spoke out with the

> > > > number.

> > > >

> > > > Sorry if I didn't make that clear.

> > > >

> > > > Col

> > > >

> > >

> >

>

June 5, 2007

,

Lighten up on your personal sensitivity level, OK? : )

Also, where do you find the info. about the AS state chapters? Are the

current chapters former CAN chapters? AS hasn't updated this site, but

it looks like the rest of the world can anticipate AS chapters soon,

as well - beginning in the UK and Canada.

http://www.autismspeaks.org/community/chapters/index.php

Casper

>

> Did you mean what are " you " going to do about it, as in me personally?

> Or " you " as in all of us collectively as a group.

>

> We all need to speak up -- the money they are raising is exorbitant --

> it's the autism community's money. Where is it going? Who is it

> going to??

>

> They (AS) just came here to Pittsburgh last weekend and walked out

> with $900,000. Those of us in the trenches, struggling to help

> families, struggling to get by, to provide SERVICES who actually WORK

> WITH THE KIDS can't get any money. Why? Because people give to the

> walk and they say " I gave to autism. " They don't know WHO they gave

> to or the politics involved.

>

> Will any of this money come back to our community? Doubtful. Are

> they working with AutismLink or the AUtism Center of PIttsburgh to

> help us fund all of the information we give out and all of the help we

> provide to families? No.

>

> You know what they're doing? They're now starting " CHAPTERS " all over

> the country to re-invent the wheel YET AGAIN.

>

June 6, 2007

Sorry, once bitten, twice shy. Or maybe 1ox shy in my case. :-)

Consider me lightened up.

> >

> > Did you mean what are " you " going to do about it, as in me personally?

> > Or " you " as in all of us collectively as a group.

> >

> > We all need to speak up -- the money they are raising is exorbitant --

> > it's the autism community's money. Where is it going? Who is it

> > going to??

> >

> > They (AS) just came here to Pittsburgh last weekend and walked out

> > with $900,000. Those of us in the trenches, struggling to help

> > families, struggling to get by, to provide SERVICES who actually WORK

> > WITH THE KIDS can't get any money. Why? Because people give to the

> > walk and they say " I gave to autism. " They don't know WHO they gave

> > to or the politics involved.

> >

> > Will any of this money come back to our community? Doubtful. Are

> > they working with AutismLink or the AUtism Center of PIttsburgh to

> > help us fund all of the information we give out and all of the help we

> > provide to families? No.

> >

> > You know what they're doing? They're now starting " CHAPTERS " all over

> > the country to re-invent the wheel YET AGAIN.

> >

>

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Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

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